ID

5312

Beschreibung

Prospective non–randomized multi​center study for epidemiology and characterization of Myelodysplastic Syndromes(MDS) and Juvenile Myelomonocytic Leukemia (JMML) in child­hood. PI: Prof. Dr. Charlotte Niemeyer http://clinicaltrials.gov/ct2/show/NCT00662090 http://www.ewog-mds.org/

Link

http://clinicaltrials.gov/ct2/show/NCT00662090

Stichworte

  1. 05.08.14 05.08.14 - Martin Dugas
  2. 05.08.14 05.08.14 - Martin Dugas
Hochgeladen am

5. August 2014

DOI

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Lizenz

Creative Commons BY 4.0

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EWOG MDS 2006 Previous history DRKS00003789

Previous history

  1. StudyEvent: SE
    1. Previous history
Show identification of patient
Beschreibung

Show identification of patient

Dummy
Beschreibung

Dummy

Datentyp

text

Previous history
Beschreibung

Previous history

Xanthoma
Beschreibung

Xanthoma

Datentyp

integer

Café-au-lait spots
Beschreibung

Café-au-lait spots

Datentyp

integer

Other symptoms of NF1
Beschreibung

Other symptoms of NF1

Datentyp

integer

1° relatives with NF1
Beschreibung

1° relatives with NF1

Datentyp

integer

Previous congenital bone marrow failure disorder
Beschreibung

Previous congenital bone marrow failure disorder

Datentyp

integer

Previous acquired bone marrow failure disorder
Beschreibung

Previous acquired bone marrow failure disorder

Datentyp

integer

Previous malignancy
Beschreibung

Previous malignancy

Datentyp

integer

Previous chemo-radiotherapy (CT and/or RT)
Beschreibung

Previous chemo-radiotherapy (CT and/or RT)

Datentyp

integer

Mental retardation
Beschreibung

Mental retardation

Datentyp

integer

Birth weight < third percentile
Beschreibung

Birth weight < third percentile

Datentyp

integer

Height < third percentile (at diagnosis)
Beschreibung

Height < third percentile (at diagnosis)

Datentyp

integer

Weight < third percentile (at diagnosis)
Beschreibung

Weight < third percentile (at diagnosis)

Datentyp

integer

Head circumference < third percentile (at diagnosis)
Beschreibung

Head circumference < third percentile (at diagnosis)

Datentyp

integer

Clinical evidence of PNH
Beschreibung

Clinical evidence of PNH

Datentyp

integer

Hepatitis/Hepatopathy
Beschreibung

Hepatitis/Hepatopathy

Datentyp

integer

Patient is twin
Beschreibung

Patient is twin

Datentyp

integer

Congenital abnormalities
Beschreibung

Congenital abnormalities

Datentyp

integer

Other abnormalities
Beschreibung

Other abnormalities

Datentyp

integer

Number of cafe au lait spots
Beschreibung

Number of cafe au lait spots

Number of Café-au-lait spots
Beschreibung

Number of Café-au-lait spots

Datentyp

integer

Type of other NF1 Symptoms
Beschreibung

Type of other NF1 Symptoms

Neurofibroma of any type
Beschreibung

Neurofibromas of any type

Datentyp

integer

Plexiform neurofibroma
Beschreibung

Plexiform neurofibroma

Datentyp

integer

Freckling in the axillary or inguinal regions
Beschreibung

Freckling in the axillary or inguinal regions

Datentyp

integer

Optic glioma
Beschreibung

Optic glioma

Datentyp

integer

>= 2 Lisch nodules of the iris
Beschreibung

>= 2 Lisch nodules of the iris

Datentyp

integer

Osseous lesions associated with NF1
Beschreibung

Osseous lesions associated with NF1

Datentyp

integer

Degree of relationship of NF1 relatives
Beschreibung

Degree of relationship of NF1 relatives

Mother
Beschreibung

Mother

Datentyp

integer

Father
Beschreibung

Father

Datentyp

integer

Sister
Beschreibung

Sister

Datentyp

integer

Brother
Beschreibung

Brother

Datentyp

integer

Other relatives
Beschreibung

Other relatives

Datentyp

integer

Type of previous cBMF
Beschreibung

Type of previous cBMF

Previous congenital bone marrow failure disorder
Beschreibung

Previous congenital bone marrow failure disorder

Datentyp

integer

Other type of congenital BMF
Beschreibung

Type

Datentyp

text

Date and type of acquired BMF
Beschreibung

Date and type of acquired BMF

Date of previous aBMF
Beschreibung

Date of previous aBMF

Datentyp

date

Type of aBMF
Beschreibung

Previous acquired bone marrow failure disorder

Datentyp

integer

Other type of aBMF
Beschreibung

Previous acquired bone marrow failure disorder

Datentyp

text

Date and type of previous malignancy
Beschreibung

Date and type of previous malignancy

Date of previous malignancy
Beschreibung

Date of previous malignancy

Datentyp

date

Type of previous malignancy
Beschreibung

Type of previous malignancy

Datentyp

integer

Other type of previous malignancy
Beschreibung

Other type of previous malignancy

Datentyp

text

Type of previous chemo therapy
Beschreibung

Type of previous chemo therapy

Type of chemo therapy
Beschreibung

Type of chemo therapy

Datentyp

text

Type of radiotherapy
Beschreibung

Type of radiotherapy

Datentyp

text

Type of cong. abnormalities
Beschreibung

Type of cong. abnormalities

Type of congenital abnormalities
Beschreibung

Type of congenital abnormalities

Datentyp

text

Type of other abnormalties
Beschreibung

Type of other abnormalties

Type of other abnormalities
Beschreibung

Type of other abnormalities

Datentyp

text

Type of twin
Beschreibung

Type of twin

Type of twin
Beschreibung

Type of twin

Datentyp

integer

Family history
Beschreibung

Family history

Parents are consanguineous
Beschreibung

Parents are consanguineous

Datentyp

integer

History of malignancies in family (1° relatives)
Beschreibung

History of malignancies in family (1° relatives)

Datentyp

integer

History of hemato-/immunological diseases
Beschreibung

History of hemato-/immunological diseases

Datentyp

integer

History of other possibly relevant diseases
Beschreibung

History of other possibly relevant diseases

Datentyp

integer

Family history of malignancies
Beschreibung

Family history of malignancies

Mother
Beschreibung

Mother

Datentyp

integer

Father
Beschreibung

Father

Datentyp

integer

Sister
Beschreibung

Sister

Datentyp

integer

Brother
Beschreibung

Brother

Datentyp

integer

Mother affected
Beschreibung

Mother affected

Type of mother's malignancy
Beschreibung

Type of mother's malignancy

Datentyp

text

Father affected
Beschreibung

Father affected

Type of father's malignancy
Beschreibung

Type of father's malignancy

Datentyp

text

Sister affected
Beschreibung

Sister affected

Type of sister's malignancy
Beschreibung

Type of sister's malignancy

Datentyp

text

Brother affected
Beschreibung

Brother affected

Type of brother's malignancy
Beschreibung

Type of brother's malignancy

Datentyp

text

Hemato/Immunological diseases in the family
Beschreibung

Hemato/Immunological diseases in the family

Type of hemato-/immunological diseases
Beschreibung

Type of hemato-/immunological diseases

Datentyp

text

Type of other diseases in the family
Beschreibung

Type of other diseases in the family

Type of other possibly relevant diseases
Beschreibung

Type of other possibly relevant diseases

Datentyp

text

Ähnliche Modelle

Previous history

  1. StudyEvent: SE
    1. Previous history
Name
Typ
Description | Question | Decode (Coded Value)
Datentyp
Alias
Dummy
Item
Dummy
text
Item
Xanthoma
integer
Code List
Xanthoma
CL Item
No (1)
CL Item
Yes (2)
Item
Café-au-lait spots
integer
Code List
Café-au-lait spots
CL Item
No (1)
CL Item
Yes (2)
Item
Other symptoms of NF1
integer
Code List
Other symptoms of NF1
CL Item
No (1)
CL Item
Yes (2)
Item
1° relatives with NF1
integer
Code List
1° relatives with NF1
CL Item
No (1)
CL Item
Yes (2)
Item
Previous congenital bone marrow failure disorder
integer
Code List
Previous congenital bone marrow failure disorder
CL Item
No (1)
CL Item
Yes (2)
Item
Previous acquired bone marrow failure disorder
integer
Code List
Previous acquired bone marrow failure disorder
CL Item
No (1)
CL Item
Yes (2)
Item
Previous malignancy
integer
Code List
Previous malignancy
CL Item
No (1)
CL Item
Yes (2)
Item
Previous chemo-radiotherapy (CT and/or RT)
integer
Code List
Previous chemo-radiotherapy (CT and/or RT)
CL Item
No (1)
CL Item
Yes (2)
Item
Mental retardation
integer
Code List
Mental retardation
CL Item
No (1)
CL Item
Yes (2)
Item
Birth weight < third percentile
integer
Code List
Birth weight < third percentile
CL Item
No (1)
CL Item
Yes (2)
Item
Height < third percentile (at diagnosis)
integer
Code List
Height < third percentile (at diagnosis)
CL Item
No (1)
CL Item
Yes (2)
Item
Weight < third percentile (at diagnosis)
integer
Code List
Weight < third percentile (at diagnosis)
CL Item
No (1)
CL Item
Yes (2)
Item
Head circumference < third percentile (at diagnosis)
integer
Code List
Head circumference < third percentile (at diagnosis)
CL Item
No (1)
CL Item
Yes (2)
Item
Clinical evidence of PNH
integer
Code List
Clinical evidence of PNH
CL Item
No (1)
CL Item
Yes (2)
Item
Hepatitis/Hepatopathy
integer
Code List
Hepatitis/Hepatopathy
CL Item
No (1)
CL Item
Yes (2)
Item
Patient is twin
integer
Code List
Patient is twin
CL Item
No (1)
CL Item
Yes (2)
Item
Congenital abnormalities
integer
Code List
Congenital abnormalities
CL Item
No (1)
CL Item
Yes (2)
Item
Other abnormalities
integer
Code List
Other abnormalities
CL Item
No (1)
CL Item
Yes (2)
Item Group
Number of cafe au lait spots
Item
Number of Café-au-lait spots
integer
Code List
Number of Café-au-lait spots
CL Item
1 (1)
CL Item
2 (2)
CL Item
3 (3)
CL Item
4 (4)
CL Item
5 (5)
CL Item
6 (6)
CL Item
7 (7)
CL Item
8 (8)
CL Item
9 (9)
CL Item
> (10)
Item
Neurofibroma of any type
integer
Code List
Neurofibroma of any type
CL Item
No (1)
CL Item
Yes (2)
Item
Plexiform neurofibroma
integer
Code List
Plexiform neurofibroma
CL Item
No (1)
CL Item
Yes (2)
Item
Freckling in the axillary or inguinal regions
integer
Code List
Freckling in the axillary or inguinal regions
CL Item
No (1)
CL Item
Yes (2)
Item
Optic glioma
integer
Code List
Optic glioma
CL Item
No (1)
CL Item
Yes (2)
Item
>= 2 Lisch nodules of the iris
integer
Code List
>= 2 Lisch nodules of the iris
CL Item
No (1)
CL Item
Yes (2)
Item
Osseous lesions associated with NF1
integer
Code List
Osseous lesions associated with NF1
CL Item
No (1)
CL Item
Yes (2)
Item
Mother
integer
Code List
Mother
CL Item
No (1)
CL Item
Yes (2)
Item
Father
integer
Code List
Father
CL Item
No (1)
CL Item
Yes (2)
Item
Sister
integer
Code List
Sister
CL Item
No (1)
CL Item
Yes (2)
Item
Brother
integer
Code List
Brother
CL Item
No (1)
CL Item
Yes (2)
Item
Other relatives
integer
Code List
Other relatives
CL Item
No (1)
CL Item
Yes (2)
Item
Previous congenital bone marrow failure disorder
integer
Code List
Previous congenital bone marrow failure disorder
CL Item
Shwachman Diamond Syndrome (1)
CL Item
Severe congenital neutropenia (SCN) (2)
CL Item
Diamond Blackfan Anemia (DBA) (3)
CL Item
cong. sideroblastic anemia (4)
CL Item
Fanconi Anemia (5)
CL Item
Dyskeratosis congenita (6)
CL Item
Other (99)
Type
Item
Other type of congenital BMF
text
Date of previous aBMF
Item
Date of previous aBMF
date
Code List
Type of aBMF
CL Item
SAA (1)
CL Item
Other (99)
Previous acquired bone marrow failure disorder
Item
Other type of aBMF
text
Date of previous malignancy
Item
Date of previous malignancy
date
Item
Type of previous malignancy
integer
Code List
Type of previous malignancy
CL Item
ALL (1)
CL Item
AML (2)
CL Item
NHL (3)
CL Item
Ewing sarcoma (4)
CL Item
Medulloblastoma (5)
CL Item
Neuroblastoma (6)
CL Item
Other (99)
Other type of previous malignancy
Item
Other type of previous malignancy
text
Type of chemo therapy
Item
Type of chemo therapy
text
Type of radiotherapy
Item
Type of radiotherapy
text
Item Group
Type of cong. abnormalities
Type of congenital abnormalities
Item
Type of congenital abnormalities
text
Item Group
Type of other abnormalties
Type of other abnormalities
Item
Type of other abnormalities
text
Item Group
Item
Type of twin
integer
Code List
Type of twin
CL Item
Monozygotic (1)
CL Item
Dizygotic (2)
Item Group
Item
Parents are consanguineous
integer
Code List
Parents are consanguineous
CL Item
No (1)
CL Item
Yes (2)
Item
History of malignancies in family (1° relatives)
integer
Code List
History of malignancies in family (1° relatives)
CL Item
No (1)
CL Item
Yes (2)
Item
History of hemato-/immunological diseases
integer
Code List
History of hemato-/immunological diseases
CL Item
No (1)
CL Item
Yes (2)
Item
History of other possibly relevant diseases
integer
Code List
History of other possibly relevant diseases
CL Item
No (1)
CL Item
Yes (2)
Item
Mother
integer
Code List
Mother
CL Item
No (1)
CL Item
Yes (2)
Item
Father
integer
Code List
Father
CL Item
No (1)
CL Item
Yes (2)
Item
Sister
integer
Code List
Sister
CL Item
No (1)
CL Item
Yes (2)
Item
Brother
integer
Code List
Brother
CL Item
No (1)
CL Item
Yes (2)
Type of mother's malignancy
Item
Type of mother's malignancy
text
Type of father's malignancy
Item
Type of father's malignancy
text
Type of sister's malignancy
Item
Type of sister's malignancy
text
Type of brother's malignancy
Item
Type of brother's malignancy
text
Type of Hemato-/ Immunological diseases
Item
Type of hemato-/immunological diseases
text
Type of other possibly relevant diseases
Item
Type of other possibly relevant diseases
text

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