ID

5432

Description

Genetische und immunologische Charakterisierung der schweren aplastischen Anaemie (SAA) bei Kindern und Jugendlichen (EWOG-SAA) http://ewog-mds.org/

Link

http://ewog-mds.org/

Keywords

  1. 8/6/14 8/6/14 - Martin Dugas
Uploaded on

August 6, 2014

DOI

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License

Creative Commons BY-NC 3.0 Legacy

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EWOG SAA Clinical features at diagnosis

Clinical features at diagnosis

Show identification of patient
Description

Show identification of patient

Dummy
Description

Dummy

Data type

text

Clinical features
Description

Clinical features

Body weight at diagnosis
Description

Body weight at diagnosis

Data type

float

Measurement units
  • kg
kg
Height at diagnosis
Description

Height at diagnosis

Data type

integer

Measurement units
  • cm
cm
Head circumference at diagnosis
Description

Head circumference at diagnosis

Data type

integer

Measurement units
  • cm
cm
Active Infection
Description

Active Infection

Data type

integer

Hepatitis
Description

Hepatitis

Data type

integer

Previous liver transplantation
Description

Previous liver transplantation

Data type

integer

Date of liver transplantation
Description

Date of liver transplantation

Data type

date

Respiratory tract symptoms
Description

Respiratory tract symptoms

Data type

integer

Bleeding
Description

Bleeding

Data type

integer

Other symptoms
Description

Other symptoms

Data type

integer

Hepatitis
Description

Hepatitis

Date of diagnosis of hepatitis
Description

Date of diagnosis of hepatitis

Data type

date

Virus
Description

Virus

Data type

integer

Other type of virus
Description

Other type of virus

Data type

text

Respiratory symptoms
Description

Respiratory symptoms

Respiratory tract symptoms
Description

Respiratory tract symptoms

Data type

integer

Bleeding site
Description

Bleeding site

Bleeding site
Description

Bleeding site

Data type

integer

Other bleeding site
Description

Other bleeding site

Data type

text

Type of other symptoms
Description

Type of other symptoms

Type of other symptoms
Description

Type of symptoms

Data type

text

Organ dysfunction
Description

Organ dysfunction

Skeletal
Description

Skeletal

Data type

integer

Type
Description

Type

Data type

text

CTCAE grade
Description

CTCAE grade

Data type

integer

Severe cardio-vascular complications
Description

Cardiac / circulatory

Data type

integer

Type
Description

Type

Data type

text

CTCAE grade
Description

CTCAE grade

Data type

integer

Gastro-intestinal
Description

Gastro-intestinal

Data type

integer

Type
Description

Type

Data type

text

CTCAE grade
Description

CTCAE grade

Data type

integer

Hepatic
Description

Hepatic

Data type

integer

Type
Description

Type

Data type

text

CTCAE grade
Description

CTCAE grade

Data type

integer

Metabolic
Description

Metabolic

Data type

integer

Type
Description

Type

Data type

text

CTCAE grade
Description

CTCAE grade

Data type

integer

CNS
Description

CNS

Data type

integer

Type
Description

Type

Data type

text

CTCAE grade
Description

CTCAE grade

Data type

integer

Urogenital tract
Description

Urogenital tract

Data type

integer

Type
Description

Type

Data type

text

CTCAE grade
Description

CTCAE grade

Data type

integer

Skin
Description

Skin

Data type

integer

Type
Description

Type

Data type

text

CTCAE grade
Description

CTCAE grade

Data type

integer

Other type of dysfunction
Description

Other type of dysfunction

Data type

integer

Type
Description

Type

Data type

text

CTCAE grade
Description

CTCAE grade

Data type

integer

Similar models

Clinical features at diagnosis

Name
Type
Description | Question | Decode (Coded Value)
Data type
Alias
Dummy
Item
Dummy
text
Body weight at diagnosis
Item
Body weight at diagnosis
float
Height at diagnosis
Item
Height at diagnosis
integer
Head circumference at diagnosis
Item
Head circumference at diagnosis
integer
Item
Active Infection
integer
Code List
Active Infection
CL Item
No (1)
CL Item
Yes (2)
Item
Hepatitis
integer
Code List
Hepatitis
CL Item
No (1)
CL Item
Yes (2)
Item
Previous liver transplantation
integer
Code List
Previous liver transplantation
CL Item
No (1)
CL Item
Yes (2)
Date of liver transplantation
Item
Date of liver transplantation
date
Item
Respiratory tract symptoms
integer
Code List
Respiratory tract symptoms
CL Item
No (1)
CL Item
Yes (2)
Item
Bleeding
integer
Code List
Bleeding
CL Item
No (1)
CL Item
Yes (2)
Item
Other symptoms
integer
Code List
Other symptoms
CL Item
No (1)
CL Item
Yes (2)
Item Group
Date of diagnosis of hepatitis
Item
Date of diagnosis of hepatitis
date
Item
Virus
integer
Code List
Virus
CL Item
A (1)
CL Item
B (2)
CL Item
C (3)
CL Item
Other (99)
Other type of virus
Item
Other type of virus
text
Item
Respiratory tract symptoms
integer
Code List
Respiratory tract symptoms
CL Item
No (1)
CL Item
Yes (2)
Item Group
Item
Bleeding site
integer
Code List
Bleeding site
CL Item
Mucosal (1)
CL Item
Intracranial (2)
CL Item
Both (mucosal and Intracranial) (3)
CL Item
Skin (petechia/hematoma) (4)
CL Item
Other (99)
Other bleeding site
Item
Other bleeding site
text
Type of symptoms
Item
Type of other symptoms
text
Item
Skeletal
integer
Code List
Skeletal
CL Item
No (1)
CL Item
Yes (2)
Type
Item
Type
text
Item
CTCAE grade
integer
Code List
CTCAE grade
CL Item
CTCAE grade 1 (1)
CL Item
CTCAE grade 2 (2)
CL Item
CTCAE grade 3 (3)
CL Item
CTCAE grade 4 (4)
Item
Severe cardio-vascular complications
integer
Code List
Severe cardio-vascular complications
CL Item
No (1)
CL Item
Yes (2)
Type
Item
Type
text
Item
CTCAE grade
integer
Code List
CTCAE grade
CL Item
CTCAE grade 1 (1)
CL Item
CTCAE grade 2 (2)
CL Item
CTCAE grade 3 (3)
CL Item
CTCAE grade 4 (4)
Item
Gastro-intestinal
integer
Code List
Gastro-intestinal
CL Item
No (1)
CL Item
Yes (2)
Type
Item
Type
text
Item
CTCAE grade
integer
Code List
CTCAE grade
CL Item
CTCAE grade 1 (1)
CL Item
CTCAE grade 2 (2)
CL Item
CTCAE grade 3 (3)
CL Item
CTCAE grade 4 (4)
Item
Hepatic
integer
Code List
Hepatic
CL Item
No (1)
CL Item
Yes (2)
Type
Item
Type
text
Item
CTCAE grade
integer
Code List
CTCAE grade
CL Item
CTCAE grade 1 (1)
CL Item
CTCAE grade 2 (2)
CL Item
CTCAE grade 3 (3)
CL Item
CTCAE grade 4 (4)
Item
Metabolic
integer
Code List
Metabolic
CL Item
No (1)
CL Item
Yes (2)
Type
Item
Type
text
Item
CTCAE grade
integer
Code List
CTCAE grade
CL Item
CTCAE grade 1 (1)
CL Item
CTCAE grade 2 (2)
CL Item
CTCAE grade 3 (3)
CL Item
CTCAE grade 4 (4)
Item
CNS
integer
Code List
CNS
CL Item
No (1)
CL Item
Yes (2)
Type
Item
Type
text
Item
CTCAE grade
integer
Code List
CTCAE grade
CL Item
CTCAE grade 1 (1)
CL Item
CTCAE grade 2 (2)
CL Item
CTCAE grade 3 (3)
CL Item
CTCAE grade 4 (4)
Item
Urogenital tract
integer
Code List
Urogenital tract
CL Item
No (1)
CL Item
Yes (2)
Type
Item
Type
text
Item
CTCAE grade
integer
Code List
CTCAE grade
CL Item
CTCAE grade 1 (1)
CL Item
CTCAE grade 2 (2)
CL Item
CTCAE grade 3 (3)
CL Item
CTCAE grade 4 (4)
Item
Skin
integer
Code List
Skin
CL Item
No (1)
CL Item
Yes (2)
Type
Item
Type
text
Item
CTCAE grade
integer
Code List
CTCAE grade
CL Item
CTCAE grade 1 (1)
CL Item
CTCAE grade 2 (2)
CL Item
CTCAE grade 3 (3)
CL Item
CTCAE grade 4 (4)
Item
Other type of dysfunction
integer
Code List
Other type of dysfunction
CL Item
No (1)
CL Item
Yes (2)
Type
Item
Type
text
Item
CTCAE grade
integer
Code List
CTCAE grade
CL Item
CTCAE grade 1 (1)
CL Item
CTCAE grade 2 (2)
CL Item
CTCAE grade 3 (3)
CL Item
CTCAE grade 4 (4)

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