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NINDS CDE General Health History Friedreich's Ataxia - General Health History

- 20/09/21 - 1 modulo, 7 itemgroups, 205 elementi, 1 linguaggio
Itemgroups: Behavioral History, Family History, History Data Source and Reliability, Medical history, Pediatric Developmental History, Pregnancy History, Prenatal and Perinatal History
NINDS Common Data Elements (General Health History Friedreich's Ataxia) Used from the National Institute of Neurological Disorders and Stroke Common Data Elements (https://www.commondataelements.ninds.nih.gov/) References: Grinnon ST, Miller K, Marler JR, Lu Y, Stout A, Odenkirchen J, Kunitz S. National Institute of Neurological Disorders and Stroke Common Data Element Project - approach and methods. Clin Trials. 2012;9(3):322-9.

NINDS CDE Medical History of Friedreich´s Ataxia - Medical History of Friedreich´s Ataxia

- 03/05/16 - 1 modulo, 1 ItemGroup, 29 elementi, 1 linguaggio
ItemGroup: Special medical history
NINDS Common Data Elements (Medical history of Friedreich´s Ataxia) Used from the National Institute of Neurological Disorders and Stroke Common Data Elements (https://www.commondataelements.ninds.nih.gov/) References: Grinnon ST, Miller K, Marler JR, Lu Y, Stout A, Odenkirchen J, Kunitz S. National Institute of Neurological Disorders and Stroke Common Data Element Project - approach and methods. Clin Trials. 2012;9(3):322-9.

NINDS CDE Laboratory tests Friedreich´s Ataxia - Laboratory tests

- 02/05/16 - 1 modulo, 9 itemgroups, 379 elementi, 1 linguaggio
Itemgroups: Laboratory Tests Information, Complete Blood Count Laboratory Tests, Electrolyte Laboratory Tests, Lipid Laboratory Tests, Chemistry Laboratory Tests, Liver Function Laboratory Tests, Urinalysis Tests, Oxidative Stress Measures, Pregnancy Tests
NINDS Common Data Elements (Laboratory tests;Friedreich´s Ataxia) Used from the National Institute of Neurological Disorders and Stroke Common Data Elements (https://www.commondataelements.ninds.nih.gov/) References: Grinnon ST, Miller K, Marler JR, Lu Y, Stout A, Odenkirchen J, Kunitz S. National Institute of Neurological Disorders and Stroke Common Data Element Project - approach and methods. Clin Trials. 2012;9(3):322-9.

NINDS CDE Vital Signs Friedreich´s Ataxia - Vital Signs

- 29/04/16 - 1 modulo, 1 ItemGroup, 16 elementi, 1 linguaggio
ItemGroup: Vital Signs
NINDS Common Data Elements (Vital Signs Friedreich´s Ataxia) Used from the National Institute of Neurological Disorders and Stroke Common Data Elements (https://www.commondataelements.ninds.nih.gov/) References: Grinnon ST, Miller K, Marler JR, Lu Y, Stout A, Odenkirchen J, Kunitz S. National Institute of Neurological Disorders and Stroke Common Data Element Project - approach and methods. Clin Trials. 2012;9(3):322-9.

NINDS CDE Physical Examination Friedreich´s Ataxia - Physical Examination

- 29/04/16 - 1 modulo, 1 ItemGroup, 34 elementi, 1 linguaggio
ItemGroup: Physical Exam
NINDS Common Data Elements [Physical Examination] [Friedreich´s Ataxia] Used from the National Institute of Neurological Disorders and Stroke Common Data Elements (https://www.commondataelements.ninds.nih.gov/) References: Grinnon ST, Miller K, Marler JR, Lu Y, Stout A, Odenkirchen J, Kunitz S. National Institute of Neurological Disorders and Stroke Common Data Element Project - approach and methods. Clin Trials. 2012;9(3):322-9.

NINDS CDE Participant/Subject Characteristics Friedreich's Ataxia - Demographics and Social Status

- 28/04/16 - 1 modulo, 2 itemgroups, 25 elementi, 1 linguaggio
Itemgroups: Demographics, Social Status
NINDS Common Data Elements (Participant/Subject Characteristics Friedreich's Ataxia) Used from the National Institute of Neurological Disorders and Stroke Common Data Elements (https://www.commondataelements.ninds.nih.gov/) References: Grinnon ST, Miller K, Marler JR, Lu Y, Stout A, Odenkirchen J, Kunitz S. National Institute of Neurological Disorders and Stroke Common Data Element Project - approach and methods. Clin Trials. 2012;9(3):322-9.

NINDS CDE Cardiac End Points Friedreich´s Ataxia - Cardiac End Points

- 04/05/16 - 1 modulo, 1 ItemGroup, 8 elementi, 1 linguaggio
ItemGroup: Cardiac End Points
NINDS Common Data Elements (Cardiac End Points; Friedreich´s Ataxia) Used from the National Institute of Neurological Disorders and Stroke Common Data Elements (https://www.commondataelements.ninds.nih.gov/) References: Grinnon ST, Miller K, Marler JR, Lu Y, Stout A, Odenkirchen J, Kunitz S. National Institute of Neurological Disorders and Stroke Common Data Element Project - approach and methods. Clin Trials. 2012;9(3):322-9.

NINDS CDE Activities of Daily Living/Performance Friedreich´s Ataxia - Activities of Daily Living/Performance

- 04/05/16 - 1 modulo, 1 ItemGroup, 42 elementi, 1 linguaggio
ItemGroup: Activities of Daily Living and Gait
NINDS Common Data Elements (Activities of Daily Living/Performance; Friedreich´s Ataxia) Used from the National Institute of Neurological Disorders and Stroke Common Data Elements (https://www.commondataelements.ninds.nih.gov/) References: Grinnon ST, Miller K, Marler JR, Lu Y, Stout A, Odenkirchen J, Kunitz S. National Institute of Neurological Disorders and Stroke Common Data Element Project - approach and methods. Clin Trials. 2012;9(3):322-9.

NINDS CDE Imaging and Non-Imaging Diagnostics Friedreich´s Ataxia - Imaging and Non-Imaging Diagnostics

- 03/05/16 - 1 modulo, 4 itemgroups, 78 elementi, 1 linguaggio
Itemgroups: Echocardiogram, Cardiac Magnetic Resonance Imaging, Electrocardiography, Holter exam
NINDS Common Data Elements (Imaging and Non-Imaging Diagnostics; Friedreich´s Ataxia) Used from the National Institute of Neurological Disorders and Stroke Common Data Elements (https://www.commondataelements.ninds.nih.gov/) References: Grinnon ST, Miller K, Marler JR, Lu Y, Stout A, Odenkirchen J, Kunitz S. National Institute of Neurological Disorders and Stroke Common Data Element Project - approach and methods. Clin Trials. 2012;9(3):322-9.

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