ID
13987
Beskrivning
Background and Purpose: The purpose of the DESCRIBE study is to document the natural course of diseases in context of medical care of neurodegenerative disorders as well as cerebrovascular diseases and to perform phenotyping of the test persons. Disease-spanning analyses of the measured clincial data, the results of the imaging processes, results of the analysis of the biometerials including genetic analysis are planed. Principal Investigator: Prof. Klockgether, Dr. Spottke DZNE, Bonn. Source: DESCRIBE-Studie http://www.dzne.de/forschung/forschungsbereiche/klinische-forschung/studien/describe-bn006.html Participating Study Sites: Berlin, Bonn, Göttingen, Dresden, Köln, Magdeburg, München, Rostock/Greifswald, Tübingen
Länk
http://www.dzne.de/forschung/forschungsbereiche/klinische-forschung/studien/describe-bn006.html
Nyckelord
Versioner (1)
- 2016-03-21 2016-03-21 -
Uppladdad den
21 mars 2016
DOI
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Licens
Creative Commons BY-NC 3.0
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DESCRIBE (DZNE – Clinical Register Study of neurodegenerative Disorders) CRF Cognition Module Follow-Up
CRF Cognition Module Follow Up
- StudyEvent: ODM
Beskrivning
Anamnesis cognition 1: Subjective cognitive decline
Beskrivning
Structured interview about cognitive disorders. All questions need to be asked using original wording. The physician aks follow-up questions for every question that was affirmed by the participant. -> Now I want to aks you some question, to understand the sort of complaints correctly:
Datatyp
boolean
Alias
- UMLS CUI [1]
- C0233794
Beskrivning
memory impairment worry
Datatyp
boolean
Alias
- UMLS CUI [1,1]
- C0233794
- UMLS CUI [1,2]
- C0233481
Beskrivning
memory impairment onset
Datatyp
integer
Alias
- UMLS CUI [1,1]
- C0233794
- UMLS CUI [1,2]
- C0868945
- UMLS CUI [1,3]
- C0332162
Beskrivning
memory impairment age
Datatyp
boolean
Alias
- UMLS CUI [1,1]
- C0233794
- UMLS CUI [1,2]
- C1707455
- UMLS CUI [1,3]
- C0027362
Beskrivning
memory impairment consult
Datatyp
boolean
Alias
- UMLS CUI [1,1]
- C0233794
- UMLS CUI [1,2]
- C3693724
Beskrivning
memory impairment consult time
Datatyp
integer
Måttenheter
- months
Alias
- UMLS CUI [1,1]
- C0233794
- UMLS CUI [1,2]
- C3693724
Beskrivning
word finding
Datatyp
boolean
Alias
- UMLS CUI [1]
- C0454643
Beskrivning
word finding worry
Datatyp
boolean
Alias
- UMLS CUI [1,1]
- C0454643
- UMLS CUI [1,2]
- C0233481
Beskrivning
word finding onset
Datatyp
integer
Alias
- UMLS CUI [1,1]
- C0454643
- UMLS CUI [1,2]
- C0868945
- UMLS CUI [1,3]
- C0332162
Beskrivning
word finding age
Datatyp
boolean
Alias
- UMLS CUI [1,1]
- C0454643
- UMLS CUI [1,2]
- C1707455
- UMLS CUI [1,3]
- C0027362
Beskrivning
word finding consult
Datatyp
boolean
Alias
- UMLS CUI [1,1]
- C0454643
- UMLS CUI [1,2]
- C3693724
Beskrivning
word finding consult time
Datatyp
integer
Måttenheter
- months
Alias
- UMLS CUI [1,1]
- C0454643
- UMLS CUI [1,2]
- C3693724
Beskrivning
problems planning
Datatyp
boolean
Alias
- UMLS CUI [1]
- C0423907
Beskrivning
problems planning worry
Datatyp
boolean
Alias
- UMLS CUI [1,1]
- C0423907
- UMLS CUI [1,2]
- C0233481
Beskrivning
problems planning onset
Datatyp
integer
Alias
- UMLS CUI [1,1]
- C0423907
- UMLS CUI [1,2]
- C0868945
- UMLS CUI [1,3]
- C0332162
Beskrivning
problems planning age
Datatyp
boolean
Alias
- UMLS CUI [1,1]
- C0423907
- UMLS CUI [1,2]
- C1707455
- UMLS CUI [1,3]
- C0027362
Beskrivning
problems planning consult
Datatyp
boolean
Alias
- UMLS CUI [1,1]
- C0423907
- UMLS CUI [1,2]
- C3693724
Beskrivning
problems planning consult time
Datatyp
integer
Måttenheter
- months
Beskrivning
making mistakes
Datatyp
boolean
Alias
- UMLS CUI [1]
- C1821936
Beskrivning
making mistakes worry
Datatyp
boolean
Alias
- UMLS CUI [1,1]
- C1821936
- UMLS CUI [1,2]
- C0233481
Beskrivning
making mistakes onset
Datatyp
integer
Alias
- UMLS CUI [1,1]
- C1821936
- UMLS CUI [1,2]
- C0868945
- UMLS CUI [1,3]
- C0332162
Beskrivning
making mistakes age
Datatyp
boolean
Alias
- UMLS CUI [1,1]
- C1821936
- UMLS CUI [1,2]
- C1707455
- UMLS CUI [1,3]
- C0027362
Beskrivning
making mistakes consult
Datatyp
boolean
Alias
- UMLS CUI [1,1]
- C1821936
- UMLS CUI [1,2]
- C3693724
Beskrivning
making mistakes consult time
Datatyp
integer
Måttenheter
- months
Alias
- UMLS CUI [1,1]
- C1821936
- UMLS CUI [1,2]
- C3693724
Beskrivning
other mental deterioation
Datatyp
boolean
Alias
- UMLS CUI [1,1]
- C0234985
- UMLS CUI [1,2]
- C0205394
Beskrivning
other mental deterioation name
Datatyp
text
Alias
- UMLS CUI [1,1]
- C0234985
- UMLS CUI [1,2]
- C0205394
Beskrivning
other mental deterioation worry
Datatyp
boolean
Alias
- UMLS CUI [1,1]
- C0234985
- UMLS CUI [1,2]
- C0205394
- UMLS CUI [1,3]
- C0233481
Beskrivning
other mental deterioation onset
Datatyp
integer
Alias
- UMLS CUI [1,1]
- C0234985
- UMLS CUI [1,2]
- C0205394
- UMLS CUI [1,3]
- C0868945
- UMLS CUI [1,4]
- C0332162
Beskrivning
other mental deterioation age
Datatyp
boolean
Alias
- UMLS CUI [1,1]
- C0234985
- UMLS CUI [1,2]
- C0205394
- UMLS CUI [1,3]
- C1707455
- UMLS CUI [1,4]
- C0027362
Beskrivning
other mental deterioation consult
Datatyp
boolean
Alias
- UMLS CUI [1,1]
- C0234985
- UMLS CUI [1,2]
- C0205394
- UMLS CUI [1,3]
- C3693724
Beskrivning
other mental deterioation consult time
Datatyp
integer
Måttenheter
- months
Alias
- UMLS CUI [1,1]
- C0234985
- UMLS CUI [1,2]
- C0205394
- UMLS CUI [1,3]
- C3693724
Beskrivning
Anamnesis cognition 2: Observed cognitive decline
Beskrivning
Quetions for informant
Datatyp
text
Alias
- UMLS CUI [1]
- C3842888
Beskrivning
informant
Datatyp
text
Alias
- UMLS CUI [1]
- C1550484
Beskrivning
All questions need to be ask using original wording. Please answer for each main question answered with 'yes' for onset.
Datatyp
boolean
Alias
- UMLS CUI [1]
- C0233794
Beskrivning
memory impairment onset informant
Datatyp
integer
Alias
- UMLS CUI [1,1]
- C0233794
- UMLS CUI [1,2]
- C0868945
- UMLS CUI [1,3]
- C0332162
Beskrivning
word finding informant
Datatyp
boolean
Alias
- UMLS CUI [1]
- C0454643
Beskrivning
word finding onset informant
Datatyp
integer
Alias
- UMLS CUI [1,1]
- C0454643
- UMLS CUI [1,2]
- C0868945
- UMLS CUI [1,3]
- C0332162
Beskrivning
problems planning informant
Datatyp
boolean
Alias
- UMLS CUI [1]
- C0423907
Beskrivning
problems planning onset informant
Datatyp
integer
Alias
- UMLS CUI [1,1]
- C0423907
- UMLS CUI [1,2]
- C0868945
- UMLS CUI [1,3]
- C0332162
Beskrivning
making mistakes informant
Datatyp
boolean
Alias
- UMLS CUI [1]
- C1821936
Beskrivning
making mistakes onset informant
Datatyp
integer
Alias
- UMLS CUI [1,1]
- C1821936
- UMLS CUI [1,2]
- C0868945
- UMLS CUI [1,3]
- C0332162
Beskrivning
other mental deterioation informant
Datatyp
boolean
Alias
- UMLS CUI [1,1]
- C0234985
- UMLS CUI [1,2]
- C0205394
Beskrivning
other mental deterioation name informant
Datatyp
text
Alias
- UMLS CUI [1,1]
- C0234985
- UMLS CUI [1,2]
- C0205394
Beskrivning
other mental deterioation onset informant
Datatyp
integer
Alias
- UMLS CUI [1,1]
- C0234985
- UMLS CUI [1,2]
- C0205394
- UMLS CUI [1,3]
- C0868945
- UMLS CUI [1,4]
- C0332162
Beskrivning
personality change
Datatyp
boolean
Alias
- UMLS CUI [1]
- C0240735
Beskrivning
personality change onset
Datatyp
integer
Alias
- UMLS CUI [1,1]
- C0240735
- UMLS CUI [1,2]
- C0868945
- UMLS CUI [1,3]
- C0332162
Beskrivning
Mini mental state examination (MMSE)
Beskrivning
Number of correct answers
Datatyp
integer
Alias
- UMLS CUI [1]
- C0451306
- UMLS CUI [2]
- C0599544
Beskrivning
Number of correct answers
Datatyp
integer
Alias
- UMLS CUI [1]
- C0451306
- UMLS CUI [2]
- C2370999
Beskrivning
Number of correct answers
Datatyp
integer
Alias
- UMLS CUI [1]
- C0451306
- UMLS CUI [2]
- C0598851
Beskrivning
Number of correct answers
Datatyp
integer
Alias
- UMLS CUI [1]
- C0451306
- UMLS CUI [2]
- C0004268
Beskrivning
Number of correct answers
Datatyp
integer
Alias
- UMLS CUI [1]
- C0451306
- UMLS CUI [2]
- C0025260
Beskrivning
Number of correct answers
Datatyp
integer
Alias
- UMLS CUI [1]
- C0451306
- UMLS CUI [2]
- C0037817
Beskrivning
Number of correct answers
Datatyp
integer
Alias
- UMLS CUI [1]
- C0451306
- UMLS CUI [2]
- C0013113
Beskrivning
total score MMSE
Datatyp
integer
Alias
- UMLS CUI [1]
- C2225229
Beskrivning
Neuropsychologic testing
Beskrivning
Orientating sensory evaluation
Datatyp
text
Alias
- UMLS CUI [1]
- C1313969
Beskrivning
difficulties seeing
Datatyp
text
Alias
- UMLS CUI [1]
- C3665347
Beskrivning
visus
Datatyp
float
Alias
- UMLS CUI [1]
- C0042812
Beskrivning
start of test
Datatyp
time
Alias
- UMLS CUI [1]
- C0449244
Beskrivning
initials of head of test
Datatyp
text
Alias
- UMLS CUI [1]
- C2986440
Beskrivning
CERAD plus test battery
Datatyp
integer
Måttenheter
- Sum of correct words
Alias
- UMLS CUI [1,1]
- C2121096
- UMLS CUI [1,2]
- C0871945
Beskrivning
Boston naming test
Datatyp
integer
Måttenheter
- Sum of correct words
Alias
- UMLS CUI [1]
- C0451037
Beskrivning
Wordlist lerning
Datatyp
text
Alias
- UMLS CUI [1]
- C0456660
Beskrivning
first round of test right answers
Datatyp
integer
Alias
- UMLS CUI [1,1]
- C0456984
- UMLS CUI [1,2]
- C0456660
Beskrivning
second round of test right answers
Datatyp
integer
Alias
- UMLS CUI [1,1]
- C0456984
- UMLS CUI [1,2]
- C0456660
Beskrivning
third round of test right answers
Datatyp
integer
Alias
- UMLS CUI [1,1]
- C0456984
- UMLS CUI [1,2]
- C0456660
Beskrivning
first round of test intrusion
Datatyp
integer
Alias
- UMLS CUI [1,1]
- C0456984
- UMLS CUI [1,2]
- C0456660
Beskrivning
second round of test intrusions
Datatyp
integer
Alias
- UMLS CUI [1,1]
- C0456984
- UMLS CUI [1,2]
- C0456660
Beskrivning
third round of test intrusions
Datatyp
integer
Alias
- UMLS CUI [1,1]
- C0456984
- UMLS CUI [1,2]
- C0456660
Beskrivning
total score wordlist
Datatyp
integer
Beskrivning
Drawing figures
Datatyp
integer
Måttenheter
- no. of points
Alias
- UMLS CUI [1,1]
- C0456984
- UMLS CUI [1,2]
- C0204463
- UMLS CUI [1,3]
- C1282913
Beskrivning
drawing figures rhombus
Datatyp
integer
Måttenheter
- no. of points
Alias
- UMLS CUI [1,1]
- C0456984
- UMLS CUI [1,2]
- C0204463
Beskrivning
drawing figures rectangle
Datatyp
integer
Måttenheter
- no. of points
Alias
- UMLS CUI [1,1]
- C0204463
- UMLS CUI [1,2]
- C0205142
Beskrivning
drawing figures cube
Datatyp
integer
Måttenheter
- no. of points
Alias
- UMLS CUI [1,1]
- C0204463
- UMLS CUI [1,2]
- C1880194
Beskrivning
Wordlist recall
Datatyp
integer
Alias
- UMLS CUI [1,1]
- C0456984
- UMLS CUI [1,2]
- C0456660
Beskrivning
recalling wordlist intrusions
Datatyp
integer
Alias
- UMLS CUI [1,1]
- C0456984
- UMLS CUI [1,2]
- C0456660
Beskrivning
calculated
Datatyp
integer
Alias
- UMLS CUI [1,1]
- C0456984
- UMLS CUI [1,2]
- C0456660
Beskrivning
calculated
Datatyp
integer
Måttenheter
- %
Beskrivning
recognizing wordlist
Datatyp
integer
Alias
- UMLS CUI [1,1]
- C0456984
- UMLS CUI [1,2]
- C0456660
Beskrivning
recognizing wordlist as new
Datatyp
text
Alias
- UMLS CUI [1,1]
- C0456984
- UMLS CUI [1,2]
- C0456660
Beskrivning
calculated
Datatyp
integer
Måttenheter
- %
Beskrivning
recalling figures circle
Datatyp
integer
Måttenheter
- no. of points
Beskrivning
recalling figures rhombus
Datatyp
integer
Måttenheter
- no. of points
Beskrivning
recalling figures rectangle
Datatyp
integer
Måttenheter
- no. of points
Beskrivning
recalling figures cube
Datatyp
integer
Måttenheter
- no. of points
Beskrivning
calculated
Datatyp
integer
Måttenheter
- no. of points
Beskrivning
calculated
Datatyp
integer
Måttenheter
- %
Beskrivning
Phonematic fluency: S-words
Datatyp
integer
Måttenheter
- Sum of correct words
Beskrivning
Trail making test
Datatyp
integer
Måttenheter
- sec
Alias
- UMLS CUI [1]
- C0040604
Beskrivning
trail making test B
Datatyp
integer
Måttenheter
- sec
Alias
- UMLS CUI [1]
- C0040604
Beskrivning
calculated
Datatyp
float
Alias
- UMLS CUI [1]
- C0040604
Beskrivning
Wechsler Memory Scale (WMS-R)/Repeating numbers
Datatyp
integer
Alias
- UMLS CUI [1]
- C0451575
Beskrivning
WMS-R backwards
Datatyp
integer
Alias
- UMLS CUI [1]
- C0451575
Beskrivning
MWT-B
Datatyp
integer
Beskrivning
brief test of attention numbers
Datatyp
integer
Beskrivning
brief test of attention letters
Datatyp
integer
Beskrivning
calculated
Datatyp
integer
Beskrivning
BTA z-value
Datatyp
integer
Beskrivning
VOSP - Recognition of objects
Datatyp
integer
Alias
- UMLS CUI [1]
- C0599621
Beskrivning
VOSP pct
Datatyp
float
Måttenheter
- %
Alias
- UMLS CUI [1]
- C0599621
Beskrivning
Finding similarities
Datatyp
integer
Alias
- UMLS CUI [1]
- C2348205
Beskrivning
finding similarities z-value
Datatyp
float
Alias
- UMLS CUI [1]
- C2348205
Beskrivning
Comments
Datatyp
boolean
Alias
- UMLS CUI [1]
- C0520941
Beskrivning
test person refused tasks
Datatyp
boolean
Alias
- UMLS CUI [1]
- C1136454
Beskrivning
test person physical problems
Datatyp
boolean
Alias
- UMLS CUI [1]
- C0421228
Beskrivning
test person overchallenged
Datatyp
boolean
Alias
- UMLS CUI [1]
- C0338656
Beskrivning
test person language problem
Datatyp
boolean
Alias
- UMLS CUI [1]
- C0814953
Beskrivning
specification comment
Datatyp
text
Alias
- UMLS CUI [1]
- C0947611
Beskrivning
Details about performance of neuropsychologic examination
Datatyp
boolean
Alias
- UMLS CUI [1,1]
- C1512900
- UMLS CUI [1,2]
- C0027902
Beskrivning
performance deviation
Datatyp
boolean
Alias
- UMLS CUI [1,1]
- C0027902
- UMLS CUI [1,2]
- C1705236
Beskrivning
tasks not performed
Datatyp
boolean
Alias
- UMLS CUI [1]
- C0027902
Beskrivning
performance not conform
Datatyp
boolean
Alias
- UMLS CUI [1]
- C0027902
Beskrivning
e.g. TMT-B not performed, TMT-A interruption, result not valid
Datatyp
text
Alias
- UMLS CUI [1]
- C0947611
Beskrivning
Pill questionnaire
Beskrivning
pill questionnaire not done
Datatyp
boolean
Alias
- UMLS CUI [1,1]
- C0994475
- UMLS CUI [1,2]
- C0034394
- UMLS CUI [1,3]
- C1272696
Beskrivning
Part A: Questions for participant
Datatyp
boolean
Alias
- UMLS CUI [1]
- C2360065
Beskrivning
participant knows doses
Datatyp
boolean
Alias
- UMLS CUI [1]
- C0178602
Beskrivning
participant knows timetable of medications
Datatyp
boolean
Alias
- UMLS CUI [1]
- C3173975
Beskrivning
Yes->independent medication (end of test) No->continue with section B
Datatyp
boolean
Beskrivning
Part B1: Questions for the participant (assistance) Yes->continue with B2 No->continue with B2
Datatyp
boolean
Beskrivning
Part B2: Questions for relatives (if Section B1 'No' as answer)
Datatyp
boolean
Alias
- UMLS CUI [1,1]
- C0013227
- UMLS CUI [1,2]
- C0085862
Beskrivning
reminder for pill intake
Datatyp
boolean
Alias
- UMLS CUI [1]
- C0085519
Beskrivning
problems because of wrong medication
Datatyp
float
Alias
- UMLS CUI [1]
- C1657765
Beskrivning
Conclusive assessment for part B Yes->independent medication No->no independent medication
Datatyp
boolean
Beskrivning
Yes->independent medication No->no independent medication
Datatyp
boolean
Similar models
CRF Cognition Module Follow Up
- StudyEvent: ODM
C0233481 (UMLS CUI [1,2])
C0868945 (UMLS CUI [1,2])
C0332162 (UMLS CUI [1,3])
C1707455 (UMLS CUI [1,2])
C0027362 (UMLS CUI [1,3])
C3693724 (UMLS CUI [1,2])
C3693724 (UMLS CUI [1,2])
C0233481 (UMLS CUI [1,2])
C0868945 (UMLS CUI [1,2])
C0332162 (UMLS CUI [1,3])
C1707455 (UMLS CUI [1,2])
C0027362 (UMLS CUI [1,3])
C3693724 (UMLS CUI [1,2])
C3693724 (UMLS CUI [1,2])
C0233481 (UMLS CUI [1,2])
C0868945 (UMLS CUI [1,2])
C0332162 (UMLS CUI [1,3])
C1707455 (UMLS CUI [1,2])
C0027362 (UMLS CUI [1,3])
C3693724 (UMLS CUI [1,2])
C0233481 (UMLS CUI [1,2])
C0868945 (UMLS CUI [1,2])
C0332162 (UMLS CUI [1,3])
C1707455 (UMLS CUI [1,2])
C0027362 (UMLS CUI [1,3])
C3693724 (UMLS CUI [1,2])
C3693724 (UMLS CUI [1,2])
C0205394 (UMLS CUI [1,2])
C0205394 (UMLS CUI [1,2])
C0205394 (UMLS CUI [1,2])
C0233481 (UMLS CUI [1,3])
C0205394 (UMLS CUI [1,2])
C0868945 (UMLS CUI [1,3])
C0332162 (UMLS CUI [1,4])
C0205394 (UMLS CUI [1,2])
C1707455 (UMLS CUI [1,3])
C0027362 (UMLS CUI [1,4])
C0205394 (UMLS CUI [1,2])
C3693724 (UMLS CUI [1,3])
C0205394 (UMLS CUI [1,2])
C3693724 (UMLS CUI [1,3])
C0868945 (UMLS CUI [1,2])
C0332162 (UMLS CUI [1,3])
C0868945 (UMLS CUI [1,2])
C0332162 (UMLS CUI [1,3])
C0868945 (UMLS CUI [1,2])
C0332162 (UMLS CUI [1,3])
C0868945 (UMLS CUI [1,2])
C0332162 (UMLS CUI [1,3])
C0205394 (UMLS CUI [1,2])
C0205394 (UMLS CUI [1,2])
C0205394 (UMLS CUI [1,2])
C0868945 (UMLS CUI [1,3])
C0332162 (UMLS CUI [1,4])
C0868945 (UMLS CUI [1,2])
C0332162 (UMLS CUI [1,3])
C0599544 (UMLS CUI [2])
C2370999 (UMLS CUI [2])
C0598851 (UMLS CUI [2])
C0004268 (UMLS CUI [2])
C0025260 (UMLS CUI [2])
C0037817 (UMLS CUI [2])
C0013113 (UMLS CUI [2])
C0871945 (UMLS CUI [1,2])
C0456660 (UMLS CUI [1,2])
C0456660 (UMLS CUI [1,2])
C0456660 (UMLS CUI [1,2])
C0456660 (UMLS CUI [1,2])
C0456660 (UMLS CUI [1,2])
C0456660 (UMLS CUI [1,2])
C0204463 (UMLS CUI [1,2])
C1282913 (UMLS CUI [1,3])
C0204463 (UMLS CUI [1,2])
C0205142 (UMLS CUI [1,2])
C1880194 (UMLS CUI [1,2])
C0456660 (UMLS CUI [1,2])
C0456660 (UMLS CUI [1,2])
C0456660 (UMLS CUI [1,2])
C0456660 (UMLS CUI [1,2])
C0456660 (UMLS CUI [1,2])
C0027902 (UMLS CUI [1,2])
C1705236 (UMLS CUI [1,2])
C0034394 (UMLS CUI [1,2])
C1272696 (UMLS CUI [1,3])
C0085862 (UMLS CUI [1,2])