Selected data models

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Common Data Elements for Retinal Neovascular Diseases - Risk Factors or Past Medical History

- 20/09/2021 - 4 forms, 1 itemgroup, 35 items, 2 languages
Itemgroup: Risk Factors; Past Medical History
Common Data Elements for retinal neovascular diseases. The CDEs may be used in clinical routine, clinical trial, patient outcome, quality assurance and registry documentation of Age related macular degeneration (AMD), Diabetic Retinopathy (DR) and Retinal vein occlusion (RVO). The CDEs were developed by the Institute of Medical Informatics of the University Muenster in cooperation with the Department of Ophthalmology of the University Hospital Muenster.

Diagnosis and Examination

1 itemgroup 11 items

Eye Examination

1 itemgroup 18 items

Therapy

1 itemgroup 9 items

26672_Common Data Elements Myeloid Leukemia (MDS AML CML) - Global Disease Course

- 20/09/2021 - 13 forms, 3 itemgroups, 11 items, 1 language
Itemgroups: Global Disease Course, Red Cell Transfusion, Platelet Cell Transfusion
Common Data Elements Myeloid Leukemia (MDS, AML, CML) for use in clinical routine and clinical trial documentation. https://www.ncbi.nlm.nih.gov/pubmed/27577388

Physical Examination/Follow up

3 itemgroups 14 items

Administrative/Demographic Details

1 itemgroup 11 items

Medical History

3 itemgroups 9 items

Lab: Cytology/Cytogenetics/Cytochemistry

1 itemgroup 29 items

Lab: Immunophenotyping

1 itemgroup 17 items

Lab: Molecular Genetics

1 itemgroup 27 items

CDASH Vital Signs

- 20/06/2018 - 1 form, 2 itemgroups, 14 items, 2 languages
Itemgroups: General information, Vital Sign
modified from http://www.cdisc.org

Acute Myeloid Leukemia - Treatment Details

- 20/09/2021 - 13 forms, 6 itemgroups, 39 items, 1 language
Itemgroups: Therapeutic procedure; Details, Adverse Event, Hemopoietic stem cell transplant, Platelet Engraftment, Neutrophil Engraftment, Therapeutic procedure; Status
Acute Myeloid Leukemia Common Data Elements Holz

Medical History

6 itemgroups 20 items

Lab: Cytology/Cytogenetics/Cytochemistry

3 itemgroups 43 items

Lab: Molecular Genetics, Immunophenotyping, Cytogenetics

1 itemgroup 1 item

Physical Examination/Follow-up

4 itemgroups 27 items

Lab: Infectiology

1 itemgroup 11 items

Lab: Molecular Genetics

1 itemgroup 23 items

PCORnet Common Data Model (CDM) - Vital V4.1

- 30/03/2020 - 1 form, 1 itemgroup, 21 items, 1 language
Itemgroup: Vital
PCORnet Common Data Model (CDM) Vital Vital signs (such as height, weight, and blood pressure) directly measure an individual’s current state of attributes. This table includes measurements recorded in both healthcare and non-healthcare settings. PCORnet Common Data Model (CDM) The PCORnet Common Data Model (CDM) is a specification that defines a standard organization and representationof data for the PCORnet Distributed Research Network. The PCORnet CDM is a key component of the PCORnet Distributed Research Network (DRN) infrastructure. http://www.pcornet.org/pcornet-common-data-model/

NINDS CDE Physical Exam Multiple Sclerosis - Physical Exam

- 29/06/2016 - 1 form, 2 itemgroups, 48 items, 1 language
Itemgroups: Physical Exam, Physical examination Results
NINDS Common Data Elements, Multiple Sclerosis Physical Exam Used from the National Institute of Neurological Disorders and Stroke Common Data Elements (https://www.commondataelements.ninds.nih.gov/) References: Grinnon ST, Miller K, Marler JR, Lu Y, Stout A, Odenkirchen J, Kunitz S. National Institute of Neurological Disorders and Stroke Common Data Element Project - approach and methods. Clin Trials. 2012;9(3):322-9.

NINDS CDE Physical Examination Headache - Physical Examination

- 20/06/2016 - 1 form, 1 itemgroup, 48 items, 1 language
Itemgroup: Physical Exam
NINDS Common Data Elements [Physical Examination] [Headache] Used from the National Institute of Neurological Disorders and Stroke Common Data Elements (https://www.commondataelements.ninds.nih.gov/) References: Grinnon ST, Miller K, Marler JR, Lu Y, Stout A, Odenkirchen J, Kunitz S. National Institute of Neurological Disorders and Stroke Common Data Element Project - approach and methods. Clin Trials. 2012;9(3):322-9.

NINDS CDE Physical Examination Friedreich´s Ataxia - Physical Examination

- 29/04/2016 - 1 form, 1 itemgroup, 34 items, 1 language
Itemgroup: Physical Exam
NINDS Common Data Elements [Physical Examination] [Friedreich´s Ataxia] Used from the National Institute of Neurological Disorders and Stroke Common Data Elements (https://www.commondataelements.ninds.nih.gov/) References: Grinnon ST, Miller K, Marler JR, Lu Y, Stout A, Odenkirchen J, Kunitz S. National Institute of Neurological Disorders and Stroke Common Data Element Project - approach and methods. Clin Trials. 2012;9(3):322-9.

CDASH Physical examination

- 20/06/2018 - 1 form, 1 itemgroup, 1 item, 1 language
Itemgroup: General information
modified from http://www.cdisc.org

NINDS CDE Assessments and Examinations Epilepsy - Assessments and Examinations

- 21/04/2016 - 1 form, 10 itemgroups, 206 items, 1 language
Itemgroups: Neurological examination, Mental Status, Cranial Nerves, Motor Assessments, Cerebellar/Coordination, Reflexes, Gait, Sensory/Sensation, Physical Exam, Vital Signs
NINDS Common Data Elements Used from the National Institute of Neurological Disorders and Stroke Common Data Elements (https://www.commondataelements.ninds.nih.gov/) References: Grinnon ST, Miller K, Marler JR, Lu Y, Stout A, Odenkirchen J, Kunitz S. National Institute of Neurological Disorders and Stroke Common Data Element Project - approach and methods. Clin Trials. 2012;9(3):322-9.

CDASH Vital Signs (fine 1)

- 20/06/2018 - 1 form, 6 itemgroups, 24 items, 1 language
Itemgroups: Height, Weight, Blood pressure, Pulse, Temperature, Body Frame Size
modified from http://www.cdisc.org

NINDS CDE Physical Examination Amyotrophic Lateral Sclerosis - Physical Examination

- 21/03/2016 - 1 form, 1 itemgroup, 34 items, 1 language
Itemgroup: Physical Exam
NINDS Common Data Elements [Neuromuscular Examination] [Amyotrophic Lateral Sclerosis] Used from the National Institute of Neurological Disorders and Stroke Common Data Elements (https://www.commondataelements.ninds.nih.gov/) References: Grinnon ST, Miller K, Marler JR, Lu Y, Stout A, Odenkirchen J, Kunitz S. National Institute of Neurological Disorders and Stroke Common Data Element Project - approach and methods. Clin Trials. 2012;9(3):322-9.

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