ID

14768

Description

NINDS Common Data Elements Used from the National Institute of Neurological Disorders and Stroke Common Data Elements (https://www.commondataelements.ninds.nih.gov/) References: Grinnon ST, Miller K, Marler JR, Lu Y, Stout A, Odenkirchen J, Kunitz S. National Institute of Neurological Disorders and Stroke Common Data Element Project - approach and methods. Clin Trials. 2012;9(3):322-9.

Lien

https://www.commondataelements.ninds.nih.gov/

Mots-clés

Versions (1)
  1. 27/04/2016 27/04/2016 -
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27 avril 2016

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Creative Commons BY-NC 3.0
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NINDS CDE Post-Traumatic Epilepsy Screening Epilepsy

Anglais

Post-Traumatic Epilepsy Screening

1 Formulaires  
Post-Traumatic Epilepsy Screening
Description

Post-Traumatic Epilepsy Screening

Study ID
Description

Study ID

Type de données

text

Alias
UMLS CUI [1]
C2826693
Principal Investigator name
Description

Principal Investigator name

Type de données

text

Alias
UMLS CUI [1]
C1521895
Subject ID
Description

Subject ID

Type de données

text

Alias
UMLS CUI [1]
C2348585
Have you/your family member had or has anyone ever told you that you/they had any of the following: Uncontrolled movements of part or all of the body such as twitching, jerking, shaking or going limp, lasting about 5 minutes or less?
Description

If the answer to any of the questions above is YES, proceed to the following questions

Type de données

integer

Alias
UMLS CUI [1]
C0037088
Have you/your family member had or has anyone ever told you that you/they had any of the following: An unexplained change in mental state or level of awareness; or an episode of "spacing out" which you/your family member could not control, lasting about 5 minutes or less?
Description

If the answer to any of the questions above is YES, proceed to the following questions

Type de données

integer

Alias
UMLS CUI [1]
C0037088
Have you/your family member had or has anyone ever told you that you/they had any of the following: any other type of repeated unusual attacks or convulsions lasting about 5 minutes or less?
Description

If the answer to any of the questions above is YES, proceed to the following questions

Type de données

integer

Alias
UMLS CUI [1]
C0037088
Has anyone ever told you that you/your family member/ have seizure(s) or epilepsy?
Description

If the answer to any of the questions above is YES, proceed to the following questions

Type de données

integer

Alias
UMLS CUI [1,1]
C0014544
UMLS CUI [1,2]
C0036572
Which of the following sources of information were queried?
Description

Check all that apply

Type de données

integer

Alias
UMLS CUI [1]
C0683836
Has the participant had seizures or epilepsy prior to the traumatic brain injury?
Description

Seizures or Epilepsy

Type de données

integer

Alias
UMLS CUI [1,1]
C0014544
UMLS CUI [1,2]
C0036572
Has the participant been diagnosed with epilepsy, a seizure disorder, or a single seizure after the date of the traumatic brain injury diagnosis?
Description

Traumatic brain injury, seizures or epilepsy

Type de données

integer

Alias
UMLS CUI [1,1]
C0876926
UMLS CUI [1,2]
C0014544
UMLS CUI [1,3]
C0036572
Did seizure(s) occur later than seven days after the date of the traumatic brain injury?
Description

Traumatic brain injury, seizures

Type de données

integer

Alias
UMLS CUI [1,1]
C0876926
UMLS CUI [1,2]
C0036572
Date of diagnosis
Description

Date of diagnosis

Type de données

date

Alias
UMLS CUI [1]
C2316983
Who gave this diagnosis?
Description

Health care professional

Type de données

integer

Alias
UMLS CUI [1]
C0018724
Has the patient received medication for seizures or epilepsy?
Description

Medication

Type de données

integer

Alias
UMLS CUI [1]
C0013227
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Similar models

Post-Traumatic Epilepsy Screening

1 Formulaires
Name
Type
Description | Question | Decode (Coded Value)
Type de données
Alias
Item Group
Post-Traumatic Epilepsy Screening
Study ID
Item
Study ID
text
C2826693 (UMLS CUI [1])
Principal Investigator name
Item
Principal Investigator name
text
C1521895 (UMLS CUI [1])
Subject ID
Item
Subject ID
text
C2348585 (UMLS CUI [1])
Item
Have you/your family member had or has anyone ever told you that you/they had any of the following: Uncontrolled movements of part or all of the body such as twitching, jerking, shaking or going limp, lasting about 5 minutes or less?
integer
C0037088 (UMLS CUI [1])
Signs and Symptoms
Code List
Have you/your family member had or has anyone ever told you that you/they had any of the following: Uncontrolled movements of part or all of the body such as twitching, jerking, shaking or going limp, lasting about 5 minutes or less?
CL Item
Yes (1)
CL Item
No (2)
CL Item
Unknown (3)
Item
Have you/your family member had or has anyone ever told you that you/they had any of the following: An unexplained change in mental state or level of awareness; or an episode of "spacing out" which you/your family member could not control, lasting about 5 minutes or less?
integer
C0037088 (UMLS CUI [1])
Signs and Symptoms
Code List
Have you/your family member had or has anyone ever told you that you/they had any of the following: An unexplained change in mental state or level of awareness; or an episode of "spacing out" which you/your family member could not control, lasting about 5 minutes or less?
CL Item
Yes (1)
CL Item
No (2)
CL Item
Unknown (3)
Item
Have you/your family member had or has anyone ever told you that you/they had any of the following: any other type of repeated unusual attacks or convulsions lasting about 5 minutes or less?
integer
C0037088 (UMLS CUI [1])
Signs and Symptoms
Code List
Have you/your family member had or has anyone ever told you that you/they had any of the following: any other type of repeated unusual attacks or convulsions lasting about 5 minutes or less?
CL Item
Yes (1)
CL Item
No (2)
CL Item
Unknown (3)
Item
Has anyone ever told you that you/your family member/ have seizure(s) or epilepsy?
integer
C0014544 (UMLS CUI [1,1])
C0036572 (UMLS CUI [1,2])
Signs and Symptoms
Code List
Has anyone ever told you that you/your family member/ have seizure(s) or epilepsy?
CL Item
Yes (1)
CL Item
No (2)
CL Item
Unknown (3)
Item
Which of the following sources of information were queried?
integer
C0683836 (UMLS CUI [1])
Information sources
Code List
Which of the following sources of information were queried?
CL Item
Patient  (1)
CL Item
Caregiver  (2)
CL Item
Medical record (3)
Item
Has the participant had seizures or epilepsy prior to the traumatic brain injury?
integer
C0014544 (UMLS CUI [1,1])
C0036572 (UMLS CUI [1,2])
Signs and Symptoms
Code List
Has the participant had seizures or epilepsy prior to the traumatic brain injury?
CL Item
Yes (1)
CL Item
No (2)
CL Item
Unknown (3)
Item
Has the participant been diagnosed with epilepsy, a seizure disorder, or a single seizure after the date of the traumatic brain injury diagnosis?
integer
C0876926 (UMLS CUI [1,1])
C0014544 (UMLS CUI [1,2])
C0036572 (UMLS CUI [1,3])
Signs and Symptoms
Code List
Has the participant been diagnosed with epilepsy, a seizure disorder, or a single seizure after the date of the traumatic brain injury diagnosis?
CL Item
Yes (1)
CL Item
No (2)
CL Item
Unknown (3)
Item
Did seizure(s) occur later than seven days after the date of the traumatic brain injury?
integer
C0876926 (UMLS CUI [1,1])
C0036572 (UMLS CUI [1,2])
Signs and Symptoms
Code List
Did seizure(s) occur later than seven days after the date of the traumatic brain injury?
CL Item
Yes (1)
CL Item
No (2)
CL Item
Unknown (3)
Date of diagnosis
Item
Date of diagnosis
date
C2316983 (UMLS CUI [1])
Item
Who gave this diagnosis?
integer
C0018724 (UMLS CUI [1])
Health care professional
Code List
Who gave this diagnosis?
CL Item
Neurosurgeon (1)
CL Item
Neurologist (2)
CL Item
Pediatric Neurologist (3)
CL Item
Primary Care Physician (4)
CL Item
Pediatrician (5)
CL Item
Psychiatrist (6)
CL Item
Psychologist  (7)
CL Item
Nurse Practitioner (8)
Item
Has the patient received medication for seizures or epilepsy?
integer
C0013227 (UMLS CUI [1])
Signs and Symptoms
Code List
Has the patient received medication for seizures or epilepsy?
CL Item
Yes (1)
CL Item
No (2)
CL Item
Unknown (3)
Retour au début de la page 

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