ID

15055

Description

https://www.hope-clara.de/ The HOPE Hospice and Palliative Care Recording standard documentation is used for documentation of palliative care and as an instrument for quality assurance in pallatiave wards, hospices and oncological wards as well as in ambulatory services and palliative teams.

Link

https://www.hope-clara.de/

Keywords

Versions (1)
  1. 5/13/16 5/13/16 -
Copyright Holder

CC BY-NC 3.0

Uploaded on

May 13, 2016

DOI

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License

Creative Commons BY-NC 3.0
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Palliative and Hospice Care Decisions

German English

Palliative and Hospice Care Decisions

1 forms  
Information
Description

Information

Fully informed about the diagnosis
Description

information about diagnosis

Data type

boolean

Alias
UMLS CUI [1,1]
C1533716
UMLS CUI [1,2]
C0011900
fully informed about the status
Description

information about status

Data type

boolean

Alias
UMLS CUI [1,1]
C1533716
UMLS CUI [1,2]
C0018759
fully informed about the prognosis
Description

information about prognosis

Data type

boolean

Alias
UMLS CUI [1,1]
C1533716
UMLS CUI [1,2]
C0033325
comments
Description

comments

Data type

text

Alias
UMLS CUI [1]
C0947611
Living will
Description

Living will

living will
Description

living will

Data type

integer

Alias
UMLS CUI [1]
C0023914
health care proxy
Description

health care proxy

Data type

integer

Alias
UMLS CUI [1]
C2029796
appointment of legal representative for health care
Description

appointment of legal representative for health care

Data type

integer

Alias
UMLS CUI [1,1]
C0030701
UMLS CUI [1,2]
C1301860
UMLS CUI [1,3]
C0086388
comment
Description

comment

Data type

text

Alias
UMLS CUI [1]
C0947611
Decisions against therapy
Description

Decisions against therapy

reanimation
Description

reanimation

Data type

integer

Alias
UMLS CUI [1]
C0035273
parenteral feeding
Description

parenteral feeding

Data type

integer

Alias
UMLS CUI [1]
C1527385
fluid administration
Description

fluid administration

Data type

text

Alias
UMLS CUI [1,1]
C0302908
UMLS CUI [1,2]
C1533734
chemotherapy
Description

chemotherapy

Data type

integer

Alias
UMLS CUI [1]
C3665472
radiotherapy
Description

radiotherapy

Data type

integer

Alias
UMLS CUI [1]
C1522449
intensive care
Description

intensive care

Data type

integer

Alias
UMLS CUI [1]
C0085559
other
Description

other

Data type

text

Alias
UMLS CUI [1]
C0205394
other
Description

other

Data type

integer

Alias
UMLS CUI [1]
C0205394
comment
Description

comment

Data type

text

Alias
UMLS CUI [1]
C0947611
palliative sedation
Description

palliative sedation

sedation requested by
Description

sedation request

Data type

integer

Alias
UMLS CUI [1,1]
C0344106
UMLS CUI [1,2]
C1272683
sedation requested by other
Description

sedation requested by other

Data type

text

Alias
UMLS CUI [1,1]
C0344106
UMLS CUI [1,2]
C1272683
UMLS CUI [1,3]
C0205394
reason for sedation
Description

reason for sedation

Data type

integer

Alias
UMLS CUI [1,1]
C0392360
UMLS CUI [1,2]
C0344106
other reason for sedation
Description

other reason for sedation

Data type

text

Alias
UMLS CUI [1,1]
C0344106
UMLS CUI [1,2]
C3840932
sedation type
Description

sedation type

Data type

integer

Alias
UMLS CUI [1,1]
C0332307
UMLS CUI [1,2]
C0344106
sedation level
Description

sedation level

Data type

integer

Alias
UMLS CUI [1,1]
C0441889
UMLS CUI [1,2]
C0344106
medication for sedation
Description

medication for sedation

Data type

integer

Alias
UMLS CUI [1,1]
C0013227
UMLS CUI [1,2]
C0344106
other medication for sedation
Description

other medication for sedation

Data type

text

Alias
UMLS CUI [1,1]
C0013227
UMLS CUI [1,2]
C0205394
UMLS CUI [1,3]
C0344106
comment
Description

comment

Data type

text

Alias
UMLS CUI [1]
C0947611
assisted suicide
Description

assisted suicide

wish to die soon
Description

wish to die soon

Data type

integer

Alias
UMLS CUI [1,1]
C0747309
UMLS CUI [1,2]
C0011065
active assisted suicide requested by
Description

active assisted suicide requested

Data type

integer

Alias
UMLS CUI [1,1]
C0162665
UMLS CUI [1,2]
C0205177
UMLS CUI [1,3]
C1272683
reason for request for active assisted suicide
Description

reason for request for active assisted suicide

Data type

text

Alias
UMLS CUI [1,1]
C0162665
UMLS CUI [1,2]
C0205177
UMLS CUI [1,3]
C1272683
UMLS CUI [1,4]
C0392360
comment
Description

comment

Data type

text

Alias
UMLS CUI [1]
C0947611
ethical conflicts
Description

ethical conflicts

unrealistic expectation from treatment by
Description

unrealistic expectation from treatment

Data type

integer

Alias
UMLS CUI [1]
C1266857
unrealistic expectation from treatment by other
Description

unrealistic expectation from treatment by other

Data type

text

Alias
UMLS CUI [1,1]
C1266857
UMLS CUI [1,2]
C0205394
discharge request not fulfilled. request by
Description

discharge request not fulfilled

Data type

integer

Alias
UMLS CUI [1]
C1548928
discharge request by other not fulfilled
Description

discharge request by other not fulfilled

Data type

text

Alias
UMLS CUI [1,1]
C1548928
UMLS CUI [1,2]
C0205394
information (about the disease, about planned therapeutic procedures or about a decision against therapy) not possible because of
Description

information not possible

Data type

integer

Alias
UMLS CUI [1,1]
C1533716
UMLS CUI [1,2]
C0332149
information (about the disease, about planned therapeutic procedures or about a decision against therapy) not possible because of other reasons
Description

information not possible for other reason

Data type

text

Alias
UMLS CUI [1,1]
C1533716
UMLS CUI [1,2]
C0332149
UMLS CUI [1,3]
C3840932
ambivalence
Description

ambivalence

Data type

integer

Alias
UMLS CUI [1]
C0233495
other ambivalence
Description

other ambivalence

Data type

text

Alias
UMLS CUI [1,1]
C0233495
UMLS CUI [1,2]
C0205394
anger and aggression
Description

anger and aggression

Data type

integer

Alias
UMLS CUI [1]
C0002957
UMLS CUI [2]
C1457883
anger and aggression by other
Description

anger and aggression by other

Data type

text

Alias
UMLS CUI [1]
C0002957
UMLS CUI [2]
C1457883
UMLS CUI [3]
C0205394
other ethical conflicts
Description

other ethical conflicts

Data type

text

Alias
UMLS CUI [1,1]
C0086264
UMLS CUI [1,2]
C0205394
comment
Description

comment

Data type

text

Alias
UMLS CUI [1]
C0947611
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Similar models

Palliative and Hospice Care Decisions

1 forms
Name
Type
Description | Question | Decode (Coded Value)
Data type
Alias
Item Group
Information
information about diagnosis
Item
Fully informed about the diagnosis
boolean
C1533716 (UMLS CUI [1,1])
C0011900 (UMLS CUI [1,2])
information about status
Item
fully informed about the status
boolean
C1533716 (UMLS CUI [1,1])
C0018759 (UMLS CUI [1,2])
information about prognosis
Item
fully informed about the prognosis
boolean
C1533716 (UMLS CUI [1,1])
C0033325 (UMLS CUI [1,2])
comments
Item
comments
text
C0947611 (UMLS CUI [1])
Item Group
Living will
Item
living will
integer
C0023914 (UMLS CUI [1])
living will
Code List
living will
CL Item
available (1)
CL Item
discussed (2)
CL Item
written (3)
Item
health care proxy
integer
C2029796 (UMLS CUI [1])
living will
Code List
health care proxy
CL Item
available (1)
CL Item
discussed (2)
CL Item
written (3)
Item
appointment of legal representative for health care
integer
C0030701 (UMLS CUI [1,1])
C1301860 (UMLS CUI [1,2])
C0086388 (UMLS CUI [1,3])
living will
Code List
appointment of legal representative for health care
CL Item
available (1)
CL Item
discussed (2)
CL Item
written (3)
comment
Item
comment
text
C0947611 (UMLS CUI [1])
Item Group
Decisions against therapy
Item
reanimation
integer
C0035273 (UMLS CUI [1])
reanimation
Code List
reanimation
CL Item
no initiation (1)
CL Item
stop (2)
CL Item
shall be performed (3)
Item
parenteral feeding
integer
C1527385 (UMLS CUI [1])
reanimation
Code List
parenteral feeding
CL Item
no initiation (1)
CL Item
stop (2)
CL Item
shall be performed (3)
Item
fluid administration
text
C0302908 (UMLS CUI [1,1])
C1533734 (UMLS CUI [1,2])
reanimation
Code List
fluid administration
CL Item
no initiation (1)
CL Item
stop (2)
CL Item
shall be performed (3)
Item
chemotherapy
integer
C3665472 (UMLS CUI [1])
reanimation
Code List
chemotherapy
CL Item
no initiation (1)
CL Item
stop (2)
CL Item
shall be performed (3)
Item
radiotherapy
integer
C1522449 (UMLS CUI [1])
reanimation
Code List
radiotherapy
CL Item
no initiation (1)
CL Item
stop (2)
CL Item
shall be performed (3)
Item
intensive care
integer
C0085559 (UMLS CUI [1])
reanimation
Code List
intensive care
CL Item
no initiation (1)
CL Item
stop (2)
CL Item
shall be performed (3)
other
Item
other
text
C0205394 (UMLS CUI [1])
Item
other
integer
C0205394 (UMLS CUI [1])
reanimation
Code List
other
CL Item
no initiation (1)
CL Item
stop (2)
CL Item
shall be performed (3)
comment
Item
comment
text
C0947611 (UMLS CUI [1])
Item Group
palliative sedation
Item
sedation requested by
integer
C0344106 (UMLS CUI [1,1])
C1272683 (UMLS CUI [1,2])
sedation
Code List
sedation requested by
CL Item
patient (1)
CL Item
partner (2)
CL Item
other (3)
sedation requested by other
Item
sedation requested by other
text
C0344106 (UMLS CUI [1,1])
C1272683 (UMLS CUI [1,2])
C0205394 (UMLS CUI [1,3])
Item
reason for sedation
integer
C0392360 (UMLS CUI [1,1])
C0344106 (UMLS CUI [1,2])
reason for sedation
Code List
reason for sedation
CL Item
anxiety (1)
CL Item
agitation (2)
CL Item
suffering (3)
CL Item
pain (4)
CL Item
dyspnea (5)
CL Item
other (6)
other reason for sedation
Item
other reason for sedation
text
C0344106 (UMLS CUI [1,1])
C3840932 (UMLS CUI [1,2])
Item
sedation type
integer
C0332307 (UMLS CUI [1,1])
C0344106 (UMLS CUI [1,2])
sedation type
Code List
sedation type
CL Item
intermittent (1)
CL Item
continuous (2)
Item
sedation level
integer
C0441889 (UMLS CUI [1,1])
C0344106 (UMLS CUI [1,2])
sedation level
Code List
sedation level
CL Item
somnolence (1)
CL Item
stupor (2)
CL Item
coma (3)
Item
medication for sedation
integer
C0013227 (UMLS CUI [1,1])
C0344106 (UMLS CUI [1,2])
medication for sedation
Code List
medication for sedation
CL Item
dormicum (1)
CL Item
other (2)
other medication for sedation
Item
other medication for sedation
text
C0013227 (UMLS CUI [1,1])
C0205394 (UMLS CUI [1,2])
C0344106 (UMLS CUI [1,3])
comment
Item
comment
text
C0947611 (UMLS CUI [1])
Item Group
assisted suicide
Item
wish to die soon
integer
C0747309 (UMLS CUI [1,1])
C0011065 (UMLS CUI [1,2])
wish to die soon
Code List
wish to die soon
CL Item
patient (1)
CL Item
partner (2)
CL Item
other family member (3)
Item
active assisted suicide requested by
integer
C0162665 (UMLS CUI [1,1])
C0205177 (UMLS CUI [1,2])
C1272683 (UMLS CUI [1,3])
active assisted suicide requested
Code List
active assisted suicide requested by
CL Item
patient (1)
CL Item
partner (2)
CL Item
other family member (3)
reason for request for active assisted suicide
Item
reason for request for active assisted suicide
text
C0162665 (UMLS CUI [1,1])
C0205177 (UMLS CUI [1,2])
C1272683 (UMLS CUI [1,3])
C0392360 (UMLS CUI [1,4])
comment
Item
comment
text
C0947611 (UMLS CUI [1])
Item Group
ethical conflicts
Item
unrealistic expectation from treatment by
integer
C1266857 (UMLS CUI [1])
unrealistic expectation from treatment
Code List
unrealistic expectation from treatment by
CL Item
patient (1)
CL Item
relatives (2)
CL Item
other (3)
unrealistic expectation from treatment by other
Item
unrealistic expectation from treatment by other
text
C1266857 (UMLS CUI [1,1])
C0205394 (UMLS CUI [1,2])
Item
discharge request not fulfilled. request by
integer
C1548928 (UMLS CUI [1])
unrealistic expectation from treatment
Code List
discharge request not fulfilled. request by
CL Item
patient (1)
CL Item
relatives (2)
CL Item
other (3)
discharge request by other not fulfilled
Item
discharge request by other not fulfilled
text
C1548928 (UMLS CUI [1,1])
C0205394 (UMLS CUI [1,2])
Item
information (about the disease, about planned therapeutic procedures or about a decision against therapy) not possible because of
integer
C1533716 (UMLS CUI [1,1])
C0332149 (UMLS CUI [1,2])
information not possible
Code List
information (about the disease, about planned therapeutic procedures or about a decision against therapy) not possible because of
CL Item
repression (1)
CL Item
family veto (2)
CL Item
dementia (3)
CL Item
confusion (4)
CL Item
decreased consciousness (5)
CL Item
reduced general health status (6)
CL Item
other reasons (7)
information not possible for other reason
Item
information (about the disease, about planned therapeutic procedures or about a decision against therapy) not possible because of other reasons
text
C1533716 (UMLS CUI [1,1])
C0332149 (UMLS CUI [1,2])
C3840932 (UMLS CUI [1,3])
Item
ambivalence
integer
C0233495 (UMLS CUI [1])
ambivalence
Code List
ambivalence
CL Item
between hope and clarification (1)
CL Item
between will to live and assisted suicide (2)
CL Item
changing or emotionally unstable condition (3)
CL Item
other (4)
other ambivalence
Item
other ambivalence
text
C0233495 (UMLS CUI [1,1])
C0205394 (UMLS CUI [1,2])
Item
anger and aggression
integer
C0002957 (UMLS CUI [1])
C1457883 (UMLS CUI [2])
anger and aggression
Code List
anger and aggression
CL Item
patient (1)
CL Item
relatives (2)
CL Item
other (3)
anger and aggression by other
Item
anger and aggression by other
text
C0002957 (UMLS CUI [1])
C1457883 (UMLS CUI [2])
C0205394 (UMLS CUI [3])
other ethical conflicts
Item
other ethical conflicts
text
C0086264 (UMLS CUI [1,1])
C0205394 (UMLS CUI [1,2])
comment
Item
comment
text
C0947611 (UMLS CUI [1])
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