ID

15665

Description

The CoDe (”Coding of Death in HIV”) Project A significant proportion of deaths in HIV-1 infected persons are now caused by non-AIDS events. It is important to closely monitor the causes of death in this population in order to target interventions appropriately, should specific causes of death emerge or become predominant. It is possible that deaths from diseases related to an accelerated aging process will become more frequent. The same applies for causes of death related to co-infections (e.g. hepatitis) or other co-morbidities (e.g. sequelae of intravenous drug use). Furthermore, it is important to be able to evaluate the risk factors for such emerging diseases, including their possible relationship with immunodeficiency. Until now there has not been a uniform classification system for causes of death in HIV patients. Studies have either created their own coding systems based o­n frequent and/or ‘important’ causes (e.g. rare but important adverse events such as lactic acidosis and pancreatitis), or have used ICD9 or ICD10 codes from death certificates. In many cases, the ICD system cannot be directly adapted to HIV infected persons. Many AIDS defining illnesses are poorly identified in the ICD system, and some diseases (e.g. CNS diseases) have a different aetiology in HIV patients and are therefore not covered by the ICD system, or at great risk of mis-classification. In July 2004, a meeting was held in Copenhagen with the participation from executive committees of a large number of pivotal observational studies and clinical trials that routinely collect data o­n causes of death. At this meeting, it became clear that there was a need for a harmonization and standardization of the approach taken when collecting data o­n cause of death and when reviewing these deaths. As a result, the CoDe Project was initiated. The CoDe Project is a uniform coding system that can be applied to studies of individuals with HIV infection, including a detailed data collection o­n the causes of death and contributing factors, as well as a centralised review process of the data collected. http://www.cphiv.dk/Tools-Standards/CoDe/About Contains: Risk factors, co-morbidities

Link

http://www.cphiv.dk/Tools-Standards/CoDe/About

Keywords

  1. 5/20/16 5/20/16 -
  2. 5/20/16 5/20/16 -
  3. 6/7/16 6/7/16 -
Uploaded on

June 7, 2016

DOI

To request one please log in.

License

Creative Commons BY-NC 3.0

Model comments :

You can comment on the data model here. Via the speech bubbles at the itemgroups and items you can add comments to those specificially.

Itemgroup comments for :

Item comments for :

In order to download data models you must be logged in. Please log in or register for free.

Determining factor The CoDe (”Coding of Death in HIV”) Project

Determining factor

  1. StudyEvent: ODM
    1. Determining factor
Section 3 A. Ongoing risk factors in the year prior to death:
Description

Section 3 A. Ongoing risk factors in the year prior to death:

1. Cigarette smoking
Description

Cigarette smoking

Data type

text

Alias
UMLS CUI [1]
C0543414
2. Excessive alcohol consumption
Description

Excessive alcohol consumption

Data type

text

Alias
UMLS CUI [1]
C0001948
3. Active illicit injecting drug use
Description

Active illicit injecting drug use

Data type

text

Alias
UMLS CUI [1]
C0556025
4. Active illicit non-injecting drug use
Description

Active illicit non-injecting drug use

Data type

text

Alias
UMLS CUI [1]
C0242510
5. Opiate substitution (methadone)
Description

Opiate substitution (methadone)

Data type

text

Alias
UMLS CUI [1]
C0746569
Section 4 A. Comorbidities - Ongoing chronic conditions:
Description

Section 4 A. Comorbidities - Ongoing chronic conditions:

1. Hypertension
Description

Hypertension

Data type

text

Alias
UMLS CUI [1]
C0020538
2. Diabetes mellitus
Description

Diabetes mellitus

Data type

text

Alias
UMLS CUI [1]
C0011849
3. Dyslipidemia
Description

Dyslipidemia

Data type

text

Alias
UMLS CUI [1]
C0242339
Section 4 B. Comorbidities Prior cardiovascular Disease
Description

Section 4 B. Comorbidities Prior cardiovascular Disease

Prior Cardiovascular Disease (myocardial infarction, stroke or invasive cardiovascular procedure)
Description

Prior Cardiovascular Disease

Data type

text

Alias
UMLS CUI [1]
C0455539
Section 4 C. Comorbidities History of depression
Description

Section 4 C. Comorbidities History of depression

History of depression
Description

History of depression

Data type

text

Alias
UMLS CUI [1]
C0455503
Section 4 D. Comorbidities History of psychosis
Description

Section 4 D. Comorbidities History of psychosis

History of psychosis
Description

History of psychosis

Data type

text

Alias
UMLS CUI [1]
C3887134
Section 4 E. Comorbidities Liver Disease
Description

Section 4 E. Comorbidities Liver Disease

1. Chronic elevation of liver transaminases
Description

Chronic elevation of liver transaminases

Data type

text

Alias
UMLS CUI [1]
C0438717
2. Chronic HBV infection
Description

Chronic HBV infection

Data type

text

Alias
UMLS CUI [1]
C0524909
3. Chronic HCV infection
Description

Chronic HCV infection

Data type

text

Alias
UMLS CUI [1]
C0524910
4. HDV infection
Description

HDV infection

Data type

text

Alias
UMLS CUI [1]
C0011226
5. History of previous liver decompensation
Description

History of previous liver decompensation

Data type

text

Alias
UMLS CUI [1,1]
C0085605
UMLS CUI [1,2]
C0455483
6. Clinical signs of liver failure in the 4 weeks before death
Description

Clinical signs of liver failure in the 4 weeks before death

Data type

text

Alias
UMLS CUI [1,1]
C0085605
UMLS CUI [1,2]
C0439230
UMLS CUI [1,3]
C0332152
UMLS CUI [1,4]
C0011065
7. Liver histology available (ever)
Description

Liver histology available (ever)

Data type

text

Alias
UMLS CUI [1]
C0586689
Date of Liver Biopsy
Description

If previous question "Yes", please indicate: the date of most recent biopsy

Data type

date

Alias
UMLS CUI [1,1]
C0586689
UMLS CUI [1,2]
C0011008
Stage of fibrosis (0-4)
Description

if "liver histology available (ever)" was "yes"

Data type

integer

Alias
UMLS CUI [1,1]
C1954435
UMLS CUI [1,2]
C0023884

Similar models

Determining factor

  1. StudyEvent: ODM
    1. Determining factor
Name
Type
Description | Question | Decode (Coded Value)
Data type
Alias
Item Group
Section 3 A. Ongoing risk factors in the year prior to death:
Item
1. Cigarette smoking
text
C0543414 (UMLS CUI [1])
Code List
1. Cigarette smoking
CL Item
Yes (Yes)
CL Item
No  (No )
CL Item
Unknown (Unknown)
Item
2. Excessive alcohol consumption
text
C0001948 (UMLS CUI [1])
Code List
2. Excessive alcohol consumption
CL Item
Yes (Yes)
CL Item
No  (No )
CL Item
Unknown (Unknown)
Item
3. Active illicit injecting drug use
text
C0556025 (UMLS CUI [1])
Code List
3. Active illicit injecting drug use
CL Item
Yes (Yes)
CL Item
No  (No )
CL Item
Unknown (Unknown)
Item
4. Active illicit non-injecting drug use
text
C0242510 (UMLS CUI [1])
Code List
4. Active illicit non-injecting drug use
CL Item
Yes (Yes)
CL Item
No  (No )
CL Item
Unknown (Unknown)
Item
5. Opiate substitution (methadone)
text
C0746569 (UMLS CUI [1])
Code List
5. Opiate substitution (methadone)
CL Item
Yes (Yes)
CL Item
No  (No )
CL Item
Unknown (Unknown)
Item Group
Section 4 A. Comorbidities - Ongoing chronic conditions:
Item
1. Hypertension
text
C0020538 (UMLS CUI [1])
Code List
1. Hypertension
CL Item
Yes (Yes)
CL Item
No  (No )
CL Item
Unknown (Unknown)
Item
2. Diabetes mellitus
text
C0011849 (UMLS CUI [1])
Code List
2. Diabetes mellitus
CL Item
Yes (Yes)
CL Item
No  (No )
CL Item
Unknown (Unknown)
Item
3. Dyslipidemia
text
C0242339 (UMLS CUI [1])
Code List
3. Dyslipidemia
CL Item
Yes (Yes)
CL Item
No  (No )
CL Item
Unknown (Unknown)
Item Group
Section 4 B. Comorbidities Prior cardiovascular Disease
Item
Prior Cardiovascular Disease (myocardial infarction, stroke or invasive cardiovascular procedure)
text
C0455539 (UMLS CUI [1])
Code List
Prior Cardiovascular Disease (myocardial infarction, stroke or invasive cardiovascular procedure)
CL Item
Yes (Yes)
CL Item
No  (No )
CL Item
Unknown (Unknown)
Item Group
Section 4 C. Comorbidities History of depression
Item
History of depression
text
C0455503 (UMLS CUI [1])
Code List
History of depression
CL Item
Yes (Yes)
CL Item
No  (No )
CL Item
Unknown (Unknown)
Item Group
Section 4 D. Comorbidities History of psychosis
Item
History of psychosis
text
C3887134 (UMLS CUI [1])
Code List
History of psychosis
CL Item
Yes (Yes)
CL Item
No  (No )
CL Item
Unknown (Unknown)
Item Group
Section 4 E. Comorbidities Liver Disease
Item
1. Chronic elevation of liver transaminases
text
C0438717 (UMLS CUI [1])
Code List
1. Chronic elevation of liver transaminases
CL Item
Yes (Yes)
CL Item
No  (No )
CL Item
Unknown (Unknown)
Item
2. Chronic HBV infection
text
C0524909 (UMLS CUI [1])
Code List
2. Chronic HBV infection
CL Item
Yes (Yes)
CL Item
No  (No )
CL Item
Unknown (Unknown)
Item
3. Chronic HCV infection
text
C0524910 (UMLS CUI [1])
Code List
3. Chronic HCV infection
CL Item
Yes (Yes)
CL Item
No  (No )
CL Item
Unknown (Unknown)
Item
4. HDV infection
text
C0011226 (UMLS CUI [1])
Code List
4. HDV infection
CL Item
Yes (Yes)
CL Item
No  (No )
CL Item
Unknown (Unknown)
Item
5. History of previous liver decompensation
text
C0085605 (UMLS CUI [1,1])
C0455483 (UMLS CUI [1,2])
Code List
5. History of previous liver decompensation
CL Item
Yes (Yes)
CL Item
No  (No )
CL Item
Unknown (Unknown)
Item
6. Clinical signs of liver failure in the 4 weeks before death
text
C0085605 (UMLS CUI [1,1])
C0439230 (UMLS CUI [1,2])
C0332152 (UMLS CUI [1,3])
C0011065 (UMLS CUI [1,4])
Code List
6. Clinical signs of liver failure in the 4 weeks before death
CL Item
Yes (Yes)
CL Item
No  (No )
CL Item
Unknown (Unknown)
Item
7. Liver histology available (ever)
text
C0586689 (UMLS CUI [1])
Code List
7. Liver histology available (ever)
CL Item
Yes (Yes)
CL Item
No  (No )
CL Item
Unknown (Unknown)
LiverBiopsyDate
Item
Date of Liver Biopsy
date
C0586689 (UMLS CUI [1,1])
C0011008 (UMLS CUI [1,2])
Item
Stage of fibrosis (0-4)
integer
C1954435 (UMLS CUI [1,1])
C0023884 (UMLS CUI [1,2])
Code List
Stage of fibrosis (0-4)
CL Item
0 (1)
CL Item
1 (2)
CL Item
2 (3)
CL Item
3 (4)
CL Item
4 (5)

Please use this form for feedback, questions and suggestions for improvements.

Fields marked with * are required.

Do you need help on how to use the search function? Please watch the corresponding tutorial video for more details and learn how to use the search function most efficiently.

Watch Tutorial