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Common Data Elements for Retinal Neovascular Diseases - Risk Factors or Past Medical History

- 20-09-21 - 4 Formulieren, 1 Itemgroep, 35 Data-elementen, 2 Talen
Itemgroep: Risk Factors; Past Medical History
Common Data Elements for retinal neovascular diseases. The CDEs may be used in clinical routine, clinical trial, patient outcome, quality assurance and registry documentation of Age related macular degeneration (AMD), Diabetic Retinopathy (DR) and Retinal vein occlusion (RVO). The CDEs were developed by the Institute of Medical Informatics of the University Muenster in cooperation with the Department of Ophthalmology of the University Hospital Muenster.

Diagnosis and Examination

1 Itemgroep 11 Data-elementen

Eye Examination

1 Itemgroep 18 Data-elementen

Therapy

1 Itemgroep 9 Data-elementen

26672_Common Data Elements Myeloid Leukemia (MDS AML CML) - Global Disease Course

- 20-09-21 - 13 Formulieren, 3 Itemgroepen, 11 Data-elementen, 1 Taal
Itemgroepen: Global Disease Course, Red Cell Transfusion, Platelet Cell Transfusion
Common Data Elements Myeloid Leukemia (MDS, AML, CML) for use in clinical routine and clinical trial documentation. https://www.ncbi.nlm.nih.gov/pubmed/27577388

Physical Examination/Follow up

3 Itemgroepen 14 Data-elementen

Administrative/Demographic Details

1 Itemgroep 11 Data-elementen

Medical History

3 Itemgroepen 9 Data-elementen

Lab: Cytology/Cytogenetics/Cytochemistry

1 Itemgroep 29 Data-elementen

Lab: Immunophenotyping

1 Itemgroep 17 Data-elementen

Lab: Molecular Genetics

1 Itemgroep 27 Data-elementen

CDASH Vital Signs

- 20-06-18 - 1 Formulier, 2 Itemgroepen, 14 Data-elementen, 2 Talen
Itemgroepen: General information, Vital Sign
modified from http://www.cdisc.org

Acute Myeloid Leukemia - Treatment Details

- 20-09-21 - 13 Formulieren, 6 Itemgroepen, 39 Data-elementen, 1 Taal
Itemgroepen: Therapeutic procedure; Details, Adverse Event, Hemopoietic stem cell transplant, Platelet Engraftment, Neutrophil Engraftment, Therapeutic procedure; Status
Acute Myeloid Leukemia Common Data Elements Holz

Medical History

6 Itemgroepen 20 Data-elementen

Lab: Cytology/Cytogenetics/Cytochemistry

3 Itemgroepen 43 Data-elementen

Lab: Molecular Genetics, Immunophenotyping, Cytogenetics

1 Itemgroep 1 Data-element

Physical Examination/Follow-up

4 Itemgroepen 27 Data-elementen

Lab: Infectiology

1 Itemgroep 11 Data-elementen

Lab: Molecular Genetics

1 Itemgroep 23 Data-elementen

PCORnet Common Data Model (CDM) - Vital V4.1

- 30-03-20 - 1 Formulier, 1 Itemgroep, 21 Data-elementen, 1 Taal
Itemgroep: Vital
PCORnet Common Data Model (CDM) Vital Vital signs (such as height, weight, and blood pressure) directly measure an individual’s current state of attributes. This table includes measurements recorded in both healthcare and non-healthcare settings. PCORnet Common Data Model (CDM) The PCORnet Common Data Model (CDM) is a specification that defines a standard organization and representationof data for the PCORnet Distributed Research Network. The PCORnet CDM is a key component of the PCORnet Distributed Research Network (DRN) infrastructure. http://www.pcornet.org/pcornet-common-data-model/

NINDS CDE Physical Exam Multiple Sclerosis - Physical Exam

- 29-06-16 - 1 Formulier, 2 Itemgroepen, 48 Data-elementen, 1 Taal
Itemgroepen: Physical Exam, Physical examination Results
NINDS Common Data Elements, Multiple Sclerosis Physical Exam Used from the National Institute of Neurological Disorders and Stroke Common Data Elements (https://www.commondataelements.ninds.nih.gov/) References: Grinnon ST, Miller K, Marler JR, Lu Y, Stout A, Odenkirchen J, Kunitz S. National Institute of Neurological Disorders and Stroke Common Data Element Project - approach and methods. Clin Trials. 2012;9(3):322-9.

NINDS CDE Physical Examination Headache - Physical Examination

- 20-06-16 - 1 Formulier, 1 Itemgroep, 48 Data-elementen, 1 Taal
Itemgroep: Physical Exam
NINDS Common Data Elements [Physical Examination] [Headache] Used from the National Institute of Neurological Disorders and Stroke Common Data Elements (https://www.commondataelements.ninds.nih.gov/) References: Grinnon ST, Miller K, Marler JR, Lu Y, Stout A, Odenkirchen J, Kunitz S. National Institute of Neurological Disorders and Stroke Common Data Element Project - approach and methods. Clin Trials. 2012;9(3):322-9.

NINDS CDE Physical Examination Friedreich´s Ataxia - Physical Examination

- 29-04-16 - 1 Formulier, 1 Itemgroep, 34 Data-elementen, 1 Taal
Itemgroep: Physical Exam
NINDS Common Data Elements [Physical Examination] [Friedreich´s Ataxia] Used from the National Institute of Neurological Disorders and Stroke Common Data Elements (https://www.commondataelements.ninds.nih.gov/) References: Grinnon ST, Miller K, Marler JR, Lu Y, Stout A, Odenkirchen J, Kunitz S. National Institute of Neurological Disorders and Stroke Common Data Element Project - approach and methods. Clin Trials. 2012;9(3):322-9.

CDASH Physical examination

- 20-06-18 - 1 Formulier, 1 Itemgroep, 1 Data-element, 1 Taal
Itemgroep: General information
modified from http://www.cdisc.org

NINDS CDE Assessments and Examinations Epilepsy - Assessments and Examinations

- 21-04-16 - 1 Formulier, 10 Itemgroepen, 206 Data-elementen, 1 Taal
Itemgroepen: Neurological examination, Mental Status, Cranial Nerves, Motor Assessments, Cerebellar/Coordination, Reflexes, Gait, Sensory/Sensation, Physical Exam, Vital Signs
NINDS Common Data Elements Used from the National Institute of Neurological Disorders and Stroke Common Data Elements (https://www.commondataelements.ninds.nih.gov/) References: Grinnon ST, Miller K, Marler JR, Lu Y, Stout A, Odenkirchen J, Kunitz S. National Institute of Neurological Disorders and Stroke Common Data Element Project - approach and methods. Clin Trials. 2012;9(3):322-9.

CDASH Vital Signs (fine 1)

- 20-06-18 - 1 Formulier, 6 Itemgroepen, 24 Data-elementen, 1 Taal
Itemgroepen: Height, Weight, Blood pressure, Pulse, Temperature, Body Frame Size
modified from http://www.cdisc.org

NINDS CDE Physical Examination Amyotrophic Lateral Sclerosis - Physical Examination

- 21-03-16 - 1 Formulier, 1 Itemgroep, 34 Data-elementen, 1 Taal
Itemgroep: Physical Exam
NINDS Common Data Elements [Neuromuscular Examination] [Amyotrophic Lateral Sclerosis] Used from the National Institute of Neurological Disorders and Stroke Common Data Elements (https://www.commondataelements.ninds.nih.gov/) References: Grinnon ST, Miller K, Marler JR, Lu Y, Stout A, Odenkirchen J, Kunitz S. National Institute of Neurological Disorders and Stroke Common Data Element Project - approach and methods. Clin Trials. 2012;9(3):322-9.

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