ID

13904

Description

Background and Purpose: The purpose of the DESCRIBE study is to document the natural course of diseases in context of medical care of neurodegenerative disorders as well as cerebrovascular diseases and to perform phenotyping of the test persons. Disease-spanning analyses of the measured clincial data, the results of the imaging processes, results of the analysis of the biometerials including genetic analysis are planed. Principal Investigator: Prof. Klockgether, Dr. Spottke DZNE, Bonn. Source: DESCRIBE-Studie http://www.dzne.de/forschung/forschungsbereiche/klinische-forschung/studien/describe-bn006.html Participating Study Sites: Berlin, Bonn, Göttingen, Dresden, Köln, Magdeburg, München, Rostock/Greifswald, Tübingen

Link

http://www.dzne.de/forschung/forschungsbereiche/klinische-forschung/studien/describe-bn006.html

Keywords

Versions (1)
  1. 3/15/16 3/15/16 -
Uploaded on

March 15, 2016

DOI

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License

Creative Commons BY-NC 3.0
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DESCRIBE (DZNE – Clinical Register Study of neurodegenerative Disorders) CRF Endpoints

English

CRF Endpoints

1 forms  
  1. StudyEvent: ODM
    1. CRF Endpoints
End of study participation
Description

End of study participation

Study-ID:
Description

study id

Data type

text

Alias
UMLS CUI [1]
C2826693
Date of survey:
Description

date of survey

Data type

date

Alias
UMLS CUI [1]
C0011008
End of participation in clinical register because of:
Description

Please specify the primary reason

Data type

integer

Alias
UMLS CUI [1]
C2348577
Other reason
Description

other reason

Data type

text

Alias
UMLS CUI [1,1]
C2348577
UMLS CUI [1,2]
C0205394
Mortality
Description

Mortality

Alias
UMLS CUI-1
C1306577
Date of death
Description

Date of death

Data type

date

Alias
UMLS CUI [1]
C1148348
Place of death
Description

place of death

Data type

text

Alias
UMLS CUI [1]
C0421611
Cause of death
Description

In the database one can choose the corresponding ICD-code after entry.

Data type

text

Alias
UMLS CUI [1]
C0007465
Medical certificate of cause of death confirms cause of death
Description

medical certificate of cause of death

Data type

boolean

Alias
UMLS CUI [1,1]
C0007465
UMLS CUI [1,2]
C0011066
Autopsy performed
Description

autopsy performed

Data type

boolean

Alias
UMLS CUI [1]
C0004398
Main information source of cause of death
Description

information source

Data type

text

Alias
UMLS CUI [1]
C0683836
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Similar models

CRF Endpoints

1 forms
  1. StudyEvent: ODM
    1. CRF Endpoints
Name
Type
Description | Question | Decode (Coded Value)
Data type
Alias
Item Group
End of study participation
study id
Item
Study-ID:
text
C2826693 (UMLS CUI [1])
date of survey
Item
Date of survey:
date
C0011008 (UMLS CUI [1])
Item
End of participation in clinical register because of:
integer
C2348577 (UMLS CUI [1])
reason for end of study
Code List
End of participation in clinical register because of:
CL Item
Another disease than the diagnosis concerning register, which inhibits further study participation (Please add comorbidity in follow-up documentation) (1)
CL Item
Decision of responsible physician or investigator (2)
CL Item
Request of participant or a family member (withdrawal of consent) (3)
CL Item
reasons concerning study site (4)
CL Item
Loss of contact (5)
CL Item
Participant bedridden (6)
CL Item
Participant in nursing home (7)
CL Item
Participant moved away from study site (8)
CL Item
other reason (9)
other reason
Item
Other reason
text
C2348577 (UMLS CUI [1,1])
C0205394 (UMLS CUI [1,2])
Item Group
Mortality
C1306577 (UMLS CUI-1)
Date of death
Item
Date of death
date
C1148348 (UMLS CUI [1])
Item
Place of death
text
C0421611 (UMLS CUI [1])
place of death
Code List
Place of death
CL Item
At home (At home)
CL Item
Clinic (Clinic)
CL Item
Nursing home (Nursing home)
CL Item
Hospice (Hospice)
CL Item
Unknown (Unknown)
cause of death
Item
Cause of death
text
C0007465 (UMLS CUI [1])
medical certificate of cause of death
Item
Medical certificate of cause of death confirms cause of death
boolean
C0007465 (UMLS CUI [1,1])
C0011066 (UMLS CUI [1,2])
autopsy performed
Item
Autopsy performed
boolean
C0004398 (UMLS CUI [1])
Item
Main information source of cause of death
text
C0683836 (UMLS CUI [1])
information source
Code List
Main information source of cause of death
CL Item
Life partner/family (Life partner/family)
CL Item
Friend (Friend)
CL Item
Physician/Nurse (Physician/Nurse)
CL Item
Death notice in newspapers (Death notice in newspapers)
CL Item
Medical certificate of cause of death (Medical certificate of cause of death)
CL Item
Registration office (Registration office)
CL Item
Other (Other)
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