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NINDS CDE Drugs Epilepsy - Drugs

- 25/4/16 - 1 formulario, 4 itemgroups, 58 items, 1 idioma
Itemgroups: Anti Epileptic Drug (AED) Plasma Concentration Log, Anti Epileptic Drug (AED) Resistance Log, Anti Epileptic Drug (AED) Log, Non Anti Epileptic Medication Log
NINDS Common Data Elements Used from the National Institute of Neurological Disorders and Stroke Common Data Elements (https://www.commondataelements.ninds.nih.gov/) References: Grinnon ST, Miller K, Marler JR, Lu Y, Stout A, Odenkirchen J, Kunitz S. National Institute of Neurological Disorders and Stroke Common Data Element Project - approach and methods. Clin Trials. 2012;9(3):322-9.

NINDS CDE Non Imaging Diagnostics Epilepsy - Non Imaging Diagnostics

- 25/4/16 - 1 formulario, 7 itemgroups, 169 items, 1 idioma
Itemgroups: Scalp Electroencephalogram (EEG), Inter Ictal Abnormalities, Focal and generalized slowing, Ictal EEG Evaluation, Video EEG Ictal Evaluation, Benign EEG Variants, Scalp EEG Short Form
NINDS Common Data Elements Used from the National Institute of Neurological Disorders and Stroke Common Data Elements (https://www.commondataelements.ninds.nih.gov/) References: Grinnon ST, Miller K, Marler JR, Lu Y, Stout A, Odenkirchen J, Kunitz S. National Institute of Neurological Disorders and Stroke Common Data Element Project - approach and methods. Clin Trials. 2012;9(3):322-9.

Early Childhood Speech and Language Assessment - Speech and Language Assessment Scale PhenX Toolkit

- 25/4/16 - 1 formulario, 1 itemgroup, 19 items, 1 idioma
Itemgroup: PhenX - early childhood speech and language assessment protocol - speech and language assessment scale
The Speech and Language Assessment Scale (SLAS) is a 19-item, parent-report questionnaire designed to identify children with delayed speech and language skills. The SLAS uses seven-point Likert-style questions to assess six subscales: assertiveness, responsiveness, semantics, syntax, articulation, and talkativeness. The protocol includes instructions to generate composite scale scores. ODM derived from: https://cde.nlm.nih.gov Primary source: https://www.phenxtoolkit.org/ Recent publication: Hendershot, T., Pan, H., Haines, J., Harlan, W.R., Marazita, M.L., McCarty, C.A., Ramos, E.M., and Hamilton, C.M. (2015) Using the PhenX toolkit to add standard measures to a study. Curr. Protoc. Hum. Genet. 86:1.21.1-1.21.17. doi: 10.1002/0471142905.hg0121s86 Permission to publish granted by Carol M. Hamilton.

Attention-Deficit/Hyperactivity Disorder Symptoms - Child PhenX Toolkit

- 22/4/16 - 1 formulario, 1 itemgroup, 18 items, 1 idioma
Itemgroup: PhenX - attention-deficit - hyperactivity disorder symptoms protocol - child
The Strengths and Weaknesses of Attention-Deficit/Hyperactivity Disorder Symptoms and Normal Behavior Scale (SWAN) is an 18-question parent or teacher rating scale to assess for the indication of attention-deficit hyperactivity disorder in children. "Weaknesses" are scored as positive and the "strengths" are scored as negative because the usual ratings (i.e., in the Swanson, Nolan and Pelham (SNAP)) are ratings of "symptom severity". This keeps the average rating-per-item of the SWAN aligned with the average rating-per-item of the SNAP if the negative item ratings of the SWAN are set to 0 before averaging the items. ODM derived from: https://cde.nlm.nih.gov Primary source: https://www.phenxtoolkit.org/ Recent publication: Hendershot, T., Pan, H., Haines, J., Harlan, W.R., Marazita, M.L., McCarty, C.A., Ramos, E.M., and Hamilton, C.M. (2015) Using the PhenX toolkit to add standard measures to a study. Curr. Protoc. Hum. Genet. 86:1.21.1-1.21.17. doi: 10.1002/0471142905.hg0121s86 Permission to publish granted by Carol M. Hamilton.

NINDS CDE Imaging Diagnostics Epilepsy - Imaging Diagnostics

- 22/4/16 - 1 formulario, 5 itemgroups, 148 items, 1 idioma
Itemgroups: Functional Magnetic Resonance Imaging, Ictal SPECT Localization, Magnetic Resonance Imaging, MEG Acquisition, PET Localization
NINDS Common Data Elements Used from the National Institute of Neurological Disorders and Stroke Common Data Elements (https://www.commondataelements.ninds.nih.gov/) References: Grinnon ST, Miller K, Marler JR, Lu Y, Stout A, Odenkirchen J, Kunitz S. National Institute of Neurological Disorders and Stroke Common Data Element Project - approach and methods. Clin Trials. 2012;9(3):322-9.

NINDS CDE Assessments and Examinations Epilepsy - Assessments and Examinations

- 21/4/16 - 1 formulario, 10 itemgroups, 206 items, 1 idioma
Itemgroups: Neurological examination, Mental Status, Cranial Nerves, Motor Assessments, Cerebellar/Coordination, Reflexes, Gait, Sensory/Sensation, Physical Exam, Vital Signs
NINDS Common Data Elements Used from the National Institute of Neurological Disorders and Stroke Common Data Elements (https://www.commondataelements.ninds.nih.gov/) References: Grinnon ST, Miller K, Marler JR, Lu Y, Stout A, Odenkirchen J, Kunitz S. National Institute of Neurological Disorders and Stroke Common Data Element Project - approach and methods. Clin Trials. 2012;9(3):322-9.

NINDS CDE Myocardial Oxygen Consumption, Gas Exchange ,Nocturnal Oximetry and pulmonary function Amyotrophic Lateral Sclerosis] - Myocardial Oxygen Consumption, Gas Exchange ,Nocturnal Oximetry and pulmonary function

- 18/4/16 - 1 formulario, 4 itemgroups, 63 items, 1 idioma
Itemgroups: Myocardial Oxygen Consumption, Gas Exchange, Nocturnal Oximetry, Pulmonary function
NINDS Common Data Elements (Myocardial Oxygen Consumption, Gas Exchange ,Nocturnal Oximetry and pulmonary function Amyotrophic Lateral Sclerosis) Used from the National Institute of Neurological Disorders and Stroke Common Data Elements (https://www.commondataelements.ninds.nih.gov/) References: Grinnon ST, Miller K, Marler JR, Lu Y, Stout A, Odenkirchen J, Kunitz S. National Institute of Neurological Disorders and Stroke Common Data Element Project - approach and methods. Clin Trials. 2012;9(3):322-9.

NINDS CDE Grip Strength Amyotrophic Lateral Sclerosis - Grip Strength

- 18/4/16 - 1 formulario, 3 itemgroups, 100 items, 1 idioma
Itemgroups: Grip Strength, Grip Strength Fatigue, Hand Held Dynamometry
NINDS Common Data Elements (Grip Strength Amyotrophic Lateral Sclerosis) Used from the National Institute of Neurological Disorders and Stroke Common Data Elements (https://www.commondataelements.ninds.nih.gov/) References: Grinnon ST, Miller K, Marler JR, Lu Y, Stout A, Odenkirchen J, Kunitz S. National Institute of Neurological Disorders and Stroke Common Data Element Project - approach and methods. Clin Trials. 2012;9(3):322-9.

NINDS CDE Clinical Milestones and Events Amyotrophic Lateral Sclerosis - Clinical Milestones and Events

- 15/4/16 - 1 formulario, 3 itemgroups, 21 items, 1 idioma
Itemgroups: Clinical Milestones and Events Data Collection Table, Clinical Events and Falls Data Collection Grid, Clinical Events Cramps Data Collection Grid
NINDS Common Data Elements (Clinical milestones and events Amyotrophic Lateral Sclerosis) Used from the National Institute of Neurological Disorders and Stroke Common Data Elements (https://www.commondataelements.ninds.nih.gov/) References: Grinnon ST, Miller K, Marler JR, Lu Y, Stout A, Odenkirchen J, Kunitz S. National Institute of Neurological Disorders and Stroke Common Data Element Project - approach and methods. Clin Trials. 2012;9(3):322-9.

NINDS CDE Electrophysiology Amyotrophic Lateral Sclerosis - Electrophysiology

- 15/4/16 - 1 formulario, 9 itemgroups, 152 items, 1 idioma
Itemgroups: Core Table EMG/NCS, Cranial Supplemental Table for EMG, Cervical Supplemental Table for EMG, Thoracic Supplemental Table for EMG, Lumbosacral Supplemental Table for EMG, Core Table for MUNE, Supplemental Table for MUNE, Core Table for Transcranial Magnetic Stimulation, Core Table for Electrical Impedance Myography
NINDS Common Data Elements (Electrophysiology Amyotrophic Lateral Sclerosis) Used from the National Institute of Neurological Disorders and Stroke Common Data Elements (https://www.commondataelements.ninds.nih.gov/) References: Grinnon ST, Miller K, Marler JR, Lu Y, Stout A, Odenkirchen J, Kunitz S. National Institute of Neurological Disorders and Stroke Common Data Element Project - approach and methods. Clin Trials. 2012;9(3):322-9.

NINDS CDE Prior and Concomitant Medications Amyotrophic Lateral Sclerosis - Prior and Concomitant Medications

- 15/4/16 - 1 formulario, 1 itemgroup, 14 items, 1 idioma
Itemgroup: Prior and Concomitant Medications
NINDS Common Data Elements [Magnetic Resonance Imaging][Amyotrophic Lateral Sclerosis] Used from the National Institute of Neurological Disorders and Stroke Common Data Elements (https://www.commondataelements.ninds.nih.gov/) References: Grinnon ST, Miller K, Marler JR, Lu Y, Stout A, Odenkirchen J, Kunitz S. National Institute of Neurological Disorders and Stroke Common Data Element Project - approach and methods. Clin Trials. 2012;9(3):322-9.

NINDS CDE Magnetic Resonance Imaging Amyotrophic Lateral Sclerosis - Magnetic Resonance Imaging

- 14/4/16 - 1 formulario, 5 itemgroups, 319 items, 1 idioma
Itemgroups: Brain Perfusion Magnetic Resonance Imaging, Diffusion Tensor Imaging, Functional Magnetic Resonance Imaging, Magnetic Resonance Imaging, Magnetic Resonance Spectroscopy
NINDS Common Data Elements (Magnetic Resonance Imaging Amyotrophic Lateral Sclerosis) Used from the National Institute of Neurological Disorders and Stroke Common Data Elements (https://www.commondataelements.ninds.nih.gov/) References: Grinnon ST, Miller K, Marler JR, Lu Y, Stout A, Odenkirchen J, Kunitz S. National Institute of Neurological Disorders and Stroke Common Data Element Project - approach and methods. Clin Trials. 2012;9(3):322-9.

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