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ID
12393
Description
CF-Patient, multicenter trial of hemolysis as diagnostic test for cystic fibrosis (HemCF) Principal Investigator PD Dr. Hermann Schillers, University Hospital of Mnster
Keywords
Versions (2)
- 11/13/15 11/13/15 -
- 11/23/15 11/23/15 -
Uploaded on
November 13, 2015
DOI
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License
Creative Commons BY-NC 3.0
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CF-Patient documentation: multicenter trial of hemolysis as diagnostic test for cystic fibrosis (HemCF)
CF-Patient, multicenter trial of hemolysis as diagnostic test for cystic fibrosis (HemCF)
Similar models
CF-Patient, multicenter trial of hemolysis as diagnostic test for cystic fibrosis (HemCF)
Name
Type
Description | Question | Decode (Coded Value)
Data type
Alias
center
Item
Zentrum
integer
Patient number
Item
integer
Patient name
Item
text
C1299487 (UMLS CUI [1])
Date Consent
Item
date
Existence of a signed consent form
Item
boolean
Respiratory infections within the last 4 weeks
Item
boolean
Participation in drug study within the last 30 days
Item
boolean
Clinical evidence of cystic fibrosis
Item
boolean
Typical CF patient and the F508 homozygous
Item
boolean
Typical CF patient and not the F508 homozygous
Item
boolean
Atypical CF patient
Item
boolean
Date
Item
date
C0011008 (UMLS CUI [1])
CFTR mutations
Item
boolean
CL Item
(delF508 )
CL Item
(N1303K )
CL Item
(R117H)
CL Item
(G551D )
CL Item
(R560T )
CL Item
(2184dA)
CL Item
(G542X )
CL Item
(dl507 )
CL Item
(R1162X)
CL Item
(R553X )
CL Item
(1717-1G→A )
CL Item
(3849+10kb C→T)
CL Item
(W1282X )
CL Item
(A455E)
CL Item
(R347P S549N 621+1G→T)
CL Item
(delF508 )
CL Item
(N1303K )
CL Item
(R117H)
CL Item
(G551D )
CL Item
(R560T )
CL Item
(2184dA)
CL Item
(G542X )
CL Item
(dl507 )
CL Item
(R1162X)
CL Item
(R553X )
CL Item
(1717-1G→A )
CL Item
(3849+10kb C→T)
CL Item
(W1282X )
CL Item
(A455E)
CL Item
(R347P S549N 621+1G→T)
CL Item
(delF508 )
CL Item
(N1303K )
CL Item
(R117H)
CL Item
(G551D )
CL Item
(R560T )
CL Item
(2184dA)
CL Item
(G542X )
CL Item
(dl507 )
CL Item
(R1162X)
CL Item
(R553X )
CL Item
(1717-1G→A )
CL Item
(3849+10kb C→T)
CL Item
(W1282X )
CL Item
(A455E)
CL Item
(R347P S549N 621+1G→T)
Other mutation allele 1
Item
text
Other mutation allele 2
Item
text
Shwachman score without X
Item
integer
CL Item
(<30 mmol/l )
CL Item
(≥30 und ≤60 mmol/l )
CL Item
(>60 mmol/l)
date
Item
date
date unknown
Item
boolean
Performed pulmonary function tests
Item
boolean
Date pulmonary function test
Item
date
FEV1
Item
float
FVC
Item
float
Date of birth
Item
date
C0421451 (UMLS CUI [1])
CL Item
(1)
CL Item
(2)
body weight
Item
float
height
Item
float
C0005890 (UMLS CUI [1])
date blood Collection
Item
datetime
Date laboratory examination
Item
datetime
Monitoring of results 75
Item
float
Result Gd3
Item
float
Result Gd3 + + Zn 2
Item
float
erythrocyte
Item
float
vitamin e
Item
float
reticulocytes
Item
float
CL Item
(1)
CL Item
(2)
zinc
Item
float
CL Item
(1)
CL Item
(2)
no concomitant medication
Item
boolean
CL Item
(Colistin)
CL Item
(Tobramycin)
CL Item
(Dornase)
CL Item
(Salbutamol)
CL Item
(Salmeterol)
CL Item
(Formoterol)
CL Item
(Budesonid)
CL Item
(Fluticason/Salmeterol)
CL Item
(Ipratropiumbromid/Fenoterol)
CL Item
(Hypertone Kochsalzlösung)
CL Item
(Lipase, Amylase,)
CL Item
(Protease)
CL Item
(Multivitamin)
CL Item
(Selen)
CL Item
(Vitamin A)
CL Item
(Vitamin D)
CL Item
(Vitamin E)
CL Item
(Vitamin K)
CL Item
(Zink)
CL Item
(Betacarotin)
CL Item
(Azithromycin)
CL Item
(Cefaclor)
CL Item
(Cefadroxil)
CL Item
(Cefuroxim)
CL Item
(Ciprofloxacin)
CL Item
(Trimethoprim/)
CL Item
(Sulfamethoxazol)
CL Item
(Ambroxol)
CL Item
(N-Acetylcystein)
CL Item
(Omeprazol)
CL Item
(Ursodesoxycholsäure)
other concomitant medications
Item
text
date
Item
date
signature examiner
Item
text