0 Evaluaciones
ID

42711

Descripción

ODM form derived from 14pp EBMT Solid Tumors 11SoTu.pdf refer to: http://www.ebmt.org/Contents/Data-Management/Registrystructure/MED-ABdatacollectionforms/Pages/MED-AB-data-collection-forms.aspx

Link

http://www.ebmt.org/Contents/Data-Management/Registrystructure/MED-ABdatacollectionforms/Pages/MED-AB-data-collection-forms.aspx

Palabras clave

Versiones (3)
  1. 5/4/16 5/4/16 -
  2. 27/7/16 27/7/16 -
  3. 17/9/21 17/9/21 -
Subido en

17 de septiembre de 2021

DOI

Para solicitar uno, por favor iniciar sesión.

Licencia

Creative Commons BY-NC 3.0
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    EBMT Solid Tumors

    Inglés

    EBMT Solid Tumors

    1 formularios  
    1. StudyEvent: ODM
      1. EBMT Solid Tumors
    EBMT FORM GENERAL INFORMATION
    Descripción

    EBMT FORM GENERAL INFORMATION

    EBMT FORM GENERAL INFORMATION
    Descripción

    EBMT FORM GENERAL INFORMATION

    Tipo de datos

    integer

    Alias
    UMLS CUI [1,1]
    C3826859
    UMLS CUI [1,2]
    C1508263
    Hospital
    Descripción

    Klinik

    Tipo de datos

    text

    Alias
    UMLS CUI [1]
    C0019994
    Unit
    Descripción

    Unit

    Tipo de datos

    integer

    Alias
    UMLS CUI [1]
    C1519795
    Name of contact person
    Descripción

    Contact person

    Tipo de datos

    text

    Alias
    UMLS CUI [1]
    C0337611
    Telephone
    Descripción

    Patient phone number

    Tipo de datos

    text

    Alias
    UMLS CUI [1]
    C1515258
    Fax
    Descripción

    Fax

    Tipo de datos

    integer

    Alias
    UMLS CUI [1]
    C1549619
    E-mail address of contact number
    Descripción

    E-mail

    Tipo de datos

    text

    Alias
    UMLS CUI [1]
    C1705961
    Date of this report
    Descripción

    Date of this report

    Tipo de datos

    date

    Alias
    UMLS CUI [1]
    C1302584
    STUDY/TRIAL
    Descripción

    STUDY/TRIAL

    Patient following national / international study / trial
    Descripción

    Patient in Trial

    Tipo de datos

    integer

    Alias
    UMLS CUI [1]
    C1997894
    Name of study / trial
    Descripción

    Name of study / trial

    Tipo de datos

    integer

    Alias
    UMLS CUI [1]
    C0008976
    PATIENT
    Descripción

    PATIENT

    To be entered only if patient previously reported
    Descripción

    Unique Identification Code (UIC)

    Tipo de datos

    text

    Alias
    UMLS CUI [1]
    C2348585
    Hospital Unique Patient Number or Code
    Descripción

    Hospital Unique Patient Number or Code

    Tipo de datos

    text

    Alias
    UMLS CUI [1]
    C1827636
    First name(s)_surname(s)
    Descripción

    Initials

    Tipo de datos

    text

    Alias
    UMLS CUI [1]
    C2986440
    Date of Birth
    Descripción

    Date of Birth

    Tipo de datos

    date

    Alias
    UMLS CUI [1]
    C0421451
    Sex
    Descripción

    Sex

    Tipo de datos

    text

    Alias
    UMLS CUI [1]
    C0079399
    ABO Group
    Descripción

    ABO Group

    Tipo de datos

    text

    Alias
    UMLS CUI [1]
    C0000778
    Rh factor
    Descripción

    Rh factor

    Tipo de datos

    integer

    Alias
    UMLS CUI [1]
    C0035403
    DISEASE
    Descripción

    DISEASE

    Date of diagnosis
    Descripción

    Date of diagnosis

    Tipo de datos

    date

    Alias
    UMLS CUI [1]
    C2316983
    Check the disease for which this transplant was performed
    Descripción

    Primary Disease Diagnosis

    Tipo de datos

    integer

    Alias
    UMLS CUI [1]
    C0277554
    SOLID TUMOURS
    Descripción

    SOLID TUMOURS

    INITIAL DIAGNOSIS
    Descripción

    INITIAL DIAGNOSIS

    Tipo de datos

    integer

    Alias
    UMLS CUI [1]
    C0011900
    INITIAL DIAGNOSIS: if other specify
    Descripción

    INITIAL DIAGNOSIS

    Tipo de datos

    integer

    Alias
    UMLS CUI [1,1]
    C0011900
    UMLS CUI [1,2]
    C3845569
    Clinical TNM classification Tumor
    Descripción

    Clinical TNM classification Tumor

    Tipo de datos

    integer

    Alias
    UMLS CUI [1]
    C0809869
    Clinical TNM classification Tumor Nodes
    Descripción

    Clinical TNM classification Tumor Nodes

    Tipo de datos

    integer

    Alias
    UMLS CUI [1,1]
    C0809869
    UMLS CUI [1,2]
    C0024204
    Clinical TNM classification Metastases
    Descripción

    For metastases, 0 indicates “No metastasis”, 1 indicates “Metastasis” and X indicates “Not evaluable

    Tipo de datos

    integer

    Alias
    UMLS CUI [1,1]
    C0027627
    UMLS CUI [1,2]
    C0809869
    Disease-specific staging
    Descripción

    Disease-specific staging

    Tipo de datos

    integer

    Alias
    UMLS CUI [1]
    C0449385
    HISTOLOGICAL SUBCLASSIFICATION Describe
    Descripción

    HISTOLOGICAL SUBCLASSIFICATION Describe

    Tipo de datos

    text

    BREAST CARCINOMA ONLY
    Descripción

    BREAST Cancer

    Tipo de datos

    integer

    Alias
    UMLS CUI [1]
    C0678222
    RECEPTOR STATUS Estrogen (ER)
    Descripción

    RECEPTOR STATUS Estrogen (ER)

    Tipo de datos

    integer

    Alias
    UMLS CUI [1]
    C0279758
    RECEPTOR STATUS positive: Values
    Descripción

    RECEPTOR STATUS Estrogen (ER)

    Tipo de datos

    float

    Alias
    UMLS CUI [1]
    C1719706
    RECEPTOR STATUS Progesterone (PgR)
    Descripción

    RECEPTOR STATUS Progesterone (PgR)

    Tipo de datos

    integer

    Alias
    UMLS CUI [1]
    C1514471
    Progesterone Receptor Status positive: Values
    Descripción

    RECEPTOR STATUS Progesterone (PgR)

    Tipo de datos

    float

    Alias
    UMLS CUI [1,1]
    C1514471
    UMLS CUI [1,2]
    C0279759
    RECEPTOR STATUS HER2/neu (c-erb-B2)
    Descripción

    RECEPTOR STATUS HER2/neu (c-erb-B2)

    Tipo de datos

    integer

    Alias
    UMLS CUI [1]
    C1512413
    If RECEPTOR STATUS HER2/neu (c-erb-B2) positiv :
    Descripción

    RECEPTOR STATUS HER2/neu (c-erb-B2)

    Tipo de datos

    integer

    Alias
    UMLS CUI [1]
    C2348909
    HISTOLOGICAL SUBCLASSIFICATION FOR BREAST CARCINOMA
    Descripción

    HISTOLOGICAL SUBCLASSIFICATION FOR BREAST CARCINOMA

    Number of positive Axillary lymph nodes
    Descripción

    Axillary lymph nodes

    Tipo de datos

    float

    Alias
    UMLS CUI [1,1]
    C0729594
    UMLS CUI [1,2]
    C0746319
    Number of examined Axillary lymph nodes
    Descripción

    Axillary lymph nodes

    Tipo de datos

    float

    Alias
    UMLS CUI [1]
    C0807728
    Axillary lymph nodes Not evaluated
    Descripción

    Axillary lymph nodes

    Tipo de datos

    integer

    Alias
    UMLS CUI [1,1]
    C0220825
    UMLS CUI [1,2]
    C0398420
    S.B.R. (Scarff-Bloom-Richardson)
    Descripción

    S.B.R. (Scarff-Bloom-Richardson)

    Tipo de datos

    integer

    Alias
    UMLS CUI [1]
    C3828224
    Ductal carcinoma
    Descripción

    Ductal carcinoma

    Tipo de datos

    integer

    Alias
    UMLS CUI [1]
    C1527349
    Lobular carcinoma
    Descripción

    Lobular carcinoma

    Tipo de datos

    integer

    Alias
    UMLS CUI [1]
    C0279563
    CYTOGENETICS
    Descripción

    CYTOGENETICS

    CHROMOSOME ANALYSIS
    Descripción

    CHROMOSOME ANALYSIS

    Tipo de datos

    integer

    Alias
    UMLS CUI [1]
    C0200867
    CHROMOSOME ANALYSIS
    Descripción

    CHROMOSOME ANALYSIS

    Tipo de datos

    integer

    Alias
    UMLS CUI [1]
    C0200867
    Molecular markers
    Descripción

    Molecular markers

    Tipo de datos

    integer

    Alias
    UMLS CUI [1]
    C0005516
    TREATMENT GIVEN BEFORE THIS HSCT
    Descripción

    TREATMENT GIVEN BEFORE THIS HSCT

    Treatment given
    Descripción

    if no: Includes a) Patients who have no surgery and go on to have high dose chemotherapy followed immediately by HSCT, or sequential chemotherapy, as the 1st line treatment; or b) Subsequent HSCT within a multiple/ sequential chemotherapy HSCT procedure if yes: Includes surgery or any other treatment, including chemotherapy, given prior to the HSCT and which is not considered part of the preparative (conditioning) regimen

    Tipo de datos

    integer

    Alias
    UMLS CUI [1]
    C0580351
    FIRST LINE TREATMENT
    Descripción

    FIRST LINE TREATMENT

    1st line treatment started
    Descripción

    treatment start date

    Tipo de datos

    date

    Alias
    UMLS CUI [1]
    C3173309
    Did the first-line treatment include HSCT
    Descripción

    HSCT

    Tipo de datos

    integer

    Alias
    UMLS CUI [1]
    C0472699
    if the first-line treatment include HSCT
    Descripción

    Upfront (treatment started with a program including high dose chemotherapy followed by HSCT or high dose sequential chemotherapy; adjuvant excluded) Adjuvant (HSCT done in adjuvant-setting)

    Tipo de datos

    integer

    Alias
    UMLS CUI [1]
    C0472699
    Modality
    Descripción

    Modality

    Tipo de datos

    integer

    Alias
    UMLS CUI [1]
    C0695347
    Drugs
    Descripción

    Drugs

    Tipo de datos

    integer

    Alias
    UMLS CUI [1]
    C0392920
    if other drugs
    Descripción

    Drugs

    Tipo de datos

    text

    If breast cancer, type of surgery
    Descripción

    Modality Surgery

    Tipo de datos

    text

    if other Modality
    Descripción

    Modality

    Tipo de datos

    text

    Status of disease after first line treatment (best response)
    Descripción

    Status of disease after first line treatment (best response)

    Tipo de datos

    text

    Criteria used for evaluation
    Descripción

    Criteria used for evaluation

    Tipo de datos

    text

    ADDITIONAL LINES OF TREATMENT BEFORE THIS HSCT FOR RELAPSED/REFRACTORY DISEASE
    Descripción

    Treatment given

    Tipo de datos

    text

    TREATMENT HISTORY BEFORE HSCT
    Descripción

    TREATMENT HISTORY BEFORE HSCT

    Date of HSCT
    Descripción

    Date of HSCT

    Tipo de datos

    date

    Alias
    UMLS CUI [1]
    C2584899
    Total number of lines before this HSCT
    Descripción

    TREATMENT SUMMARY

    Tipo de datos

    integer

    Alias
    UMLS CUI [1]
    C0577303
    Modality used at least once Chemotherapy
    Descripción

    Chemotherapy

    Tipo de datos

    integer

    Alias
    UMLS CUI [1]
    C0392920
    Modality used at least once Surgery
    Descripción

    Surgery

    Tipo de datos

    integer

    Alias
    UMLS CUI [1]
    C0543467
    Modality used at least once Radiotherapy
    Descripción

    Radiotherapy

    Tipo de datos

    integer

    Alias
    UMLS CUI [1]
    C1522449
    Modality used at least once other
    Descripción

    Modality

    Tipo de datos

    integer

    Alias
    UMLS CUI [1]
    C0695347
    STATUS OF DISEASE AT HSCT
    Descripción

    STATUS OF DISEASE AT HSCT

    STATUS OF DISEASE AT HSCT
    Descripción

    STATUS OF DISEASE AT HSCT

    Tipo de datos

    integer

    Alias
    UMLS CUI [1,1]
    C1704632
    UMLS CUI [1,2]
    C0472699
    if CR please specify
    Descripción

    if CR please specify

    Tipo de datos

    integer

    Alias
    UMLS CUI [1]
    C0677874
    if Relapse please specify
    Descripción

    if Relapse please specify

    Tipo de datos

    integer

    Alias
    UMLS CUI [1]
    C0035020
    Complete remission (CR) Number
    Descripción

    Complete remission (CR) Number

    Tipo de datos

    integer

    Alias
    UMLS CUI [1,1]
    C0237753
    UMLS CUI [1,2]
    C0677874
    Complete relapse Number
    Descripción

    Complete relapse Number

    Tipo de datos

    integer

    Alias
    UMLS CUI [1,1]
    C2347944
    UMLS CUI [1,2]
    C0237753
    SENSITIVITY TO CHEMOTHERAPY
    Descripción

    (complete only for relapse)

    Tipo de datos

    integer

    Alias
    UMLS CUI [1]
    C2363824
    Organ(s) involved
    Descripción

    Organ involved

    Tipo de datos

    integer

    Alias
    UMLS CUI [1]
    C0449953
    Primary site affected
    Descripción

    Primary site affected

    Tipo de datos

    integer

    Alias
    UMLS CUI [1]
    C0449695
    ADDITIONAL TREATMENT POST-HSCT
    Descripción

    ADDITIONAL TREATMENT POST-HSCT

    Additional Disease Treatment
    Descripción

    Additional Disease Treatment

    Tipo de datos

    boolean

    Alias
    UMLS CUI [1]
    C1706712
    if ADDITIONAL DISEASE TREATMENT
    Descripción

    ADDITIONAL DISEASE TREATMENT

    Tipo de datos

    integer

    Alias
    UMLS CUI [1]
    C1706712
    BEST DISEASE RESPONSE AT 100 DAYS POST-HSCT
    Descripción

    BEST DISEASE RESPONSE AT 100 DAYS POST-HSCT

    BEST RESPONSE AT 100 DAYS AFTER HSCT
    Descripción

    BEST RESPONSE AT 100 DAYS AFTER HSCT

    Tipo de datos

    text

    Alias
    UMLS CUI [1]
    C2986560
    Date of Evaluation
    Descripción

    LesionAssessmentDate

    Tipo de datos

    date

    Alias
    UMLS CUI [1,1]
    C0011008
    UMLS CUI [1,2]
    C0221198
    UMLS CUI [1,3]
    C0031809
    FORMS TO BE FILLED IN
    Descripción

    FORMS TO BE FILLED IN

    TYPE OF TRANSPLANT
    Descripción

    TYPE OF TRANSPLANT

    Tipo de datos

    text

    Alias
    UMLS CUI [1,1]
    C0559189
    UMLS CUI [1,2]
    C0040739
    it other type of transplant contact the EBMT Central Registry Office for instructions
    Descripción

    TYPE OF TRANSPLANT

    Tipo de datos

    text

    Alias
    UMLS CUI [1,1]
    C0559189
    UMLS CUI [1,2]
    C0040739
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    Similar models

    EBMT Solid Tumors

    1 formularios
    1. StudyEvent: ODM
      1. EBMT Solid Tumors
    Name
    Tipo
    Description | Question | Decode (Coded Value)
    Tipo de datos
    Alias
    Item Group
    EBMT FORM GENERAL INFORMATION
    EBMT FORM GENERAL INFORMATION
    Item
    EBMT FORM GENERAL INFORMATION
    integer
    C3826859 (UMLS CUI [1,1])
    C1508263 (UMLS CUI [1,2])
    Klinik
    Item
    Hospital
    text
    C0019994 (UMLS CUI [1])
    Unit
    Item
    Unit
    integer
    C1519795 (UMLS CUI [1])
    Contact person
    Item
    Name of contact person
    text
    C0337611 (UMLS CUI [1])
    Patient phone number
    Item
    Telephone
    text
    C1515258 (UMLS CUI [1])
    Fax
    Item
    Fax
    integer
    C1549619 (UMLS CUI [1])
    E-mail
    Item
    E-mail address of contact number
    text
    C1705961 (UMLS CUI [1])
    Date of this report
    Item
    Date of this report
    date
    C1302584 (UMLS CUI [1])
    Item Group
    STUDY/TRIAL
    Item
    Patient following national / international study / trial
    integer
    C1997894 (UMLS CUI [1])
    Patient in Trial
    Code List
    Patient following national / international study / trial
    CL Item
    No (1)
    C1298908 (UMLS CUI-1)
    CL Item
    Yes (2)
    C1705108 (UMLS CUI-1)
    CL Item
    Not evaluated (3)
    C3846720 (UMLS CUI-1)
    CL Item
    Unknown (4)
    C0439673 (UMLS CUI-1)
    Name of study / trial
    Item
    Name of study / trial
    integer
    C0008976 (UMLS CUI [1])
    Item Group
    PATIENT
    Unique Identification Code (UIC)
    Item
    To be entered only if patient previously reported
    text
    C2348585 (UMLS CUI [1])
    Hospital Unique Patient Number or Code
    Item
    Hospital Unique Patient Number or Code
    text
    C1827636 (UMLS CUI [1])
    Initials
    Item
    First name(s)_surname(s)
    text
    C2986440 (UMLS CUI [1])
    Date of Birth
    Item
    Date of Birth
    date
    C0421451 (UMLS CUI [1])
    Item
    Sex
    text
    C0079399 (UMLS CUI [1])
    Sex
    Code List
    Sex
    CL Item
    Male (1)
    C1706180 (UMLS CUI-1)
    CL Item
    Female (2)
    C0086287 (UMLS CUI-1)
    ABO Group
    Item
    ABO Group
    text
    C0000778 (UMLS CUI [1])
    Item
    Rh factor
    integer
    C0035403 (UMLS CUI [1])
    Rh factor
    Code List
    Rh factor
    CL Item
    Absent (1)
    C2699077 (UMLS CUI-1)
    CL Item
    Present (2)
    C2699078 (UMLS CUI-1)
    CL Item
    Not evaluated (3)
    C3846720 (UMLS CUI-1)
    Item Group
    DISEASE
    Date of diagnosis
    Item
    Date of diagnosis
    date
    C2316983 (UMLS CUI [1])
    Item
    Check the disease for which this transplant was performed
    integer
    C0277554 (UMLS CUI [1])
    Primary Disease Diagnosis
    Code List
    Check the disease for which this transplant was performed
    CL Item
    Acute Leukaemia (Acute Leukaemia)
    C0085669 (UMLS CUI-1)
    CL Item
    Acute Myelogenous Leukaemia (AML) (Acute Myelogenous Leukaemia (AML))
    C0023467 (UMLS CUI-1)
    CL Item
    Acute Lymphoblastic Leukaemia (ALL) (Acute Lymphoblastic Leukaemia (ALL))
    C0023449 (UMLS CUI-1)
    CL Item
    Secondary Acute Leukaemia (do not use if transformed from MDS/MPN) (Secondary Acute Leukaemia (do not use if transformed from MDS/MPN))
    C0856053 (UMLS CUI-1)
    CL Item
    Chronic Leukaemia (Chronic Leukaemia)
    C0856053 (UMLS CUI-1)
    CL Item
    Chronic Myeloid Leukaemia (CML) (Chronic Myeloid Leukaemia (CML))
    C0023473 (UMLS CUI-1)
    CL Item
    Chronic Lymphocytic Leukaemia (Chronic Lymphocytic Leukaemia)
    C0023434 (UMLS CUI-1)
    CL Item
    Lymphoma (Lymphoma)
    C0024299 (UMLS CUI-1)
    CL Item
    Non Hodgkin (Non Hodgkin)
    C0024305 (UMLS CUI-1)
    CL Item
    Hodgkin´s Disease (Hodgkin´s Disease)
    C0019829 (UMLS CUI-1)
    CL Item
    Myeloma/ Plasma cell disorder (Myeloma/ Plasma cell disorder)
    C0026764 (UMLS CUI-1)
    CL Item
    Solid Tumour (Solid Tumour)
    C0006826 (UMLS CUI-1)
    CL Item
    Myelodysplastic syndromes (Myelodysplastic syndromes)
    C0280450 (UMLS CUI-1)
    CL Item
    MDS (MDS)
    C3463824 (UMLS CUI-1)
    CL Item
    MD/ MPN (MD/ MPN)
    C1292778 (UMLS CUI-1)
    CL Item
    Myeloproliferative neoplasm (Myeloproliferative neoplasm)
    C1333046 (UMLS CUI-1)
    CL Item
    Bone marrow failure including Aplastic anaemia (Bone marrow failure including Aplastic anaemia)
    C0002874 (UMLS CUI-1)
    CL Item
    Inherited disorders (Inherited disorders)
    C0019247 (UMLS CUI-1)
    CL Item
    Primary immune deficiencies (Primary immune deficiencies)
    C0398686 (UMLS CUI-1)
    CL Item
    Metabolic disorders (Metabolic disorders)
    C0025517 (UMLS CUI-1)
    CL Item
    Histiocytic disorders (Histiocytic disorders)
    C0398597 (UMLS CUI-1)
    CL Item
    Autoimmune disease (Autoimmune disease)
    C0004364 (UMLS CUI-1)
    CL Item
    Juvenile Idiopathic Arthritis (Juvenile Idiopathic Arthritis)
    C1444841 (UMLS CUI-1)
    CL Item
    Multiple Sclerosis (Multiple Sclerosis)
    C0026769 (UMLS CUI-1)
    CL Item
    Systemic Lupus (Systemic Lupus)
    C0024141 (UMLS CUI-1)
    CL Item
    Systemic Sclerosis (Systemic Sclerosis)
    C0036421 (UMLS CUI-1)
    CL Item
    Haemoglobinopathies (Haemoglobinopathiy)
    C0019045 (UMLS CUI-1)
    CL Item
    Other diagnosis (Other diagnosis)
    C0205394 (UMLS CUI-1)
    Item Group
    SOLID TUMOURS
    Item
    INITIAL DIAGNOSIS
    integer
    C0011900 (UMLS CUI [1])
    INITIAL DIAGNOSIS
    Code List
    INITIAL DIAGNOSIS
    CL Item
    Bone sarcoma (excluding Ewing sarcoma/PNET) (1)
    C0029463 (UMLS CUI-1)
    CL Item
    Central nervous system tumors (include CNS PNET) (2)
    C0085136 (UMLS CUI-1)
    CL Item
    Colorectal (3)
    C0555952 (UMLS CUI-1)
    CL Item
    Ewing sarcoma/PNET, extra-skeletal (4)
    C0553580 (UMLS CUI-1)
    CL Item
    Ewing sarcoma/PNET, skeletal (5)
    C0585474 (UMLS CUI-1)
    CL Item
    Germ cell tumour, extragonadal only (6)
    C0205851 (UMLS CUI-1)
    CL Item
    Hepatobiliary (7)
    C0267792 (UMLS CUI-1)
    CL Item
    Lung cancer, non-small cell (8)
    C0007131 (UMLS CUI-1)
    CL Item
    Lung cancer, small cell (9)
    C0149925 (UMLS CUI-1)
    CL Item
    Medulloblastoma (10)
    C0025149 (UMLS CUI-1)
    CL Item
    Melanoma (11)
    C0025202 (UMLS CUI-1)
    CL Item
    Other, specify (12)
    C1299220 (UMLS CUI-1)
    CL Item
    Breast cancer (13)
    C0678222 (UMLS CUI-1)
    CL Item
    Neuroblastoma (14)
    C0027819 (UMLS CUI-1)
    CL Item
    Ovarian cancer (15)
    C0029925 (UMLS CUI-1)
    CL Item
    Pancreas (16)
    C0030274 (UMLS CUI-1)
    CL Item
    Prostate (17)
    C0033572 (UMLS CUI-1)
    CL Item
    Renal cell (18)
    C0007134 (UMLS CUI-1)
    CL Item
    Retinoblastoma (19)
    C0035335 (UMLS CUI-1)
    CL Item
    Rhabdomyosarcoma (20)
    C0035412 (UMLS CUI-1)
    CL Item
    Soft tissue sarcoma (21)
    C0334449 (UMLS CUI-1)
    CL Item
    Testicular cancer (22)
    C0153594 (UMLS CUI-1)
    CL Item
    Thymoma (23)
    C0040100 (UMLS CUI-1)
    CL Item
    Wilms tumour (24)
    C0027708 (UMLS CUI-1)
    INITIAL DIAGNOSIS
    Item
    INITIAL DIAGNOSIS: if other specify
    integer
    C0011900 (UMLS CUI [1,1])
    C3845569 (UMLS CUI [1,2])
    Item
    Clinical TNM classification Tumor
    integer
    C0809869 (UMLS CUI [1])
    Clinical TNM classification Tumor
    Code List
    Clinical TNM classification Tumor
    CL Item
    0 (1)
    CL Item
    1 (2)
    CL Item
    2 (3)
    CL Item
    3 (4)
    CL Item
    4 (5)
    CL Item
    X (6)
    CL Item
    not evaluated (7)
    Item
    Clinical TNM classification Tumor Nodes
    integer
    C0809869 (UMLS CUI [1,1])
    C0024204 (UMLS CUI [1,2])
    Clinical TNM classification Tumor Nodes
    Code List
    Clinical TNM classification Tumor Nodes
    CL Item
    0 (1)
    CL Item
    1 (2)
    CL Item
    2 (3)
    CL Item
    3 (4)
    CL Item
    X (5)
    CL Item
    not evaluated (6)
    CL Item
    unknown (7)
    Item
    Clinical TNM classification Metastases
    integer
    C0027627 (UMLS CUI [1,1])
    C0809869 (UMLS CUI [1,2])
    Clinical TNM classification Metastases
    Code List
    Clinical TNM classification Metastases
    CL Item
    0 (1)
    CL Item
    1 (2)
    CL Item
    X (3)
    CL Item
    not evaluated (4)
    CL Item
    unknown (5)
    Item
    Disease-specific staging
    integer
    C0449385 (UMLS CUI [1])
    OR Disease-specific staging
    Code List
    Disease-specific staging
    CL Item
    1 (1)
    CL Item
    2 (2)
    CL Item
    3 (3)
    CL Item
    4 (4)
    HISTOLOGICAL SUBCLASSIFICATION Describe
    Item
    HISTOLOGICAL SUBCLASSIFICATION Describe
    text
    Item
    BREAST CARCINOMA ONLY
    integer
    C0678222 (UMLS CUI [1])
    BREAST CARCINOMA ONLY
    Code List
    BREAST CARCINOMA ONLY
    CL Item
    Inflammatory (1)
    C0333348 (UMLS CUI-1)
    CL Item
    Non-inflammatory (2)
    C0006142 (UMLS CUI-1)
    C0442743 (UMLS CUI-2)
    Item
    RECEPTOR STATUS Estrogen (ER)
    integer
    C0279758 (UMLS CUI [1])
    RECEPTOR STATUS Estrogen (ER)
    Code List
    RECEPTOR STATUS Estrogen (ER)
    CL Item
    Negative (1)
    CL Item
    Not evaluated (2)
    CL Item
    Positive (3)
    CL Item
    Unknown (4)
    CL Item
    Not evaluated (5)
    CL Item
    Unknown (6)
    RECEPTOR STATUS Estrogen (ER)
    Item
    RECEPTOR STATUS positive: Values
    float
    C1719706 (UMLS CUI [1])
    Item
    RECEPTOR STATUS Progesterone (PgR)
    integer
    C1514471 (UMLS CUI [1])
    RECEPTOR STATUS Progesterone (PgR)
    Code List
    RECEPTOR STATUS Progesterone (PgR)
    CL Item
    Negative (1)
    C0205160 (UMLS CUI-1)
    CL Item
    Not evaluated (2)
    C3846720 (UMLS CUI-1)
    CL Item
    Positive (3)
    C1446409 (UMLS CUI-1)
    CL Item
    Unknown (4)
    C0439673 (UMLS CUI-1)
    CL Item
    Not evaluated (5)
    C3846720 (UMLS CUI-1)
    CL Item
     ( )
    RECEPTOR STATUS Progesterone (PgR)
    Item
    Progesterone Receptor Status positive: Values
    float
    C1514471 (UMLS CUI [1,1])
    C0279759 (UMLS CUI [1,2])
    Item
    RECEPTOR STATUS HER2/neu (c-erb-B2)
    integer
    C1512413 (UMLS CUI [1])
    RECEPTOR STATUS HER2/neu (c-erb-B2)
    Code List
    RECEPTOR STATUS HER2/neu (c-erb-B2)
    CL Item
    Negative (1)
    C0205160 (UMLS CUI-1)
    CL Item
    Positive (2)
    C1446409 (UMLS CUI-1)
    CL Item
    Not evaluated (3)
    C3846720 (UMLS CUI-1)
    CL Item
    Unknown (4)
    C0439673 (UMLS CUI-1)
    Item
    If RECEPTOR STATUS HER2/neu (c-erb-B2) positiv :
    integer
    C2348909 (UMLS CUI [1])
    RECEPTOR STATUS HER2/neu (c-erb-B2)
    Code List
    If RECEPTOR STATUS HER2/neu (c-erb-B2) positiv :
    CL Item
    IHC 3+ (1)
    CL Item
    IHC 2+ and FISH + (2)
    CL Item
    Unknown (3)
    Item Group
    HISTOLOGICAL SUBCLASSIFICATION FOR BREAST CARCINOMA
    Axillary lymph nodes
    Item
    Number of positive Axillary lymph nodes
    float
    C0729594 (UMLS CUI [1,1])
    C0746319 (UMLS CUI [1,2])
    Axillary lymph nodes
    Item
    Number of examined Axillary lymph nodes
    float
    C0807728 (UMLS CUI [1])
    Axillary lymph nodes
    Item
    Axillary lymph nodes Not evaluated
    integer
    C0220825 (UMLS CUI [1,1])
    C0398420 (UMLS CUI [1,2])
    Item
    S.B.R. (Scarff-Bloom-Richardson)
    integer
    C3828224 (UMLS CUI [1])
    S.B.R. (Scarff-Bloom-Richardson)
    Code List
    S.B.R. (Scarff-Bloom-Richardson)
    CL Item
    1 (1)
    CL Item
    2 (2)
    CL Item
    3 (3)
    CL Item
    not evaluated (4)
    CL Item
    unknown (5)
    Item
    Ductal carcinoma
    integer
    C1527349 (UMLS CUI [1])
    Ductal carcinoma
    Code List
    Ductal carcinoma
    CL Item
    yes (1)
    C1705108 (UMLS CUI-1)
    CL Item
    no (2)
    C1298908 (UMLS CUI-1)
    CL Item
    not evaluated (3)
    C3846720 (UMLS CUI-1)
    CL Item
    unknown (4)
    C0439673 (UMLS CUI-1)
    Item
    Lobular carcinoma
    integer
    C0279563 (UMLS CUI [1])
    Lobular carcinoma
    Code List
    Lobular carcinoma
    CL Item
    yes (1)
    CL Item
    no (2)
    CL Item
    not evaluated (3)
    CL Item
    unknown (4)
    Item Group
    CYTOGENETICS
    Item
    CHROMOSOME ANALYSIS
    integer
    C0200867 (UMLS CUI [1])
    CHROMOSOME ANALYSIS
    Code List
    CHROMOSOME ANALYSIS
    CL Item
    Normal (1)
    CL Item
    Abnormal (2)
    CL Item
    Not done (3)
    CL Item
    Unknown (4)
    Item
    CHROMOSOME ANALYSIS
    integer
    C0200867 (UMLS CUI [1])
    CHROMOSOME ANALYSIS
    Code List
    CHROMOSOME ANALYSIS
    CL Item
    If aberrations, notify chromosomal aberrations (e.g. tri/monosomy) and/or other results, in clear (1)
    Item
    Molecular markers
    integer
    C0005516 (UMLS CUI [1])
    Molecular markers
    Code List
    Molecular markers
    CL Item
    Evaluated: Absent  (1)
    CL Item
    Evaluated: Present (2)
    CL Item
    Not evaluated (3)
    CL Item
    unknown (4)
    Item Group
    TREATMENT GIVEN BEFORE THIS HSCT
    Item
    Treatment given
    integer
    C0580351 (UMLS CUI [1])
    Treatment given
    Code List
    Treatment given
    CL Item
    no (1)
    CL Item
    yes (2)
    Item Group
    FIRST LINE TREATMENT
    treatment start date
    Item
    1st line treatment started
    date
    C3173309 (UMLS CUI [1])
    Item
    Did the first-line treatment include HSCT
    integer
    C0472699 (UMLS CUI [1])
    Did the first-line treatment include HSCT
    Code List
    Did the first-line treatment include HSCT
    CL Item
    yes (1)
    CL Item
    no (2)
    Item
    if the first-line treatment include HSCT
    integer
    C0472699 (UMLS CUI [1])
    if the first-line treatment include HSCT
    Code List
    if the first-line treatment include HSCT
    CL Item
    Upfront (1)
    CL Item
    Adjuvant (2)
    C1298675 (UMLS CUI-1)
    Item
    Modality
    integer
    C0695347 (UMLS CUI [1])
    Modality
    Code List
    Modality
    CL Item
    Chemotherapy (1)
    CL Item
    Adjuvant Chemotherapy (2)
    CL Item
    Neoadjuvant Chemotherapy (3)
    CL Item
    Surgery (4)
    CL Item
    Radiotherapy (5)
    CL Item
    Other (6)
    Item
    Drugs
    integer
    C0392920 (UMLS CUI [1])
    Drugs
    Code List
    Drugs
    CL Item
    Anthracyclines (1)
    C0282564 (UMLS CUI-1)
    CL Item
    Taxanes (2)
    C3541958 (UMLS CUI-1)
    CL Item
    Platinum compounds (3)
    C3536920 (UMLS CUI-1)
    CL Item
    Antimetabolites (4)
    C0003376 (UMLS CUI-1)
    CL Item
    Cyclophosphamide or other alkylating agents (5)
    C0010583 (UMLS CUI-1)
    CL Item
    Vinca Alkaloids (6)
    C0042672 (UMLS CUI-1)
    CL Item
    Etoposide (7)
    C0015133 (UMLS CUI-1)
    CL Item
    Other (8)
    C0205394 (UMLS CUI-1)
    Drugs
    Item
    if other drugs
    text
    Item
    If breast cancer, type of surgery
    text
    Modality Surgery
    Code List
    If breast cancer, type of surgery
    CL Item
    Mastectomy (1)
    CL Item
    Conservative (2)
    Modality
    Item
    if other Modality
    text
    Item
    Status of disease after first line treatment (best response)
    text
    Status of disease after first line treatment (best response)
    Code List
    Status of disease after first line treatment (best response)
    CL Item
    Complete Remission (1)
    CL Item
    Partial Remission (2)
    CL Item
    Not Evaluable (3)
    CL Item
    Stable Disease (4)
    CL Item
    Refractory Disease (5)
    Item
    Criteria used for evaluation
    text
    Criteria used for evaluation
    Code List
    Criteria used for evaluation
    CL Item
    WHO criteria (1)
    CL Item
    RECIST criteria (2)
    Item
    ADDITIONAL LINES OF TREATMENT BEFORE THIS HSCT FOR RELAPSED/REFRACTORY DISEASE
    text
    ADDITIONAL LINES OF TREATMENT BEFORE THIS HSCT FOR RELAPSED/REFRACTORY DISEASE
    Code List
    ADDITIONAL LINES OF TREATMENT BEFORE THIS HSCT FOR RELAPSED/REFRACTORY DISEASE
    CL Item
    no (1)
    CL Item
    yes (2)
    Item Group
    TREATMENT HISTORY BEFORE HSCT
    Date of HSCT
    Item
    Date of HSCT
    date
    C2584899 (UMLS CUI [1])
    Item
    Total number of lines before this HSCT
    integer
    C0577303 (UMLS CUI [1])
    TREATMENT SUMMARY
    Code List
    Total number of lines before this HSCT
    CL Item
    1 (1)
    CL Item
    2 (2)
    CL Item
    3 (3)
    CL Item
    4 (4)
    CL Item
    >4 (5)
    CL Item
    unknown (6)
    Item
    Modality used at least once Chemotherapy
    integer
    C0392920 (UMLS CUI [1])
    Modality used at least once Chemotherapy
    Code List
    Modality used at least once Chemotherapy
    CL Item
    no (1)
    C1298908 (UMLS CUI-1)
    CL Item
    yes (2)
    C1705108 (UMLS CUI-1)
    CL Item
    unknown (3)
    C0439673 (UMLS CUI-1)
    Item
    Modality used at least once Surgery
    integer
    C0543467 (UMLS CUI [1])
    Modality used at least once Surgery
    Code List
    Modality used at least once Surgery
    CL Item
    no (1)
    CL Item
    yes (2)
    CL Item
    unknown (3)
    Item
    Modality used at least once Radiotherapy
    integer
    C1522449 (UMLS CUI [1])
    Modality used at least once Radiotherapy
    Code List
    Modality used at least once Radiotherapy
    CL Item
    no (1)
    CL Item
    yes (2)
    CL Item
    unknown (3)
    Item
    Modality used at least once other
    integer
    C0695347 (UMLS CUI [1])
    Modality used at least once other
    Code List
    Modality used at least once other
    CL Item
    no (1)
    CL Item
    yes (2)
    CL Item
    unknown (3)
    Item Group
    STATUS OF DISEASE AT HSCT
    Item
    STATUS OF DISEASE AT HSCT
    integer
    C1704632 (UMLS CUI [1,1])
    C0472699 (UMLS CUI [1,2])
    STATUS OF DISEASE AT HSCT
    Code List
    STATUS OF DISEASE AT HSCT
    CL Item
    Adjuvant (1)
    CL Item
    Never treated (upfront) (2)
    CL Item
    Primary refractory (3)
    CL Item
    Complete remission (CR) (4)
    CL Item
    1st Partial remission (PR1) (5)
    CL Item
    Relapse (6)
    CL Item
    Progressive disease (PD) (7)
    Item
    if CR please specify
    integer
    C0677874 (UMLS CUI [1])
    STATUS OF DISEASE AT HSCT
    Code List
    if CR please specify
    CL Item
    Confirmed (1)
    CL Item
    Unconfirmed (CRU*) (2)
    CL Item
    Unknown (3)
    Item
    if Relapse please specify
    integer
    C0035020 (UMLS CUI [1])
    STATUS OF DISEASE AT HSCT
    Code List
    if Relapse please specify
    CL Item
    Local (1)
    C0205276 (UMLS CUI-1)
    CL Item
    Metastatic (2)
    C0036525 (UMLS CUI-1)
    Item
    Complete remission (CR) Number
    integer
    C0237753 (UMLS CUI [1,1])
    C0677874 (UMLS CUI [1,2])
    undefined item
    Code List
    Complete remission (CR) Number
    CL Item
    1st (1)
    CL Item
    2nd (2)
    CL Item
    3rd or higher (3)
    Item
    Complete relapse Number
    integer
    C2347944 (UMLS CUI [1,1])
    C0237753 (UMLS CUI [1,2])
    Complete relapse Number
    Code List
    Complete relapse Number
    CL Item
    1st (1)
    CL Item
    2nd (2)
    CL Item
    3rd or higher (3)
    Item
    SENSITIVITY TO CHEMOTHERAPY
    integer
    C2363824 (UMLS CUI [1])
    SENSITIVITY TO CHEMOTHERAPY
    Code List
    SENSITIVITY TO CHEMOTHERAPY
    CL Item
    Sensitive (SR:>50% response) (1)
    C1522640 (UMLS CUI-1)
    CL Item
    Resistant (RR:<50% response) (2)
    C0332325 (UMLS CUI-1)
    CL Item
    Untreated (3)
    C0332155 (UMLS CUI-1)
    Item
    Organ(s) involved
    integer
    C0449953 (UMLS CUI [1])
    Organ(s) involved
    Code List
    Organ(s) involved
    CL Item
    Nodes Below Diaphragm (1)
    C0230210 (UMLS CUI-1)
    C0024204 (UMLS CUI-2)
    CL Item
    Bone marrow (2)
    C0005953 (UMLS CUI-1)
    CL Item
    CNS (3)
    C3714787 (UMLS CUI-1)
    CL Item
    Mediastinum (4)
    C0025066 (UMLS CUI-1)
    CL Item
    Soft Tissue (5)
    C0225317 (UMLS CUI-1)
    CL Item
    Gastrointestinal tract (6)
    C0017189 (UMLS CUI-1)
    CL Item
    Liver (7)
    C0023884 (UMLS CUI-1)
    CL Item
    Nodes Above Diaphragm (8)
    C0024204 (UMLS CUI-1)
    CL Item
    Bone (9)
    C0265917 (UMLS CUI-1)
    CL Item
    Lungs (10)
    C0024109 (UMLS CUI-1)
    CL Item
    Heart (11)
    C0018787 (UMLS CUI-1)
    CL Item
    Skin (12)
    C1123023 (UMLS CUI-1)
    CL Item
    Urogenital tract (13)
    C0042066 (UMLS CUI-1)
    CL Item
    Ovaries/Testes (14)
    C0545968 (UMLS CUI-1)
    Item
    Primary site affected
    integer
    C0449695 (UMLS CUI [1])
    Primary site affected
    Code List
    Primary site affected
    CL Item
    yes (1)
    CL Item
    no (2)
    Item Group
    ADDITIONAL TREATMENT POST-HSCT
    Additional Disease Treatment
    Item
    Additional Disease Treatment
    boolean
    C1706712 (UMLS CUI [1])
    Item
    if ADDITIONAL DISEASE TREATMENT
    integer
    C1706712 (UMLS CUI [1])
    ADDITIONAL DISEASE TREATMENT
    Code List
    if ADDITIONAL DISEASE TREATMENT
    CL Item
    Planned (planned before HSCT took place) (1)
    CL Item
    Not planned (for relapse/progression or persistent disease) (2)
    Item Group
    BEST DISEASE RESPONSE AT 100 DAYS POST-HSCT
    Item
    BEST RESPONSE AT 100 DAYS AFTER HSCT
    text
    C2986560 (UMLS CUI [1])
    BEST RESPONSE AT 100 DAYS AFTER HSCT
    Code List
    BEST RESPONSE AT 100 DAYS AFTER HSCT
    CL Item
    Complete Remission (1)
    C0677874 (UMLS CUI-1)
    CL Item
    Very Good Partial Remission (2)
    C4053871 (UMLS CUI-1)
    CL Item
    Partial Remission (>50%) (3)
    C1521726 (UMLS CUI-1)
    CL Item
    Not Evaluable (4)
    C1883425 (UMLS CUI-1)
    CL Item
    Stable Disease (5)
    C0677946 (UMLS CUI-1)
    CL Item
    Progressive Disease (6)
    C1335499 (UMLS CUI-1)
    CL Item
    Minor Response (>25% and <50%) (7)
    C4050513 (UMLS CUI-1)
    LesionAssessmentDate
    Item
    Date of Evaluation
    date
    C0011008 (UMLS CUI [1,1])
    C0221198 (UMLS CUI [1,2])
    C0031809 (UMLS CUI [1,3])
    Item Group
    FORMS TO BE FILLED IN
    Item
    TYPE OF TRANSPLANT
    text
    C0559189 (UMLS CUI [1,1])
    C0040739 (UMLS CUI [1,2])
    TYPE OF TRANSPLANT
    Code List
    TYPE OF TRANSPLANT
    CL Item
    AUTOgraft, proceed to Autograft form (1)
    CL Item
    ALLOgraft or Syngeneic graft, proceed to Allograft form (2)
    CL Item
    Other (3)
    TYPE OF TRANSPLANT
    Item
    it other type of transplant contact the EBMT Central Registry Office for instructions
    text
    C0559189 (UMLS CUI [1,1])
    C0040739 (UMLS CUI [1,2])
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