ID
16021
Description
https://www.hope-clara.de/ The HOPE Hospice and Palliative Care Recording standard documentation is used for documentation of palliative care and as an instrument for quality assurance in pallatiave wards, hospices and oncological wards as well as in ambulatory services and palliative teams.
Link
Keywords
Versions (2)
- 6/26/16 6/26/16 -
- 6/26/16 6/26/16 -
Uploaded on
June 26, 2016
DOI
To request one please log in.
License
Creative Commons BY-NC 3.0
Model comments :
You can comment on the data model here. Via the speech bubbles at the itemgroups and items you can add comments to those specificially.
Itemgroup comments for :
Item comments for :
In order to download data models you must be logged in. Please log in or register for free.
Palliative and Hospice Care Paliative and Hospice Care Prognosis
Palliative and Hospice Care Prognosis
- StudyEvent: ODM
Description
PR1. Palliative Prognostic Score (PAP-S)
Description
dyspnea
Data type
boolean
Alias
- UMLS CUI [1]
- C0013404
Description
dyspnea score
Data type
float
Alias
- UMLS CUI [1,1]
- C0449820
- UMLS CUI [1,2]
- C0013404
Description
anorexia
Data type
boolean
Alias
- UMLS CUI [1]
- C0003123
Description
anorexia score
Data type
text
Alias
- UMLS CUI [1,1]
- C0449820
- UMLS CUI [1,2]
- C0003123
Description
PR2. Karnofsky Performance Status
Alias
- UMLS CUI-1
- C0206065
Description
Score 0
Data type
integer
Alias
- UMLS CUI [1]
- C0206065
Description
Score 2,5
Data type
integer
Alias
- UMLS CUI [1]
- C0206065
Description
KI total score
Data type
float
Alias
- UMLS CUI [1,1]
- C0206065
- UMLS CUI [1,2]
- C0449820
Description
PR3. Clinical prognosis of survival
Description
clinical prognosis of survival
Data type
text
Alias
- UMLS CUI [1,1]
- C0033325
- UMLS CUI [1,2]
- C2919552
Description
clinical prognosis score
Data type
float
Alias
- UMLS CUI [1,1]
- C0449820
- UMLS CUI [1,2]
- C0033325
- UMLS CUI [1,3]
- C2919552
Description
PR4. Hemogram
Description
WBC
Data type
text
Alias
- UMLS CUI [1]
- C0023508
Description
WBC score
Data type
float
Alias
- UMLS CUI [1,1]
- C0449820
- UMLS CUI [1,2]
- C0023508
Description
lymphocytes
Data type
text
Alias
- UMLS CUI [1]
- C0024264
Description
lymphocytes score
Data type
float
Alias
- UMLS CUI [1,1]
- C0024264
- UMLS CUI [1,2]
- C0024264
Description
PaP Score (maximal 17.5 Points)
Description
PR5. Palliative Performance Scale
Description
Ambulation: Full Activity & Evidence of Disease: Normal activity & work No evidence of disease Self Care: Full Intake: Normal Conscious Level: Full 100% Ambulation: Full Activity & Evidence of Disease: Normal activity & work Some evidence of disease Self Care: Full Intake: Normal Conscious Level: Full 90% Ambulation: Full Activity & Evidence of Disease: Normal activity with effort Some evidence of disease Self Care: Full Intake: Normal or reduced Conscious Level: Full 80% Ambulation: Reduced Activity & Evidence of Disease: Normal activity with effort Some evidence of disease Self Care: Full Intake: Normal or reduced Conscious Level: Full 70% Ambulation: Reduced Activity & Evidence of Disease: Unable hobby/house work Significant disease Self Care: Occasional assistance necessary Intake: Normal or reduced Conscious Level: Full or confusion 60%
Data type
boolean
Description
Ambulation: Mainly Sit/Lie Activity & Evidence of Disease: Unable to do any work Extensive disease Self Care: Considerable assistance required Intake: Normal or reduced Conscious Level: Full or confusion 50% Ambulation: Mainly in Bed Activity & Evidence of Disease: Unable to do most activity Extensive disease Self Care: Mainly assistance Intake: Normal or reduced Conscious Level: Full or Drowsy +/- Confusion 40% Ambulation: Totally Bed Bound Activity & Evidence of Disease: Unable to do any activity Extensive disease Self Care: Total Care Intake: Normal or reduced Conscious Level: Full or Drowsy +/- Confusion 30%
Data type
boolean
Description
Ambulation: Totally Bed Bound Activity & Evidence of Disease: Unable to do any activity Extensive disease Self Care: Total Care Intake: Minimal to sips Conscious Level: Full or Drowsy +/- Confusion 20% Ambulation: Totally Bed Bound Activity & Evidence of Disease: Unable to do any activity Extensive disease Self Care: Total Care Intake: Mouth care only Conscious Level: Full or Drowsy +/- Confusion 10%
Data type
boolean
Description
Ambulation: Death 0%
Data type
boolean
Description
life expectancy
Data type
boolean
Alias
- UMLS CUI [1]
- C3845482
Description
total score PPS
Data type
float
Alias
- UMLS CUI [1]
- C2964552
Description
PR6. Oral Intake
Description
normal oral intake
Data type
boolean
Alias
- UMLS CUI [1,1]
- C0518037
- UMLS CUI [1,2]
- C0205307
Description
slightly reduced oral intake
Data type
boolean
Alias
- UMLS CUI [1,1]
- C0518037
- UMLS CUI [1,2]
- C0392756
- UMLS CUI [1,3]
- C0750482
Description
clearly reduced oral intake
Data type
boolean
Alias
- UMLS CUI [1,1]
- C0518037
- UMLS CUI [1,2]
- C0392756
Description
total score oral intake
Data type
float
Alias
- UMLS CUI [1,1]
- C0518037
- UMLS CUI [1,2]
- C2964552
Description
PR7. Symptoms
Description
Palliative Prognostic Index
Similar models
Palliative and Hospice Care Prognosis
- StudyEvent: ODM
C0013404 (UMLS CUI [1,2])
C0003123 (UMLS CUI [1,2])
C0449820 (UMLS CUI [1,2])
C2919552 (UMLS CUI [1,2])
C0033325 (UMLS CUI [1,2])
C2919552 (UMLS CUI [1,3])
C0023508 (UMLS CUI [1,2])
C0024264 (UMLS CUI [1,2])
C0205307 (UMLS CUI [1,2])
C0392756 (UMLS CUI [1,2])
C0750482 (UMLS CUI [1,3])
C0392756 (UMLS CUI [1,2])
C2964552 (UMLS CUI [1,2])