Informations:
Erreur:
ID
14643
Description
NINDS Common Data Elements Used from the National Institute of Neurological Disorders and Stroke Common Data Elements (https://www.commondataelements.ninds.nih.gov/) References: Grinnon ST, Miller K, Marler JR, Lu Y, Stout A, Odenkirchen J, Kunitz S. National Institute of Neurological Disorders and Stroke Common Data Element Project - approach and methods. Clin Trials. 2012;9(3):322-9.
Lien
https://www.commondataelements.ninds.nih.gov/
Mots-clés
Versions (1)
- 25/04/2016 25/04/2016 -
Téléchargé le
25 avril 2016
DOI
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Creative Commons BY-NC 3.0
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NINDS CDE Non Imaging Diagnostics Epilepsy
Non Imaging Diagnostics
- StudyEvent: ODM
Similar models
Non Imaging Diagnostics
- StudyEvent: ODM
Name
Type
Description | Question | Decode (Coded Value)
Type de données
Alias
Study ID
Item
Study ID
text
C2826693 (UMLS CUI [1])
Study site
Item
Study site name
text
C2825164 (UMLS CUI [1])
Subject ID
Item
Subject ID
text
C2348585 (UMLS CUI [1])
EEG Purpose
Item
For what purpose(s) were the EEG data originally obtained: Research purposes-prospective
boolean
C0013819 (UMLS CUI [1,1])
C0517852 (UMLS CUI [1,2])
C0517852 (UMLS CUI [1,2])
EEG Purpose
Item
For what purpose(s) were the EEG data originally obtained: Research purposes-retrospective
boolean
C0013819 (UMLS CUI [1,1])
C0517852 (UMLS CUI [1,2])
C0517852 (UMLS CUI [1,2])
EEG Purpose
Item
For what purpose(s) were the EEG data originally obtained: Clinical purposes
boolean
C0013819 (UMLS CUI [1,1])
C0517852 (UMLS CUI [1,2])
C0517852 (UMLS CUI [1,2])
EEG Purpose
Item
For what purpose(s) were the EEG data originally obtained: Other,please specify
text
C0013819 (UMLS CUI [1,1])
C0517852 (UMLS CUI [1,2])
C0517852 (UMLS CUI [1,2])
Item
EEG Type: Routine or prolonged?
integer
C0013819 (UMLS CUI [1,1])
C0455713 (UMLS CUI [1,2])
C0455713 (UMLS CUI [1,2])
CL Item
Routine (1)
CL Item
Prolonged (2)
Item
EEG Type: If prolonged, please specify duration
integer
C0013819 (UMLS CUI [1,1])
C0455713 (UMLS CUI [1,2])
C0455713 (UMLS CUI [1,2])
CL Item
Less than 24 hours (1)
CL Item
Greater than or equal to 24 hours (2)
CL Item
N/A (3)
CL Item
Other, specify (4)
Prolonged EEG
Item
Prolonged EEG:if other time interval, please specify
text
C0013819 (UMLS CUI [1,1])
C0439590 (UMLS CUI [1,2])
C0439590 (UMLS CUI [1,2])
CL Item
Outpatient EEG lab (1)
CL Item
Inpatient Epilepsy Monitoring Unit (EMU) (2)
CL Item
Intensive Care Unit (ICU) (3)
CL Item
Ambulatory (4)
CL Item
Other, specify (5)
EEG location
Item
EEG location:if other,please specify
text
C0013819 (UMLS CUI [1,1])
C0450429 (UMLS CUI [1,2])
C0450429 (UMLS CUI [1,2])
CL Item
No (1)
CL Item
Yes (2)
CL Item
Unknown (3)
CL Item
Other, specify (4)
Video EEG
Item
Video EEG:if other,please specify
text
C0430801 (UMLS CUI [1])
EEG; behavioral states
Item
EEG; behavioral states recorded: Awake
boolean
C0013819 (UMLS CUI [1,1])
C0679009 (UMLS CUI [1,2])
C0679009 (UMLS CUI [1,2])
EEG; behavioral states
Item
EEG; behavioral states recorded: asleep
boolean
C0013819 (UMLS CUI [1,1])
C0679009 (UMLS CUI [1,2])
C0679009 (UMLS CUI [1,2])
EEG; behavioral states
Item
EEG; behavioral states recorded: Unresponsive state
boolean
C0013819 (UMLS CUI [1,1])
C0679009 (UMLS CUI [1,2])
C0679009 (UMLS CUI [1,2])
EEG; behavioral states
Item
EEG; behavioral states recorded: Indeterminate
boolean
C0013819 (UMLS CUI [1,1])
C0679009 (UMLS CUI [1,2])
C0679009 (UMLS CUI [1,2])
EEG; behavioral states
Item
EEG; behavioral states recorded: Other, specify
text
C0013819 (UMLS CUI [1,1])
C0679009 (UMLS CUI [1,2])
C0679009 (UMLS CUI [1,2])
EEG activation procedures
Item
EEG activation procedures: Sleep
boolean
C0430789 (UMLS CUI [1])
EEG activation procedures
Item
EEG activation procedures: Hyperventilation
boolean
C0430789 (UMLS CUI [1])
EEG activation procedures
Item
EEG activation procedures: Photic stimulation
boolean
C0430789 (UMLS CUI [1])
EEG activation procedures
Item
EEG activation procedures: Unknown
boolean
C0430789 (UMLS CUI [1])
EEG activation procedures
Item
EEG activation procedures:other,please specify
text
C0430789 (UMLS CUI [1])
EEG Posterior dominant rhythm
Item
Posterior dominant rhythm present
boolean
C0013819 (UMLS CUI [1,1])
C0871269 (UMLS CUI [1,2])
C0871269 (UMLS CUI [1,2])
EEG Posterior dominant rhythm frequency
Item
Frequency of the posterior dominant rhythm during relaxed wakefulness Hz
float
C0013819 (UMLS CUI [1,1])
C0678556 (UMLS CUI [1,2])
C0678556 (UMLS CUI [1,2])
Number of seizures
Item
Total number of seizures recorded with EEG and Video
integer
C0036572 (UMLS CUI [1,1])
C0750480 (UMLS CUI [1,2])
C0750480 (UMLS CUI [1,2])
Number of seizures
Item
Total number of seizures recorded with EEG only
integer
C0036572 (UMLS CUI [1,1])
C0750480 (UMLS CUI [1,2])
C0750480 (UMLS CUI [1,2])
Number of seizures
Item
Total number of seizures recorded on video only
integer
C0036572 (UMLS CUI [1,1])
C0750480 (UMLS CUI [1,2])
C0750480 (UMLS CUI [1,2])
date EEG
Item
Date of EEG recorded
date
C0011008 (UMLS CUI [1,1])
C0013819 (UMLS CUI [1,2])
C0013819 (UMLS CUI [1,2])
Date of record
Item
Date of record
date
C2584899 (UMLS CUI [1])
Interictal Abnormality
Item
Time(s) of Interictal Abnormality
time
C3807331 (UMLS CUI [1])
CL Item
am (1)
CL Item
pm (2)
CL Item
24-hour clock (3)
CL Item
am (1)
CL Item
pm (2)
CL Item
24-hour clock (3)
CL Item
N/A (4)
Interictal Epileptiform Location
Item
Interictal Epileptiform Location: Localized focal
boolean
C3807331 (UMLS CUI [1])
Item
Interictal Epileptiform Location: area of origin of the interictal abnormality
integer
C3807331 (UMLS CUI [1])
Code List
Interictal Epileptiform Location: area of origin of the interictal abnormality
CL Item
FP1 (1)
CL Item
FP2 (2)
CL Item
T1 (3)
CL Item
F7 (4)
CL Item
F3 (5)
CL Item
FZ (6)
CL Item
F4 (7)
CL Item
F8 (8)
CL Item
T2 (9)
CL Item
FT9 (10)
CL Item
T3 (11)
CL Item
C3 (12)
CL Item
CZ (13)
CL Item
C4 (14)
CL Item
T4 (15)
CL Item
FT10 (16)
CL Item
T5 (17)
CL Item
P3 (18)
CL Item
PZ (19)
CL Item
P4 (20)
CL Item
T6 (21)
CL Item
O1 (22)
CL Item
O2 (23)
Item
Interictal Epileptiform Location: full extent of abnormal electrical field
integer
C3807331 (UMLS CUI [1])
Code List
Interictal Epileptiform Location: full extent of abnormal electrical field
CL Item
FP1 (1)
CL Item
FP2 (2)
CL Item
T1 (3)
CL Item
F7 (4)
CL Item
F3 (5)
CL Item
FZ (6)
CL Item
F4 (7)
CL Item
F8 (8)
CL Item
T2 (9)
CL Item
FT9 (10)
CL Item
T3 (11)
CL Item
C3 (12)
CL Item
CZ (13)
CL Item
C4 (14)
CL Item
T4 (15)
CL Item
FT10 (16)
CL Item
T5 (17)
CL Item
P3 (18)
CL Item
PZ (19)
CL Item
P4 (20)
CL Item
T6 (21)
CL Item
O1 (22)
CL Item
O2 (23)
CL Item
Localized regional lobar or multilobar (1)
CL Item
Left Frontal (2)
CL Item
Left Parietal (3)
CL Item
Left Occipital (4)
CL Item
Left Temporal (5)
CL Item
Right Frontal (6)
CL Item
Right Parietal (7)
CL Item
Right Occipital (8)
CL Item
Right Temporal (9)
CL Item
Hemispheric Left (10)
CL Item
Hemispheric Right (11)
CL Item
Generalized (12)
CL Item
No localized onset (13)
CL Item
Other, specify (14)
Interictal Epileptiform Location
Item
Interictal Epileptiform Location: if "No localized onset" or "other" ,please specify
text
C3807331 (UMLS CUI [1])
CL Item
Generalized Epileptiform Discharge (1)
CL Item
Diffuse Fast Rhythms (2)
CL Item
Diffuse Attenuation (3)
CL Item
Rhythmic (frequency) Hz (4)
CL Item
Periodic discharges (5)
CL Item
Other, specify (6)
Interictal Type of Discharge
Item
Interictal Type of Discharge: Rhythmic (frequency) Hz(round to the closest 0.5 Hz)
float
C0234550 (UMLS CUI [1])
Item
Interictal Type of Discharge: Periodic discharges
integer
C0234550 (UMLS CUI [1])
CL Item
Sharp waves (1)
CL Item
Spikes (2)
CL Item
Single Spike-Wave (3)
CL Item
Polyspike-Wave (4)
CL Item
Other, specify (5)
Interictal Type of Discharge
Item
Interictal Type of Discharge: if other,please specify
text
C0234550 (UMLS CUI [1])
Interictal Type of Discharge
Item
Interictal Type of Discharge Periodic discharges: if other,please specify
text
C0234550 (UMLS CUI [1])
CL Item
Awake (1)
CL Item
Drowsy (2)
CL Item
Sleep (3)
CL Item
Hyperventilation (4)
CL Item
Photic stimulation (5)
CL Item
Indeterminate (6)
CL Item
Other, specify (7)
Interictal circumstances
Item
Interictal circumstances:if other, please specify
text
C0234550 (UMLS CUI [1])
Focus
Item
Focus
text
C0205234 (UMLS CUI [1])
Start time
Item
Start time
time
C1301880 (UMLS CUI [1])
CL Item
Persistent (i.e., continuous) (1)
CL Item
Transient (2)
CL Item
Post-Ictal (3)
CL Item
Localized regional lobar or multilobar (1)
CL Item
Left Frontal (2)
CL Item
Left Parietal (3)
CL Item
Left Occipital (4)
CL Item
Left Temporal (5)
CL Item
Right Frontal (6)
CL Item
Right Parietal (7)
CL Item
Right Occipital (8)
CL Item
Right Temporal (9)
CL Item
Hemispheric Left (10)
CL Item
Hemispheric Right (11)
CL Item
Generalized (12)
CL Item
No localized onset (13)
CL Item
Other, specify (14)
Slowing Location
Item
Slowing Location: if "No localized onset" or "other" ,please specify
text
C2206439 (UMLS CUI [1])
Seizure
Item
Seizure number
integer
C0036572 (UMLS CUI [1])
Seizure
Item
Total number of seizures
integer
C0036572 (UMLS CUI [1])
Date of seizure
Item
Date of seizure
date
C0011008 (UMLS CUI [1])
Start time
Item
Start time
time
C1301880 (UMLS CUI [1])
End time
Item
End time
time
C1522314 (UMLS CUI [1])
CL Item
Localized focal (1)
CL Item
FP1 (2)
CL Item
FP2 (3)
CL Item
T1 (4)
CL Item
F7 (5)
CL Item
F3 (6)
CL Item
FZ (7)
CL Item
F4 (8)
CL Item
F8 (9)
CL Item
T2 (10)
CL Item
FT9 (11)
CL Item
T3 (12)
CL Item
C3 (13)
CL Item
CZ (14)
CL Item
C4 (15)
CL Item
T4 (16)
CL Item
FT10 (17)
CL Item
T5 (18)
CL Item
P3 (19)
CL Item
PZ (20)
CL Item
P4 (21)
CL Item
T6 (22)
CL Item
O1 (23)
CL Item
O (24)
Ictal onset time
Item
Ictal onset time
time
C0449244 (UMLS CUI [1])
Item
Full Ictal Propagation: Location on EEG
integer
C0234550 (UMLS CUI [1])
CL Item
Localized focal (1)
CL Item
FP1 (2)
CL Item
FP2 (3)
CL Item
T1 (4)
CL Item
F7 (5)
CL Item
F3 (6)
CL Item
FZ (7)
CL Item
F4 (8)
CL Item
F8 (9)
CL Item
T2 (10)
CL Item
FT9 (11)
CL Item
T3 (12)
CL Item
C3 (13)
CL Item
CZ (14)
CL Item
C4 (15)
CL Item
T4 (16)
CL Item
FT10 (17)
CL Item
T5 (18)
CL Item
P3 (19)
CL Item
PZ (20)
CL Item
P4 (21)
CL Item
T6 (22)
CL Item
O1 (23)
CL Item
O (24)
Ictal Onset Location on EEG
Item
Ictal Onset Location on EEG: Localized focal
boolean
C0234550 (UMLS CUI [1])
Full Ictal Propagation Location on EEG
Item
Full Ictal Propagation Location on EEG: Localized focal
boolean
C0234550 (UMLS CUI [1])
CL Item
Localized regional lobar or multilobar (1)
CL Item
Left Frontal (2)
CL Item
Left Parietal (3)
CL Item
Left Occipital (4)
CL Item
Left Temporal Mesial (5)
CL Item
Left Temporal Neocortical (6)
CL Item
Right Frontal (7)
CL Item
Right Parietal (8)
CL Item
Right Occipital (9)
CL Item
Right Temporal Mesial (10)
CL Item
Right Temporal Neocortical (11)
CL Item
Hemispheric Left (12)
CL Item
Hemispheric Right (13)
CL Item
Generalized (14)
CL Item
No localized onset (15)
CL Item
Other, specify (16)
Item
Full Ictal Propagation Location on EEG
integer
C0234550 (UMLS CUI [1])
CL Item
Localized regional lobar or multilobar (1)
CL Item
Left Frontal (2)
CL Item
Left Parietal (3)
CL Item
Left Occipital (4)
CL Item
Left Temporal Mesial (5)
CL Item
Left Temporal Neocortical (6)
CL Item
Right Frontal (7)
CL Item
Right Parietal (8)
CL Item
Right Occipital (9)
CL Item
Right Temporal Mesial (10)
CL Item
Right Temporal Neocortical (11)
CL Item
Hemispheric Left (12)
CL Item
Hemispheric Right (13)
CL Item
Generalized (14)
CL Item
No localized onset (15)
CL Item
Other, specify (16)
CL Item
Generalized tonic-clonic pattern (1)
CL Item
Diffuse Fast Rhythms (2)
CL Item
Diffuse Attenuation (3)
CL Item
Rhythmic (frequency) Hz (4)
CL Item
Periodic discharges Sharp waves (5)
CL Item
Periodic discharges Spikes (6)
CL Item
Periodic discharges Single Spike-Wave (7)
CL Item
Periodic discharges Polyspike-Wave (8)
CL Item
Periodic discharges Other, specify (9)
Ictal Onset Pattern on EEG
Item
Ictal Onset Pattern on EEG: Rhythmic (frequency) Hz(round to the closest 0.5 Hz)
float
C0234550 (UMLS CUI [1])
CL Item
Awake (1)
CL Item
Drowsy (2)
CL Item
Sleep (3)
CL Item
Hyperventilation (4)
CL Item
Photic stimulation (5)
CL Item
Indeterminate (6)
CL Item
Other, specify (7)
Ictal Onset Circumstances
Item
Ictal Onset Circumstances: if other,please specify
text
C0234550 (UMLS CUI [1])
Seizure
Item
Video Seizure Number
integer
C0036572 (UMLS CUI [1])
Seizure
Item
Total number of seizures on video
integer
C0036572 (UMLS CUI [1])
Ictal EEG available
Item
Ictal EEG available
boolean
C0234552 (UMLS CUI [1])
Date EEG recorded
Item
Date EEG recorded
date
C0011008 (UMLS CUI [1])
Start time
Item
Start time
time
C1301880 (UMLS CUI [1])
Able to push alarm
Item
Patient able to push alarm (onset, during, after seizure)
boolean
C3873728 (UMLS CUI [1,1])
C0580839 (UMLS CUI [1,2])
C0580839 (UMLS CUI [1,2])
Item
Behavioral state at onset of seizure
integer
C0679009 (UMLS CUI [1])
CL Item
Awake (1)
CL Item
Asleep (2)
CL Item
Unknown (3)
CL Item
Other, specify (4)
Behavioral state at onset of seizure
Item
Behavioral state at onset of seizure:if other,please specify
text
C0679009 (UMLS CUI [1])
CL Item
Good (1)
CL Item
Fair (2)
CL Item
Poor (3)
CL Item
Full (1)
CL Item
Face (2)
CL Item
Trunk (3)
CL Item
Side (4)
CL Item
Back (5)
CL Item
None (6)
CL Item
Arousal from sleep (1)
CL Item
Behavior Arrest (2)
CL Item
Hypermotor (3)
CL Item
Other Specify (4)
Responsiveness
Item
Responsiveness:if other,please specify
text
C0552602 (UMLS CUI [1])
CL Item
Laugh (1)
CL Item
Song (2)
CL Item
Incoherent Speech (3)
CL Item
Groan/Cry (4)
CL Item
Other Specify: (5)
CL Item
Coherent Speech Spontaneous (6)
CL Item
Coherent Speech Response to Question (7)
CL Item
Follow Command(s) (1)
CL Item
Repeat Memory Item(s) (2)
CL Item
Other, Specify (3)
Testing of Responsiveness
Item
Testing of Responsiveness: if other,please specify
text
C0552602 (UMLS CUI [1])
Item
Subjective Symptoms Reported by the Patient
integer
C2266644 (UMLS CUI [1])
CL Item
Somatosensory (1)
CL Item
Gustatory (2)
CL Item
Psychic (3)
CL Item
Visual (4)
CL Item
Epigastric (5)
CL Item
Other, Specify: (6)
CL Item
Auditory (7)
CL Item
Cephalic (8)
CL Item
Olfactory (9)
CL Item
Autonomic (10)
CL Item
Right (1)
CL Item
Left (2)
CL Item
Other (3)
Eyes opening/widening
Item
Eyes opening/widening:Sequence
text
C0586406 (UMLS CUI [1])
CL Item
Right (1)
CL Item
Left (2)
CL Item
Other (3)
Eye version
Item
Eye version:Sequence
text
C0586406 (UMLS CUI [1])
CL Item
Right (1)
CL Item
Left (2)
CL Item
Other (3)
Eye blinking
Item
Eye blinking: Sequence
text
C0586406 (UMLS CUI [1])
CL Item
Right (1)
CL Item
Left (2)
CL Item
Other (3)
Nystagmus
Item
Nystagmus:Sequence
text
C0028738 (UMLS CUI [1])
CL Item
Right (1)
CL Item
Left (2)
CL Item
Other (3)
Eye signs
Item
Eye signs other:Sequence
text
CL Item
Right (1)
CL Item
Left (2)
CL Item
Other (3)
Face signs
Item
Head version:Sequence
text
C0015450 (UMLS CUI [1,1])
C0004941 (UMLS CUI [1,2])
C0004941 (UMLS CUI [1,2])
Item
Face signs:Head + Eye Version
integer
C0015450 (UMLS CUI [1,1])
C0004941 (UMLS CUI [1,2])
C0004941 (UMLS CUI [1,2])
CL Item
Right (1)
CL Item
Left (2)
CL Item
Other (3)
Face signs
Item
Face signs Head + Eye Version:Sequence
text
C0015450 (UMLS CUI [1,1])
C0004941 (UMLS CUI [1,2])
C0004941 (UMLS CUI [1,2])
Item
Face signs:Mouth Deviation/Twisting
integer
C0015450 (UMLS CUI [1,1])
C0004941 (UMLS CUI [1,2])
C0004941 (UMLS CUI [1,2])
CL Item
Right (1)
CL Item
Left (2)
CL Item
Other (3)
Face signs
Item
Face signs Mouth Deviation/Twisting: Sequence
text
C0015450 (UMLS CUI [1,1])
C0004941 (UMLS CUI [1,2])
C0004941 (UMLS CUI [1,2])
CL Item
Right (1)
CL Item
Left (2)
CL Item
Other (3)
Face Automatism
Item
Face Automatism: Sequence
text
C0270837 (UMLS CUI [1])
CL Item
Right (1)
CL Item
Left (2)
CL Item
Other (3)
Lip Smacking
Item
Lip Smacking:Sequence
text
C2219896 (UMLS CUI [1])
CL Item
Right (1)
CL Item
Left (2)
CL Item
Other (3)
Other facial automatism
Item
Other facial automatism,if other than left or right side, please specify
text
C0004377 (UMLS CUI [1])
CL Item
Right (1)
CL Item
Left (2)
CL Item
Other (3)
Other face signs
Item
Other face signs: if other than right or left side, please specify
text
C0015450 (UMLS CUI [1,1])
C0004941 (UMLS CUI [1,2])
C0004941 (UMLS CUI [1,2])
Item
Arrest of Movement
integer
C0026649 (UMLS CUI [1,1])
C2746065 (UMLS CUI [1,2])
C2746065 (UMLS CUI [1,2])
CL Item
Trunk right (1)
CL Item
Trunk left (2)
CL Item
Arm right (3)
CL Item
Leg Right (4)
CL Item
Arm left (5)
CL Item
Leg left (6)
CL Item
Arm R>L (7)
CL Item
Leg R>L (8)
CL Item
Trunk R>L (9)
CL Item
Arm L>R (10)
CL Item
Leg L>R (11)
CL Item
Trunk L>R (12)
CL Item
Unsure (13)
Arrest of movement:Sequence
Item
Arrest of movement:Sequence
text
C0026649 (UMLS CUI [1,1])
C2746065 (UMLS CUI [1,2])
C2746065 (UMLS CUI [1,2])
CL Item
Trunk right (1)
CL Item
Trunk left (2)
CL Item
Arm right (3)
CL Item
Leg Right (4)
CL Item
Arm left (5)
CL Item
Leg left (6)
CL Item
Arm R>L (7)
CL Item
Leg R>L (8)
CL Item
Trunk R>L (9)
CL Item
Arm L>R (10)
CL Item
Leg L>R (11)
CL Item
Trunk L>R (12)
CL Item
Unsure (13)
Version:Sequence
Item
Version:Sequence
text
C0541749 (UMLS CUI [1])
Item
Tonic extension
integer
C1836825 (UMLS CUI [1,1])
C0444509 (UMLS CUI [1,2])
C0444509 (UMLS CUI [1,2])
CL Item
Trunk right (1)
CL Item
Trunk left (2)
CL Item
Arm right (3)
CL Item
Leg Right (4)
CL Item
Arm left (5)
CL Item
Leg left (6)
CL Item
Arm R>L (7)
CL Item
Leg R>L (8)
CL Item
Trunk R>L (9)
CL Item
Arm L>R (10)
CL Item
Leg L>R (11)
CL Item
Trunk L>R (12)
CL Item
Unsure (13)
Tonic extension:Sequence
Item
Tonic extension:Sequence
text
C1836825 (UMLS CUI [1,1])
C0444509 (UMLS CUI [1,2])
C0444509 (UMLS CUI [1,2])
Item
Trunk or limb signs: Tonic flexion
integer
C1836825 (UMLS CUI [1,1])
C0444509 (UMLS CUI [1,2])
C0444509 (UMLS CUI [1,2])
CL Item
Trunk right (1)
CL Item
Trunk left (2)
CL Item
Arm right (3)
CL Item
Leg Right (4)
CL Item
Arm left (5)
CL Item
Leg left (6)
CL Item
Arm R>L (7)
CL Item
Leg R>L (8)
CL Item
Trunk R>L (9)
CL Item
Arm L>R (10)
CL Item
Leg L>R (11)
CL Item
Trunk L>R (12)
CL Item
Unsure (13)
Tonic flexion:Sequence
Item
Tonic flexion:Sequence
text
C1836825 (UMLS CUI [1,1])
C0444509 (UMLS CUI [1,2])
C0444509 (UMLS CUI [1,2])
Item
Trunk or limb signs: Clonic-early
integer
C0235088 (UMLS CUI [1,1])
C1279919 (UMLS CUI [1,2])
C1279919 (UMLS CUI [1,2])
CL Item
Trunk right (1)
CL Item
Trunk left (2)
CL Item
Arm right (3)
CL Item
Leg Right (4)
CL Item
Arm left (5)
CL Item
Leg left (6)
CL Item
Arm R>L (7)
CL Item
Leg R>L (8)
CL Item
Trunk R>L (9)
CL Item
Arm L>R (10)
CL Item
Leg L>R (11)
CL Item
Trunk L>R (12)
CL Item
Unsure (13)
Clonic-early:Sequence
Item
Clonic-early:Sequence
text
C0235088 (UMLS CUI [1,1])
C1279919 (UMLS CUI [1,2])
C1279919 (UMLS CUI [1,2])
Item
Trunk or limb signs: Clonic-later
integer
C0235088 (UMLS CUI [1,1])
C0205087 (UMLS CUI [1,2])
C0205087 (UMLS CUI [1,2])
CL Item
Trunk right (1)
CL Item
Trunk left (2)
CL Item
Arm right (3)
CL Item
Leg Right (4)
CL Item
Arm left (5)
CL Item
Leg left (6)
CL Item
Arm R>L (7)
CL Item
Leg R>L (8)
CL Item
Trunk R>L (9)
CL Item
Arm L>R (10)
CL Item
Leg L>R (11)
CL Item
Trunk L>R (12)
CL Item
Unsure (13)
Clonic later:Sequence
Item
Clonic later:Sequence
text
C0235088 (UMLS CUI [1,1])
C0205087 (UMLS CUI [1,2])
C0205087 (UMLS CUI [1,2])
Item
Trunk or limb signs: dystonic posture
integer
C0426961 (UMLS CUI [1])
CL Item
Trunk right (1)
CL Item
Trunk left (2)
CL Item
Arm right (3)
CL Item
Leg Right (4)
CL Item
Arm left (5)
CL Item
Leg left (6)
CL Item
Arm R>L (7)
CL Item
Leg R>L (8)
CL Item
Trunk R>L (9)
CL Item
Arm L>R (10)
CL Item
Leg L>R (11)
CL Item
Trunk L>R (12)
CL Item
Unsure (13)
Dystonic posture: Sequence
Item
Dystonic posture: Sequence
text
C0426961 (UMLS CUI [1])
CL Item
Trunk right (1)
CL Item
Trunk left (2)
CL Item
Arm right (3)
CL Item
Leg Right (4)
CL Item
Arm left (5)
CL Item
Leg left (6)
CL Item
Arm R>L (7)
CL Item
Leg R>L (8)
CL Item
Trunk R>L (9)
CL Item
Arm L>R (10)
CL Item
Leg L>R (11)
CL Item
Trunk L>R (12)
CL Item
Unsure (13)
Sign-of-4 arm Ext: Sequence
Item
Sign-of-4 arm Ext: Sequence
text
Item
Trunk or limb signs: Myoclonic Jerk
integer
C0027066 (UMLS CUI [1])
CL Item
Trunk right (1)
CL Item
Trunk left (2)
CL Item
Arm right (3)
CL Item
Leg Right (4)
CL Item
Arm left (5)
CL Item
Leg left (6)
CL Item
Arm R>L (7)
CL Item
Leg R>L (8)
CL Item
Trunk R>L (9)
CL Item
Arm L>R (10)
CL Item
Leg L>R (11)
CL Item
Trunk L>R (12)
CL Item
Unsure (13)
Myoclonic jerk: Sequence
Item
Myoclonic jerk: Sequence
text
C0027066 (UMLS CUI [1])
Item
Lower Extremity Complex Movements
integer
C0562471 (UMLS CUI [1,1])
C0023216 (UMLS CUI [1,2])
C0023216 (UMLS CUI [1,2])
CL Item
R (1)
CL Item
L (2)
CL Item
R>L (3)
CL Item
L>R (4)
CL Item
Unsure (5)
Lower Extremity Complex Movements:Sequence
Item
Lower Extremity Complex Movements:Sequence
text
C0562471 (UMLS CUI [1,1])
C0023216 (UMLS CUI [1,2])
C0023216 (UMLS CUI [1,2])
Item
Automatism: Face/nose wiping or rubbing
integer
C0270837 (UMLS CUI [1])
C2089445 (UMLS CUI [2])
C3670900 (UMLS CUI [3])
C2089445 (UMLS CUI [2])
C3670900 (UMLS CUI [3])
CL Item
R (1)
CL Item
L (2)
CL Item
R>L (3)
CL Item
L>R (4)
CL Item
Unsure (5)
Face/nose wiping or rubbing:Sequence
Item
Face/nose wiping or rubbing:Sequence
text
C0270837 (UMLS CUI [1])
C2089445 (UMLS CUI [2])
C3670900 (UMLS CUI [3])
C2089445 (UMLS CUI [2])
C3670900 (UMLS CUI [3])
CL Item
R (1)
CL Item
L (2)
CL Item
R>L (3)
CL Item
L>R (4)
CL Item
Unsure (5)
Clothes/sheet picking: Sequence
Item
Clothes/sheet picking: Sequence
text
C0270837 (UMLS CUI [1])
Item
Automatism: Rocking
integer
C0270837 (UMLS CUI [1,1])
C0005899 (UMLS CUI [1,2])
C0005899 (UMLS CUI [1,2])
CL Item
Trunk (1)
CL Item
R (2)
CL Item
L (3)
CL Item
R>L (4)
CL Item
L>R (5)
CL Item
Unsure (6)
Rocking: Sequence
Item
Rocking: Sequence
text
C0005899 (UMLS CUI [1])
Item
Automatism: Spinning/Turning (direction)
integer
C0562461 (UMLS CUI [1])
CL Item
R (1)
CL Item
L (2)
CL Item
Unsure (3)
Spinning/Turning: Sequence
Item
Spinning/Turning: Sequence
text
C0562461 (UMLS CUI [1])
Automatism:Other
Item
Automatism: Other,please specify
text
C0270837 (UMLS CUI [1])
CL Item
Trunk right (1)
CL Item
Trunk left (2)
CL Item
Arm right (3)
CL Item
Leg Right (4)
CL Item
Arm left (5)
CL Item
Leg left (6)
CL Item
Arm R>L (7)
CL Item
Leg R>L (8)
CL Item
Trunk R>L (9)
CL Item
Arm L>R (10)
CL Item
Leg L>R (11)
CL Item
Trunk L>R (12)
CL Item
Unsure (13)
Automatism:Other Sequence
Item
Automatism:Other Sequence
text
C0270837 (UMLS CUI [1])
CL Item
Vomiting (1)
CL Item
Spitting (2)
CL Item
Coughing (3)
CL Item
Tongue biting (4)
CL Item
Other,Specify (5)
Other signs
Item
Other signs, please specify
text
C0495702 (UMLS CUI [1])
Other signs: Sequence
Item
Other signs: Sequence
text
C0495702 (UMLS CUI [1])
Benign EEG variants
Item
Benign EEG variants
boolean
C4023496 (UMLS CUI [1])
Item
If yes, please select all EEG variants that are present
integer
C4023496 (UMLS CUI [1])
Code List
If yes, please select all EEG variants that are present
CL Item
Small sharp spikes (1)
CL Item
Wicket spikes (2)
CL Item
14- and 6-Hz Positive Bursts (3)
CL Item
6-Hz Spike and Wave (4)
CL Item
Rhythmic Temporal Theta Bursts of Drowsiness (5)
CL Item
Subclinical Rhythmic EEG Discharges in Adults (6)
CL Item
Midline Theta Rhythm (7)
CL Item
Initial inclusion study protocol EEG (1)
CL Item
Clinical EEG used for study inclusion (2)
CL Item
Supplemental EEG (3)
EEG Category
Item
EEG Category: if supplemental, please specify reason
text
C0013819 (UMLS CUI [1])
CL Item
1 hour or less (1)
CL Item
1-2 hours (2)
CL Item
2 hours (3)
CL Item
Greater than 2 hours (4)
CL Item
N/A (5)
CL Item
Other, specify (6)
EEG duration
Item
EEG duration, if other, please specify
text
C0449238 (UMLS CUI [1,1])
C0013819 (UMLS CUI [1,2])
C0013819 (UMLS CUI [1,2])
CL Item
No (1)
CL Item
Yes (2)
CL Item
Unknown (3)
CL Item
Other, specify (4)
Video EEG
Item
Video EEG, if other please specify
text
C0430801 (UMLS CUI [1])
EEG Sampling rate
Item
EEG Sampling rate unknown
boolean
C0013819 (UMLS CUI [1])
EEG Sampling rate
Item
EEG Sampling rate,please specify
text
C0013819 (UMLS CUI [1])
CL Item
Digital EEG (1)
CL Item
Screen shots or paper EEG (2)
CL Item
EEG report only (3)
CL Item
EEG report including screen shots or paper EEG (4)
CL Item
Other specify (5)
EEG data type
Item
EEG data type: if other, please specify
text
C0013819 (UMLS CUI [1,1])
C1609081 (UMLS CUI [1,2])
C1609081 (UMLS CUI [1,2])
Item
Behavioral states recorded
integer
C0013819 (UMLS CUI [1,1])
C0679009 (UMLS CUI [1,2])
C0679009 (UMLS CUI [1,2])
CL Item
Awake (1)
CL Item
Asleep (2)
CL Item
Indeterminate (3)
CL Item
Other, specify (4)
CL Item
Sleep deprivation (1)
CL Item
Hyperventilation (2)
CL Item
Photic stimulation (3)
CL Item
Unknown (4)
CL Item
Other, specify (5)
Activating procedure
Item
If other activating procedure, please specify
text
C0430789 (UMLS CUI [1])
Item
EEG background and posterior dominant rhythm (PDR) normal for age
integer
C0013819 (UMLS CUI [1,1])
C1706907 (UMLS CUI [1,2])
C0429283 (UMLS CUI [1,3])
C1706907 (UMLS CUI [1,2])
C0429283 (UMLS CUI [1,3])
Code List
EEG background and posterior dominant rhythm (PDR) normal for age
CL Item
Yes (1)
CL Item
No - PDR slow, disorganized or absent, or background slow (2)
CL Item
EEG data not adequate to assess background and PDR (3)
Frequency of the posterior dominant rhythm during relaxed wakefulness
Item
Frequency of the posterior dominant rhythm during relaxed wakefulness Hz (round to the closed 0.5 Hz):
float
C0429283 (UMLS CUI [1])
EEG abnormal
Item
EEG abnormal
boolean
C0151611 (UMLS CUI [1])
Seizures
Item
Seizures recorded
boolean
C0036572 (UMLS CUI [1])
Focal sharp waves
Item
Focal sharp waves
boolean
C0429317 (UMLS CUI [1])
Focal slowing
Item
Focal slowing
boolean
C0239254 (UMLS CUI [1])
Item
Generalized epileptiform abnormalities
integer
C0474721 (UMLS CUI [1])
CL Item
Yes: ≥ 3 Hz (1)
CL Item
Yes: < 3 Hz (2)
CL Item
No (3)
Other abnormalities
Item
Other abnormalities
boolean
C0151611 (UMLS CUI [1])
Other abnormalities
Item
Other abnormalities: if yes, please specify
text
C0151611 (UMLS CUI [1])
Date EEG
Item
Date of examination
date
C0011008 (UMLS CUI [1,1])
C0013819 (UMLS CUI [1,2])
C0013819 (UMLS CUI [1,2])
Age
Item
Age of participant when EEG obtained
integer
C0001779 (UMLS CUI [1])
Medication
Item
Did the patient receive any medication? Please specify
text
C0013227 (UMLS CUI [1])
Further comments
Item
Further comments/notes to EEG reviewers
text
C1830770 (UMLS CUI [1])