ID

45417

Beschrijving

Principal Investigator: Erik G. Puffenberger, PhD, Clinic for Special Children, Strasburg, PA, USA MeSH: Developmental Disabilities,Metabolic Diseases https://www.ncbi.nlm.nih.gov/projects/gap/cgi-bin/study.cgi?study_id=phs000623 The Clinic for Special Children (CSC) has integrated biochemical and molecular methods into a rural pediatric practice serving Old Order Amish and Mennonite (Plain) children. Among the Plain people, we have used single nucleotide polymorphism (SNP) microarrays to genetically map recessive disorders to large autozygous haplotype blocks (mean = 4.4 Mb) that contain many genes (mean = 79). For some, uninformative mapping or large gene lists preclude disease-gene identification by Sanger sequencing. Seven such conditions were selected for exome sequencing at the Broad Institute; all had been previously mapped at the CSC using low density SNP microarrays coupled with autozygosity and linkage analyses. Using between 1 and 5 patient samples per disorder, we identified sequence variants in the known disease-causing genes SLC6A3 and FLVCR1, and present evidence to strongly support the pathogenicity of variants identified in TUBGCP6, BRAT1, SNIP1, CRADD, and HARS. Our results reveal the power of coupling new genotyping technologies to population-specific genetic knowledge and robust clinical data.

Link

dbGaP study = phs000623

Trefwoorden

  1. 23-11-22 23-11-22 - Simon Heim
Houder van rechten

Erik G. Puffenberger, PhD, Clinic for Special Children, Strasburg, PA, USA

Geüploaded op

23 november 2022

DOI

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Licentie

Creative Commons BY 4.0

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dbGaP phs000623 Rare Mendelian Disease in Old Order Amish and Mennonite Patients

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pht003336
Beschrijving

pht003336

Alias
UMLS CUI [1,1]
C3846158
Subject ID
Beschrijving

SUBJID

Datatype

string

Alias
UMLS CUI [1,1]
C2348585
Consent group as determined by DAC
Beschrijving

CONSENT

Datatype

text

Alias
UMLS CUI [1,1]
C0021430

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Subject - Consent Information

Name
Type
Description | Question | Decode (Coded Value)
Datatype
Alias
Item Group
pht003336
C3846158 (UMLS CUI [1,1])
SUBJID
Item
Subject ID
string
C2348585 (UMLS CUI [1,1])
Item
Consent group as determined by DAC
text
C0021430 (UMLS CUI [1,1])
Code List
Consent group as determined by DAC
CL Item
General Research Use (GRU) (1)
C0021430 (UMLS CUI [1,1])
C0242481 (UMLS CUI [1,2])

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