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Measurement Instrument Database for the Social Science (MIDSS) - Ghuman-Folstein Screen for Social Interaction – Preschool Version (SSI-PS)

- 17/09/21 - 1 modulo, 2 itemgroups, 41 elementi, 1 linguaggio
Itemgroups: Administrative data, PLEASE CHOOSE THE ANSWER THAT BEST DESCRIBES YOUR CHILD
Ghuman, J. K., Leone, S. L., Lecavalier, L., & Landa, R. J.. (2012). Ghuman-Folstein Screen for Social Interaction – Preschool Version (SSI-PS). Measurement Instrument Database for the Social Science. Retrieved 23.06.2020 from www.midss.ie Scoring: see wwww.midss.org/content/ghuman-folstein-screen-social-interaction-–-preschool-version-ssi-ps (cited 23.06.2020) Key references: Ghuman, J. K., Leone, S. L., Lecavalier, L., & Landa, R. J. (2011). The screen for social interaction (SSI): A screening measure for autism spectrum disorders in preschoolers. Research in Developmental Disabilities, 32, 2519-2529 Primary use / Purpose: The Ghuman-Folstein Screen for Social Interaction (SSI) for Preschoolers (aged 43-61 months) is a 21-item instrument developed to detect problems with social interactions in young children. Specifically, SSI is a unique parent-administered screening instrument that measures social-communication behaviors in very young children with ASD. It has been postulated as a useful screen to differentiate very young children with substantive social interaction delays associated with ASD from those with non-ASD developmental delays. Background: Key characteristics of autism spectrum disorders (ASD) are currently conceptualized as having qualitative impairments in social interaction and communication, and the presence of restricted or repetitive behaviors. There are very early signs of social and communication delays that signal risk for ASD. Numerous screening measures have been advanced to detect risk for ASD, but few have centered on very young children. The Ghuman-Folstien SSI represents a novel and unique measure to bridge this gap. Psychometrics: For psychometric data, consult Ghuman et al. (2011). Digital Object Identifier (DOI): http://dx.doi.org/10.13072/midss.218

Measurement Instrument Database for the Social Science (MIDSS) - Screen for Social Interaction- Toddler Version (SSI-T)

- 17/09/21 - 1 modulo, 2 itemgroups, 46 elementi, 1 linguaggio
Itemgroups: Administrative data, PLEASE CHOOSE THE ANSWER THAT BEST DESCRIBES YOUR CHILD
Ghuman, J. K., Leone, S. L., Lecavalier, L., & Landa, R. J.. (2012). Screen for Social Interaction- Toddler Version (SSI-T). Measurement Instrument Database for the Social Science. Retrieved 23.06.2020 from www.midss.ie Scoring: see www.midss.org/content/screen-social-interaction-toddler-version-ssi-t (cited 23.06.2020) Key references: Ghuman, J. K., Leone, S. L., Lecavalier, L., & Landa, R. J. (2011). The screen for social interaction (SSI): A screening measure for autism spectrum disorders in preschoolers. Research in Developmental Disabilities, 32, 2519-2529 Primary use / Purpose: The Ghuman-Folstein Screen for Social Interaction - Toddler Version (SSI-T), is a 26-item measure of social interaction that aims to screen for autism spectrum disorders (ASDs) in clinical samples of young high-risk children aged 24-42 months. Background: Current diagnosis of autism spectrum disorders (ASD) is governed by qualitative impairments in social interaction and communication, and the presence of restricted or repetitive behaviors. There are very early signs of social and communication delays that point to risk for ASD. Numerous screening instruments have been designed to detect risk for ASD, but few have centered on very young children. This Screen for Social Interaction- Toddler Version (SSI-T) aims to correct this gap, by assessing toddler aged 24-42 months old for ASD. Psychometrics: Psychometric analysis is presented in Ghuman et al. (2011). Digital Object Identifier (DOI): http://dx.doi.org/10.13072/midss.219

Multisystem inflammatory syndrome (MIS) in children and adolescents temporally related to COVID-19 - MODULE 2: OUTCOME CASE REPORT FORM

- 11/08/21 - 1 modulo, 7 itemgroups, 195 elementi, 1 linguaggio
Itemgroups: Participant Identification, Summary of clinical features of current illness, Laboratory results, Imaging and pathogen testing, Treatment, Supportive care, Outcome
Preliminary case definition Children and adolescents 0–19 years of age with measured or self-reported fever ≥ 3 days AND two or more of the following: a) Rash or bilateral non-purulent conjunctivitis or muco-cutaneous inflammation signs (oral, hands or feet) b) Hypotension or shock c) Features of myocardial dysfunction, or pericarditis, or valvulitis, or coronary abnormalities (clinical features, ECHO findings, or laboratory markers such as elevated Troponin/NT-proBNP) d) Evidence of coagulopathy (such as abnormal PT, PTT, elevated d-Dimers) e) Acute gastrointestinal problems (such as diarrhoea, vomiting or abdominal pain) AND Elevated markers of inflammation such as ESR, C-reactive protein or procalcitonin AND No other obvious microbial cause of inflammation, including bacterial sepsis, staphylococcal or streptococcal shock syndromes AND Evidence of current or previous COVID-19 (RT-PCR, antigen test or serology positive) or likely contact with patients with COVID NB Consider this syndrome in children with features of typical or atypical Kawasaki disease or toxic shock syndrome. Based on CRF on https://isaric.org/research/covid-19-clinical-research-resources/multisystem-inflammatory-syndrome-mis-c/ This Case Report Form (CRF) has been developed by ISARIC in cooperation with WHO's working group (https://www.who.int/news-room/commentaries/detail/multisystem-inflammatory-syndrome-in-children-and-adolescents-with-covid-19) to use as a standalone CRF for children and adolescents presenting with syndrome of suspected Multisystem Inflammatory Syndrome (MIS-C). This Module is to be completed at time of discharge or death.

Multisystem inflammatory syndrome (MIS) in children and adolescents temporally related to COVID-19 - MODULE 1: PRESENTATION/ADMISSION CASE REPORT FORM

- 03/08/21 - 1 modulo, 10 itemgroups, 188 elementi, 1 linguaggio
Itemgroups: Participant Identification, Demographics, Onset of current illness and vital signs, Possible signs and symptoms of multisystem inflammatory syndrome, Other signs and symptoms of multisystem inflammatory syndrome, Recent history, Co-morbidities, past history, Pre-admission and chronic medication, Laboratory results, Imaging and pathogen testing
Based on CRF on https://isaric.org/research/covid-19-clinical-research-resources/multisystem-inflammatory-syndrome-mis-c/ This Case Report Form (CRF) has been developed by ISARIC in cooperation with WHO's working group (https://www.who.int/news-room/commentaries/detail/multisystem-inflammatory-syndrome-in-children-and-adolescents-with-covid-19) to use as a standalone CRF for children and adolescents presenting with syndrome of suspected Multisystem Inflammatory Syndrome (MIS-C). Preliminary case definition Children and adolescents 0–19 years of age with measured or self-reported fever ≥ 3 days AND two or more of the following: a) Rash or bilateral non-purulent conjunctivitis or muco-cutaneous inflammation signs (oral, hands or feet) b) Hypotension or shock c) Features of myocardial dysfunction, or pericarditis, or valvulitis, or coronary abnormalities (clinical features, ECHO findings, or laboratory markers such as elevated Troponin/NT-proBNP) d) Evidence of coagulopathy (such as abnormal PT, PTT, elevated d-Dimers) e) Acute gastrointestinal problems (such as diarrhoea, vomiting or abdominal pain) AND Elevated markers of inflammation such as ESR, C-reactive protein or procalcitonin AND No other obvious microbial cause of inflammation, including bacterial sepsis, staphylococcal or streptococcal shock syndromes AND Evidence of current or previous COVID-19 (RT-PCR, antigen test or serology positive) or likely contact with patients with COVID NB Consider this syndrome in children with features of typical or atypical Kawasaki disease or toxic shock syndrome. This Module is to be completed when multisystem inflammatory syndrome is suspected, on admission or in-patients.

Registry Formular AIEOP-BFM ALL 2009 DRKS00003772 NCT01117441 - Registry Formular AIEOP-BFM ALL 2009 NCT01117441

- 15/03/21 - 1 modulo, 6 itemgroups, 31 elementi, 1 linguaggio
Itemgroups: Patient Information, Eligibility Criteria, Steroid therapy and chemotherapy regimen, Concomitant studies and storage of clinical samples, Laboratory Diagnostic, Identification and Signature
International Collaborative Treatment Protocol For Children And Adolescents With Acute Lymphoblastic Leukemia. Phase 3 Study. Registry Formular (Please send this to study centre until Day 8) Clinical Trial Number: NCT01117441.

Maintenance therapy R2 AIEOP-BFM ALL 2009 DRKS00003772 NCT01117441 - Maintenance therapy R2 AIEOP-BFM ALL 2009 NCT01117441

- 15/03/21 - 1 modulo, 3 itemgroups, 21 elementi, 1 linguaggio
Itemgroups: Patient Information, Examinations, Identification and Signature
International Collaborative Treatment Protocol For Children And Adolescents With Acute Lymphoblastic Leukemia. Phase 3 Study. Documentation part. Clinical Trial Number: NCT01117441.

SAE documentation AIEOP-BFM ALL 2009 DRKS00003772 NCT01117441 - SAE documentation AIEOP-BFM ALL 2009 NCT01117441

- 15/03/21 - 1 modulo, 4 itemgroups, 39 elementi, 1 linguaggio
Itemgroups: Patient Information, Therapy, Severe adverse event, Identification and Signature
Study Description Stamm: International Collaborative Treatment Protocol For Children And Adolescents With Acute Lymphoblastic Leukemia. Phase 3 Study. Documentation. Clinical Trial Number: NCT01117441.

Eligibility Polyarticular-course Juvenile Idiopathic Arthritis (JIA) NCT01550003

- 22/01/21 - 1 modulo, 2 itemgroups, 17 elementi, 1 linguaggio
Itemgroups: Inclusion Criteria, Exclusion Criteria
Pediatric Arthritis Study of Certolizumab Pegol; ODM derived from: https://clinicaltrials.gov/show/NCT01550003

Measurement Instrument Database for the Social Science (MIDSS) - Assessment of Disruptive Symptoms: DSM-IV Version - For Teachers (ASD-IV-T)

- 29/09/20 - 1 modulo, 5 itemgroups, 36 elementi, 1 linguaggio
Itemgroups: General Information, Instructions, child, child, child
Waschbusch, D. A., Sparkes, S. J., & Northern Partners in Action for Child and Youth Services. (2003). Assessment of Disruptive Symptoms: DSM-IV Version - For Teachers (ASD-IV-T). Measurement Instrument Database for the Social Science. Retrieved 27.09.2020, from www.midss.ie Key references: Waschbusch, D. A., Sparkes, S. J., & Northern Partners in Action for Child and Youth Services. (2003). Rating Scale Assessment of Attention-Deficit/Hyperactivity Disorder (ADHD) and Oppositional Defiant Disorder (ODD): Is there a Normal Distribution and Does it Matter? Journal of Psychoeducational Assessment, 21(261). DOI: 10.1177/073428290302100303 Primary use / Purpose: The Assessment of disruptive Symptoms-DSM-IV Version - For Teachers (ASD-IV-T) is a Likert scale developed to measure symptoms of Conduct Disorder (CD), Attention Deficit Hyperactivity Disorder (ADHD), and Oppositional Defiant Disorder (ODD). The ASD-IV-T, rather than giving simple yes/no diagnoses, can also measure the severity of the given disorder. Background: The Assessment of disruptive Symptoms-DSM-IV Version - For Teachers (ASD-IV-T) is designed to measure the level (i.e low, average, high) of disorders including Conduct Disorder (CD), Attention Deficit Hyperactivity Disorder (ADHD), and Oppositional Defiant Disorder (ODD). This sets it apart from scales which are only capable of making binary diagnoses. This scales ability to demarcate individuals with unusually low levels of characteristics belonging to these disorders -as opposed to high- is unique and has potential for varied usage. Psychometrics: The psychometric properties of the Assessment of disruptive Symptoms-DSM-IV Version - For Parents (ASD-IV-P) are discussed in Waschbusch, D. A., Sparkes, S. J., & Northern Partners in Action for Child and Youth Services. (2003). Digital Object Identifier (DOI): http://dx.doi.org/10.13072/midss.304

Measurement Instrument Database for the Social Science (MIDSS) - Assessment of Disruptive Symptoms: DSM-IV Parent Version

- 28/09/20 - 1 modulo, 8 itemgroups, 45 elementi, 1 linguaggio
Itemgroups: General Information, Instructions, past six months child, behaviors causing problem at, past six months child, behaviors causing problem at, past six months child, behaviors causing problem at
Waschbusch, D. A., Sparkes, S. J., & Northern Partners in Action for Child and Youth Services. (2003). Assessment of Disruptive Symptoms: DSM-IV Parent Version. Measurement Instrument Database for the Social Science. Retrieved 27.09.2020, from www.midss.ie Key references: Waschbusch, D. A., Sparkes, S. J., & Northern Partners in Action for Child and Youth Services. (2003). Rating Scale Assessment of Attention-Deficit/Hyperactivity Disorder (ADHD) and Oppositional Defiant Disorder (ODD): Is there a Normal Distribution and Does it Matter? Journal of Psychoeducational Assessment, 21(261). DOI: 10.1177/073428290302100303 Primary use / Purpose: The Assessment of disruptive Symptoms-DSM-IV Version - For Parents (ASD-IV-P) is a Likert scale developed to measure symptoms of Conduct Disorder (CD), Attention Deficit Hyperactivity Disorder (ADHD), and Oppositional Defiant Disorder (ODD). The ASD-IV-P, Rather than giving simple yes/no diagnoses, can also measure the severity of the given disorder. Background: The Assessment of disruptive Symptoms-DSM-IV Version - For Parents (ASD-IV-P) is designed to measure the level (i.e low, average, high) of disorders including Conduct Disorder (CD), Attention Deficit Hyperactivity Disorder (ADHD), and Oppositional Defiant Disorder (ODD). This sets it apart from scales which are only capable of making binary diagnoses. This scales ability to demarcate individuals with unusually low levels of characteristics belonging to these disorders -as opposed to high- is unique and has potential for varied usage. Psychometrics: The psychometric properties of the Assessment of disruptive Symptoms-DSM-IV Version - For Parents (ASD-IV-P) are discussed in Waschbusch, D. A., Sparkes, S. J., & Northern Partners in Action for Child and Youth Services. (2003). Digital Object Identifier (DOI): http://dx.doi.org/10.13072/midss.303

Measurement Instrument Database for the Social Science (MIDSS) - Conduct Disorder Rating Scale - Teacher Version

- 22/09/20 - 1 modulo, 3 itemgroups, 20 elementi, 1 linguaggio
Itemgroups: General Information, Instructions, past year child
Waschbusch, D. A., Elgar, F. J. (2007). Conduct Disorder Rating Scale - Teacher Version. Measurement Instrument Database for the Social Science. Retrieved 22.09.2020, from www.midss.ie Key references: Waschbusch, D. A., & Elgar, F. J. (2007). Development and validation of the conduct disorder rating scale. Assessment, 14, 65-74. Fabiana. G. A, Pelham, W. E., Waschbusch, D. A., Gnagy, E. M., Lahey, B. B., et al. (2006). A Practical Measure of Impairment: Psychometric Properties of the Impairment Rating Scale in Samples of Children With Attention Deficit Hyperactivity Disorder and Two School-Based Samples. Journal of Clinical Child and Adolescent Psychology, 35(3), 369–385. Primary use / Purpose: The purpose of the Conduct Disorder Rating Scale- For Teachers (CDRS-T) is to allow for measurement of conduct disorder (CD). The CDRS-T is a Likert-type scale with scores ranging from 1-4 which measures CD in line with current conceptualizations as described in the DSM-IV. The twelve symptom used in the scale are taken directly form the DSM-IV definition of CD. Three symptoms which are present in the Conduct Disorder Rating Scale- for parents (CDRS-P) are omitted from the current scale because they do not occur in schools. Background: It is considered a public health priority to effectively manage the troublesome behaviour of disorderly adolescents and children. Conduct disorder (CD) is estimated to affect up to 5% of children between the ages of four and sixteen and is often linked to drug abuse, violence, and sexual victimization. Therefore it is important to have reliable and consistent measures of CD. However, many existing scales measure CD is ways which are not wholly consistent with the criteria set out in the DSM-IV. To address this shortcoming Waschbusch & Elgar (2007) developed the Conduct Disorder Rating Scale- for teachers (CDRS-T). Psychometrics: The psychometric properties of the Conduct Disorder Rating Scale- for parents (CDRS-T) are discussed in Waschbusch & Elgar, (2007). Digital Object Identifier (DOI): http://dx.doi.org/10.13072/midss.302

Measurement Instrument Database for the Social Science (MIDSS) - Childhood Autism Syndrome Test (CAST)

- 18/08/20 - 1 modulo, 3 itemgroups, 56 elementi, 1 linguaggio
Itemgroups: General Information Section, Childhood Autism Sydrome Test (CAST), Special Needs Section
Scott, F. J., Baron-Cohen, S., Bolton, P. and Brayne, C.. (2002). Childhood Autism Syndrome Test (CAST). Measurement Instrument Database for the Social Science. Retrieved 16.08.2020, from www.midss.ie Key references: Scott, F. J., Baron-Cohen, S., Bolton, P. and Brayne, C. (2002). The CAST (Childhood Asperger Syndrome Test): Preliminary development of UK screen for mainstream primary-school children. Autism 6(1),9-31. Williams, J. Scott, F. Allison, C. Bolton, P. Baron- Cohen, S. and Brayne, C. (2004). The CAST (Childhood Asperger Syndrome Test) : test accuracy Autism, 8, 45-68. Primary use / Purpose: The CAST is used for Autism spectrum disorders screening, among children aged 5 to 11. It includes 37 categorical (yes/no) items on behaviours relevant to autism spectrum disorders. Background: While diagnosis of typical autism will usually occur in early childhood, Aspergers syndrome and other pervasive developmental disorders may be missed until much later. The Childhood Autism Syndrome Test (CAST) allows detection of such cases which may need further assessment. Psychometrics: Reliability and validity of the CAST are discussed in Williams, Scott, Allison, Bolton, Baron- Cohen, and Brayne (2004). Web link to tool and scoring key: https://www.autismresearchcentre.com/arc_tests/ Digital Object Identifier (DOI): http://dx.doi.org/10.13072/midss.181

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