ID

13987

Descrizione

Background and Purpose: The purpose of the DESCRIBE study is to document the natural course of diseases in context of medical care of neurodegenerative disorders as well as cerebrovascular diseases and to perform phenotyping of the test persons. Disease-spanning analyses of the measured clincial data, the results of the imaging processes, results of the analysis of the biometerials including genetic analysis are planed. Principal Investigator: Prof. Klockgether, Dr. Spottke DZNE, Bonn. Source: DESCRIBE-Studie http://www.dzne.de/forschung/forschungsbereiche/klinische-forschung/studien/describe-bn006.html Participating Study Sites: Berlin, Bonn, Göttingen, Dresden, Köln, Magdeburg, München, Rostock/Greifswald, Tübingen

collegamento

http://www.dzne.de/forschung/forschungsbereiche/klinische-forschung/studien/describe-bn006.html

Keywords

  1. 21/03/16 21/03/16 -
Caricato su

21 marzo 2016

DOI

Per favore, per richiedere un accesso.

Licenza

Creative Commons BY-NC 3.0

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DESCRIBE (DZNE – Clinical Register Study of neurodegenerative Disorders) CRF Cognition Module Follow-Up

CRF Cognition Module Follow Up

Date of visit
Descrizione

Date of visit

Study-ID:
Descrizione

study id

Tipo di dati

text

Alias
UMLS CUI [1]
C2826693
Date of visit
Descrizione

date of visit

Tipo di dati

date

Alias
UMLS CUI [1]
C1320303
Follow-Up:
Descrizione

visit name

Tipo di dati

text

Alias
UMLS CUI [1]
C1522577
Anamnesis cognition 1: Subjective cognitive decline
Descrizione

Anamnesis cognition 1: Subjective cognitive decline

1. Did your memory changed for the worse?
Descrizione

Structured interview about cognitive disorders. All questions need to be asked using original wording. The physician aks follow-up questions for every question that was affirmed by the participant. -> Now I want to aks you some question, to understand the sort of complaints correctly:

Tipo di dati

boolean

Alias
UMLS CUI [1]
C0233794
A. If 'yes', does this make you worry?
Descrizione

memory impairment worry

Tipo di dati

boolean

Alias
UMLS CUI [1,1]
C0233794
UMLS CUI [1,2]
C0233481
B. If 'yes', when did deterioration start?
Descrizione

memory impairment onset

Tipo di dati

integer

Alias
UMLS CUI [1,1]
C0233794
UMLS CUI [1,2]
C0868945
UMLS CUI [1,3]
C0332162
C. If 'yes', is your ability in this section worse than of other persons your age?
Descrizione

memory impairment age

Tipo di dati

boolean

Alias
UMLS CUI [1,1]
C0233794
UMLS CUI [1,2]
C1707455
UMLS CUI [1,3]
C0027362
D. If 'yes', have you ever consulted or talked to your doctor about these problems?
Descrizione

memory impairment consult

Tipo di dati

boolean

Alias
UMLS CUI [1,1]
C0233794
UMLS CUI [1,2]
C3693724
E. If 'yes', when for the first time?
Descrizione

memory impairment consult time

Tipo di dati

integer

Unità di misura
  • months
Alias
UMLS CUI [1,1]
C0233794
UMLS CUI [1,2]
C3693724
months
2. Do you have to grope for words more often than before?
Descrizione

word finding

Tipo di dati

boolean

Alias
UMLS CUI [1]
C0454643
A. If 'yes', does this make you worry?
Descrizione

word finding worry

Tipo di dati

boolean

Alias
UMLS CUI [1,1]
C0454643
UMLS CUI [1,2]
C0233481
B. If 'yes', when did deterioration start?
Descrizione

word finding onset

Tipo di dati

integer

Alias
UMLS CUI [1,1]
C0454643
UMLS CUI [1,2]
C0868945
UMLS CUI [1,3]
C0332162
C. If 'yes', is your ability in this section worse than of other persons your age?
Descrizione

word finding age

Tipo di dati

boolean

Alias
UMLS CUI [1,1]
C0454643
UMLS CUI [1,2]
C1707455
UMLS CUI [1,3]
C0027362
D. If 'yes', have you ever consulted or talked to your doctor about these problems?
Descrizione

word finding consult

Tipo di dati

boolean

Alias
UMLS CUI [1,1]
C0454643
UMLS CUI [1,2]
C3693724
E. If 'yes', when for the first time?
Descrizione

word finding consult time

Tipo di dati

integer

Unità di misura
  • months
Alias
UMLS CUI [1,1]
C0454643
UMLS CUI [1,2]
C3693724
months
3. Do you have more often problems planning forward-thinking or keeping order?
Descrizione

problems planning

Tipo di dati

boolean

Alias
UMLS CUI [1]
C0423907
A. If 'yes', does this make you worry?
Descrizione

problems planning worry

Tipo di dati

boolean

Alias
UMLS CUI [1,1]
C0423907
UMLS CUI [1,2]
C0233481
B. If 'yes', when did deterioration start?
Descrizione

problems planning onset

Tipo di dati

integer

Alias
UMLS CUI [1,1]
C0423907
UMLS CUI [1,2]
C0868945
UMLS CUI [1,3]
C0332162
C. If 'yes', is your ability in this section worse than of other persons your age?
Descrizione

problems planning age

Tipo di dati

boolean

Alias
UMLS CUI [1,1]
C0423907
UMLS CUI [1,2]
C1707455
UMLS CUI [1,3]
C0027362
D. If 'yes', have you ever consulted or talked to your doctor about these problems?
Descrizione

problems planning consult

Tipo di dati

boolean

Alias
UMLS CUI [1,1]
C0423907
UMLS CUI [1,2]
C3693724
E. If 'yes', when for the first time?
Descrizione

problems planning consult time

Tipo di dati

integer

Unità di misura
  • months
months
4. Do you make mistakes more frequently, if you not fully concentrate on one thing?
Descrizione

making mistakes

Tipo di dati

boolean

Alias
UMLS CUI [1]
C1821936
A. If 'yes', does this make you worry?
Descrizione

making mistakes worry

Tipo di dati

boolean

Alias
UMLS CUI [1,1]
C1821936
UMLS CUI [1,2]
C0233481
B. If 'yes', when did deterioration start?
Descrizione

making mistakes onset

Tipo di dati

integer

Alias
UMLS CUI [1,1]
C1821936
UMLS CUI [1,2]
C0868945
UMLS CUI [1,3]
C0332162
C. If 'yes', is your ability in this section worse than of other persons your age?
Descrizione

making mistakes age

Tipo di dati

boolean

Alias
UMLS CUI [1,1]
C1821936
UMLS CUI [1,2]
C1707455
UMLS CUI [1,3]
C0027362
D. If 'yes', have you ever consulted or talked to your doctor about these problems?
Descrizione

making mistakes consult

Tipo di dati

boolean

Alias
UMLS CUI [1,1]
C1821936
UMLS CUI [1,2]
C3693724
E. If 'yes', when for the first time?
Descrizione

making mistakes consult time

Tipo di dati

integer

Unità di misura
  • months
Alias
UMLS CUI [1,1]
C1821936
UMLS CUI [1,2]
C3693724
months
5. Did you notice any other mental deterioration? In which sections?
Descrizione

other mental deterioation

Tipo di dati

boolean

Alias
UMLS CUI [1,1]
C0234985
UMLS CUI [1,2]
C0205394
Other mental deterioation:
Descrizione

other mental deterioation name

Tipo di dati

text

Alias
UMLS CUI [1,1]
C0234985
UMLS CUI [1,2]
C0205394
A. If 'yes', does this make you worry?
Descrizione

other mental deterioation worry

Tipo di dati

boolean

Alias
UMLS CUI [1,1]
C0234985
UMLS CUI [1,2]
C0205394
UMLS CUI [1,3]
C0233481
B. If 'yes', when did deterioration start?
Descrizione

other mental deterioation onset

Tipo di dati

integer

Alias
UMLS CUI [1,1]
C0234985
UMLS CUI [1,2]
C0205394
UMLS CUI [1,3]
C0868945
UMLS CUI [1,4]
C0332162
C. If 'yes', is your ability in this section worse than of other persons your age?
Descrizione

other mental deterioation age

Tipo di dati

boolean

Alias
UMLS CUI [1,1]
C0234985
UMLS CUI [1,2]
C0205394
UMLS CUI [1,3]
C1707455
UMLS CUI [1,4]
C0027362
D. If 'yes', have you ever consulted or talked to your doctor about these problems?
Descrizione

other mental deterioation consult

Tipo di dati

boolean

Alias
UMLS CUI [1,1]
C0234985
UMLS CUI [1,2]
C0205394
UMLS CUI [1,3]
C3693724
E. If 'yes', when for the first time?
Descrizione

other mental deterioation consult time

Tipo di dati

integer

Unità di misura
  • months
Alias
UMLS CUI [1,1]
C0234985
UMLS CUI [1,2]
C0205394
UMLS CUI [1,3]
C3693724
months
Anamnesis cognition 2: Observed cognitive decline
Descrizione

Anamnesis cognition 2: Observed cognitive decline

Presence of informant (Questions may be asked while participant is present)
Descrizione

Quetions for informant

Tipo di dati

text

Alias
UMLS CUI [1]
C3842888
Informations are reported by: (only one answer)
Descrizione

informant

Tipo di dati

text

Alias
UMLS CUI [1]
C1550484
1. Did the memory of the participant change for the worse?
Descrizione

All questions need to be ask using original wording. Please answer for each main question answered with 'yes' for onset.

Tipo di dati

boolean

Alias
UMLS CUI [1]
C0233794
Start of deterioation:
Descrizione

memory impairment onset informant

Tipo di dati

integer

Alias
UMLS CUI [1,1]
C0233794
UMLS CUI [1,2]
C0868945
UMLS CUI [1,3]
C0332162
2. Does the participant have frequently problems finding words?
Descrizione

word finding informant

Tipo di dati

boolean

Alias
UMLS CUI [1]
C0454643
Start of deterioation:
Descrizione

word finding onset informant

Tipo di dati

integer

Alias
UMLS CUI [1,1]
C0454643
UMLS CUI [1,2]
C0868945
UMLS CUI [1,3]
C0332162
3. Does the participant have more often problems planning forward-thinking or keeping order?
Descrizione

problems planning informant

Tipo di dati

boolean

Alias
UMLS CUI [1]
C0423907
Start of deterioation:
Descrizione

problems planning onset informant

Tipo di dati

integer

Alias
UMLS CUI [1,1]
C0423907
UMLS CUI [1,2]
C0868945
UMLS CUI [1,3]
C0332162
4. Does the participant make mistakes more frequently, if he not fully concentrates on one thing?
Descrizione

making mistakes informant

Tipo di dati

boolean

Alias
UMLS CUI [1]
C1821936
Start of deterioation:
Descrizione

making mistakes onset informant

Tipo di dati

integer

Alias
UMLS CUI [1,1]
C1821936
UMLS CUI [1,2]
C0868945
UMLS CUI [1,3]
C0332162
5. Did you notice any other mental deterioration? In which sections?
Descrizione

other mental deterioation informant

Tipo di dati

boolean

Alias
UMLS CUI [1,1]
C0234985
UMLS CUI [1,2]
C0205394
Other mental deterioation:
Descrizione

other mental deterioation name informant

Tipo di dati

text

Alias
UMLS CUI [1,1]
C0234985
UMLS CUI [1,2]
C0205394
Start of deterioation:
Descrizione

other mental deterioation onset informant

Tipo di dati

integer

Alias
UMLS CUI [1,1]
C0234985
UMLS CUI [1,2]
C0205394
UMLS CUI [1,3]
C0868945
UMLS CUI [1,4]
C0332162
6. Did you notice a change of behavior or personality of the participant?
Descrizione

personality change

Tipo di dati

boolean

Alias
UMLS CUI [1]
C0240735
Start of change:
Descrizione

personality change onset

Tipo di dati

integer

Alias
UMLS CUI [1,1]
C0240735
UMLS CUI [1,2]
C0868945
UMLS CUI [1,3]
C0332162
Mini mental state examination (MMSE)
Descrizione

Mini mental state examination (MMSE)

1. Orientation 1.1. Orientation in time
Descrizione

Number of correct answers

Tipo di dati

integer

Alias
UMLS CUI [1]
C0451306
UMLS CUI [2]
C0599544
1.2. Orientation to place
Descrizione

Number of correct answers

Tipo di dati

integer

Alias
UMLS CUI [1]
C0451306
UMLS CUI [2]
C2370999
2. Retention in memory
Descrizione

Number of correct answers

Tipo di dati

integer

Alias
UMLS CUI [1]
C0451306
UMLS CUI [2]
C0598851
3. Attention
Descrizione

Number of correct answers

Tipo di dati

integer

Alias
UMLS CUI [1]
C0451306
UMLS CUI [2]
C0004268
4. Powers of recollection
Descrizione

Number of correct answers

Tipo di dati

integer

Alias
UMLS CUI [1]
C0451306
UMLS CUI [2]
C0025260
5. Speech
Descrizione

Number of correct answers

Tipo di dati

integer

Alias
UMLS CUI [1]
C0451306
UMLS CUI [2]
C0037817
6. Drawing
Descrizione

Number of correct answers

Tipo di dati

integer

Alias
UMLS CUI [1]
C0451306
UMLS CUI [2]
C0013113
total score MMSE
Descrizione

total score MMSE

Tipo di dati

integer

Alias
UMLS CUI [1]
C2225229
Neuropsychologic testing
Descrizione

Neuropsychologic testing

1. Do you have difficulties hearing?
Descrizione

Orientating sensory evaluation

Tipo di dati

text

Alias
UMLS CUI [1]
C1313969
2. Do you have difficulties seeing?
Descrizione

difficulties seeing

Tipo di dati

text

Alias
UMLS CUI [1]
C3665347
3. Visus measurement
Descrizione

visus

Tipo di dati

float

Alias
UMLS CUI [1]
C0042812
Start of testing (time):
Descrizione

start of test

Tipo di dati

time

Alias
UMLS CUI [1]
C0449244
Initials of head of test
Descrizione

initials of head of test

Tipo di dati

text

Alias
UMLS CUI [1]
C2986440
Verbal fluency: Category animals Total score
Descrizione

CERAD plus test battery

Tipo di dati

integer

Unità di misura
  • Sum of correct words
Alias
UMLS CUI [1,1]
C2121096
UMLS CUI [1,2]
C0871945
Sum of correct words
Boston naming test Total score
Descrizione

Boston naming test

Tipo di dati

integer

Unità di misura
  • Sum of correct words
Alias
UMLS CUI [1]
C0451037
Sum of correct words
Please name version of word list:
Descrizione

Wordlist lerning

Tipo di dati

text

Alias
UMLS CUI [1]
C0456660
1. Round: No. of correct answers
Descrizione

first round of test right answers

Tipo di dati

integer

Alias
UMLS CUI [1,1]
C0456984
UMLS CUI [1,2]
C0456660
2. Round: No. of correct answers
Descrizione

second round of test right answers

Tipo di dati

integer

Alias
UMLS CUI [1,1]
C0456984
UMLS CUI [1,2]
C0456660
3. Round: No. of correct answers
Descrizione

third round of test right answers

Tipo di dati

integer

Alias
UMLS CUI [1,1]
C0456984
UMLS CUI [1,2]
C0456660
1. Round: No. intrusions
Descrizione

first round of test intrusion

Tipo di dati

integer

Alias
UMLS CUI [1,1]
C0456984
UMLS CUI [1,2]
C0456660
2. Round: No. intrusions
Descrizione

second round of test intrusions

Tipo di dati

integer

Alias
UMLS CUI [1,1]
C0456984
UMLS CUI [1,2]
C0456660
3. Round: No. of intrusions
Descrizione

third round of test intrusions

Tipo di dati

integer

Alias
UMLS CUI [1,1]
C0456984
UMLS CUI [1,2]
C0456660
Total score
Descrizione

total score wordlist

Tipo di dati

integer

Drawing figures: Circle
Descrizione

Drawing figures

Tipo di dati

integer

Unità di misura
  • no. of points
Alias
UMLS CUI [1,1]
C0456984
UMLS CUI [1,2]
C0204463
UMLS CUI [1,3]
C1282913
no. of points
Drawing figures: Rhombus
Descrizione

drawing figures rhombus

Tipo di dati

integer

Unità di misura
  • no. of points
Alias
UMLS CUI [1,1]
C0456984
UMLS CUI [1,2]
C0204463
no. of points
Drawing figures: Rectangle
Descrizione

drawing figures rectangle

Tipo di dati

integer

Unità di misura
  • no. of points
Alias
UMLS CUI [1,1]
C0204463
UMLS CUI [1,2]
C0205142
no. of points
Drawing figures: Cube
Descrizione

drawing figures cube

Tipo di dati

integer

Unità di misura
  • no. of points
Alias
UMLS CUI [1,1]
C0204463
UMLS CUI [1,2]
C1880194
no. of points
Wordlist recall: Total number of correct answers
Descrizione

Wordlist recall

Tipo di dati

integer

Alias
UMLS CUI [1,1]
C0456984
UMLS CUI [1,2]
C0456660
Recalling wordlist: Total number of intrusions
Descrizione

recalling wordlist intrusions

Tipo di dati

integer

Alias
UMLS CUI [1,1]
C0456984
UMLS CUI [1,2]
C0456660
Intrusions total
Descrizione

calculated

Tipo di dati

integer

Alias
UMLS CUI [1,1]
C0456984
UMLS CUI [1,2]
C0456660
Savings
Descrizione

calculated

Tipo di dati

integer

Unità di misura
  • %
%
Recognizing wordlist: No. recognized as old
Descrizione

recognizing wordlist

Tipo di dati

integer

Alias
UMLS CUI [1,1]
C0456984
UMLS CUI [1,2]
C0456660
Recognizing wordlist: No. recognized as new
Descrizione

recognizing wordlist as new

Tipo di dati

text

Alias
UMLS CUI [1,1]
C0456984
UMLS CUI [1,2]
C0456660
Discriminability
Descrizione

calculated

Tipo di dati

integer

Unità di misura
  • %
%
Recalling figures: Circle
Descrizione

recalling figures circle

Tipo di dati

integer

Unità di misura
  • no. of points
no. of points
Recalling figures: Rhombus
Descrizione

recalling figures rhombus

Tipo di dati

integer

Unità di misura
  • no. of points
no. of points
Recalling figures: Rectangle
Descrizione

recalling figures rectangle

Tipo di dati

integer

Unità di misura
  • no. of points
no. of points
Recalling figures: Cube
Descrizione

recalling figures cube

Tipo di dati

integer

Unità di misura
  • no. of points
no. of points
Total
Descrizione

calculated

Tipo di dati

integer

Unità di misura
  • no. of points
no. of points
Savings
Descrizione

calculated

Tipo di dati

integer

Unità di misura
  • %
%
Total
Descrizione

Phonematic fluency: S-words

Tipo di dati

integer

Unità di misura
  • Sum of correct words
Sum of correct words
TMT A time needed
Descrizione

Trail making test

Tipo di dati

integer

Unità di misura
  • sec
Alias
UMLS CUI [1]
C0040604
sec
TMT B time needed
Descrizione

trail making test B

Tipo di dati

integer

Unità di misura
  • sec
Alias
UMLS CUI [1]
C0040604
sec
TMT B/A
Descrizione

calculated

Tipo di dati

float

Alias
UMLS CUI [1]
C0040604
Range of numbers Correct rows forward
Descrizione

Wechsler Memory Scale (WMS-R)/Repeating numbers

Tipo di dati

integer

Alias
UMLS CUI [1]
C0451575
Correct rows backwards
Descrizione

WMS-R backwards

Tipo di dati

integer

Alias
UMLS CUI [1]
C0451575
MWT-B Test: No. correct words
Descrizione

MWT-B

Tipo di dati

integer

BTA- Form N (Numbers)
Descrizione

brief test of attention numbers

Tipo di dati

integer

BTA- Form L (letters)
Descrizione

brief test of attention letters

Tipo di dati

integer

BTA total
Descrizione

calculated

Tipo di dati

integer

z-value
Descrizione

BTA z-value

Tipo di dati

integer

Total raw value
Descrizione

VOSP - Recognition of objects

Tipo di dati

integer

Alias
UMLS CUI [1]
C0599621
Percentile
Descrizione

VOSP pct

Tipo di dati

float

Unità di misura
  • %
Alias
UMLS CUI [1]
C0599621
%
Total raw value
Descrizione

Finding similarities

Tipo di dati

integer

Alias
UMLS CUI [1]
C2348205
z-value
Descrizione

finding similarities z-value

Tipo di dati

float

Alias
UMLS CUI [1]
C2348205
The test person was not motivated enough
Descrizione

Comments

Tipo di dati

boolean

Alias
UMLS CUI [1]
C0520941
The test person refused to perform the tasks.
Descrizione

test person refused tasks

Tipo di dati

boolean

Alias
UMLS CUI [1]
C1136454
The test person had physical problems like e.g. sensorial or motor impairment or pain obviously reducing test performance
Descrizione

test person physical problems

Tipo di dati

boolean

Alias
UMLS CUI [1]
C0421228
The test person was cognitively over-challenged performing single task
Descrizione

test person overchallenged

Tipo di dati

boolean

Alias
UMLS CUI [1]
C0338656
The test person did not have adequate language knowledge
Descrizione

test person language problem

Tipo di dati

boolean

Alias
UMLS CUI [1]
C0814953
If one question was answered 'Yes', please specify your answer:
Descrizione

specification comment

Tipo di dati

text

Alias
UMLS CUI [1]
C0947611
The examination was disturbed or interrupted
Descrizione

Details about performance of neuropsychologic examination

Tipo di dati

boolean

Alias
UMLS CUI [1,1]
C1512900
UMLS CUI [1,2]
C0027902
There were deviations from standard instruction
Descrizione

performance deviation

Tipo di dati

boolean

Alias
UMLS CUI [1,1]
C0027902
UMLS CUI [1,2]
C1705236
Tasks have not been performed.
Descrizione

tasks not performed

Tipo di dati

boolean

Alias
UMLS CUI [1]
C0027902
The examination was not compliant to rules for other reasons.
Descrizione

performance not conform

Tipo di dati

boolean

Alias
UMLS CUI [1]
C0027902
If one question was answered with 'Yes', please specify, which subtest the given details address and how to assess these.
Descrizione

e.g. TMT-B not performed, TMT-A interruption, result not valid

Tipo di dati

text

Alias
UMLS CUI [1]
C0947611
Pill questionnaire
Descrizione

Pill questionnaire

not done
Descrizione

pill questionnaire not done

Tipo di dati

boolean

Alias
UMLS CUI [1,1]
C0994475
UMLS CUI [1,2]
C0034394
UMLS CUI [1,3]
C1272696
Participant knows name of his pills?
Descrizione

Part A: Questions for participant

Tipo di dati

boolean

Alias
UMLS CUI [1]
C2360065
The participant knows in which doses to take the pills and the color of his pills.
Descrizione

participant knows doses

Tipo di dati

boolean

Alias
UMLS CUI [1]
C0178602
The participant knows the time table of his medication?
Descrizione

participant knows timetable of medications

Tipo di dati

boolean

Alias
UMLS CUI [1]
C3173975
Is the participant able to state medication name, doses or color of the pills and time of intake (3 times 'Yes') correctly?
Descrizione

Yes->independent medication (end of test) No->continue with section B

Tipo di dati

boolean

Is the participant able to correctly state time of intake and at least one of the following features name, dosis, pill color?
Descrizione

Part B1: Questions for the participant (assistance) Yes->continue with B2 No->continue with B2

Tipo di dati

boolean

Does your relative take his medication totally independent and without control?
Descrizione

Part B2: Questions for relatives (if Section B1 'No' as answer)

Tipo di dati

boolean

Alias
UMLS CUI [1,1]
C0013227
UMLS CUI [1,2]
C0085862
Does your relative have to be reminded to take his pills?
Descrizione

reminder for pill intake

Tipo di dati

boolean

Alias
UMLS CUI [1]
C0085519
Were there ever any incidence when you had to consult a physician because your relative took his pills in a wrong way?
Descrizione

problems because of wrong medication

Tipo di dati

float

Alias
UMLS CUI [1]
C1657765
Was question 1 in section B2 answered 'Yes' and question 2 and 3 answered 'No'?
Descrizione

Conclusive assessment for part B Yes->independent medication No->no independent medication

Tipo di dati

boolean

War section B1 answered 'Yes'?
Descrizione

Yes->independent medication No->no independent medication

Tipo di dati

boolean

Similar models

CRF Cognition Module Follow Up

Name
genere
Description | Question | Decode (Coded Value)
Tipo di dati
Alias
Item Group
Date of visit
study id
Item
Study-ID:
text
C2826693 (UMLS CUI [1])
date of visit
Item
Date of visit
date
C1320303 (UMLS CUI [1])
visit name
Item
Follow-Up:
text
C1522577 (UMLS CUI [1])
Item Group
Anamnesis cognition 1: Subjective cognitive decline
memory impairment
Item
1. Did your memory changed for the worse?
boolean
C0233794 (UMLS CUI [1])
memory impairment worry
Item
A. If 'yes', does this make you worry?
boolean
C0233794 (UMLS CUI [1,1])
C0233481 (UMLS CUI [1,2])
Item
B. If 'yes', when did deterioration start?
integer
C0233794 (UMLS CUI [1,1])
C0868945 (UMLS CUI [1,2])
C0332162 (UMLS CUI [1,3])
Code List
B. If 'yes', when did deterioration start?
CL Item
within the last six month (1)
CL Item
from six month ago on to two years ago (2)
CL Item
from two to five years ago (3)
CL Item
more than five years ago (4)
CL Item
not specified (5)
memory impairment age
Item
C. If 'yes', is your ability in this section worse than of other persons your age?
boolean
C0233794 (UMLS CUI [1,1])
C1707455 (UMLS CUI [1,2])
C0027362 (UMLS CUI [1,3])
memory impairment consult
Item
D. If 'yes', have you ever consulted or talked to your doctor about these problems?
boolean
C0233794 (UMLS CUI [1,1])
C3693724 (UMLS CUI [1,2])
memory impairment consult time
Item
E. If 'yes', when for the first time?
integer
C0233794 (UMLS CUI [1,1])
C3693724 (UMLS CUI [1,2])
word finding
Item
2. Do you have to grope for words more often than before?
boolean
C0454643 (UMLS CUI [1])
word finding worry
Item
A. If 'yes', does this make you worry?
boolean
C0454643 (UMLS CUI [1,1])
C0233481 (UMLS CUI [1,2])
Item
B. If 'yes', when did deterioration start?
integer
C0454643 (UMLS CUI [1,1])
C0868945 (UMLS CUI [1,2])
C0332162 (UMLS CUI [1,3])
Code List
B. If 'yes', when did deterioration start?
CL Item
within the last six month (1)
CL Item
from six month ago on to two years ago (2)
CL Item
from two to five years ago (3)
CL Item
more than five years ago (4)
CL Item
not specified (5)
word finding age
Item
C. If 'yes', is your ability in this section worse than of other persons your age?
boolean
C0454643 (UMLS CUI [1,1])
C1707455 (UMLS CUI [1,2])
C0027362 (UMLS CUI [1,3])
word finding consult
Item
D. If 'yes', have you ever consulted or talked to your doctor about these problems?
boolean
C0454643 (UMLS CUI [1,1])
C3693724 (UMLS CUI [1,2])
word finding consult time
Item
E. If 'yes', when for the first time?
integer
C0454643 (UMLS CUI [1,1])
C3693724 (UMLS CUI [1,2])
problems planning
Item
3. Do you have more often problems planning forward-thinking or keeping order?
boolean
C0423907 (UMLS CUI [1])
problems planning worry
Item
A. If 'yes', does this make you worry?
boolean
C0423907 (UMLS CUI [1,1])
C0233481 (UMLS CUI [1,2])
Item
B. If 'yes', when did deterioration start?
integer
C0423907 (UMLS CUI [1,1])
C0868945 (UMLS CUI [1,2])
C0332162 (UMLS CUI [1,3])
Code List
B. If 'yes', when did deterioration start?
CL Item
within the last six month (1)
CL Item
from six month ago on to two years ago (2)
CL Item
from two to five years ago (3)
CL Item
more than five years ago (4)
CL Item
not specified (5)
problems planning age
Item
C. If 'yes', is your ability in this section worse than of other persons your age?
boolean
C0423907 (UMLS CUI [1,1])
C1707455 (UMLS CUI [1,2])
C0027362 (UMLS CUI [1,3])
problems planning consult
Item
D. If 'yes', have you ever consulted or talked to your doctor about these problems?
boolean
C0423907 (UMLS CUI [1,1])
C3693724 (UMLS CUI [1,2])
problems planning consult time
Item
E. If 'yes', when for the first time?
integer
making mistakes
Item
4. Do you make mistakes more frequently, if you not fully concentrate on one thing?
boolean
C1821936 (UMLS CUI [1])
making mistakes worry
Item
A. If 'yes', does this make you worry?
boolean
C1821936 (UMLS CUI [1,1])
C0233481 (UMLS CUI [1,2])
Item
B. If 'yes', when did deterioration start?
integer
C1821936 (UMLS CUI [1,1])
C0868945 (UMLS CUI [1,2])
C0332162 (UMLS CUI [1,3])
Code List
B. If 'yes', when did deterioration start?
CL Item
within the last six month (1)
CL Item
from six month ago on to two years ago (2)
CL Item
from two to five years ago (3)
CL Item
more than five years ago (4)
CL Item
not specified (5)
making mistakes age
Item
C. If 'yes', is your ability in this section worse than of other persons your age?
boolean
C1821936 (UMLS CUI [1,1])
C1707455 (UMLS CUI [1,2])
C0027362 (UMLS CUI [1,3])
making mistakes consult
Item
D. If 'yes', have you ever consulted or talked to your doctor about these problems?
boolean
C1821936 (UMLS CUI [1,1])
C3693724 (UMLS CUI [1,2])
making mistakes consult time
Item
E. If 'yes', when for the first time?
integer
C1821936 (UMLS CUI [1,1])
C3693724 (UMLS CUI [1,2])
other mental deterioation
Item
5. Did you notice any other mental deterioration? In which sections?
boolean
C0234985 (UMLS CUI [1,1])
C0205394 (UMLS CUI [1,2])
other mental deterioation name
Item
Other mental deterioation:
text
C0234985 (UMLS CUI [1,1])
C0205394 (UMLS CUI [1,2])
other mental deterioation worry
Item
A. If 'yes', does this make you worry?
boolean
C0234985 (UMLS CUI [1,1])
C0205394 (UMLS CUI [1,2])
C0233481 (UMLS CUI [1,3])
Item
B. If 'yes', when did deterioration start?
integer
C0234985 (UMLS CUI [1,1])
C0205394 (UMLS CUI [1,2])
C0868945 (UMLS CUI [1,3])
C0332162 (UMLS CUI [1,4])
Code List
B. If 'yes', when did deterioration start?
CL Item
within the last six month (1)
CL Item
from six month ago on to two years ago (2)
CL Item
from two to five years ago (3)
CL Item
more than five years ago (4)
CL Item
not specified (5)
other mental deterioation age
Item
C. If 'yes', is your ability in this section worse than of other persons your age?
boolean
C0234985 (UMLS CUI [1,1])
C0205394 (UMLS CUI [1,2])
C1707455 (UMLS CUI [1,3])
C0027362 (UMLS CUI [1,4])
other mental deterioation consult
Item
D. If 'yes', have you ever consulted or talked to your doctor about these problems?
boolean
C0234985 (UMLS CUI [1,1])
C0205394 (UMLS CUI [1,2])
C3693724 (UMLS CUI [1,3])
other mental deterioation consult time
Item
E. If 'yes', when for the first time?
integer
C0234985 (UMLS CUI [1,1])
C0205394 (UMLS CUI [1,2])
C3693724 (UMLS CUI [1,3])
Item Group
Anamnesis cognition 2: Observed cognitive decline
Item
Presence of informant (Questions may be asked while participant is present)
text
C3842888 (UMLS CUI [1])
Code List
Presence of informant (Questions may be asked while participant is present)
CL Item
no informant present (no informant present)
CL Item
participant refuses interview with relative (participant refuses interview with relative)
Item
Informations are reported by: (only one answer)
text
C1550484 (UMLS CUI [1])
Code List
Informations are reported by: (only one answer)
CL Item
Spouse (Spouse)
CL Item
Child (Child)
CL Item
Brother/Sister (Brother/Sister)
CL Item
Friend (Friend)
CL Item
Other attendant (Other attendant)
memory impairment informant
Item
1. Did the memory of the participant change for the worse?
boolean
C0233794 (UMLS CUI [1])
Item
Start of deterioation:
integer
C0233794 (UMLS CUI [1,1])
C0868945 (UMLS CUI [1,2])
C0332162 (UMLS CUI [1,3])
Code List
Start of deterioation:
CL Item
within the last six month (1)
CL Item
from six month ago on to two years ago (2)
CL Item
from two to five years ago (3)
CL Item
more than five years ago (4)
CL Item
not specified (5)
word finding informant
Item
2. Does the participant have frequently problems finding words?
boolean
C0454643 (UMLS CUI [1])
Item
Start of deterioation:
integer
C0454643 (UMLS CUI [1,1])
C0868945 (UMLS CUI [1,2])
C0332162 (UMLS CUI [1,3])
Code List
Start of deterioation:
CL Item
within the last six month (1)
CL Item
from six month ago on to two years ago (2)
CL Item
from two to five years ago (3)
CL Item
more than five years ago (4)
CL Item
not specified (5)
problems planning informant
Item
3. Does the participant have more often problems planning forward-thinking or keeping order?
boolean
C0423907 (UMLS CUI [1])
Item
Start of deterioation:
integer
C0423907 (UMLS CUI [1,1])
C0868945 (UMLS CUI [1,2])
C0332162 (UMLS CUI [1,3])
Code List
Start of deterioation:
CL Item
within the last six month (1)
CL Item
from six month ago on to two years ago (2)
CL Item
from two to five years ago (3)
CL Item
more than five years ago (4)
CL Item
not specified (5)
making mistakes informant
Item
4. Does the participant make mistakes more frequently, if he not fully concentrates on one thing?
boolean
C1821936 (UMLS CUI [1])
Item
Start of deterioation:
integer
C1821936 (UMLS CUI [1,1])
C0868945 (UMLS CUI [1,2])
C0332162 (UMLS CUI [1,3])
Code List
Start of deterioation:
CL Item
within the last six month (1)
CL Item
from six month ago on to two years ago (2)
CL Item
from two to five years ago (3)
CL Item
more than five years ago (4)
CL Item
not specified (5)
other mental deterioation informant
Item
5. Did you notice any other mental deterioration? In which sections?
boolean
C0234985 (UMLS CUI [1,1])
C0205394 (UMLS CUI [1,2])
other mental deterioation name informant
Item
Other mental deterioation:
text
C0234985 (UMLS CUI [1,1])
C0205394 (UMLS CUI [1,2])
Item
Start of deterioation:
integer
C0234985 (UMLS CUI [1,1])
C0205394 (UMLS CUI [1,2])
C0868945 (UMLS CUI [1,3])
C0332162 (UMLS CUI [1,4])
Code List
Start of deterioation:
CL Item
within the last six month (1)
CL Item
from six month ago on to two years ago (2)
CL Item
from two to five years ago (3)
CL Item
more than five years ago (4)
CL Item
not specified (5)
personality change
Item
6. Did you notice a change of behavior or personality of the participant?
boolean
C0240735 (UMLS CUI [1])
Item
Start of change:
integer
C0240735 (UMLS CUI [1,1])
C0868945 (UMLS CUI [1,2])
C0332162 (UMLS CUI [1,3])
Code List
Start of change:
CL Item
within the last six month (1)
CL Item
from six month ago on to two years ago (2)
CL Item
from two to five years ago (3)
CL Item
more than five years ago (4)
CL Item
not specified (5)
Item Group
Mini mental state examination (MMSE)
orientation in time
Item
1. Orientation 1.1. Orientation in time
integer
C0451306 (UMLS CUI [1])
C0599544 (UMLS CUI [2])
orientation to place
Item
1.2. Orientation to place
integer
C0451306 (UMLS CUI [1])
C2370999 (UMLS CUI [2])
retention in memory
Item
2. Retention in memory
integer
C0451306 (UMLS CUI [1])
C0598851 (UMLS CUI [2])
attention
Item
3. Attention
integer
C0451306 (UMLS CUI [1])
C0004268 (UMLS CUI [2])
memory
Item
4. Powers of recollection
integer
C0451306 (UMLS CUI [1])
C0025260 (UMLS CUI [2])
speech
Item
5. Speech
integer
C0451306 (UMLS CUI [1])
C0037817 (UMLS CUI [2])
drawing
Item
6. Drawing
integer
C0451306 (UMLS CUI [1])
C0013113 (UMLS CUI [2])
total score MMSE
Item
integer
C2225229 (UMLS CUI [1])
Item Group
Neuropsychologic testing
Item
1. Do you have difficulties hearing?
text
C1313969 (UMLS CUI [1])
Code List
1. Do you have difficulties hearing?
CL Item
No impairment (speech in normal sound level is understandable, no hearing device) (No impairment (speech in normal sound level is understandable, no hearing device))
CL Item
Mild impairment (only load speech can be understood, hearing aid device necessary) (Mild impairment (only load speech can be understood, hearing aid device necessary))
CL Item
Severe impairment (only if spoken out very loudly speech can be understood, communication very difficult) (Severe impairment (only if spoken out very loudly speech can be understood, communication very difficult))
CL Item
Extreme impairment/ loss of hearing (almost nothing/nothing can be understood) (Extreme impairment/ loss of hearing (almost nothing/nothing can be understood))
Item
2. Do you have difficulties seeing?
text
C3665347 (UMLS CUI [1])
Code List
2. Do you have difficulties seeing?
CL Item
No impairment (can see well with glasses on, fine print can be read without any problems) (No impairment (can see well with glasses on, fine print can be read without any problems))
CL Item
Compounded seeing (reading only possible with effort; fatiguing fast; only large type like headlines can be read without effort) (Compounded seeing (reading only possible with effort; fatiguing fast; only large type like headlines can be read without effort))
CL Item
Significant (severe impairment, e.g. cataract, recognize persons and objects, reading only with magnifier) (Significant (severe impairment, e.g. cataract, recognize persons and objects, reading only with magnifier))
CL Item
Severe visual impairment (only seeing shadows, only differing between light- and dark contrasts; blindness or almost blindness) (Severe visual impairment (only seeing shadows, only differing between light- and dark contrasts; blindness or almost blindness))
visus
Item
3. Visus measurement
float
C0042812 (UMLS CUI [1])
start of test
Item
Start of testing (time):
time
C0449244 (UMLS CUI [1])
initials of head of test
Item
Initials of head of test
text
C2986440 (UMLS CUI [1])
verbal fluency
Item
Verbal fluency: Category animals Total score
integer
C2121096 (UMLS CUI [1,1])
C0871945 (UMLS CUI [1,2])
Boston naming test
Item
Boston naming test Total score
integer
C0451037 (UMLS CUI [1])
Item
Please name version of word list:
text
C0456660 (UMLS CUI [1])
Code List
Please name version of word list:
CL Item
Version 1 (Version 1)
CL Item
Version 2 (Version 2)
CL Item
Version 3 (Version 3)
first round of test right answers
Item
1. Round: No. of correct answers
integer
C0456984 (UMLS CUI [1,1])
C0456660 (UMLS CUI [1,2])
second round of test right answers
Item
2. Round: No. of correct answers
integer
C0456984 (UMLS CUI [1,1])
C0456660 (UMLS CUI [1,2])
third round of test right answers
Item
3. Round: No. of correct answers
integer
C0456984 (UMLS CUI [1,1])
C0456660 (UMLS CUI [1,2])
first round of test intrusion
Item
1. Round: No. intrusions
integer
C0456984 (UMLS CUI [1,1])
C0456660 (UMLS CUI [1,2])
second round of test intrusions
Item
2. Round: No. intrusions
integer
C0456984 (UMLS CUI [1,1])
C0456660 (UMLS CUI [1,2])
third round of test intrusions
Item
3. Round: No. of intrusions
integer
C0456984 (UMLS CUI [1,1])
C0456660 (UMLS CUI [1,2])
total score wordlist
Item
Total score
integer
figure drawing circle
Item
Drawing figures: Circle
integer
C0456984 (UMLS CUI [1,1])
C0204463 (UMLS CUI [1,2])
C1282913 (UMLS CUI [1,3])
drawing figures rhombus
Item
Drawing figures: Rhombus
integer
C0456984 (UMLS CUI [1,1])
C0204463 (UMLS CUI [1,2])
drawing figures rectangle
Item
Drawing figures: Rectangle
integer
C0204463 (UMLS CUI [1,1])
C0205142 (UMLS CUI [1,2])
drawing figures cube
Item
Drawing figures: Cube
integer
C0204463 (UMLS CUI [1,1])
C1880194 (UMLS CUI [1,2])
recalling wordlist
Item
Wordlist recall: Total number of correct answers
integer
C0456984 (UMLS CUI [1,1])
C0456660 (UMLS CUI [1,2])
recalling wordlist intrusions
Item
Recalling wordlist: Total number of intrusions
integer
C0456984 (UMLS CUI [1,1])
C0456660 (UMLS CUI [1,2])
total intrusions
Item
Intrusions total
integer
C0456984 (UMLS CUI [1,1])
C0456660 (UMLS CUI [1,2])
savings
Item
Savings
integer
recognizing wordlist
Item
Recognizing wordlist: No. recognized as old
integer
C0456984 (UMLS CUI [1,1])
C0456660 (UMLS CUI [1,2])
recognizing wordlist as new
Item
Recognizing wordlist: No. recognized as new
text
C0456984 (UMLS CUI [1,1])
C0456660 (UMLS CUI [1,2])
discriminability
Item
Discriminability
integer
recalling figures circle
Item
Recalling figures: Circle
integer
recalling figures rhombus
Item
Recalling figures: Rhombus
integer
recalling figures rectangle
Item
Recalling figures: Rectangle
integer
recalling figures cube
Item
Recalling figures: Cube
integer
recalling figures total
Item
Total
integer
recalling figures savings
Item
Savings
integer
phonematic fluency
Item
Total
integer
trail making test A
Item
TMT A time needed
integer
C0040604 (UMLS CUI [1])
trail making test B
Item
TMT B time needed
integer
C0040604 (UMLS CUI [1])
TMT
Item
TMT B/A
float
C0040604 (UMLS CUI [1])
WMS-R
Item
Range of numbers Correct rows forward
integer
C0451575 (UMLS CUI [1])
WMS-R backwards
Item
Correct rows backwards
integer
C0451575 (UMLS CUI [1])
MWT-B
Item
MWT-B Test: No. correct words
integer
brief test of attention numbers
Item
BTA- Form N (Numbers)
integer
brief test of attention letters
Item
BTA- Form L (letters)
integer
BTA total
Item
BTA total
integer
BTA z-value
Item
z-value
integer
VOSP
Item
Total raw value
integer
C0599621 (UMLS CUI [1])
VOSP pct
Item
Percentile
float
C0599621 (UMLS CUI [1])
finding similaraties
Item
Total raw value
integer
C2348205 (UMLS CUI [1])
finding similarities z-value
Item
z-value
float
C2348205 (UMLS CUI [1])
test person unmotivated
Item
The test person was not motivated enough
boolean
C0520941 (UMLS CUI [1])
test person refused tasks
Item
The test person refused to perform the tasks.
boolean
C1136454 (UMLS CUI [1])
test person physical problems
Item
The test person had physical problems like e.g. sensorial or motor impairment or pain obviously reducing test performance
boolean
C0421228 (UMLS CUI [1])
test person overchallenged
Item
The test person was cognitively over-challenged performing single task
boolean
C0338656 (UMLS CUI [1])
test person language problem
Item
The test person did not have adequate language knowledge
boolean
C0814953 (UMLS CUI [1])
specification comment
Item
If one question was answered 'Yes', please specify your answer:
text
C0947611 (UMLS CUI [1])
performance disturbed or interrupted
Item
The examination was disturbed or interrupted
boolean
C1512900 (UMLS CUI [1,1])
C0027902 (UMLS CUI [1,2])
performance deviation
Item
There were deviations from standard instruction
boolean
C0027902 (UMLS CUI [1,1])
C1705236 (UMLS CUI [1,2])
tasks not performed
Item
Tasks have not been performed.
boolean
C0027902 (UMLS CUI [1])
performance not conform
Item
The examination was not compliant to rules for other reasons.
boolean
C0027902 (UMLS CUI [1])
performance comment
Item
If one question was answered with 'Yes', please specify, which subtest the given details address and how to assess these.
text
C0947611 (UMLS CUI [1])
Item Group
Pill questionnaire
pill questionnaire not done
Item
not done
boolean
C0994475 (UMLS CUI [1,1])
C0034394 (UMLS CUI [1,2])
C1272696 (UMLS CUI [1,3])
participant knows names of pills
Item
Participant knows name of his pills?
boolean
C2360065 (UMLS CUI [1])
participant knows doses
Item
The participant knows in which doses to take the pills and the color of his pills.
boolean
C0178602 (UMLS CUI [1])
participant knows timetable of medications
Item
The participant knows the time table of his medication?
boolean
C3173975 (UMLS CUI [1])
correct answers part A
Item
Is the participant able to state medication name, doses or color of the pills and time of intake (3 times 'Yes') correctly?
boolean
part B1
Item
Is the participant able to correctly state time of intake and at least one of the following features name, dosis, pill color?
boolean
self-employed medication
Item
Does your relative take his medication totally independent and without control?
boolean
C0013227 (UMLS CUI [1,1])
C0085862 (UMLS CUI [1,2])
reminder for pill intake
Item
Does your relative have to be reminded to take his pills?
boolean
C0085519 (UMLS CUI [1])
problems because of wrong medication
Item
Were there ever any incidence when you had to consult a physician because your relative took his pills in a wrong way?
float
C1657765 (UMLS CUI [1])
conclusive assessment
Item
Was question 1 in section B2 answered 'Yes' and question 2 and 3 answered 'No'?
boolean
conclusive assessment part B1
Item
War section B1 answered 'Yes'?
boolean

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