ID

13987

Descripción

Background and Purpose: The purpose of the DESCRIBE study is to document the natural course of diseases in context of medical care of neurodegenerative disorders as well as cerebrovascular diseases and to perform phenotyping of the test persons. Disease-spanning analyses of the measured clincial data, the results of the imaging processes, results of the analysis of the biometerials including genetic analysis are planed. Principal Investigator: Prof. Klockgether, Dr. Spottke DZNE, Bonn. Source: DESCRIBE-Studie http://www.dzne.de/forschung/forschungsbereiche/klinische-forschung/studien/describe-bn006.html Participating Study Sites: Berlin, Bonn, Göttingen, Dresden, Köln, Magdeburg, München, Rostock/Greifswald, Tübingen

Link

http://www.dzne.de/forschung/forschungsbereiche/klinische-forschung/studien/describe-bn006.html

Palabras clave

Versiones (1)
  1. 21/3/16 21/3/16 -
Subido en

21 de marzo de 2016

DOI

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Licencia

Creative Commons BY-NC 3.0
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DESCRIBE (DZNE – Clinical Register Study of neurodegenerative Disorders) CRF Cognition Module Follow-Up

Inglés

CRF Cognition Module Follow Up

1 formularios  
Date of visit
Descripción

Date of visit

Study-ID:
Descripción

study id

Tipo de datos

text

Alias
UMLS CUI [1]
C2826693
Date of visit
Descripción

date of visit

Tipo de datos

date

Alias
UMLS CUI [1]
C1320303
Follow-Up:
Descripción

visit name

Tipo de datos

text

Alias
UMLS CUI [1]
C1522577
Anamnesis cognition 1: Subjective cognitive decline
Descripción

Anamnesis cognition 1: Subjective cognitive decline

1. Did your memory changed for the worse?
Descripción

Structured interview about cognitive disorders. All questions need to be asked using original wording. The physician aks follow-up questions for every question that was affirmed by the participant. -> Now I want to aks you some question, to understand the sort of complaints correctly:

Tipo de datos

boolean

Alias
UMLS CUI [1]
C0233794
A. If 'yes', does this make you worry?
Descripción

memory impairment worry

Tipo de datos

boolean

Alias
UMLS CUI [1,1]
C0233794
UMLS CUI [1,2]
C0233481
B. If 'yes', when did deterioration start?
Descripción

memory impairment onset

Tipo de datos

integer

Alias
UMLS CUI [1,1]
C0233794
UMLS CUI [1,2]
C0868945
UMLS CUI [1,3]
C0332162
C. If 'yes', is your ability in this section worse than of other persons your age?
Descripción

memory impairment age

Tipo de datos

boolean

Alias
UMLS CUI [1,1]
C0233794
UMLS CUI [1,2]
C1707455
UMLS CUI [1,3]
C0027362
D. If 'yes', have you ever consulted or talked to your doctor about these problems?
Descripción

memory impairment consult

Tipo de datos

boolean

Alias
UMLS CUI [1,1]
C0233794
UMLS CUI [1,2]
C3693724
E. If 'yes', when for the first time?
Descripción

memory impairment consult time

Tipo de datos

integer

Unidades de medida
  • months
Alias
UMLS CUI [1,1]
C0233794
UMLS CUI [1,2]
C3693724
months
2. Do you have to grope for words more often than before?
Descripción

word finding

Tipo de datos

boolean

Alias
UMLS CUI [1]
C0454643
A. If 'yes', does this make you worry?
Descripción

word finding worry

Tipo de datos

boolean

Alias
UMLS CUI [1,1]
C0454643
UMLS CUI [1,2]
C0233481
B. If 'yes', when did deterioration start?
Descripción

word finding onset

Tipo de datos

integer

Alias
UMLS CUI [1,1]
C0454643
UMLS CUI [1,2]
C0868945
UMLS CUI [1,3]
C0332162
C. If 'yes', is your ability in this section worse than of other persons your age?
Descripción

word finding age

Tipo de datos

boolean

Alias
UMLS CUI [1,1]
C0454643
UMLS CUI [1,2]
C1707455
UMLS CUI [1,3]
C0027362
D. If 'yes', have you ever consulted or talked to your doctor about these problems?
Descripción

word finding consult

Tipo de datos

boolean

Alias
UMLS CUI [1,1]
C0454643
UMLS CUI [1,2]
C3693724
E. If 'yes', when for the first time?
Descripción

word finding consult time

Tipo de datos

integer

Unidades de medida
  • months
Alias
UMLS CUI [1,1]
C0454643
UMLS CUI [1,2]
C3693724
months
3. Do you have more often problems planning forward-thinking or keeping order?
Descripción

problems planning

Tipo de datos

boolean

Alias
UMLS CUI [1]
C0423907
A. If 'yes', does this make you worry?
Descripción

problems planning worry

Tipo de datos

boolean

Alias
UMLS CUI [1,1]
C0423907
UMLS CUI [1,2]
C0233481
B. If 'yes', when did deterioration start?
Descripción

problems planning onset

Tipo de datos

integer

Alias
UMLS CUI [1,1]
C0423907
UMLS CUI [1,2]
C0868945
UMLS CUI [1,3]
C0332162
C. If 'yes', is your ability in this section worse than of other persons your age?
Descripción

problems planning age

Tipo de datos

boolean

Alias
UMLS CUI [1,1]
C0423907
UMLS CUI [1,2]
C1707455
UMLS CUI [1,3]
C0027362
D. If 'yes', have you ever consulted or talked to your doctor about these problems?
Descripción

problems planning consult

Tipo de datos

boolean

Alias
UMLS CUI [1,1]
C0423907
UMLS CUI [1,2]
C3693724
E. If 'yes', when for the first time?
Descripción

problems planning consult time

Tipo de datos

integer

Unidades de medida
  • months
months
4. Do you make mistakes more frequently, if you not fully concentrate on one thing?
Descripción

making mistakes

Tipo de datos

boolean

Alias
UMLS CUI [1]
C1821936
A. If 'yes', does this make you worry?
Descripción

making mistakes worry

Tipo de datos

boolean

Alias
UMLS CUI [1,1]
C1821936
UMLS CUI [1,2]
C0233481
B. If 'yes', when did deterioration start?
Descripción

making mistakes onset

Tipo de datos

integer

Alias
UMLS CUI [1,1]
C1821936
UMLS CUI [1,2]
C0868945
UMLS CUI [1,3]
C0332162
C. If 'yes', is your ability in this section worse than of other persons your age?
Descripción

making mistakes age

Tipo de datos

boolean

Alias
UMLS CUI [1,1]
C1821936
UMLS CUI [1,2]
C1707455
UMLS CUI [1,3]
C0027362
D. If 'yes', have you ever consulted or talked to your doctor about these problems?
Descripción

making mistakes consult

Tipo de datos

boolean

Alias
UMLS CUI [1,1]
C1821936
UMLS CUI [1,2]
C3693724
E. If 'yes', when for the first time?
Descripción

making mistakes consult time

Tipo de datos

integer

Unidades de medida
  • months
Alias
UMLS CUI [1,1]
C1821936
UMLS CUI [1,2]
C3693724
months
5. Did you notice any other mental deterioration? In which sections?
Descripción

other mental deterioation

Tipo de datos

boolean

Alias
UMLS CUI [1,1]
C0234985
UMLS CUI [1,2]
C0205394
Other mental deterioation:
Descripción

other mental deterioation name

Tipo de datos

text

Alias
UMLS CUI [1,1]
C0234985
UMLS CUI [1,2]
C0205394
A. If 'yes', does this make you worry?
Descripción

other mental deterioation worry

Tipo de datos

boolean

Alias
UMLS CUI [1,1]
C0234985
UMLS CUI [1,2]
C0205394
UMLS CUI [1,3]
C0233481
B. If 'yes', when did deterioration start?
Descripción

other mental deterioation onset

Tipo de datos

integer

Alias
UMLS CUI [1,1]
C0234985
UMLS CUI [1,2]
C0205394
UMLS CUI [1,3]
C0868945
UMLS CUI [1,4]
C0332162
C. If 'yes', is your ability in this section worse than of other persons your age?
Descripción

other mental deterioation age

Tipo de datos

boolean

Alias
UMLS CUI [1,1]
C0234985
UMLS CUI [1,2]
C0205394
UMLS CUI [1,3]
C1707455
UMLS CUI [1,4]
C0027362
D. If 'yes', have you ever consulted or talked to your doctor about these problems?
Descripción

other mental deterioation consult

Tipo de datos

boolean

Alias
UMLS CUI [1,1]
C0234985
UMLS CUI [1,2]
C0205394
UMLS CUI [1,3]
C3693724
E. If 'yes', when for the first time?
Descripción

other mental deterioation consult time

Tipo de datos

integer

Unidades de medida
  • months
Alias
UMLS CUI [1,1]
C0234985
UMLS CUI [1,2]
C0205394
UMLS CUI [1,3]
C3693724
months
Anamnesis cognition 2: Observed cognitive decline
Descripción

Anamnesis cognition 2: Observed cognitive decline

Presence of informant (Questions may be asked while participant is present)
Descripción

Quetions for informant

Tipo de datos

text

Alias
UMLS CUI [1]
C3842888
Informations are reported by: (only one answer)
Descripción

informant

Tipo de datos

text

Alias
UMLS CUI [1]
C1550484
1. Did the memory of the participant change for the worse?
Descripción

All questions need to be ask using original wording. Please answer for each main question answered with 'yes' for onset.

Tipo de datos

boolean

Alias
UMLS CUI [1]
C0233794
Start of deterioation:
Descripción

memory impairment onset informant

Tipo de datos

integer

Alias
UMLS CUI [1,1]
C0233794
UMLS CUI [1,2]
C0868945
UMLS CUI [1,3]
C0332162
2. Does the participant have frequently problems finding words?
Descripción

word finding informant

Tipo de datos

boolean

Alias
UMLS CUI [1]
C0454643
Start of deterioation:
Descripción

word finding onset informant

Tipo de datos

integer

Alias
UMLS CUI [1,1]
C0454643
UMLS CUI [1,2]
C0868945
UMLS CUI [1,3]
C0332162
3. Does the participant have more often problems planning forward-thinking or keeping order?
Descripción

problems planning informant

Tipo de datos

boolean

Alias
UMLS CUI [1]
C0423907
Start of deterioation:
Descripción

problems planning onset informant

Tipo de datos

integer

Alias
UMLS CUI [1,1]
C0423907
UMLS CUI [1,2]
C0868945
UMLS CUI [1,3]
C0332162
4. Does the participant make mistakes more frequently, if he not fully concentrates on one thing?
Descripción

making mistakes informant

Tipo de datos

boolean

Alias
UMLS CUI [1]
C1821936
Start of deterioation:
Descripción

making mistakes onset informant

Tipo de datos

integer

Alias
UMLS CUI [1,1]
C1821936
UMLS CUI [1,2]
C0868945
UMLS CUI [1,3]
C0332162
5. Did you notice any other mental deterioration? In which sections?
Descripción

other mental deterioation informant

Tipo de datos

boolean

Alias
UMLS CUI [1,1]
C0234985
UMLS CUI [1,2]
C0205394
Other mental deterioation:
Descripción

other mental deterioation name informant

Tipo de datos

text

Alias
UMLS CUI [1,1]
C0234985
UMLS CUI [1,2]
C0205394
Start of deterioation:
Descripción

other mental deterioation onset informant

Tipo de datos

integer

Alias
UMLS CUI [1,1]
C0234985
UMLS CUI [1,2]
C0205394
UMLS CUI [1,3]
C0868945
UMLS CUI [1,4]
C0332162
6. Did you notice a change of behavior or personality of the participant?
Descripción

personality change

Tipo de datos

boolean

Alias
UMLS CUI [1]
C0240735
Start of change:
Descripción

personality change onset

Tipo de datos

integer

Alias
UMLS CUI [1,1]
C0240735
UMLS CUI [1,2]
C0868945
UMLS CUI [1,3]
C0332162
Mini mental state examination (MMSE)
Descripción

Mini mental state examination (MMSE)

1. Orientation 1.1. Orientation in time
Descripción

Number of correct answers

Tipo de datos

integer

Alias
UMLS CUI [1]
C0451306
UMLS CUI [2]
C0599544
1.2. Orientation to place
Descripción

Number of correct answers

Tipo de datos

integer

Alias
UMLS CUI [1]
C0451306
UMLS CUI [2]
C2370999
2. Retention in memory
Descripción

Number of correct answers

Tipo de datos

integer

Alias
UMLS CUI [1]
C0451306
UMLS CUI [2]
C0598851
3. Attention
Descripción

Number of correct answers

Tipo de datos

integer

Alias
UMLS CUI [1]
C0451306
UMLS CUI [2]
C0004268
4. Powers of recollection
Descripción

Number of correct answers

Tipo de datos

integer

Alias
UMLS CUI [1]
C0451306
UMLS CUI [2]
C0025260
5. Speech
Descripción

Number of correct answers

Tipo de datos

integer

Alias
UMLS CUI [1]
C0451306
UMLS CUI [2]
C0037817
6. Drawing
Descripción

Number of correct answers

Tipo de datos

integer

Alias
UMLS CUI [1]
C0451306
UMLS CUI [2]
C0013113
total score MMSE
Descripción

total score MMSE

Tipo de datos

integer

Alias
UMLS CUI [1]
C2225229
Neuropsychologic testing
Descripción

Neuropsychologic testing

1. Do you have difficulties hearing?
Descripción

Orientating sensory evaluation

Tipo de datos

text

Alias
UMLS CUI [1]
C1313969
2. Do you have difficulties seeing?
Descripción

difficulties seeing

Tipo de datos

text

Alias
UMLS CUI [1]
C3665347
3. Visus measurement
Descripción

visus

Tipo de datos

float

Alias
UMLS CUI [1]
C0042812
Start of testing (time):
Descripción

start of test

Tipo de datos

time

Alias
UMLS CUI [1]
C0449244
Initials of head of test
Descripción

initials of head of test

Tipo de datos

text

Alias
UMLS CUI [1]
C2986440
Verbal fluency: Category animals Total score
Descripción

CERAD plus test battery

Tipo de datos

integer

Unidades de medida
  • Sum of correct words
Alias
UMLS CUI [1,1]
C2121096
UMLS CUI [1,2]
C0871945
Sum of correct words
Boston naming test Total score
Descripción

Boston naming test

Tipo de datos

integer

Unidades de medida
  • Sum of correct words
Alias
UMLS CUI [1]
C0451037
Sum of correct words
Please name version of word list:
Descripción

Wordlist lerning

Tipo de datos

text

Alias
UMLS CUI [1]
C0456660
1. Round: No. of correct answers
Descripción

first round of test right answers

Tipo de datos

integer

Alias
UMLS CUI [1,1]
C0456984
UMLS CUI [1,2]
C0456660
2. Round: No. of correct answers
Descripción

second round of test right answers

Tipo de datos

integer

Alias
UMLS CUI [1,1]
C0456984
UMLS CUI [1,2]
C0456660
3. Round: No. of correct answers
Descripción

third round of test right answers

Tipo de datos

integer

Alias
UMLS CUI [1,1]
C0456984
UMLS CUI [1,2]
C0456660
1. Round: No. intrusions
Descripción

first round of test intrusion

Tipo de datos

integer

Alias
UMLS CUI [1,1]
C0456984
UMLS CUI [1,2]
C0456660
2. Round: No. intrusions
Descripción

second round of test intrusions

Tipo de datos

integer

Alias
UMLS CUI [1,1]
C0456984
UMLS CUI [1,2]
C0456660
3. Round: No. of intrusions
Descripción

third round of test intrusions

Tipo de datos

integer

Alias
UMLS CUI [1,1]
C0456984
UMLS CUI [1,2]
C0456660
Total score
Descripción

total score wordlist

Tipo de datos

integer

Drawing figures: Circle
Descripción

Drawing figures

Tipo de datos

integer

Unidades de medida
  • no. of points
Alias
UMLS CUI [1,1]
C0456984
UMLS CUI [1,2]
C0204463
UMLS CUI [1,3]
C1282913
no. of points
Drawing figures: Rhombus
Descripción

drawing figures rhombus

Tipo de datos

integer

Unidades de medida
  • no. of points
Alias
UMLS CUI [1,1]
C0456984
UMLS CUI [1,2]
C0204463
no. of points
Drawing figures: Rectangle
Descripción

drawing figures rectangle

Tipo de datos

integer

Unidades de medida
  • no. of points
Alias
UMLS CUI [1,1]
C0204463
UMLS CUI [1,2]
C0205142
no. of points
Drawing figures: Cube
Descripción

drawing figures cube

Tipo de datos

integer

Unidades de medida
  • no. of points
Alias
UMLS CUI [1,1]
C0204463
UMLS CUI [1,2]
C1880194
no. of points
Wordlist recall: Total number of correct answers
Descripción

Wordlist recall

Tipo de datos

integer

Alias
UMLS CUI [1,1]
C0456984
UMLS CUI [1,2]
C0456660
Recalling wordlist: Total number of intrusions
Descripción

recalling wordlist intrusions

Tipo de datos

integer

Alias
UMLS CUI [1,1]
C0456984
UMLS CUI [1,2]
C0456660
Intrusions total
Descripción

calculated

Tipo de datos

integer

Alias
UMLS CUI [1,1]
C0456984
UMLS CUI [1,2]
C0456660
Savings
Descripción

calculated

Tipo de datos

integer

Unidades de medida
  • %
%
Recognizing wordlist: No. recognized as old
Descripción

recognizing wordlist

Tipo de datos

integer

Alias
UMLS CUI [1,1]
C0456984
UMLS CUI [1,2]
C0456660
Recognizing wordlist: No. recognized as new
Descripción

recognizing wordlist as new

Tipo de datos

text

Alias
UMLS CUI [1,1]
C0456984
UMLS CUI [1,2]
C0456660
Discriminability
Descripción

calculated

Tipo de datos

integer

Unidades de medida
  • %
%
Recalling figures: Circle
Descripción

recalling figures circle

Tipo de datos

integer

Unidades de medida
  • no. of points
no. of points
Recalling figures: Rhombus
Descripción

recalling figures rhombus

Tipo de datos

integer

Unidades de medida
  • no. of points
no. of points
Recalling figures: Rectangle
Descripción

recalling figures rectangle

Tipo de datos

integer

Unidades de medida
  • no. of points
no. of points
Recalling figures: Cube
Descripción

recalling figures cube

Tipo de datos

integer

Unidades de medida
  • no. of points
no. of points
Total
Descripción

calculated

Tipo de datos

integer

Unidades de medida
  • no. of points
no. of points
Savings
Descripción

calculated

Tipo de datos

integer

Unidades de medida
  • %
%
Total
Descripción

Phonematic fluency: S-words

Tipo de datos

integer

Unidades de medida
  • Sum of correct words
Sum of correct words
TMT A time needed
Descripción

Trail making test

Tipo de datos

integer

Unidades de medida
  • sec
Alias
UMLS CUI [1]
C0040604
sec
TMT B time needed
Descripción

trail making test B

Tipo de datos

integer

Unidades de medida
  • sec
Alias
UMLS CUI [1]
C0040604
sec
TMT B/A
Descripción

calculated

Tipo de datos

float

Alias
UMLS CUI [1]
C0040604
Range of numbers Correct rows forward
Descripción

Wechsler Memory Scale (WMS-R)/Repeating numbers

Tipo de datos

integer

Alias
UMLS CUI [1]
C0451575
Correct rows backwards
Descripción

WMS-R backwards

Tipo de datos

integer

Alias
UMLS CUI [1]
C0451575
MWT-B Test: No. correct words
Descripción

MWT-B

Tipo de datos

integer

BTA- Form N (Numbers)
Descripción

brief test of attention numbers

Tipo de datos

integer

BTA- Form L (letters)
Descripción

brief test of attention letters

Tipo de datos

integer

BTA total
Descripción

calculated

Tipo de datos

integer

z-value
Descripción

BTA z-value

Tipo de datos

integer

Total raw value
Descripción

VOSP - Recognition of objects

Tipo de datos

integer

Alias
UMLS CUI [1]
C0599621
Percentile
Descripción

VOSP pct

Tipo de datos

float

Unidades de medida
  • %
Alias
UMLS CUI [1]
C0599621
%
Total raw value
Descripción

Finding similarities

Tipo de datos

integer

Alias
UMLS CUI [1]
C2348205
z-value
Descripción

finding similarities z-value

Tipo de datos

float

Alias
UMLS CUI [1]
C2348205
The test person was not motivated enough
Descripción

Comments

Tipo de datos

boolean

Alias
UMLS CUI [1]
C0520941
The test person refused to perform the tasks.
Descripción

test person refused tasks

Tipo de datos

boolean

Alias
UMLS CUI [1]
C1136454
The test person had physical problems like e.g. sensorial or motor impairment or pain obviously reducing test performance
Descripción

test person physical problems

Tipo de datos

boolean

Alias
UMLS CUI [1]
C0421228
The test person was cognitively over-challenged performing single task
Descripción

test person overchallenged

Tipo de datos

boolean

Alias
UMLS CUI [1]
C0338656
The test person did not have adequate language knowledge
Descripción

test person language problem

Tipo de datos

boolean

Alias
UMLS CUI [1]
C0814953
If one question was answered 'Yes', please specify your answer:
Descripción

specification comment

Tipo de datos

text

Alias
UMLS CUI [1]
C0947611
The examination was disturbed or interrupted
Descripción

Details about performance of neuropsychologic examination

Tipo de datos

boolean

Alias
UMLS CUI [1,1]
C1512900
UMLS CUI [1,2]
C0027902
There were deviations from standard instruction
Descripción

performance deviation

Tipo de datos

boolean

Alias
UMLS CUI [1,1]
C0027902
UMLS CUI [1,2]
C1705236
Tasks have not been performed.
Descripción

tasks not performed

Tipo de datos

boolean

Alias
UMLS CUI [1]
C0027902
The examination was not compliant to rules for other reasons.
Descripción

performance not conform

Tipo de datos

boolean

Alias
UMLS CUI [1]
C0027902
If one question was answered with 'Yes', please specify, which subtest the given details address and how to assess these.
Descripción

e.g. TMT-B not performed, TMT-A interruption, result not valid

Tipo de datos

text

Alias
UMLS CUI [1]
C0947611
Pill questionnaire
Descripción

Pill questionnaire

not done
Descripción

pill questionnaire not done

Tipo de datos

boolean

Alias
UMLS CUI [1,1]
C0994475
UMLS CUI [1,2]
C0034394
UMLS CUI [1,3]
C1272696
Participant knows name of his pills?
Descripción

Part A: Questions for participant

Tipo de datos

boolean

Alias
UMLS CUI [1]
C2360065
The participant knows in which doses to take the pills and the color of his pills.
Descripción

participant knows doses

Tipo de datos

boolean

Alias
UMLS CUI [1]
C0178602
The participant knows the time table of his medication?
Descripción

participant knows timetable of medications

Tipo de datos

boolean

Alias
UMLS CUI [1]
C3173975
Is the participant able to state medication name, doses or color of the pills and time of intake (3 times 'Yes') correctly?
Descripción

Yes->independent medication (end of test) No->continue with section B

Tipo de datos

boolean

Is the participant able to correctly state time of intake and at least one of the following features name, dosis, pill color?
Descripción

Part B1: Questions for the participant (assistance) Yes->continue with B2 No->continue with B2

Tipo de datos

boolean

Does your relative take his medication totally independent and without control?
Descripción

Part B2: Questions for relatives (if Section B1 'No' as answer)

Tipo de datos

boolean

Alias
UMLS CUI [1,1]
C0013227
UMLS CUI [1,2]
C0085862
Does your relative have to be reminded to take his pills?
Descripción

reminder for pill intake

Tipo de datos

boolean

Alias
UMLS CUI [1]
C0085519
Were there ever any incidence when you had to consult a physician because your relative took his pills in a wrong way?
Descripción

problems because of wrong medication

Tipo de datos

float

Alias
UMLS CUI [1]
C1657765
Was question 1 in section B2 answered 'Yes' and question 2 and 3 answered 'No'?
Descripción

Conclusive assessment for part B Yes->independent medication No->no independent medication

Tipo de datos

boolean

War section B1 answered 'Yes'?
Descripción

Yes->independent medication No->no independent medication

Tipo de datos

boolean

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Similar models

CRF Cognition Module Follow Up

1 formularios
Name
Tipo
Description | Question | Decode (Coded Value)
Tipo de datos
Alias
Item Group
Date of visit
study id
Item
Study-ID:
text
C2826693 (UMLS CUI [1])
date of visit
Item
Date of visit
date
C1320303 (UMLS CUI [1])
visit name
Item
Follow-Up:
text
C1522577 (UMLS CUI [1])
Item Group
Anamnesis cognition 1: Subjective cognitive decline
memory impairment
Item
1. Did your memory changed for the worse?
boolean
C0233794 (UMLS CUI [1])
memory impairment worry
Item
A. If 'yes', does this make you worry?
boolean
C0233794 (UMLS CUI [1,1])
C0233481 (UMLS CUI [1,2])
Item
B. If 'yes', when did deterioration start?
integer
C0233794 (UMLS CUI [1,1])
C0868945 (UMLS CUI [1,2])
C0332162 (UMLS CUI [1,3])
memory impairment onset
Code List
B. If 'yes', when did deterioration start?
CL Item
within the last six month (1)
CL Item
from six month ago on to two years ago (2)
CL Item
from two to five years ago (3)
CL Item
more than five years ago (4)
CL Item
not specified (5)
memory impairment age
Item
C. If 'yes', is your ability in this section worse than of other persons your age?
boolean
C0233794 (UMLS CUI [1,1])
C1707455 (UMLS CUI [1,2])
C0027362 (UMLS CUI [1,3])
memory impairment consult
Item
D. If 'yes', have you ever consulted or talked to your doctor about these problems?
boolean
C0233794 (UMLS CUI [1,1])
C3693724 (UMLS CUI [1,2])
memory impairment consult time
Item
E. If 'yes', when for the first time?
integer
C0233794 (UMLS CUI [1,1])
C3693724 (UMLS CUI [1,2])
word finding
Item
2. Do you have to grope for words more often than before?
boolean
C0454643 (UMLS CUI [1])
word finding worry
Item
A. If 'yes', does this make you worry?
boolean
C0454643 (UMLS CUI [1,1])
C0233481 (UMLS CUI [1,2])
Item
B. If 'yes', when did deterioration start?
integer
C0454643 (UMLS CUI [1,1])
C0868945 (UMLS CUI [1,2])
C0332162 (UMLS CUI [1,3])
memory impairment onset
Code List
B. If 'yes', when did deterioration start?
CL Item
within the last six month (1)
CL Item
from six month ago on to two years ago (2)
CL Item
from two to five years ago (3)
CL Item
more than five years ago (4)
CL Item
not specified (5)
word finding age
Item
C. If 'yes', is your ability in this section worse than of other persons your age?
boolean
C0454643 (UMLS CUI [1,1])
C1707455 (UMLS CUI [1,2])
C0027362 (UMLS CUI [1,3])
word finding consult
Item
D. If 'yes', have you ever consulted or talked to your doctor about these problems?
boolean
C0454643 (UMLS CUI [1,1])
C3693724 (UMLS CUI [1,2])
word finding consult time
Item
E. If 'yes', when for the first time?
integer
C0454643 (UMLS CUI [1,1])
C3693724 (UMLS CUI [1,2])
problems planning
Item
3. Do you have more often problems planning forward-thinking or keeping order?
boolean
C0423907 (UMLS CUI [1])
problems planning worry
Item
A. If 'yes', does this make you worry?
boolean
C0423907 (UMLS CUI [1,1])
C0233481 (UMLS CUI [1,2])
Item
B. If 'yes', when did deterioration start?
integer
C0423907 (UMLS CUI [1,1])
C0868945 (UMLS CUI [1,2])
C0332162 (UMLS CUI [1,3])
memory impairment onset
Code List
B. If 'yes', when did deterioration start?
CL Item
within the last six month (1)
CL Item
from six month ago on to two years ago (2)
CL Item
from two to five years ago (3)
CL Item
more than five years ago (4)
CL Item
not specified (5)
problems planning age
Item
C. If 'yes', is your ability in this section worse than of other persons your age?
boolean
C0423907 (UMLS CUI [1,1])
C1707455 (UMLS CUI [1,2])
C0027362 (UMLS CUI [1,3])
problems planning consult
Item
D. If 'yes', have you ever consulted or talked to your doctor about these problems?
boolean
C0423907 (UMLS CUI [1,1])
C3693724 (UMLS CUI [1,2])
problems planning consult time
Item
E. If 'yes', when for the first time?
integer
making mistakes
Item
4. Do you make mistakes more frequently, if you not fully concentrate on one thing?
boolean
C1821936 (UMLS CUI [1])
making mistakes worry
Item
A. If 'yes', does this make you worry?
boolean
C1821936 (UMLS CUI [1,1])
C0233481 (UMLS CUI [1,2])
Item
B. If 'yes', when did deterioration start?
integer
C1821936 (UMLS CUI [1,1])
C0868945 (UMLS CUI [1,2])
C0332162 (UMLS CUI [1,3])
memory impairment onset
Code List
B. If 'yes', when did deterioration start?
CL Item
within the last six month (1)
CL Item
from six month ago on to two years ago (2)
CL Item
from two to five years ago (3)
CL Item
more than five years ago (4)
CL Item
not specified (5)
making mistakes age
Item
C. If 'yes', is your ability in this section worse than of other persons your age?
boolean
C1821936 (UMLS CUI [1,1])
C1707455 (UMLS CUI [1,2])
C0027362 (UMLS CUI [1,3])
making mistakes consult
Item
D. If 'yes', have you ever consulted or talked to your doctor about these problems?
boolean
C1821936 (UMLS CUI [1,1])
C3693724 (UMLS CUI [1,2])
making mistakes consult time
Item
E. If 'yes', when for the first time?
integer
C1821936 (UMLS CUI [1,1])
C3693724 (UMLS CUI [1,2])
other mental deterioation
Item
5. Did you notice any other mental deterioration? In which sections?
boolean
C0234985 (UMLS CUI [1,1])
C0205394 (UMLS CUI [1,2])
other mental deterioation name
Item
Other mental deterioation:
text
C0234985 (UMLS CUI [1,1])
C0205394 (UMLS CUI [1,2])
other mental deterioation worry
Item
A. If 'yes', does this make you worry?
boolean
C0234985 (UMLS CUI [1,1])
C0205394 (UMLS CUI [1,2])
C0233481 (UMLS CUI [1,3])
Item
B. If 'yes', when did deterioration start?
integer
C0234985 (UMLS CUI [1,1])
C0205394 (UMLS CUI [1,2])
C0868945 (UMLS CUI [1,3])
C0332162 (UMLS CUI [1,4])
memory impairment onset
Code List
B. If 'yes', when did deterioration start?
CL Item
within the last six month (1)
CL Item
from six month ago on to two years ago (2)
CL Item
from two to five years ago (3)
CL Item
more than five years ago (4)
CL Item
not specified (5)
other mental deterioation age
Item
C. If 'yes', is your ability in this section worse than of other persons your age?
boolean
C0234985 (UMLS CUI [1,1])
C0205394 (UMLS CUI [1,2])
C1707455 (UMLS CUI [1,3])
C0027362 (UMLS CUI [1,4])
other mental deterioation consult
Item
D. If 'yes', have you ever consulted or talked to your doctor about these problems?
boolean
C0234985 (UMLS CUI [1,1])
C0205394 (UMLS CUI [1,2])
C3693724 (UMLS CUI [1,3])
other mental deterioation consult time
Item
E. If 'yes', when for the first time?
integer
C0234985 (UMLS CUI [1,1])
C0205394 (UMLS CUI [1,2])
C3693724 (UMLS CUI [1,3])
Item Group
Anamnesis cognition 2: Observed cognitive decline
Item
Presence of informant (Questions may be asked while participant is present)
text
C3842888 (UMLS CUI [1])
presence of informant
Code List
Presence of informant (Questions may be asked while participant is present)
CL Item
no informant present (no informant present)
CL Item
participant refuses interview with relative (participant refuses interview with relative)
Item
Informations are reported by: (only one answer)
text
C1550484 (UMLS CUI [1])
informant
Code List
Informations are reported by: (only one answer)
CL Item
Spouse (Spouse)
CL Item
Child (Child)
CL Item
Brother/Sister (Brother/Sister)
CL Item
Friend (Friend)
CL Item
Other attendant (Other attendant)
memory impairment informant
Item
1. Did the memory of the participant change for the worse?
boolean
C0233794 (UMLS CUI [1])
Item
Start of deterioation:
integer
C0233794 (UMLS CUI [1,1])
C0868945 (UMLS CUI [1,2])
C0332162 (UMLS CUI [1,3])
memory impairment onset
Code List
Start of deterioation:
CL Item
within the last six month (1)
CL Item
from six month ago on to two years ago (2)
CL Item
from two to five years ago (3)
CL Item
more than five years ago (4)
CL Item
not specified (5)
word finding informant
Item
2. Does the participant have frequently problems finding words?
boolean
C0454643 (UMLS CUI [1])
Item
Start of deterioation:
integer
C0454643 (UMLS CUI [1,1])
C0868945 (UMLS CUI [1,2])
C0332162 (UMLS CUI [1,3])
memory impairment onset
Code List
Start of deterioation:
CL Item
within the last six month (1)
CL Item
from six month ago on to two years ago (2)
CL Item
from two to five years ago (3)
CL Item
more than five years ago (4)
CL Item
not specified (5)
problems planning informant
Item
3. Does the participant have more often problems planning forward-thinking or keeping order?
boolean
C0423907 (UMLS CUI [1])
Item
Start of deterioation:
integer
C0423907 (UMLS CUI [1,1])
C0868945 (UMLS CUI [1,2])
C0332162 (UMLS CUI [1,3])
memory impairment onset
Code List
Start of deterioation:
CL Item
within the last six month (1)
CL Item
from six month ago on to two years ago (2)
CL Item
from two to five years ago (3)
CL Item
more than five years ago (4)
CL Item
not specified (5)
making mistakes informant
Item
4. Does the participant make mistakes more frequently, if he not fully concentrates on one thing?
boolean
C1821936 (UMLS CUI [1])
Item
Start of deterioation:
integer
C1821936 (UMLS CUI [1,1])
C0868945 (UMLS CUI [1,2])
C0332162 (UMLS CUI [1,3])
memory impairment onset
Code List
Start of deterioation:
CL Item
within the last six month (1)
CL Item
from six month ago on to two years ago (2)
CL Item
from two to five years ago (3)
CL Item
more than five years ago (4)
CL Item
not specified (5)
other mental deterioation informant
Item
5. Did you notice any other mental deterioration? In which sections?
boolean
C0234985 (UMLS CUI [1,1])
C0205394 (UMLS CUI [1,2])
other mental deterioation name informant
Item
Other mental deterioation:
text
C0234985 (UMLS CUI [1,1])
C0205394 (UMLS CUI [1,2])
Item
Start of deterioation:
integer
C0234985 (UMLS CUI [1,1])
C0205394 (UMLS CUI [1,2])
C0868945 (UMLS CUI [1,3])
C0332162 (UMLS CUI [1,4])
memory impairment onset
Code List
Start of deterioation:
CL Item
within the last six month (1)
CL Item
from six month ago on to two years ago (2)
CL Item
from two to five years ago (3)
CL Item
more than five years ago (4)
CL Item
not specified (5)
personality change
Item
6. Did you notice a change of behavior or personality of the participant?
boolean
C0240735 (UMLS CUI [1])
Item
Start of change:
integer
C0240735 (UMLS CUI [1,1])
C0868945 (UMLS CUI [1,2])
C0332162 (UMLS CUI [1,3])
memory impairment onset
Code List
Start of change:
CL Item
within the last six month (1)
CL Item
from six month ago on to two years ago (2)
CL Item
from two to five years ago (3)
CL Item
more than five years ago (4)
CL Item
not specified (5)
Item Group
Mini mental state examination (MMSE)
orientation in time
Item
1. Orientation 1.1. Orientation in time
integer
C0451306 (UMLS CUI [1])
C0599544 (UMLS CUI [2])
orientation to place
Item
1.2. Orientation to place
integer
C0451306 (UMLS CUI [1])
C2370999 (UMLS CUI [2])
retention in memory
Item
2. Retention in memory
integer
C0451306 (UMLS CUI [1])
C0598851 (UMLS CUI [2])
attention
Item
3. Attention
integer
C0451306 (UMLS CUI [1])
C0004268 (UMLS CUI [2])
memory
Item
4. Powers of recollection
integer
C0451306 (UMLS CUI [1])
C0025260 (UMLS CUI [2])
speech
Item
5. Speech
integer
C0451306 (UMLS CUI [1])
C0037817 (UMLS CUI [2])
drawing
Item
6. Drawing
integer
C0451306 (UMLS CUI [1])
C0013113 (UMLS CUI [2])
total score MMSE
Item
integer
C2225229 (UMLS CUI [1])
Item Group
Neuropsychologic testing
Item
1. Do you have difficulties hearing?
text
C1313969 (UMLS CUI [1])
difficulties hearing
Code List
1. Do you have difficulties hearing?
CL Item
No impairment (speech in normal sound level is understandable, no hearing device) (No impairment (speech in normal sound level is understandable, no hearing device))
CL Item
Mild impairment (only load speech can be understood, hearing aid device necessary) (Mild impairment (only load speech can be understood, hearing aid device necessary))
CL Item
Severe impairment (only if spoken out very loudly speech can be understood, communication very difficult) (Severe impairment (only if spoken out very loudly speech can be understood, communication very difficult))
CL Item
Extreme impairment/ loss of hearing (almost nothing/nothing can be understood) (Extreme impairment/ loss of hearing (almost nothing/nothing can be understood))
Item
2. Do you have difficulties seeing?
text
C3665347 (UMLS CUI [1])
difficulties seeing
Code List
2. Do you have difficulties seeing?
CL Item
No impairment (can see well with glasses on, fine print can be read without any problems) (No impairment (can see well with glasses on, fine print can be read without any problems))
CL Item
Compounded seeing (reading only possible with effort; fatiguing fast; only large type like headlines can be read without effort) (Compounded seeing (reading only possible with effort; fatiguing fast; only large type like headlines can be read without effort))
CL Item
Significant (severe impairment, e.g. cataract, recognize persons and objects, reading only with magnifier) (Significant (severe impairment, e.g. cataract, recognize persons and objects, reading only with magnifier))
CL Item
Severe visual impairment (only seeing shadows, only differing between light- and dark contrasts; blindness or almost blindness) (Severe visual impairment (only seeing shadows, only differing between light- and dark contrasts; blindness or almost blindness))
visus
Item
3. Visus measurement
float
C0042812 (UMLS CUI [1])
start of test
Item
Start of testing (time):
time
C0449244 (UMLS CUI [1])
initials of head of test
Item
Initials of head of test
text
C2986440 (UMLS CUI [1])
verbal fluency
Item
Verbal fluency: Category animals Total score
integer
C2121096 (UMLS CUI [1,1])
C0871945 (UMLS CUI [1,2])
Boston naming test
Item
Boston naming test Total score
integer
C0451037 (UMLS CUI [1])
Item
Please name version of word list:
text
C0456660 (UMLS CUI [1])
version of wordlist
Code List
Please name version of word list:
CL Item
Version 1 (Version 1)
CL Item
Version 2 (Version 2)
CL Item
Version 3 (Version 3)
first round of test right answers
Item
1. Round: No. of correct answers
integer
C0456984 (UMLS CUI [1,1])
C0456660 (UMLS CUI [1,2])
second round of test right answers
Item
2. Round: No. of correct answers
integer
C0456984 (UMLS CUI [1,1])
C0456660 (UMLS CUI [1,2])
third round of test right answers
Item
3. Round: No. of correct answers
integer
C0456984 (UMLS CUI [1,1])
C0456660 (UMLS CUI [1,2])
first round of test intrusion
Item
1. Round: No. intrusions
integer
C0456984 (UMLS CUI [1,1])
C0456660 (UMLS CUI [1,2])
second round of test intrusions
Item
2. Round: No. intrusions
integer
C0456984 (UMLS CUI [1,1])
C0456660 (UMLS CUI [1,2])
third round of test intrusions
Item
3. Round: No. of intrusions
integer
C0456984 (UMLS CUI [1,1])
C0456660 (UMLS CUI [1,2])
total score wordlist
Item
Total score
integer
figure drawing circle
Item
Drawing figures: Circle
integer
C0456984 (UMLS CUI [1,1])
C0204463 (UMLS CUI [1,2])
C1282913 (UMLS CUI [1,3])
drawing figures rhombus
Item
Drawing figures: Rhombus
integer
C0456984 (UMLS CUI [1,1])
C0204463 (UMLS CUI [1,2])
drawing figures rectangle
Item
Drawing figures: Rectangle
integer
C0204463 (UMLS CUI [1,1])
C0205142 (UMLS CUI [1,2])
drawing figures cube
Item
Drawing figures: Cube
integer
C0204463 (UMLS CUI [1,1])
C1880194 (UMLS CUI [1,2])
recalling wordlist
Item
Wordlist recall: Total number of correct answers
integer
C0456984 (UMLS CUI [1,1])
C0456660 (UMLS CUI [1,2])
recalling wordlist intrusions
Item
Recalling wordlist: Total number of intrusions
integer
C0456984 (UMLS CUI [1,1])
C0456660 (UMLS CUI [1,2])
total intrusions
Item
Intrusions total
integer
C0456984 (UMLS CUI [1,1])
C0456660 (UMLS CUI [1,2])
savings
Item
Savings
integer
recognizing wordlist
Item
Recognizing wordlist: No. recognized as old
integer
C0456984 (UMLS CUI [1,1])
C0456660 (UMLS CUI [1,2])
recognizing wordlist as new
Item
Recognizing wordlist: No. recognized as new
text
C0456984 (UMLS CUI [1,1])
C0456660 (UMLS CUI [1,2])
discriminability
Item
Discriminability
integer
recalling figures circle
Item
Recalling figures: Circle
integer
recalling figures rhombus
Item
Recalling figures: Rhombus
integer
recalling figures rectangle
Item
Recalling figures: Rectangle
integer
recalling figures cube
Item
Recalling figures: Cube
integer
recalling figures total
Item
Total
integer
recalling figures savings
Item
Savings
integer
phonematic fluency
Item
Total
integer
trail making test A
Item
TMT A time needed
integer
C0040604 (UMLS CUI [1])
trail making test B
Item
TMT B time needed
integer
C0040604 (UMLS CUI [1])
TMT
Item
TMT B/A
float
C0040604 (UMLS CUI [1])
WMS-R
Item
Range of numbers Correct rows forward
integer
C0451575 (UMLS CUI [1])
WMS-R backwards
Item
Correct rows backwards
integer
C0451575 (UMLS CUI [1])
MWT-B
Item
MWT-B Test: No. correct words
integer
brief test of attention numbers
Item
BTA- Form N (Numbers)
integer
brief test of attention letters
Item
BTA- Form L (letters)
integer
BTA total
Item
BTA total
integer
BTA z-value
Item
z-value
integer
VOSP
Item
Total raw value
integer
C0599621 (UMLS CUI [1])
VOSP pct
Item
Percentile
float
C0599621 (UMLS CUI [1])
finding similaraties
Item
Total raw value
integer
C2348205 (UMLS CUI [1])
finding similarities z-value
Item
z-value
float
C2348205 (UMLS CUI [1])
test person unmotivated
Item
The test person was not motivated enough
boolean
C0520941 (UMLS CUI [1])
test person refused tasks
Item
The test person refused to perform the tasks.
boolean
C1136454 (UMLS CUI [1])
test person physical problems
Item
The test person had physical problems like e.g. sensorial or motor impairment or pain obviously reducing test performance
boolean
C0421228 (UMLS CUI [1])
test person overchallenged
Item
The test person was cognitively over-challenged performing single task
boolean
C0338656 (UMLS CUI [1])
test person language problem
Item
The test person did not have adequate language knowledge
boolean
C0814953 (UMLS CUI [1])
specification comment
Item
If one question was answered 'Yes', please specify your answer:
text
C0947611 (UMLS CUI [1])
performance disturbed or interrupted
Item
The examination was disturbed or interrupted
boolean
C1512900 (UMLS CUI [1,1])
C0027902 (UMLS CUI [1,2])
performance deviation
Item
There were deviations from standard instruction
boolean
C0027902 (UMLS CUI [1,1])
C1705236 (UMLS CUI [1,2])
tasks not performed
Item
Tasks have not been performed.
boolean
C0027902 (UMLS CUI [1])
performance not conform
Item
The examination was not compliant to rules for other reasons.
boolean
C0027902 (UMLS CUI [1])
performance comment
Item
If one question was answered with 'Yes', please specify, which subtest the given details address and how to assess these.
text
C0947611 (UMLS CUI [1])
Item Group
Pill questionnaire
pill questionnaire not done
Item
not done
boolean
C0994475 (UMLS CUI [1,1])
C0034394 (UMLS CUI [1,2])
C1272696 (UMLS CUI [1,3])
participant knows names of pills
Item
Participant knows name of his pills?
boolean
C2360065 (UMLS CUI [1])
participant knows doses
Item
The participant knows in which doses to take the pills and the color of his pills.
boolean
C0178602 (UMLS CUI [1])
participant knows timetable of medications
Item
The participant knows the time table of his medication?
boolean
C3173975 (UMLS CUI [1])
correct answers part A
Item
Is the participant able to state medication name, doses or color of the pills and time of intake (3 times 'Yes') correctly?
boolean
part B1
Item
Is the participant able to correctly state time of intake and at least one of the following features name, dosis, pill color?
boolean
self-employed medication
Item
Does your relative take his medication totally independent and without control?
boolean
C0013227 (UMLS CUI [1,1])
C0085862 (UMLS CUI [1,2])
reminder for pill intake
Item
Does your relative have to be reminded to take his pills?
boolean
C0085519 (UMLS CUI [1])
problems because of wrong medication
Item
Were there ever any incidence when you had to consult a physician because your relative took his pills in a wrong way?
float
C1657765 (UMLS CUI [1])
conclusive assessment
Item
Was question 1 in section B2 answered 'Yes' and question 2 and 3 answered 'No'?
boolean
conclusive assessment part B1
Item
War section B1 answered 'Yes'?
boolean
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