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NINDS CDE Imaging Diagnostics Epilepsy - Imaging Diagnostics

- 2016-04-22 - 1 Formulär, 5 Item-grupper, 148 Dataelement, 1 Språk
Item-grupper: Functional Magnetic Resonance Imaging, Ictal SPECT Localization, Magnetic Resonance Imaging, MEG Acquisition, PET Localization
NINDS Common Data Elements Used from the National Institute of Neurological Disorders and Stroke Common Data Elements (https://www.commondataelements.ninds.nih.gov/) References: Grinnon ST, Miller K, Marler JR, Lu Y, Stout A, Odenkirchen J, Kunitz S. National Institute of Neurological Disorders and Stroke Common Data Element Project - approach and methods. Clin Trials. 2012;9(3):322-9.

NINDS CDE Surgeries and Other Procedures Epilepsy - Surgeries and Other Procedures

- 2021-09-20 - 1 Formulär, 3 Item-grupper, 168 Dataelement, 1 Språk
Item-grupper: Surgery and Pathology, Additional surgical details, Postoperative complications
NINDS Common Data Elements Used from the National Institute of Neurological Disorders and Stroke Common Data Elements (https://www.commondataelements.ninds.nih.gov/) References: Grinnon ST, Miller K, Marler JR, Lu Y, Stout A, Odenkirchen J, Kunitz S. National Institute of Neurological Disorders and Stroke Common Data Element Project - approach and methods. Clin Trials. 2012;9(3):322-9.

NINDS CDE Devices Epilepsy - Devices

- 2021-09-20 - 1 Formulär, 3 Item-grupper, 61 Dataelement, 1 Språk
Item-grupper: Device Revision/Replacement Log, Devices Log, Implanted Devices Log
NINDS Common Data Elements Used from the National Institute of Neurological Disorders and Stroke Common Data Elements (https://www.commondataelements.ninds.nih.gov/) References: Grinnon ST, Miller K, Marler JR, Lu Y, Stout A, Odenkirchen J, Kunitz S. National Institute of Neurological Disorders and Stroke Common Data Element Project - approach and methods. Clin Trials. 2012;9(3):322-9.

NINDS CDE Classification of Etiology,Seizures and syndromes by age of onset Epilepsy - Classification of Etiology,Seizures and syndromes by age of onset

- 2021-09-20 - 1 Formulär, 4 Item-grupper, 121 Dataelement, 1 Språk
Item-grupper: Classification of Etiology, Specific Etiology, Classification of Seizures, Syndromes by Age of Onset
NINDS Common Data Elements Used from the National Institute of Neurological Disorders and Stroke Common Data Elements (https://www.commondataelements.ninds.nih.gov/) References: Grinnon ST, Miller K, Marler JR, Lu Y, Stout A, Odenkirchen J, Kunitz S. National Institute of Neurological Disorders and Stroke Common Data Element Project - approach and methods. Clin Trials. 2012;9(3):322-9.

NINDS CDE Seizure diary Epilepsy - Seizure Diary

- 2016-04-27 - 1 Formulär, 1 Item-grupp, 10 Dataelement, 1 Språk
Item-grupp: Seizure Diary
NINDS Common Data Elements Used from the National Institute of Neurological Disorders and Stroke Common Data Elements (https://www.commondataelements.ninds.nih.gov/) References: Grinnon ST, Miller K, Marler JR, Lu Y, Stout A, Odenkirchen J, Kunitz S. National Institute of Neurological Disorders and Stroke Common Data Element Project - approach and methods. Clin Trials. 2012;9(3):322-9.

NINDS CDE Neuropsychological Testing Background Information Epilepsy - Neuropsychological Testing Background Information

- 2016-04-27 - 1 Formulär, 1 Item-grupp, 14 Dataelement, 1 Språk
Item-grupp: Neuropsychological Testing Background Information
NINDS Common Data Elements Used from the National Institute of Neurological Disorders and Stroke Common Data Elements (https://www.commondataelements.ninds.nih.gov/) References: Grinnon ST, Miller K, Marler JR, Lu Y, Stout A, Odenkirchen J, Kunitz S. National Institute of Neurological Disorders and Stroke Common Data Element Project - approach and methods. Clin Trials. 2012;9(3):322-9.

NINDS CDE Post-Traumatic Epilepsy Screening Epilepsy - Post-Traumatic Epilepsy Screening

- 2016-04-27 - 1 Formulär, 1 Item-grupp, 14 Dataelement, 1 Språk
Item-grupp: Post-Traumatic Epilepsy Screening
NINDS Common Data Elements Used from the National Institute of Neurological Disorders and Stroke Common Data Elements (https://www.commondataelements.ninds.nih.gov/) References: Grinnon ST, Miller K, Marler JR, Lu Y, Stout A, Odenkirchen J, Kunitz S. National Institute of Neurological Disorders and Stroke Common Data Element Project - approach and methods. Clin Trials. 2012;9(3):322-9.

NINDS CDE Adverse Event Tracking Log Epilepsy - Adverse Event Tracking Log

- 2016-04-27 - 1 Formulär, 1 Item-grupp, 10 Dataelement, 1 Språk
Item-grupp: Adverse Events
NINDS Common Data Elements Used from the National Institute of Neurological Disorders and Stroke Common Data Elements (https://www.commondataelements.ninds.nih.gov/) References: Grinnon ST, Miller K, Marler JR, Lu Y, Stout A, Odenkirchen J, Kunitz S. National Institute of Neurological Disorders and Stroke Common Data Element Project - approach and methods. Clin Trials. 2012;9(3):322-9.

NINDS CDE Drugs Epilepsy - Drugs

- 2016-04-25 - 1 Formulär, 4 Item-grupper, 58 Dataelement, 1 Språk
Item-grupper: Anti Epileptic Drug (AED) Plasma Concentration Log, Anti Epileptic Drug (AED) Resistance Log, Anti Epileptic Drug (AED) Log, Non Anti Epileptic Medication Log
NINDS Common Data Elements Used from the National Institute of Neurological Disorders and Stroke Common Data Elements (https://www.commondataelements.ninds.nih.gov/) References: Grinnon ST, Miller K, Marler JR, Lu Y, Stout A, Odenkirchen J, Kunitz S. National Institute of Neurological Disorders and Stroke Common Data Element Project - approach and methods. Clin Trials. 2012;9(3):322-9.

NINDS CDE Non Imaging Diagnostics Epilepsy - Non Imaging Diagnostics

- 2016-04-25 - 1 Formulär, 7 Item-grupper, 169 Dataelement, 1 Språk
Item-grupper: Scalp Electroencephalogram (EEG), Inter Ictal Abnormalities, Focal and generalized slowing, Ictal EEG Evaluation, Video EEG Ictal Evaluation, Benign EEG Variants, Scalp EEG Short Form
NINDS Common Data Elements Used from the National Institute of Neurological Disorders and Stroke Common Data Elements (https://www.commondataelements.ninds.nih.gov/) References: Grinnon ST, Miller K, Marler JR, Lu Y, Stout A, Odenkirchen J, Kunitz S. National Institute of Neurological Disorders and Stroke Common Data Element Project - approach and methods. Clin Trials. 2012;9(3):322-9.

NINDS CDE Assessments and Examinations Epilepsy - Assessments and Examinations

- 2016-04-21 - 1 Formulär, 10 Item-grupper, 206 Dataelement, 1 Språk
Item-grupper: Neurological examination, Mental Status, Cranial Nerves, Motor Assessments, Cerebellar/Coordination, Reflexes, Gait, Sensory/Sensation, Physical Exam, Vital Signs
NINDS Common Data Elements Used from the National Institute of Neurological Disorders and Stroke Common Data Elements (https://www.commondataelements.ninds.nih.gov/) References: Grinnon ST, Miller K, Marler JR, Lu Y, Stout A, Odenkirchen J, Kunitz S. National Institute of Neurological Disorders and Stroke Common Data Element Project - approach and methods. Clin Trials. 2012;9(3):322-9.

Epilepsy Screener Protocol PhenX Toolkit

- 2016-04-26 - 1 Formulär, 1 Item-grupp, 9 Dataelement, 1 Språk
Item-grupp: PhenX - epilepsy screener protocol
The following protocol is a nine-item interviewer-administered questionnaire to screen for the presence of epilepsy. ODM derived from: https://cde.nlm.nih.gov Primary source: https://www.phenxtoolkit.org/ Recent publication: Hendershot, T., Pan, H., Haines, J., Harlan, W.R., Marazita, M.L., McCarty, C.A., Ramos, E.M., and Hamilton, C.M. (2015) Using the PhenX toolkit to add standard measures to a study. Curr. Protoc. Hum. Genet. 86:1.21.1-1.21.17. doi: 10.1002/0471142905.hg0121s86 Permission to publish granted by Carol M. Hamilton.

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