ID

13602

Description

NINDS Common Data Elements (Diagnosis Criteria Summary Amyotrophic Lateral Sclerosis) Used from the National Institute of Neurological Disorders and Stroke Common Data Elements (https://www.commondataelements.ninds.nih.gov/) References: Grinnon ST, Miller K, Marler JR, Lu Y, Stout A, Odenkirchen J, Kunitz S. National Institute of Neurological Disorders and Stroke Common Data Element Project - approach and methods. Clin Trials. 2012;9(3):322-9.

Link

https://www.commondataelements.ninds.nih.gov/

Keywords

Versions (1)
  1. 2/19/16 2/19/16 -
Uploaded on

February 19, 2016

DOI

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License

Creative Commons BY-NC 3.0
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NINDS CDE Diagnosis Criteria Summary Amyotrophic Lateral Sclerosis

English

Diagnosis Criteria Summary

1 forms  
Symptom/Sign/Diagnosis Criteria Summary Information
Description

Symptom/Sign/Diagnosis Criteria Summary Information

Study-ID
Description

Study ID

Data type

integer

Alias
UMLS CUI [1]
C2826693
Study site name
Description

Study site

Data type

text

Alias
UMLS CUI [1]
C2825164
Subject ID
Description

Patient Study ID

Data type

text

Alias
UMLS CUI [1]
C2348585
Symptom onset date
Description

Date of onset

Data type

date

Alias
UMLS CUI [1]
C0011008
Date of diagnosis
Description

Date of diagnosis

Data type

date

Alias
UMLS CUI [1]
C0011008
What is the patients classification?
Description

Diagnosis classification

Data type

text

Alias
UMLS CUI [1,1]
C0011900
UMLS CUI [1,2]
C0008902
Site of onset of progressive weakness (select one):
Description

site of onset of weakness

Data type

text

Alias
UMLS CUI [1]
C0151786
UMLS CUI [2,1]
C0439659
UMLS CUI [2,2]
C0005898
Bulbar UMN-Clinical
Description

Upper motor neuron findings

Data type

text

Alias
UMLS CUI [1,1]
C0243095
UMLS CUI [1,2]
C0524458
Truncal UMN-Clinical
Description

Upper motor neuron findings

Data type

text

Alias
UMLS CUI [1,1]
C0243095
UMLS CUI [1,2]
C0524458
Generalized UMN - Clinical
Description

Upper motor neuron findings

Data type

text

Alias
UMLS CUI [1,1]
C0243095
UMLS CUI [1,2]
C0524458
Respiratory UMN-Clinical
Description

Upper motor neuron findings

Data type

text

Alias
UMLS CUI [1,1]
C0243095
UMLS CUI [1,2]
C0524458
Upper Limb UMN-Clinical
Description

Upper motor neuron findings

Data type

text

Alias
UMLS CUI [1,1]
C0243095
UMLS CUI [1,2]
C0524458
Lower Limb UMN-Clinical
Description

Upper motor neuron findings

Data type

text

Alias
UMLS CUI [1,1]
C0243095
UMLS CUI [1,2]
C0524458
Bulbar LMN-Clinical
Description

Lower motor neuron findings

Data type

text

Alias
UMLS CUI [1,1]
C0524459
UMLS CUI [1,2]
C0243095
Truncal LMN-Clinical
Description

Lower motor neuron findings

Data type

text

Alias
UMLS CUI [1,1]
C0524459
UMLS CUI [1,2]
C0243095
Generalized LMN-Clinical
Description

Lower motor neuron findings

Data type

text

Alias
UMLS CUI [1,1]
C0524459
UMLS CUI [1,2]
C0243095
Upper Limb LMN-Clinical
Description

Lower motor neuron findings

Data type

text

Alias
UMLS CUI [1,1]
C0524459
UMLS CUI [1,2]
C0243095
Lower Limb LMN-Clinical
Description

Lower motor neuron findings

Data type

text

Alias
UMLS CUI [1,1]
C0524459
UMLS CUI [1,2]
C0243095
Revised El Escorial Criteria
Description

Revised El Escorial Criteria

Data type

text

Awaji criteria
Description

Awaji criteria

Data type

text

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Similar models

Diagnosis Criteria Summary

1 forms
Name
Type
Description | Question | Decode (Coded Value)
Data type
Alias
Item Group
Symptom/Sign/Diagnosis Criteria Summary Information
Study ID
Item
Study-ID
integer
C2826693 (UMLS CUI [1])
Study site
Item
Study site name
text
C2825164 (UMLS CUI [1])
Patient Study ID
Item
Subject ID
text
C2348585 (UMLS CUI [1])
Date of onset
Item
Symptom onset date
date
C0011008 (UMLS CUI [1])
Date of diagnosis
Item
Date of diagnosis
date
C0011008 (UMLS CUI [1])
Item
What is the patients classification?
text
C0011900 (UMLS CUI [1,1])
C0008902 (UMLS CUI [1,2])
Diagnosis classification
Code List
What is the patients classification?
CL Item
ALS (1)
CL Item
Upper motor neuron predominant (2)
CL Item
Lower motor neuron predominant (3)
CL Item
PLS (4)
Item
Site of onset of progressive weakness (select one):
text
C0151786 (UMLS CUI [1])
C0439659 (UMLS CUI [2,1])
C0005898 (UMLS CUI [2,2])
site of onset of weakness
Code List
Site of onset of progressive weakness (select one):
CL Item
Bulbar (1)
CL Item
Truncal (2)
CL Item
Generalized (3)
CL Item
Respiratory (4)
CL Item
Upper Limb (5)
CL Item
Lower Limb (6)
Item
Bulbar UMN-Clinical
text
C0243095 (UMLS CUI [1,1])
C0524458 (UMLS CUI [1,2])
Upper motor neuron findings
Code List
Bulbar UMN-Clinical
CL Item
Yes (1)
CL Item
No (2)
CL Item
Not Assessed (3)
Item
Truncal UMN-Clinical
text
C0243095 (UMLS CUI [1,1])
C0524458 (UMLS CUI [1,2])
Upper motor neuron findings
Code List
Truncal UMN-Clinical
CL Item
Yes (1)
CL Item
No (2)
CL Item
Not assessed (3)
Item
Generalized UMN - Clinical
text
C0243095 (UMLS CUI [1,1])
C0524458 (UMLS CUI [1,2])
Upper motor neuron findings
Code List
Generalized UMN - Clinical
CL Item
Yes (1)
CL Item
No (2)
CL Item
Not assessed (3)
Item
Respiratory UMN-Clinical
text
C0243095 (UMLS CUI [1,1])
C0524458 (UMLS CUI [1,2])
Upper motor neuron findings
Code List
Respiratory UMN-Clinical
CL Item
Yes (1)
CL Item
No (2)
CL Item
Not assessed (3)
Item
Upper Limb UMN-Clinical
text
C0243095 (UMLS CUI [1,1])
C0524458 (UMLS CUI [1,2])
Upper motor neuron findings
Code List
Upper Limb UMN-Clinical
CL Item
Yes (1)
CL Item
No (2)
CL Item
Not assessed (3)
Item
Lower Limb UMN-Clinical
text
C0243095 (UMLS CUI [1,1])
C0524458 (UMLS CUI [1,2])
Upper motor neuron findings
Code List
Lower Limb UMN-Clinical
CL Item
Yes (1)
CL Item
No (2)
CL Item
Not assessed (3)
Item
Bulbar LMN-Clinical
text
C0524459 (UMLS CUI [1,1])
C0243095 (UMLS CUI [1,2])
Lower motor neuron findings
Code List
Bulbar LMN-Clinical
CL Item
Yes (1)
CL Item
No (2)
CL Item
Not assessed (2)
Item
Truncal LMN-Clinical
text
C0524459 (UMLS CUI [1,1])
C0243095 (UMLS CUI [1,2])
Lower motor neuron findings
Code List
Truncal LMN-Clinical
CL Item
Yes (1)
CL Item
No (2)
CL Item
Not assessed (3)
Item
Generalized LMN-Clinical
text
C0524459 (UMLS CUI [1,1])
C0243095 (UMLS CUI [1,2])
Lower motor neuron findings
Code List
Generalized LMN-Clinical
CL Item
Yes (1)
CL Item
No (2)
CL Item
Not assessed (3)
Item
Upper Limb LMN-Clinical
text
C0524459 (UMLS CUI [1,1])
C0243095 (UMLS CUI [1,2])
Lower motor neuron findings
Code List
Upper Limb LMN-Clinical
CL Item
Yes (1)
CL Item
No (2)
CL Item
Not assessed (3)
Item
Lower Limb LMN-Clinical
text
C0524459 (UMLS CUI [1,1])
C0243095 (UMLS CUI [1,2])
Lower motor neuron findings
Code List
Lower Limb LMN-Clinical
CL Item
Yes (1)
CL Item
No (2)
CL Item
Not assessed (3)
Item
Revised El Escorial Criteria
text
Revised El Escorial Criteria
Code List
Revised El Escorial Criteria
CL Item
Definite (1)
CL Item
Probable (2)
CL Item
Lab-supported probable (3)
CL Item
Possible (4)
CL Item
Familial (5)
Item
Awaji criteria
text
Awaji criteria
Code List
Awaji criteria
CL Item
definite (1)
CL Item
probable (2)
CL Item
possible (3)
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