ID

11228

Beschrijving

Z6051 Stoma Quality of Life Scale (SQOLS) NCT00726622 Laparoscopic-Assisted Resection or Open Resection in Treating Patients With Stage IIA, Stage IIIA, or Stage IIIB Rectal Cancer Source Form: NCI FormBuilder: https://formbuilder.nci.nih.gov/FormBuilder/formDetailsAction.do?method=getFormDetails&formIdSeq=4AD922C0-C82B-483B-E044-0003BA3F9857

Link

https://formbuilder.nci.nih.gov/FormBuilder/formDetailsAction.do?method=getFormDetails&formIdSeq=4AD922C0-C82B-483B-E044-0003BA3F9857

Trefwoorden

  1. 27-08-12 27-08-12 -
  2. 09-01-15 09-01-15 - Martin Dugas
  3. 26-06-15 26-06-15 -
Geüploaded op

26 juni 2015

DOI

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Licentie

Creative Commons BY-NC 3.0 Legacy

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Z6051 Stoma Quality of Life Scale (SQOLS) NCT00726622

No Instruction available.

  1. StudyEvent: Z6051 Stoma Quality of Life Scale (SQOLS)
    1. No Instruction available.
Patient demographics
Beschrijving

Patient demographics

Visit
Beschrijving

AmericanCollegeofSurgeonsOncologyGroupVisitPeriodAmericanCollegeofSurgeonsOncologyGroupVisitPeriodType

Datatype

text

Alias
NCI Thesaurus ValueDomain
C25284
UMLS 2011AA ValueDomain
C0332307
NCI Thesaurus Property
C25616
UMLS 2011AA Property
C1948053
NCI Thesaurus ObjectClass
C19712
UMLS 2011AA ObjectClass
C1515944
NCI Thesaurus ObjectClass-2
C25716
UMLS 2011AA ObjectClass-2
C0545082
Patient ID (Pt. ID issued during registration unless pt. previously registered to an ACOSOG study.)
Beschrijving

Patient Study ID

Datatype

text

Alias
NCI Thesaurus ValueDomain
C25337
UMLS CUI-1
C2348585
NCI Thesaurus ObjectClass
C16960
NCI Thesaurus Property
C25462
NCI Thesaurus Property-2
C25364
Patient Initials
Beschrijving

Patient Initials

Datatype

text

Alias
NCI Thesaurus ValueDomain
C25191
UMLS CUI-1
C2986440
NCI Thesaurus ObjectClass
C16960
NCI Thesaurus Property
C25536
Institution Name
Beschrijving

Institution Name

Datatype

text

Alias
NCI Thesaurus ValueDomain
C25191
UMLS CUI-1
C1301943
NCI Thesaurus ObjectClass
C21541
NCI Thesaurus ValueDomain-2
C21541
NCI Thesaurus Property
C25364
Institution No.
Beschrijving

Institution Number

Datatype

text

Alias
NCI Thesaurus ValueDomain
C25337
UMLS CUI-1
C1301943
NCI Thesaurus ObjectClass
C21541
UMLS CUI-2
C0805701
NCI Thesaurus Property
C25364
Date
Beschrijving

Assessment Date

Datatype

date

Alias
NCI Thesaurus ValueDomain
C25164
UMLS CUI-1
C2985720
NCI Thesaurus ObjectClass
C25367
NCI Thesaurus ValueDomain-2
C25367
NCI Thesaurus Property
C38000
Quality of life assessment
Beschrijving

Quality of life assessment

I am able to participate in hobbies that I enjoy
Beschrijving

StomaQualityofLifeHobbyParticipationAssessmentScale

Datatype

text

Alias
NCI Thesaurus ObjectClass
C17047
UMLS 2011AA ObjectClass
C0518214
NCI Thesaurus ObjectClass-2
C13345
UMLS 2011AA ObjectClass-2
C1955856
NCI Thesaurus Property
C25608
UMLS 2011AA Property
C0679823
NCI Thesaurus Property-2
C25217
UMLS 2011AA Property-2
C1516048
NCI Thesaurus Property-3
C73426
UMLS 2011AA Property-3
C0019826
NCI Thesaurus ValueDomain
C25664
UMLS 2011AA ValueDomain
C0349674
I do not enjoy eating out in public because of concerns regarding my stoma
Beschrijving

StomaQualityofLifeNoSatisfactionPublicConsumptionAssessmentScale

Datatype

text

Alias
NCI Thesaurus ObjectClass
C17047
UMLS 2011AA ObjectClass
C0518214
NCI Thesaurus ObjectClass-2
C13345
UMLS 2011AA ObjectClass-2
C1955856
NCI Thesaurus Property
C25367
NCI Thesaurus Property-2
C66715
UMLS 2011AA Property
C1947907
NCI Thesaurus Property-3
C49060
UMLS 2011AA Property-2
C0678367
NCI Thesaurus Property-4
C62184
UMLS 2011AA Property-3
C0870433
NCI Thesaurus ValueDomain
C25664
UMLS 2011AA ValueDomain
C0349674
I am able to go out with friends
Beschrijving

StomaQualityofLifePublicEventParticipationAssessmentScale

Datatype

text

Alias
NCI Thesaurus ObjectClass
C17047
UMLS 2011AA ObjectClass
C0518214
NCI Thesaurus ObjectClass-2
C13345
UMLS 2011AA ObjectClass-2
C1955856
NCI Thesaurus Property
C25608
UMLS 2011AA Property
C0679823
NCI Thesaurus Property-2
C25367
NCI Thesaurus Property-3
C25499
UMLS 2011AA Property-2
C0441471
NCI Thesaurus Property-4
C49060
UMLS 2011AA Property-3
C0678367
NCI Thesaurus ValueDomain
C25664
UMLS 2011AA ValueDomain
C0349674
I am able to perform the same duties at work/school
Beschrijving

StomaQualityofLifeOccupationParticipationAssessmentScale

Datatype

text

Alias
NCI Thesaurus ObjectClass
C17047
UMLS 2011AA ObjectClass
C0518214
NCI Thesaurus ObjectClass-2
C13345
UMLS 2011AA ObjectClass-2
C1955856
NCI Thesaurus Property
C25608
UMLS 2011AA Property
C0679823
NCI Thesaurus Property-2
C25367
NCI Thesaurus Property-3
C25193
UMLS 2011AA Property-2
C0028811
NCI Thesaurus ValueDomain
C25664
UMLS 2011AA ValueDomain
C0349674
I worry about traveling because of my stoma
Beschrijving

StomaQualityofLifeTravelAnxietyAssessmentScale

Datatype

text

Alias
NCI Thesaurus ObjectClass
C17047
UMLS 2011AA ObjectClass
C0518214
NCI Thesaurus ObjectClass-2
C13345
UMLS 2011AA ObjectClass-2
C1955856
NCI Thesaurus Property
C25367
NCI Thesaurus Property-2
C26696
UMLS 2011AA Property
C0003467
NCI Thesaurus Property-3
C53462
UMLS 2011AA Property-2
C0040802
NCI Thesaurus ValueDomain
C25664
UMLS 2011AA ValueDomain
C0349674
I enjoy sexual activity less because of my stoma
Beschrijving

StomaQualityofLifeSexBehaviorReducedSatisfactionAssessmentScale

Datatype

text

Alias
NCI Thesaurus ObjectClass
C17047
UMLS 2011AA ObjectClass
C0518214
NCI Thesaurus ObjectClass-2
C13345
UMLS 2011AA ObjectClass-2
C1955856
NCI Thesaurus Property
C25367
NCI Thesaurus Property-2
C62185
UMLS 2011AA Property
C0242428
NCI Thesaurus Property-3
C25640
UMLS 2011AA Property-2
C0392756
NCI Thesaurus Property-4
C17127
UMLS 2011AA Property-3
C0036864
NCI Thesaurus ValueDomain
C25664
UMLS 2011AA ValueDomain
C0349674
I feel less attractive because of my stoma
Beschrijving

StomaQualityofLifeReducedAttractiveAssessmentScale

Datatype

text

Alias
NCI Thesaurus ObjectClass
C17047
UMLS 2011AA ObjectClass
C0518214
NCI Thesaurus ObjectClass-2
C13345
UMLS 2011AA ObjectClass-2
C1955856
NCI Thesaurus Property
C25367
NCI Thesaurus Property-2
C25640
UMLS 2011AA Property
C0392756
NCI Thesaurus Property-3
C73114
UMLS 2011AA Property-2
C2346874
NCI Thesaurus ValueDomain
C25664
UMLS 2011AA ValueDomain
C0349674
My sexual partner is not bothered by my stoma
Beschrijving

StomaQualityofLifeSexBehaviorAssessmentScale

Datatype

text

Alias
NCI Thesaurus ObjectClass
C17047
UMLS 2011AA ObjectClass
C0518214
NCI Thesaurus ObjectClass-2
C13345
UMLS 2011AA ObjectClass-2
C1955856
NCI Thesaurus Property
C25367
NCI Thesaurus Property-2
C17127
UMLS 2011AA Property
C0036864
NCI Thesaurus ValueDomain
C25664
UMLS 2011AA ValueDomain
C0349674
I don't mind if others are aware I have a stoma
Beschrijving

StomaQualityofLifeAwarenessSatisfactionAssessmentScale

Datatype

text

Alias
NCI Thesaurus ObjectClass
C17047
UMLS 2011AA ObjectClass
C0518214
NCI Thesaurus ObjectClass-2
C13345
UMLS 2011AA ObjectClass-2
C1955856
NCI Thesaurus Property
C25367
NCI Thesaurus Property-2
C62185
UMLS 2011AA Property
C0242428
NCI Thesaurus Property-3
C54070
UMLS 2011AA Property-2
C0004448
NCI Thesaurus ValueDomain
C25664
UMLS 2011AA ValueDomain
C0349674
I feel attractive in my clothing
Beschrijving

StomaQualityofLifeAttractiveSatisfactionAssessmentScale

Datatype

text

Alias
NCI Thesaurus ObjectClass
C17047
UMLS 2011AA ObjectClass
C0518214
NCI Thesaurus ObjectClass-2
C13345
UMLS 2011AA ObjectClass-2
C1955856
NCI Thesaurus Property
C25367
NCI Thesaurus Property-2
C62185
UMLS 2011AA Property
C0242428
NCI Thesaurus Property-3
C73114
UMLS 2011AA Property-2
C2346874
NCI Thesaurus ValueDomain
C25664
UMLS 2011AA ValueDomain
C0349674
I am statisfied with the foods I eat
Beschrijving

StomaQualityofLifeConsumptionSatisfactionAssessmentScale

Datatype

text

Alias
NCI Thesaurus ObjectClass
C17047
UMLS 2011AA ObjectClass
C0518214
NCI Thesaurus ObjectClass-2
C13345
UMLS 2011AA ObjectClass-2
C1955856
NCI Thesaurus Property
C62185
UMLS 2011AA Property
C0242428
NCI Thesaurus Property-2
C66715
UMLS 2011AA Property-2
C1947907
NCI Thesaurus Property-3
C25217
UMLS 2011AA Property-3
C1516048
NCI Thesaurus ValueDomain
C25664
UMLS 2011AA ValueDomain
C0349674
I have financial concerns regarding my ostomy supplies
Beschrijving

StomaQualityofLifeFinancialAnxietyAssessmentScale

Datatype

text

Alias
NCI Thesaurus ObjectClass
C17047
UMLS 2011AA ObjectClass
C0518214
NCI Thesaurus ObjectClass-2
C13345
UMLS 2011AA ObjectClass-2
C1955856
NCI Thesaurus Property
C26696
UMLS 2011AA Property
C0003467
NCI Thesaurus Property-2
C25217
UMLS 2011AA Property-2
C1516048
NCI Thesaurus Property-3
C72888
UMLS 2011AA Property-3
C2350008
NCI Thesaurus ValueDomain
C25664
UMLS 2011AA ValueDomain
C0349674
I have problems with odor
Beschrijving

StomaQualityofLifeOlfactionAssessmentScale

Datatype

text

Alias
NCI Thesaurus ObjectClass
C17047
UMLS 2011AA ObjectClass
C0518214
NCI Thesaurus ObjectClass-2
C13345
UMLS 2011AA ObjectClass-2
C1955856
NCI Thesaurus Property
C25367
NCI Thesaurus Property-2
C17139
UMLS 2011AA Property
C0037361
NCI Thesaurus ValueDomain
C25664
UMLS 2011AA ValueDomain
C0349674
I am embarrassed by gas (noises or rapid filling of bag)
Beschrijving

StomaQualityofLifeFlatulenceAssessmentScale

Datatype

text

Alias
NCI Thesaurus ObjectClass
C17047
UMLS 2011AA ObjectClass
C0518214
NCI Thesaurus ObjectClass-2
C13345
UMLS 2011AA ObjectClass-2
C1955856
NCI Thesaurus Property
C25367
NCI Thesaurus Property-2
C37954
UMLS 2011AA Property
C0016204
NCI Thesaurus ValueDomain
C25664
UMLS 2011AA ValueDomain
C0349674
I am worried my stoma will leak
Beschrijving

StomaQualityofLifeLeakageAnxietyAssessmentScale

Datatype

text

Alias
NCI Thesaurus ObjectClass
C17047
UMLS 2011AA ObjectClass
C0518214
NCI Thesaurus ObjectClass-2
C13345
UMLS 2011AA ObjectClass-2
C1955856
NCI Thesaurus Property
C25367
NCI Thesaurus Property-2
C26696
UMLS 2011AA Property
C0003467
NCI Thesaurus Property-3
C40416
UMLS 2011AA Property-2
C0015376
NCI Thesaurus ValueDomain
C25664
UMLS 2011AA ValueDomain
C0349674
I am bothered by skin irritation around the stoma
Beschrijving

StomaQualityofLifeSkinIrritationAssessmentScale

Datatype

text

Alias
NCI Thesaurus ObjectClass
C17047
UMLS 2011AA ObjectClass
C0518214
NCI Thesaurus ObjectClass-2
C13345
UMLS 2011AA ObjectClass-2
C1955856
NCI Thesaurus Property
C25367
NCI Thesaurus Property-2
C50743
UMLS 2011AA Property
C0152030
NCI Thesaurus ValueDomain
C25664
UMLS 2011AA ValueDomain
C0349674
I manage the same responsibilities at home
Beschrijving

StomaQualityofLifeManagementHouseholdAssessmentScale

Datatype

text

Alias
NCI Thesaurus ObjectClass
C17047
UMLS 2011AA ObjectClass
C0518214
NCI Thesaurus ObjectClass-2
C13345
UMLS 2011AA ObjectClass-2
C1955856
NCI Thesaurus Property
C25367
NCI Thesaurus Property-2
C61372
UMLS 2011AA Property
C1273870
NCI Thesaurus Property-3
C41194
UMLS 2011AA Property-2
C0020052
NCI Thesaurus ValueDomain
C25664
UMLS 2011AA ValueDomain
C0349674
Social situations make me feel anxious
Beschrijving

StomaQualityofLifeSocialCircumstancesAnxietyAssessmentScale

Datatype

text

Alias
NCI Thesaurus ObjectClass
C17047
UMLS 2011AA ObjectClass
C0518214
NCI Thesaurus ObjectClass-2
C13345
UMLS 2011AA ObjectClass-2
C1955856
NCI Thesaurus Property
C25367
NCI Thesaurus Property-2
C26696
UMLS 2011AA Property
C0003467
NCI Thesaurus Property-3
C20188
UMLS 2011AA Property-2
C0851364
NCI Thesaurus ValueDomain
C25664
UMLS 2011AA ValueDomain
C0349674
I find an ostomy support group helpful
Beschrijving

StomaQualityofLifeSupportGroupAnxietyBenefitsAssessmentScale

Datatype

text

Alias
NCI Thesaurus ObjectClass
C17047
UMLS 2011AA ObjectClass
C0518214
NCI Thesaurus ObjectClass-2
C13345
UMLS 2011AA ObjectClass-2
C1955856
NCI Thesaurus Property
C25367
NCI Thesaurus Property-2
C25387
UMLS 2011AA Property
C0814225
NCI Thesaurus Property-3
C17120
UMLS 2011AA Property-2
C0036606
NCI Thesaurus ValueDomain
C25664
UMLS 2011AA ValueDomain
C0349674
Rate your overall satisfaction with your life right now on a scale of 0 to 100 (With 0 being very unhappy to 100 totally satisfied.)
Beschrijving

StomaQualityofLifeOverallSatisfactionAssessmentScore

Datatype

float

Alias
NCI Thesaurus ObjectClass
C17047
UMLS 2011AA ObjectClass
C0518214
NCI Thesaurus ObjectClass-2
C13345
UMLS 2011AA ObjectClass-2
C1955856
NCI Thesaurus Property
C25605
UMLS 2011AA Property
C1561607
NCI Thesaurus Property-2
C25367
NCI Thesaurus Property-3
C62185
UMLS 2011AA Property-2
C0242428
NCI Thesaurus ValueDomain
C25338
UMLS 2011AA ValueDomain
C0449820
What effect has your stoma had on your quality of life
Beschrijving

StomaQualityofLifeEffectAssessmentScale

Datatype

text

Alias
NCI Thesaurus ObjectClass
C17047
UMLS 2011AA ObjectClass
C0518214
NCI Thesaurus ObjectClass-2
C13345
UMLS 2011AA ObjectClass-2
C1955856
NCI Thesaurus Property
C25367
NCI Thesaurus Property-2
C25492
UMLS 2011AA Property
C1280500
NCI Thesaurus ValueDomain
C25664
UMLS 2011AA ValueDomain
C0349674
When you left the hospital how prepared did you feel to take care of your new stoma/ostomy (Rate your level of preparedness on a scale of 0 to 100. With 0 being totally unprepared to 100 feeling totally prepared and confident.)
Beschrijving

StomaQualityofLifeDischargeConfidenceAssessmentScore

Datatype

float

Alias
NCI Thesaurus ObjectClass
C17047
UMLS 2011AA ObjectClass
C0518214
NCI Thesaurus ObjectClass-2
C13345
UMLS 2011AA ObjectClass-2
C1955856
NCI Thesaurus Property
C25367
NCI Thesaurus Property-2
C25166
UMLS 2011AA Property
C0030685
NCI Thesaurus Property-3
C43367
UMLS 2011AA Property-2
C1704726
NCI Thesaurus ValueDomain
C25338
UMLS 2011AA ValueDomain
C0449820

Similar models

No Instruction available.

  1. StudyEvent: Z6051 Stoma Quality of Life Scale (SQOLS)
    1. No Instruction available.
Name
Type
Description | Question | Decode (Coded Value)
Datatype
Alias
Item Group
Patient demographics
Item
Visit
text
C25284 (NCI Thesaurus ValueDomain)
C0332307 (UMLS 2011AA ValueDomain)
C25616 (NCI Thesaurus Property)
C1948053 (UMLS 2011AA Property)
C19712 (NCI Thesaurus ObjectClass)
C1515944 (UMLS 2011AA ObjectClass)
C25716 (NCI Thesaurus ObjectClass-2)
C0545082 (UMLS 2011AA ObjectClass-2)
Code List
Visit
CL Item
Month 12 (Month 12)
Patient Study ID
Item
Patient ID (Pt. ID issued during registration unless pt. previously registered to an ACOSOG study.)
text
C25337 (NCI Thesaurus ValueDomain)
C2348585 (UMLS CUI-1)
C16960 (NCI Thesaurus ObjectClass)
C25462 (NCI Thesaurus Property)
C25364 (NCI Thesaurus Property-2)
Patient Initials
Item
Patient Initials
text
C25191 (NCI Thesaurus ValueDomain)
C2986440 (UMLS CUI-1)
C16960 (NCI Thesaurus ObjectClass)
C25536 (NCI Thesaurus Property)
Institution Name
Item
Institution Name
text
C25191 (NCI Thesaurus ValueDomain)
C1301943 (UMLS CUI-1)
C21541 (NCI Thesaurus ObjectClass)
C21541 (NCI Thesaurus ValueDomain-2)
C25364 (NCI Thesaurus Property)
Institution Number
Item
Institution No.
text
C25337 (NCI Thesaurus ValueDomain)
C1301943 (UMLS CUI-1)
C21541 (NCI Thesaurus ObjectClass)
C0805701 (UMLS CUI-2)
C25364 (NCI Thesaurus Property)
Assessment Date
Item
Date
date
C25164 (NCI Thesaurus ValueDomain)
C2985720 (UMLS CUI-1)
C25367 (NCI Thesaurus ObjectClass)
C25367 (NCI Thesaurus ValueDomain-2)
C38000 (NCI Thesaurus Property)
Item Group
Quality of life assessment
Item
I am able to participate in hobbies that I enjoy
text
C17047 (NCI Thesaurus ObjectClass)
C0518214 (UMLS 2011AA ObjectClass)
C13345 (NCI Thesaurus ObjectClass-2)
C1955856 (UMLS 2011AA ObjectClass-2)
C25608 (NCI Thesaurus Property)
C0679823 (UMLS 2011AA Property)
C25217 (NCI Thesaurus Property-2)
C1516048 (UMLS 2011AA Property-2)
C73426 (NCI Thesaurus Property-3)
C0019826 (UMLS 2011AA Property-3)
C25664 (NCI Thesaurus ValueDomain)
C0349674 (UMLS 2011AA ValueDomain)
Code List
I am able to participate in hobbies that I enjoy
CL Item
Agree (Agree)
CL Item
Disagree (Disagree)
CL Item
Neither (Neither)
CL Item
Strongly Agree (Strongly agree)
CL Item
Strongly Disagree (Strongly disagree)
Item
I do not enjoy eating out in public because of concerns regarding my stoma
text
C17047 (NCI Thesaurus ObjectClass)
C0518214 (UMLS 2011AA ObjectClass)
C13345 (NCI Thesaurus ObjectClass-2)
C1955856 (UMLS 2011AA ObjectClass-2)
C25367 (NCI Thesaurus Property)
C66715 (NCI Thesaurus Property-2)
C1947907 (UMLS 2011AA Property)
C49060 (NCI Thesaurus Property-3)
C0678367 (UMLS 2011AA Property-2)
C62184 (NCI Thesaurus Property-4)
C0870433 (UMLS 2011AA Property-3)
C25664 (NCI Thesaurus ValueDomain)
C0349674 (UMLS 2011AA ValueDomain)
Code List
I do not enjoy eating out in public because of concerns regarding my stoma
CL Item
Agree (Agree)
CL Item
Disagree (Disagree)
CL Item
Neither (Neither)
CL Item
Strongly Agree (Strongly agree)
CL Item
Strongly Disagree (Strongly disagree)
Item
I am able to go out with friends
text
C17047 (NCI Thesaurus ObjectClass)
C0518214 (UMLS 2011AA ObjectClass)
C13345 (NCI Thesaurus ObjectClass-2)
C1955856 (UMLS 2011AA ObjectClass-2)
C25608 (NCI Thesaurus Property)
C0679823 (UMLS 2011AA Property)
C25367 (NCI Thesaurus Property-2)
C25499 (NCI Thesaurus Property-3)
C0441471 (UMLS 2011AA Property-2)
C49060 (NCI Thesaurus Property-4)
C0678367 (UMLS 2011AA Property-3)
C25664 (NCI Thesaurus ValueDomain)
C0349674 (UMLS 2011AA ValueDomain)
Code List
I am able to go out with friends
CL Item
Agree (Agree)
CL Item
Disagree (Disagree)
CL Item
Neither (Neither)
CL Item
Strongly Agree (Strongly agree)
CL Item
Strongly Disagree (Strongly disagree)
Item
I am able to perform the same duties at work/school
text
C17047 (NCI Thesaurus ObjectClass)
C0518214 (UMLS 2011AA ObjectClass)
C13345 (NCI Thesaurus ObjectClass-2)
C1955856 (UMLS 2011AA ObjectClass-2)
C25608 (NCI Thesaurus Property)
C0679823 (UMLS 2011AA Property)
C25367 (NCI Thesaurus Property-2)
C25193 (NCI Thesaurus Property-3)
C0028811 (UMLS 2011AA Property-2)
C25664 (NCI Thesaurus ValueDomain)
C0349674 (UMLS 2011AA ValueDomain)
Code List
I am able to perform the same duties at work/school
CL Item
Always (Always)
CL Item
Frequently (Frequently)
CL Item
Never (Never)
CL Item
Occasionally (Occasionally)
CL Item
Seldom (Seldom)
Item
I worry about traveling because of my stoma
text
C17047 (NCI Thesaurus ObjectClass)
C0518214 (UMLS 2011AA ObjectClass)
C13345 (NCI Thesaurus ObjectClass-2)
C1955856 (UMLS 2011AA ObjectClass-2)
C25367 (NCI Thesaurus Property)
C26696 (NCI Thesaurus Property-2)
C0003467 (UMLS 2011AA Property)
C53462 (NCI Thesaurus Property-3)
C0040802 (UMLS 2011AA Property-2)
C25664 (NCI Thesaurus ValueDomain)
C0349674 (UMLS 2011AA ValueDomain)
Code List
I worry about traveling because of my stoma
CL Item
Agree (Agree)
CL Item
Disagree (Disagree)
CL Item
Neither (Neither)
CL Item
Strongly Agree (Strongly agree)
CL Item
Strongly Disagree (Strongly disagree)
Item
I enjoy sexual activity less because of my stoma
text
C17047 (NCI Thesaurus ObjectClass)
C0518214 (UMLS 2011AA ObjectClass)
C13345 (NCI Thesaurus ObjectClass-2)
C1955856 (UMLS 2011AA ObjectClass-2)
C25367 (NCI Thesaurus Property)
C62185 (NCI Thesaurus Property-2)
C0242428 (UMLS 2011AA Property)
C25640 (NCI Thesaurus Property-3)
C0392756 (UMLS 2011AA Property-2)
C17127 (NCI Thesaurus Property-4)
C0036864 (UMLS 2011AA Property-3)
C25664 (NCI Thesaurus ValueDomain)
C0349674 (UMLS 2011AA ValueDomain)
Code List
I enjoy sexual activity less because of my stoma
CL Item
Agree (Agree)
CL Item
Disagree (Disagree)
CL Item
Neither (Neither)
CL Item
Strongly Agree (Strongly agree)
CL Item
Strongly Disagree (Strongly disagree)
Item
I feel less attractive because of my stoma
text
C17047 (NCI Thesaurus ObjectClass)
C0518214 (UMLS 2011AA ObjectClass)
C13345 (NCI Thesaurus ObjectClass-2)
C1955856 (UMLS 2011AA ObjectClass-2)
C25367 (NCI Thesaurus Property)
C25640 (NCI Thesaurus Property-2)
C0392756 (UMLS 2011AA Property)
C73114 (NCI Thesaurus Property-3)
C2346874 (UMLS 2011AA Property-2)
C25664 (NCI Thesaurus ValueDomain)
C0349674 (UMLS 2011AA ValueDomain)
Code List
I feel less attractive because of my stoma
CL Item
Agree (Agree)
CL Item
Disagree (Disagree)
CL Item
Neither (Neither)
CL Item
Strongly Agree (Strongly agree)
CL Item
Strongly Disagree (Strongly disagree)
Item
My sexual partner is not bothered by my stoma
text
C17047 (NCI Thesaurus ObjectClass)
C0518214 (UMLS 2011AA ObjectClass)
C13345 (NCI Thesaurus ObjectClass-2)
C1955856 (UMLS 2011AA ObjectClass-2)
C25367 (NCI Thesaurus Property)
C17127 (NCI Thesaurus Property-2)
C0036864 (UMLS 2011AA Property)
C25664 (NCI Thesaurus ValueDomain)
C0349674 (UMLS 2011AA ValueDomain)
Code List
My sexual partner is not bothered by my stoma
CL Item
Agree (Agree)
CL Item
Disagree (Disagree)
CL Item
Neither (Neither)
CL Item
Strongly Agree (Strongly agree)
CL Item
Strongly Disagree (Strongly disagree)
Item
I don't mind if others are aware I have a stoma
text
C17047 (NCI Thesaurus ObjectClass)
C0518214 (UMLS 2011AA ObjectClass)
C13345 (NCI Thesaurus ObjectClass-2)
C1955856 (UMLS 2011AA ObjectClass-2)
C25367 (NCI Thesaurus Property)
C62185 (NCI Thesaurus Property-2)
C0242428 (UMLS 2011AA Property)
C54070 (NCI Thesaurus Property-3)
C0004448 (UMLS 2011AA Property-2)
C25664 (NCI Thesaurus ValueDomain)
C0349674 (UMLS 2011AA ValueDomain)
Code List
I don't mind if others are aware I have a stoma
CL Item
Agree (Agree)
CL Item
Disagree (Disagree)
CL Item
Neither (Neither)
CL Item
Strongly Agree (Strongly agree)
CL Item
Strongly Disagree (Strongly disagree)
Item
I feel attractive in my clothing
text
C17047 (NCI Thesaurus ObjectClass)
C0518214 (UMLS 2011AA ObjectClass)
C13345 (NCI Thesaurus ObjectClass-2)
C1955856 (UMLS 2011AA ObjectClass-2)
C25367 (NCI Thesaurus Property)
C62185 (NCI Thesaurus Property-2)
C0242428 (UMLS 2011AA Property)
C73114 (NCI Thesaurus Property-3)
C2346874 (UMLS 2011AA Property-2)
C25664 (NCI Thesaurus ValueDomain)
C0349674 (UMLS 2011AA ValueDomain)
Code List
I feel attractive in my clothing
CL Item
Always (Always)
CL Item
Frequently (Frequently)
CL Item
Never (Never)
CL Item
Occasionally (Occasionally)
CL Item
Seldom (Seldom)
Item
I am statisfied with the foods I eat
text
C17047 (NCI Thesaurus ObjectClass)
C0518214 (UMLS 2011AA ObjectClass)
C13345 (NCI Thesaurus ObjectClass-2)
C1955856 (UMLS 2011AA ObjectClass-2)
C62185 (NCI Thesaurus Property)
C0242428 (UMLS 2011AA Property)
C66715 (NCI Thesaurus Property-2)
C1947907 (UMLS 2011AA Property-2)
C25217 (NCI Thesaurus Property-3)
C1516048 (UMLS 2011AA Property-3)
C25664 (NCI Thesaurus ValueDomain)
C0349674 (UMLS 2011AA ValueDomain)
Code List
I am statisfied with the foods I eat
CL Item
Always (Always)
CL Item
Frequently (Frequently)
CL Item
Never (Never)
CL Item
Occasionally (Occasionally)
CL Item
Seldom (Seldom)
Item
I have financial concerns regarding my ostomy supplies
text
C17047 (NCI Thesaurus ObjectClass)
C0518214 (UMLS 2011AA ObjectClass)
C13345 (NCI Thesaurus ObjectClass-2)
C1955856 (UMLS 2011AA ObjectClass-2)
C26696 (NCI Thesaurus Property)
C0003467 (UMLS 2011AA Property)
C25217 (NCI Thesaurus Property-2)
C1516048 (UMLS 2011AA Property-2)
C72888 (NCI Thesaurus Property-3)
C2350008 (UMLS 2011AA Property-3)
C25664 (NCI Thesaurus ValueDomain)
C0349674 (UMLS 2011AA ValueDomain)
Code List
I have financial concerns regarding my ostomy supplies
CL Item
Always (Always)
CL Item
Frequently (Frequently)
CL Item
Never (Never)
CL Item
Occasionally (Occasionally)
CL Item
Seldom (Seldom)
Item
I have problems with odor
text
C17047 (NCI Thesaurus ObjectClass)
C0518214 (UMLS 2011AA ObjectClass)
C13345 (NCI Thesaurus ObjectClass-2)
C1955856 (UMLS 2011AA ObjectClass-2)
C25367 (NCI Thesaurus Property)
C17139 (NCI Thesaurus Property-2)
C0037361 (UMLS 2011AA Property)
C25664 (NCI Thesaurus ValueDomain)
C0349674 (UMLS 2011AA ValueDomain)
Code List
I have problems with odor
CL Item
Always (Always)
CL Item
Frequently (Frequently)
CL Item
Never (Never)
CL Item
Occasionally (Occasionally)
CL Item
Seldom (Seldom)
Item
I am embarrassed by gas (noises or rapid filling of bag)
text
C17047 (NCI Thesaurus ObjectClass)
C0518214 (UMLS 2011AA ObjectClass)
C13345 (NCI Thesaurus ObjectClass-2)
C1955856 (UMLS 2011AA ObjectClass-2)
C25367 (NCI Thesaurus Property)
C37954 (NCI Thesaurus Property-2)
C0016204 (UMLS 2011AA Property)
C25664 (NCI Thesaurus ValueDomain)
C0349674 (UMLS 2011AA ValueDomain)
Code List
I am embarrassed by gas (noises or rapid filling of bag)
CL Item
Always (Always)
CL Item
Frequently (Frequently)
CL Item
Never (Never)
CL Item
Occasionally (Occasionally)
CL Item
Seldom (Seldom)
Item
I am worried my stoma will leak
text
C17047 (NCI Thesaurus ObjectClass)
C0518214 (UMLS 2011AA ObjectClass)
C13345 (NCI Thesaurus ObjectClass-2)
C1955856 (UMLS 2011AA ObjectClass-2)
C25367 (NCI Thesaurus Property)
C26696 (NCI Thesaurus Property-2)
C0003467 (UMLS 2011AA Property)
C40416 (NCI Thesaurus Property-3)
C0015376 (UMLS 2011AA Property-2)
C25664 (NCI Thesaurus ValueDomain)
C0349674 (UMLS 2011AA ValueDomain)
Code List
I am worried my stoma will leak
CL Item
Always (Always)
CL Item
Frequently (Frequently)
CL Item
Never (Never)
CL Item
Occasionally (Occasionally)
CL Item
Seldom (Seldom)
Item
I am bothered by skin irritation around the stoma
text
C17047 (NCI Thesaurus ObjectClass)
C0518214 (UMLS 2011AA ObjectClass)
C13345 (NCI Thesaurus ObjectClass-2)
C1955856 (UMLS 2011AA ObjectClass-2)
C25367 (NCI Thesaurus Property)
C50743 (NCI Thesaurus Property-2)
C0152030 (UMLS 2011AA Property)
C25664 (NCI Thesaurus ValueDomain)
C0349674 (UMLS 2011AA ValueDomain)
Code List
I am bothered by skin irritation around the stoma
CL Item
Always (Always)
CL Item
Frequently (Frequently)
CL Item
Never (Never)
CL Item
Occasionally (Occasionally)
CL Item
Seldom (Seldom)
Item
I manage the same responsibilities at home
text
C17047 (NCI Thesaurus ObjectClass)
C0518214 (UMLS 2011AA ObjectClass)
C13345 (NCI Thesaurus ObjectClass-2)
C1955856 (UMLS 2011AA ObjectClass-2)
C25367 (NCI Thesaurus Property)
C61372 (NCI Thesaurus Property-2)
C1273870 (UMLS 2011AA Property)
C41194 (NCI Thesaurus Property-3)
C0020052 (UMLS 2011AA Property-2)
C25664 (NCI Thesaurus ValueDomain)
C0349674 (UMLS 2011AA ValueDomain)
Code List
I manage the same responsibilities at home
CL Item
Always (Always)
CL Item
Frequently (Frequently)
CL Item
Never (Never)
CL Item
Occasionally (Occasionally)
CL Item
Seldom (Seldom)
Item
Social situations make me feel anxious
text
C17047 (NCI Thesaurus ObjectClass)
C0518214 (UMLS 2011AA ObjectClass)
C13345 (NCI Thesaurus ObjectClass-2)
C1955856 (UMLS 2011AA ObjectClass-2)
C25367 (NCI Thesaurus Property)
C26696 (NCI Thesaurus Property-2)
C0003467 (UMLS 2011AA Property)
C20188 (NCI Thesaurus Property-3)
C0851364 (UMLS 2011AA Property-2)
C25664 (NCI Thesaurus ValueDomain)
C0349674 (UMLS 2011AA ValueDomain)
Code List
Social situations make me feel anxious
CL Item
Always (Always)
CL Item
Frequently (Frequently)
CL Item
Never (Never)
CL Item
Occasionally (Occasionally)
CL Item
Seldom (Seldom)
Item
I find an ostomy support group helpful
text
C17047 (NCI Thesaurus ObjectClass)
C0518214 (UMLS 2011AA ObjectClass)
C13345 (NCI Thesaurus ObjectClass-2)
C1955856 (UMLS 2011AA ObjectClass-2)
C25367 (NCI Thesaurus Property)
C25387 (NCI Thesaurus Property-2)
C0814225 (UMLS 2011AA Property)
C17120 (NCI Thesaurus Property-3)
C0036606 (UMLS 2011AA Property-2)
C25664 (NCI Thesaurus ValueDomain)
C0349674 (UMLS 2011AA ValueDomain)
Code List
I find an ostomy support group helpful
CL Item
Always (Always)
CL Item
Frequently (Frequently)
CL Item
Never (Never)
CL Item
Occasionally (Occasionally)
CL Item
Seldom (Seldom)
StomaQualityofLifeOverallSatisfactionAssessmentScore
Item
Rate your overall satisfaction with your life right now on a scale of 0 to 100 (With 0 being very unhappy to 100 totally satisfied.)
float
C17047 (NCI Thesaurus ObjectClass)
C0518214 (UMLS 2011AA ObjectClass)
C13345 (NCI Thesaurus ObjectClass-2)
C1955856 (UMLS 2011AA ObjectClass-2)
C25605 (NCI Thesaurus Property)
C1561607 (UMLS 2011AA Property)
C25367 (NCI Thesaurus Property-2)
C62185 (NCI Thesaurus Property-3)
C0242428 (UMLS 2011AA Property-2)
C25338 (NCI Thesaurus ValueDomain)
C0449820 (UMLS 2011AA ValueDomain)
Item
What effect has your stoma had on your quality of life
text
C17047 (NCI Thesaurus ObjectClass)
C0518214 (UMLS 2011AA ObjectClass)
C13345 (NCI Thesaurus ObjectClass-2)
C1955856 (UMLS 2011AA ObjectClass-2)
C25367 (NCI Thesaurus Property)
C25492 (NCI Thesaurus Property-2)
C1280500 (UMLS 2011AA Property)
C25664 (NCI Thesaurus ValueDomain)
C0349674 (UMLS 2011AA ValueDomain)
Code List
What effect has your stoma had on your quality of life
CL Item
Improved My Quality Of Life (Improved my quality of life)
CL Item
Made My Quality Of Life Worse (Made my quality of life worse)
CL Item
No Effect On My Quality Of Life (No effect on my quality of life)
StomaQualityofLifeDischargeConfidenceAssessmentScore
Item
When you left the hospital how prepared did you feel to take care of your new stoma/ostomy (Rate your level of preparedness on a scale of 0 to 100. With 0 being totally unprepared to 100 feeling totally prepared and confident.)
float
C17047 (NCI Thesaurus ObjectClass)
C0518214 (UMLS 2011AA ObjectClass)
C13345 (NCI Thesaurus ObjectClass-2)
C1955856 (UMLS 2011AA ObjectClass-2)
C25367 (NCI Thesaurus Property)
C25166 (NCI Thesaurus Property-2)
C0030685 (UMLS 2011AA Property)
C43367 (NCI Thesaurus Property-3)
C1704726 (UMLS 2011AA Property-2)
C25338 (NCI Thesaurus ValueDomain)
C0449820 (UMLS 2011AA ValueDomain)

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