ID
13906
Description
Background and Purpose: The purpose of the DESCRIBE study is to document the natural course of diseases in context of medical care of neurodegenerative disorders as well as cerebrovascular diseases and to perform phenotyping of the test persons. Disease-spanning analyses of the measured clincial data, the results of the imaging processes, results of the analysis of the biometerials including genetic analysis are planed. Principal Investigator: Prof. Klockgether, Dr. Spottke DZNE, Bonn. Source: DESCRIBE-Studie http://www.dzne.de/forschung/forschungsbereiche/klinische-forschung/studien/describe-bn006.html Participating Study Sites: Berlin, Bonn, Göttingen, Dresden, Köln, Magdeburg, München, Rostock/Greifswald, Tübingen
Link
http://www.dzne.de/forschung/forschungsbereiche/klinische-forschung/studien/describe-bn006.html
Keywords
Versions (2)
- 3/15/16 3/15/16 -
- 3/16/16 3/16/16 -
Uploaded on
March 15, 2016
DOI
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License
Creative Commons BY-NC 3.0
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DESCRIBE (DZNE – Clinical Register Study of neurodegenerative Disorders) CRF Continuous Documentation
CRF Continuous Documentation
- StudyEvent: ODM
Description
Documentation of diseases
Description
no of diagnosis
Data type
integer
Alias
- UMLS CUI [1,1]
- C0237753
- UMLS CUI [1,2]
- C0011900
Description
Please regard the following diagnoses: Hypertension, diabetes mellitus, hypercholesterolemia, stroke, epilepsy, heart attack, recurrent depressive episode, neoplasms, thyroid disease, renal insufficiency. You can use the checklist pre-existing condition. In the database one can choose the ICD-Code after data entry.
Data type
text
Alias
- UMLS CUI [1]
- C0011900
Description
onset of disease
Data type
date
Alias
- UMLS CUI [1]
- C0277793
Description
end of disease
Data type
date
Alias
- UMLS CUI [1]
- C4019088
Description
enduring
Data type
boolean
Alias
- UMLS CUI [1]
- C1314677
Description
Checklist pre-existing conditions
Description
hypertension diagnosed
Data type
text
Alias
- UMLS CUI [1]
- C0020538
Description
date initial diagnosis hypertension
Data type
date
Alias
- UMLS CUI [1,1]
- C0020538
- UMLS CUI [1,2]
- C2316983
Description
hypercholesterolemia
Data type
text
Alias
- UMLS CUI [1]
- C0020443
Description
date initial diagnosis hypercholesterolemia
Data type
date
Alias
- UMLS CUI [1,1]
- C0020443
- UMLS CUI [1,2]
- C2316983
Description
hypertriglyceridemia
Data type
text
Alias
- UMLS CUI [1]
- C0020557
Description
date initial diagnosis hypertriglyceridemia
Data type
date
Alias
- UMLS CUI [1,1]
- C0020557
- UMLS CUI [1,2]
- C2316983
Description
hyperlipedimia or dyslipidemia
Data type
text
Alias
- UMLS CUI [1]
- C0020473
- UMLS CUI [2]
- C0242339
Description
initial diagnosis of hyperlipedimia or dyslipedimia
Data type
date
Alias
- UMLS CUI [1,1]
- C0020473
- UMLS CUI [1,2]
- C2316983
- UMLS CUI [2,1]
- C0242339
- UMLS CUI [2,2]
- C2316983
Description
diabetes mellitus type 1
Data type
text
Alias
- UMLS CUI [1]
- C0011854
Description
initial diagnosis of diabetes type 1
Data type
date
Alias
- UMLS CUI [1,1]
- C0011854
- UMLS CUI [1,2]
- C2316983
Description
diabetes mellitus type 2
Data type
text
Alias
- UMLS CUI [1]
- C0011860
Description
initial diagnosis of diabetes type 2
Data type
date
Alias
- UMLS CUI [1,1]
- C0011860
- UMLS CUI [1,2]
- C2316983
Description
diabetic polyneuropathy
Data type
text
Alias
- UMLS CUI [1]
- C0271680
Description
initial diagnosis of diabetic polyneuropathy
Data type
date
Alias
- UMLS CUI [1,1]
- C0271680
- UMLS CUI [1,2]
- C2316983
Description
cardiac infarction
Data type
text
Alias
- UMLS CUI [1]
- C0027051
Description
date of initial diagnosis cardiac infarction
Data type
date
Alias
- UMLS CUI [1,1]
- C0027051
- UMLS CUI [1,2]
- C2316983
Description
transient ischemic attack
Data type
text
Alias
- UMLS CUI [1]
- C0007787
Description
date of initial diagnosis TIA
Data type
date
Alias
- UMLS CUI [1,1]
- C0007787
- UMLS CUI [1,2]
- C2316983
Description
coronary heart disease
Data type
text
Alias
- UMLS CUI [1]
- C0010068
Description
date of initial diagnosis coronary heart disease
Data type
date
Alias
- UMLS CUI [1,1]
- C0010068
- UMLS CUI [1,2]
- C2316983
Description
stroke
Data type
text
Alias
- UMLS CUI [1]
- C0038454
Description
date of initial diagnosis stroke
Data type
date
Alias
- UMLS CUI [1,1]
- C0038454
- UMLS CUI [1,2]
- C2316983
Description
cerebral venous sinus thrombosis or cerebral thrombosis
Data type
text
Alias
- UMLS CUI [1]
- C0338573
- UMLS CUI [2]
- C0079102
Description
date of initial diagnosis cerebral venous sinus thrombosis
Data type
date
Alias
- UMLS CUI [1,1]
- C0338573
- UMLS CUI [1,2]
- C2316983
- UMLS CUI [2,1]
- C0079102
- UMLS CUI [2,2]
- C2316983
Description
subarachnoid hemorrhage
Data type
text
Alias
- UMLS CUI [1]
- C0038525
Description
date of initial diagnosis SAB
Data type
date
Alias
- UMLS CUI [1,1]
- C0038525
- UMLS CUI [1,2]
- C2316983
Description
ICH
Data type
text
Alias
- UMLS CUI [1]
- C2937358
Description
date of initial diagnosis ICH
Data type
date
Alias
- UMLS CUI [1,1]
- C2937358
- UMLS CUI [1,2]
- C2316983
Description
subdural hematoma
Data type
text
Alias
- UMLS CUI [1]
- C0018946
Description
date of initial diagnosis subdural hematoma
Data type
date
Alias
- UMLS CUI [1,1]
- C0018946
- UMLS CUI [1,2]
- C2316983
Description
concussion
Data type
text
Alias
- UMLS CUI [1]
- C0006107
Description
date of initial diagnosis concussion
Data type
date
Alias
- UMLS CUI [1,1]
- C0006107
- UMLS CUI [1,2]
- C2316983
Description
other pre-existing brain condition
Data type
text
Alias
- UMLS CUI [1,1]
- C0006111
- UMLS CUI [1,2]
- C2347662
- UMLS CUI [1,3]
- C0205394
Description
date of initial diagnosis other pre-existing brain condition
Data type
date
Alias
- UMLS CUI [1,1]
- C0006111
- UMLS CUI [1,2]
- C2347662
- UMLS CUI [1,3]
- C0205394
- UMLS CUI [1,4]
- C2316983
Description
peripheral arterial disease
Data type
text
Alias
- UMLS CUI [1]
- C1704436
Description
date of initial diagnosis PAD
Data type
date
Alias
- UMLS CUI [1,1]
- C1704436
- UMLS CUI [1,2]
- C2316983
Description
atrial fibrillation
Data type
text
Alias
- UMLS CUI [1]
- C0004238
Description
date of initial diagnosis atrial fillibration
Data type
date
Alias
- UMLS CUI [1,1]
- C0004238
- UMLS CUI [1,2]
- C2316983
Description
hemophilia
Data type
text
Alias
- UMLS CUI [1]
- C0684275
Description
date of initial diagnosis hemophilia
Data type
date
Alias
- UMLS CUI [1,1]
- C0684275
- UMLS CUI [1,2]
- C2316983
Description
parkinsons disease
Data type
text
Alias
- UMLS CUI [1]
- C0030567
Description
date of initial diagnosis PD
Data type
date
Alias
- UMLS CUI [1,1]
- C0030567
- UMLS CUI [1,2]
- C2316983
Description
rheumatism or arthritis
Data type
text
Alias
- UMLS CUI [1]
- C0035435
- UMLS CUI [2]
- C0003864
Description
date of initial diagnosis rheumatism or arthritis
Data type
date
Alias
- UMLS CUI [1,1]
- C0035435
- UMLS CUI [1,2]
- C2316983
- UMLS CUI [2,1]
- C0003864
- UMLS CUI [2,2]
- C2316983
Description
allergies
Data type
text
Alias
- UMLS CUI [1]
- C0020517
Description
date of initial diagnosis hypersensitivity
Data type
date
Alias
- UMLS CUI [1,1]
- C0020517
- UMLS CUI [1,2]
- C2316983
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