ID

5309

Description

Prospective non–randomized multi​center study for epidemiology and characterization of Myelodysplastic Syndromes(MDS) and Juvenile Myelomonocytic Leukemia (JMML) in child­hood. PI: Prof. Dr. Charlotte Niemeyer http://clinicaltrials.gov/ct2/show/NCT00662090 http://www.ewog-mds.org/

Link

http://clinicaltrials.gov/ct2/show/NCT00662090

Keywords

Versions (1)
  1. 8/5/14 8/5/14 - Martin Dugas
Uploaded on

August 5, 2014

DOI

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License

Creative Commons BY 4.0
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EWOG MDS 2006 MDS clinical features at diagnosis DRKS00003789

German English

MDS clinical features at diagnosis

1 forms  
Show identification of patient
Description

Show identification of patient

Dummy
Description

Dummy

Data type

text

Clinical features
Description

Clinical features

Fatigue
Description

Fatigue

Data type

integer

Fieber > 38°C
Description

Fever

Data type

integer

Aktive Infektion
Description

Active Infection

Data type

integer

Respiratorische Symptome
Description

Respiratory tract symptoms

Data type

integer

Blutung
Description

Bleeding

Data type

integer

Hautausschlag
Description

Skin rash

Data type

integer

Lymphknoten > 1,5cm
Description

Lymph node > 1.5cm

Data type

integer

Vergrößerte Tonsillen
Description

Enlarged tonsils

Data type

integer

Chlorom
Description

Chloroma

Data type

integer

Diabetes insipidus
Description

Diabetes insipidus

Data type

integer

Blasten im Liquor
Description

Blasts in CSF

Data type

integer

Andere Symptome
Description

Other symptoms

Data type

integer

Hepatomegalie
Description

Hepatomegaly

Data type

integer

Splenomegalie
Description

Splenomegaly

Data type

integer

Bleeding site
Description

Bleeding site

Lokalisation der Blutung
Description

Bleeding site

Data type

integer

Sonstige Lokalisation der Blutung
Description

Other bleeding site

Data type

text

Skin rash site
Description

Skin rash site

Lokalisation des Hautausschlags
Description

Rash site

Data type

text

Chloroma site
Description

Chloroma site

Lokalisation des Chloroms
Description

Chloroma site

Data type

text

Number of blasts
Description

Number of blasts

Anzahl der Blasten
Description

Number of blasts

Data type

integer

Type of other symptoms
Description

Type of other symptoms

Art der anderen Symptome
Description

Type of symptoms

Data type

text

Liver size below costal margin
Description

Liver size below costal margin

Tastbare Lebergröße unter Rippenbogen (in cm)
Description

Liver size below costal margin by palpation (in cm)

Data type

integer

Measurement units
  • cm
cm
Spleen size below costal margin
Description

Spleen size below costal margin

Tastbare Milzgröße unter Rippenbogen (in cm)
Description

Spleen size below costal margin by palpation (in cm)

Data type

integer

Measurement units
  • cm
cm
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Similar models

MDS clinical features at diagnosis

1 forms
Name
Type
Description | Question | Decode (Coded Value)
Data type
Alias
Dummy
Item
Dummy
text
Item
Fatigue
integer
NoYes
Code List
Fatigue
CL Item
Nein (1)
CL Item
Ja (2)
Item
Fieber > 38°C
integer
NoYes
Code List
Fieber > 38°C
CL Item
Nein (1)
CL Item
Ja (2)
Item
Aktive Infektion
integer
NoYes
Code List
Aktive Infektion
CL Item
Nein (1)
CL Item
Ja (2)
Item
Respiratorische Symptome
integer
NoYes
Code List
Respiratorische Symptome
CL Item
Nein (1)
CL Item
Ja (2)
Item
Blutung
integer
NoYes
Code List
Blutung
CL Item
Nein (1)
CL Item
Ja (2)
Item
Hautausschlag
integer
NoYes
Code List
Hautausschlag
CL Item
Nein (1)
CL Item
Ja (2)
Item
Lymphknoten > 1,5cm
integer
NoYes
Code List
Lymphknoten > 1,5cm
CL Item
Nein (1)
CL Item
Ja (2)
Item
Vergrößerte Tonsillen
integer
NoYes
Code List
Vergrößerte Tonsillen
CL Item
Nein (1)
CL Item
Ja (2)
Item
Chlorom
integer
NoYes
Code List
Chlorom
CL Item
Nein (1)
CL Item
Ja (2)
Item
Diabetes insipidus
integer
NoYes
Code List
Diabetes insipidus
CL Item
Nein (1)
CL Item
Ja (2)
Item
Blasten im Liquor
integer
NoYes
Code List
Blasten im Liquor
CL Item
Nein (1)
CL Item
Ja (2)
Item
Andere Symptome
integer
NoYes
Code List
Andere Symptome
CL Item
Nein (1)
CL Item
Ja (2)
Item
Hepatomegalie
integer
NoYes
Code List
Hepatomegalie
CL Item
Nein (1)
CL Item
Ja (2)
Item
Splenomegalie
integer
NoYes
Code List
Splenomegalie
CL Item
Nein (1)
CL Item
Ja (2)
Item Group
Item
Lokalisation der Blutung
integer
Bleeding site
Code List
Lokalisation der Blutung
CL Item
Schleimhautblutung (1)
CL Item
Intrakraniell (2)
CL Item
Beides (Schleimhautblutung und Intrakraniell) (3)
CL Item
Hautblutung (Petechien und Hämatome) (4)
CL Item
Andere (99)
Other bleeding site
Item
Sonstige Lokalisation der Blutung
text
Item Group
Rash site
Item
Lokalisation des Hautausschlags
text
Item Group
Chloroma site
Item
Lokalisation des Chloroms
text
Number of blasts
Item
Anzahl der Blasten
integer
Type of symptoms
Item
Art der anderen Symptome
text
Liver size below costal margin by palpation (in cm)
Item
Tastbare Lebergröße unter Rippenbogen (in cm)
integer
Spleen size below costal margin by palpation (in cm)
Item
Tastbare Milzgröße unter Rippenbogen (in cm)
integer
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