ID
14439
Description
DOCUMENTED PATHOGENS (Use this table for guidance on the pathogens of interest) Type Bacteria: S. pneumoniae, Other gram positive (i.e.: other streptococci, staphylococci, listeria …), Haemophilus influenzae, Other gram negative (i.e.: E. coli klebsiella, proteus, serratia, pseudomonas …), Legionella sp, Mycobacteria sp, Other Type Fungi: Candida sp, Aspergillus sp, Pneumocystis carinii, Other Type Parasites: Toxoplasma gondii, Other Type Viruses: HSV, VZV, EBV, CMV, HHV-6, RSV, Other respiratory virus (influenza, parainfluenza, rhinovirus), Adenovirus, HBV, HCV, HIV, Papovavirus, Parvovirus, Other
Keywords
Versions (3)
- 9/27/17 9/27/17 -
- 7/17/16 7/17/16 -
- 6/20/17 6/20/17 - Martin Dugas
Uploaded on
September 27, 2017
DOI
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License
Creative Commons BY-NC 3.0
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MYELOPROLIFERATIVE NEOPLASM EBMT
15ppMPN
- StudyEvent: ODM
Description
GENERAL INFORMATION Patient
Description
Unique Identification Code (UIC)
Data type
text
Alias
- UMLS CUI [1]
- C2348585
Description
Hospital Unique Patient Number or Code
Data type
text
Alias
- UMLS CUI [1]
- C1827636
Description
Initials
Data type
text
Alias
- UMLS CUI [1]
- C2986440
Description
Date of birth
Data type
date
Alias
- UMLS CUI [1]
- C0421451
Description
PatientGender
Data type
text
Alias
- UMLS CUI [1,1]
- C0683312
- UMLS CUI [1,2]
- C0030705
- UMLS CUI [1,3]
- C0079399
Description
ABO Group
Data type
text
Description
Rh factor
Data type
text
Description
DISEASE
Description
Date of Diagnosis
Data type
date
Alias
- UMLS CUI [1]
- C2316983
Description
Primary Disease Diagnosis
Data type
text
Alias
- UMLS CUI [1]
- C0277554
Description
Primary Disease Diagnosis
Data type
text
Alias
- UMLS CUI [1,1]
- C0277554
- UMLS CUI [1,2]
- C2348235
Description
SPECIFICATIONS OF THE DISEASE MYELOPROLIFERATIVE NEOPLASM DIAGNOSIS
Description
SUBCLASSIFICATION
Data type
integer
Description
Chronic eosinophilic leukaemia (CEL)
Data type
text
Description
Cytogenetics Data
Data type
text
Alias
- UMLS CUI [1]
- C0010802
Description
Chromosome analysis
Data type
text
Alias
- UMLS CUI [1]
- C0200867
Description
Chromosome analysis
Data type
text
Description
number of metaphases with abnormalites
Data type
integer
Description
number of metaphases examined
Data type
integer
Description
Abnormality chr. 1
Data type
text
Description
Abnormality chr. 5
Data type
text
Description
Abnormality chr. 7
Data type
text
Description
trisomy 8
Data type
text
Description
trisomy 9
Data type
text
Description
del 20
Data type
text
Description
del 13
Data type
text
Description
Other abnormalities
Data type
text
Description
Molecular markers
Data type
integer
Alias
- UMLS CUI [1]
- C0005516
Description
JAK2 mutation
Data type
text
Description
BCR/ABL
Data type
text
Description
FIP1L1-PDGFR
Data type
text
Description
HAEMATOLOGICAL VALUES Peripheral bloodc
Data type
text
Description
HbLab
Data type
float
Description
Platelets (109/L)
Data type
float
Description
White Blood Cells
Data type
float
Measurement units
- 10^9/L
Alias
- UMLS CUI [1]
- C0005821
Description
Blasts
Data type
float
Measurement units
- %
Alias
- UMLS CUI [1]
- C1982687
Description
Monocytes
Data type
float
Measurement units
- %
Alias
- UMLS CUI [1]
- C0026473
Description
neutrophils
Data type
float
Measurement units
- %
Description
Hb (g/dL)
Data type
integer
Description
Platelets (109/L)
Data type
integer
Description
White Blood Cells (109/L)
Data type
integer
Description
blasts
Data type
text
Measurement units
- %
Description
monocytes
Data type
text
Measurement units
- %
Description
neutrophils
Data type
text
Measurement units
- %
Description
Bone marrow Blasts
Data type
integer
Measurement units
- %
Description
Bone marrow blasts
Data type
integer
Description
Auer rods present
Data type
text
Description
RISK FACTOR SCORE
Data type
text
Description
RISK FACTOR SCORE
Data type
text
Description
BM INVESTIGATION
Data type
text
Description
(at diagnosis; check one box in each column) CELLULARITY ON BM ASPIRATE / BM BIOPSY
Data type
text
Description
FIBROSIS/OSTEOSCLEROSIS ON BM BIOPSY
Data type
text
Description
CONSTITUTIONAL SYMPTOMS
Data type
text
Description
Palpable Splenomegaly
Data type
text
Alias
- UMLS CUI [1]
- C0038002
Description
physical examination
Data type
float
Measurement units
- cm
Description
Physical examination
Data type
integer
Description
Spleen span in ultrasound or CT scan
Data type
float
Measurement units
- cm
Description
Spleen span in ultrasound or CT scan:
Data type
integer
Description
Weight loss
Data type
text
Description
FIRST LINE THERAPY
Description
First Line Therapy
Data type
boolean
Alias
- UMLS CUI [1]
- C1708063
Description
SUBCLASSIFICATION AT PRIMARY TREATMENT
Data type
integer
Description
date of transformation
Data type
date
Description
TREATMENT
Data type
boolean
Alias
- UMLS CUI [1]
- C0013216
Description
Chemo/drug/agent
Data type
text
Description
Chemo/drug/agent
Data type
text
Description
Radiotherapy
Data type
boolean
Alias
- UMLS CUI [1]
- C1522449
Description
To the spleen
Data type
integer
Description
Radiotherapy
Data type
text
Description
RESPONSE
Data type
text
Description
SUBCLASSIFICATION & STATUS OF DISEASE AT HSCT
Description
Date of HSCT
Data type
date
Alias
- UMLS CUI [1]
- C2584899
Description
Splenectomy
Data type
text
Description
Transfusional status at HSCT
Data type
integer
Description
SUBCLASSIFICATION AT HSCT
Data type
integer
Description
If transformed into Myelofibrosis or AML, date of transformation
Data type
date
Description
STATUS OF DISEASE AT HSCT
Data type
integer
Description
NUMBER OF STATUS OF DISEASE AT HSCT
Data type
text
Description
CYTOGENETICS DATA
Data type
integer
Description
Chromosome analysis
Data type
integer
Description
Abnormality chr. 1
Data type
integer
Description
Abnormality chr. 5
Data type
text
Description
Abnormality chr. 7
Data type
integer
Description
trisomy 8
Data type
integer
Description
trisomy 9
Data type
integer
Description
del 20
Data type
integer
Description
del 13
Data type
integer
Description
HAEMATOLOGICAL VALUES Peripheral blood
Data type
float
Description
HAEMATOLOGICAL VALUES Peripheral blood
Data type
float
Description
HAEMATOLOGICAL VALUES Peripheral blood
Data type
float
Description
HAEMATOLOGICAL VALUES Peripheral blood
Data type
float
Description
HAEMATOLOGICAL VALUES Peripheral blood
Data type
float
Description
HAEMATOLOGICAL VALUES Peripheral blood
Data type
float
Description
HAEMATOLOGICAL VALUES Peripheral blood
Data type
integer
Description
HAEMATOLOGICAL VALUES Peripheral blood
Data type
integer
Description
HAEMATOLOGICAL VALUES Peripheral blood
Data type
integer
Description
HAEMATOLOGICAL VALUES Peripheral blood
Data type
integer
Description
HAEMATOLOGICAL VALUES Peripheral blood
Data type
integer
Description
HAEMATOLOGICAL VALUES Peripheral blood
Data type
integer
Description
Bone marrow
Data type
float
Measurement units
- %
Description
Bone marrow
Data type
integer
Description
Auer rods present
Data type
text
Description
RISK FACTOR SCORE
Data type
integer
Description
RISK FACTOR SCORE
Data type
integer
Description
BM Investigation
Data type
text
Alias
- UMLS CUI [1]
- C0005957
Description
RESULTS
Data type
integer
Description
RESULTS
Data type
integer
Description
CONSTITUTIONAL SYMPTOMS
Data type
integer
Description
Palpable Splenomegaly
Data type
text
Alias
- UMLS CUI [1]
- C0038002
Description
Physical examination
Data type
integer
Description
Physical examination
Data type
float
Measurement units
- cm
Description
Spleen span in ultrasound or CT scan
Data type
float
Measurement units
- cm
Description
Spleen span in ultrasound or CT scan
Data type
integer
Description
Weight loss
Data type
integer
Description
ADDITIONAL TREATMENT POST-HSCT
Description
RESPONSE OF DISEASE
Description
FORMS TO BE FILLED IN
Description
FOLLOW UP MYELOPROLIFERATIVE NEOPLASM
Description
Unique Identification Code (UIC)
Data type
text
Alias
- UMLS CUI [1]
- C2348585
Description
Date of this report
Data type
date
Alias
- UMLS CUI [1]
- C1302584
Description
Patient in Trial
Data type
integer
Alias
- UMLS CUI [1]
- C1997894
Description
Name of study / trial
Data type
text
Description
Hospital Unique Patient Number
Data type
text
Alias
- UMLS CUI [1]
- C2348585
Description
Initials
Data type
text
Alias
- UMLS CUI [1]
- C2986440
Description
PersonBirthDate
Data type
date
Alias
- UMLS CUI [1,1]
- C0011008
- UMLS CUI [1,2]
- C0027361
- UMLS CUI [1,3]
- C0005615
Description
Date of last HSCT for this patient
Data type
date
Alias
- UMLS CUI [1,1]
- C0472699
- UMLS CUI [1,2]
- C0011008
Description
PATIENT LAST SEEN
Description
GRAFT VERSUS HOST DISEASE (GvHD) SINCE LAST REPORT
Description
aGvHD Grade
Data type
integer
Alias
- UMLS CUI [1,1]
- C0856825
- UMLS CUI [1,2]
- C0441800
Description
aGvHD grade
Data type
integer
Description
aGvHD grade
Data type
integer
Description
Date onset of this episode
Data type
date
Measurement units
- yyyy/mm/dd
Alias
- UMLS CUI [1]
- C0574845
Description
Date onset of this episode
Data type
integer
Description
aGvHD Stage Skin
Data type
integer
Alias
- UMLS CUI [1,1]
- C0856825
- UMLS CUI [1,2]
- C1306673
- UMLS CUI [1,3]
- C1306673
Description
aGvHD Stage liver
Data type
integer
Alias
- UMLS CUI [1,1]
- C0856825
- UMLS CUI [1,2]
- C1306673
- UMLS CUI [1,3]
- C0023884
Description
aGvHD stage gut
Data type
integer
Alias
- UMLS CUI [1,1]
- C0856825
- UMLS CUI [1,2]
- C1306673
- UMLS CUI [1,3]
- C0021853
Description
Resolution
Data type
boolean
Alias
- UMLS CUI [1,1]
- C0856825
- UMLS CUI [1,2]
- C1514893
Description
aGvHD Date of resolution
Data type
date
Measurement units
- yyyy/mm/dd
Alias
- UMLS CUI [1,1]
- C0856825
- UMLS CUI [1,2]
- C1514893
- UMLS CUI [1,3]
- C0011008
Description
Chronic Graft versus Host Disease (cGvHD)
Data type
text
Alias
- UMLS CUI [1]
- C0867389
Description
Presence of cGVHD
Data type
integer
Alias
- UMLS CUI [1]
- C0867389
Description
Date of onset
Data type
date
Alias
- UMLS CUI [1]
- C0574845
Description
cGvHD grade
Data type
integer
Alias
- UMLS CUI [1,1]
- C0867389
- UMLS CUI [1,2]
- C0441800
Description
Organs affected
Data type
integer
Alias
- UMLS CUI [1]
- C0449642
Description
Organs affected
Data type
text
Description
aGvHD Date of resolution
Data type
date
Measurement units
- yyyy/mm/dd
Alias
- UMLS CUI [1,1]
- C0856825
- UMLS CUI [1,2]
- C1514893
- UMLS CUI [1,3]
- C0011008
Description
OTHER COMPLICATIONS SINCE LAST REPORT
Description
Infection related complications
Data type
boolean
Alias
- UMLS CUI [1,1]
- C0009450
- UMLS CUI [1,2]
- C0009566
Description
Bacteremia / fungemia / viremia / parasites
Data type
text
Description
Bacteremia / fungemia / viremia / parasites
Data type
text
Description
Septic shock
Data type
text
Description
Date Provide different dates for different episodes of the same complication if applicable.
Data type
text
Description
ARDS
Data type
text
Description
ARDS
Data type
text
Description
Multiorgan failure due to infection
Data type
text
Description
Multiorgan failure due to infection
Data type
text
Description
Pneumonia
Data type
text
Description
Pneumonia
Data type
text
Description
Hepatitis
Data type
text
Description
Hepatitis
Data type
text
Description
CNS infection
Data type
text
Description
CNS infection
Data type
text
Description
Gut infection
Data type
text
Description
Gut infection
Data type
text
Description
Skin infection
Data type
text
Description
Skin infection
Data type
text
Description
Cystitis
Data type
text
Description
Cystitis
Data type
text
Description
Retinitis
Data type
text
Description
Retinitis
Data type
text
Description
Other
Data type
text
Description
Other
Data type
text
Description
NON INFECTION RELATED COMPLICATIONS
Data type
integer
Description
Idiopathic pneumonia syndrome
Data type
text
Alias
- UMLS CUI [1]
- C1504431
Description
VOD
Data type
text
Alias
- UMLS CUI [1]
- C0948441
Description
Cataract
Data type
text
Alias
- UMLS CUI [1]
- C0086543
Description
Haemorrhagic cystitis, non infectious
Data type
text
Alias
- UMLS CUI [1]
- C0085692
Description
ARDS, non infectious
Data type
text
Alias
- UMLS CUI [1]
- C0035222
Description
Multiorgan failure, non infectious
Data type
text
Description
HSCT-associated microangiopathy
Data type
text
Alias
- UMLS CUI [1]
- C0155765
Description
Renal failure requiring dialysis
Data type
text
Alias
- UMLS CUI [1]
- C0035078
Description
Haemolytic anaemia due to blood group
Data type
text
Alias
- UMLS CUI [1]
- C0002878
Description
Aseptic bone necrosis
Data type
text
Alias
- UMLS CUI [1]
- C0158452
Description
Other type of complication
Data type
integer
Description
Idiopathic pneumonia syndrome
Data type
date
Description
VOD
Data type
date
Description
Cataract
Data type
date
Description
Haemorrhagic cystitis, non infectious
Data type
date
Description
ARDS, non infectious
Data type
date
Description
Multiorgan failure, non infectious
Data type
date
Description
HSCT-associated microangiopathy
Data type
date
Description
Renal failure requiring dialysis
Data type
date
Description
Haemolytic anaemia due to blood group
Data type
date
Description
Aseptic bone necrosis
Data type
date
Description
Other type of complication
Data type
date
Description
GRAFT ASSESSMENT AND HAEMOPOIETIC CHIMAERISM
Description
Graft loss
Data type
text
Alias
- UMLS CUI [1]
- C0877042
Description
Overall chimaerism
Data type
text
Alias
- UMLS CUI [1]
- C0333678
Description
Date of Test
Data type
date
Alias
- UMLS CUI [1,1]
- C0024671
- UMLS CUI [1,2]
- C0011008
Description
Identification
Data type
text
Alias
- UMLS CUI [1]
- C1718162
Description
Number in the infusion order (if applicable)
Data type
integer
Alias
- UMLS CUI [1]
- C2348184
Description
BM
Data type
float
Measurement units
- %
Alias
- UMLS CUI [1]
- C0005953
Description
PB mononuclear cells (PBMC)
Data type
float
Measurement units
- %
Alias
- UMLS CUI [1]
- C1321301
Description
T-cell
Data type
float
Description
B-Cells
Data type
float
Measurement units
- %
Alias
- UMLS CUI [1]
- C0004561
Description
Red blood cells
Data type
float
Measurement units
- %
Alias
- UMLS CUI [1]
- C0014772
Description
Monocytes
Data type
float
Measurement units
- %
Alias
- UMLS CUI [1]
- C0026473
Description
PMNs (neutrophils)
Data type
float
Measurement units
- %
Alias
- UMLS CUI [1]
- C0200633
Description
Lymphocytes, NOS
Data type
float
Measurement units
- %
Alias
- UMLS CUI [1]
- C0024264
Description
Myeloid cells, NOS
Data type
float
Measurement units
- %
Alias
- UMLS CUI [1]
- C0887899
Description
Other
Data type
float
Description
Laboratory tests
Data type
text
Alias
- UMLS CUI [1]
- C0022885
Description
Test used
Data type
text
Description
SECONDARY MALIGNANCY, LYMPHOPROLIFERATIVE OR MYELOPROLIFRATIVE DISORDER DIAGNOSED
Data type
integer
Description
SECONDARY MALIGNANCY, LYMPHOPROLIFERATIVE OR MYELOPROLIFRATIVE DISORDER DIAGNOSED
Data type
date
Description
Diagnosis
Data type
integer
Description
Other diagnosis
Data type
text
Alias
- UMLS CUI [1]
- C0205394
Description
ADDITIONAL THERAPIES SINCE LAST FOLLOW UP
Description
Additional treatment
Data type
text
Alias
- UMLS CUI [1]
- C1706712
Description
ADDITIONAL TREATMENT
Data type
date
Description
Cellular therapy
Data type
integer
Alias
- UMLS CUI [1]
- C0302189
Description
Disease status before this cellular therapy
Data type
integer
Description
Type of cells
Data type
integer
Alias
- UMLS CUI [1]
- C0302189
Description
Type of cells
Data type
text
Description
Nucleated cells
Data type
integer
Measurement units
- 10^8/kg
Alias
- UMLS CUI [1]
- C1180059
Description
CD 34+
Data type
text
Alias
- UMLS CUI [1]
- C3538723
Description
CD 3+
Data type
text
Alias
- UMLS CUI [1]
- C3542405
Description
All cells
Data type
integer
Measurement units
- x10^6/kg
Alias
- UMLS CUI [1]
- C0007584
Description
Chronological number
Data type
float
Alias
- UMLS CUI [1]
- C2348184
Description
Indication
Data type
text
Alias
- UMLS CUI [1,1]
- C3146298
- UMLS CUI [1,2]
- C0302189
Description
Other indication
Data type
text
Description
Number of Infusions
Data type
float
Alias
- UMLS CUI [1,1]
- C2348184
- UMLS CUI [1,2]
- C1289919
Description
Acute Graft versus Host Disease
Data type
text
Alias
- UMLS CUI [1]
- C0856825
Description
Disease treatment
Data type
integer
Alias
- UMLS CUI [1]
- C0087111
Description
FIRST EVIDENCE OF RELAPSE OR PROGRESSION SINCE LAST HSCT
Description
LAST DISEASE AND PATIENT STATUS
Description
Last Disease Status
Data type
text
Alias
- UMLS CUI [1,1]
- C0332307
- UMLS CUI [1,2]
- C0012634
- UMLS CUI [1,3]
- C0678257
Description
FIBROSIS/OSTEOSCLEROSIS ON BM BIOPSY
Data type
integer
Description
Conception
Data type
text
Alias
- UMLS CUI [1]
- C0032961
Description
Survival Status
Data type
integer
Alias
- UMLS CUI [1]
- C1148433
Description
Performance Score
Data type
text
Alias
- UMLS CUI [1]
- C1518965
Description
Performance score
Data type
integer
Alias
- UMLS CUI [1]
- C1518965
Description
Cause of Death
Data type
text
Alias
- UMLS CUI [1]
- C0007465
Description
HSCT related cause
Data type
integer
Description
ADDITIONAL NOTES IF APPLICABLE
Similar models
15ppMPN
- StudyEvent: ODM
C0027361 (UMLS CUI [1,2])
C0337611 (UMLS CUI [1,3])
C0085205 (UMLS CUI [1,4])
C0027361 (UMLS CUI [1,2])
C0013849 (UMLS CUI [1,3])
C0337611 (UMLS CUI [1,4])
C0030705 (UMLS CUI [1,2])
C0079399 (UMLS CUI [1,3])
C2348235 (UMLS CUI [1,2])
C0027361 (UMLS CUI [1,2])
C0005615 (UMLS CUI [1,3])
C0011008 (UMLS CUI [1,2])
C0441800 (UMLS CUI [1,2])
C1306673 (UMLS CUI [1,2])
C1306673 (UMLS CUI [1,3])
C1306673 (UMLS CUI [1,2])
C0023884 (UMLS CUI [1,3])
C1306673 (UMLS CUI [1,2])
C0021853 (UMLS CUI [1,3])
C1514893 (UMLS CUI [1,2])
C1514893 (UMLS CUI [1,2])
C0011008 (UMLS CUI [1,3])
C1514893 (UMLS CUI [1,2])
C0011008 (UMLS CUI [1,3])
C0009566 (UMLS CUI [1,2])
C0011008 (UMLS CUI [1,2])
C0302189 (UMLS CUI [1,2])
C1289919 (UMLS CUI [1,2])
C0242656 (UMLS CUI [1,2])
C0012634 (UMLS CUI [1,2])
C0678257 (UMLS CUI [1,3])