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ID

13602

Description

NINDS Common Data Elements (Diagnosis Criteria Summary Amyotrophic Lateral Sclerosis) Used from the National Institute of Neurological Disorders and Stroke Common Data Elements (https://www.commondataelements.ninds.nih.gov/) References: Grinnon ST, Miller K, Marler JR, Lu Y, Stout A, Odenkirchen J, Kunitz S. National Institute of Neurological Disorders and Stroke Common Data Element Project - approach and methods. Clin Trials. 2012;9(3):322-9.

Link

https://www.commondataelements.ninds.nih.gov/

Keywords

Versions (1)
  1. 2/19/16 2/19/16 -
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February 19, 2016

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Creative Commons BY-NC 3.0
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    NINDS CDE Diagnosis Criteria Summary Amyotrophic Lateral Sclerosis

    English

    Diagnosis Criteria Summary

    1 forms  
    Symptom/Sign/Diagnosis Criteria Summary Information
    Description

    Symptom/Sign/Diagnosis Criteria Summary Information

    Study-ID
    Description

    Study ID

    Data type

    integer

    Alias
    UMLS CUI [1]
    C2826693
    Study site name
    Description

    Study site

    Data type

    text

    Alias
    UMLS CUI [1]
    C2825164
    Subject ID
    Description

    Patient Study ID

    Data type

    text

    Alias
    UMLS CUI [1]
    C2348585
    Symptom onset date
    Description

    Date of onset

    Data type

    date

    Alias
    UMLS CUI [1]
    C0011008
    Date of diagnosis
    Description

    Date of diagnosis

    Data type

    date

    Alias
    UMLS CUI [1]
    C0011008
    What is the patients classification?
    Description

    Diagnosis classification

    Data type

    text

    Alias
    UMLS CUI [1,1]
    C0011900
    UMLS CUI [1,2]
    C0008902
    Site of onset of progressive weakness (select one):
    Description

    site of onset of weakness

    Data type

    text

    Alias
    UMLS CUI [1]
    C0151786
    UMLS CUI [2,1]
    C0439659
    UMLS CUI [2,2]
    C0005898
    Bulbar UMN-Clinical
    Description

    Upper motor neuron findings

    Data type

    text

    Alias
    UMLS CUI [1,1]
    C0243095
    UMLS CUI [1,2]
    C0524458
    Truncal UMN-Clinical
    Description

    Upper motor neuron findings

    Data type

    text

    Alias
    UMLS CUI [1,1]
    C0243095
    UMLS CUI [1,2]
    C0524458
    Generalized UMN - Clinical
    Description

    Upper motor neuron findings

    Data type

    text

    Alias
    UMLS CUI [1,1]
    C0243095
    UMLS CUI [1,2]
    C0524458
    Respiratory UMN-Clinical
    Description

    Upper motor neuron findings

    Data type

    text

    Alias
    UMLS CUI [1,1]
    C0243095
    UMLS CUI [1,2]
    C0524458
    Upper Limb UMN-Clinical
    Description

    Upper motor neuron findings

    Data type

    text

    Alias
    UMLS CUI [1,1]
    C0243095
    UMLS CUI [1,2]
    C0524458
    Lower Limb UMN-Clinical
    Description

    Upper motor neuron findings

    Data type

    text

    Alias
    UMLS CUI [1,1]
    C0243095
    UMLS CUI [1,2]
    C0524458
    Bulbar LMN-Clinical
    Description

    Lower motor neuron findings

    Data type

    text

    Alias
    UMLS CUI [1,1]
    C0524459
    UMLS CUI [1,2]
    C0243095
    Truncal LMN-Clinical
    Description

    Lower motor neuron findings

    Data type

    text

    Alias
    UMLS CUI [1,1]
    C0524459
    UMLS CUI [1,2]
    C0243095
    Generalized LMN-Clinical
    Description

    Lower motor neuron findings

    Data type

    text

    Alias
    UMLS CUI [1,1]
    C0524459
    UMLS CUI [1,2]
    C0243095
    Upper Limb LMN-Clinical
    Description

    Lower motor neuron findings

    Data type

    text

    Alias
    UMLS CUI [1,1]
    C0524459
    UMLS CUI [1,2]
    C0243095
    Lower Limb LMN-Clinical
    Description

    Lower motor neuron findings

    Data type

    text

    Alias
    UMLS CUI [1,1]
    C0524459
    UMLS CUI [1,2]
    C0243095
    Revised El Escorial Criteria
    Description

    Revised El Escorial Criteria

    Data type

    text

    Awaji criteria
    Description

    Awaji criteria

    Data type

    text

    Back to the top of the page

    Similar models

    Diagnosis Criteria Summary

    1 forms
    Name
    Type
    Description | Question | Decode (Coded Value)
    Data type
    Alias
    Item Group
    Symptom/Sign/Diagnosis Criteria Summary Information
    Study ID
    Item
    Study-ID
    integer
    C2826693 (UMLS CUI [1])
    Study site
    Item
    Study site name
    text
    C2825164 (UMLS CUI [1])
    Patient Study ID
    Item
    Subject ID
    text
    C2348585 (UMLS CUI [1])
    Date of onset
    Item
    Symptom onset date
    date
    C0011008 (UMLS CUI [1])
    Date of diagnosis
    Item
    Date of diagnosis
    date
    C0011008 (UMLS CUI [1])
    Item
    What is the patients classification?
    text
    C0011900 (UMLS CUI [1,1])
    C0008902 (UMLS CUI [1,2])
    Diagnosis classification
    Code List
    What is the patients classification?
    CL Item
    ALS (1)
    CL Item
    Upper motor neuron predominant (2)
    CL Item
    Lower motor neuron predominant (3)
    CL Item
    PLS (4)
    Item
    Site of onset of progressive weakness (select one):
    text
    C0151786 (UMLS CUI [1])
    C0439659 (UMLS CUI [2,1])
    C0005898 (UMLS CUI [2,2])
    site of onset of weakness
    Code List
    Site of onset of progressive weakness (select one):
    CL Item
    Bulbar (1)
    CL Item
    Truncal (2)
    CL Item
    Generalized (3)
    CL Item
    Respiratory (4)
    CL Item
    Upper Limb (5)
    CL Item
    Lower Limb (6)
    Item
    Bulbar UMN-Clinical
    text
    C0243095 (UMLS CUI [1,1])
    C0524458 (UMLS CUI [1,2])
    Upper motor neuron findings
    Code List
    Bulbar UMN-Clinical
    CL Item
    Yes (1)
    CL Item
    No (2)
    CL Item
    Not Assessed (3)
    Item
    Truncal UMN-Clinical
    text
    C0243095 (UMLS CUI [1,1])
    C0524458 (UMLS CUI [1,2])
    Upper motor neuron findings
    Code List
    Truncal UMN-Clinical
    CL Item
    Yes (1)
    CL Item
    No (2)
    CL Item
    Not assessed (3)
    Item
    Generalized UMN - Clinical
    text
    C0243095 (UMLS CUI [1,1])
    C0524458 (UMLS CUI [1,2])
    Upper motor neuron findings
    Code List
    Generalized UMN - Clinical
    CL Item
    Yes (1)
    CL Item
    No (2)
    CL Item
    Not assessed (3)
    Item
    Respiratory UMN-Clinical
    text
    C0243095 (UMLS CUI [1,1])
    C0524458 (UMLS CUI [1,2])
    Upper motor neuron findings
    Code List
    Respiratory UMN-Clinical
    CL Item
    Yes (1)
    CL Item
    No (2)
    CL Item
    Not assessed (3)
    Item
    Upper Limb UMN-Clinical
    text
    C0243095 (UMLS CUI [1,1])
    C0524458 (UMLS CUI [1,2])
    Upper motor neuron findings
    Code List
    Upper Limb UMN-Clinical
    CL Item
    Yes (1)
    CL Item
    No (2)
    CL Item
    Not assessed (3)
    Item
    Lower Limb UMN-Clinical
    text
    C0243095 (UMLS CUI [1,1])
    C0524458 (UMLS CUI [1,2])
    Upper motor neuron findings
    Code List
    Lower Limb UMN-Clinical
    CL Item
    Yes (1)
    CL Item
    No (2)
    CL Item
    Not assessed (3)
    Item
    Bulbar LMN-Clinical
    text
    C0524459 (UMLS CUI [1,1])
    C0243095 (UMLS CUI [1,2])
    Lower motor neuron findings
    Code List
    Bulbar LMN-Clinical
    CL Item
    Yes (1)
    CL Item
    No (2)
    CL Item
    Not assessed (2)
    Item
    Truncal LMN-Clinical
    text
    C0524459 (UMLS CUI [1,1])
    C0243095 (UMLS CUI [1,2])
    Lower motor neuron findings
    Code List
    Truncal LMN-Clinical
    CL Item
    Yes (1)
    CL Item
    No (2)
    CL Item
    Not assessed (3)
    Item
    Generalized LMN-Clinical
    text
    C0524459 (UMLS CUI [1,1])
    C0243095 (UMLS CUI [1,2])
    Lower motor neuron findings
    Code List
    Generalized LMN-Clinical
    CL Item
    Yes (1)
    CL Item
    No (2)
    CL Item
    Not assessed (3)
    Item
    Upper Limb LMN-Clinical
    text
    C0524459 (UMLS CUI [1,1])
    C0243095 (UMLS CUI [1,2])
    Lower motor neuron findings
    Code List
    Upper Limb LMN-Clinical
    CL Item
    Yes (1)
    CL Item
    No (2)
    CL Item
    Not assessed (3)
    Item
    Lower Limb LMN-Clinical
    text
    C0524459 (UMLS CUI [1,1])
    C0243095 (UMLS CUI [1,2])
    Lower motor neuron findings
    Code List
    Lower Limb LMN-Clinical
    CL Item
    Yes (1)
    CL Item
    No (2)
    CL Item
    Not assessed (3)
    Item
    Revised El Escorial Criteria
    text
    Revised El Escorial Criteria
    Code List
    Revised El Escorial Criteria
    CL Item
    Definite (1)
    CL Item
    Probable (2)
    CL Item
    Lab-supported probable (3)
    CL Item
    Possible (4)
    CL Item
    Familial (5)
    Item
    Awaji criteria
    text
    Awaji criteria
    Code List
    Awaji criteria
    CL Item
    definite (1)
    CL Item
    probable (2)
    CL Item
    possible (3)
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