ID

16608

Beschrijving

https://www.hope-clara.de/ The HOPE Hospice and Palliative Care Recording standard documentation is used for documentation of palliative care and as an instrument for quality assurance in pallatiave wards, hospices and oncological wards as well as in ambulatory services and palliative teams. The questionnaire for grief counseling belongs to documentation of the Gernan Grief Institute (Deutsches Trauerinstitut) [Paul 2003]. The questionnaire allows to evaluate the grief counseling retrospectively. With respect to the major documention the questionnaire is offered as a module. Paul, C. (2003). Dokumentationsbögen für ehrenamtliche Trauerbegleitung im Rahmen von Hospizdiensten. Bonn, Pallia Med Verlag.

Link

https://www.hope-clara.de/

Trefwoorden

  1. 26-07-16 26-07-16 -
  2. 26-07-16 26-07-16 -
  3. 26-07-16 26-07-16 -
  4. 26-07-16 26-07-16 -
Geüploaded op

26 juli 2016

DOI

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Licentie

Creative Commons BY-NC 3.0

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Palliative and Hospice Care Grief Counseling Retrospective View

Palliative and Hospice Care Grief Counseling Retrospective View

Administrative data
Beschrijving

Administrative data

13. Datum
Beschrijving

date of interview

Datatype

date

Alias
UMLS CUI [1]
C0011008
1. IDNR
Beschrijving

id

Datatype

text

Alias
UMLS CUI [1]
C1300638
TR1. Counseling
Beschrijving

TR1. Counseling

Counseling person
Beschrijving

counseling person

Datatype

text

Alias
UMLS CUI [1,1]
C0027361
UMLS CUI [1,2]
C0474161
Duration of counseling (From - To)
Beschrijving

duration of counseling

Datatype

text

Alias
UMLS CUI [1,1]
C0474161
UMLS CUI [1,2]
C0449238
Place of conversations
Beschrijving

place of conversations

Datatype

text

Alias
UMLS CUI [1]
C0442504
Frequency of encounter
Beschrijving

frequency of encounter

Datatype

text

Alias
UMLS CUI [1]
C0422341
TR2. Other contacts
Beschrijving

TR2. Other contacts

By mourners - Phone calls
Beschrijving

phone calls

Datatype

text

Alias
UMLS CUI [1]
C0302186
By mourners - letters
Beschrijving

letters

Datatype

text

Alias
UMLS CUI [1]
C1096774
By mourners - email
Beschrijving

emails

Datatype

text

Alias
UMLS CUI [1]
C0013849
By counseling person - phone calls
Beschrijving

phone calls counseling person

Datatype

text

Alias
UMLS CUI [1]
C0302186
By counseling person - letter
Beschrijving

letter counseling person

Datatype

text

Alias
UMLS CUI [1]
C1096774
By counseling person - emails
Beschrijving

emails counseling person

Datatype

text

Alias
UMLS CUI [1]
C0013849
TR3. Activities
Beschrijving

TR3. Activities

Activities
Beschrijving

activities

Datatype

text

Alias
UMLS CUI [1,1]
C0441655
UMLS CUI [1,2]
C0474161
TR4. Conversations about emotions
Beschrijving

TR4. Conversations about emotions

Conversation about feelings
Beschrijving

conversations about emotions

Datatype

text

Alias
UMLS CUI [1]
C0515993
Other:
Beschrijving

other topic of conversation

Datatype

text

Alias
UMLS CUI [1,1]
C0515993
UMLS CUI [1,2]
C0205394
TR5. Conversations about the deceased
Beschrijving

TR5. Conversations about the deceased

Conversations about deceased
Beschrijving

conversations about deceased

Datatype

text

Alias
UMLS CUI [1,1]
C0582166
UMLS CUI [1,2]
C0425043
Other
Beschrijving

other topic of conversation about the deceased

Datatype

text

Alias
UMLS CUI [1,1]
C0582166
UMLS CUI [1,2]
C0425043
UMLS CUI [1,3]
C0205394
TR7. Conversations about problems
Beschrijving

TR7. Conversations about problems

Talk about problems with
Beschrijving

talk about problems

Datatype

text

Alias
UMLS CUI [1,1]
C0871703
UMLS CUI [1,2]
C0037431
Other:
Beschrijving

other person to talk to

Datatype

text

Alias
UMLS CUI [1,1]
C0871703
UMLS CUI [1,2]
C0037431
UMLS CUI [1,3]
C0205394
TR9. Conversations about religious and spiritual topics
Beschrijving

TR9. Conversations about religious and spiritual topics

Talk about religious and spiritual topics
Beschrijving

talk about religious and spiritual topics

Datatype

text

Alias
UMLS CUI [1,1]
C0871703
UMLS CUI [1,2]
C0035039
Other:
Beschrijving

other religious topic

Datatype

text

Alias
UMLS CUI [1,1]
C0871703
UMLS CUI [1,2]
C0035039
UMLS CUI [1,3]
C0205394
TR10. Conversations about other topics of life
Beschrijving

TR10. Conversations about other topics of life

Talk about other topics of life
Beschrijving

talk about other topics of life

Datatype

text

Alias
UMLS CUI [1,1]
C0871703
UMLS CUI [1,2]
C0376558
Other:
Beschrijving

other life topic

Datatype

text

Alias
UMLS CUI [1,1]
C0871703
UMLS CUI [1,2]
C0376558
UMLS CUI [1,3]
C0205394
TR.11 Conversations about changes
Beschrijving

TR.11 Conversations about changes

Talk about changes
Beschrijving

talk about changes

Datatype

text

Alias
UMLS CUI [1,1]
C0871703
UMLS CUI [1,2]
C0392747
Other:
Beschrijving

other topic of change

Datatype

text

Alias
UMLS CUI [1,1]
C0871703
UMLS CUI [1,2]
C0392747
UMLS CUI [1,3]
C0205394
TR12. Termination of grief counseling process
Beschrijving

TR12. Termination of grief counseling process

Determination of grief counseling
Beschrijving

determination of grief counseling

Datatype

text

Alias
UMLS CUI [1,1]
C1148554
UMLS CUI [1,2]
C0474161
Other
Beschrijving

other determination

Datatype

text

Alias
UMLS CUI [1,1]
C1148554
UMLS CUI [1,2]
C0474161
UMLS CUI [1,3]
C0205394
TR13. Remarks
Beschrijving

TR13. Remarks

Remarks
Beschrijving

remarks

Datatype

text

Alias
UMLS CUI [1]
C0947611

Similar models

Palliative and Hospice Care Grief Counseling Retrospective View

Name
Type
Description | Question | Decode (Coded Value)
Datatype
Alias
Item Group
Administrative data
date of interview
Item
13. Datum
date
C0011008 (UMLS CUI [1])
id
Item
1. IDNR
text
C1300638 (UMLS CUI [1])
Item Group
TR1. Counseling
counseling person
Item
Counseling person
text
C0027361 (UMLS CUI [1,1])
C0474161 (UMLS CUI [1,2])
duration of counseling
Item
Duration of counseling (From - To)
text
C0474161 (UMLS CUI [1,1])
C0449238 (UMLS CUI [1,2])
place of conversations
Item
Place of conversations
text
C0442504 (UMLS CUI [1])
Item
Frequency of encounter
text
C0422341 (UMLS CUI [1])
Code List
Frequency of encounter
CL Item
Weekly (Weekly)
CL Item
Monthly (Monthly)
CL Item
Other (Other)
Item Group
TR2. Other contacts
Item
By mourners - Phone calls
text
C0302186 (UMLS CUI [1])
Code List
By mourners - Phone calls
CL Item
Often (Often)
CL Item
Occasionally (Occasionally)
CL Item
Not at all (Not at all)
Item
By mourners - letters
text
C1096774 (UMLS CUI [1])
Code List
By mourners - letters
CL Item
Often (Often)
CL Item
Occasionally (Occasionally)
CL Item
Not at all (Not at all)
Item
By mourners - email
text
C0013849 (UMLS CUI [1])
Code List
By mourners - email
CL Item
Often (Often)
CL Item
Occasionally (Occasionally)
CL Item
Not at all (Not at all)
Item
By counseling person - phone calls
text
C0302186 (UMLS CUI [1])
Code List
By counseling person - phone calls
CL Item
Often (Often)
CL Item
Occasionally (Occasionally)
CL Item
Not at all (Not at all)
Item
By counseling person - letter
text
C1096774 (UMLS CUI [1])
Code List
By counseling person - letter
CL Item
Often (Often)
CL Item
Occasionally (Occasionally)
CL Item
Not at all (Not at all)
Item
By counseling person - emails
text
C0013849 (UMLS CUI [1])
Code List
By counseling person - emails
CL Item
Often (Often)
CL Item
Occasionally (Occasionally)
CL Item
Not at all (Not at all)
Item Group
TR3. Activities
Item
Activities
text
C0441655 (UMLS CUI [1,1])
C0474161 (UMLS CUI [1,2])
Code List
Activities
CL Item
Help to care for grave (Help to care for grave)
CL Item
Support in bureaucratic affairs (Support in bureaucratic affairs)
CL Item
Organization of one's leisure time (Organization of one's leisure time)
CL Item
Management of inheritage (Management of inheritage)
CL Item
Go for a walk (Go for a walk)
CL Item
Other (Other)
Item Group
TR4. Conversations about emotions
Item
Conversation about feelings
text
C0515993 (UMLS CUI [1])
Code List
Conversation about feelings
CL Item
Loneliness (Loneliness)
CL Item
Anger (Anger)
CL Item
Fear (Fear)
CL Item
Recrimination against others (Recrimination against others)
CL Item
Gratefulness (Gratefulness)
CL Item
Desire (Desire)
CL Item
Hopelessness (Hopelessness)
CL Item
Feelings of guilt (Feelings of guilt)
CL Item
Relief (Relief)
CL Item
Brokenness (Brokenness)
CL Item
Other (Other)
other topic of conversation
Item
Other:
text
C0515993 (UMLS CUI [1,1])
C0205394 (UMLS CUI [1,2])
Item Group
TR5. Conversations about the deceased
Item
Conversations about deceased
text
C0582166 (UMLS CUI [1,1])
C0425043 (UMLS CUI [1,2])
Code List
Conversations about deceased
CL Item
the relationship (the relationship)
CL Item
bad memories (bad memories)
CL Item
prehistory of dying (prehistory of dying)
CL Item
role of deceased person in life (role of deceased person in life)
CL Item
wondering how the deceased person is now (wondering how the deceased person is now)
CL Item
good memories (good memories)
CL Item
things that remain unresolved (things that remain unresolved)
CL Item
the suffering of the dying person (the suffering of the dying person)
CL Item
the dying (the dying)
CL Item
other (other)
other topic of conversation about the deceased
Item
Other
text
C0582166 (UMLS CUI [1,1])
C0425043 (UMLS CUI [1,2])
C0205394 (UMLS CUI [1,3])
Item Group
TR7. Conversations about problems
Item
Talk about problems with
text
C0871703 (UMLS CUI [1,1])
C0037431 (UMLS CUI [1,2])
Code List
Talk about problems with
CL Item
Family members (Family members)
CL Item
Neighbors (Neighbors)
CL Item
Friends (Friends)
CL Item
Employer/peers (Employer/peers)
CL Item
Other (Other)
other person to talk to
Item
Other:
text
C0871703 (UMLS CUI [1,1])
C0037431 (UMLS CUI [1,2])
C0205394 (UMLS CUI [1,3])
Item Group
TR9. Conversations about religious and spiritual topics
Item
Talk about religious and spiritual topics
text
C0871703 (UMLS CUI [1,1])
C0035039 (UMLS CUI [1,2])
Code List
Talk about religious and spiritual topics
CL Item
Meaning of life (Meaning of life)
CL Item
Dreams of the deceased person (Dreams of the deceased person)
CL Item
Feelings of presence of the deceased person or signs and messages (Feelings of presence of the deceased person or signs and messages)
CL Item
Questions of faith (Questions of faith)
CL Item
Imaginations of life after death (Imaginations of life after death)
CL Item
Other (Other)
other religious topic
Item
Other:
text
C0871703 (UMLS CUI [1,1])
C0035039 (UMLS CUI [1,2])
C0205394 (UMLS CUI [1,3])
Item Group
TR10. Conversations about other topics of life
Item
Talk about other topics of life
text
C0871703 (UMLS CUI [1,1])
C0376558 (UMLS CUI [1,2])
Code List
Talk about other topics of life
CL Item
Early loss (Early loss)
CL Item
Sense of archievement (Sense of archievement)
CL Item
Other problems or injuries (Other problems or injuries)
CL Item
Fortune and pleasure (Fortune and pleasure)
CL Item
Other (Other)
other life topic
Item
Other:
text
C0871703 (UMLS CUI [1,1])
C0376558 (UMLS CUI [1,2])
C0205394 (UMLS CUI [1,3])
Item Group
TR.11 Conversations about changes
Item
Talk about changes
text
C0871703 (UMLS CUI [1,1])
C0392747 (UMLS CUI [1,2])
Code List
Talk about changes
CL Item
Change in attitude towards life (Change in attitude towards life)
CL Item
Changed relationships within the family or friends (Changed relationships within the family or friends)
CL Item
Moving or rearrangement of the home (Moving or rearrangement of the home)
CL Item
New activities (New activities)
CL Item
New friends (New friends)
CL Item
New partners (New partners)
CL Item
Other (Other)
other topic of change
Item
Other:
text
C0871703 (UMLS CUI [1,1])
C0392747 (UMLS CUI [1,2])
C0205394 (UMLS CUI [1,3])
Item Group
TR12. Termination of grief counseling process
Item
Determination of grief counseling
text
C1148554 (UMLS CUI [1,1])
C0474161 (UMLS CUI [1,2])
Code List
Determination of grief counseling
CL Item
Came from grieving person (Came from grieving person)
CL Item
Came from counseling person (Came from counseling person)
CL Item
Resistance from grieving person (Resistance from grieving person)
CL Item
Unexpected for the counseling person (Unexpected for the counseling person)
CL Item
Consensually (Consensually)
CL Item
Along with arrangement to stay in contact (Along with arrangement to stay in contact)
CL Item
Other (Other)
other determination
Item
Other
text
C1148554 (UMLS CUI [1,1])
C0474161 (UMLS CUI [1,2])
C0205394 (UMLS CUI [1,3])
Item Group
TR13. Remarks
remarks
Item
Remarks
text
C0947611 (UMLS CUI [1])

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