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Common Data Elements for Retinal Neovascular Diseases - Risk Factors or Past Medical History

- 20.09.21 - 4 Formulare, 1 Itemgruppe, 35 Datenelemente, 2 Sprachen
Itemgruppe: Risk Factors; Past Medical History
Common Data Elements for retinal neovascular diseases. The CDEs may be used in clinical routine, clinical trial, patient outcome, quality assurance and registry documentation of Age related macular degeneration (AMD), Diabetic Retinopathy (DR) and Retinal vein occlusion (RVO). The CDEs were developed by the Institute of Medical Informatics of the University Muenster in cooperation with the Department of Ophthalmology of the University Hospital Muenster.

Diagnosis and Examination

1 Itemgruppe 11 Datenelemente

Eye Examination

1 Itemgruppe 18 Datenelemente

Therapy

1 Itemgruppe 9 Datenelemente

26672_Common Data Elements Myeloid Leukemia (MDS AML CML) - Global Disease Course

- 20.09.21 - 13 Formulare, 3 Itemgruppen, 11 Datenelemente, 1 Sprache
Itemgruppen: Global Disease Course, Red Cell Transfusion, Platelet Cell Transfusion
Common Data Elements Myeloid Leukemia (MDS, AML, CML) for use in clinical routine and clinical trial documentation. https://www.ncbi.nlm.nih.gov/pubmed/27577388

Physical Examination/Follow up

3 Itemgruppen 14 Datenelemente

Administrative/Demographic Details

1 Itemgruppe 11 Datenelemente

Medical History

3 Itemgruppen 9 Datenelemente

Lab: Cytology/Cytogenetics/Cytochemistry

1 Itemgruppe 29 Datenelemente

Lab: Immunophenotyping

1 Itemgruppe 17 Datenelemente

Lab: Molecular Genetics

1 Itemgruppe 27 Datenelemente

CDASH Vital Signs

- 20.06.18 - 1 Formular, 2 Itemgruppen, 14 Datenelemente, 2 Sprachen
Itemgruppen: General information, Vital Sign
modified from http://www.cdisc.org

Acute Myeloid Leukemia - Treatment Details

- 20.09.21 - 13 Formulare, 6 Itemgruppen, 39 Datenelemente, 1 Sprache
Itemgruppen: Therapeutic procedure; Details, Adverse Event, Hemopoietic stem cell transplant, Platelet Engraftment, Neutrophil Engraftment, Therapeutic procedure; Status
Acute Myeloid Leukemia Common Data Elements Holz

Medical History

6 Itemgruppen 20 Datenelemente

Lab: Cytology/Cytogenetics/Cytochemistry

3 Itemgruppen 43 Datenelemente

Lab: Molecular Genetics, Immunophenotyping, Cytogenetics

1 Itemgruppe 1 Datenelement

Physical Examination/Follow-up

4 Itemgruppen 27 Datenelemente

Lab: Infectiology

1 Itemgruppe 11 Datenelemente

Lab: Molecular Genetics

1 Itemgruppe 23 Datenelemente

PCORnet Common Data Model (CDM) - Vital V4.1

- 30.03.20 - 1 Formular, 1 Itemgruppe, 21 Datenelemente, 1 Sprache
Itemgruppe: Vital
PCORnet Common Data Model (CDM) Vital Vital signs (such as height, weight, and blood pressure) directly measure an individual’s current state of attributes. This table includes measurements recorded in both healthcare and non-healthcare settings. PCORnet Common Data Model (CDM) The PCORnet Common Data Model (CDM) is a specification that defines a standard organization and representationof data for the PCORnet Distributed Research Network. The PCORnet CDM is a key component of the PCORnet Distributed Research Network (DRN) infrastructure. http://www.pcornet.org/pcornet-common-data-model/

NINDS CDE Physical Exam Multiple Sclerosis - Physical Exam

- 29.06.16 - 1 Formular, 2 Itemgruppen, 48 Datenelemente, 1 Sprache
Itemgruppen: Physical Exam, Physical examination Results
NINDS Common Data Elements, Multiple Sclerosis Physical Exam Used from the National Institute of Neurological Disorders and Stroke Common Data Elements (https://www.commondataelements.ninds.nih.gov/) References: Grinnon ST, Miller K, Marler JR, Lu Y, Stout A, Odenkirchen J, Kunitz S. National Institute of Neurological Disorders and Stroke Common Data Element Project - approach and methods. Clin Trials. 2012;9(3):322-9.

NINDS CDE Physical Examination Headache - Physical Examination

- 20.06.16 - 1 Formular, 1 Itemgruppe, 48 Datenelemente, 1 Sprache
Itemgruppe: Physical Exam
NINDS Common Data Elements [Physical Examination] [Headache] Used from the National Institute of Neurological Disorders and Stroke Common Data Elements (https://www.commondataelements.ninds.nih.gov/) References: Grinnon ST, Miller K, Marler JR, Lu Y, Stout A, Odenkirchen J, Kunitz S. National Institute of Neurological Disorders and Stroke Common Data Element Project - approach and methods. Clin Trials. 2012;9(3):322-9.

NINDS CDE Physical Examination Friedreich´s Ataxia - Physical Examination

- 29.04.16 - 1 Formular, 1 Itemgruppe, 34 Datenelemente, 1 Sprache
Itemgruppe: Physical Exam
NINDS Common Data Elements [Physical Examination] [Friedreich´s Ataxia] Used from the National Institute of Neurological Disorders and Stroke Common Data Elements (https://www.commondataelements.ninds.nih.gov/) References: Grinnon ST, Miller K, Marler JR, Lu Y, Stout A, Odenkirchen J, Kunitz S. National Institute of Neurological Disorders and Stroke Common Data Element Project - approach and methods. Clin Trials. 2012;9(3):322-9.

CDASH Physical examination

- 20.06.18 - 1 Formular, 1 Itemgruppe, 1 Datenelement, 1 Sprache
Itemgruppe: General information
modified from http://www.cdisc.org

NINDS CDE Assessments and Examinations Epilepsy - Assessments and Examinations

- 21.04.16 - 1 Formular, 10 Itemgruppen, 206 Datenelemente, 1 Sprache
Itemgruppen: Neurological examination, Mental Status, Cranial Nerves, Motor Assessments, Cerebellar/Coordination, Reflexes, Gait, Sensory/Sensation, Physical Exam, Vital Signs
NINDS Common Data Elements Used from the National Institute of Neurological Disorders and Stroke Common Data Elements (https://www.commondataelements.ninds.nih.gov/) References: Grinnon ST, Miller K, Marler JR, Lu Y, Stout A, Odenkirchen J, Kunitz S. National Institute of Neurological Disorders and Stroke Common Data Element Project - approach and methods. Clin Trials. 2012;9(3):322-9.

CDASH Vital Signs (fine 1)

- 20.06.18 - 1 Formular, 6 Itemgruppen, 24 Datenelemente, 1 Sprache
Itemgruppen: Height, Weight, Blood pressure, Pulse, Temperature, Body Frame Size
modified from http://www.cdisc.org

NINDS CDE Physical Examination Amyotrophic Lateral Sclerosis - Physical Examination

- 21.03.16 - 1 Formular, 1 Itemgruppe, 34 Datenelemente, 1 Sprache
Itemgruppe: Physical Exam
NINDS Common Data Elements [Neuromuscular Examination] [Amyotrophic Lateral Sclerosis] Used from the National Institute of Neurological Disorders and Stroke Common Data Elements (https://www.commondataelements.ninds.nih.gov/) References: Grinnon ST, Miller K, Marler JR, Lu Y, Stout A, Odenkirchen J, Kunitz S. National Institute of Neurological Disorders and Stroke Common Data Element Project - approach and methods. Clin Trials. 2012;9(3):322-9.

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