Quality assurance Follow-up Liver Transplant (AQUA)

Name
Type
Description | Question | Decode (Coded Value)
Data type
Alias
Item Group
Follow-up(to be filled out after 1, 2 and 3 years)
Institutionskennzeichen
Item
Health Insurance Identifier
integer
C2986045 (UMLS CUI [1])
Entlassender Standort
Item
Zip Code of Discharge
text
C1521842 (UMLS CUI-1)
Betriebsstätten-Nummer
Item
Facility's Section Identifier
text
C1547540 (UMLS CUI-1)
Item
Medical specialty
integer
C0037778 (UMLS CUI-1)
Code List
Medical specialty
CL Item
internal medicine (0100)
CL Item
internal medicine: geriatrics (0102)
CL Item
internal medicine: cardiology (0103)
CL Item
internal medicine: nephrology (0104)
CL Item
internal medicine: hematology and internal oncology  (0105)
CL Item
internal medicine: endocrinology (0106)
CL Item
internal medicine: gastroenterology  (0107)
CL Item
internal medicine: pneumonology (0108)
CL Item
internal medicine: rheumatology (0109)
CL Item
internal medicine: pulmonology (0114)
CL Item
internal medicine: tumor research (0150)
CL Item
internal medicine: coloproctology (0151)
CL Item
internal medicine: infectiology (0152)
CL Item
internal medicine: diabetes (0153)
CL Item
internal medicine: naturopathy (0154)
CL Item
internal medicine: stroke unit (0156)
CL Item
internal medicine (0190)
CL Item
geriatry (0200)
CL Item
geriatry: gynecology  (0224)
CL Item
geriatry: day unit (for semi-residential care)  (0260)
CL Item
geriaty: night unit (for semi-residential care) (0261)
CL Item
geriatry (0290)
CL Item
cardiology (0300)
CL Item
nephrology (0400)
CL Item
nephrology: pediatrics (0410)
CL Item
nephrology: intensive care (0436)
CL Item
nephrology (0490)
CL Item
hematology and internal oncology  (0500)
CL Item
hematology and internal oncology: pediatrics (0510)
CL Item
hematology and internal oncology: gynacology (0524)
CL Item
hematology and internal oncology: radiation therapy (0533)
CL Item
hematology and internal oncology  (0590)
CL Item
endocrinology (0600)
CL Item
endicrinology: gastroenterology (0607)
CL Item
endocrinology: pediatrics (0610)
CL Item
endocrinology (0690)
CL Item
gastroenterology (0700)
CL Item
gastroenterology: endocrinology (0706)
CL Item
gastroenterology: pediatrics (0710)
CL Item
gastroenterology (0790)
CL Item
pneumology (0800)
CL Item
rheumatology (0900)
CL Item
rheumatology: pediatrics (0910)
CL Item
rheumatology (0990)
CL Item
pediatrics (1000)
CL Item
pediatrics: nephrology (1004)
CL Item
pediatrics: hematology and internal oncology  (1005)
CL Item
pediatrics: endocrinology (1006)
CL Item
pediatrics: gastroenterology (1007)
CL Item
pediatrics: rheumatology (1009)
CL Item
pediatrics: pediatric cardiology (1011)
CL Item
pediatrics: nephrology (1012)
CL Item
pediatrics: pulmonology (1014)
CL Item
pediatrics: pediatric neurology (1028)
CL Item
pediatrics: perinatal medicine (1050)
CL Item
continuing care for children (1051)
CL Item
pediatrics (1090)
CL Item
pediatric cardiology (1100)
CL Item
pediatric cardiology: intensive care (1136)
CL Item
pediatric cardiology (1190)
CL Item
neonatology (1200)
CL Item
pediatric surgery (1300)
CL Item
pulmonology (1400)
CL Item
pulmonology: pediatrics (1410)
CL Item
pulmonology (1490)
CL Item
general surgery (1500)
CL Item
general surgery: pediatric surgery (1513)
CL Item
general surgery: trauma surgery (1516)
CL Item
general surgery: vascular surgery (1518)
CL Item
general surgery: plastic surgery (1519)
CL Item
general surgery: thoracic surgery (1520)
CL Item
general surgery: orthopedics (1523)
CL Item
general surgery: intensive care (1536)
CL Item
general surgery: abdominal- and vascular surgery (1550)
CL Item
Allgemeine Chirurgie: hand surgery (1551)
CL Item
general surgery (1590)
CL Item
trauma surgery (1600)
CL Item
neurosurgery (1700)
CL Item
vascular surgery (1800)
CL Item
plastic surgery (1900)
CL Item
thoracic surgery (2000)
CL Item
thoracic surgery: cardiac surgery (2021)
CL Item
thoracic surgery: intensive care (2036)
CL Item
thoracic surgery: cardiac surgery intensive care (2050)
CL Item
thoracic surgery (2090)
CL Item
cardiac surgery (2100)
CL Item
cardiac surgery: vascular surgery (2118)
CL Item
cardiac surgery: thoracic surgery (2120)
CL Item
cardiac surgery: intensive care (2136)
CL Item
cardiac surgery: thoracic surgery and intensive care (2150)
CL Item
cardiac surgery (2190)
CL Item
urology (2200)
CL Item
orthopedics (2300)
CL Item
orthopedics: rheumatology (2309)
CL Item
orthopedics: surgery (2315)
CL Item
orthopedics and trauma surgery (2316)
CL Item
orthopedics (2390)
CL Item
gynecology and obstetrics (2400)
CL Item
gynecology: geriatry (2402)
CL Item
gynecology: hematology and internal oncology  (2405)
CL Item
gynecology: endocrinology (2406)
CL Item
gynecology (2425)
CL Item
gynecology and obstetrics (2490)
CL Item
obstetrics (2500)
CL Item
otolaryngology (2600)
CL Item
ophthalmology (2700)
CL Item
neurology: (2800)
CL Item
neurology: pediatrics (2810)
CL Item
neurology: stroke units (2856)
CL Item
neurology (2890)
CL Item
general psychiatry: (2900)
CL Item
general psychiatry: neurology (2928)
CL Item
general psychiatry: child and adolescent psychiatry (2930)
CL Item
general psychiatry: psychosomatics and psychotherapy (2931)
CL Item
general psychiatry: addiction treatment (2950)
CL Item
general psychiatry: geropsychiatry (2951)
CL Item
general psychiatry: forensic treatment (2952)
CL Item
general psychiatry: addiction treatment (day unit) (2953)
CL Item
general psychiatry: addiction treatment (night unit) (2954)
CL Item
general psychiatry: geropsychiatry (day unit) (2955)
CL Item
general psychiatry: geropsychiatry (night unit) (2956)
CL Item
general psychiatry: day unit (for semi-residential care) (2960)
CL Item
general psychiatry: night unit (for semi-residential care) (2961)
CL Item
general psychiatry (2990)
CL Item
child and adolescent psychiatry (3000)
CL Item
child and adolescent psychiatry: day unit (for semi-residential care) (3060)
CL Item
child and adolescent psychiatry: night unit (for semi-residential care) (3061)
CL Item
child and adolescent psychiatry (3090)
CL Item
psychosomatic/psychotherapy (3100)
CL Item
psychosomatic/psychotherapy: child and adolescent psychiatry (3110)
CL Item
psychosomatic/psychotherapy: day unit (for semi-residential care) (3160)
CL Item
psychosomatic/psychotherapy: night unit (for semi-residential care) (3161)
CL Item
psychosomatic/psychotherapy (3190)
CL Item
nuclear medicine (3200)
CL Item
nuclear medicine: radiation therapy (3233)
CL Item
nuclear medicine (3290)
CL Item
radiation therapy (3300)
CL Item
radiation therapy: hematology and internal oncology  (3305)
CL Item
radiation therapy: radiology (3350)
CL Item
radiation therapy (3390)
CL Item
dermatology (3400)
CL Item
dermatology: day unit (for semi-residential care) (3460)
CL Item
dermatology (3490)
CL Item
dentistry, orthodontics, maxillofacial surgery (3500)
CL Item
intensive-care medicine (3600)
CL Item
intensive-care medicine: internal medicine (3601)
CL Item
intensive-care medicine: cardiology (3603)
CL Item
intensive-care medicine: pediatrics (3610)
CL Item
intensive-care medicine: neurosurgery (3617)
CL Item
intensive-care medicine: surgery (3618)
CL Item
intensive-care medicine: cardiac surgery (3621)
CL Item
intensive-care medicine: urology (3622)
CL Item
intensive-care medicine: gynecology and obstetrics (3624)
CL Item
intensive-care medicine: otolaryngology  (3626)
CL Item
intensive-care medicine: neurology (3628)
CL Item
operative intensive-care medicine: surgery (3650)
CL Item
intensive-care medicine: thorax-heart surgery (3651)
CL Item
intensive-care medicine: heart-thorax surgery (3652)
CL Item
intensive-care medicine (3690)
CL Item
other medical specialty (3700)
CL Item
angiology (3750)
CL Item
radiology (3751)
CL Item
palliative care (3752)
CL Item
pain therapy (3753)
CL Item
section for alternative health practice (3754)
CL Item
spinal surgery (3755)
CL Item
addiction medicine (3756)
CL Item
visceral surgery (3757)
CL Item
other medical specialty (3790)
Empfänger ID
Item
Recipient ID (ET-Number)
text
m (UMLS CUI-1)
Geburtsdatum
Item
Date of Birth (dd.mm.yyyy)
date
C0421451 (UMLS CUI-1)
Item
Gender
integer
C0079399 (UMLS CUI-1)
Code List
Gender
CL Item
male (1)
CL Item
female (2)
Datum der letzten Transplantation
Item
Date of last transplant (dd.mm.yyyy)
date
C3262243 (UMLS CUI-1)
Datum der Follow-up-Erhebung
Item
Date of Follow-up examination (dd.mm.yyyy)
date
C3694716 (UMLS CUI-1)
Item
Type of follow-up inquiry
integer
C1710508 (UMLS CUI-1)
Code List
Type of follow-up inquiry
CL Item
patient was personally in hospital (1)
CL Item
telephone contact with patient  (2)
CL Item
telephone contact with doctor further treatment (3)
CL Item
written information from the doctor further treatment (4)
CL Item
information about relatives/carers of patients  (5)
CL Item
no contact with patient, doctor further treatment or relatives/carers of patients (6)
Follow-up: Jahr(e) nach Transplantation
Item
Follow-up: Years after living donor transplant: ((1, 2, 3))
text
Item Group
Survival status of recipient
Item
Deceased patient
integer
C1306577 (UMLS CUI-1)
Code List
Deceased patient
CL Item
no (0)
CL Item
yes (1)
CL Item
unknown or follow-up not possible (9)
Todesdatum
Item
Date of death (dd.mm.yyyy)
date
C1148348 (UMLS CUI-1)
Item
Cause of death
integer
C0007465 (UMLS CUI-1)
Code List
Cause of death
CL Item
Intraoperative death (death on table) (A1)
CL Item
Infection-Bacterial infection (B1)
CL Item
Infection-Viral infection (B2)
CL Item
Infection-HIV (B3)
CL Item
Infection-Fungal infection (B4)
CL Item
Infection-Parasitic infection (B5)
CL Item
Infection-Other known infect (B6)
CL Item
Liver complications-Acute rejection (C1)
CL Item
Liv complic-Recurrence of original dis (C10)
CL Item
Liv complic-Recurrence of original dis (C11)
CL Item
Liv complic-Recurrence of original dis (C12)
CL Item
Liv complic-Recurrence of original dis (C13)
CL Item
Liv complic-Recurrence of original dis (C14)
CL Item
Liv complic-Recurrence of original dis (C15)
CL Item
Liv complic-Recurrence of original dis (C16)
CL Item
Liv complic-Recur of orig dis (C17)
CL Item
Liver complic-De novo hepatitis B virus (C18)
CL Item
Liver complications-De novo hepatitis C virus (C19)
CL Item
Liver complications-Chronic rejection (C2)
CL Item
Liver complications-De novo hepatitis D virus (C20)
CL Item
Liver complic-Massive hemorrhagic necrosis (C21)
CL Item
Liver complications-Other viral hepatitis (C22)
CL Item
Liver complications-Infection (C23)
CL Item
Liver complications-Other (C24)
CL Item
Liver complications-Arterial thrombosis (C3)
CL Item
Liver complic-Hepatic vein thrombosis (C4)
CL Item
Liver complic-Primary N-function (Retx or death < (C5)
CL Item
Liv complic-Primary dysfunction (Retx or death > 7d) (C6)
CL Item
Liver complic-Anastomotic biliary complic (C7)
CL Item
Liver complic-Non anastomotic biliary complic (C8)
CL Item
Liver complic-Recurrence of original dis (C9)
CL Item
Gastrointestinal complications-GI haemorrhage (D1)
CL Item
Gastrointestinal complications-Pancreatitis (D2)
CL Item
Gastrointestinal complic-Visceral perforation (D3)
CL Item
Gastrointestinal complications-Other (D4)
CL Item
Cardiovascular complications-Myocardial infarction (E1)
CL Item
Cardiovascular complications-Other cause (E2)
CL Item
Cerebrovascular complications-Intracranial haemorrhage (F1)
CL Item
Cerebrovascular complications-Ischemic stroke (F2)
CL Item
Cerebrovascular complications-Cerebral oedema (F3)
CL Item
Cerebrovascular complications-Cerebral infection (F4)
CL Item
Tumor-Recurrence of original tumor (G1)
CL Item
Tumor-Recurrence of previously unrelated tumor (G2)
CL Item
Tumor-De novo solid organ tumor (G3)
CL Item
Tumor-Donor transmitted tumor (G4)
CL Item
Tumor-Lympho proliferation disease (G5)
CL Item
Kidney failure (H1)
CL Item
Urinary tract infection (H2)
CL Item
Pulmonary complications-Embolism (I1)
CL Item
Pulmonary complications-Infection (I2)
CL Item
Social complic-Non compliance immunosup therapy (J1)
CL Item
Social complications-Suicide (J2)
CL Item
Social complications-Trauma (Motor, Vehicle,..) (J3)
CL Item
Bone marrow depression (K1)
CL Item
Other cause (L1)
CL Item
Not available (M1)
HCC vor Transplantation
Item
Hepatocellular carcinoma (HCC) before transplantation
boolean
C2239176 (UMLS CUI-1)
Item
recurrent HCC
integer
C0854794 (UMLS CUI-1)
Code List
recurrent HCC
CL Item
no (0)
CL Item
yes (1)
CL Item
unknown (9)

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