ID

44118

Beschrijving

Common Data Elements Myeloid Leukemia (MDS, AML, CML) for use in clinical routine and clinical trial documentation. https://www.ncbi.nlm.nih.gov/pubmed/27577388

Link

https://www.ncbi.nlm.nih.gov/pubmed/27577388

Trefwoorden

Versies (6)
  1. 7/27/17 7/27/17 - Julian Varghese
  2. 10/23/17 10/23/17 - Julian Varghese
  3. 1/16/18 1/16/18 - Julian Varghese
  4. 4/21/18 4/21/18 - Julian Varghese
  5. 4/21/18 4/21/18 - Julian Varghese
  6. 9/20/21 9/20/21 -
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Varghese, Julian

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September 20, 2021

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Creative Commons BY-NC 3.0
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26672_Common Data Elements Myeloid Leukemia (MDS AML CML)

Engels

Global Disease Course

13 Formulieren  
Global Disease Course
Beschrijving

Global Disease Course

Minimal Residual Disease
Beschrijving

Minimal Residual Disease

Datatype

boolean

Alias
UMLS CUI [1]
C1511791
Disease Response/Remission Status
Beschrijving

Multiple answers: Yes

Datatype

text

Alias
UMLS CUI [1]
C1704632
WHO - AML Classification
Beschrijving

Multiple answers: No

Datatype

text

Alias
UMLS CUI [1]
C1301142
Molecular Remission BCR-ABL
Beschrijving

Multiple answers: No

Datatype

text

Alias
UMLS CUI [1]
C0004891
Active Infection
Beschrijving

Multiple answers: No

Datatype

text

Alias
UMLS CUI [1]
C0009450
AML pathogens of interest
Beschrijving

Multiple answers: Yes

Datatype

text

Alias
UMLS CUI [1,1]
C0023467
UMLS CUI [1,2]
C0009450
Complications
Beschrijving

Multiple answers: Yes

Datatype

text

Alias
UMLS CUI [1]
C0009566
Red Cell Transfusion
Beschrijving

Red Cell Transfusion

Date of red cell transfusion
Beschrijving

Date of red cell transfusion

Datatype

date

Alias
UMLS CUI [1,1]
C0086252
UMLS CUI [1,2]
C0011008
Number of units in red cell transfusion
Beschrijving

Number of units in red cell transfusion

Datatype

integer

Alias
UMLS CUI [1,1]
C0086252
UMLS CUI [1,2]
C0449961
Platelet Cell Transfusion
Beschrijving

Platelet Cell Transfusion

Date of platelet transfusion
Beschrijving

Date of platelet transfusion

Datatype

date

Alias
UMLS CUI [1,1]
C0086818
UMLS CUI [1,2]
C0011008
Number of units in platelet transfusion
Beschrijving

Number of units in platelet transfusion

Datatype

integer

Alias
UMLS CUI [1,1]
C0086818
UMLS CUI [1,2]
C0449961
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Similar models

Global Disease Course

13 Formulieren
Name
Type
Description | Question | Decode (Coded Value)
Datatype
Alias
Item Group
Global Disease Course
Minimal Residual Disease
Item
Minimal Residual Disease
boolean
C1511791 (UMLS CUI [1])
Item
Disease Response/Remission Status
text
C1704632 (UMLS CUI [1])
Disease Response/Remission Status
Code List
Disease Response/Remission Status
CL Item
Complete remission (CR) [with date]) (1)
CL Item
Cytogenic CR (CRc) [with date] (2)
CL Item
Molecular CR (CRm) [with date] (3)
CL Item
CR with incomplete recovery (CRi) [with date] (4)
CL Item
Morphologic leukemia- free state [with date] (5)
CL Item
Partial Remission [with date] (6)
CL Item
Resistant disease (RD) [with date] (7)
CL Item
Progression [with date] (8)
CL Item
Relapse [with date] (9)
CL Item
Death [with date] (Death [with date])
Item
WHO - AML Classification
text
C1301142 (UMLS CUI [1])
WHO - AML Classification
Code List
WHO - AML Classification
CL Item
AML with t(8;21)(q22;q22);RUNX1-RUNX1T1 (1)
CL Item
AML with inv(16)(p13.1;q22) or t(16;16)(p13.1;q22);CBFB - MYH11 (2)
CL Item
Acute promyelocytic leukaemia with t(15;17)(q22;q12);PML/RARA (3)
CL Item
AML with t(9;11)(p22;q23);MLLT 3-MLL (4)
CL Item
AML with myelodysplasia related changes (with multilineage dysplasia;w/o MDS or MDS/MPN antecedents (5)
CL Item
AML with t(6;9)(p23;q24);DEK - NUP214 (6)
CL Item
AML with inv(3)(q21;q26.2) or t(3;3)(q21;q26.2);RPN1 - EVI1 (7)
CL Item
AML (megakaryoblastic) with t(1;22)(p13;q13)RBM15 - MKL1 (8)
Item
Molecular Remission BCR-ABL
text
C0004891 (UMLS CUI [1])
Molecular Remission BCR-ABL
Code List
Molecular Remission BCR-ABL
CL Item
bcr-abl>10% (bcr-abl>10%)
CL Item
bcr-abl<10% (bcr-abl<10%)
CL Item
bcr-abl<0,1%(MMR) (bcr-abl<0,1%(MMR))
CL Item
bcr-abl<0,1%(MR4) (bcr-abl<0,1%(MR4))
CL Item
bcr-abl<0,0032% (MR4,5) (bcr-abl<0,0032% (MR4,5))
CL Item
<0.001% (MR5) (<0.001% (MR5))
Item
Active Infection
text
C0009450 (UMLS CUI [1])
Active Infection
Code List
Active Infection
CL Item
Yes:controlled (Yes:controlled)
CL Item
Yes:uncontrolled (Yes:uncontrolled)
CL Item
No (No)
CL Item
Unknown (Unknown)
Item
AML pathogens of interest
text
C0023467 (UMLS CUI [1,1])
C0009450 (UMLS CUI [1,2])
AML pathogens of interest
Code List
AML pathogens of interest
CL Item
S.pneumoniae (S.pneumoniae)
CL Item
HSV (HSV)
CL Item
other gram-positive (i.e.: other streptococci,listeria,...) (other gram-positive (i.e.: other streptococci,listeria,...))
CL Item
VZV (VZV)
CL Item
EBV (EBV)
CL Item
Haemophilus influenzae (Haemophilus influenzae)
CL Item
CMV (CMV)
CL Item
other gram-negative (i.e.: E.Coli klebsiella,proteus,serratia,pseudomonas,...) (other gram-negative (i.e.: E.Coli klebsiella,proteus,serratia,pseudomonas,...))
CL Item
HHV-6 (HHV-6)
CL Item
RSV (RSV)
CL Item
Legionella sp (Legionella sp)
CL Item
Other respiratory virus (influenza, parainfluenza, rhinovirus) (Other respiratory virus (influenza, parainfluenza, rhinovirus))
CL Item
Mycobacteria sp (Mycobacteria sp)
CL Item
Adenovirus (Adenovirus)
CL Item
HBV (HBV)
CL Item
Candida sp (Candida sp)
CL Item
HCV (HCV)
CL Item
Aspergillus (Aspergillus)
CL Item
HIV (HIV)
CL Item
Pneumocystis carinii (Pneumocystis carinii)
CL Item
Papovavirus (Papovavirus)
CL Item
Toxoplasma gondii (Toxoplasma gondii)
CL Item
other[text] (other[text])
Item
Complications
text
C0009566 (UMLS CUI [1])
Complications
Code List
Complications
CL Item
Infection (Infection)
CL Item
Systemic symptoms of infection [Septic shock, ARDS,Multiorgan failure due to infection] (Systemic symptoms of infection [Septic shock, ARDS,Multiorgan failure due to infection] )
CL Item
Endorgan disease [Pneumonia, Hepatitis,CNS infection, Gut infection, skin infection,Cystitis, Retinitis, Other] (Endorgan disease [Pneumonia, Hepatitis,CNS infection, Gut infection, skin infection,Cystitis, Retinitis, Other])
CL Item
Non infection related complications [Yes, No] (Non infection related complications [Yes, No])
CL Item
Idiopathic pneumonia syndrome [Yes, No, unknown] (Idiopathic pneumonia syndrome [Yes, No, unknown] )
CL Item
VOD [ Yes, No, unknown] (VOD [ Yes, No, unknown])
CL Item
Cataract [Yes, No, unknown] (Cataract [Yes, No, unknown])
CL Item
Haemorrhagic cystitis non infectious [Yes, No, unknown] (Haemorrhagic cystitis non infectious [Yes, No, unknown])
CL Item
ARDS non infectious [Yes, No,unknown] (ARDS non infectious [Yes, No,unknown])
CL Item
Multiorgan failure [Yes, No, unknown] (Multiorgan failure [Yes, No, unknown])
CL Item
HSCT-associated microangiopathy [Yes, No, unknown] (HSCT-associated microangiopathy [Yes, No, unknown])
CL Item
Renal failure requiring dialysis [Yes, No, unknown] (Renal failure requiring dialysis [Yes, No, unknown])
CL Item
Haemolytic anemia due to blood group [Yes, No, unknown] (Haemolytic anemia due to blood group [Yes, No, unknown])
CL Item
Aseptic bone necrosis [Yes, No, unknown] (Aseptic bone necrosis [Yes, No, unknown])
CL Item
Other[text] (Other[text])
Item Group
Red Cell Transfusion
Date of red cell transfusion
Item
Date of red cell transfusion
date
C0086252 (UMLS CUI [1,1])
C0011008 (UMLS CUI [1,2])
Number of units in red cell transfusion
Item
Number of units in red cell transfusion
integer
C0086252 (UMLS CUI [1,1])
C0449961 (UMLS CUI [1,2])
Item Group
Platelet Cell Transfusion
Date of platelet transfusion
Item
Date of platelet transfusion
date
C0086818 (UMLS CUI [1,1])
C0011008 (UMLS CUI [1,2])
Number of units in platelet transfusion
Item
Number of units in platelet transfusion
integer
C0086818 (UMLS CUI [1,1])
C0449961 (UMLS CUI [1,2])
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