Multiple Sclerosis Registry - Consultation (DMSG)

1 forms
Name
Type
Description | Question | Decode (Coded Value)
Data type
Alias
Item Group
Administrative documentation
C1320722 (UMLS CUI-1)
Consultation date
Item
date
C0009818 (UMLS CUI-1)
C0011008 (UMLS CUI-2)
Data entry person
Item
text
C1550483 (UMLS CUI-1)
Medical center
Item
text
C0565990 (UMLS CUI-1)
Pseudonym
Item
text
C0033824 (UMLS CUI-1)
Item Group
Demographics
C1704791 (UMLS CUI-1)
Item
integer
C0013658 (UMLS CUI-1)
Educational status
Code List
Educational status
CL Item
 (-1)
CL Item
 (0)
CL Item
 (1)
CL Item
 (2)
CL Item
 (3)
CL Item
 (4)
CL Item
 (5)
Item
integer
C0013647 (UMLS CUI-1)
Education, professional
Code List
Education, professional
CL Item
 (-1)
CL Item
 (0)
CL Item
 (1)
CL Item
 (2)
Item
integer
C0028811 (UMLS CUI-1)
Job
Code List
Job
CL Item
 (0)
CL Item
 (1)
CL Item
 (2)
CL Item
 (3)
CL Item
 (4)
CL Item
 (5)
CL Item
 (6)
CL Item
 (7)
Limitation of activity
Item
boolean
C0008693 (UMLS CUI-1)
Item
text
C0008693 (UMLS CUI-1)
Limitation of activity
Code List
Limitation of activity
CL Item
 (0)
CL Item
 (1)
CL Item
 (2)
Item
integer
C0024819 (UMLS CUI-1)
Marital status
Code List
Marital status
CL Item
 (0)
CL Item
 (1)
CL Item
 (2)
Item
integer
C0037438 (UMLS CUI-1)
Social support
Code List
Social support
CL Item
 (0)
CL Item
 (1)
CL Item
 (2)
Item Group
Clinical course
C0011008 (UMLS CUI-1)
Item
integer
C0026769 (UMLS CUI-1)
C0449259 (UMLS CUI-2)
Multiple sclerosis - course
Code List
Multiple sclerosis - course
CL Item
 (1)
CL Item
 (2)
CL Item
 (3)
CL Item
 (4)
EDSS
Item
float
C0451246 (UMLS CUI-1)
EDSS date
Item
partialDate
C0451246 (UMLS CUI-1)
C0011008 (UMLS CUI-2)
Item Group
Multiple Sclerosis Functional Composite
Walk test
Item
Timed 25-Foot Walk Test
boolean
C0430517 (UMLS CUI-1)
Walk test time
Item
Zeit in Sekunden
durationDatetime
First attempt aborted
Item
boolean
Reason for aborted first attempt
Item
text
Walk test
Item
boolean
C0430517 (UMLS CUI-1)
Walk test time
Item
durationDatetime
Second attempt aborted
Item
boolean
Reason for aborted second attempt
Item
text
Item Group
Walk test - equipment
C0430517 (UMLS CUI-1)
C0029352 (UMLS CUI-2)
Joint, ankle, external brace
Item
boolean
C0492140 (UMLS CUI-1)
Item
integer
C0006856 (UMLS CUI-1)
Walking stick
Code List
Walking stick
CL Item
 (-1)
CL Item
 (0)
CL Item
 (1)
CL Item
 (2)
Item
integer
C0180199 (UMLS CUI-1)
Crutches, Forearm
Code List
Crutches, Forearm
CL Item
 (-1)
CL Item
 (0)
CL Item
 (1)
CL Item
 (2)
Rollator
Item
boolean
C0184339 (UMLS CUI-1)
More than two attempts
Item
boolean
Reason for more than 2 attempts
Item
text
Item Group
Nine hole peg test
C0451335 (UMLS CUI-1)
Nine hole peg test performed
Item
boolean
C0451335 (UMLS CUI-1)
C0884358 (UMLS CUI-2)
Item
integer
C0449722 (UMLS CUI-1)
Dominant hand
Code List
Dominant hand
CL Item
 (1)
CL Item
 (2)
First attempt dominant hand
Item
durationDatetime
First attempt aborted
Item
boolean
Reason for aborted attempt
Item
text
Second attempt dominant hand
Item
boolean
Second attempt dominant hand
Item
durationDatetime
Second attempt aborted
Item
boolean
Reason for aborted attempt
Item
text
More than two attempts
Item
boolean
Reason for more than 2 attempts
Item
text
First attempt non-dominant hand
Item
durationDatetime
First attempt non-dominant hand aborted
Item
boolean
Reason for aborted first attempt
Item
text
Second attempt non-dominant hand
Item
boolean
Second attempt non-dominant hand
Item
durationDatetime
Second attempt aborted
Item
boolean
Reason for aborted second attempt
Item
text
More than two attempts
Item
boolean
Reason for more than 2 attempts
Item
text
Item Group
Paced Auditory Serial Addition Test
C0589060 (UMLS CUI-1)
PASAT 3 performed
Item
boolean
C0589060 (UMLS CUI-1)
C0884358 (UMLS CUI-2)
PASAT 3 number of correct answers
Item
integer
PASAT 3 aborted
Item
boolean
Reason for aborted attempt
Item
text
PASAT 3 second attempt
Item
boolean
PASAT 3 number of correct answers (second attempt)
Item
integer
PASAT 3 aborted
Item
boolean
Reason for aborted attempt
Item
text
Item Group
Distance of walking limitation
C2197730 (UMLS CUI-1)
Distance of walking limitation
Item
boolean
C2197730 (UMLS CUI-1)
Item
integer
C0087111 (UMLS CUI-1)
Therapy walking limitation
Code List
Therapy
CL Item
 (-1)
CL Item
 (0)
CL Item
 (1)
CL Item
 (2)
CL Item
 (3)
Ergotherapy
Item
boolean
C1141969 (UMLS CUI-1)
Physical therapy
Item
boolean
C0949766 (UMLS CUI-1)
Psychotherapy
Item
boolean
C0033968 (UMLS CUI-1)
Mobility aid
Item
boolean
C1283234 (UMLS CUI-1)
Item Group
Spasticity
C0026838 (UMLS CUI-1)
Spasticity
Item
boolean
C0026838 (UMLS CUI-1)
Item
integer
C0087111 (UMLS CUI-1)
Therapy
Code List
Therapy
CL Item
 (-1)
CL Item
 (0)
CL Item
 (1)
CL Item
 (2)
CL Item
 (3)
Ergotherapy
Item
boolean
C1141969 (UMLS CUI-1)
Physical therapy
Item
boolean
C0949766 (UMLS CUI-1)
Mobility aid
Item
boolean
C1283234 (UMLS CUI-1)
Item Group
Ataxia / Tremor
C0004134 (UMLS CUI-1)
C0040822 (UMLS CUI-2)
Ataxia / Tremor
Item
boolean
C0004134 (UMLS CUI-1)
C0040822 (UMLS CUI-2)
Item
integer
C0087111 (UMLS CUI-1)
Therapy
Code List
Therapy
CL Item
 (-1)
CL Item
 (0)
CL Item
 (1)
CL Item
 (2)
CL Item
 (3)
Ergotherapy
Item
boolean
C1141969 (UMLS CUI-1)
Physical therapy
Item
boolean
C0949766 (UMLS CUI-1)
Mobility aid
Item
boolean
C1283234 (UMLS CUI-1)
Item Group
Fatigue
C0015672 (UMLS CUI-1)
Fatigue
Item
boolean
C0015672 (UMLS CUI-1)
Item
integer
C0087111 (UMLS CUI-1)
Therapy
Code List
Therapy
CL Item
 (-1)
CL Item
 (0)
CL Item
 (1)
CL Item
 (2)
CL Item
 (3)
Ergotherapy
Item
boolean
C1141969 (UMLS CUI-1)
Physical therapy
Item
boolean
C0949766 (UMLS CUI-1)
Psychotherapy
Item
boolean
C0033968 (UMLS CUI-1)
Mobility aid
Item
boolean
C1283234 (UMLS CUI-1)
Item Group
Pain
C0030193 (UMLS CUI-1)
Pain
Item
boolean
C0030193 (UMLS CUI-1)
Item
integer
C0087111 (UMLS CUI-1)
Therapy
Code List
Therapy
CL Item
 (-1)
CL Item
 (0)
CL Item
 (1)
CL Item
 (2)
CL Item
 (3)
Ergotherapy
Item
boolean
C1141969 (UMLS CUI-1)
Physical therapy
Item
boolean
C0949766 (UMLS CUI-1)
Psychotherapy
Item
boolean
C0033968 (UMLS CUI-1)
Mobility aid
Item
boolean
C1283234 (UMLS CUI-1)
Item Group
Urination Disorders
C0042035 (UMLS CUI-1)
Urination Disorder
Item
boolean
C0042035 (UMLS CUI-1)
Item
integer
C0087111 (UMLS CUI-1)
Therapy
Code List
Therapy
CL Item
 (-1)
CL Item
 (0)
CL Item
 (1)
CL Item
 (2)
CL Item
 (3)
Physical therapy
Item
boolean
C0949766 (UMLS CUI-1)
Psychotherapy
Item
boolean
C0033968 (UMLS CUI-1)
Mobility aid
Item
boolean
C1283234 (UMLS CUI-1)
Item Group
Abnormal defecation
C0232698 (UMLS CUI-1)
Abnormal defecation
Item
boolean
C0232698 (UMLS CUI-1)
Item
integer
C0087111 (UMLS CUI-1)
Therapy
Code List
Therapy
CL Item
 (-1)
CL Item
 (0)
CL Item
 (1)
CL Item
 (2)
CL Item
 (3)
Physical therapy
Item
boolean
C0949766 (UMLS CUI-1)
Psychotherapy
Item
boolean
C0033968 (UMLS CUI-1)
Mobility aid
Item
boolean
C1283234 (UMLS CUI-1)
Item Group
Sexual Dysfunction
C0549622 (UMLS CUI-1)
Sexual Dysfunction
Item
boolean
C0549622 (UMLS CUI-1)
Item
integer
C0087111 (UMLS CUI-1)
Therapy
Code List
Therapy
CL Item
 (-1)
CL Item
 (0)
CL Item
 (1)
CL Item
 (2)
CL Item
 (3)
Physical therapy
Item
boolean
C0949766 (UMLS CUI-1)
Psychotherapy
Item
boolean
C0033968 (UMLS CUI-1)
Mobility aid
Item
boolean
C1283234 (UMLS CUI-1)
Item Group
C0009241 (UMLS CUI-1)
Cognition Disorders
Item
boolean
C0009241 (UMLS CUI-1)
Item
integer
C0087111 (UMLS CUI-1)
Therapy
Code List
Therapy
CL Item
 (-1)
CL Item
 (0)
CL Item
 (1)
CL Item
 (2)
CL Item
 (3)
Ergotherapy
Item
boolean
C1141969 (UMLS CUI-1)
Speech Therapy
Item
boolean
C0037831 (UMLS CUI-1)
Physical therapy
Item
boolean
C0949766 (UMLS CUI-1)
Psychotherapy
Item
boolean
C0033968 (UMLS CUI-1)
Mobility aid
Item
boolean
C1283234 (UMLS CUI-1)
Item Group
C0011581 (UMLS CUI-1)
Depression
Item
boolean
C0011581 (UMLS CUI-1)
Item
integer
C0087111 (UMLS CUI-1)
Therapy
Code List
Therapy
CL Item
 (-1)
CL Item
 (0)
CL Item
 (1)
CL Item
 (2)
CL Item
 (3)
Ergotherapy
Item
boolean
C1141969 (UMLS CUI-1)
Physical therapy
Item
boolean
C0949766 (UMLS CUI-1)
Psychotherapy
Item
boolean
C0033968 (UMLS CUI-1)
Mobility aid
Item
boolean
C1283234 (UMLS CUI-1)
Item Group
C1298743 (UMLS CUI-1)
Disorder of oculomotor system
Item
boolean
C1298743 (UMLS CUI-1)
Item
integer
C0087111 (UMLS CUI-1)
Therapy
Code List
Therapy
CL Item
 (-1)
CL Item
 (0)
CL Item
 (1)
CL Item
 (2)
CL Item
 (3)
Ergotherapy
Item
boolean
C1141969 (UMLS CUI-1)
Speech Therapy
Item
boolean
C0037831 (UMLS CUI-1)
Physical therapy
Item
boolean
C0949766 (UMLS CUI-1)
Mobility aid
Item
boolean
C1283234 (UMLS CUI-1)
Item Group
C0013362 (UMLS CUI-1)
C1527344 (UMLS CUI-2)
Dysarthria / Dysphonia
Item
boolean
C0013362 (UMLS CUI-1)
C1527344 (UMLS CUI-2)
Item
integer
C0087111 (UMLS CUI-1)
Therapy
Code List
Therapy
CL Item
 (-1)
CL Item
 (0)
CL Item
 (1)
CL Item
 (2)
CL Item
 (3)
Ergotherapy
Item
boolean
C1141969 (UMLS CUI-1)
Speech Therapy
Item
boolean
C0037831 (UMLS CUI-1)
Physical therapy
Item
boolean
C0949766 (UMLS CUI-1)
Mobility aid
Item
boolean
C1283234 (UMLS CUI-1)
Item Group
C0011168 (UMLS CUI-1)
Dysphagia
Item
boolean
C0011168 (UMLS CUI-1)
Item
integer
C0087111 (UMLS CUI-1)
Therapy
Code List
Therapy
CL Item
 (-1)
CL Item
 (0)
CL Item
 (1)
CL Item
 (2)
CL Item
 (3)
Ergotherapy
Item
boolean
C1141969 (UMLS CUI-1)
Speech Therapy
Item
boolean
C0037831 (UMLS CUI-1)
Mobility aid
Item
boolean
C1283234 (UMLS CUI-1)
Item Group
C0014544 (UMLS CUI-1)
C0036572 (UMLS CUI-2)
Epileptic seizures
Item
boolean
C0014544 (UMLS CUI-1)
C0036572 (UMLS CUI-2)
Item
integer
C0087111 (UMLS CUI-1)
Therapy
Code List
Therapy
CL Item
 (-1)
CL Item
 (0)
CL Item
 (1)
CL Item
 (2)
CL Item
 (3)
Physical therapy
Item
boolean
C0949766 (UMLS CUI-1)
Psychotherapy
Item
boolean
C0033968 (UMLS CUI-1)
Mobility aid
Item
boolean
C1283234 (UMLS CUI-1)
Other paroxysms
Item
boolean
Item
integer
C0087111 (UMLS CUI-1)
Therapy
Code List
Therapy
CL Item
 (-1)
CL Item
 (0)
CL Item
 (1)
CL Item
 (2)
CL Item
 (3)
Ergotherapy
Item
boolean
C1141969 (UMLS CUI-1)
Speech Therapy
Item
boolean
C0037831 (UMLS CUI-1)
Physical therapy
Item
boolean
C0949766 (UMLS CUI-1)
Psychotherapy
Item
boolean
C0033968 (UMLS CUI-1)
Mobility aid
Item
boolean
C1283234 (UMLS CUI-1)
Item Group
C0279021 (UMLS CUI-1)
Immune-modulator therapy
Item
boolean
C0279021 (UMLS CUI-1)
Item Group
C2733802 (UMLS CUI-1)
Family care
Item
boolean
C1960163 (UMLS CUI-1)
Ambulatory care
Item
boolean
C0002423 (UMLS CUI-1)
Day Care
Item
boolean
C0011017 (UMLS CUI-1)
Short-term care
Item
boolean
C0582452 (UMLS CUI-1)
Long-Term Care Nursing
Item
boolean
C1517936 (UMLS CUI-1)
Item Group
C1283234 (UMLS CUI-1)
Walker
Item
boolean
C0043016 (UMLS CUI-1)
Bathtub rails
Item
boolean
C0182648 (UMLS CUI-1)
Wheelchair
Item
boolean
C0043143 (UMLS CUI-1)
Rollator
Item
boolean
C0184339 (UMLS CUI-1)
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