ID

45661

Description

Principal Investigator: Lorenz Studer, Memorial Sloan Kettering Cancer Center, New York, NY, USA MeSH: Dysautonomia, Familial https://www.ncbi.nlm.nih.gov/projects/gap/cgi-bin/study.cgi?study_id=phs001233 Familial Dysautonomia (FD) is a developmental and degenerative genetic disease that manifests in the neural crest cells and peripheral nervous system (PNS). Despite all FD patients having the same mutation in *IKBKAP*, patients present with varying disease severity, ranging from mild to severe. We used the human pluripotent stem cell technology to recapitulate this varying disease severity in the dish. Further, we found that severe, but not mild patients harbor mutations in candidate modifier genes that may contribute to severe disease presentation.

Link

dbGaP study = phs001233

Keywords

  1. 3/23/23 3/23/23 - Simon Heim
Copyright Holder

Lorenz Studer, Memorial Sloan Kettering Cancer Center, New York, NY, USA

Uploaded on

March 23, 2023

DOI

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License

Creative Commons BY 4.0

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dbGaP phs001233 Disease Severity in Familial Dysautonomia

Subject - Consent - Affection Status Information (All Cases)

pht005943
Description

pht005943

Alias
UMLS CUI [1,1]
C3846158
Subject ID
Description

SUBJECT_ID

Data type

string

Alias
UMLS CUI [1,1]
C2348585
Subject source
Description

SUBJECT_SOURCE

Data type

text

Alias
UMLS CUI [1,1]
C0681850
UMLS CUI [1,2]
C0449416
Subject ID at source
Description

SOURCE_SUBJECT_ID

Data type

text

Alias
UMLS CUI [1,1]
C0681850
UMLS CUI [1,2]
C0600091
UMLS CUI [1,3]
C0449416
Consent group as determined by DAC
Description

CONSENT

Data type

text

Alias
UMLS CUI [1,1]
C0021430
UMLS CUI [1,2]
C0441833
Case - control status of the subject
Description

AFFECTION_STATUS

Data type

text

Alias
UMLS CUI [1,1]
C3274646

Similar models

Subject - Consent - Affection Status Information (All Cases)

Name
Type
Description | Question | Decode (Coded Value)
Data type
Alias
Item Group
pht005943
C3846158 (UMLS CUI [1,1])
SUBJECT_ID
Item
Subject ID
string
C2348585 (UMLS CUI [1,1])
SUBJECT_SOURCE
Item
Subject source
text
C0681850 (UMLS CUI [1,1])
C0449416 (UMLS CUI [1,2])
SOURCE_SUBJECT_ID
Item
Subject ID at source
text
C0681850 (UMLS CUI [1,1])
C0600091 (UMLS CUI [1,2])
C0449416 (UMLS CUI [1,3])
Item
Consent group as determined by DAC
text
C0021430 (UMLS CUI [1,1])
C0441833 (UMLS CUI [1,2])
Code List
Consent group as determined by DAC
CL Item
Disease-Specific (Familial Dysautonomia, COL) (DS-FDY-COL) (1)
Item
Case - control status of the subject
text
C3274646 (UMLS CUI [1,1])
Code List
Case - control status of the subject
CL Item
Control (1)
C3274648 (UMLS CUI [1,1])
CL Item
Case (2)
C3274647 (UMLS CUI [1,1])
CL Item
Other (3)

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