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Measurement Instrument Database for the Social Science (MIDSS) - Four-Dimensional Symptom Questionnaire (4DSQ)

- 12/08/20 - 1 modulo, 7 itemgroups, 50 elementi, 1 linguaggio

Itemgroups: Explanation, During THE PAST WEEK, did you suffer from:, During THE PAST WEEK, did you suffer from:, During THE PAST WEEK, did you feel:, During THE PAST WEEK, did you feel:, During THE PAST WEEK, did you:, During THE PAST WEEK:

Terluin, B.. (2012). Four-Dimensional Symptom Questionnaire (4DSQ) . Measurement Instrument Database for the Social Science. Retrieved 12.08.2020 from www.midss.ie Key references: Terluin B, Van Rhenen W, Schaufeli WB, De Haan M. The Four-Dimensional Symptom Questionnaire (4DSQ): measuring distress and other mental health problems in a working population. Work and Stress 2004; 18(3): 187-207. Terluin B, Van Marwijk HWJ, Adèr HJ, De Vet HCW, Penninx BWJH, Hermens MLM, Van Boeijen CA, Van Balkom AJLM, Van der Klink JJL, Stalman WAB. The Four-Dimensional Symptom Questionnaire (4DSQ): a validation study of a multidimensional self-report questionnaire to assess distress, depression, anxiety and somatization. BMC Psychiatry 2006; 6:34. Terluin B, Brouwers EPM, van Marwijk HWJ, Verhaak PFM, van der Horst HE. Detecting depressive and anxiety disorders in distressed patients in primary care; comparative diagnostic accuracy of the Four-Dimensional Symptom Questionnaire (4DSQ) and the Hospital Anxiety and Depression Scale (HADS). BMC Fam Pract 2009; 10:58. Primary use / Purpose: The 4DSQ is a self-report questionnaire to assess distress, depression, anxiety and somatization. It is mainly used in primary care. The 4DSQ helps to differentiate between normal distress and psychiatric disorder. Background: Many health care problems in primary care are stress-related (distress) and do not represent true psychiatric disorder (irrespective of whether DSM-IV criteria for depressive or anxiety disorders are fulfilled). Indiscriminate application of DSM-IV criteria in the primary care setting produces many false positive diagnoses confusing patients and misleading professionals. In health care practice the 4DSQ can be used to: - help patients acknowledge mental health issues when presenting with physical complaints, - assess the overall severity of the mental health problems, - detect depressive and anxiety disorders severe enough to require specific treatment (antidepressants or cognitive behavioral therapy), - monitor patients' progress under treatment. Psychometrics: The 4DSQ has been extensively tested for reliability and validity. Reliability is high (coefficients generally >.80). Factorial, critirion and concurrant validity has been confirmed. Web link to tool: Four-Dimensional Symptom Questionnaire (4DSQ) Other Information: The 4DSQ is free for non-commercial use. Available language versions: English, Dutch, French, German, Polish, Turkish Digital Object Identifier (DOI): http://dx.doi.org/10.13072/midss.167 Scoring: "no" = score 0 "sometimes" = score 1 "regularly" or more often = score 2 Distress: sum the items 17, 19, 20, 22, 25, 26, 29, 31, 32, 36, 37, 38, 39, 41, 47, 48 Interpretation: moderately elevated if > 10, strongly elevated if > 20 Depression: sum the items 28, 30, 33, 34, 35, 46 Interpretation: moderately elevated if > 2, strongly elevated if > 5 Anxiety: sum the items 18, 21, 23, 24, 27, 40, 42, 43, 44, 45, 49, 50 moderately elevated if > 8, strongly elevated if > 12 Somatisation: sum the items 1, 2, 3, 4, 5, 6, 7, 8, 9, 10, 11, 12, 13, 14, 15, 16 moderately elevated if > 10, strongly elevated if > 20

Measurement Instrument Database for the Social Science (MIDSS) - Adult Separation Anxiety Questionnaire - ASA-27

- 07/08/20 - 1 modulo, 1 ItemGroup, 27 elementi, 1 linguaggio

ItemGroup: ASA-27

Manicavasagar, V., Silove, D., Wagner, R., Drobny, J.. (2012) . Adult Separation Anxiety Questionnaire - ASA-27. Measurement Instrument Database for the Social Science. Retrieved 05.08.2020 from www.midss.ie Key references: Manicavasagar, V., Silove, D., Wagner, R., Drobny, J. (2003). A self-report questionnaire for measuring separation anxiety in adulthood. Comprehensive Psychiatry, 44, 146-153. Manicavasagar, V., Silove, D., & Curtis, J. (1997). Separation anxiety in adulthood: A phenomenological investigation. Comprehensive Psychiatry, 38, 274-282. Primary use / Purpose: ASA-27 is a 27-item self-report questionnaire that purports to examine symptoms of separation anxiety experienced after 18 years of age, with Likert ratings on a scale of zero (this never happens) to three (this happens very often). Background: Scale items were constructed as adult equivalents of childhood separation anxiety disorder Diagnostic and Statistical Manual of Mental Disorders IV symptoms. Psychometrics: Sound psychometric properties for the ASA-27 have been demonstrated (Manicavasaga, Silove, & Curtis, 1997). Digital Object Identifier (DOI): http://dx.doi.org/10.13072/midss.162 Scoring the ASA-27 Individual items are scored on a 0 to 3 scale where; ‘0’ = ‘This has never happened’ ‘1’ = ‘This happens occasionally’ ‘2’ = ‘This happens fairly often’ ‘3’ = ‘This happens very often’ The items are summated to derive a total score for adult separation anxiety. Further scoring guidelines and psychometric properties of the ASA-27 are available in: Manicavasagar, V., Silove, D. Wagner, R. and Drobney, J. (2003). A self-report questionnaire for measuring separation anxiety in adulthood. Comprehensive Psychiatry, 44(2): 146-153.

Measurement Instrument Database for the Social Science (MIDSS) - The Penn State Worry Questionnaire (PSWQ)

- 05/08/20 - 1 modulo, 2 itemgroups, 18 elementi, 1 linguaggio

Itemgroups: General Information, The Penn State Worry Questionnaire (PSWQ)

Meyer, T. J., Miller, M. L., Metzger, R. L., Borkovec, T. D. (1990). The Penn State Worry Questionnaire (PSWQ). Measurement Instrument Database for the Social Science. Retrieved 05.08.2020, from www.midss.ie Key references: Original article: Meyer, T. J., Miller, M. L., Metzger, R. L., & Borkovec, T. D. (1990). Development and validation of the penn state worry questionnaire. Behavior Research and Therapy, 28, 487-495. Brown, T.A. Confirmatory factor analysis of the Penn State Worry Questionnaire: Multiple factors or method effects? Behavior Research and Therapy (2003) 41, 1411-14226. Fresco, D.M., et. al. ( 2003) Using the Penn State Worry Questionnaire to identify individuals with Generalized Anxiety Disorder: a receiver operating characteristic analysis. Journal of Behavior Therapy and Experimental Psychiatry. 34, 283-291. Gillis, M.M., Haaga, D.A. and Ford, G.T. (1995) Normative values for the Beck Anxiety Inventory, Fear Questionnaire, Penn State Worry Questionnaire, and Social Phobia and Anxiety Inventory. Psychological Assessment, 7, 450-455. Primary use / Purpose: The Penn State Worry Questionnaire (PSWQ) is a 16-item questionnaire that aims to measure the trait of worry, using Likert rating from 1 (not at all typical of me) to 5 (very typical of me). Research suggests that the instrument has a strong ability to differentiate patients with generalized anxiety disorder (GAD) from other anxiety disorders. Background: Worry is regarded as a dominant feature of GAD. Since its development in 1990, the PSWQ has become a widely used self-report tool for pathological worry and GAD. The PSWQ attempts to measure the excessiveness, generality, and uncontrollable dimensions of worry. Psychometrics: The PSWQ has shown to possess high internal consistency and good test-retest reliability (Meyer et al., 1990). Digital Object Identifier (DOI): http://dx.doi.org/10.13072/midss.158 Scoring the PSWQ In scoring the PSWQ, a value of 1, 2, 3, 4, and 5 is assigned to a response depending upon whether the item is worded positively or negatively. The total score of the scale ranges from 16 to 80. Items 1, 3, 8, 10, 11 are reverse scored as follows: • Very typical of me = 1 (circled 5 on the sheet) • Circled 4 on the sheet = 2 • Circled 3 on the sheet = 3 • Circled 2 on the sheet = 4 • Not at all typical of me = 5 (circled 1 on the sheet) For items 2, 4, 5, 6, 7, 9, 12, 13, 14, 15, 16 the scoring is: • Not at all typical of me = 1 • Ratings of 2, 3, and 4 are not transformed • Very typical of me = 5

Measurement Instrument Database for the Social Science (MIDSS) - Anxiety Disorder Diagnostic Questionnaire (ADDQ)

- 31/07/20 - 1 modulo, 5 itemgroups, 27 elementi, 1 linguaggio

Itemgroups: Information, 1., 2., 3., 4.

Norton & Robinson. (2012). Anxiety Disorder Diagnostic Questionnaire (ADDQ). Measurement Instrument Database for the Social Science. Retrieved 31.07.2020 from www.midss.ie Key references: Norton, P. J., & Robinson, C. M. (2010). Development and evaluation of the anxiety disorder diagnostic questionnaire. Cognitive Behaviour Therapy, 39, 137-149. Primary use / Purpose: The ADDQ is a 4-part self-report questionnaire assessing fearfulness and apprehension/worry, the severity, interference, and distress of the anxiety, as well as specific symptoms (i.e. shortness of breath, irritability). Background: The ADDQ was constructed as a screening tool for the presence of clinical fear and anxiety independent of diagnoses, in both clinical and nonclinical populations. Psychometrics: Support for the psychometric validity of the ADDQ is presented (Norton & Robinson, 2010). Digital Object Identifier (DOI): http://dx.doi.org/10.13072/midss.154

Measurement Instrument Database for the Social Science (MIDSS) - The Panic Attack Questionnaire

- 31/07/20 - 1 modulo, 22 itemgroups, 324 elementi, 1 linguaggio

Itemgroups: Medical History, Family History, Panic attack in the last year, Panic attack time to maximum, Panic attack duration, Symptoms most recent panic attack, Symptoms worst ever panic attack, Symptoms typical/usual panic attack, worrying about future panic attacks, Symptoms, Fear panic attacks, Further harm, Situational setting of panic attacks 1, Situational setting of panic attacks 2, Avoidance because of fear of having a panic attack, Situation most likely for a panic attack, Control, Impact on life, Predictability, Coping, First panic attack, Were you experiencing any of the following stressful events at the time you had your first panic attack?

Norton, G. R., Harrison, B., Hauch, J., & Rhodes, L.. (2012). The Panic Attack Questionnaire. Measurement Instrument Database for the Social Science. Retrieved 23.07.2020 from www.midss.ie Key references: Norton, G. R., Harrison, B., Hauch, J., & Rhodes, L. (1985). Characteristics of people with infrequent panic attacks. Journal of Abnormal Psychology, 94, 216-221. Primary use / Purpose: The Panic Attack Questionnaire is a commonly-used self-report tool for assessing panic attacks, including features of panic, symptoms, cognitions, triggers, and coping strategies. Background: The PAQ is a comprehensive tool that aims to for assess various aspects of panic phenomenology. It begins by providing respondents with a definition of panic attacks (according to DSM-III) to create a common understanding of the construct. From there, participants construct their self-assessment. It collects information about participant's frequency of panic attacks and the context in which they arose, as well as intensity of pain symptoms. The final section of the questionnaire consists of open-ended questions about medication use, stress, and treatment received for other illnesses or disorders. Psychometrics: The PAQ has been demonstrated to have good convergent validity with the Beck Anxiety Inventory (Cox, Cohen, Direnfeld, & Swinson, 1996). Digital Object Identifier (DOI): http://dx.doi.org/10.13072/midss.153

Measurement Instrument Database for the Social Science (MIDSS) - Problem Recognition Questionnaire (PRQ)

- 26/06/20 - 1 modulo, 2 itemgroups, 27 elementi, 1 linguaggio

Itemgroups: Administrative documentation, Problem Recognition Questionnaire

Cady, M., Winters, K.C., Jordan, D.A., Solberg, K.R., & Stinchfield, R.D.. (1996). Problem Recognition Questionnaire (PRQ). Measurement Instrument Database for the Social Science. Retrieved 26.06.2020, from www.midss.ie Key references: Cady, M., Winters, K.C., Jordan, D.A., Solberg, K.R., & Stinchfield, R.D. (1996). Measuring treatment readiness for adolescent drug abusers. Journal of Child and Adolescent Substance Abuse, 5, 73-91. Primary use / Purpose: The PRQ examines treatment readiness and receptivity in juveniles seeking out treatment for a substance use disorder. The PRQ is a 25-item inventory where respondents answer on a 4-point Likert rating scale from 'Strongly Disagree' to 'Strongly Agree'. It has been appraised as having research and clinical utility for identifying subgroups of adolescents as a function of willingness to change and as a change measure in pre-post outcome analysis. Background: The 24-item Problem Recognition Questionnaire (PRQ) consists of three separate factors (Contemplation, Contemplation/Preparpation, and Preparation) pertaining to drug use problem recognition and readiness for treatment. The scale was developed with a combination of rational and empirical procedures. Psychometrics: The PRQ factors have adequate internal reliability (range .78 – .92) and were shown to be predictive of posttreatment functioning in an adolescent substance-abusing population (Cady, Winters, Jordan & Solheim, 1996). Also, the PRQ can be used a single dimensional measure of problem recogition (eigenvalue = 9.1; alpha = .91). Scoring: see https://www.midss.org/content/problem-recognition-questionnaire-prq (cited 26.06.2020) Digital Object Identifier (DOI): http://dx.doi.org/10.13072/midss.288

Measurement Instrument Database for the Social Science (MIDSS) - Physical Activity and Sport Anxiety Scale (PASAS)

- 12/05/20 - 1 modulo, 1 ItemGroup, 16 elementi, 1 linguaggio

ItemGroup: Statements

Norton, P. J., Hope, D. A., & Weeks, J. W.. (2012). Physical Activity and Sport Anxiety Scale (PASAS). Measurement Instrument Database for the Social Science. Retrieved 11.05.2020 from www.midss.ie Key references: Norton, P. J., Hope, D. A., & Weeks, J. W. (2004). The physical activity and sport anxiety scale (PASAS): Scale development and psychometric analysis. Anxiety, Stress, and Coping, 17, 363-382 Primary use / Purpose: The Physical Activity and Sport Anxiety Scale (PASAS) is a 16-item self-report questionnaire designed to measure social anxiety in physical activities and sports. Background: This test was developed from a need to integrate measures of social anxiety and avoidance into assessment of physical activity and sport. Given the importance of physical exercise to individual health, accounting for psychological moderators of exercise behaviour is crucial. Psychometrics: Psychometric analysis of this scale has been conducted (Norton, Hope, & Weeks, 2004). Keywords: Anxiety, Family *** Scoring Instructions: Items 3, 11, and 14 are reverse scores. Total Scale Score computed by summing all items. *** Digital Object Identifier (DOI): http://dx.doi.org/10.13072/midss.152

DELCODE: DZNE – Longitudinal Cognitive Impairment and Dementia Study - Neuropsychiatric interview (NPI-Q) (Neuropsychiatrisches Intervies (NPI‐Q))

- 22/04/20 - 1 modulo, 2 itemgroups, 6 elementi, 1 linguaggio

Itemgroups: Administrative Data, Neuropsychiatric Interview (NPI-Q)

DELCODE is conducted by DZNE, the German Center for Neurodegenerative Diseases within the Helmholtz Association. The following information was taken from https://www.dzne.de/en/research/studies/clinical-studies/delcode/. Background and aims: One of the important aims of research into Alzheimer's is to find ways of detecting the disease early – if at all possible, as soon as the first minor symptoms appear, or even before any symptoms at all have appeared. Such detection capabilities are the necessary basis for development of therapies that can be applied at such early stages in the disease. Recent research indicates that such therapies could be more effective than therapies initiated during the disease's later stages. Over a period of several years, the DELCODE study is studying persons in early stages of the disease, along with various risk groups. The research is aimed at the development of procedures for characterizing early stages of the disease, at improving prediction of the course of the disease and at identifying new markers for early diagnosis of Alzheimer's-related dementia. Overview: DELCODE is set up to run for an initial period of three years, and to include a total of 1,000 study participants, who will be examined on a yearly basis. The group of participants will include persons with no complaints (healthy control subjects), patients with slight memory impairment or mild dementia and first-degree relatives of patients with diagnosed Alzheimer's disease. The minimum age for participants is 60. Course of the study: The examinations in the framework of the study will include a comprehensive interview carried out by a study investigator, a detailed neuropsychological examination (testing of memory functions and other areas of cognitive performance), a blood test and a cranial MRI scan. Optionally, subject to the study participant's consent in each case, a lumbar puncture (collection of cerebrospinal fluid) will be carried out." For more information (e.g. principle investigator and study coordination), please visit the above link or https://www.dzne.de. This document contains the Neuropsychiatric interview (NPI-Q). It has to be filled in for baseline and for all follow-ups. Due to potential copyright on this questionnaire included in the DZNE DELCODE protocol, the NPI-Q will only be included as text result items in this version of the DELCODE forms. The respective score items will have a comment in their descriptions about this to distinguish them from score items that were already defined like that by DZNE. For more information see: DOI:10.1017/S1041610210001237 or npitest.net.

DELCODE: DZNE – Longitudinal Cognitive Impairment and Dementia Study - Minimal Mental State Examination (MMSE)

- 18/04/20 - 1 modulo, 2 itemgroups, 12 elementi, 2 lingue

Itemgroups: Administrative Data, Minimal Mental State Examination (MMSE)

DELCODE is conducted by DZNE, the German Center for Neurodegenerative Diseases within the Helmholtz Association. The following information was taken from https://www.dzne.de/en/research/studies/clinical-studies/delcode/. Background and aims: One of the important aims of research into Alzheimer's is to find ways of detecting the disease early – if at all possible, as soon as the first minor symptoms appear, or even before any symptoms at all have appeared. Such detection capabilities are the necessary basis for development of therapies that can be applied at such early stages in the disease. Recent research indicates that such therapies could be more effective than therapies initiated during the disease's later stages. Over a period of several years, the DELCODE study is studying persons in early stages of the disease, along with various risk groups. The research is aimed at the development of procedures for characterizing early stages of the disease, at improving prediction of the course of the disease and at identifying new markers for early diagnosis of Alzheimer's-related dementia. Overview: DELCODE is set up to run for an initial period of three years, and to include a total of 1,000 study participants, who will be examined on a yearly basis. The group of participants will include persons with no complaints (healthy control subjects), patients with slight memory impairment or mild dementia and first-degree relatives of patients with diagnosed Alzheimer's disease. The minimum age for participants is 60. Course of the study: The examinations in the framework of the study will include a comprehensive interview carried out by a study investigator, a detailed neuropsychological examination (testing of memory functions and other areas of cognitive performance), a blood test and a cranial MRI scan. Optionally, subject to the study participant's consent in each case, a lumbar puncture (collection of cerebrospinal fluid) will be carried out." For more information (e.g. principle investigator and study coordination), please visit the above link or https://www.dzne.de. This document contains the results of the Minimal Mental State Examination (MMSE) form. It has to be filled in for Baseline and all Follow-ups. For more information see: Folstein MF, Folstein SE and McHugh PR. Mini-Mental State: A practical method for grading the state of patients for the clinician, Journal of Psychiatric Research 1975; 12: 189-198

DELCODE: DZNE – Longitudinal Cognitive Impairment and Dementia Study - Geriatric Depression Scale (GDS), Geriatric Anxiety Inventory – Short Form (GAI‐SF) (Geriatrische Depressionsskala (GDS) und GAI-SF)

- 14/04/20 - 1 modulo, 3 itemgroups, 21 elementi, 1 linguaggio

Itemgroups: Administrative Data, Geriatric Depression Scale (GDS), Geriatric Anxiety Inventory – Short Form (GAI‐SF)

DELCODE is conducted by DZNE, the German Center for Neurodegenerative Diseases within the Helmholtz Association. The following information was taken from https://www.dzne.de/en/research/studies/clinical-studies/delcode/. Background and aims: One of the important aims of research into Alzheimer's is to find ways of detecting the disease early – if at all possible, as soon as the first minor symptoms appear, or even before any symptoms at all have appeared. Such detection capabilities are the necessary basis for development of therapies that can be applied at such early stages in the disease. Recent research indicates that such therapies could be more effective than therapies initiated during the disease's later stages. Over a period of several years, the DELCODE study is studying persons in early stages of the disease, along with various risk groups. The research is aimed at the development of procedures for characterizing early stages of the disease, at improving prediction of the course of the disease and at identifying new markers for early diagnosis of Alzheimer's-related dementia. Overview: DELCODE is set up to run for an initial period of three years, and to include a total of 1,000 study participants, who will be examined on a yearly basis. The group of participants will include persons with no complaints (healthy control subjects), patients with slight memory impairment or mild dementia and first-degree relatives of patients with diagnosed Alzheimer's disease. The minimum age for participants is 60. Course of the study: The examinations in the framework of the study will include a comprehensive interview carried out by a study investigator, a detailed neuropsychological examination (testing of memory functions and other areas of cognitive performance), a blood test and a cranial MRI scan. Optionally, subject to the study participant's consent in each case, a lumbar puncture (collection of cerebrospinal fluid) will be carried out." For more information (e.g. principle investigator and study coordination), please visit the above link or https://www.dzne.de. This document contains the Geriatric Depression Scale (GDS) and the Geriatric Anxiety Inventory – Short Form (GAI‐SF). It has to be filled in for Baseline and for all Follow-ups. For use of the questionnaire GDS no licence is required. For more information to the GDS see Yesavage JA, Brink TL, Rose TL, Lum O, Huang V, Adey M, Leirer VO. Development and validation of a geriatric depression screening scale: a preliminary report. J Psychiatr Res. 1982-83;17(1):37-49. Due to potential copyright on the questionnaire GAI-SF included in the DZNE DELCODE protocol, GAI-SF will only be included as text result item in this version of the DELCODE forms (at least until permission to publish is received from the original authors or becomes clear upon further research). The respective score items will have a comment in their descriptions about this to distinguish them from score items that were already defined like that by DZNE. For more information to GAI-SF see: Pachana, N., Byrne, G., Siddle, H., Koloski, N., Harley, E., & Arnold, E. (2007). Development and validation of the Geriatric Anxiety Inventory. International Psychogeriatrics, 19, 103-114. doi: 10.1017/S1041610206003504. Rozzini, L., Chilovi, B., Peli, M., Conti, M., Rozzini, R., Trabucchi, M., Padovani, A. (2009). Anxiety symptoms in mild cognitive impairment. International Journal of Geriatric Psychiatry, 24, 300-305. doi: 10.1002/gps.2106.

FHIR v4.0.1 - Resource Questionnaire Response (3)

- 12/03/20 - 1 modulo, 1 ItemGroup, 5 elementi, 1 linguaggio

ItemGroup: QuestionnaireResponse

The form corresponds to an incomplete version of FHIR Resource QuestionnaireResponse, v4.0.1. It contains all data elements that query a medical issue. The file was created for analysis purposes. https://www.hl7.org/fhir/resourcelist.html 02.01.2020

FHIR v4.0.1 - Resource Questionnaire (3)

- 24/02/20 - 1 modulo, 1 ItemGroup, 9 elementi, 1 linguaggio

ItemGroup: Questionnaire (3)

https://www.hl7.org/fhir/resourcelist.html (accessed at 14.02.2020) This form contains an incomplete implementation of the FHIR Resource Questionnaire (3). After preliminary review, it contains the data elements that request clinical information.

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