ID

13904

Descrizione

Background and Purpose: The purpose of the DESCRIBE study is to document the natural course of diseases in context of medical care of neurodegenerative disorders as well as cerebrovascular diseases and to perform phenotyping of the test persons. Disease-spanning analyses of the measured clincial data, the results of the imaging processes, results of the analysis of the biometerials including genetic analysis are planed. Principal Investigator: Prof. Klockgether, Dr. Spottke DZNE, Bonn. Source: DESCRIBE-Studie http://www.dzne.de/forschung/forschungsbereiche/klinische-forschung/studien/describe-bn006.html Participating Study Sites: Berlin, Bonn, Göttingen, Dresden, Köln, Magdeburg, München, Rostock/Greifswald, Tübingen

collegamento

http://www.dzne.de/forschung/forschungsbereiche/klinische-forschung/studien/describe-bn006.html

Keywords

versioni (1)
  1. 15/03/16 15/03/16 -
Caricato su

15 marzo 2016

DOI

Per favore, per richiedere un accesso.

Licenza

Creative Commons BY-NC 3.0
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DESCRIBE (DZNE – Clinical Register Study of neurodegenerative Disorders) CRF Endpoints

Inglese

CRF Endpoints

1 moduli  
  1. StudyEvent: ODM
    1. CRF Endpoints
End of study participation
Descrizione

End of study participation

Study-ID:
Descrizione

study id

Tipo di dati

text

Alias
UMLS CUI [1]
C2826693
Date of survey:
Descrizione

date of survey

Tipo di dati

date

Alias
UMLS CUI [1]
C0011008
End of participation in clinical register because of:
Descrizione

Please specify the primary reason

Tipo di dati

integer

Alias
UMLS CUI [1]
C2348577
Other reason
Descrizione

other reason

Tipo di dati

text

Alias
UMLS CUI [1,1]
C2348577
UMLS CUI [1,2]
C0205394
Mortality
Descrizione

Mortality

Alias
UMLS CUI-1
C1306577
Date of death
Descrizione

Date of death

Tipo di dati

date

Alias
UMLS CUI [1]
C1148348
Place of death
Descrizione

place of death

Tipo di dati

text

Alias
UMLS CUI [1]
C0421611
Cause of death
Descrizione

In the database one can choose the corresponding ICD-code after entry.

Tipo di dati

text

Alias
UMLS CUI [1]
C0007465
Medical certificate of cause of death confirms cause of death
Descrizione

medical certificate of cause of death

Tipo di dati

boolean

Alias
UMLS CUI [1,1]
C0007465
UMLS CUI [1,2]
C0011066
Autopsy performed
Descrizione

autopsy performed

Tipo di dati

boolean

Alias
UMLS CUI [1]
C0004398
Main information source of cause of death
Descrizione

information source

Tipo di dati

text

Alias
UMLS CUI [1]
C0683836
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Similar models

CRF Endpoints

1 moduli
  1. StudyEvent: ODM
    1. CRF Endpoints
Name
genere
Description | Question | Decode (Coded Value)
Tipo di dati
Alias
Item Group
End of study participation
study id
Item
Study-ID:
text
C2826693 (UMLS CUI [1])
date of survey
Item
Date of survey:
date
C0011008 (UMLS CUI [1])
Item
End of participation in clinical register because of:
integer
C2348577 (UMLS CUI [1])
reason for end of study
Code List
End of participation in clinical register because of:
CL Item
Another disease than the diagnosis concerning register, which inhibits further study participation (Please add comorbidity in follow-up documentation) (1)
CL Item
Decision of responsible physician or investigator (2)
CL Item
Request of participant or a family member (withdrawal of consent) (3)
CL Item
reasons concerning study site (4)
CL Item
Loss of contact (5)
CL Item
Participant bedridden (6)
CL Item
Participant in nursing home (7)
CL Item
Participant moved away from study site (8)
CL Item
other reason (9)
other reason
Item
Other reason
text
C2348577 (UMLS CUI [1,1])
C0205394 (UMLS CUI [1,2])
Item Group
Mortality
C1306577 (UMLS CUI-1)
Date of death
Item
Date of death
date
C1148348 (UMLS CUI [1])
Item
Place of death
text
C0421611 (UMLS CUI [1])
place of death
Code List
Place of death
CL Item
At home (At home)
CL Item
Clinic (Clinic)
CL Item
Nursing home (Nursing home)
CL Item
Hospice (Hospice)
CL Item
Unknown (Unknown)
cause of death
Item
Cause of death
text
C0007465 (UMLS CUI [1])
medical certificate of cause of death
Item
Medical certificate of cause of death confirms cause of death
boolean
C0007465 (UMLS CUI [1,1])
C0011066 (UMLS CUI [1,2])
autopsy performed
Item
Autopsy performed
boolean
C0004398 (UMLS CUI [1])
Item
Main information source of cause of death
text
C0683836 (UMLS CUI [1])
information source
Code List
Main information source of cause of death
CL Item
Life partner/family (Life partner/family)
CL Item
Friend (Friend)
CL Item
Physician/Nurse (Physician/Nurse)
CL Item
Death notice in newspapers (Death notice in newspapers)
CL Item
Medical certificate of cause of death (Medical certificate of cause of death)
CL Item
Registration office (Registration office)
CL Item
Other (Other)
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