ID
13987
Beschreibung
Background and Purpose: The purpose of the DESCRIBE study is to document the natural course of diseases in context of medical care of neurodegenerative disorders as well as cerebrovascular diseases and to perform phenotyping of the test persons. Disease-spanning analyses of the measured clincial data, the results of the imaging processes, results of the analysis of the biometerials including genetic analysis are planed. Principal Investigator: Prof. Klockgether, Dr. Spottke DZNE, Bonn. Source: DESCRIBE-Studie http://www.dzne.de/forschung/forschungsbereiche/klinische-forschung/studien/describe-bn006.html Participating Study Sites: Berlin, Bonn, Göttingen, Dresden, Köln, Magdeburg, München, Rostock/Greifswald, Tübingen
Link
http://www.dzne.de/forschung/forschungsbereiche/klinische-forschung/studien/describe-bn006.html
Stichworte
Versionen (1)
- 21.03.16 21.03.16 -
Hochgeladen am
21. März 2016
DOI
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Lizenz
Creative Commons BY-NC 3.0
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DESCRIBE (DZNE – Clinical Register Study of neurodegenerative Disorders) CRF Cognition Module Follow-Up
CRF Cognition Module Follow Up
- StudyEvent: ODM
Beschreibung
Anamnesis cognition 1: Subjective cognitive decline
Beschreibung
Structured interview about cognitive disorders. All questions need to be asked using original wording. The physician aks follow-up questions for every question that was affirmed by the participant. -> Now I want to aks you some question, to understand the sort of complaints correctly:
Datentyp
boolean
Alias
- UMLS CUI [1]
- C0233794
Beschreibung
memory impairment worry
Datentyp
boolean
Alias
- UMLS CUI [1,1]
- C0233794
- UMLS CUI [1,2]
- C0233481
Beschreibung
memory impairment onset
Datentyp
integer
Alias
- UMLS CUI [1,1]
- C0233794
- UMLS CUI [1,2]
- C0868945
- UMLS CUI [1,3]
- C0332162
Beschreibung
memory impairment age
Datentyp
boolean
Alias
- UMLS CUI [1,1]
- C0233794
- UMLS CUI [1,2]
- C1707455
- UMLS CUI [1,3]
- C0027362
Beschreibung
memory impairment consult
Datentyp
boolean
Alias
- UMLS CUI [1,1]
- C0233794
- UMLS CUI [1,2]
- C3693724
Beschreibung
memory impairment consult time
Datentyp
integer
Maßeinheiten
- months
Alias
- UMLS CUI [1,1]
- C0233794
- UMLS CUI [1,2]
- C3693724
Beschreibung
word finding
Datentyp
boolean
Alias
- UMLS CUI [1]
- C0454643
Beschreibung
word finding worry
Datentyp
boolean
Alias
- UMLS CUI [1,1]
- C0454643
- UMLS CUI [1,2]
- C0233481
Beschreibung
word finding onset
Datentyp
integer
Alias
- UMLS CUI [1,1]
- C0454643
- UMLS CUI [1,2]
- C0868945
- UMLS CUI [1,3]
- C0332162
Beschreibung
word finding age
Datentyp
boolean
Alias
- UMLS CUI [1,1]
- C0454643
- UMLS CUI [1,2]
- C1707455
- UMLS CUI [1,3]
- C0027362
Beschreibung
word finding consult
Datentyp
boolean
Alias
- UMLS CUI [1,1]
- C0454643
- UMLS CUI [1,2]
- C3693724
Beschreibung
word finding consult time
Datentyp
integer
Maßeinheiten
- months
Alias
- UMLS CUI [1,1]
- C0454643
- UMLS CUI [1,2]
- C3693724
Beschreibung
problems planning
Datentyp
boolean
Alias
- UMLS CUI [1]
- C0423907
Beschreibung
problems planning worry
Datentyp
boolean
Alias
- UMLS CUI [1,1]
- C0423907
- UMLS CUI [1,2]
- C0233481
Beschreibung
problems planning onset
Datentyp
integer
Alias
- UMLS CUI [1,1]
- C0423907
- UMLS CUI [1,2]
- C0868945
- UMLS CUI [1,3]
- C0332162
Beschreibung
problems planning age
Datentyp
boolean
Alias
- UMLS CUI [1,1]
- C0423907
- UMLS CUI [1,2]
- C1707455
- UMLS CUI [1,3]
- C0027362
Beschreibung
problems planning consult
Datentyp
boolean
Alias
- UMLS CUI [1,1]
- C0423907
- UMLS CUI [1,2]
- C3693724
Beschreibung
problems planning consult time
Datentyp
integer
Maßeinheiten
- months
Beschreibung
making mistakes
Datentyp
boolean
Alias
- UMLS CUI [1]
- C1821936
Beschreibung
making mistakes worry
Datentyp
boolean
Alias
- UMLS CUI [1,1]
- C1821936
- UMLS CUI [1,2]
- C0233481
Beschreibung
making mistakes onset
Datentyp
integer
Alias
- UMLS CUI [1,1]
- C1821936
- UMLS CUI [1,2]
- C0868945
- UMLS CUI [1,3]
- C0332162
Beschreibung
making mistakes age
Datentyp
boolean
Alias
- UMLS CUI [1,1]
- C1821936
- UMLS CUI [1,2]
- C1707455
- UMLS CUI [1,3]
- C0027362
Beschreibung
making mistakes consult
Datentyp
boolean
Alias
- UMLS CUI [1,1]
- C1821936
- UMLS CUI [1,2]
- C3693724
Beschreibung
making mistakes consult time
Datentyp
integer
Maßeinheiten
- months
Alias
- UMLS CUI [1,1]
- C1821936
- UMLS CUI [1,2]
- C3693724
Beschreibung
other mental deterioation
Datentyp
boolean
Alias
- UMLS CUI [1,1]
- C0234985
- UMLS CUI [1,2]
- C0205394
Beschreibung
other mental deterioation name
Datentyp
text
Alias
- UMLS CUI [1,1]
- C0234985
- UMLS CUI [1,2]
- C0205394
Beschreibung
other mental deterioation worry
Datentyp
boolean
Alias
- UMLS CUI [1,1]
- C0234985
- UMLS CUI [1,2]
- C0205394
- UMLS CUI [1,3]
- C0233481
Beschreibung
other mental deterioation onset
Datentyp
integer
Alias
- UMLS CUI [1,1]
- C0234985
- UMLS CUI [1,2]
- C0205394
- UMLS CUI [1,3]
- C0868945
- UMLS CUI [1,4]
- C0332162
Beschreibung
other mental deterioation age
Datentyp
boolean
Alias
- UMLS CUI [1,1]
- C0234985
- UMLS CUI [1,2]
- C0205394
- UMLS CUI [1,3]
- C1707455
- UMLS CUI [1,4]
- C0027362
Beschreibung
other mental deterioation consult
Datentyp
boolean
Alias
- UMLS CUI [1,1]
- C0234985
- UMLS CUI [1,2]
- C0205394
- UMLS CUI [1,3]
- C3693724
Beschreibung
other mental deterioation consult time
Datentyp
integer
Maßeinheiten
- months
Alias
- UMLS CUI [1,1]
- C0234985
- UMLS CUI [1,2]
- C0205394
- UMLS CUI [1,3]
- C3693724
Beschreibung
Anamnesis cognition 2: Observed cognitive decline
Beschreibung
Quetions for informant
Datentyp
text
Alias
- UMLS CUI [1]
- C3842888
Beschreibung
informant
Datentyp
text
Alias
- UMLS CUI [1]
- C1550484
Beschreibung
All questions need to be ask using original wording. Please answer for each main question answered with 'yes' for onset.
Datentyp
boolean
Alias
- UMLS CUI [1]
- C0233794
Beschreibung
memory impairment onset informant
Datentyp
integer
Alias
- UMLS CUI [1,1]
- C0233794
- UMLS CUI [1,2]
- C0868945
- UMLS CUI [1,3]
- C0332162
Beschreibung
word finding informant
Datentyp
boolean
Alias
- UMLS CUI [1]
- C0454643
Beschreibung
word finding onset informant
Datentyp
integer
Alias
- UMLS CUI [1,1]
- C0454643
- UMLS CUI [1,2]
- C0868945
- UMLS CUI [1,3]
- C0332162
Beschreibung
problems planning informant
Datentyp
boolean
Alias
- UMLS CUI [1]
- C0423907
Beschreibung
problems planning onset informant
Datentyp
integer
Alias
- UMLS CUI [1,1]
- C0423907
- UMLS CUI [1,2]
- C0868945
- UMLS CUI [1,3]
- C0332162
Beschreibung
making mistakes informant
Datentyp
boolean
Alias
- UMLS CUI [1]
- C1821936
Beschreibung
making mistakes onset informant
Datentyp
integer
Alias
- UMLS CUI [1,1]
- C1821936
- UMLS CUI [1,2]
- C0868945
- UMLS CUI [1,3]
- C0332162
Beschreibung
other mental deterioation informant
Datentyp
boolean
Alias
- UMLS CUI [1,1]
- C0234985
- UMLS CUI [1,2]
- C0205394
Beschreibung
other mental deterioation name informant
Datentyp
text
Alias
- UMLS CUI [1,1]
- C0234985
- UMLS CUI [1,2]
- C0205394
Beschreibung
other mental deterioation onset informant
Datentyp
integer
Alias
- UMLS CUI [1,1]
- C0234985
- UMLS CUI [1,2]
- C0205394
- UMLS CUI [1,3]
- C0868945
- UMLS CUI [1,4]
- C0332162
Beschreibung
personality change
Datentyp
boolean
Alias
- UMLS CUI [1]
- C0240735
Beschreibung
personality change onset
Datentyp
integer
Alias
- UMLS CUI [1,1]
- C0240735
- UMLS CUI [1,2]
- C0868945
- UMLS CUI [1,3]
- C0332162
Beschreibung
Mini mental state examination (MMSE)
Beschreibung
Number of correct answers
Datentyp
integer
Alias
- UMLS CUI [1]
- C0451306
- UMLS CUI [2]
- C0599544
Beschreibung
Number of correct answers
Datentyp
integer
Alias
- UMLS CUI [1]
- C0451306
- UMLS CUI [2]
- C2370999
Beschreibung
Number of correct answers
Datentyp
integer
Alias
- UMLS CUI [1]
- C0451306
- UMLS CUI [2]
- C0598851
Beschreibung
Number of correct answers
Datentyp
integer
Alias
- UMLS CUI [1]
- C0451306
- UMLS CUI [2]
- C0004268
Beschreibung
Number of correct answers
Datentyp
integer
Alias
- UMLS CUI [1]
- C0451306
- UMLS CUI [2]
- C0025260
Beschreibung
Number of correct answers
Datentyp
integer
Alias
- UMLS CUI [1]
- C0451306
- UMLS CUI [2]
- C0037817
Beschreibung
Number of correct answers
Datentyp
integer
Alias
- UMLS CUI [1]
- C0451306
- UMLS CUI [2]
- C0013113
Beschreibung
total score MMSE
Datentyp
integer
Alias
- UMLS CUI [1]
- C2225229
Beschreibung
Neuropsychologic testing
Beschreibung
Orientating sensory evaluation
Datentyp
text
Alias
- UMLS CUI [1]
- C1313969
Beschreibung
difficulties seeing
Datentyp
text
Alias
- UMLS CUI [1]
- C3665347
Beschreibung
visus
Datentyp
float
Alias
- UMLS CUI [1]
- C0042812
Beschreibung
start of test
Datentyp
time
Alias
- UMLS CUI [1]
- C0449244
Beschreibung
initials of head of test
Datentyp
text
Alias
- UMLS CUI [1]
- C2986440
Beschreibung
CERAD plus test battery
Datentyp
integer
Maßeinheiten
- Sum of correct words
Alias
- UMLS CUI [1,1]
- C2121096
- UMLS CUI [1,2]
- C0871945
Beschreibung
Boston naming test
Datentyp
integer
Maßeinheiten
- Sum of correct words
Alias
- UMLS CUI [1]
- C0451037
Beschreibung
Wordlist lerning
Datentyp
text
Alias
- UMLS CUI [1]
- C0456660
Beschreibung
first round of test right answers
Datentyp
integer
Alias
- UMLS CUI [1,1]
- C0456984
- UMLS CUI [1,2]
- C0456660
Beschreibung
second round of test right answers
Datentyp
integer
Alias
- UMLS CUI [1,1]
- C0456984
- UMLS CUI [1,2]
- C0456660
Beschreibung
third round of test right answers
Datentyp
integer
Alias
- UMLS CUI [1,1]
- C0456984
- UMLS CUI [1,2]
- C0456660
Beschreibung
first round of test intrusion
Datentyp
integer
Alias
- UMLS CUI [1,1]
- C0456984
- UMLS CUI [1,2]
- C0456660
Beschreibung
second round of test intrusions
Datentyp
integer
Alias
- UMLS CUI [1,1]
- C0456984
- UMLS CUI [1,2]
- C0456660
Beschreibung
third round of test intrusions
Datentyp
integer
Alias
- UMLS CUI [1,1]
- C0456984
- UMLS CUI [1,2]
- C0456660
Beschreibung
total score wordlist
Datentyp
integer
Beschreibung
Drawing figures
Datentyp
integer
Maßeinheiten
- no. of points
Alias
- UMLS CUI [1,1]
- C0456984
- UMLS CUI [1,2]
- C0204463
- UMLS CUI [1,3]
- C1282913
Beschreibung
drawing figures rhombus
Datentyp
integer
Maßeinheiten
- no. of points
Alias
- UMLS CUI [1,1]
- C0456984
- UMLS CUI [1,2]
- C0204463
Beschreibung
drawing figures rectangle
Datentyp
integer
Maßeinheiten
- no. of points
Alias
- UMLS CUI [1,1]
- C0204463
- UMLS CUI [1,2]
- C0205142
Beschreibung
drawing figures cube
Datentyp
integer
Maßeinheiten
- no. of points
Alias
- UMLS CUI [1,1]
- C0204463
- UMLS CUI [1,2]
- C1880194
Beschreibung
Wordlist recall
Datentyp
integer
Alias
- UMLS CUI [1,1]
- C0456984
- UMLS CUI [1,2]
- C0456660
Beschreibung
recalling wordlist intrusions
Datentyp
integer
Alias
- UMLS CUI [1,1]
- C0456984
- UMLS CUI [1,2]
- C0456660
Beschreibung
calculated
Datentyp
integer
Alias
- UMLS CUI [1,1]
- C0456984
- UMLS CUI [1,2]
- C0456660
Beschreibung
calculated
Datentyp
integer
Maßeinheiten
- %
Beschreibung
recognizing wordlist
Datentyp
integer
Alias
- UMLS CUI [1,1]
- C0456984
- UMLS CUI [1,2]
- C0456660
Beschreibung
recognizing wordlist as new
Datentyp
text
Alias
- UMLS CUI [1,1]
- C0456984
- UMLS CUI [1,2]
- C0456660
Beschreibung
calculated
Datentyp
integer
Maßeinheiten
- %
Beschreibung
recalling figures circle
Datentyp
integer
Maßeinheiten
- no. of points
Beschreibung
recalling figures rhombus
Datentyp
integer
Maßeinheiten
- no. of points
Beschreibung
recalling figures rectangle
Datentyp
integer
Maßeinheiten
- no. of points
Beschreibung
recalling figures cube
Datentyp
integer
Maßeinheiten
- no. of points
Beschreibung
calculated
Datentyp
integer
Maßeinheiten
- no. of points
Beschreibung
calculated
Datentyp
integer
Maßeinheiten
- %
Beschreibung
Phonematic fluency: S-words
Datentyp
integer
Maßeinheiten
- Sum of correct words
Beschreibung
Trail making test
Datentyp
integer
Maßeinheiten
- sec
Alias
- UMLS CUI [1]
- C0040604
Beschreibung
trail making test B
Datentyp
integer
Maßeinheiten
- sec
Alias
- UMLS CUI [1]
- C0040604
Beschreibung
calculated
Datentyp
float
Alias
- UMLS CUI [1]
- C0040604
Beschreibung
Wechsler Memory Scale (WMS-R)/Repeating numbers
Datentyp
integer
Alias
- UMLS CUI [1]
- C0451575
Beschreibung
WMS-R backwards
Datentyp
integer
Alias
- UMLS CUI [1]
- C0451575
Beschreibung
MWT-B
Datentyp
integer
Beschreibung
brief test of attention numbers
Datentyp
integer
Beschreibung
brief test of attention letters
Datentyp
integer
Beschreibung
calculated
Datentyp
integer
Beschreibung
BTA z-value
Datentyp
integer
Beschreibung
VOSP - Recognition of objects
Datentyp
integer
Alias
- UMLS CUI [1]
- C0599621
Beschreibung
VOSP pct
Datentyp
float
Maßeinheiten
- %
Alias
- UMLS CUI [1]
- C0599621
Beschreibung
Finding similarities
Datentyp
integer
Alias
- UMLS CUI [1]
- C2348205
Beschreibung
finding similarities z-value
Datentyp
float
Alias
- UMLS CUI [1]
- C2348205
Beschreibung
Comments
Datentyp
boolean
Alias
- UMLS CUI [1]
- C0520941
Beschreibung
test person refused tasks
Datentyp
boolean
Alias
- UMLS CUI [1]
- C1136454
Beschreibung
test person physical problems
Datentyp
boolean
Alias
- UMLS CUI [1]
- C0421228
Beschreibung
test person overchallenged
Datentyp
boolean
Alias
- UMLS CUI [1]
- C0338656
Beschreibung
test person language problem
Datentyp
boolean
Alias
- UMLS CUI [1]
- C0814953
Beschreibung
specification comment
Datentyp
text
Alias
- UMLS CUI [1]
- C0947611
Beschreibung
Details about performance of neuropsychologic examination
Datentyp
boolean
Alias
- UMLS CUI [1,1]
- C1512900
- UMLS CUI [1,2]
- C0027902
Beschreibung
performance deviation
Datentyp
boolean
Alias
- UMLS CUI [1,1]
- C0027902
- UMLS CUI [1,2]
- C1705236
Beschreibung
tasks not performed
Datentyp
boolean
Alias
- UMLS CUI [1]
- C0027902
Beschreibung
performance not conform
Datentyp
boolean
Alias
- UMLS CUI [1]
- C0027902
Beschreibung
e.g. TMT-B not performed, TMT-A interruption, result not valid
Datentyp
text
Alias
- UMLS CUI [1]
- C0947611
Beschreibung
Pill questionnaire
Beschreibung
pill questionnaire not done
Datentyp
boolean
Alias
- UMLS CUI [1,1]
- C0994475
- UMLS CUI [1,2]
- C0034394
- UMLS CUI [1,3]
- C1272696
Beschreibung
Part A: Questions for participant
Datentyp
boolean
Alias
- UMLS CUI [1]
- C2360065
Beschreibung
participant knows doses
Datentyp
boolean
Alias
- UMLS CUI [1]
- C0178602
Beschreibung
participant knows timetable of medications
Datentyp
boolean
Alias
- UMLS CUI [1]
- C3173975
Beschreibung
Yes->independent medication (end of test) No->continue with section B
Datentyp
boolean
Beschreibung
Part B1: Questions for the participant (assistance) Yes->continue with B2 No->continue with B2
Datentyp
boolean
Beschreibung
Part B2: Questions for relatives (if Section B1 'No' as answer)
Datentyp
boolean
Alias
- UMLS CUI [1,1]
- C0013227
- UMLS CUI [1,2]
- C0085862
Beschreibung
reminder for pill intake
Datentyp
boolean
Alias
- UMLS CUI [1]
- C0085519
Beschreibung
problems because of wrong medication
Datentyp
float
Alias
- UMLS CUI [1]
- C1657765
Beschreibung
Conclusive assessment for part B Yes->independent medication No->no independent medication
Datentyp
boolean
Beschreibung
Yes->independent medication No->no independent medication
Datentyp
boolean
Ähnliche Modelle
CRF Cognition Module Follow Up
- StudyEvent: ODM
C0233481 (UMLS CUI [1,2])
C0868945 (UMLS CUI [1,2])
C0332162 (UMLS CUI [1,3])
C1707455 (UMLS CUI [1,2])
C0027362 (UMLS CUI [1,3])
C3693724 (UMLS CUI [1,2])
C3693724 (UMLS CUI [1,2])
C0233481 (UMLS CUI [1,2])
C0868945 (UMLS CUI [1,2])
C0332162 (UMLS CUI [1,3])
C1707455 (UMLS CUI [1,2])
C0027362 (UMLS CUI [1,3])
C3693724 (UMLS CUI [1,2])
C3693724 (UMLS CUI [1,2])
C0233481 (UMLS CUI [1,2])
C0868945 (UMLS CUI [1,2])
C0332162 (UMLS CUI [1,3])
C1707455 (UMLS CUI [1,2])
C0027362 (UMLS CUI [1,3])
C3693724 (UMLS CUI [1,2])
C0233481 (UMLS CUI [1,2])
C0868945 (UMLS CUI [1,2])
C0332162 (UMLS CUI [1,3])
C1707455 (UMLS CUI [1,2])
C0027362 (UMLS CUI [1,3])
C3693724 (UMLS CUI [1,2])
C3693724 (UMLS CUI [1,2])
C0205394 (UMLS CUI [1,2])
C0205394 (UMLS CUI [1,2])
C0205394 (UMLS CUI [1,2])
C0233481 (UMLS CUI [1,3])
C0205394 (UMLS CUI [1,2])
C0868945 (UMLS CUI [1,3])
C0332162 (UMLS CUI [1,4])
C0205394 (UMLS CUI [1,2])
C1707455 (UMLS CUI [1,3])
C0027362 (UMLS CUI [1,4])
C0205394 (UMLS CUI [1,2])
C3693724 (UMLS CUI [1,3])
C0205394 (UMLS CUI [1,2])
C3693724 (UMLS CUI [1,3])
C0868945 (UMLS CUI [1,2])
C0332162 (UMLS CUI [1,3])
C0868945 (UMLS CUI [1,2])
C0332162 (UMLS CUI [1,3])
C0868945 (UMLS CUI [1,2])
C0332162 (UMLS CUI [1,3])
C0868945 (UMLS CUI [1,2])
C0332162 (UMLS CUI [1,3])
C0205394 (UMLS CUI [1,2])
C0205394 (UMLS CUI [1,2])
C0205394 (UMLS CUI [1,2])
C0868945 (UMLS CUI [1,3])
C0332162 (UMLS CUI [1,4])
C0868945 (UMLS CUI [1,2])
C0332162 (UMLS CUI [1,3])
C0599544 (UMLS CUI [2])
C2370999 (UMLS CUI [2])
C0598851 (UMLS CUI [2])
C0004268 (UMLS CUI [2])
C0025260 (UMLS CUI [2])
C0037817 (UMLS CUI [2])
C0013113 (UMLS CUI [2])
C0871945 (UMLS CUI [1,2])
C0456660 (UMLS CUI [1,2])
C0456660 (UMLS CUI [1,2])
C0456660 (UMLS CUI [1,2])
C0456660 (UMLS CUI [1,2])
C0456660 (UMLS CUI [1,2])
C0456660 (UMLS CUI [1,2])
C0204463 (UMLS CUI [1,2])
C1282913 (UMLS CUI [1,3])
C0204463 (UMLS CUI [1,2])
C0205142 (UMLS CUI [1,2])
C1880194 (UMLS CUI [1,2])
C0456660 (UMLS CUI [1,2])
C0456660 (UMLS CUI [1,2])
C0456660 (UMLS CUI [1,2])
C0456660 (UMLS CUI [1,2])
C0456660 (UMLS CUI [1,2])
C0027902 (UMLS CUI [1,2])
C1705236 (UMLS CUI [1,2])
C0034394 (UMLS CUI [1,2])
C1272696 (UMLS CUI [1,3])
C0085862 (UMLS CUI [1,2])