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Relevancia Evaluación Nuevo primero Antiguo primero

dbGaP phs000944 eMERGE Clinical Center at Partners HealthCare - Eligibility

- 27/11/24 - 6 formularios, 2 itemgroups, 11 items, 1 idioma
Itemgroups: IG.elig, IG.elig
Principal Investigator: Scott T. Weiss, MD, MS, Partners HealthCare System, Boston, MA, USA MeSH: Hypercholesterolemia,Asthma,Arthritis, Rheumatoid,Attention Deficit Disorder with Hyperactivity,Bipolar Disorder,Coronary Disease,Depression,Heart Failure,Inflammatory Bowel Diseases,Multiple Sclerosis,Schizophrenia,Stroke https://www.ncbi.nlm.nih.gov/projects/gap/cgi-bin/study.cgi?study_id=phs000944 The Partners HealthCare Biobank is a large research data and sample repository working within the framework of Partners Personalized Medicine. It provides researchers access to high quality, consented samples to help foster research, advance understanding of the causes of common diseases, and advance the practice of medicine. The Partners Biobank provides banked samples (plasma, serum and DNA) collected from consented patients. These samples are available for distribution to Partners HealthCare investigators with appropriate approval from the Partners Institutional Review board (IRB). They are linked to clinical data that originates in the Electronic Medical Record (EMR), as well as additional health information collected in a self-reported survey. The Partners Biobank will be genotyping 25,000 subjects with the Illumina Multiethnic Beadchip 1.6 million SNPs with exome and custom content ( 60,000 LoFs). Of the participants genotyped so far, 4929 of 4962 (99.3%) individuals have genotype data that passed the default quality thresholds for the Infinium array (call rate = 0.99). We are submitting the genotype data to dbGaP for 4929 subjects with 12 phenotypes (based on icd9 codes). We will do annual releases until we reach the full 25,000 genotyped subjects.

pht004847.v1.p1

1 itemgroup 5 items

pht005288.v1.p1

1 itemgroup 6 items

pht004844.v1.p1

1 itemgroup 2 items

pht004845.v1.p1

1 itemgroup 3 items

pht004846.v1.p1

1 itemgroup 18 items

Eligibility Multiple Sclerosis NCT02030197

- 17/1/19 - 1 formulario, 2 itemgroups, 10 items, 1 idioma
Itemgroups: Inclusion Criteria, Exclusion Criteria
Impact of CRISP on Self-Efficacy, Loneliness, and Depression; ODM derived from: https://clinicaltrials.gov/show/NCT02030197

Eligibility Multiple Sclerosis NCT01079975

- 7/7/18 - 1 formulario, 2 itemgroups, 10 items, 1 idioma
Itemgroups: Inclusion Criteria, Exclusion Criteria
To Identify and Evaluate the Predictive Factors for Depression in Patients Diagnosed With Multiple Sclerosis; ODM derived from: https://clinicaltrials.gov/show/NCT01079975

Eligibility Multiple Sclerosis NCT00947232

- 6/7/18 - 1 formulario, 2 itemgroups, 15 items, 1 idioma
Itemgroups: Inclusion Criteria, Exclusion Criteria
inMotion Clinical Study: Using Motivational Interviewing to Increase Physical Activity to Treat Depression in People Aging With MS or SCI; ODM derived from: https://clinicaltrials.gov/show/NCT00947232

Discharge Letter Items Neuroinflammatory Demyelinating Diseases - Discharge Letter Items 1229450930 Multiple Sclerosis

- 27/9/21 - 12 formularios, 12 itemgroups, 103 items, 3 idiomas
Itemgroups: Administrative Data, Principal Diagnosis, Risk Stratification of Therapy with Natalizumab, Secondary Diagnosis, Reason for Admission, Summary and Assessment, Procedures, Neurological Examination: Cranial Nerves, Neurological Examination: Motor, Neurological Examination: Coordination and Gait, Neurological Examination: Sensibility , Psychological findings
Discharge Letter Items for semantic analysis in discharge letters of patients diagnosed with Multiple Sclerosis, Neuromyelitis optica spectrum disease or Acute Disseminated Encephalomyelitis from Neurology Department of University Hospital Muenster provided by Prof. Dr. Luisa Klotz.

Eligibility Posttraumatic Stress Disorders Multiple Sclerosis NCT01743664

- 15/6/21 - 1 formulario, 2 itemgroups, 10 items, 1 idioma
Itemgroups: Inclusion Criteria, Exclusion Criteria
The Efficacy of EMDR in Patients With PTSD in Multiple Sclerosis; ODM derived from: https://clinicaltrials.gov/show/NCT01743664

MOS Modified Social Support Survey CRFs Multiple Sklerosis Tysabri NCT00027300

- 30/1/17 - 1 formulario, 1 itemgroup, 18 items, 1 idioma
Itemgroup: Mos Modified Social Support Survey
The purpose of this study is to determine the safety and efficacy of natalizumab in the treatment of individuals who have been diagnosed with relapsing remitting multiple sclerosis (MS). It is hoped that natalizumab will prevent certain types of white blood cells from moving out of the bloodstream into organs, including the brain, that are being damaged by autoimmune disease (a disease in which the body's own immune system attacks certain organs). These white blood cells are thought to cause inflammation that can result in lesions (small areas of damage) in the brain. These lesions are thought to be the cause of relapses and disability in MS. Documentation process: This form ist to be obtained in week 24, week 52, week 104, week, 120, week, 128 and Premature Study Withdrawl.

Discharge Letter Items 1229450930 Multiple Sclerosis

- 30/5/16 - 1 formulario, 12 itemgroups, 103 items, 1 idioma
Itemgroups: Administrative Data, Principal Diagnosis, Risk Stratification of Therapy with Natalizumab, Secondary Diagnosis, Reason for Admission, Summary and Assessment, Procedures, Neurological Examination: Cranial Nerves, Neurological Examination: Motor, Neurological Examination: Coordination and Gait, Neurological Examination: Sensibility , Psychological findings
Discharge Letter Items for Patient diagnosed with Multiple Sclerosis from Neurology Department of University Clinic Muenster Publication granted by PD Dr. Klotz

Multiple Sclerosis Registry - Consultation (DMSG)

- 27/11/14 - 1 formulario, 25 itemgroups, 151 items, 2 idiomas
Itemgroups: Administrative documentation, Demographics, Clinical course, MSFC, Walk test - equipment, Nine hole peg test, PASAT 3, Distance of walking limitation, Spasticity, Ataxia / Tremor, Fatigue, Pain, Urination Disorders, Abnormal defecation, Sexual Dysfunction, Cognition Disorders, Depression, Disorder of oculomotor system, Dysarthria / Dysphonia, Dysphagia, Epileptic seizures, Other paroxysms, Immune-modulator therapy, Type of nursing provider, Mobility aids
Datensatz des MS-Registers auf Grundlage des gemeinsamen Datensatz von DMSG und KKNMS v 1.1 http://www.dmsg.de/msregister/

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