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ID

5398

Description

Genetische und immunologische Charakterisierung der schweren aplastischen Anaemie (SAA) bei Kindern und Jugendlichen (EWOG-SAA) http://ewog-mds.org/

Link

http://ewog-mds.org/

Keywords

  1. 8/6/14 8/6/14 - Martin Dugas
Uploaded on

August 6, 2014

DOI

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License

Creative Commons BY-NC 3.0 Legacy

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    EWOG SAA Medical history

    Medical history

    1. StudyEvent: SE
      1. Medical history
    Show identification of patient
    Description

    Show identification of patient

    Dummy
    Description

    Dummy

    Data type

    text

    Previous history
    Description

    Previous history

    Mental retardation
    Description

    Mental retardation

    Data type

    integer

    Birth weight < third percentile
    Description

    Birth weight < third percentile

    Data type

    integer

    Height < third percentile (at diagnosis)
    Description

    Height < third percentile (at diagnosis)

    Data type

    integer

    Weight < third percentile (at diagnosis)
    Description

    Weight < third percentile (at diagnosis)

    Data type

    integer

    Head circumference < third percentile (at diagnosis)
    Description

    Head circumference < third percentile (at diagnosis)

    Data type

    integer

    Clinical evidence of PNH
    Description

    Clinical evidence of PNH

    Data type

    integer

    Other abnormalities
    Description

    Other abnormalities

    Data type

    integer

    Type of other abnormalties
    Description

    Type of other abnormalties

    Type of other abnormalities
    Description

    Type of other abnormalities

    Data type

    text

    Family history
    Description

    Family history

    Parents are consanguineous
    Description

    Parents are consanguineous

    Data type

    integer

    History of malignancies in family (1° relatives)
    Description

    History of malignancies in family (1° relatives)

    Data type

    integer

    History of hemato-/immunological diseases
    Description

    History of Hemato-/ Immunological diseases

    Data type

    integer

    History of other possibly relevant diseases
    Description

    History of other possibly relevant diseases

    Data type

    integer

    Family history of malignancies
    Description

    Family history of malignancies

    Mother
    Description

    Mother

    Data type

    integer

    Father
    Description

    Father

    Data type

    integer

    Sister
    Description

    Sister

    Data type

    integer

    Brother
    Description

    Brother

    Data type

    integer

    Mother affected
    Description

    Mother affected

    Type of mother's malignancy
    Description

    Type of mother's malignancy

    Data type

    text

    Father affected
    Description

    Father affected

    Type of father's malignancy
    Description

    Type of father's malignancy

    Data type

    text

    Sister affected
    Description

    Sister affected

    Type of sister's malignancy
    Description

    Type of sister's malignancy

    Data type

    text

    Brother affected
    Description

    Brother affected

    Type of brother's malignancy
    Description

    Type of brother's malignancy

    Data type

    text

    Hemato/Immunological diseases in the family
    Description

    Hemato/Immunological diseases in the family

    Type of hemato-/immunological diseases
    Description

    Type of Hemato-/ Immunological diseases

    Data type

    text

    Type of other diseases in the family
    Description

    Type of other diseases in the family

    Type of other possibly relevant diseases
    Description

    Type of other possibly relevant diseases

    Data type

    text

    Similar models

    Medical history

    1. StudyEvent: SE
      1. Medical history
    Name
    Type
    Description | Question | Decode (Coded Value)
    Data type
    Alias
    Dummy
    Item
    Dummy
    text
    Item
    Mental retardation
    integer
    Code List
    Mental retardation
    CL Item
    No (1)
    CL Item
    Yes (2)
    Item
    Birth weight < third percentile
    integer
    Code List
    Birth weight < third percentile
    CL Item
    No (1)
    CL Item
    Yes (2)
    Item
    Height < third percentile (at diagnosis)
    integer
    Code List
    Height < third percentile (at diagnosis)
    CL Item
    No (1)
    CL Item
    Yes (2)
    Item
    Weight < third percentile (at diagnosis)
    integer
    Code List
    Weight < third percentile (at diagnosis)
    CL Item
    No (1)
    CL Item
    Yes (2)
    Item
    Head circumference < third percentile (at diagnosis)
    integer
    Code List
    Head circumference < third percentile (at diagnosis)
    CL Item
    No (1)
    CL Item
    Yes (2)
    Item
    Clinical evidence of PNH
    integer
    Code List
    Clinical evidence of PNH
    CL Item
    No (1)
    CL Item
    Yes (2)
    Item
    Other abnormalities
    integer
    Code List
    Other abnormalities
    CL Item
    No (1)
    CL Item
    Yes (2)
    Type of other abnormalities
    Item
    Type of other abnormalities
    text
    Item Group
    Item
    Parents are consanguineous
    integer
    Code List
    Parents are consanguineous
    CL Item
    No (1)
    CL Item
    Yes (2)
    Item
    History of malignancies in family (1° relatives)
    integer
    Code List
    History of malignancies in family (1° relatives)
    CL Item
    No (1)
    CL Item
    Yes (2)
    Item
    History of hemato-/immunological diseases
    integer
    Code List
    History of hemato-/immunological diseases
    CL Item
    No (1)
    CL Item
    Yes (2)
    Item
    History of other possibly relevant diseases
    integer
    Code List
    History of other possibly relevant diseases
    CL Item
    No (1)
    CL Item
    Yes (2)
    Item
    Mother
    integer
    Code List
    Mother
    CL Item
    No (1)
    CL Item
    Yes (2)
    Item
    Father
    integer
    Code List
    Father
    CL Item
    No (1)
    CL Item
    Yes (2)
    Item
    Sister
    integer
    Code List
    Sister
    CL Item
    No (1)
    CL Item
    Yes (2)
    Item
    Brother
    integer
    Code List
    Brother
    CL Item
    No (1)
    CL Item
    Yes (2)
    Type of mother's malignancy
    Item
    Type of mother's malignancy
    text
    Type of father's malignancy
    Item
    Type of father's malignancy
    text
    Type of sister's malignancy
    Item
    Type of sister's malignancy
    text
    Type of brother's malignancy
    Item
    Type of brother's malignancy
    text
    Type of Hemato-/ Immunological diseases
    Item
    Type of hemato-/immunological diseases
    text
    Type of other possibly relevant diseases
    Item
    Type of other possibly relevant diseases
    text

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