ID

5310

Description

Prospective non–randomized multi​center study for epidemiology and characterization of Myelodysplastic Syndromes(MDS) and Juvenile Myelomonocytic Leukemia (JMML) in child­hood. PI: Prof. Dr. Charlotte Niemeyer http://clinicaltrials.gov/ct2/show/NCT00662090 http://www.ewog-mds.org/

Link

http://clinicaltrials.gov/ct2/show/NCT00662090

Keywords

  1. 8/5/14 8/5/14 - Martin Dugas
Uploaded on

August 5, 2014

DOI

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License

Creative Commons BY 4.0

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EWOG MDS 2006 MDS basic data DRKS00003789

MDS basic data

  1. StudyEvent: SE
    1. MDS basic data
Personal data
Description

Personal data

First name
Description

First name

Data type

text

Surname
Description

Surname

Data type

text

Name at birth
Description

Name at birth

Data type

text

Initials
Description

Initials

Data type

text

Date of birth
Description

Date of birth

Data type

date

Sex
Description

Sex

Data type

integer

Documenting center
Description

Documenting center

Data type

text

Date of diagnosis
Description

Date of diagnosis

Date of diagnosis
Description

Date of diagnosis

Data type

date

MDS basic data
Description

MDS basic data

Cause for consultation
Description

Reason for consultation

Data type

integer

Date of onset
Description

Date of onset

Data type

date

MDS diagnosis
Description

MDS diagnosis

MDS diagnosis
Description

MDS diagnosis

Data type

integer

Similar models

MDS basic data

  1. StudyEvent: SE
    1. MDS basic data
Name
Type
Description | Question | Decode (Coded Value)
Data type
Alias
Item Group
First name
Item
First name
text
Surname
Item
Surname
text
Name at birth
Item
Name at birth
text
Initials
Item
Initials
text
Date of birth
Item
Date of birth
date
Item
Sex
integer
Code List
Sex
CL Item
Male (1)
CL Item
Female (2)
Documenting center
Item
Documenting center
text
Date of diagnosis
Item
Date of diagnosis
date
Item Group
Item
Cause for consultation
integer
Code List
Cause for consultation
CL Item
Disease symptoms (1)
CL Item
Medical check-up (2)
CL Item
Accidental finding (3)
Date of onset
Item
Date of onset
date
Item Group
Item
MDS diagnosis
integer
Code List
MDS diagnosis
CL Item
RC (41)
CL Item
RARS (42)
CL Item
RAEB (43)
CL Item
RAEB-T (44)
CL Item
MDR-AML (40)
CL Item
JMML (45)
CL Item
CMML (46)
CL Item
Noonan Syn. + JMML like picture (47)
CL Item
Hypereosinophilic syndrome (50)
CL Item
Myelofibrotic MDS (60)
CL Item
MDS, unclassified (99)

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