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Quality of Life as Affected by Respiratory Disease Protocol PhenX Toolkit

- 29/04/2016 - 1 Formulaire, 1 Groupe Item, 47 Eléments de données, 1 Langue

Groupe Item: PhenX - respiratory - quality of life protocol

Self-administered questionnaire contains 50 items and 76 weighted responses divided into three components: Symptoms (frequency and severity); Activity (activities that cause or are limited by breathlessness); and Impacts (social unctioning, psychological disturbances resulting from airways disease). The protocol is designed to measure health impairment in patients with asthma and chronic obstructive pulmonary disease (COPD). It is also valid for use in bronchiectasis and has been used successfully in patients with kyphoscoliosis and sarcoidosis. ODM derived from: https://cde.nlm.nih.gov Primary source: https://www.phenxtoolkit.org/ Recent publication: Hendershot, T., Pan, H., Haines, J., Harlan, W.R., Marazita, M.L., McCarty, C.A., Ramos, E.M., and Hamilton, C.M. (2015) Using the PhenX toolkit to add standard measures to a study. Curr. Protoc. Hum. Genet. 86:1.21.1-1.21.17. doi: 10.1002/0471142905.hg0121s86 Permission to publish granted by Carol M. Hamilton.

Personal and Family History of Respiratory Symptoms/Diseases - Adult Protocol PhenX Toolkit

- 26/04/2016 - 1 Formulaire, 1 Groupe Item, 120 Eléments de données, 1 Langue

Groupe Item: PhenX - respiratory - personal - family hx of respiratory symptoms - diseases - adult protocol

This protocol obtains information about the personal history of respiratory symptoms and illnesses. Duration of disease, other allergic diseases, occupational history, smoking status, and family history of selected respiratory diseases are also assessed. Supplemental questions were added from other studies in areas judged to be inadequately covered by this questionnaire. ODM derived from: https://cde.nlm.nih.gov Primary source: https://www.phenxtoolkit.org/ Recent publication: Hendershot, T., Pan, H., Haines, J., Harlan, W.R., Marazita, M.L., McCarty, C.A., Ramos, E.M., and Hamilton, C.M. (2015) Using the PhenX toolkit to add standard measures to a study. Curr. Protoc. Hum. Genet. 86:1.21.1-1.21.17. doi: 10.1002/0471142905.hg0121s86 Permission to publish granted by Carol M. Hamilton.

Personal and Family History of Respiratory Symptoms/Diseases - Child Protocol PhenX Toolkit

- 26/04/2016 - 1 Formulaire, 1 Groupe Item, 41 Eléments de données, 1 Langue

Groupe Item: PhenX - respiratory - personal - family hx of respiratory symptoms - diseases - child protocol

Age-specific questions are asked in this protocol to two different age ranges of children. For children ages 13 and 14, a set of questions is asked directly to the child. For children 6 or 7 years old, a set of questions is asked of the parents. ODM derived from: https://cde.nlm.nih.gov Primary source: https://www.phenxtoolkit.org/ Recent publication: Hendershot, T., Pan, H., Haines, J., Harlan, W.R., Marazita, M.L., McCarty, C.A., Ramos, E.M., and Hamilton, C.M. (2015) Using the PhenX toolkit to add standard measures to a study. Curr. Protoc. Hum. Genet. 86:1.21.1-1.21.17. doi: 10.1002/0471142905.hg0121s86 Permission to publish granted by Carol M. Hamilton.

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