ID

13906

Beschrijving

Background and Purpose: The purpose of the DESCRIBE study is to document the natural course of diseases in context of medical care of neurodegenerative disorders as well as cerebrovascular diseases and to perform phenotyping of the test persons. Disease-spanning analyses of the measured clincial data, the results of the imaging processes, results of the analysis of the biometerials including genetic analysis are planed. Principal Investigator: Prof. Klockgether, Dr. Spottke DZNE, Bonn. Source: DESCRIBE-Studie http://www.dzne.de/forschung/forschungsbereiche/klinische-forschung/studien/describe-bn006.html Participating Study Sites: Berlin, Bonn, Göttingen, Dresden, Köln, Magdeburg, München, Rostock/Greifswald, Tübingen

Link

http://www.dzne.de/forschung/forschungsbereiche/klinische-forschung/studien/describe-bn006.html

Trefwoorden

Versies (2)
  1. 15-03-16 15-03-16 -
  2. 16-03-16 16-03-16 -
Geüploaded op

15 maart 2016

DOI

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Licentie

Creative Commons BY-NC 3.0
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DESCRIBE (DZNE – Clinical Register Study of neurodegenerative Disorders) CRF Continuous Documentation

Engels

CRF Continuous Documentation

1 Formulieren  
Diseases
Beschrijving

Diseases

Alias
UMLS CUI-1
C0012634
Study-ID:
Beschrijving

study id

Datatype

text

Alias
UMLS CUI [1]
C2826693
Does the participant have any pre-existing conditions or comorbidities?
Beschrijving

If 'yes' please fill-out the following table

Datatype

boolean

Alias
UMLS CUI [1]
C0521987
UMLS CUI [2]
C0009488
Documentation of diseases
Beschrijving

Documentation of diseases

No.
Beschrijving

no of diagnosis

Datatype

integer

Alias
UMLS CUI [1,1]
C0237753
UMLS CUI [1,2]
C0011900
Diagnosis
Beschrijving

Please regard the following diagnoses: Hypertension, diabetes mellitus, hypercholesterolemia, stroke, epilepsy, heart attack, recurrent depressive episode, neoplasms, thyroid disease, renal insufficiency. You can use the checklist pre-existing condition. In the database one can choose the ICD-Code after data entry.

Datatype

text

Alias
UMLS CUI [1]
C0011900
Onset of disease
Beschrijving

onset of disease

Datatype

date

Alias
UMLS CUI [1]
C0277793
End of disease
Beschrijving

end of disease

Datatype

date

Alias
UMLS CUI [1]
C4019088
Disease enduring
Beschrijving

enduring

Datatype

boolean

Alias
UMLS CUI [1]
C1314677
Checklist pre-existing conditions
Beschrijving

Checklist pre-existing conditions

No. 1 Hypertension
Beschrijving

hypertension diagnosed

Datatype

text

Alias
UMLS CUI [1]
C0020538
Initial diagnosis
Beschrijving

date initial diagnosis hypertension

Datatype

date

Alias
UMLS CUI [1,1]
C0020538
UMLS CUI [1,2]
C2316983
No.2 Hypercholesterolemia
Beschrijving

hypercholesterolemia

Datatype

text

Alias
UMLS CUI [1]
C0020443
Initial diagnosis
Beschrijving

date initial diagnosis hypercholesterolemia

Datatype

date

Alias
UMLS CUI [1,1]
C0020443
UMLS CUI [1,2]
C2316983
No.3 Hypertriglyceridemia
Beschrijving

hypertriglyceridemia

Datatype

text

Alias
UMLS CUI [1]
C0020557
Initial diagnosis
Beschrijving

date initial diagnosis hypertriglyceridemia

Datatype

date

Alias
UMLS CUI [1,1]
C0020557
UMLS CUI [1,2]
C2316983
No.4 Other hyperlipedimia or dyslipidemia
Beschrijving

hyperlipedimia or dyslipidemia

Datatype

text

Alias
UMLS CUI [1]
C0020473
UMLS CUI [2]
C0242339
Initial diagnosis
Beschrijving

initial diagnosis of hyperlipedimia or dyslipedimia

Datatype

date

Alias
UMLS CUI [1,1]
C0020473
UMLS CUI [1,2]
C2316983
UMLS CUI [2,1]
C0242339
UMLS CUI [2,2]
C2316983
No. 5 Diabetes mellitus type 1
Beschrijving

diabetes mellitus type 1

Datatype

text

Alias
UMLS CUI [1]
C0011854
Initial diagnosis
Beschrijving

initial diagnosis of diabetes type 1

Datatype

date

Alias
UMLS CUI [1,1]
C0011854
UMLS CUI [1,2]
C2316983
No. 6 Diabetes mellitus type 2
Beschrijving

diabetes mellitus type 2

Datatype

text

Alias
UMLS CUI [1]
C0011860
Initial diagnosis
Beschrijving

initial diagnosis of diabetes type 2

Datatype

date

Alias
UMLS CUI [1,1]
C0011860
UMLS CUI [1,2]
C2316983
No. 7 Diabetic polyneuropathy
Beschrijving

diabetic polyneuropathy

Datatype

text

Alias
UMLS CUI [1]
C0271680
Initial diagnosis
Beschrijving

initial diagnosis of diabetic polyneuropathy

Datatype

date

Alias
UMLS CUI [1,1]
C0271680
UMLS CUI [1,2]
C2316983
No. 8 Cardiac infarction
Beschrijving

cardiac infarction

Datatype

text

Alias
UMLS CUI [1]
C0027051
Initial diagnosis
Beschrijving

date of initial diagnosis cardiac infarction

Datatype

date

Alias
UMLS CUI [1,1]
C0027051
UMLS CUI [1,2]
C2316983
No.9 Transient ischemic attack (TIA)
Beschrijving

transient ischemic attack

Datatype

text

Alias
UMLS CUI [1]
C0007787
Initial diagnosis
Beschrijving

date of initial diagnosis TIA

Datatype

date

Alias
UMLS CUI [1,1]
C0007787
UMLS CUI [1,2]
C2316983
No. 10 Coronary heart disease
Beschrijving

coronary heart disease

Datatype

text

Alias
UMLS CUI [1]
C0010068
Initial diagnosis
Beschrijving

date of initial diagnosis coronary heart disease

Datatype

date

Alias
UMLS CUI [1,1]
C0010068
UMLS CUI [1,2]
C2316983
No. 11 Stroke (ischemic)
Beschrijving

stroke

Datatype

text

Alias
UMLS CUI [1]
C0038454
Initial diagnosis
Beschrijving

date of initial diagnosis stroke

Datatype

date

Alias
UMLS CUI [1,1]
C0038454
UMLS CUI [1,2]
C2316983
No. 12 Cerebral venous sinus thrombosis or cerebral thrombosis
Beschrijving

cerebral venous sinus thrombosis or cerebral thrombosis

Datatype

text

Alias
UMLS CUI [1]
C0338573
UMLS CUI [2]
C0079102
Initial date
Beschrijving

date of initial diagnosis cerebral venous sinus thrombosis

Datatype

date

Alias
UMLS CUI [1,1]
C0338573
UMLS CUI [1,2]
C2316983
UMLS CUI [2,1]
C0079102
UMLS CUI [2,2]
C2316983
No. 13 Subarachnoid hemorrhage
Beschrijving

subarachnoid hemorrhage

Datatype

text

Alias
UMLS CUI [1]
C0038525
Initial diagnosis
Beschrijving

date of initial diagnosis SAB

Datatype

date

Alias
UMLS CUI [1,1]
C0038525
UMLS CUI [1,2]
C2316983
No. 14 Intracerebral hemorrhage (ICH)
Beschrijving

ICH

Datatype

text

Alias
UMLS CUI [1]
C2937358
Initial diagnosis
Beschrijving

date of initial diagnosis ICH

Datatype

date

Alias
UMLS CUI [1,1]
C2937358
UMLS CUI [1,2]
C2316983
No. 15 Subdural hematoma
Beschrijving

subdural hematoma

Datatype

text

Alias
UMLS CUI [1]
C0018946
Initial diagnosis
Beschrijving

date of initial diagnosis subdural hematoma

Datatype

date

Alias
UMLS CUI [1,1]
C0018946
UMLS CUI [1,2]
C2316983
No. 16 Concussion
Beschrijving

concussion

Datatype

text

Alias
UMLS CUI [1]
C0006107
Initial diagnosis
Beschrijving

date of initial diagnosis concussion

Datatype

date

Alias
UMLS CUI [1,1]
C0006107
UMLS CUI [1,2]
C2316983
No. 17 Other pre-existing brain condition
Beschrijving

other pre-existing brain condition

Datatype

text

Alias
UMLS CUI [1,1]
C0006111
UMLS CUI [1,2]
C2347662
UMLS CUI [1,3]
C0205394
Initial diagnosis
Beschrijving

date of initial diagnosis other pre-existing brain condition

Datatype

date

Alias
UMLS CUI [1,1]
C0006111
UMLS CUI [1,2]
C2347662
UMLS CUI [1,3]
C0205394
UMLS CUI [1,4]
C2316983
No. 18 Peripheral arterial disease
Beschrijving

peripheral arterial disease

Datatype

text

Alias
UMLS CUI [1]
C1704436
Initial diagnosis
Beschrijving

date of initial diagnosis PAD

Datatype

date

Alias
UMLS CUI [1,1]
C1704436
UMLS CUI [1,2]
C2316983
No. 19 Atrial fibrillation
Beschrijving

atrial fibrillation

Datatype

text

Alias
UMLS CUI [1]
C0004238
Initial diagnosis
Beschrijving

date of initial diagnosis atrial fillibration

Datatype

date

Alias
UMLS CUI [1,1]
C0004238
UMLS CUI [1,2]
C2316983
No. 20 Hemophilia
Beschrijving

hemophilia

Datatype

text

Alias
UMLS CUI [1]
C0684275
Initial diagnosis
Beschrijving

date of initial diagnosis hemophilia

Datatype

date

Alias
UMLS CUI [1,1]
C0684275
UMLS CUI [1,2]
C2316983
No. 21 Parkinson's disease
Beschrijving

parkinsons disease

Datatype

text

Alias
UMLS CUI [1]
C0030567
Initial diagnosis
Beschrijving

date of initial diagnosis PD

Datatype

date

Alias
UMLS CUI [1,1]
C0030567
UMLS CUI [1,2]
C2316983
No. 22 Rheumatism or arthritis
Beschrijving

rheumatism or arthritis

Datatype

text

Alias
UMLS CUI [1]
C0035435
UMLS CUI [2]
C0003864
Initial diagnosis
Beschrijving

date of initial diagnosis rheumatism or arthritis

Datatype

date

Alias
UMLS CUI [1,1]
C0035435
UMLS CUI [1,2]
C2316983
UMLS CUI [2,1]
C0003864
UMLS CUI [2,2]
C2316983
No. 23 Hypersensitivity
Beschrijving

allergies

Datatype

text

Alias
UMLS CUI [1]
C0020517
Initial diagnosis
Beschrijving

date of initial diagnosis hypersensitivity

Datatype

date

Alias
UMLS CUI [1,1]
C0020517
UMLS CUI [1,2]
C2316983
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Similar models

CRF Continuous Documentation

1 Formulieren
Name
Type
Description | Question | Decode (Coded Value)
Datatype
Alias
Item Group
Diseases
C0012634 (UMLS CUI-1)
study id
Item
Study-ID:
text
C2826693 (UMLS CUI [1])
pre-existing codition and comorbidities
Item
Does the participant have any pre-existing conditions or comorbidities?
boolean
C0521987 (UMLS CUI [1])
C0009488 (UMLS CUI [2])
Item Group
Documentation of diseases
no of diagnosis
Item
No.
integer
C0237753 (UMLS CUI [1,1])
C0011900 (UMLS CUI [1,2])
diagnosis
Item
Diagnosis
text
C0011900 (UMLS CUI [1])
onset of disease
Item
Onset of disease
date
C0277793 (UMLS CUI [1])
end of disease
Item
End of disease
date
C4019088 (UMLS CUI [1])
enduring
Item
Disease enduring
boolean
C1314677 (UMLS CUI [1])
Item Group
Checklist pre-existing conditions
Item
No. 1 Hypertension
text
C0020538 (UMLS CUI [1])
hypertension diagnosed
Code List
No. 1 Hypertension
CL Item
Yes  (Yes )
CL Item
No  (No )
CL Item
Unknown (Unknown)
CL Item
Not specified (Not specified)
date initial diagnosis hypertension
Item
Initial diagnosis
date
C0020538 (UMLS CUI [1,1])
C2316983 (UMLS CUI [1,2])
Item
No.2 Hypercholesterolemia
text
C0020443 (UMLS CUI [1])
hypertension diagnosed
Code List
No.2 Hypercholesterolemia
CL Item
Yes  (Yes )
CL Item
No  (No )
CL Item
Unknown (Unknown)
CL Item
Not specified (Not specified)
date initial diagnosis hypercholesterolemia
Item
Initial diagnosis
date
C0020443 (UMLS CUI [1,1])
C2316983 (UMLS CUI [1,2])
Item
No.3 Hypertriglyceridemia
text
C0020557 (UMLS CUI [1])
hypertension diagnosed
Code List
No.3 Hypertriglyceridemia
CL Item
Yes  (Yes )
CL Item
No  (No )
CL Item
Unknown (Unknown)
CL Item
Not specified (Not specified)
date initial diagnosis hypertriglyceridemia
Item
Initial diagnosis
date
C0020557 (UMLS CUI [1,1])
C2316983 (UMLS CUI [1,2])
Item
No.4 Other hyperlipedimia or dyslipidemia
text
C0020473 (UMLS CUI [1])
C0242339 (UMLS CUI [2])
hypertension diagnosed
Code List
No.4 Other hyperlipedimia or dyslipidemia
CL Item
Yes  (Yes )
CL Item
No  (No )
CL Item
Unknown (Unknown)
CL Item
Not specified (Not specified)
initial diagnosis of hyperlipedimia or dyslipedimia
Item
Initial diagnosis
date
C0020473 (UMLS CUI [1,1])
C2316983 (UMLS CUI [1,2])
C0242339 (UMLS CUI [2,1])
C2316983 (UMLS CUI [2,2])
Item
No. 5 Diabetes mellitus type 1
text
C0011854 (UMLS CUI [1])
hypertension diagnosed
Code List
No. 5 Diabetes mellitus type 1
CL Item
Yes  (Yes )
CL Item
No  (No )
CL Item
Unknown (Unknown)
CL Item
Not specified (Not specified)
initial diagnosis of diabetes type 1
Item
Initial diagnosis
date
C0011854 (UMLS CUI [1,1])
C2316983 (UMLS CUI [1,2])
Item
No. 6 Diabetes mellitus type 2
text
C0011860 (UMLS CUI [1])
hypertension diagnosed
Code List
No. 6 Diabetes mellitus type 2
CL Item
Yes  (Yes )
CL Item
No  (No )
CL Item
Unknown (Unknown)
CL Item
Not specified (Not specified)
initial diagnosis of diabetes type 2
Item
Initial diagnosis
date
C0011860 (UMLS CUI [1,1])
C2316983 (UMLS CUI [1,2])
Item
No. 7 Diabetic polyneuropathy
text
C0271680 (UMLS CUI [1])
hypertension diagnosed
Code List
No. 7 Diabetic polyneuropathy
CL Item
Yes  (Yes )
CL Item
No  (No )
CL Item
Unknown (Unknown)
CL Item
Not specified (Not specified)
initial diagnosis of diabetic polyneuropathy
Item
Initial diagnosis
date
C0271680 (UMLS CUI [1,1])
C2316983 (UMLS CUI [1,2])
Item
No. 8 Cardiac infarction
text
C0027051 (UMLS CUI [1])
hypertension diagnosed
Code List
No. 8 Cardiac infarction
CL Item
Yes  (Yes )
CL Item
No  (No )
CL Item
Unknown (Unknown)
CL Item
Not specified (Not specified)
date of initial diagnosis cardiac infarction
Item
Initial diagnosis
date
C0027051 (UMLS CUI [1,1])
C2316983 (UMLS CUI [1,2])
Item
No.9 Transient ischemic attack (TIA)
text
C0007787 (UMLS CUI [1])
hypertension diagnosed
Code List
No.9 Transient ischemic attack (TIA)
CL Item
Yes  (Yes )
CL Item
No  (No )
CL Item
Unknown (Unknown)
CL Item
Not specified (Not specified)
date of initial diagnosis TIA
Item
Initial diagnosis
date
C0007787 (UMLS CUI [1,1])
C2316983 (UMLS CUI [1,2])
Item
No. 10 Coronary heart disease
text
C0010068 (UMLS CUI [1])
hypertension diagnosed
Code List
No. 10 Coronary heart disease
CL Item
Yes  (Yes )
CL Item
No  (No )
CL Item
Unknown (Unknown)
CL Item
Not specified (Not specified)
date of initial diagnosis coronary heart disease
Item
Initial diagnosis
date
C0010068 (UMLS CUI [1,1])
C2316983 (UMLS CUI [1,2])
Item
No. 11 Stroke (ischemic)
text
C0038454 (UMLS CUI [1])
hypertension diagnosed
Code List
No. 11 Stroke (ischemic)
CL Item
Yes  (Yes )
CL Item
No  (No )
CL Item
Unknown (Unknown)
CL Item
Not specified (Not specified)
date of initial diagnosis stroke
Item
Initial diagnosis
date
C0038454 (UMLS CUI [1,1])
C2316983 (UMLS CUI [1,2])
Item
No. 12 Cerebral venous sinus thrombosis or cerebral thrombosis
text
C0338573 (UMLS CUI [1])
C0079102 (UMLS CUI [2])
hypertension diagnosed
Code List
No. 12 Cerebral venous sinus thrombosis or cerebral thrombosis
CL Item
Yes  (Yes )
CL Item
No  (No )
CL Item
Unknown (Unknown)
CL Item
Not specified (Not specified)
date of initial diagnosis cerebral venous sinus thrombosis
Item
Initial date
date
C0338573 (UMLS CUI [1,1])
C2316983 (UMLS CUI [1,2])
C0079102 (UMLS CUI [2,1])
C2316983 (UMLS CUI [2,2])
Item
No. 13 Subarachnoid hemorrhage
text
C0038525 (UMLS CUI [1])
hypertension diagnosed
Code List
No. 13 Subarachnoid hemorrhage
CL Item
Yes  (Yes )
CL Item
No  (No )
CL Item
Unknown (Unknown)
CL Item
Not specified (Not specified)
date of initial diagnosis SAB
Item
Initial diagnosis
date
C0038525 (UMLS CUI [1,1])
C2316983 (UMLS CUI [1,2])
Item
No. 14 Intracerebral hemorrhage (ICH)
text
C2937358 (UMLS CUI [1])
hypertension diagnosed
Code List
No. 14 Intracerebral hemorrhage (ICH)
CL Item
Yes  (Yes )
CL Item
No  (No )
CL Item
Unknown (Unknown)
CL Item
Not specified (Not specified)
date of initial diagnosis ICH
Item
Initial diagnosis
date
C2937358 (UMLS CUI [1,1])
C2316983 (UMLS CUI [1,2])
Item
No. 15 Subdural hematoma
text
C0018946 (UMLS CUI [1])
hypertension diagnosed
Code List
No. 15 Subdural hematoma
CL Item
Yes  (Yes )
CL Item
No  (No )
CL Item
Unknown (Unknown)
CL Item
Not specified (Not specified)
date of initial diagnosis subdural hematoma
Item
Initial diagnosis
date
C0018946 (UMLS CUI [1,1])
C2316983 (UMLS CUI [1,2])
Item
No. 16 Concussion
text
C0006107 (UMLS CUI [1])
hypertension diagnosed
Code List
No. 16 Concussion
CL Item
Yes  (Yes )
CL Item
No  (No )
CL Item
Unknown (Unknown)
CL Item
Not specified (Not specified)
date of initial diagnosis concussion
Item
Initial diagnosis
date
C0006107 (UMLS CUI [1,1])
C2316983 (UMLS CUI [1,2])
Item
No. 17 Other pre-existing brain condition
text
C0006111 (UMLS CUI [1,1])
C2347662 (UMLS CUI [1,2])
C0205394 (UMLS CUI [1,3])
hypertension diagnosed
Code List
No. 17 Other pre-existing brain condition
CL Item
Yes  (Yes )
CL Item
No  (No )
CL Item
Unknown (Unknown)
CL Item
Not specified (Not specified)
date of initial diagnosis other pre-existing brain condition
Item
Initial diagnosis
date
C0006111 (UMLS CUI [1,1])
C2347662 (UMLS CUI [1,2])
C0205394 (UMLS CUI [1,3])
C2316983 (UMLS CUI [1,4])
Item
No. 18 Peripheral arterial disease
text
C1704436 (UMLS CUI [1])
hypertension diagnosed
Code List
No. 18 Peripheral arterial disease
CL Item
Yes  (Yes )
CL Item
No  (No )
CL Item
Unknown (Unknown)
CL Item
Not specified (Not specified)
date of initial diagnosis PAD
Item
Initial diagnosis
date
C1704436 (UMLS CUI [1,1])
C2316983 (UMLS CUI [1,2])
Item
No. 19 Atrial fibrillation
text
C0004238 (UMLS CUI [1])
hypertension diagnosed
Code List
No. 19 Atrial fibrillation
CL Item
Yes  (Yes )
CL Item
No  (No )
CL Item
Unknown (Unknown)
CL Item
Not specified (Not specified)
date of initial diagnosis atrial fillibration
Item
Initial diagnosis
date
C0004238 (UMLS CUI [1,1])
C2316983 (UMLS CUI [1,2])
Item
No. 20 Hemophilia
text
C0684275 (UMLS CUI [1])
hypertension diagnosed
Code List
No. 20 Hemophilia
CL Item
Yes  (Yes )
CL Item
No  (No )
CL Item
Unknown (Unknown)
CL Item
Not specified (Not specified)
date of initial diagnosis hemophilia
Item
Initial diagnosis
date
C0684275 (UMLS CUI [1,1])
C2316983 (UMLS CUI [1,2])
Item
No. 21 Parkinson's disease
text
C0030567 (UMLS CUI [1])
hypertension diagnosed
Code List
No. 21 Parkinson's disease
CL Item
Yes  (Yes )
CL Item
No  (No )
CL Item
Unknown (Unknown)
CL Item
Not specified (Not specified)
date of initial diagnosis PD
Item
Initial diagnosis
date
C0030567 (UMLS CUI [1,1])
C2316983 (UMLS CUI [1,2])
Item
No. 22 Rheumatism or arthritis
text
C0035435 (UMLS CUI [1])
C0003864 (UMLS CUI [2])
hypertension diagnosed
Code List
No. 22 Rheumatism or arthritis
CL Item
Yes  (Yes )
CL Item
No  (No )
CL Item
Unknown (Unknown)
CL Item
Not specified (Not specified)
date of initial diagnosis rheumatism or arthritis
Item
Initial diagnosis
date
C0035435 (UMLS CUI [1,1])
C2316983 (UMLS CUI [1,2])
C0003864 (UMLS CUI [2,1])
C2316983 (UMLS CUI [2,2])
Item
No. 23 Hypersensitivity
text
C0020517 (UMLS CUI [1])
hypertension diagnosed
Code List
No. 23 Hypersensitivity
CL Item
Yes  (Yes )
CL Item
No  (No )
CL Item
Unknown (Unknown)
CL Item
Not specified (Not specified)
date of initial diagnosis hypersensitivity
Item
Initial diagnosis
date
C0020517 (UMLS CUI [1,1])
C2316983 (UMLS CUI [1,2])
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