ID
13987
Beschrijving
Background and Purpose: The purpose of the DESCRIBE study is to document the natural course of diseases in context of medical care of neurodegenerative disorders as well as cerebrovascular diseases and to perform phenotyping of the test persons. Disease-spanning analyses of the measured clincial data, the results of the imaging processes, results of the analysis of the biometerials including genetic analysis are planed. Principal Investigator: Prof. Klockgether, Dr. Spottke DZNE, Bonn. Source: DESCRIBE-Studie http://www.dzne.de/forschung/forschungsbereiche/klinische-forschung/studien/describe-bn006.html Participating Study Sites: Berlin, Bonn, Göttingen, Dresden, Köln, Magdeburg, München, Rostock/Greifswald, Tübingen
Link
http://www.dzne.de/forschung/forschungsbereiche/klinische-forschung/studien/describe-bn006.html
Trefwoorden
Versies (1)
- 21-03-16 21-03-16 -
Geüploaded op
21 maart 2016
DOI
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Licentie
Creative Commons BY-NC 3.0
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DESCRIBE (DZNE – Clinical Register Study of neurodegenerative Disorders) CRF Cognition Module Follow-Up
CRF Cognition Module Follow Up
- StudyEvent: ODM
Beschrijving
Anamnesis cognition 1: Subjective cognitive decline
Beschrijving
Structured interview about cognitive disorders. All questions need to be asked using original wording. The physician aks follow-up questions for every question that was affirmed by the participant. -> Now I want to aks you some question, to understand the sort of complaints correctly:
Datatype
boolean
Alias
- UMLS CUI [1]
- C0233794
Beschrijving
memory impairment worry
Datatype
boolean
Alias
- UMLS CUI [1,1]
- C0233794
- UMLS CUI [1,2]
- C0233481
Beschrijving
memory impairment onset
Datatype
integer
Alias
- UMLS CUI [1,1]
- C0233794
- UMLS CUI [1,2]
- C0868945
- UMLS CUI [1,3]
- C0332162
Beschrijving
memory impairment age
Datatype
boolean
Alias
- UMLS CUI [1,1]
- C0233794
- UMLS CUI [1,2]
- C1707455
- UMLS CUI [1,3]
- C0027362
Beschrijving
memory impairment consult
Datatype
boolean
Alias
- UMLS CUI [1,1]
- C0233794
- UMLS CUI [1,2]
- C3693724
Beschrijving
memory impairment consult time
Datatype
integer
Maateenheden
- months
Alias
- UMLS CUI [1,1]
- C0233794
- UMLS CUI [1,2]
- C3693724
Beschrijving
word finding
Datatype
boolean
Alias
- UMLS CUI [1]
- C0454643
Beschrijving
word finding worry
Datatype
boolean
Alias
- UMLS CUI [1,1]
- C0454643
- UMLS CUI [1,2]
- C0233481
Beschrijving
word finding onset
Datatype
integer
Alias
- UMLS CUI [1,1]
- C0454643
- UMLS CUI [1,2]
- C0868945
- UMLS CUI [1,3]
- C0332162
Beschrijving
word finding age
Datatype
boolean
Alias
- UMLS CUI [1,1]
- C0454643
- UMLS CUI [1,2]
- C1707455
- UMLS CUI [1,3]
- C0027362
Beschrijving
word finding consult
Datatype
boolean
Alias
- UMLS CUI [1,1]
- C0454643
- UMLS CUI [1,2]
- C3693724
Beschrijving
word finding consult time
Datatype
integer
Maateenheden
- months
Alias
- UMLS CUI [1,1]
- C0454643
- UMLS CUI [1,2]
- C3693724
Beschrijving
problems planning
Datatype
boolean
Alias
- UMLS CUI [1]
- C0423907
Beschrijving
problems planning worry
Datatype
boolean
Alias
- UMLS CUI [1,1]
- C0423907
- UMLS CUI [1,2]
- C0233481
Beschrijving
problems planning onset
Datatype
integer
Alias
- UMLS CUI [1,1]
- C0423907
- UMLS CUI [1,2]
- C0868945
- UMLS CUI [1,3]
- C0332162
Beschrijving
problems planning age
Datatype
boolean
Alias
- UMLS CUI [1,1]
- C0423907
- UMLS CUI [1,2]
- C1707455
- UMLS CUI [1,3]
- C0027362
Beschrijving
problems planning consult
Datatype
boolean
Alias
- UMLS CUI [1,1]
- C0423907
- UMLS CUI [1,2]
- C3693724
Beschrijving
problems planning consult time
Datatype
integer
Maateenheden
- months
Beschrijving
making mistakes
Datatype
boolean
Alias
- UMLS CUI [1]
- C1821936
Beschrijving
making mistakes worry
Datatype
boolean
Alias
- UMLS CUI [1,1]
- C1821936
- UMLS CUI [1,2]
- C0233481
Beschrijving
making mistakes onset
Datatype
integer
Alias
- UMLS CUI [1,1]
- C1821936
- UMLS CUI [1,2]
- C0868945
- UMLS CUI [1,3]
- C0332162
Beschrijving
making mistakes age
Datatype
boolean
Alias
- UMLS CUI [1,1]
- C1821936
- UMLS CUI [1,2]
- C1707455
- UMLS CUI [1,3]
- C0027362
Beschrijving
making mistakes consult
Datatype
boolean
Alias
- UMLS CUI [1,1]
- C1821936
- UMLS CUI [1,2]
- C3693724
Beschrijving
making mistakes consult time
Datatype
integer
Maateenheden
- months
Alias
- UMLS CUI [1,1]
- C1821936
- UMLS CUI [1,2]
- C3693724
Beschrijving
other mental deterioation
Datatype
boolean
Alias
- UMLS CUI [1,1]
- C0234985
- UMLS CUI [1,2]
- C0205394
Beschrijving
other mental deterioation name
Datatype
text
Alias
- UMLS CUI [1,1]
- C0234985
- UMLS CUI [1,2]
- C0205394
Beschrijving
other mental deterioation worry
Datatype
boolean
Alias
- UMLS CUI [1,1]
- C0234985
- UMLS CUI [1,2]
- C0205394
- UMLS CUI [1,3]
- C0233481
Beschrijving
other mental deterioation onset
Datatype
integer
Alias
- UMLS CUI [1,1]
- C0234985
- UMLS CUI [1,2]
- C0205394
- UMLS CUI [1,3]
- C0868945
- UMLS CUI [1,4]
- C0332162
Beschrijving
other mental deterioation age
Datatype
boolean
Alias
- UMLS CUI [1,1]
- C0234985
- UMLS CUI [1,2]
- C0205394
- UMLS CUI [1,3]
- C1707455
- UMLS CUI [1,4]
- C0027362
Beschrijving
other mental deterioation consult
Datatype
boolean
Alias
- UMLS CUI [1,1]
- C0234985
- UMLS CUI [1,2]
- C0205394
- UMLS CUI [1,3]
- C3693724
Beschrijving
other mental deterioation consult time
Datatype
integer
Maateenheden
- months
Alias
- UMLS CUI [1,1]
- C0234985
- UMLS CUI [1,2]
- C0205394
- UMLS CUI [1,3]
- C3693724
Beschrijving
Anamnesis cognition 2: Observed cognitive decline
Beschrijving
Quetions for informant
Datatype
text
Alias
- UMLS CUI [1]
- C3842888
Beschrijving
informant
Datatype
text
Alias
- UMLS CUI [1]
- C1550484
Beschrijving
All questions need to be ask using original wording. Please answer for each main question answered with 'yes' for onset.
Datatype
boolean
Alias
- UMLS CUI [1]
- C0233794
Beschrijving
memory impairment onset informant
Datatype
integer
Alias
- UMLS CUI [1,1]
- C0233794
- UMLS CUI [1,2]
- C0868945
- UMLS CUI [1,3]
- C0332162
Beschrijving
word finding informant
Datatype
boolean
Alias
- UMLS CUI [1]
- C0454643
Beschrijving
word finding onset informant
Datatype
integer
Alias
- UMLS CUI [1,1]
- C0454643
- UMLS CUI [1,2]
- C0868945
- UMLS CUI [1,3]
- C0332162
Beschrijving
problems planning informant
Datatype
boolean
Alias
- UMLS CUI [1]
- C0423907
Beschrijving
problems planning onset informant
Datatype
integer
Alias
- UMLS CUI [1,1]
- C0423907
- UMLS CUI [1,2]
- C0868945
- UMLS CUI [1,3]
- C0332162
Beschrijving
making mistakes informant
Datatype
boolean
Alias
- UMLS CUI [1]
- C1821936
Beschrijving
making mistakes onset informant
Datatype
integer
Alias
- UMLS CUI [1,1]
- C1821936
- UMLS CUI [1,2]
- C0868945
- UMLS CUI [1,3]
- C0332162
Beschrijving
other mental deterioation informant
Datatype
boolean
Alias
- UMLS CUI [1,1]
- C0234985
- UMLS CUI [1,2]
- C0205394
Beschrijving
other mental deterioation name informant
Datatype
text
Alias
- UMLS CUI [1,1]
- C0234985
- UMLS CUI [1,2]
- C0205394
Beschrijving
other mental deterioation onset informant
Datatype
integer
Alias
- UMLS CUI [1,1]
- C0234985
- UMLS CUI [1,2]
- C0205394
- UMLS CUI [1,3]
- C0868945
- UMLS CUI [1,4]
- C0332162
Beschrijving
personality change
Datatype
boolean
Alias
- UMLS CUI [1]
- C0240735
Beschrijving
personality change onset
Datatype
integer
Alias
- UMLS CUI [1,1]
- C0240735
- UMLS CUI [1,2]
- C0868945
- UMLS CUI [1,3]
- C0332162
Beschrijving
Mini mental state examination (MMSE)
Beschrijving
Number of correct answers
Datatype
integer
Alias
- UMLS CUI [1]
- C0451306
- UMLS CUI [2]
- C0599544
Beschrijving
Number of correct answers
Datatype
integer
Alias
- UMLS CUI [1]
- C0451306
- UMLS CUI [2]
- C2370999
Beschrijving
Number of correct answers
Datatype
integer
Alias
- UMLS CUI [1]
- C0451306
- UMLS CUI [2]
- C0598851
Beschrijving
Number of correct answers
Datatype
integer
Alias
- UMLS CUI [1]
- C0451306
- UMLS CUI [2]
- C0004268
Beschrijving
Number of correct answers
Datatype
integer
Alias
- UMLS CUI [1]
- C0451306
- UMLS CUI [2]
- C0025260
Beschrijving
Number of correct answers
Datatype
integer
Alias
- UMLS CUI [1]
- C0451306
- UMLS CUI [2]
- C0037817
Beschrijving
Number of correct answers
Datatype
integer
Alias
- UMLS CUI [1]
- C0451306
- UMLS CUI [2]
- C0013113
Beschrijving
total score MMSE
Datatype
integer
Alias
- UMLS CUI [1]
- C2225229
Beschrijving
Neuropsychologic testing
Beschrijving
Orientating sensory evaluation
Datatype
text
Alias
- UMLS CUI [1]
- C1313969
Beschrijving
difficulties seeing
Datatype
text
Alias
- UMLS CUI [1]
- C3665347
Beschrijving
visus
Datatype
float
Alias
- UMLS CUI [1]
- C0042812
Beschrijving
start of test
Datatype
time
Alias
- UMLS CUI [1]
- C0449244
Beschrijving
initials of head of test
Datatype
text
Alias
- UMLS CUI [1]
- C2986440
Beschrijving
CERAD plus test battery
Datatype
integer
Maateenheden
- Sum of correct words
Alias
- UMLS CUI [1,1]
- C2121096
- UMLS CUI [1,2]
- C0871945
Beschrijving
Boston naming test
Datatype
integer
Maateenheden
- Sum of correct words
Alias
- UMLS CUI [1]
- C0451037
Beschrijving
Wordlist lerning
Datatype
text
Alias
- UMLS CUI [1]
- C0456660
Beschrijving
first round of test right answers
Datatype
integer
Alias
- UMLS CUI [1,1]
- C0456984
- UMLS CUI [1,2]
- C0456660
Beschrijving
second round of test right answers
Datatype
integer
Alias
- UMLS CUI [1,1]
- C0456984
- UMLS CUI [1,2]
- C0456660
Beschrijving
third round of test right answers
Datatype
integer
Alias
- UMLS CUI [1,1]
- C0456984
- UMLS CUI [1,2]
- C0456660
Beschrijving
first round of test intrusion
Datatype
integer
Alias
- UMLS CUI [1,1]
- C0456984
- UMLS CUI [1,2]
- C0456660
Beschrijving
second round of test intrusions
Datatype
integer
Alias
- UMLS CUI [1,1]
- C0456984
- UMLS CUI [1,2]
- C0456660
Beschrijving
third round of test intrusions
Datatype
integer
Alias
- UMLS CUI [1,1]
- C0456984
- UMLS CUI [1,2]
- C0456660
Beschrijving
total score wordlist
Datatype
integer
Beschrijving
Drawing figures
Datatype
integer
Maateenheden
- no. of points
Alias
- UMLS CUI [1,1]
- C0456984
- UMLS CUI [1,2]
- C0204463
- UMLS CUI [1,3]
- C1282913
Beschrijving
drawing figures rhombus
Datatype
integer
Maateenheden
- no. of points
Alias
- UMLS CUI [1,1]
- C0456984
- UMLS CUI [1,2]
- C0204463
Beschrijving
drawing figures rectangle
Datatype
integer
Maateenheden
- no. of points
Alias
- UMLS CUI [1,1]
- C0204463
- UMLS CUI [1,2]
- C0205142
Beschrijving
drawing figures cube
Datatype
integer
Maateenheden
- no. of points
Alias
- UMLS CUI [1,1]
- C0204463
- UMLS CUI [1,2]
- C1880194
Beschrijving
Wordlist recall
Datatype
integer
Alias
- UMLS CUI [1,1]
- C0456984
- UMLS CUI [1,2]
- C0456660
Beschrijving
recalling wordlist intrusions
Datatype
integer
Alias
- UMLS CUI [1,1]
- C0456984
- UMLS CUI [1,2]
- C0456660
Beschrijving
calculated
Datatype
integer
Alias
- UMLS CUI [1,1]
- C0456984
- UMLS CUI [1,2]
- C0456660
Beschrijving
calculated
Datatype
integer
Maateenheden
- %
Beschrijving
recognizing wordlist
Datatype
integer
Alias
- UMLS CUI [1,1]
- C0456984
- UMLS CUI [1,2]
- C0456660
Beschrijving
recognizing wordlist as new
Datatype
text
Alias
- UMLS CUI [1,1]
- C0456984
- UMLS CUI [1,2]
- C0456660
Beschrijving
calculated
Datatype
integer
Maateenheden
- %
Beschrijving
recalling figures circle
Datatype
integer
Maateenheden
- no. of points
Beschrijving
recalling figures rhombus
Datatype
integer
Maateenheden
- no. of points
Beschrijving
recalling figures rectangle
Datatype
integer
Maateenheden
- no. of points
Beschrijving
recalling figures cube
Datatype
integer
Maateenheden
- no. of points
Beschrijving
calculated
Datatype
integer
Maateenheden
- no. of points
Beschrijving
calculated
Datatype
integer
Maateenheden
- %
Beschrijving
Phonematic fluency: S-words
Datatype
integer
Maateenheden
- Sum of correct words
Beschrijving
Trail making test
Datatype
integer
Maateenheden
- sec
Alias
- UMLS CUI [1]
- C0040604
Beschrijving
trail making test B
Datatype
integer
Maateenheden
- sec
Alias
- UMLS CUI [1]
- C0040604
Beschrijving
calculated
Datatype
float
Alias
- UMLS CUI [1]
- C0040604
Beschrijving
Wechsler Memory Scale (WMS-R)/Repeating numbers
Datatype
integer
Alias
- UMLS CUI [1]
- C0451575
Beschrijving
WMS-R backwards
Datatype
integer
Alias
- UMLS CUI [1]
- C0451575
Beschrijving
MWT-B
Datatype
integer
Beschrijving
brief test of attention numbers
Datatype
integer
Beschrijving
brief test of attention letters
Datatype
integer
Beschrijving
calculated
Datatype
integer
Beschrijving
BTA z-value
Datatype
integer
Beschrijving
VOSP - Recognition of objects
Datatype
integer
Alias
- UMLS CUI [1]
- C0599621
Beschrijving
VOSP pct
Datatype
float
Maateenheden
- %
Alias
- UMLS CUI [1]
- C0599621
Beschrijving
Finding similarities
Datatype
integer
Alias
- UMLS CUI [1]
- C2348205
Beschrijving
finding similarities z-value
Datatype
float
Alias
- UMLS CUI [1]
- C2348205
Beschrijving
Comments
Datatype
boolean
Alias
- UMLS CUI [1]
- C0520941
Beschrijving
test person refused tasks
Datatype
boolean
Alias
- UMLS CUI [1]
- C1136454
Beschrijving
test person physical problems
Datatype
boolean
Alias
- UMLS CUI [1]
- C0421228
Beschrijving
test person overchallenged
Datatype
boolean
Alias
- UMLS CUI [1]
- C0338656
Beschrijving
test person language problem
Datatype
boolean
Alias
- UMLS CUI [1]
- C0814953
Beschrijving
specification comment
Datatype
text
Alias
- UMLS CUI [1]
- C0947611
Beschrijving
Details about performance of neuropsychologic examination
Datatype
boolean
Alias
- UMLS CUI [1,1]
- C1512900
- UMLS CUI [1,2]
- C0027902
Beschrijving
performance deviation
Datatype
boolean
Alias
- UMLS CUI [1,1]
- C0027902
- UMLS CUI [1,2]
- C1705236
Beschrijving
tasks not performed
Datatype
boolean
Alias
- UMLS CUI [1]
- C0027902
Beschrijving
performance not conform
Datatype
boolean
Alias
- UMLS CUI [1]
- C0027902
Beschrijving
e.g. TMT-B not performed, TMT-A interruption, result not valid
Datatype
text
Alias
- UMLS CUI [1]
- C0947611
Beschrijving
Pill questionnaire
Beschrijving
pill questionnaire not done
Datatype
boolean
Alias
- UMLS CUI [1,1]
- C0994475
- UMLS CUI [1,2]
- C0034394
- UMLS CUI [1,3]
- C1272696
Beschrijving
Part A: Questions for participant
Datatype
boolean
Alias
- UMLS CUI [1]
- C2360065
Beschrijving
participant knows doses
Datatype
boolean
Alias
- UMLS CUI [1]
- C0178602
Beschrijving
participant knows timetable of medications
Datatype
boolean
Alias
- UMLS CUI [1]
- C3173975
Beschrijving
Yes->independent medication (end of test) No->continue with section B
Datatype
boolean
Beschrijving
Part B1: Questions for the participant (assistance) Yes->continue with B2 No->continue with B2
Datatype
boolean
Beschrijving
Part B2: Questions for relatives (if Section B1 'No' as answer)
Datatype
boolean
Alias
- UMLS CUI [1,1]
- C0013227
- UMLS CUI [1,2]
- C0085862
Beschrijving
reminder for pill intake
Datatype
boolean
Alias
- UMLS CUI [1]
- C0085519
Beschrijving
problems because of wrong medication
Datatype
float
Alias
- UMLS CUI [1]
- C1657765
Beschrijving
Conclusive assessment for part B Yes->independent medication No->no independent medication
Datatype
boolean
Beschrijving
Yes->independent medication No->no independent medication
Datatype
boolean
Similar models
CRF Cognition Module Follow Up
- StudyEvent: ODM
C0233481 (UMLS CUI [1,2])
C0868945 (UMLS CUI [1,2])
C0332162 (UMLS CUI [1,3])
C1707455 (UMLS CUI [1,2])
C0027362 (UMLS CUI [1,3])
C3693724 (UMLS CUI [1,2])
C3693724 (UMLS CUI [1,2])
C0233481 (UMLS CUI [1,2])
C0868945 (UMLS CUI [1,2])
C0332162 (UMLS CUI [1,3])
C1707455 (UMLS CUI [1,2])
C0027362 (UMLS CUI [1,3])
C3693724 (UMLS CUI [1,2])
C3693724 (UMLS CUI [1,2])
C0233481 (UMLS CUI [1,2])
C0868945 (UMLS CUI [1,2])
C0332162 (UMLS CUI [1,3])
C1707455 (UMLS CUI [1,2])
C0027362 (UMLS CUI [1,3])
C3693724 (UMLS CUI [1,2])
C0233481 (UMLS CUI [1,2])
C0868945 (UMLS CUI [1,2])
C0332162 (UMLS CUI [1,3])
C1707455 (UMLS CUI [1,2])
C0027362 (UMLS CUI [1,3])
C3693724 (UMLS CUI [1,2])
C3693724 (UMLS CUI [1,2])
C0205394 (UMLS CUI [1,2])
C0205394 (UMLS CUI [1,2])
C0205394 (UMLS CUI [1,2])
C0233481 (UMLS CUI [1,3])
C0205394 (UMLS CUI [1,2])
C0868945 (UMLS CUI [1,3])
C0332162 (UMLS CUI [1,4])
C0205394 (UMLS CUI [1,2])
C1707455 (UMLS CUI [1,3])
C0027362 (UMLS CUI [1,4])
C0205394 (UMLS CUI [1,2])
C3693724 (UMLS CUI [1,3])
C0205394 (UMLS CUI [1,2])
C3693724 (UMLS CUI [1,3])
C0868945 (UMLS CUI [1,2])
C0332162 (UMLS CUI [1,3])
C0868945 (UMLS CUI [1,2])
C0332162 (UMLS CUI [1,3])
C0868945 (UMLS CUI [1,2])
C0332162 (UMLS CUI [1,3])
C0868945 (UMLS CUI [1,2])
C0332162 (UMLS CUI [1,3])
C0205394 (UMLS CUI [1,2])
C0205394 (UMLS CUI [1,2])
C0205394 (UMLS CUI [1,2])
C0868945 (UMLS CUI [1,3])
C0332162 (UMLS CUI [1,4])
C0868945 (UMLS CUI [1,2])
C0332162 (UMLS CUI [1,3])
C0599544 (UMLS CUI [2])
C2370999 (UMLS CUI [2])
C0598851 (UMLS CUI [2])
C0004268 (UMLS CUI [2])
C0025260 (UMLS CUI [2])
C0037817 (UMLS CUI [2])
C0013113 (UMLS CUI [2])
C0871945 (UMLS CUI [1,2])
C0456660 (UMLS CUI [1,2])
C0456660 (UMLS CUI [1,2])
C0456660 (UMLS CUI [1,2])
C0456660 (UMLS CUI [1,2])
C0456660 (UMLS CUI [1,2])
C0456660 (UMLS CUI [1,2])
C0204463 (UMLS CUI [1,2])
C1282913 (UMLS CUI [1,3])
C0204463 (UMLS CUI [1,2])
C0205142 (UMLS CUI [1,2])
C1880194 (UMLS CUI [1,2])
C0456660 (UMLS CUI [1,2])
C0456660 (UMLS CUI [1,2])
C0456660 (UMLS CUI [1,2])
C0456660 (UMLS CUI [1,2])
C0456660 (UMLS CUI [1,2])
C0027902 (UMLS CUI [1,2])
C1705236 (UMLS CUI [1,2])
C0034394 (UMLS CUI [1,2])
C1272696 (UMLS CUI [1,3])
C0085862 (UMLS CUI [1,2])