Keywords
Stroke ×
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Table of contents
  1. 1. Clinical Trial
  2. 2. Routine Documentation
  3. 3. Registry/Cohort Study
  4. 4. Quality Assurance
  5. 5. Data Standard
  6. 6. Patient-Reported Outcome
  7. 7. Medical Specialty
    1. 7.1. Anesthesiology
    1. 7.2. Dermatology
    1. 7.3. ENT
    1. 7.4. Geriatrics
    1. 7.5. Gynecology/Obstetrics
    1. 7.6. Internal Medicine
      1. Hematology
      1. Infectious Diseases
      1. Cardiology/Angiology
      1. Pneumology
      1. Gastroenterology
      1. Nephrology
      1. Endocrinology/Metabolic Diseases
      1. Rheumatology
    1. 7.7. Neurology
    1. 7.8. Ophthalmology
    1. 7.9. Palliative Care
    1. 7.10. Pathology/Forensics
    1. 7.11. Pediatrics
    1. 7.12. Psychiatry/Psychosomatics
    1. 7.13. Radiology
    1. 7.14. Surgery
      1. General/Visceral Surgery
      1. Neurosurgery
      1. Plastic Surgery
      1. Thoracic Surgery
      1. Trauma/Orthopedics
      1. Vascular Surgery
    1. 7.15. Urology
    1. 7.16. Dental Medicine/OMS
Selected data models

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- 9/17/21 - 1 form, 16 itemgroups, 319 items, 1 language
Itemgroups: Demographic Information, Medical history since discharge from hospital, Living Situation, Disability (Barthel Index), Neurological impairment at the time of interview, Rehabilitation, Smoking, Diet/Body weight, Physical activity, Blood pressure,Cholesterol and Diabetes, Risk factor awareness and targets, Lifestyle changes, Rehabilitation program, Medication, Physical measurements, Blood sample
- 9/4/20 - 1 form, 1 itemgroup, 27 items, 1 language
Itemgroup: The Functional Behavior Profile
Baum, C., Edwards, D.F., Morrow-Howell, N. (1993). The Functional Behavior Profile (FBP). Measurement Instrument Database for the Social Science. Retrieved 04.09.2020, from www.midss.ie Key references: Baum, C Edwards, D.F. Morrow-Howell, N. (1993). Identification and measurement of productive behaviours in senile dementia of the Alzheimer type. The Gerontologist, 33, 403-408. Baum, M. C. and Edwards, D. F. (2000). Documenting productive behaviors. Using the functional behavior profile to plan discharge following stroke. J Gerontol Nurs, 26, 34-40; quiz 41-33. Burgener, S., Twigg, P., et al. (2005). "Measuring psychological well-being in cognitively impaired persons." Dementia 4(4): 463. Goverover, Y., Kalmar, J., et al. (2005). "The relation between subjective and objective measures of everyday life activities in persons with multiple sclerosis." Arch Phys Med Rehabil 86(12): 2303-2308. Primary use / Purpose: The Functional Behavior Profile (FBP) is a clinical assessment measure used to inform placement and discharge planning decisions following stroke. The FBP provides caregivers with a method of describing the impaired person’s capabilities in performing tasks, social interactions, and problem-solving. It was developed to guide treatment planning, documenting change, and identifying helpful community resources. Background: The Functional Behavior Profile (FBP) comprises 27 items concerning performance of daily activities by the cognitively impaired individual. The items are sectioned into three areas: Task Performance, Problem Solving, and Social Interaction. Each item is rated from 0 (never) to 4 (always) according to the subject’s behavior over the past 7 days. The checklist may be completed by the therapist by interviewing the primary caregiver or by the caregiver independently. Administration of the test takes, on average, 15 minutes. The FBP yields three scores for the factors of Task Performance, Problem Solving, and Social Interaction. An institutional version of the profile is also available for residents of facilities. Psychometrics: Internal consistency and criterion validity scores are provided in Baum et al. (2000) and Baum et al. (1993), respectively. Digital Object Identifier (DOI): http://dx.doi.org/10.13072/midss.258 The FBP is designed to obtain from the primary caregiver the overall capacity for their loved one to engage in tasks, social interactions and problem solving. All of the questions relate to how their loved one performs in their daily activities. As a reference, the caregiver should respond based upon the person's behavior during the past week. (It can be administered in interview or self scored format). Scoring: Total those marked according to the following key. You can use the task performance, social interaction, and problem solving scales separately or use a total score. Key: T: score items 1, 2, 3, 4, 5, 6, 7, 8, 9, 10, 11 P: score items 9, 10, 21, 22, 23, 24, 25, 26, 27 S: score items 11, 12, 13, 14, 15, 16, 17, 18, 19, 20, 21
- 4/30/20 - 1 form, 2 itemgroups, 4 items, 1 language
Itemgroups: Administrative data, Survival and disease control
ICHOM Stroke data collection Version 2.0.1 Revised: June 21th, 2018 International Consortium for Health Outcomes Measurement (ICHOM), Source: http://www.ichom.org/ Notice: This work was conducted using resources from ICHOM, the International Consortium for Health Outcomes Measurement (www.ICHOM.org). The content is solely the responsibility of the authors and does not necessarily represent the official views of ICHOM. For stroke, the following conditions and treatment approaches (or interventions) are covered by our Standard Set. Conditions: Patients who have been hospitalized for an index ischemic stroke (IS) or intracereberal hemorrhage (ICH). Patients with subarachnoid hemorrhage (SAH) are excluded. Inclusion of transient ischemic attack (TIA) or patients with IS or ICH who are evaluated but not hospitalized is not required. Treatment Approaches: IV Thrombolysis | Thrombectomy | Hemicraniectomy This form contains Follow-up, Annually post index event - Administrative data form. This items tracks annually for 5 years (when hospital is able to track this ongoing). If a second stroke occurs between discharge and the “90 day post index” collection, you should reset the measurement scale, treating them as a new patient. Questionnaires used in this standard set: PROMIS-10. It is free for all health care organizations, and a license is not needed. There are translations available for Spanish, French, German,and Dutch. As http://www.nihpromis.org is the official distribution site for PROMIS questionnaires and translations, only the total score will be included in this version of the standard set. Simplified Modified Rankin Scale Questionnaire (smRSq) – Clinician. There is no patent on thes smRSq or fee for using it in clinical practice; however Lippincott Williams & Wilkins (LWW) own the rights to the published article where the smRSq is introduced. Therefore here only the total score is included. The smRSq flow chart can be found at http://stroke.ahajournals.org/content/42/8/2276 “Simplified Modified Rankin Scale Questionnaire Reproducibility Over the Telephone and Validation With Quality of Life” Stroke 2011; 42: 2276-2279 © 2011 American Heart Association, Inc. Wolters Kluwer Health. Publication: Salinas J, Sprinkhuizen SM, Ackerson T, et al. An International Standard Set of Patient-Centered Outcome Measures After Stroke. Stroke. 2015;47(1):180–186. doi:10.1161/STROKEAHA.115.010898 The Stroke Standard Set is supported by the American Heart Association and the American Stroke Association. For this version of the standard set, semantic annotation with UMLS CUIs has been added.
- 4/30/20 - 1 form, 2 itemgroups, 3 items, 1 language
Itemgroups: Administrative Data, Clinician reported health status
ICHOM Stroke data collection Version 2.0.1 Revised: June 21th, 2018 International Consortium for Health Outcomes Measurement (ICHOM), Source: http://www.ichom.org/ Notice: This work was conducted using resources from ICHOM, the International Consortium for Health Outcomes Measurement (www.ICHOM.org). The content is solely the responsibility of the authors and does not necessarily represent the official views of ICHOM. For stroke, the following conditions and treatment approaches (or interventions) are covered by our Standard Set. Conditions: Patients who have been hospitalized for an index ischemic stroke (IS) or intracereberal hemorrhage (ICH). Patients with subarachnoid hemorrhage (SAH) are excluded. Inclusion of transient ischemic attack (TIA) or patients with IS or ICH who are evaluated but not hospitalized is not required. Treatment Approaches: IV Thrombolysis | Thrombectomy | Hemicraniectomy This form contains Follow-up - Clinical form. The items cover Discharge +7 and 90 days post index. If a second stroke occurs between discharge and the “90 day post index” collection, you should reset the measurement scale, treating them as a new patient. Questionnaires used in this standard set: PROMIS-10. It is free for all health care organizations, and a license is not needed. There are translations available for Spanish, French, German,and Dutch. As http://www.nihpromis.org is the official distribution site for PROMIS questionnaires and translations, only the total score will be included in this version of the standard set. Simplified Modified Rankin Scale Questionnaire (smRSq) – Clinician. There is no patent on thes smRSq or fee for using it in clinical practice; however Lippincott Williams & Wilkins (LWW) own the rights to the published article where the smRSq is introduced. Therefore here only the total score is included. The smRSq flow chart can be found at http://stroke.ahajournals.org/content/42/8/2276 “Simplified Modified Rankin Scale Questionnaire Reproducibility Over the Telephone and Validation With Quality of Life” Stroke 2011; 42: 2276-2279 © 2011 American Heart Association, Inc. Wolters Kluwer Health. Publication: Salinas J, Sprinkhuizen SM, Ackerson T, et al. An International Standard Set of Patient-Centered Outcome Measures After Stroke. Stroke. 2015;47(1):180–186. doi:10.1161/STROKEAHA.115.010898 For the Stroke Standard Set ICHOM was supported by the American Heart Association and the American Stroke Association. For this version of the standard set, semantic annotation with UMLS CUIs has been added.

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