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ID

14770

Description

NINDS Common Data Elements Used from the National Institute of Neurological Disorders and Stroke Common Data Elements (https://www.commondataelements.ninds.nih.gov/) References: Grinnon ST, Miller K, Marler JR, Lu Y, Stout A, Odenkirchen J, Kunitz S. National Institute of Neurological Disorders and Stroke Common Data Element Project - approach and methods. Clin Trials. 2012;9(3):322-9.

Link

https://www.commondataelements.ninds.nih.gov/

Keywords

  1. 4/27/16 4/27/16 -
Uploaded on

April 27, 2016

DOI

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License

Creative Commons BY-NC 3.0

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    NINDS CDE Neuropsychological Testing Background Information Epilepsy

    Neuropsychological Testing Background Information

    Neuropsychological Testing Background Information
    Description

    Neuropsychological Testing Background Information

    Study ID
    Description

    Study ID

    Data type

    text

    Alias
    UMLS CUI [1]
    C2826693 (Study Identifier)
    Study site name
    Description

    Study site

    Data type

    text

    Alias
    UMLS CUI [1]
    C2825164 (Study Site)
    Subject ID
    Description

    Subject ID

    Data type

    text

    Alias
    UMLS CUI [1]
    C2348585 (Clinical Trial Subject Unique Identifier)
    Family History of Sinistrality (Do you have any first degree biological relatives [mother, father, siblings, children] who write left-handed or with both hands?):
    Description

    Family history

    Data type

    integer

    Alias
    UMLS CUI [1]
    C0241889 (Family history (finding))
    SNOMED
    416471007
    Formal Learning Disability or ADD/ADHD diagnosis (Were you given formal diagnosis of any learning disability or diagnosed with ADD/ADHD?):
    Description

    Learning disability

    Data type

    integer

    Alias
    UMLS CUI [1]
    C0751265 (Learning Disabilities)
    SNOMED
    1855002
    If you have been diagnosed with learning disabilities, please specify
    Description

    Learning disability

    Data type

    integer

    Alias
    UMLS CUI [1]
    C0751265 (Learning Disabilities)
    SNOMED
    1855002
    Please specify other Learning Disability
    Description

    Learning Disability

    Data type

    text

    Alias
    UMLS CUI [1]
    C0751265 (Learning Disabilities)
    SNOMED
    1855002
    Did you ever repeat a grade in school?
    Description

    School performance

    Data type

    integer

    Alias
    UMLS CUI [1]
    C0036373 (Academic Performance)
    Did you ever receive special accommodations for coursework?
    Description

    School performance

    Data type

    integer

    Alias
    UMLS CUI [1]
    C0036373 (Academic Performance)
    Disability status
    Description

    Disability status

    Data type

    integer

    Alias
    UMLS CUI [1]
    C0231170 (Disability)
    SNOMED
    21134002
    LOINC
    MTHU064635
    Previous psychological/neuropsychological testing?
    Description

    Psychometric testing

    Data type

    integer

    Alias
    UMLS CUI [1]
    C0033920 (Psychometrics)
    SNOMED
    307809000
    If you have been tested before, please specify at what age
    Description

    Psychometric testing

    Data type

    integer

    Alias
    UMLS CUI [1]
    C0033920 (Psychometrics)
    SNOMED
    307809000
    Established language laterality (fMRI or Wada):
    Description

    Language laterality

    Data type

    integer

    Alias
    UMLS CUI [1,1]
    C0500455 (Language screening)
    UMLS CUI [1,2]
    C0013010 (Dominance, Cerebral)
    SNOMED
    246558001
    If yes, language:
    Description

    Language laterality

    Data type

    integer

    Alias
    UMLS CUI [1,1]
    C0500455 (Language screening)
    UMLS CUI [1,2]
    C0013010 (Dominance, Cerebral)
    SNOMED
    246558001

    Similar models

    Neuropsychological Testing Background Information

    Name
    Type
    Description | Question | Decode (Coded Value)
    Data type
    Alias
    Item Group
    Neuropsychological Testing Background Information
    Study ID
    Item
    Study ID
    text
    C2826693 (UMLS CUI [1])
    Study site
    Item
    Study site name
    text
    C2825164 (UMLS CUI [1])
    Subject ID
    Item
    Subject ID
    text
    C2348585 (UMLS CUI [1])
    Item
    Family History of Sinistrality (Do you have any first degree biological relatives [mother, father, siblings, children] who write left-handed or with both hands?):
    integer
    C0241889 (UMLS CUI [1])
    Code List
    Family History of Sinistrality (Do you have any first degree biological relatives [mother, father, siblings, children] who write left-handed or with both hands?):
    CL Item
    Yes (1)
    CL Item
    No (2)
    CL Item
    Unknown (3)
    Item
    Formal Learning Disability or ADD/ADHD diagnosis (Were you given formal diagnosis of any learning disability or diagnosed with ADD/ADHD?):
    integer
    C0751265 (UMLS CUI [1])
    Code List
    Formal Learning Disability or ADD/ADHD diagnosis (Were you given formal diagnosis of any learning disability or diagnosed with ADD/ADHD?):
    CL Item
    Yes (1)
    CL Item
    No (2)
    CL Item
    Unknown (3)
    Item
    If you have been diagnosed with learning disabilities, please specify
    integer
    C0751265 (UMLS CUI [1])
    Code List
    If you have been diagnosed with learning disabilities, please specify
    CL Item
    ADHD (1)
    CL Item
    Dyslexia (2)
    CL Item
    Dyscalculia (3)
    CL Item
    ADD (4)
    CL Item
    Dysgraphia (5)
    CL Item
    Other, specify (6)
    Learning Disability
    Item
    Please specify other Learning Disability
    text
    C0751265 (UMLS CUI [1])
    Item
    Did you ever repeat a grade in school?
    integer
    C0036373 (UMLS CUI [1])
    Code List
    Did you ever repeat a grade in school?
    CL Item
    Yes (1)
    CL Item
    No (2)
    CL Item
    Unknown (3)
    Item
    Did you ever receive special accommodations for coursework?
    integer
    C0036373 (UMLS CUI [1])
    Code List
    Did you ever receive special accommodations for coursework?
    CL Item
    Yes (1)
    CL Item
    No (2)
    CL Item
    Unknown (3)
    Item
    Disability status
    integer
    C0231170 (UMLS CUI [1])
    Code List
    Disability status
    CL Item
    On disability (1)
    CL Item
    Applying for disability (2)
    CL Item
    Not applicable (3)
    Item
    Previous psychological/neuropsychological testing?
    integer
    C0033920 (UMLS CUI [1])
    Code List
    Previous psychological/neuropsychological testing?
    CL Item
    Yes (1)
    CL Item
    No (2)
    CL Item
    Unknown (3)
    Psychometric testing
    Item
    If you have been tested before, please specify at what age
    integer
    C0033920 (UMLS CUI [1])
    Item
    Established language laterality (fMRI or Wada):
    integer
    C0500455 (UMLS CUI [1,1])
    C0013010 (UMLS CUI [1,2])
    Code List
    Established language laterality (fMRI or Wada):
    CL Item
    Yes (1)
    CL Item
    No (2)
    CL Item
    Unknown (3)
    Item
    If yes, language:
    integer
    C0500455 (UMLS CUI [1,1])
    C0013010 (UMLS CUI [1,2])
    Code List
    If yes, language:
    CL Item
    Left (1)
    CL Item
    Right (2)
    CL Item
    Bilateral (3)

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