Item
was the patient impaired by pain over the last 3 days?
integer
C0030193 (UMLS CUI [1,1])
C0221099 (UMLS CUI [1,2])
Code List
was the patient impaired by pain over the last 3 days?
CL Item
no, not at all (0)
CL Item
a bit - nothing had to be done about it (1)
CL Item
moderately - small impairment by pain (2)
CL Item
strongly - activity and congnition were severely impaired (3)
CL Item
extremely strong impairment - could not think about anything else (4)
Item
was the patient's overall well being impaired by other symptoms such as nausea, dyspnea, coughing or constipation over the last 3 days?
integer
C3813622 (UMLS CUI [1])
Code List
was the patient's overall well being impaired by other symptoms such as nausea, dyspnea, coughing or constipation over the last 3 days?
CL Item
no, not at all (0)
CL Item
extremely severely (4)
Item
was the patient worried or anxious about her/his disease or treatment over the last 3 days?
integer
C0233481 (UMLS CUI [1])
C0003467 (UMLS CUI [2])
Code List
was the patient worried or anxious about her/his disease or treatment over the last 3 days?
CL Item
no, not at all (0)
CL Item
sometimes - my concentration was occasionally impaired (2)
CL Item
most of the time - my concentration was impaired often (3)
CL Item
I cannot think about anything else - I am entirely absorbed by my worries and fears (4)
Item
were the patient's relatives or friends concerned about the patient over the last 3 days?
integer
C0080103 (UMLS CUI [1,1])
C0233481 (UMLS CUI [1,2])
Code List
were the patient's relatives or friends concerned about the patient over the last 3 days?
CL Item
no, not at all (0)
CL Item
sometimes - their concentration seemed to be impaired (2)
CL Item
most of the time (3)
CL Item
yes, they seemed to be constantly worried (4)
Item
to what extent was the patient or her/his relatives and friends informed over the last 3 days?
integer
C1533716 (UMLS CUI [1,1])
C0439792 (UMLS CUI [1,2])
Code List
to what extent was the patient or her/his relatives and friends informed over the last 3 days?
CL Item
entirely informed - I know I can ask anytime (0)
CL Item
I received information but did not fully understand (1)
CL Item
I was informed on demand - I had wished for more information (2)
CL Item
I was poorly informed - some questions were avoided (3)
Item
could the patient share her/his feelings with relatives and friends over the last 3 days?
integer
C1527305 (UMLS CUI [1,1])
C0237876 (UMLS CUI [1,2])
Code List
could the patient share her/his feelings with relatives and friends over the last 3 days?
CL Item
yes, as much as wanted (0)
CL Item
most of the time (1)
CL Item
no, not at all / could not share feelings with anyone (4)
Item
over the last 3 days did you get the impression that the patient found life worth living?
integer
C1821525 (UMLS CUI [1])
Code List
over the last 3 days did you get the impression that the patient found life worth living?
CL Item
most of the time (1)
CL Item
no, not at all (4)
Item
over the last 3 days did you get the impression the patient had a positive feeling of self-worth?
integer
C0518586 (UMLS CUI [1,1])
C1446409 (UMLS CUI [1,2])
Code List
over the last 3 days did you get the impression the patient had a positive feeling of self-worth?
CL Item
most of the time (1)
CL Item
no, not at all (4)
Item
in your opinion how much time was wasted with therapy related appointments, e.g. waiting for transports, repeating of examinations?
integer
C0040223 (UMLS CUI [1])
Code List
in your opinion how much time was wasted with therapy related appointments, e.g. waiting for transports, repeating of examinations?
CL Item
no time at all (0)
CL Item
up to half a day (2)
CL Item
more than half a day (4)
Item
over the last 3 days, were concrete aspects of the disease e.g. financial or personal aspects addressed?
integer
Code List
over the last 3 days, were concrete aspects of the disease e.g. financial or personal aspects addressed?
CL Item
pratical issues were approached and were handled with my satisfaction (0)
CL Item
practical issues are handled at the moment (2)
CL Item
there are practical issues that were not approached (4)
CL Item
pratical issues were approached and were handled with my satisfaction (0)
CL Item
I did not have any pratical issues (0,0)
primary issues
Item
what issues were the primary issues over the last 3 days?
text
C3258059 (UMLS CUI [1])
Item
what is the patient's current ECOG performance status?
integer
C1632812 (UMLS CUI [1])
Code List
what is the patient's current ECOG performance status?
CL Item
Fully Active, Able To Carry On All Pre-disease Performance Without Restriction. (0) (0)
CL Item
Restricted In Physically Strenuous Activity But Ambulatory And Able To Carry Out Work Of A Light Or Sedentary Nature, E.g., Light Housework, Office Work. (1) (1)
CL Item
Ambulatory And Capable Of All Selfcare But Unable To Carry Out Any Work Activities. Up And About More Than 50% Of Waking Hours. (2) (2)
CL Item
Capable Of Only Limited Selfcare, Confined To Bed Or Chair More Than 50% Of Waking Hours. (3) (3)
CL Item
Completely Disabled. Cannot Carry On Any Selfcare. Totally Confined To Bed Or Chair. (4) (4)
POS sum score
Item
POS sum score
integer
C1515051 (UMLS CUI [1])
Item
were you impaired by pain over the last 3 days?
integer
C0030193 (UMLS CUI [1,1])
C0221099 (UMLS CUI [1,2])
Code List
were you impaired by pain over the last 3 days?
CL Item
no, not at all (0)
CL Item
a bit - nothing had to be done about it (1)
CL Item
moderately - small impairment by pain (2)
CL Item
strongly - activity and congnition were severely impaired (3)
CL Item
extremely strong impairment - could not think about anything else (4)
Item
was your overall well being impaired by other symptoms such as nausea, dyspnea, coughing or constipation over the last 3 days?
integer
C3813622 (UMLS CUI [1])
Code List
was your overall well being impaired by other symptoms such as nausea, dyspnea, coughing or constipation over the last 3 days?
CL Item
no, not at all (0)
CL Item
extremely severely (4)
Item
were you worried or anxious about your disease or treatment over the last 3 days?
integer
C0233481 (UMLS CUI [1])
C0003467 (UMLS CUI [2])
Code List
were you worried or anxious about your disease or treatment over the last 3 days?
CL Item
no, not at all (0)
CL Item
sometimes - my concentration was occasionally impaired (2)
CL Item
most of the time - my concentration was impaired often (3)
CL Item
I cannot think about anything else - I am entirely absorbed by my worries and fears (4)
Item
were your relatives or friends concerned about you over the last 3 days?
integer
C0080103 (UMLS CUI [1,1])
C0233481 (UMLS CUI [1,2])
Code List
were your relatives or friends concerned about you over the last 3 days?
CL Item
no, not at all (0)
CL Item
sometimes - their concentration seemed to be impaired (2)
CL Item
most of the time (3)
CL Item
yes, they seemed to be constantly worried (4)
Item
to what extent were you or your relatives and friends informed over the last 3 days?
integer
C1533716 (UMLS CUI [1,1])
C0439792 (UMLS CUI [1,2])
Code List
to what extent were you or your relatives and friends informed over the last 3 days?
CL Item
entirely informed - I know I can ask anytime (0)
CL Item
I received information but did not fully understand (1)
CL Item
I was informed on demand - I had wished for more information (2)
CL Item
I was poorly informed - some questions were avoided (3)
Item
could you share your feelings with relatives and friends over the last 3 days?
integer
C1527305 (UMLS CUI [1,1])
C0237876 (UMLS CUI [1,2])
Code List
could you share your feelings with relatives and friends over the last 3 days?
CL Item
yes, as much as wanted (0)
CL Item
most of the time (1)
CL Item
no, not at all / could not share feelings with anyone (4)
Item
over the last 3 days did you find life worth living?
integer
C1821525 (UMLS CUI [1])
Code List
over the last 3 days did you find life worth living?
CL Item
most of the time (1)
CL Item
no, not at all (4)
Item
over the last 3 days did you have a positive feeling of self-worth?
integer
C0518586 (UMLS CUI [1,1])
C1446409 (UMLS CUI [1,2])
Code List
over the last 3 days did you have a positive feeling of self-worth?
CL Item
most of the time (1)
CL Item
no, not at all (4)
Item
in your opinion how much time was wasted with therapy related appointments, e.g. waiting for transports, repeating of examinations?
integer
C0040223 (UMLS CUI [1])
Code List
in your opinion how much time was wasted with therapy related appointments, e.g. waiting for transports, repeating of examinations?
CL Item
no time at all (0)
CL Item
up to half a day (2)
CL Item
more than half a day (4)
Item
over the last 3 days, were concrete aspects of the disease e.g. financial or personal aspects addressed?
integer
Code List
over the last 3 days, were concrete aspects of the disease e.g. financial or personal aspects addressed?
CL Item
pratical issues were approached and were handled with my satisfaction (0)
CL Item
practical issues are handled at the moment (2)
CL Item
there are practical issues that were not approached (4)
CL Item
pratical issues were approached and were handled with my satisfaction (0)
CL Item
I did not have any pratical issues (0,0)
primary issues
Item
what issues were the primary issues over the last 3 days?
text
C3258059 (UMLS CUI [1])
Item
how did you complete this form?
integer
C1516308 (UMLS CUI [1,1])
C0205197 (UMLS CUI [1,2])
Code List
how did you complete this form?
CL Item
with the help of a friend or relative (1)
CL Item
with the help of the staff (2)
POS sum score
Item
POS sum score
integer
C1515051 (UMLS CUI [1])