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  1. 1. Ensayo clínico
  2. 2. Documentación de rutina
  3. 3. Estudio de registro / cohorte
  4. 4. Seguro de calidad
  5. 5. Estándar de datos
  6. 6. Resultado reportado por el paciente
  7. 7. Especialidad médica
Modelos de datos seleccionados

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- 31/1/22 - 6 formularios, 1 itemgroup, 18 items, 1 idioma
Itemgroup: Zum Zeitpunkt der Verlegung

Demographische Daten

1 itemgroup 11 items

CAM-ICU

1 itemgroup 5 items

Interhospitaltransport

7 itemgroups 34 items

Externe Klinik

7 itemgroups 96 items

Studienzentrum

4 itemgroups 44 items
- 17/5/17 - 1 formulario, 2 itemgroups, 4 items, 1 idioma
Itemgroups: Date of assessment, Demography
- 10/11/23 - 12 formularios, 19 itemgroups, 53 items, 1 idioma
Itemgroups: 5-FU, Calcium folinate & Granisetron, Surgery, Intraoperative re-evaluation, Tumor location, Surgery Details, Additional resections, Vascular resections, Additional resections, specify additional resections, Blood loss and Transfusion, transfusion type, Translational Studies, Concomitant Medication, eForm 'Concomitant Medication', Adverse Events, eForm 'Adverse Events', Protocol violations, eForm 'Protocol Violation'

Screening

15 itemgroups 94 items

POD 3

16 itemgroups 80 items

POD 7

16 itemgroups 80 items

POD 60/Discontinuation

17 itemgroups 61 items

POD 30

17 itemgroups 61 items

POD 14 / Discharge

16 itemgroups 80 items
- 17/9/21 - 1 formulario, 9 itemgroups, 127 items, 1 idioma
Itemgroups: CRF Header, Lymphoma: Form Administration, Hodgkin's Lymphoma: Disease Description, Hodgkin's Lymphoma: Baseline Hematology/Chemistry, Lymphoma: Prior Treatment, Lymphoma: Relapsed Disease, Lymphoma: Cardiac Evaluation, Lymphoma: Pulmonary Evaluation, Lymphoma: Endocrine Evaluation
- 1/9/21 - 1 formulario, 2 itemgroups, 5 items, 1 idioma
Itemgroups: Lab Identification Log, Physical Examination
- 24/1/23 - 5 formularios, 1 itemgroup, 3 items, 1 idioma
Itemgroup: pht003558
Principal Investigator: Steven Hirschfeld, MD, PhD, Eunice Kennedy Shriver National Institute of Child Health and Human Development, National Institutes of Health, Bethesda, MD, USA MeSH: https://www.ncbi.nlm.nih.gov/projects/gap/cgi-bin/study.cgi?study_id=phs000662 The National Children's Study (NCS) is a multi-year prospective epidemiological study tasked with identifying a nationally representative sample of 100,000 children and following them from pregnancy through age 21 to study environmental impacts on growth, development, and health. Determination of NCS enrollee ancestry is important for assessing the diversity of study enrollees and for examining the effect of ancestry on various health outcomes. We estimated the genetic ancestry of a convenience sample of 641 parents enrolled at the 7 original NCS Vanguard sites by analyzing 29,972 markers on exome arrays, using the participants of the 1000 Genomes Project (1KG) super populations (e.g. European, East Asian) as reference populations, and compared this to self-reported ethnicity and race. Self-reported ethnicity and race agreed with predicted super population in 98.9% of individuals. NCS individuals identified as Asian by self-report had genetic ancestry of either South Asian or Asian groups, while those reporting as either Hispanic White or Hispanic Other had similar genetic ancestry. Of the 33 individuals who self-reported as Multiracial or Non-Hispanic Other, 11 (33%) matched the South Asian and Asian groups, while these groups were less represented in the other reported categories (27/609, 4.4%). Our data suggest that self-reported ethnicity and race categories have some limitations in accurately capturing this information for Hispanic and South Asian populations. Overall, our data indicate that despite the complexity of the U.S. population, individuals know their ancestral origins and that self-reported ethnicity and race is a reliable indicator of genetic ancestry.

pht003559.v1.p1

1 itemgroup 3 items

pht003560.v1.p1

1 itemgroup 6 items

pht003561.v1.p1

1 itemgroup 5 items

Eligibility

1 itemgroup 1 item

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