Informações:
Falhas:
ID
16285
Descrição
ODM form derived from 16pp EBMT Multiple Myeloma 10PCD. please refer to: http://www.ebmt.org/Contents/Data-Management/Registrystructure/MED-ABdatacollectionforms/Pages/MED-AB-data-collection-forms.aspx
Link
Palavras-chave
Versões (2)
- 25/04/2016 25/04/2016 -
- 09/07/2016 09/07/2016 -
Transferido a
9 de julho de 2016
DOI
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Licença
Creative Commons BY-NC 3.0
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EBMT Inherited Disorders General Information
EBMT Inherited Disorders
- StudyEvent: ODM
Similar models
EBMT Inherited Disorders
- StudyEvent: ODM
Name
Tipo
Description | Question | Decode (Coded Value)
Tipo de dados
Alias
EBMT Centre Identification Code
Item
EBMT Centre Identification Code (CIC)
text
C0802049 (UMLS CUI [1])
Hospital
Item
Hospital
text
C0019994 (UMLS CUI [1])
Unit
Item
Unit
integer
C1519795 (UMLS CUI [1])
Contact person
Item
Name of contact person
text
C0337611 (UMLS CUI [1])
Telephone
Item
Telephone number of contact person
text
C1515258 (UMLS CUI [1])
Fax
Item
Fax
text
C1549619 (UMLS CUI [1])
E-mail
Item
E-mail
integer
C1705961 (UMLS CUI [1])
Date of this report
Item
Date of this report
date
C1302584 (UMLS CUI [1])
Patient following national / international study / trial
Item
STUDY/TRIAL
integer
C1997894 (UMLS CUI [1])
Item
Patient following national / international study / trial
integer
C1997894 (UMLS CUI [1])
Code List
Patient following national / international study / trial
CL Item
no (1)
CL Item
yes (2)
CL Item
unknown (3)
Name of study / trial
Item
Name of study / trial
text
C0008976 (UMLS CUI [1])
Unique Identification Code (UIC)
Item
To be entered only if patient previously reported
text
C2348585 (UMLS CUI [1])
Hospital Unique Patient Number or Code
Item
Hospital Unique Patient Number or Code
text
C1827636 (UMLS CUI [1])
Initials
Item
First name(s)_surname(s) Registrations will not be accepted if this item is left blank
text
C2986440 (UMLS CUI [1])
Date of birth
Item
Date of birth
date
C0421451 (UMLS CUI [1])
CL Item
Male (1)
CL Item
Female (2)
ABO Group
Item
ABO Group
integer
C0000778 (UMLS CUI [1])
CL Item
Absent (1)
CL Item
Present (2)
CL Item
Not evaluated (3)
Date of Diagnosis
Item
Date of Diagnosis
date
C2316983 (UMLS CUI [1])
CL Item
Acute Leukaemia (Acute Leukaemia)
C0085669 (UMLS CUI-1)
CL Item
Acute Myelogenous Leukaemia (AML) (Acute Myelogenous Leukaemia (AML))
C0023467 (UMLS CUI-1)
CL Item
Acute Lymphoblastic Leukaemia (ALL) (Acute Lymphoblastic Leukaemia (ALL))
C0023449 (UMLS CUI-1)
CL Item
Secondary Acute Leukaemia (do not use if transformed from MDS/MPN) (Secondary Acute Leukaemia (do not use if transformed from MDS/MPN))
C0856053 (UMLS CUI-1)
CL Item
Chronic Leukaemia (Chronic Leukaemia)
C0856053 (UMLS CUI-1)
CL Item
Chronic Myeloid Leukaemia (CML) (Chronic Myeloid Leukaemia (CML))
C0023473 (UMLS CUI-1)
CL Item
Chronic Lymphocytic Leukaemia (Chronic Lymphocytic Leukaemia)
C0023434 (UMLS CUI-1)
CL Item
Lymphoma (Lymphoma)
C0024299 (UMLS CUI-1)
CL Item
Non Hodgkin (Non Hodgkin)
C0024305 (UMLS CUI-1)
CL Item
Myeloma/ Plasma cell disorder (Myeloma/ Plasma cell disorder)
C0026764 (UMLS CUI-1)
CL Item
Solid Tumour (Solid Tumour)
C0006826 (UMLS CUI-1)
CL Item
Myelodysplastic syndromes (Myelodysplastic syndromes)
C0280450 (UMLS CUI-1)
CL Item
MDS (MDS)
C3463824 (UMLS CUI-1)
CL Item
MD/ MPN (MD/ MPN)
C1292778 (UMLS CUI-1)
CL Item
Myeloproliferative neoplasm (Myeloproliferative neoplasm)
C1333046 (UMLS CUI-1)
CL Item
Bone marrow failure including Aplastic anaemia (Bone marrow failure including Aplastic anaemia)
C0002874 (UMLS CUI-1)
CL Item
Inherited disorders (Inherited disorders)
C0019247 (UMLS CUI-1)
CL Item
Primary immune deficiencies (Primary immune deficiencies)
C0398686 (UMLS CUI-1)
CL Item
Metabolic disorders (Metabolic disorders)
C0025517 (UMLS CUI-1)
CL Item
Histiocytic disorders (Histiocytic disorders)
C0398597 (UMLS CUI-1)
CL Item
Autoimmune disease (Autoimmune disease)
C0004364 (UMLS CUI-1)
CL Item
Juvenile Idiopathic Arthritis (Juvenile Idiopathic Arthritis)
C1444841 (UMLS CUI-1)
CL Item
Multiple Sclerosis (Multiple Sclerosis)
C0026769 (UMLS CUI-1)
CL Item
Systemic Lupus (Systemic Lupus)
C0024141 (UMLS CUI-1)
CL Item
Systemic Sclerosis (Systemic Sclerosis)
C0036421 (UMLS CUI-1)
CL Item
Haemoglobinopathies (Haemoglobinopathiy)
C0019045 (UMLS CUI-1)
CL Item
Other diagnosis (Other diagnosis)
C0205394 (UMLS CUI-1)
CL Item
Hodgkin´s Disease (Hodgkin´s Disease)
C0019829 (UMLS CUI-1)
Primary Disease Diagnosis
Item
Other diagnosis, specify
text
C0277554 (UMLS CUI [1])
Item
Has the information requested in this section been submitted with a previous HSCT registration?
integer
C1514821 (UMLS CUI [1])
Code List
Has the information requested in this section been submitted with a previous HSCT registration?
CL Item
Yes: go to `Pre-HSCT treatment` (Yes: go to `Pre-HSCT treatment`)
CL Item
No: Proceed with this section (No: Proceed with this section)
Item
CLASSIFICATION and SPECIFICATIONS OF THE DISEASE
integer
C0008902 (UMLS CUI [1])
CL Item
primary immune deficiencies (1)
C0398686 (UMLS CUI-1)
CL Item
Inherited disorders of metabolism (2)
C0268605 (UMLS CUI-1)
CL Item
Other inherited disorders (3)
C0019247 (UMLS CUI-1)
CL Item
Familial lymphohistiocytosis (4)
C0272199 (UMLS CUI-1)
Item
T- B- CELLS SCID, T- B+ CELLS SCID
integer
C0085110 (UMLS CUI [1,1])
C0039194 (UMLS CUI [1,2])
C0004561 (UMLS CUI [2,1])
C0085110 (UMLS CUI [2,2])
C0039194 (UMLS CUI [1,2])
C0004561 (UMLS CUI [2,1])
C0085110 (UMLS CUI [2,2])
CL Item
Artemis (Artemis)
C0052430 (UMLS CUI-1)
CL Item
Ligase IV (Ligase IV)
C0023689 (UMLS CUI-1)
CL Item
Rag-1 or Rag-2 (Rag-1 or Rag-2)
C0085218 (UMLS CUI-1)
CL Item
T- B- cells SCID, other (T- B- cells SCID, other)
C0205394 (UMLS CUI-1)
CL Item
T- B- cells SCID, unspecified (T- B- cells SCID, unspecified)
C0205370 (UMLS CUI-1)
CL Item
Alpha c (Alpha c)
C0002290 (UMLS CUI-1)
CL Item
JAK 3 (JAK 3)
C0253457 (UMLS CUI-1)
CL Item
IL-7R alpha (IL-7R alpha)
C0971129 (UMLS CUI-1)
CL Item
ZAP 70 deficiency (ZAP 70 deficiency)
C0246976 (UMLS CUI-1)
CL Item
T- B+ cells SCID, other (CD45, CD3 ) (T- B+ cells SCID, other (CD45, CD3 ))
C0054961 (UMLS CUI-1)
CL Item
T- B+ cells SCID, unspecified (T- B+ cells SCID, unspecified)
C0205370 (UMLS CUI-1)
CL Item
ADA deficiency (Adenosine deaminase defic.) (ADA deficiency (Adenosine deaminase defic.))
C0268124 (UMLS CUI-1)
CL Item
PNP (Purine nucleoside phosphorylase defic.) (PNP (Purine nucleoside phosphorylase defic.))
C0268125 (UMLS CUI-1)
CL Item
Reticular dysgenesis (Reticular dysgenesis)
C0272167 (UMLS CUI-1)
CL Item
SCID other (SCID other)
C0205394 (UMLS CUI-1)
C0085110 (UMLS CUI-2)
C0085110 (UMLS CUI-2)
SCID (Severe Combined Immune Deficiency)
Item
SCID (Severe Combined Immune Deficiency) if other, please specify
integer
C0085110 (UMLS CUI [1,1])
C0205394 (UMLS CUI [1,2])
C0205394 (UMLS CUI [1,2])
Item
CID (Combined Immune Deficiency)
integer
C0085110 (UMLS CUI [1])
CL Item
Omenn syndrome (1)
C2700553 (UMLS CUI-1)
CL Item
CID other (2)
C0205394 (UMLS CUI-1)
CID (Combined Immune Deficiency)
Item
CID if other, please specify
integer
C0085110 (UMLS CUI [1,1])
C0205394 (UMLS CUI [1,2])
C0205394 (UMLS CUI [1,2])
Item
Other primary immune deficiencies
integer
C0001175 (UMLS CUI [1])
CL Item
Agranulocytosis (Kostmann) (1)
C1853118 (UMLS CUI-1)
CL Item
Ataxia telangiectasia (2)
C0004135 (UMLS CUI-1)
CL Item
Bare lymphocyte syndrome (lack of HLA ag expression) (3)
C0242583 (UMLS CUI-1)
CL Item
Cartilage hair hypoplasia / dyskeratosis congenita (4)
C0167627 (UMLS CUI-1)
CL Item
CD40 Ligand (5)
C0167627 (UMLS CUI-1)
CL Item
Chediak-Higashi syndrome (6)
C0007965 (UMLS CUI-1)
CL Item
Chronic granulomatous disease (7)
C0018203 (UMLS CUI-1)
CL Item
DiGeorge syndrome (8)
C0012236 (UMLS CUI-1)
CL Item
Griscelli syndrome (9)
C1859194 (UMLS CUI-1)
CL Item
Interferon alpha (10)
C0002199 (UMLS CUI-1)
CL Item
IPEX syndrome (11)
C0342288 (UMLS CUI-1)
CL Item
Leukocyte adhesion (12)
C1154393 (UMLS CUI-1)
CL Item
Wiskott Aldrich syndrome (13)
C0043194 (UMLS CUI-1)
CL Item
X-linked lymphoproliferative syndrome (Purtilo) (14)
C0549463 (UMLS CUI-1)
Item
Inherited disorders of metabolism
integer
C0025517 (UMLS CUI [1])
CL Item
Adrenoleukodystrophy (Adrenoleukodystrophy)
C0162309 (UMLS CUI-1)
CL Item
Aspartyl glucosaminuria (Aspartyl glucosaminuria)
C0268225 (UMLS CUI-1)
CL Item
B-glucuronidase deficiency (VII) (B-glucuronidase deficiency (VII))
C0085132 (UMLS CUI-1)
CL Item
Fucosidosis (Fucosidosis)
C0016788 (UMLS CUI-1)
CL Item
Gaucher disease (Gaucher disease)
C0017205 (UMLS CUI-1)
CL Item
Glucose storage disease (Glucose storage disease)
C1257958 (UMLS CUI-1)
CL Item
Hunter syndrome (II) (Hunter syndrome (II))
C0026705 (UMLS CUI-1)
CL Item
Hurler syndrome (IH) (Hurler syndrome (IH))
C0342841 (UMLS CUI-1)
CL Item
I-cell disease (I-cell disease)
C0020725 (UMLS CUI-1)
CL Item
Krabbe disease (globoid leukodystrophy) (Krabbe disease (globoid leukodystrophy))
C0023521 (UMLS CUI-1)
CL Item
Lesch-Nyhan (HGPRT deficiency) (Lesch-Nyhan (HGPRT deficiency))
C0023374 (UMLS CUI-1)
CL Item
Mannosidosis (Mannosidosis)
C1257960 (UMLS CUI-1)
CL Item
Maroteaux-Lamy (VI) (Maroteaux-Lamy (VI))
C0026709 (UMLS CUI-1)
CL Item
Metachromatic leukodystrophy (Metachromatic leukodystrophy)
C0023522 (UMLS CUI-1)
CL Item
Morquio (IV) (Morquio (IV))
C0026707 (UMLS CUI-1)
CL Item
Mucolipidoses, not otherwise specified (Mucolipidoses, not otherwise specified)
C0026697 (UMLS CUI-1)
CL Item
Mucopolysaccharidosis (V) (Mucopolysaccharidosis (V))
C0026708 (UMLS CUI-1)
CL Item
Mucopolysaccharidosis, not otherwise specified (Mucopolysaccharidosis, not otherwise specified)
C0026703 (UMLS CUI-1)
CL Item
Niemann-Pick disease (Type A,B) (Niemann-Pick disease (Type A,B))
C3169377 (UMLS CUI-1)
CL Item
Niemann-Pick disease (Type C,D,E) (Niemann-Pick disease (Type C,D,E))
C0220756 (UMLS CUI-1)
CL Item
Polysaccharide hydrolase abnormalities, unspecified (Polysaccharide hydrolase abnormalities, unspecified)
C3274708 (UMLS CUI-1)
CL Item
Sanfilippo (III) (Sanfilippo (III))
C4016924 (UMLS CUI-1)
CL Item
Scheie syndrome (IS) (Scheie syndrome (IS))
C0086431 (UMLS CUI-1)
CL Item
Wolman disease (Wolman disease)
C0043208 (UMLS CUI-1)
CL Item
Other (Other,)
C0205394 (UMLS CUI-1)
CL Item
Neuronal ceriod – lipofuscinosis (Batten disease) (Neuronal ceriod – lipofuscinosis (Batten disease))
C0751383 (UMLS CUI-1)
Item
Other inherited disorders
integer
C0019247 (UMLS CUI [1,1])
C0205394 (UMLS CUI [1,2])
C0205394 (UMLS CUI [1,2])
CL Item
Glanzmann (1)
C1861195 (UMLS CUI-1)
CL Item
Platelet defect, not otherwise specified (2)
C0235604 (UMLS CUI-1)
CL Item
Osteopetrosis (3)
C0029454 (UMLS CUI-1)
CL Item
Osteoclast defect, not otherwise specified (4)
C0029431 (UMLS CUI-1)
CL Item
Other (5)
C0205394 (UMLS CUI-1)
CL Item
no (1)
C1298908 (UMLS CUI-1)
CL Item
yes (2)
C1705108 (UMLS CUI-1)
CL Item
unknown (3)
C0439673 (UMLS CUI-1)
Item
Stored material if yes
integer
C0370003 (UMLS CUI [1,1])
C1698986 (UMLS CUI [1,2])
C1698986 (UMLS CUI [1,2])
CL Item
DNA (1)
C0012854 (UMLS CUI-1)
CL Item
PBL (2)
C1518997 (UMLS CUI-1)
CL Item
B-cell line (3)
C3808804 (UMLS CUI-1)
CL Item
Fibroblasts (4)
C0016030 (UMLS CUI-1)
CL Item
Other (5)
C0205394 (UMLS CUI-1)
CL Item
Autosomal recessive (Autosomal recessive proven)
C0441748 (UMLS CUI-1)
CL Item
X-linked proven (X-linked proven)
C0241764 (UMLS CUI-1)
CL Item
Autosomal recessive suspected (Autosomal recessive suspected)
C0441748 (UMLS CUI-1)
CL Item
X-linked suspected (X-linked suspected)
C0241764 (UMLS CUI-1)
CL Item
unknown (unknown)
C0439673 (UMLS CUI-1)
CL Item
Normal (1)
C0205307 (UMLS CUI-1)
CL Item
Abnormal (2)
C0205161 (UMLS CUI-1)
CL Item
Not done or failed (3)
C1272696 (UMLS CUI-1)
CL Item
Unknown (4)
C0439673 (UMLS CUI-1)
CL Item
Alpha c (1)
C0033634 (UMLS CUI-1)
CL Item
JAK 3 (2)
C0253457 (UMLS CUI-1)
CL Item
Rag-1 (3)
C0085218 (UMLS CUI-1)
CL Item
Rag-2 (4)
C2698932 (UMLS CUI-1)
CL Item
ADA (5)
C1122087 (UMLS CUI-1)
CL Item
Allele 1 (Allele 1*)
C1633454 (UMLS CUI-1)
CL Item
Allele 2 (Allele 2)
C1632238 (UMLS CUI-1)
CL Item
Allele 1 (Allele 1)
C1633454 (UMLS CUI-1)
CL Item
Allele 2 (Allele 2)
C1632238 (UMLS CUI-1)
Date of HSCT
Item
Date of HSCT
date
C2584899 (UMLS CUI [1])
CL Item
Platelets (1)
C0005821 (UMLS CUI-1)
CL Item
White Blood Cells (2)
C0023508 (UMLS CUI-1)
CL Item
Lymphocytes (3)
C0024264 (UMLS CUI-1)
CL Item
T-cells (4)
C0039194 (UMLS CUI-1)
CL Item
CD4+ cells (5)
C0039215 (UMLS CUI-1)
CL Item
CD8+ cells (6)
C0242629 (UMLS CUI-1)
CL Item
NK cells (7)
C0022688 (UMLS CUI-1)
CL Item
B-cells (8)
C0004561 (UMLS CUI-1)
CL Item
Granulocytes (9)
C0857490 (UMLS CUI-1)
CL Item
Reticulocytes (10)
C0035286 (UMLS CUI-1)
Item
Mixed leukocyte culture (MLC) reactivity
integer
C0023509 (UMLS CUI [1])
CL Item
Absent (1)
C0332197 (UMLS CUI-1)
CL Item
Partial (2)
C0728938 (UMLS CUI-1)
CL Item
Normal (3)
C0205307 (UMLS CUI-1)
CL Item
Not evaluated (4)
C3846720 (UMLS CUI-1)
Item
Mitogen induced lymphocyte proliferation
integer
C0373865 (UMLS CUI [1])
CL Item
Absent (1)
C0332197 (UMLS CUI-1)
CL Item
Partial (2)
C0728938 (UMLS CUI-1)
CL Item
Normal (3)
C0205307 (UMLS CUI-1)
CL Item
Not evaluated (4)
C3846720 (UMLS CUI-1)
CL Item
Absent (1)
C0332197 (UMLS CUI-1)
CL Item
Partial (2)
C0728938 (UMLS CUI-1)
CL Item
Normal (3)
C0205307 (UMLS CUI-1)
CL Item
Not evaluated (4)
C3846720 (UMLS CUI-1)
Item
IMMUNOGLOBULINS (B-CELL FUNCTION)
integer
C1859183 (UMLS CUI [1])
CL Item
Serum IgM (1)
C2229762 (UMLS CUI-1)
CL Item
Serum IgA (2)
C2229758 (UMLS CUI-1)
CL Item
Serum IgG (3)
C2229761 (UMLS CUI-1)
CL Item
Serum IgE (4)
C2229760 (UMLS CUI-1)
CL Item
Absent (1)
C0332197 (UMLS CUI-1)
CL Item
Decreased (2)
C0235827 (UMLS CUI-1)
CL Item
Normal or elevated (3)
C0205307 (UMLS CUI-1)
CL Item
Not evaluated (4)
C3846720 (UMLS CUI-1)
CL Item
no (1)
C1298908 (UMLS CUI-1)
CL Item
yes (2)
C1705108 (UMLS CUI-1)
CL Item
Not evaluated (3)
C3846720 (UMLS CUI-1)
CL Item
Unknown (4)
C0439673 (UMLS CUI-1)
CL Item
No (1)
C1298908 (UMLS CUI-1)
CL Item
Yes (2)
C1705108 (UMLS CUI-1)
CL Item
Not evaluated (3)
C3846720 (UMLS CUI-1)
CL Item
Unknown (4)
C0439673 (UMLS CUI-1)
CL Item
No (1)
C1298908 (UMLS CUI-1)
CL Item
Yes (2)
C1705108 (UMLS CUI-1)
CL Item
Not evaluated (3)
C3846720 (UMLS CUI-1)
CL Item
Unknown (4)
C0439673 (UMLS CUI-1)
CL Item
No (1)
CL Item
Yes (2)
CL Item
Not evaluated (3)
CL Item
Unknown (4)
CL Item
No (1)
CL Item
Yes (2)
CL Item
Not evaluated (3)
CL Item
unknown (4)
CL Item
no (1)
C1298908 (UMLS CUI-1)
CL Item
yes (2)
C1705108 (UMLS CUI-1)
CL Item
unknown (3)
C0439673 (UMLS CUI-1)
CL Item
Mycobacteria (1)
C0374011 (UMLS CUI-1)
CL Item
Pneumocystis carinii (2)
C0032276 (UMLS CUI-1)
CL Item
Virus (3)
C0042776 (UMLS CUI-1)
CL Item
Bacteria (4)
C0004611 (UMLS CUI-1)
CL Item
Cryptosporidia (5)
C0010418 (UMLS CUI-1)
CL Item
Fungi (6)
C0016832 (UMLS CUI-1)
CL Item
Unknown (7)
C0439673 (UMLS CUI-1)
CL Item
Other (8)
C0205394 (UMLS CUI-1)
Septicemia
Item
Septicemia if other
integer
C0036690 (UMLS CUI [1,1])
C0205394 (UMLS CUI [1,2])
C0205394 (UMLS CUI [1,2])
CL Item
Mycobacteria (1)
C0374011 (UMLS CUI-1)
CL Item
Pneumocystis carinii (2)
C0032276 (UMLS CUI-1)
CL Item
Virus (3)
C0042776 (UMLS CUI-1)
CL Item
Bacteria (4)
C0004611 (UMLS CUI-1)
CL Item
Cryptosporidia (5)
C0010418 (UMLS CUI-1)
CL Item
Fungi (6)
C0016832 (UMLS CUI-1)
CL Item
Unknown (7)
C0439673 (UMLS CUI-1)
CL Item
Other (8)
C0205394 (UMLS CUI-1)
CL Item
Mycobacteria (1)
C0026912 (UMLS CUI-1)
CL Item
Pneumocystis carinii (2)
C0032276 (UMLS CUI-1)
CL Item
Virus (3)
C0042776 (UMLS CUI-1)
CL Item
Bacteria (4)
C0004611 (UMLS CUI-1)
CL Item
Cryptosporidiosis (5)
C0010418 (UMLS CUI-1)
CL Item
Fungi (6)
C0016832 (UMLS CUI-1)
CL Item
Unknown (7)
C0439673 (UMLS CUI-1)
CL Item
Other (8)
C0205394 (UMLS CUI-1)
CL Item
Mycobacteria (1)
C0026912 (UMLS CUI-1)
CL Item
Pneumocystis carinii (2)
C0032276 (UMLS CUI-1)
CL Item
Virus (3)
C0042776 (UMLS CUI-1)
CL Item
Bacteria (4)
C0004611 (UMLS CUI-1)
CL Item
Cryptosporidia (5)
C0010418 (UMLS CUI-1)
CL Item
Fungi (6)
C0016832 (UMLS CUI-1)
CL Item
Unknown (7)
C0439673 (UMLS CUI-1)
CL Item
Other (8)
C0205394 (UMLS CUI-1)
Skin infection
Item
Skin infection if other, please specify
text
C0037278 (UMLS CUI [1,1])
C0205394 (UMLS CUI [1,2])
C0205394 (UMLS CUI [1,2])
CL Item
Mycobacteria (1)
C0374011 (UMLS CUI-1)
CL Item
Pneumocystis carinii (2)
C0032276 (UMLS CUI-1)
CL Item
Virus (3)
C0042776 (UMLS CUI-1)
CL Item
Bacteria (4)
C0004611 (UMLS CUI-1)
CL Item
Cryptosporidiosis (5)
C0010418 (UMLS CUI-1)
CL Item
Fungi (6)
C0016832 (UMLS CUI-1)
CL Item
Unknown (7)
C0439673 (UMLS CUI-1)
CL Item
Other (8)
C0205394 (UMLS CUI-1)
Liver
Item
Liver if other, please specify
integer
C0023884 (UMLS CUI [1,1])
C0205394 (UMLS CUI [1,2])
C0205394 (UMLS CUI [1,2])
CL Item
Mycobacteria (1)
C0374011 (UMLS CUI-1)
CL Item
Pneumocystis carinii (2)
C0032276 (UMLS CUI-1)
CL Item
Virus (3)
C0042776 (UMLS CUI-1)
CL Item
Bacteria (4)
C0004611 (UMLS CUI-1)
CL Item
Cryptosporidia (5)
C0010418 (UMLS CUI-1)
CL Item
Fungi (6)
C0016832 (UMLS CUI-1)
CL Item
Unknown (7)
C0439673 (UMLS CUI-1)
CL Item
Other (8)
C0205394 (UMLS CUI-1)
Bone or joints
Item
Bone or joints if other, please specify
integer
C0205394 (UMLS CUI [1,1])
C0545594 (UMLS CUI [1,2])
C0545594 (UMLS CUI [1,2])
CL Item
Mycobacteria (1)
C0026912 (UMLS CUI-1)
CL Item
Pneumocystis carinii (2)
C0032276 (UMLS CUI-1)
CL Item
Virus (3)
C0042776 (UMLS CUI-1)
CL Item
Bacteria (4)
C0004611 (UMLS CUI-1)
CL Item
Cryptosporidiosis (5)
C0010418 (UMLS CUI-1)
CL Item
Fungi (6)
C0016832 (UMLS CUI-1)
CL Item
Unknown (7)
C0439673 (UMLS CUI-1)
CL Item
Other (8)
C0205394 (UMLS CUI-1)
Gut infection
Item
if other, please specify
text
C0205394 (UMLS CUI [1])
CL Item
Mycobacteria (1)
CL Item
Pneumocystis carinii (2)
CL Item
Virus (3)
CL Item
Bacteria (4)
CL Item
Cryptosporidia (5)
CL Item
Fungi, other (6)
CL Item
Unknown (7)
CL Item
Other (8)
Undetermined
Item
if other, please specify
text
C0205394 (UMLS CUI [1])
CL Item
Mycobacteria (1)
CL Item
Pneumocystis carinii (2)
CL Item
Virus (3)
CL Item
Bacteria (4)
CL Item
Cryptosporidia (5)
CL Item
Fungi, other (6)
CL Item
Unknown (7)
CL Item
Other (8)
Other infections
Item
Other infections if other, please specify
integer
C0009450 (UMLS CUI [1,1])
C0205394 (UMLS CUI [1,2])
C0205394 (UMLS CUI [1,2])
Item
GVHD STATUS PRIOR TO HSCT
integer
C0018133 (UMLS CUI [1,1])
C0472699 (UMLS CUI [1,2])
C0472699 (UMLS CUI [1,2])
CL Item
Absent (1)
CL Item
Present (2)
CL Item
Not evaluated (3)
CL Item
Unknown (4)
Item
if GVHD STATUS PRIOR TO HSCT present, Organ affected
integer
C0018133 (UMLS CUI [1])
CL Item
Gut (Gut)
C1737219 (UMLS CUI-1)
CL Item
Liver (Liver)
C1739104 (UMLS CUI-1)
CL Item
Skin (Skin)
C1739372 (UMLS CUI-1)
Item
Lymphadenopathy acute GVH disease
text
C0497156 (UMLS CUI [1])
CL Item
no (no)
CL Item
yes (yes)
CL Item
unknown (unknown)
CL Item
Blood transfusion (1)
C0005841 (UMLS CUI-1)
CL Item
Maternal engraftment (2)
C0301944 (UMLS CUI-1)
CL Item
unknown (3)
C0439673 (UMLS CUI-1)
Maternal engraftment
Item
Number of maternal T cells
float
C3494678 (UMLS CUI [1])
CL Item
HLA typing (HLA typing)
C0242318 (UMLS CUI-1)
CL Item
Microsatellite (Microsatellite)
C0920269 (UMLS CUI-1)
CL Item
IL2 T cell line (IL2 T cell line)
C0021756 (UMLS CUI-1)
CL Item
Cytogenetics (Cytogenetics)
C0010802 (UMLS CUI-1)
CL Item
no (no)
CL Item
yes (yes)
CL Item
unknown (unknown)
CL Item
NONE (NONE)
CL Item
< 20 UNITS (< 20 UNITS)
CL Item
20-50 UNITS (20-50 UNITS)
CL Item
> 50 UNITS (> 50 UNITS)
CL Item
UNKNOWN (UNKNOWN)
CL Item
NONE (1)
CL Item
< 20 UNITS (2)
CL Item
20-50 UNITS (3)
CL Item
> 50 UNITS (4)
CL Item
UNKNOWN (5)
ADDITIONAL DISEASE TREATMENT
Item
ADDITIONAL DISEASE TREATMENT
boolean
C1706712 (UMLS CUI [1])
Item
ADDITIONAL DISEASE TREATMENT if yes
integer
C1706712 (UMLS CUI [1])
CL Item
Planned (planned before HSCT took place) (1)
C1301732 (UMLS CUI-1)
CL Item
Not planned (for relapse/progression or persistent disease) (2)
C1320712 (UMLS CUI-1)
CL Item
Cured (1)
CL Item
Improved (2)
CL Item
No change (3)
CL Item
Worse (4)
CL Item
Unknown (5)
Date of assessment
Item
As close to the 3rd month interval as possible)
date
CL Item
Full (Full)
C3176022 (UMLS CUI-1)
CL Item
Mixed (Mixed)
C0333678 (UMLS CUI-1)
CL Item
Absent (Absent)
C0332197 (UMLS CUI-1)
CL Item
Absent (Absent)
T-cell Full
Item
Date achieved
date
CL Item
Full (1)
C0333678 (UMLS CUI-1)
CL Item
Partial (2)
C0728938 (UMLS CUI-1)
CL Item
Absent (3)
C0332197 (UMLS CUI-1)
CL Item
Not evaluated (4)
C3846720 (UMLS CUI-1)
CL Item
Full (1)
C0443225 (UMLS CUI-1)
CL Item
Partial (2)
C0728938 (UMLS CUI-1)
CL Item
Absent (3)
C0332197 (UMLS CUI-1)
CL Item
Not evaluated (4)
C3846720 (UMLS CUI-1)
CL Item
Full (1)
CL Item
Partial (2)
CL Item
Absent (3)
CL Item
Not evaluated (4)
CL Item
Full (1)
CL Item
Partial (2)
CL Item
Absent (3)
CL Item
Not evaluated (4)
CL Item
Full (1)
CL Item
Partial (2)
CL Item
Absent (3)
CL Item
Not evaluated (4)
CL Item
Full (1)
CL Item
Partial (2)
CL Item
Absent (3)
Haemoglobin (g/dL)
Item
Haemoglobin (g/dL)
float
C0019046 (UMLS CUI [1])
Platelets
Item
Platelets (109/L)
float
C0032181 (UMLS CUI [1])
T-cells (CD3+) (109/L)
Item
T-cells (CD3+) (109/L)
float
C2025558 (UMLS CUI [1])
B-cells
Item
B-cells (109/L)
float
C0004561 (UMLS CUI [1])
Granulocyt
Item
Granulocytes (109/L)
float
C0857490 (UMLS CUI [1])
Item
Mixed leukocyte culture (MLC) reactivity
integer
C0023509 (UMLS CUI [1])
CL Item
Absent (1)
C0332197 (UMLS CUI-1)
CL Item
Partial (2)
C0728938 (UMLS CUI-1)
CL Item
Normal (3)
C0205307 (UMLS CUI-1)
CL Item
Not evaluated (4)
C3846720 (UMLS CUI-1)
Item
Mitogen induced lymphocyte proliferation
integer
C0430308 (UMLS CUI [1])
CL Item
Absent (Absent)
CL Item
Partial (Partial)
CL Item
Normal (Normal)
CL Item
Not evaluated (Not evaluated)
CL Item
Serum IgM (1)
C2229762 (UMLS CUI-1)
CL Item
Serum IgA (2)
C2229758 (UMLS CUI-1)
CL Item
Serum IgE (3)
C2229760 (UMLS CUI-1)
CL Item
Serum IgG (4)
C2229761 (UMLS CUI-1)
Item
Antibody production after vaccination
integer
C3809390 (UMLS CUI [1])
CL Item
Absent (1)
C0332197 (UMLS CUI-1)
CL Item
Decreased (2)
CL Item
Normal or elevated (3)
CL Item
Not evaluated (4)
C3846720 (UMLS CUI-1)
Item
ON-GOING TREATMENT FOR RECONSTITUTION AT 100 DAYS
integer
C0301944 (UMLS CUI [1])
Code List
ON-GOING TREATMENT FOR RECONSTITUTION AT 100 DAYS
CL Item
no (1)
CL Item
yes (2)
CL Item
unknown (3)
Item
ON-GOING TREATMENT FOR RECONSTITUTION AT 100 DAYS if yes
text
C0039798 (UMLS CUI [1])
Code List
ON-GOING TREATMENT FOR RECONSTITUTION AT 100 DAYS if yes
CL Item
Patient still receiving IV Immunoglobulins (Patient still receiving IV Immunoglobulins)
C0085297 (UMLS CUI-1)
CL Item
Growth factors (cytokines) administered to the patient? (Growth factors (cytokines) administered to the patient?)
C0018284 (UMLS CUI-1)
Item
Patient still receiving IV Immunoglobulins
integer
C0085297 (UMLS CUI [1])
CL Item
no (no)
CL Item
yes (yes)
CL Item
unknown (unknown)
Item
Growth factors (cytokines) administered to the patient?
integer
C0018284 (UMLS CUI [1])
Code List
Growth factors (cytokines) administered to the patient?
CL Item
no (no)
C1298908 (UMLS CUI-1)
CL Item
yes (yes)
C1705108 (UMLS CUI-1)
CL Item
unknown (unknown)
C0439673 (UMLS CUI-1)
CL Item
AUTOgraft (proceed to Autograft form) (AUTOgraft (proceed to Autograft form))
CL Item
ALLOgraft or Syngeneic graft (proceed to Allograft form) (ALLOgraft or Syngeneic graft (proceed to Allograft form))
CL Item
Other (contact the EBMT Central Registry for instructions) (Other (contact the EBMT Central Registry for instructions))