DESCRIBE (DZNE – Clinical Register Study of neurodegenerative Disorders) CRF Follow Up

Item

Subjective cognitive decline (SCD)

integer

C0234985 (UMLS CUI [1,1])
C0439655 (UMLS CUI [1,2])

Amnestic mild cognitive impairment

Code List

Subjective cognitive decline (SCD)

CL Item

Principle diagnosis (1)

C0332137 (UMLS CUI-1)

CL Item

Differential diagnosis 1 (2)

C0011906 (UMLS CUI-1)

CL Item

Differential diagnosis 2 (3)

C0011906 (UMLS CUI-1)

CL Item

Differential diagnosis 3 (4)

C0011906 (UMLS CUI-1)

Item

Amnestic mild cognitive impairment (MCI)

integer

C1270972 (UMLS CUI [1])

Code List

Amnestic mild cognitive impairment (MCI)

CL Item

Principle diagnosis (1)

C0332137 (UMLS CUI-1)

CL Item

Differential diagnosis 1 (2)

C0011906 (UMLS CUI-1)

CL Item

Differential diagnosis 2 (3)

C0011906 (UMLS CUI-1)

CL Item

Differential diagnosis 3 (4)

C0011906 (UMLS CUI-1)

Non-anamnestic MCI

Item

Non-anamnestic mild cognitive impairment

integer

C1270972 (UMLS CUI [1,1])
C1706613 (UMLS CUI [1,2])

Code List

Non-anamnestic mild cognitive impairment

CL Item

Principle diagnosis (1)

C0332137 (UMLS CUI-1)

CL Item

Differential diagnosis 1 (2)

C0011906 (UMLS CUI-1)

CL Item

Differential diagnosis 2 (3)

C0011906 (UMLS CUI-1)

CL Item

Differential diagnosis 3 (4)

C0011906 (UMLS CUI-1)

dementia along with AD

Item

Probable dementia along with Alzheimer's disease

integer

C3665464 (UMLS CUI [1])

Code List

Probable dementia along with Alzheimer's disease

CL Item

Principle diagnosis (1)

C0332137 (UMLS CUI-1)

CL Item

Differential diagnosis 1 (2)

C0011906 (UMLS CUI-1)

CL Item

Differential diagnosis 2 (3)

C0011906 (UMLS CUI-1)

CL Item

Differential diagnosis 3 (4)

C0011906 (UMLS CUI-1)

dementia along with AD

Item

Possible dementia along with Alzheimer's disease

integer

C3665464 (UMLS CUI [1])

posterior cortical atrophy

Code List

Possible dementia along with Alzheimer's disease

CL Item

Principle diagnosis (1)

C0332137 (UMLS CUI-1)

CL Item

Differential diagnosis 1 (2)

C0011906 (UMLS CUI-1)

CL Item

Differential diagnosis 2 (3)

C0011906 (UMLS CUI-1)

CL Item

Differential diagnosis 3 (4)

C0011906 (UMLS CUI-1)

Item

Posterior cortical atrophy

integer

C0235946 (UMLS CUI [1,1])
C0205095 (UMLS CUI [1,2])

Code List

Posterior cortical atrophy

CL Item

Principle diagnosis (1)

C0332137 (UMLS CUI-1)

CL Item

Differential diagnosis 1 (2)

C0011906 (UMLS CUI-1)

CL Item

Differential diagnosis 2 (3)

C0011906 (UMLS CUI-1)

CL Item

Differential diagnosis 3 (4)

C0011906 (UMLS CUI-1)

mixed dementia

Item

Mixed dementia

integer

C3532942 (UMLS CUI [1])

Code List

Mixed dementia

CL Item

Principle diagnosis (1)

C0332137 (UMLS CUI-1)

CL Item

Differential diagnosis 1 (2)

C0011906 (UMLS CUI-1)

CL Item

Differential diagnosis 2 (3)

C0011906 (UMLS CUI-1)

CL Item

Differential diagnosis 3 (4)

C0011906 (UMLS CUI-1)

vascular dementia

Item

Vascular dementia (VD)

integer

C0011269 (UMLS CUI [1])

Code List

Vascular dementia (VD)

CL Item

Principle diagnosis (1)

C0332137 (UMLS CUI-1)

CL Item

Differential diagnosis 1 (2)

C0011906 (UMLS CUI-1)

CL Item

Differential diagnosis 2 (3)

C0011906 (UMLS CUI-1)

CL Item

Differential diagnosis 3 (4)

C0011906 (UMLS CUI-1)

frontotemporal dementia

Item

Frototemperal dementia (FTD) - behavioral variant

integer

C4011788 (UMLS CUI [1])

primary progressive aphasia

Code List

Frototemperal dementia (FTD) - behavioral variant

CL Item

Principle diagnosis (1)

C0332137 (UMLS CUI-1)

CL Item

Differential diagnosis 1 (2)

C0011906 (UMLS CUI-1)

CL Item

Differential diagnosis 2 (3)

C0011906 (UMLS CUI-1)

CL Item

Differential diagnosis 3 (4)

C0011906 (UMLS CUI-1)

Item

Primary progressive aphasia (PPA)

integer

C0282513 (UMLS CUI [1])

progressive nonfluent aphasia

Code List

Primary progressive aphasia (PPA)

CL Item

Principle diagnosis (1)

C0332137 (UMLS CUI-1)

CL Item

Differential diagnosis 1 (2)

C0011906 (UMLS CUI-1)

CL Item

Differential diagnosis 2 (3)

C0011906 (UMLS CUI-1)

CL Item

Differential diagnosis 3 (4)

C0011906 (UMLS CUI-1)

Item

Progressive nonfluent aphasia (PNFA)

integer

C0751706 (UMLS CUI [1])

logopenic progressive aphasia

Code List

Progressive nonfluent aphasia (PNFA)

CL Item

Principle diagnosis (1)

C0332137 (UMLS CUI-1)

CL Item

Differential diagnosis 1 (2)

C0011906 (UMLS CUI-1)

CL Item

Differential diagnosis 2 (3)

C0011906 (UMLS CUI-1)

CL Item

Differential diagnosis 3 (4)

C0011906 (UMLS CUI-1)

Item

Logopenic progressive Aphasia (LPA)

integer

C0282513 (UMLS CUI [1,1])
C0037825 (UMLS CUI [1,2])

Code List

Logopenic progressive Aphasia (LPA)

CL Item

Principle diagnosis (1)

C0332137 (UMLS CUI-1)

CL Item

Differential diagnosis 1 (2)

C0011906 (UMLS CUI-1)

CL Item

Differential diagnosis 2 (3)

C0011906 (UMLS CUI-1)

CL Item

Differential diagnosis 3 (4)

C0011906 (UMLS CUI-1)

semantic dementia

Item

Semantic dementia

integer

C0338462 (UMLS CUI [1])

Code List

Semantic dementia

CL Item

Principle diagnosis (1)

C0332137 (UMLS CUI-1)

CL Item

Differential diagnosis 1 (2)

C0011906 (UMLS CUI-1)

CL Item

Differential diagnosis 2 (3)

C0011906 (UMLS CUI-1)

CL Item

Differential diagnosis 3 (4)

C0011906 (UMLS CUI-1)

bvFTD and ALS

Item

bvFTD + ALS

integer

C0002736 (UMLS CUI [1])
C4011788 (UMLS CUI [2])

Code List

bvFTD + ALS

CL Item

Principle diagnosis (1)

C0332137 (UMLS CUI-1)

CL Item

Differential diagnosis 1 (2)

C0011906 (UMLS CUI-1)

CL Item

Differential diagnosis 2 (3)

C0011906 (UMLS CUI-1)

CL Item

Differential diagnosis 3 (4)

C0011906 (UMLS CUI-1)

PPA and ALS

Item

PPA + ALS

integer

C0002736 (UMLS CUI [1])
C0282513 (UMLS CUI [2])

idiopathic parkisons syndrom

Code List

PPA + ALS

CL Item

Principle diagnosis (1)

C0332137 (UMLS CUI-1)

CL Item

Differential diagnosis 1 (2)

C0011906 (UMLS CUI-1)

CL Item

Differential diagnosis 2 (3)

C0011906 (UMLS CUI-1)

CL Item

Differential diagnosis 3 (4)

C0011906 (UMLS CUI-1)

Item

Idiopathic Parkinson's disease (IPS)

integer

C0030567 (UMLS CUI [1])

morbus parkinson along with MCI

Code List

Idiopathic Parkinson's disease (IPS)

CL Item

Principle diagnosis (1)

C0332137 (UMLS CUI-1)

CL Item

Differential diagnosis 1 (2)

C0011906 (UMLS CUI-1)

CL Item

Differential diagnosis 2 (3)

C0011906 (UMLS CUI-1)

CL Item

Differential diagnosis 3 (4)

C0011906 (UMLS CUI-1)

Item

Morbus parkinson along with MCI (PD-MCI)

integer

C0030567 (UMLS CUI [1])
C1270972 (UMLS CUI [2])

dementia due to morbus parkinson

Code List

Morbus parkinson along with MCI (PD-MCI)

CL Item

Principle diagnosis (1)

C0332137 (UMLS CUI-1)

CL Item

Differential diagnosis 1 (2)

C0011906 (UMLS CUI-1)

CL Item

Differential diagnosis 2 (3)

C0011906 (UMLS CUI-1)

CL Item

Differential diagnosis 3 (4)

C0011906 (UMLS CUI-1)

Item

Dementia due to morbus parkinson (PPD)

integer

C0236960 (UMLS CUI [1])

dementia with lewy bodies

Code List

Dementia due to morbus parkinson (PPD)

CL Item

Principle diagnosis (1)

C0332137 (UMLS CUI-1)

CL Item

Differential diagnosis 1 (2)

C0011906 (UMLS CUI-1)

CL Item

Differential diagnosis 2 (3)

C0011906 (UMLS CUI-1)

CL Item

Differential diagnosis 3 (4)

C0011906 (UMLS CUI-1)

Item

Dementia with Lewy bodies (DLB)

integer

C0752347 (UMLS CUI [1])

progressive supranuclear palsy

Code List

Dementia with Lewy bodies (DLB)

CL Item

Principle diagnosis (1)

C0332137 (UMLS CUI-1)

CL Item

Differential diagnosis 1 (2)

C0011906 (UMLS CUI-1)

CL Item

Differential diagnosis 2 (3)

C0011906 (UMLS CUI-1)

CL Item

Differential diagnosis 3 (4)

C0011906 (UMLS CUI-1)

Item

Atypical Parkinson syndroms - progressive supranuclear palsy

integer

C0038868 (UMLS CUI [1])

possible progressive supranuclear palsy

Code List

Atypical Parkinson syndroms - progressive supranuclear palsy

CL Item

Principle diagnosis (1)

C0332137 (UMLS CUI-1)

CL Item

Differential diagnosis 1 (2)

C0011906 (UMLS CUI-1)

CL Item

Differential diagnosis 2 (3)

C0011906 (UMLS CUI-1)

CL Item

Differential diagnosis 3 (4)

C0011906 (UMLS CUI-1)

Item

Possible progressive supranuclear palsy

integer

C0038868 (UMLS CUI [1,1])
C0332149 (UMLS CUI [1,2])

corticobasal degeneration

Code List

Possible progressive supranuclear palsy

CL Item

Principle diagnosis (1)

C0332137 (UMLS CUI-1)

CL Item

Differential diagnosis 1 (2)

C0011906 (UMLS CUI-1)

CL Item

Differential diagnosis 2 (3)

C0011906 (UMLS CUI-1)

CL Item

Differential diagnosis 3 (4)

C0011906 (UMLS CUI-1)

Item

Corticobasal degeneration (CBD)

integer

C0393570 (UMLS CUI [1])

Code List

Corticobasal degeneration (CBD)

CL Item

Principle diagnosis (1)

C0332137 (UMLS CUI-1)

CL Item

Differential diagnosis 1 (2)

C0011906 (UMLS CUI-1)

CL Item

Differential diagnosis 2 (3)

C0011906 (UMLS CUI-1)

CL Item

Differential diagnosis 3 (4)

C0011906 (UMLS CUI-1)

multiple system atrophy

Item

Multiple system atrophy

integer

C0393571 (UMLS CUI [1])

Code List

Multiple system atrophy

CL Item

Principle diagnosis (1)

C0332137 (UMLS CUI-1)

CL Item

Differential diagnosis 1 (2)

C0011906 (UMLS CUI-1)

CL Item

Differential diagnosis 2 (3)

C0011906 (UMLS CUI-1)

CL Item

Differential diagnosis 3 (4)

C0011906 (UMLS CUI-1)

MSA-p

Item

MSA-p (Parkinson)

integer

C2733447 (UMLS CUI [1])

Code List

MSA-p (Parkinson)

CL Item

Principle diagnosis (1)

C0332137 (UMLS CUI-1)

CL Item

Differential diagnosis 1 (2)

C0011906 (UMLS CUI-1)

CL Item

Differential diagnosis 2 (3)

C0011906 (UMLS CUI-1)

CL Item

Differential diagnosis 3 (4)

C0011906 (UMLS CUI-1)

MSA-c

Item

MSA-c (cerebellar)

integer

C2732311 (UMLS CUI [1])

Code List

MSA-c (cerebellar)

CL Item

Principle diagnosis (1)

C0332137 (UMLS CUI-1)

CL Item

Differential diagnosis 1 (2)

C0011906 (UMLS CUI-1)

CL Item

Differential diagnosis 2 (3)

C0011906 (UMLS CUI-1)

CL Item

Differential diagnosis 3 (4)

C0011906 (UMLS CUI-1)

essential tremor

Item

Essential tremor

integer

C0270736 (UMLS CUI [1])

Code List

Essential tremor

CL Item

Principle diagnosis (1)

C0332137 (UMLS CUI-1)

CL Item

Differential diagnosis 1 (2)

C0011906 (UMLS CUI-1)

CL Item

Differential diagnosis 2 (3)

C0011906 (UMLS CUI-1)

CL Item

Differential diagnosis 3 (4)

C0011906 (UMLS CUI-1)

ataxia

Item

Ataxia

integer

C0004134 (UMLS CUI [1])

Code List

Ataxia

CL Item

Principle diagnosis (1)

C0332137 (UMLS CUI-1)

CL Item

Differential diagnosis 1 (2)

C0011906 (UMLS CUI-1)

CL Item

Differential diagnosis 2 (3)

C0011906 (UMLS CUI-1)

CL Item

Differential diagnosis 3 (4)

C0011906 (UMLS CUI-1)

ALS

Item

Amyotrophic lateral sclerosis

integer

C0002736 (UMLS CUI [1])

Code List

Amyotrophic lateral sclerosis

CL Item

Principle diagnosis (1)

C0332137 (UMLS CUI-1)

CL Item

Differential diagnosis 1 (2)

C0011906 (UMLS CUI-1)

CL Item

Differential diagnosis 2 (3)

C0011906 (UMLS CUI-1)

CL Item

Differential diagnosis 3 (4)

C0011906 (UMLS CUI-1)

huntigtons disease

Item

Huntington disease

integer

C0020179 (UMLS CUI [1])

creutzfeldt jakob disease

Code List

Huntington disease

CL Item

Principle diagnosis (1)

C0332137 (UMLS CUI-1)

CL Item

Differential diagnosis 1 (2)

C0011906 (UMLS CUI-1)

CL Item

Differential diagnosis 2 (3)

C0011906 (UMLS CUI-1)

CL Item

Differential diagnosis 3 (4)

C0011906 (UMLS CUI-1)

Item

Creutzfeldt-Jakob-Disease

integer

C0022336 (UMLS CUI [1])

Code List

Creutzfeldt-Jakob-Disease

CL Item

Principle diagnosis (1)

C0332137 (UMLS CUI-1)

CL Item

Differential diagnosis 1 (2)

C0011906 (UMLS CUI-1)

CL Item

Differential diagnosis 2 (3)

C0011906 (UMLS CUI-1)

CL Item

Differential diagnosis 3 (4)

C0011906 (UMLS CUI-1)

depression

Item

Depression (primary disease)

integer

C0011581 (UMLS CUI [1])

current housing situation

Code List

Depression (primary disease)

CL Item

Principle diagnosis (1)

C0332137 (UMLS CUI-1)

CL Item

Differential diagnosis 1 (2)

C0011906 (UMLS CUI-1)

CL Item

Differential diagnosis 2 (3)

C0011906 (UMLS CUI-1)

CL Item

Differential diagnosis 3 (4)

C0011906 (UMLS CUI-1)

Cumulative documentation

Item Group

Cumulative documentation

comorbidities

Item

Did apects of the comorbidities change since the last visit?

boolean

C0009488 (UMLS CUI [1])

medication

Item

Did the aspects of the medication change since the last visit?

boolean

C0013227 (UMLS CUI [1])

procedures

Item

Did apects of the procedures change since the last visit?

boolean

C0184661 (UMLS CUI [1])

medical history

Item

Did apects of the medical history of the family change since the last visit?

boolean

C0262926 (UMLS CUI [1])

Living situation

Item Group

Living situation

C2184149 (UMLS CUI-1)

living situation

Item

Did apects of the living situation change since the last visit?

boolean

C2184149 (UMLS CUI [1])

marital status

Item

1. Marital status

integer

C0024819 (UMLS CUI [1])

marital status

Code List

1. Marital status

CL Item

Single (1)

C0037179 (UMLS CUI-1)

CL Item

Married (2)

C0555047 (UMLS CUI-1)

CL Item

Separated (3)

C0086972 (UMLS CUI-1)

CL Item

Widowed (4)

C0206275 (UMLS CUI-1)

CL Item

Divorced (5)

C0086170 (UMLS CUI-1)

CL Item

Civil partnership (6)

C1711206 (UMLS CUI-1)

CL Item

N.A. (7)

C1272460 (UMLS CUI-1)

Item

2. What is the current housing situation of the participant ?

integer

C0020056 (UMLS CUI [1])

current housing situation

Code List

2. What is the current housing situation of the participant ?

CL Item

private household, alone (1)

CL Item

two-person household (2)

CL Item

multi-person household (3)

CL Item

retirement home/ (residential) care home for the elderly (4 )

CL Item

N.A. (5)

Professional status

Item Group

Professional status

C0028811 (UMLS CUI-1)

occupation

Item

Did aspects of the occupation status change since last visit?

boolean

C0028811 (UMLS CUI [1])

occupation

Item

1. Current occupation

integer

C0421456 (UMLS CUI [1])

occupation

Code List

1. Current occupation

CL Item

worker (1)

CL Item

employee (2)

CL Item

civil servant (3)

CL Item

self-employed (4)

CL Item

unemployed (5)

CL Item

not working (6)

CL Item

retired (7)

retirement

Item

1.1. Retirement

integer

C0035345 (UMLS CUI [1])

retirement

Code List

1.1. Retirement

CL Item

old-age pension (1)

CL Item

early retirement due to occupational disability (2)

CL Item

early retirement due to unemployability (3)

retirement since year

Item

1.2. Retirement since: (month, year)

date

C0035345 (UMLS CUI [1])

number of yrs since retirement

Item

Number of years since start of retirement

integer

years of occupation

Item

2. Number of years of occupation (so far)

integer

professional group

Item

3. Professional group (Code)

text

Consumption of semiluxury food - nicotine

Item Group

Consumption of semiluxury food - nicotine

C0028040 (UMLS CUI-1)

nicotine consumption

Item

Did your nicotine comsumption change since the last visit?

boolean

C1519386 (UMLS CUI [1])

smoker

Item

1. Are you currently a smoker?

boolean

C0543414 (UMLS CUI [1])

since when smoking

Item

1.1. Since when do you smoke?

integer

C0028040 (UMLS CUI [1])

average number of cigarettes

Item

1.2. How many cigarettes do you usually smoke during a day?

integer

C0694535 (UMLS CUI [1,1])
C1510992 (UMLS CUI [1,2])

pack years

Item

Pack years

integer

C1277691 (UMLS CUI [1])

Consumption of semiluxury food - alcohol

Item Group

Consumption of semiluxury food - alcohol

C0001948 (UMLS CUI-1)

alcohol consumption

Item

Did your alcohol comsumption change since the last visit?

boolean

C0001948 (UMLS CUI [1])

alcohol consumption

Item

1. Do you drink alcohol?

boolean

C0001948 (UMLS CUI [1])

number of alcoholic beverages

Item

1.1. How many alcoholic beverages do you drink on average during the week?

integer

C0001967 (UMLS CUI [1])

number of alcoholic beverages

Code List

1.1. How many alcoholic beverages do you drink on average during the week?

CL Item

< 1 per week (1)

CL Item

1-7 (2)

CL Item

8-14 (3)

CL Item

15-21 (4)

CL Item

22-28 (5)

CL Item

29-35 (6)

CL Item

36-42 (7)

Vital signs

Item Group

Vital signs

C0518766 (UMLS CUI-1)

height

Item

1. Height

float

C0005890 (UMLS CUI [1])

weight

Item

2. Weight

float

C0005910 (UMLS CUI [1])

BMI

Item

Body mass index

float

C1305855 (UMLS CUI [1])

Clinical phenotype

Item Group

Clinical phenotype

C0031437 (UMLS CUI-1)

clinical phenotype

Item

Are there new aspects of the clinical phenotype since the baseline visit?

boolean

C0031437 (UMLS CUI [1])

Clinical phenotype - Anamnesis and inspection

Item Group

Clinical phenotype - Anamnesis and inspection

C0031437 (UMLS CUI-1)

motor activity

Item

Motor activity

text

C0026606 (UMLS CUI [1])

motor activity

Code List

Motor activity

CL Item

without pathological finding (without pathological finding)

CL Item

hypokinetic-rigid phenotype (hypokinetic-rigid phenotype)

CL Item

muscle tonus and strength pathological (muscle tonus and strength pathological)

CL Item

tremor and involuntary motor activity (tremor and involuntary motor activity)

CL Item

not examined (not examined)

gait and standing

Item

Gait and standing

integer

C0016928 (UMLS CUI [1])
C0231472 (UMLS CUI [2])

Code List

Gait and standing

CL Item

without pathological findings (1)

C1334932 (UMLS CUI-1)

CL Item

pathological finding (2)

C1521733 (UMLS CUI-1)

CL Item

not examined (3)

C0332129 (UMLS CUI-1)

behavior

Item

Behavior

integer

C0004927 (UMLS CUI [1])

Code List

Behavior

CL Item

without pathological findings (1)

C1334932 (UMLS CUI-1)

CL Item

pathological finding (2)

C1521733 (UMLS CUI-1)

CL Item

not examined (3)

C0332129 (UMLS CUI-1)

Item

Praxia / visual respectively spatial

integer

C0871470 (UMLS CUI [1,1])
C0234621 (UMLS CUI [1,2])

Code List

Praxia / visual respectively spatial

CL Item

without pathological findings (1)

C1334932 (UMLS CUI-1)

CL Item

pathological finding (2)

C1521733 (UMLS CUI-1)

CL Item

not examined (3)

C0332129 (UMLS CUI-1)

speech and language

Item

Speech and language

integer

C0564649 (UMLS CUI [1])

Code List

Speech and language

CL Item

without pathological findings (1)

C1334932 (UMLS CUI-1)

CL Item

pathological finding (2)

C1521733 (UMLS CUI-1)

CL Item

not examined (3)

C0332129 (UMLS CUI-1)

autonomic nervous system

Item

Autonomic nervous system

integer

C0004388 (UMLS CUI [1])

Clinical phenotype - Further examination

Code List

Autonomic nervous system

CL Item

without pathological findings (1)

C1334932 (UMLS CUI-1)

CL Item

pathological finding (2)

C1521733 (UMLS CUI-1)

CL Item

not examined (3)

C0332129 (UMLS CUI-1)

Item Group

Clinical phenotype - Further examination

tonus and strength

Item

I. Examination of muscle tonus and strength performed

boolean

C0026841 (UMLS CUI [1])
C0517349 (UMLS CUI [2])

Item

1. Change in muscle tonus

integer

C0026841 (UMLS CUI [1])

Code List

1. Change in muscle tonus

CL Item

present (1)

C0150312 (UMLS CUI-1)

CL Item

not present (2)

C0332197 (UMLS CUI-1)

CL Item

not examined (3)

C0332128 (UMLS CUI-1)
C1518422 (UMLS CUI-2)

rigor

Item

1.1. Rigor

integer

C0026837 (UMLS CUI [1])

Code List

1.1. Rigor

CL Item

present (1)

C0150312 (UMLS CUI-1)

CL Item

not present (2)

C0332197 (UMLS CUI-1)

CL Item

not examined (3)

C0332128 (UMLS CUI-1)
C1518422 (UMLS CUI-2)

spastic

Item

1.2. Spastic

integer

C0443306 (UMLS CUI [1])

Code List

1.2. Spastic

CL Item

present (1)

C0150312 (UMLS CUI-1)

CL Item

not present (2)

C0332197 (UMLS CUI-1)

CL Item

not examined (3)

C0332128 (UMLS CUI-1)
C1518422 (UMLS CUI-2)

peripheral nerve paresis

Item

2. Peripheral nerve paresis, which cannot be assigned to a peripheral nerve or a nerve root.

integer

C3203709 (UMLS CUI [1])

Code List

2. Peripheral nerve paresis, which cannot be assigned to a peripheral nerve or a nerve root.

CL Item

present (1)

C0150312 (UMLS CUI-1)

CL Item

not present (2)

C0332197 (UMLS CUI-1)

CL Item

not examined (3)

C0332128 (UMLS CUI-1)
C1518422 (UMLS CUI-2)

atrophy

Item

2.1. Atrophy

integer

C0333641 (UMLS CUI [1])

Code List

2.1. Atrophy

CL Item

present (1)

C0150312 (UMLS CUI-1)

CL Item

not present (2)

C0332197 (UMLS CUI-1)

CL Item

not examined (3)

C0332128 (UMLS CUI-1)
C1518422 (UMLS CUI-2)

fasciculation

Item

2.2. Fasciculation

integer

C0015644 (UMLS CUI [1])

Code List

2.2. Fasciculation

CL Item

present (1)

C0150312 (UMLS CUI-1)

CL Item

not present (2)

C0332197 (UMLS CUI-1)

CL Item

not examined (3)

C0332128 (UMLS CUI-1)
C1518422 (UMLS CUI-2)

paresis

Item

2. Central pareses

integer

C0030552 (UMLS CUI [1])

Code List

2. Central pareses

CL Item

present (1)

C0150312 (UMLS CUI-1)

CL Item

not present (2)

C0332197 (UMLS CUI-1)

CL Item

not examined (3)

C0332128 (UMLS CUI-1)
C1518422 (UMLS CUI-2)

right arm paresis

Item

3.1. Central right arm paresis

integer

C0856328 (UMLS CUI [1])

Code List

3.1. Central right arm paresis

CL Item

latent (1)

C0205275 (UMLS CUI-1)

CL Item

manifest (2)

C0205319 (UMLS CUI-1)

CL Item

mild (3)

C2945599 (UMLS CUI-1)

CL Item

severe (4)

C0205082 (UMLS CUI-1)

CL Item

not present (5)

C0332197 (UMLS CUI-1)

CL Item

not examined (6)

C0332128 (UMLS CUI-1)
C1518422 (UMLS CUI-2)

left arm paresis

Item

3.2. Central left arm paresis

integer

C0856327 (UMLS CUI [1])

Code List

3.2. Central left arm paresis

CL Item

latent (1)

C0205275 (UMLS CUI-1)

CL Item

manifest (2)

C0205319 (UMLS CUI-1)

CL Item

mild (3)

C2945599 (UMLS CUI-1)

CL Item

severe (4)

C0205082 (UMLS CUI-1)

CL Item

not present (5)

C0332197 (UMLS CUI-1)

CL Item

not examined (6)

C0332128 (UMLS CUI-1)
C1518422 (UMLS CUI-2)

right leg paresis

Item

3.3. Central right leg paresis

integer

C0751410 (UMLS CUI [1,1])
C0205090 (UMLS CUI [1,2])

Code List

3.3. Central right leg paresis

CL Item

latent (1)

C0205275 (UMLS CUI-1)

CL Item

manifest (2)

C0205319 (UMLS CUI-1)

CL Item

mild (3)

C2945599 (UMLS CUI-1)

CL Item

severe (4)

C0205082 (UMLS CUI-1)

CL Item

not present (5)

C0332197 (UMLS CUI-1)

CL Item

not examined (6)

C0332128 (UMLS CUI-1)
C1518422 (UMLS CUI-2)

left leg paresis

Item

3.4. Central left leg paresis

integer

C0751410 (UMLS CUI [1,1])
C0205091 (UMLS CUI [1,2])

Code List

3.4. Central left leg paresis

CL Item

latent (1)

C0205275 (UMLS CUI-1)

CL Item

manifest (2)

C0205319 (UMLS CUI-1)

CL Item

mild (3)

C2945599 (UMLS CUI-1)

CL Item

severe (4)

C0205082 (UMLS CUI-1)

CL Item

not present (5)

C0332197 (UMLS CUI-1)

CL Item

not examined (6)

C0332128 (UMLS CUI-1)
C1518422 (UMLS CUI-2)

Item

4.1. Biceps reflex

integer

C0234151 (UMLS CUI [1])

Code List

4.1. Biceps reflex

CL Item

diminution of reflex (1)

CL Item

augmentation of reflex (2)

CL Item

no pathological finding (3)

CL Item

not examined (4)

patellar reflex

Item

4.2. Patellar reflex

integer

C0234147 (UMLS CUI [1])

Code List

4.2. Patellar reflex

CL Item

diminution of reflex (1)

CL Item

augmentation of reflex (2)

CL Item

no pathological finding (3)

CL Item

not examined (4)

achilles tendon reflex

Item

4.3. Achilles' tendon reflex

integer

C0234171 (UMLS CUI [1])

Code List

4.3. Achilles' tendon reflex

CL Item

diminution of reflex (1)

CL Item

augmentation of reflex (2)

CL Item

no pathological finding (3)

CL Item

not examined (4)

Item

4.4. Babinski sign

integer

C0034935 (UMLS CUI [1])

Code List

4.4. Babinski sign

CL Item

positive (1)

C1446409 (UMLS CUI-1)

CL Item

negative (0)

C0205160 (UMLS CUI-1)

CL Item

not examined (2)

C0332128 (UMLS CUI-1)
C1518422 (UMLS CUI-2)

Item

Babinski sign positive side

integer

C0034935 (UMLS CUI [1,1])
C0441987 (UMLS CUI [1,2])

Code List

Babinski sign positive side

CL Item

right (1)

C0205090 (UMLS CUI-1)

CL Item

left (2)

C0205091 (UMLS CUI-1)

CL Item

bilateral (3)

C0238767 (UMLS CUI-1)

tremor

Item

5. Tremor

integer

C0040822 (UMLS CUI [1])

dyskinetic or dystonic signs

Code List

5. Tremor

CL Item

present (1)

C0150312 (UMLS CUI-1)

CL Item

not present (2)

C0332197 (UMLS CUI-1)

CL Item

not examined (3)

C0332128 (UMLS CUI-1)
C1518422 (UMLS CUI-2)

tremor type

Item

Tremor type

integer

C0040822 (UMLS CUI [1])

tremor type

Code List

Tremor type

CL Item

resting tremor (1)

C0234379 (UMLS CUI-1)

CL Item

action tremor (2)

C0234376 (UMLS CUI-1)

Item

6. Dyskinetic signs / dystonic signs

integer

C0439842 (UMLS CUI [1])
C0013421 (UMLS CUI [2])

dystonia of extremities side

Code List

6. Dyskinetic signs / dystonic signs

CL Item

present (1)

C0150312 (UMLS CUI-1)

CL Item

not present (2)

C0332197 (UMLS CUI-1)

CL Item

not examined (3)

C0332128 (UMLS CUI-1)
C1518422 (UMLS CUI-2)

dyskinetic signs type

Item

6.1. Dyskinetic signs type

integer

C0439842 (UMLS CUI [1])
C0013421 (UMLS CUI [2])

dyskinetic signs type

Code List

6.1. Dyskinetic signs type

CL Item

oromandibular (1)

C2242577 (UMLS CUI-1)
C2677570 (UMLS CUI-2)

CL Item

axial dystonia (2)

C1836149 (UMLS CUI-1)

CL Item

dystonia of extremities (3)

C2751157 (UMLS CUI-1)

CL Item

stratial toe (4)

CL Item

stratial hand (5)

CL Item

chorea (6)

C0008489 (UMLS CUI-1)

CL Item

tardive dyskinesia (7)

C0686347 (UMLS CUI-1)

Item

Dystonia of extremities side

integer

C2751157 (UMLS CUI [1,1])
C0441987 (UMLS CUI [1,2])

Code List

Dystonia of extremities side

CL Item

right (1)

C0205090 (UMLS CUI-1)

CL Item

left (2)

C0205091 (UMLS CUI-1)

CL Item

bilateral (3)

C0238767 (UMLS CUI-1)

striatal toe side

Item

Striatal toe

integer

C0040357 (UMLS CUI [1,1])
C1847988 (UMLS CUI [1,2])
C0441987 (UMLS CUI [1,3])

Code List

Striatal toe

CL Item

right (1)

C0205090 (UMLS CUI-1)

CL Item

left (2)

C0205091 (UMLS CUI-1)

CL Item

bilateral (3)

C0238767 (UMLS CUI-1)

striatal hand side

Item

Striatal hand side

integer

C0018563 (UMLS CUI [1,1])
C1847988 (UMLS CUI [1,2])
C0441987 (UMLS CUI [1,3])

Code List

Striatal hand side

CL Item

right (1)

C0205090 (UMLS CUI-1)

CL Item

left (2)

C0205091 (UMLS CUI-1)

CL Item

bilateral (3)

C0238767 (UMLS CUI-1)

myoclonus

Item

7. Myoclonus

integer

C0027066 (UMLS CUI [1])

myoclonus

Code List

7. Myoclonus

CL Item

pathological (1)

C1521733 (UMLS CUI-1)

CL Item

no pathological finding (2)

CL Item

not examined (3)

C0332128 (UMLS CUI-1)
C1518422 (UMLS CUI-2)

myoclonus resting

Item

7.1. Myoclonus - resting

integer

C2749512 (UMLS CUI [1])

Code List

7.1. Myoclonus - resting

CL Item

right (1)

C0205090 (UMLS CUI-1)

CL Item

left (2)

C0205091 (UMLS CUI-1)

CL Item

bilateral (3)

C0238767 (UMLS CUI-1)

myoclonus in action

Item

7.1. Myoclonus - in action

integer

C0751354 (UMLS CUI [1])

stimulus sensitive myoclonus

Code List

7.1. Myoclonus - in action

CL Item

right (1)

C0205090 (UMLS CUI-1)

CL Item

left (2)

C0205091 (UMLS CUI-1)

CL Item

bilateral (3)

C0238767 (UMLS CUI-1)

Item

7.1. Stimulus responding myoclonus

integer

C3554156 (UMLS CUI [1])

hypermetria or hypometria

Code List

7.1. Stimulus responding myoclonus

CL Item

right (1)

C0205090 (UMLS CUI-1)

CL Item

left (2)

C0205091 (UMLS CUI-1)

CL Item

bilateral (3)

C0238767 (UMLS CUI-1)

Item

8. Hypermetria or hypometria

integer

C0234165 (UMLS CUI [1])
C3668822 (UMLS CUI [2])

brady- or dysdiadochokinesia

Code List

8. Hypermetria or hypometria

CL Item

present (1)

C0150312 (UMLS CUI-1)

CL Item

not present (2)

C0332197 (UMLS CUI-1)

CL Item

not examined (3)

C0332128 (UMLS CUI-1)
C1518422 (UMLS CUI-2)

Item

9. Brady- or Dysdiadochokinesia

integer

C0234979 (UMLS CUI [1])

Code List

9. Brady- or Dysdiadochokinesia

CL Item

present (1)

C0150312 (UMLS CUI-1)

CL Item

not present (2)

C0332197 (UMLS CUI-1)

CL Item

not examined (3)

C0332128 (UMLS CUI-1)
C1518422 (UMLS CUI-2)

alien limb

Item

Other disorders - alien limb

integer

C3160753 (UMLS CUI [1])

Code List

Other disorders - alien limb

CL Item

present (1)

C0150312 (UMLS CUI-1)

CL Item

not present (2)

C0332197 (UMLS CUI-1)

CL Item

not examined (3)

C0332128 (UMLS CUI-1)
C1518422 (UMLS CUI-2)

alien limb side

Item

Alien limb side

integer

C3160753 (UMLS CUI [1,1])
C0441987 (UMLS CUI [1,2])

cortical somatosensory disorder

Code List

Alien limb side

CL Item

right (1)

C0205090 (UMLS CUI-1)

CL Item

left (2)

C0205091 (UMLS CUI-1)

CL Item

bilateral (3)

C0238767 (UMLS CUI-1)

Item

11. Cortical somatosensory disorder

integer

C0429432 (UMLS CUI [1])

Code List

11. Cortical somatosensory disorder

CL Item

present (1)

C0150312 (UMLS CUI-1)

CL Item

not present (2)

C0332197 (UMLS CUI-1)

CL Item

not examined (3)

C0332128 (UMLS CUI-1)
C1518422 (UMLS CUI-2)

micrographia

Item

12. Micrographia

integer

C0240341 (UMLS CUI [1])

Code List

12. Micrographia

CL Item

present (1)

C0150312 (UMLS CUI-1)

CL Item

not present (2)

C0332197 (UMLS CUI-1)

CL Item

not examined (3)

C0332128 (UMLS CUI-1)
C1518422 (UMLS CUI-2)

camptocormia

Item

13. Camptocormia

integer

C0264162 (UMLS CUI [1])

Code List

13. Camptocormia

CL Item

present (1)

C0150312 (UMLS CUI-1)

CL Item

not present (2)

C0332197 (UMLS CUI-1)

CL Item

not examined (3)

C0332128 (UMLS CUI-1)
C1518422 (UMLS CUI-2)

gait abnormality

Item

14. Clinical characteristics of gait abnormality

integer

C0575081 (UMLS CUI [1,1])
C0683325 (UMLS CUI [1,2])

gait abnormality

Code List

14. Clinical characteristics of gait abnormality

CL Item

hypokinetic rigid (1)

C0086439 (UMLS CUI-1)

CL Item

frontal-apractic (2)

C1510417 (UMLS CUI-1)

CL Item

spastic (3)

C0443306 (UMLS CUI-1)

CL Item

other (myopathic, atrogen, psychogen) (4)

freezing of gait

Item

15. Freezing of gait

integer

C0860515 (UMLS CUI [1])

frontal lobe symptoms present

Code List

15. Freezing of gait

CL Item

present (1)

C0150312 (UMLS CUI-1)

CL Item

not present (2)

C0332197 (UMLS CUI-1)

CL Item

not examined (3)

C0332128 (UMLS CUI-1)
C1518422 (UMLS CUI-2)

Item

16. Clinical frontal lobe symptoms

integer

C0549117 (UMLS CUI [1])

Code List

16. Clinical frontal lobe symptoms

CL Item

present (1)

C0150312 (UMLS CUI-1)

CL Item

not present (2)

C0332197 (UMLS CUI-1)

CL Item

not examined (3)

C0332128 (UMLS CUI-1)
C1518422 (UMLS CUI-2)

frontal lobe symptoms

Item

16.1. Frontal lobe symptoms

integer

C0549117 (UMLS CUI [1])

frontal lobe symptoms

Code List

16.1. Frontal lobe symptoms

CL Item

apathy (1)

C0085632 (UMLS CUI-1)

CL Item

impulse decline (2)

CL Item

language deterioration (3)

C1843793 (UMLS CUI-1)

CL Item

bulimia (4)

C0006370 (UMLS CUI-1)

CL Item

disinhibition (5)

C0234410 (UMLS CUI-1)

CL Item

aggressiveness (6)

C0001807 (UMLS CUI-1)

CL Item

tool use behaviour (7)

C1720915 (UMLS CUI-1)

CL Item

imitative behaviour (8)

C0020936 (UMLS CUI-1)

CL Item

stereotyped behaviour (9)

C0038271 (UMLS CUI-1)

CL Item

pathological laughing or crying (10)

C2316460 (UMLS CUI-1)

CL Item

other signs of disinhibition (hyperactivity, logorrhea) (11)

glabella reflex

Item

16.2. Glabella reflex

integer

C0576550 (UMLS CUI [1])

Code List

16.2. Glabella reflex

CL Item

positive (1)

C1446409 (UMLS CUI-1)

CL Item

negative (0)

C0205160 (UMLS CUI-1)

CL Item

not examined (2)

C0332128 (UMLS CUI-1)
C1518422 (UMLS CUI-2)

snout reflex

Item

16.3. Snout reflex

integer

C0241186 (UMLS CUI [1])

Code List

16.3. Snout reflex

CL Item

positive (1)

C1446409 (UMLS CUI-1)

CL Item

negative (0)

C0205160 (UMLS CUI-1)

CL Item

not examined (2)

C0332128 (UMLS CUI-1)
C1518422 (UMLS CUI-2)

palm-chin reflex

Item

16.4. Palm-chin reflex

integer

C0948731 (UMLS CUI [1])

Code List

16.4. Palm-chin reflex

CL Item

positive (1)

C1446409 (UMLS CUI-1)

CL Item

negative (0)

C0205160 (UMLS CUI-1)

CL Item

not examined (2)

C0332128 (UMLS CUI-1)
C1518422 (UMLS CUI-2)

apraxia signs

Item

17. Apraxia signs

integer

C0234520 (UMLS CUI [1])

apraxia of extremities side

Code List

17. Apraxia signs

CL Item

present (1)

C0150312 (UMLS CUI-1)

CL Item

not present (2)

C0332197 (UMLS CUI-1)

CL Item

not examined (3)

C0332128 (UMLS CUI-1)
C1518422 (UMLS CUI-2)

apraxia signs type

Item

17.1. Apraxia signs type

integer

C0234520 (UMLS CUI [1])

apraxia signs type

Code List

17.1. Apraxia signs type

CL Item

buccofacial (1)

C0750928 (UMLS CUI-1)

CL Item

apraxia of extremeties (2)

C0234520 (UMLS CUI-1)
C0278454 (UMLS CUI-2)

Item

Apraxia of extremities side

integer

C0234520 (UMLS CUI [1,1])
C0278454 (UMLS CUI [1,2])
C0441987 (UMLS CUI [1,3])

one-sided ideomotoric apraxia

Code List

Apraxia of extremities side

CL Item

right (1)

C0205090 (UMLS CUI-1)

CL Item

left (2)

C0205091 (UMLS CUI-1)

CL Item

bilateral (3)

C0238767 (UMLS CUI-1)

Item

17.2. Is there a one-sided ideomotoric apraxia present?

integer

C0234523 (UMLS CUI [1,1])
C0205092 (UMLS CUI [1,2])

Code List

17.2. Is there a one-sided ideomotoric apraxia present?

CL Item

present (1)

C0150312 (UMLS CUI-1)

CL Item

not present (2)

C0332197 (UMLS CUI-1)

CL Item

not examined (3)

C0332128 (UMLS CUI-1)
C1518422 (UMLS CUI-2)

constructual apraxia

Item

17.3. Is there a constructual apraxia present?

integer

C2243023 (UMLS CUI [1])

Code List

17.3. Is there a constructual apraxia present?

CL Item

present (1)

C0150312 (UMLS CUI-1)

CL Item

not present (2)

C0332197 (UMLS CUI-1)

CL Item

not examined (3)

C0332128 (UMLS CUI-1)
C1518422 (UMLS CUI-2)

sensorial hemineglect

Item

18. Is there a visual or sensorial hemineglect present?

integer

C0751418 (UMLS CUI [1])

pseudohallucinations or hallucinations

Code List

18. Is there a visual or sensorial hemineglect present?

CL Item

present (1)

C0150312 (UMLS CUI-1)

CL Item

not present (2)

C0332197 (UMLS CUI-1)

CL Item

not examined (3)

C0332128 (UMLS CUI-1)
C1518422 (UMLS CUI-2)

Item

19. Are pseudohallucinations or hallucinations reported or are these in the examination situation apparent?

integer

C0233758 (UMLS CUI [1])
C0018524 (UMLS CUI [2])

Code List

19. Are pseudohallucinations or hallucinations reported or are these in the examination situation apparent?

CL Item

present (1)

C0150312 (UMLS CUI-1)

CL Item

not present (2)

C0332197 (UMLS CUI-1)

CL Item

not examined (3)

C0332128 (UMLS CUI-1)
C1518422 (UMLS CUI-2)

speech disorder

Item

20. Speech disorder

integer

C0037822 (UMLS CUI [1])

characterization of the speech disorder

Code List

20. Speech disorder

CL Item

present (1)

C0150312 (UMLS CUI-1)

CL Item

not present (2)

C0332197 (UMLS CUI-1)

CL Item

not examined (3)

C0332128 (UMLS CUI-1)
C1518422 (UMLS CUI-2)

Item

20.1. Clinical Characterization of the speech disorder

text

C0037822 (UMLS CUI [1])

characterization of the speech disorder

Code List

20.1. Clinical Characterization of the speech disorder

CL Item

cerebellar dysarthria (cerebellar dysarthria)

CL Item

hypokinetic (-rigid)/hypophonia (hypokinetic (-rigid)/hypophonia)

CL Item

bulbar dysarthria (bulbar dysarthria)

CL Item

spastic dysarthria (spastic dysarthria)

CL Item

inspiratory stridor (inspiratory stridor)

CL Item

freezing of speech (freezing of speech)

CL Item

other (other)

speech apraxia

Item

20.2 Speech apraxia

integer

C0264611 (UMLS CUI [1])

Code List

20.2 Speech apraxia

CL Item

present (1)

C0150312 (UMLS CUI-1)

CL Item

not present (2)

C0332197 (UMLS CUI-1)

CL Item

not examined (3)

C0332128 (UMLS CUI-1)
C1518422 (UMLS CUI-2)

disfluent aphasia

Item

21.1. disfluent aphasia

boolean

C0003550 (UMLS CUI [1])

semantic aphasia

Item

Semantic aphasia

boolean

dysphagia

Item

22. Dysphagia

integer

C0011168 (UMLS CUI [1])

Code List

22. Dysphagia

CL Item

present (1)

C0150312 (UMLS CUI-1)

CL Item

not present (2)

C0332197 (UMLS CUI-1)

CL Item

not examined (3)

C0332128 (UMLS CUI-1)
C1518422 (UMLS CUI-2)

oculomotoric disorder

Item

23. Oculomotoric disorder

integer

C0028866 (UMLS CUI [1])

accadic horizontal eye movement

Code List

23. Oculomotoric disorder

CL Item

present (1)

C0150312 (UMLS CUI-1)

CL Item

not present (2)

C0332197 (UMLS CUI-1)

CL Item

not examined (3)

C0332128 (UMLS CUI-1)
C1518422 (UMLS CUI-2)

Item

23.1. Accadic horizontal eye movement

text

C0234649 (UMLS CUI [1])

accadic horizontal eye movement

Code List

23.1. Accadic horizontal eye movement

CL Item

present (present)

CL Item

not present (not present)

CL Item

not examined (not examined)

CL Item

abortion (abortion )

CL Item

abortion of eye movement (abortion of eye movement)

slowed saccades

Item

23.2. Slowed saccades

integer

C1321329 (UMLS CUI [1])

Code List

23.2. Slowed saccades

CL Item

present (1)

C0150312 (UMLS CUI-1)

CL Item

not present (2)

C0332197 (UMLS CUI-1)

CL Item

not examined (3)

C0332128 (UMLS CUI-1)
C1518422 (UMLS CUI-2)

hypometric saccades

Item

23.3. Hypometric saccades

integer

C0423082 (UMLS CUI [1])

supranuclear facial paresis

Code List

23.3. Hypometric saccades

CL Item

present (1)

C0150312 (UMLS CUI-1)

CL Item

not present (2)

C0332197 (UMLS CUI-1)

CL Item

not examined (3)

C0332128 (UMLS CUI-1)
C1518422 (UMLS CUI-2)

Item

23.4. Supranuclear facial paresis

integer

C0546194 (UMLS CUI [1])

supranuclear facial paresis direction

Code List

23.4. Supranuclear facial paresis

CL Item

present (1)

C0150312 (UMLS CUI-1)

CL Item

not present (2)

C0332197 (UMLS CUI-1)

CL Item

not examined (3)

C0332128 (UMLS CUI-1)
C1518422 (UMLS CUI-2)

Item

23.4.1. If present, please specify:

text

C0546194 (UMLS CUI [1])

supranuclear facial paresis direction

Code List

23.4.1. If present, please specify:

CL Item

horizontal left (horizontal left)

CL Item

horizontal right (horizontal right)

CL Item

vertical left (vertical left)

CL Item

vertical right (vertical right)

occurrence of vertical gaze palsy

Item

23.4.2. Occurrence of vertical gazevpalsy after first motoric symptoms

text

C0339652 (UMLS CUI [1])

occurrence of vertical gaze palsy

Code List

23.4.2. Occurrence of vertical gazevpalsy after first motoric symptoms

CL Item

< 1 Year (< 1 Year)

CL Item

>1 Year (>1 Year)

gaze nystagmus

Item

23.5. Gaze nystagmus

text

C0344244 (UMLS CUI [1])

gaze nystagmus

Code List

23.5. Gaze nystagmus

CL Item

horizontal (horizontal)

CL Item

vertical (vertical)

CL Item

not present (not present)

CL Item

not examined (not examined)

other oculomotoric disorder and unspecific ocular symptoms

Item

23.6 Other oculomotoric disorder and unspecific ocular symptoms

text

C0028866 (UMLS CUI [1,1])
C0205394 (UMLS CUI [1,2])
C1457887 (UMLS CUI [2,1])
C1299003 (UMLS CUI [2,2])

Umsars I: Questions 9-12

Item Group

Umsars I: Questions 9-12

UMSARS I not done

Item

boolean

C1272696 (UMLS CUI [1])

Anamnesis motor skills

Item Group

Anamnesis motor skills

progressive course of the motor deficits

Item

1. Progressive course of the motor deficits

text

C1335498 (UMLS CUI [1,1])
C0221163 (UMLS CUI [1,2])

progressive course of the motor deficits

Code List

1. Progressive course of the motor deficits

CL Item

slowly progressive (slowly progressive)

CL Item

rapidly progressive (rapidly progressive)

CL Item

other (in phases) (other (in phases))

CL Item

no (no)

CL Item

unknown (unknown)

unilateral course of motor disorder

Item

2. Unilateral course of motor deficits

text

C0221163 (UMLS CUI [1,1])
C0750729 (UMLS CUI [1,2])
C0205092 (UMLS CUI [1,3])

unilateral course of motor disorder

Code List

2. Unilateral course of motor deficits

CL Item

>3 Years (>3 Years)

CL Item

no (no )

CL Item

unknown (unknown)

intake of Levodopa

Item

3. Intake of Levodopa

text

C0023570 (UMLS CUI [1])

duration Levodopa medication

Code List

3. Intake of Levodopa

CL Item

Yes (Yes)

CL Item

No (No)

CL Item

Unknown (Unknown)

Item

3.1. How long was Levodopa taken?

text

C0023570 (UMLS CUI [1,1])
C0449238 (UMLS CUI [1,2])

duration Levodopa medication

Code List

3.1. How long was Levodopa taken?

CL Item

5 Years (<)

CL Item

> 5-10 Years (> 5-10 Years)

CL Item

> 10 Years (> 10 Years)

CL Item

unknown (unknown)

response to Levodopa

Item

3.2. Response to Levodopa

text

C0521982 (UMLS CUI [1])

response to Levodopa

Code List

3.2. Response to Levodopa

CL Item

very good (70-100%) (very good (70-100%))

CL Item

moderately good (31-69%) (moderately good (31-69%))

CL Item

poor (0-30%) (poor (0-30%))

CL Item

unknown (unknown)

falling

Item

4. Does the participant fall?

text

C0085639 (UMLS CUI [1])

occurrence of falling after first motor symptoms

Code List

4. Does the participant fall?

CL Item

Yes (Yes)

CL Item

No (No)

CL Item

Unknown (Unknown)

Item

4.1. Occurrence of falling after first motor symptoms:

text

C0085639 (UMLS CUI [1])

occurrence of falling after first motor symptoms

Code List

4.1. Occurrence of falling after first motor symptoms:

CL Item

< 1 Year (< 1 Year)

CL Item

> 3 Years (> 3 Years)

CL Item

1-3 Years (1-3 Years)

sensibility to neuroleptics

Item

5. Elevated sensibility to neuroleptics present

text

C0439823 (UMLS CUI [1,1])
C0040615 (UMLS CUI [1,2])

Code List

5. Elevated sensibility to neuroleptics present

CL Item

Yes (Yes)

CL Item

No (No)

CL Item

Unknown (Unknown)

restless leg syndrome

Item

6. Restless leg syndrome diagnosed?

text

C0035258 (UMLS CUI [1])

Montreal Cognitive Assessment (MoCA)

Code List

6. Restless leg syndrome diagnosed?

CL Item

Yes (Yes)

CL Item

No (No)

CL Item

Unknown (Unknown)

Item Group

Montreal Cognitive Assessment (MoCA)

C3496286 (UMLS CUI-1)

visuospatial executive points

Item

Visuospatial/ Executive

integer

C2370887 (UMLS CUI [1])
C0935584 (UMLS CUI [2])

naming points

Item

Naming

integer

C0233735 (UMLS CUI [1])

attention points

Item

Attention

integer

C0004268 (UMLS CUI [1])

language points

Item

Language

integer

C0233733 (UMLS CUI [1])

abstraction points

Item

Abstraction

integer

C0679195 (UMLS CUI [1])

memory points

Item

Memory

integer

C0025260 (UMLS CUI [1])

orientation points

Item

Orientation

integer

C0029266 (UMLS CUI [1])

total score MoCA

Item

Total score

integer

C3496286 (UMLS CUI [1])

Geriatric depression scale (GDS)

Item Group

Geriatric depression scale (GDS)

C0451184 (UMLS CUI-1)

life satisfaction

Item

1. Are you basically satisfied with your life?

boolean

C0392352 (UMLS CUI [1])

dropped activities and interests

Item

2. Have you dropped many of your activities and interests?

boolean

C3830041 (UMLS CUI [1])

empty life

Item

3. Do you feel that your life is empty?

boolean

C3830035 (UMLS CUI [1])

often bored

Item

4. Do you often get bored?

boolean

C3830021 (UMLS CUI [1])

in good spirits

Item

5. Are you in good spirits most of the time?

boolean

C3830028 (UMLS CUI [1])

afraid of bad thing happening

Item

6. Are you afraid that something bad is going to happen to you?

boolean

C3830044 (UMLS CUI [1])

happiness

Item

7. Do you feel happy most of the time?

boolean

C3830036 (UMLS CUI [1])

feeling helpless

Item

8. Do you often feel helpless?

boolean

C3830022 (UMLS CUI [1])

prefer to stay home

Item

9. Do you prefer to stay at home, rather than going out and doing new things?

boolean

C3830018 (UMLS CUI [1])

feeling more memory problems

Item

10. Do you feel you have more problems with memory than most?

boolean

C3830023 (UMLS CUI [1])

wonderful life

Item

11. Do you think it is wonderful to be alive now?

boolean

C3830000 (UMLS CUI [1])

feeling worhless

Item

12. Do you feel pretty worthless the way you are now?

boolean

C3830010 (UMLS CUI [1])

full of energy

Item

13. Do you feel full of energy?

boolean

C3830037 (UMLS CUI [1])

hopeless situation

Item

14. Do you feel that your situation is hopeless?

boolean

C3830034 (UMLS CUI [1])

most people better off

Item

15. Do you think that most people are better off than you are?

boolean

C3830001 (UMLS CUI [1])

score GDS

Item

Score GDS

integer

C0451184 (UMLS CUI [1])

Sampling - Blood collection

Item Group

Sampling - Blood collection

blood collection

Item

Blood collection done?

boolean

C0005834 (UMLS CUI [1])

date of blood collection

Item

Date of blood collection

datetime

C0190979 (UMLS CUI [1,1])
C0011008 (UMLS CUI [1,2])

blood collection successful

Item

Was the blood collection successful finished?

boolean

C0005834 (UMLS CUI [1,1])
C3258067 (UMLS CUI [1,2])

blood collection not successful reasons

Item

If "not successful" please give reasons:

text

C0939982 (UMLS CUI [1,1])
C0005834 (UMLS CUI [1,2])
C3258067 (UMLS CUI [1,3])

patient empty-stomached

Item

Empty-stomached (during last 12 hrs)?

boolean

C3686898 (UMLS CUI [1])

last meal

Item

Last meal:

datetime

C0578574 (UMLS CUI [1,1])
C0011008 (UMLS CUI [1,2])

last beverage

Item

Last beverage:

datetime

C0005329 (UMLS CUI [1,1])
C0011008 (UMLS CUI [1,2])

last beverage with coffeine

Item

Last beverage with coffeine:

datetime

C0678438 (UMLS CUI [1,1])
C0011008 (UMLS CUI [1,2])

tabacco consumption

Item

Tabacco smoke (during the last 12 hrs)

boolean

C0439994 (UMLS CUI [1])

last tabacco smoke

Item

Last tabacco smoke:

datetime

C0439994 (UMLS CUI [1,1])
C0011008 (UMLS CUI [1,2])

Sampling according to SOP

Item Group

Sampling according to SOP

SOP for sampling

Item

1. Sampling performed according to SOP-BM-01?

boolean

C1710183 (UMLS CUI [1,1])
C0870078 (UMLS CUI [1,2])

SOP version

Item

1.1. SOP version (No.)

text

C1710183 (UMLS CUI [1])

deviations from SOP

Item

2. Any deviations from SOP-BM-01

boolean

C1710183 (UMLS CUI [1])

other vacutainer used

Item

2.1. Other vacutainer used for blood collection and not those at disposal.

boolean

C1883522 (UMLS CUI [1,1])
C0205394 (UMLS CUI [1,2])

other vacutainer name

Item

2.1.1. other vacutainer, please specify:

text

C1883522 (UMLS CUI [1,1])
C0205394 (UMLS CUI [1,2])

deviation from SOP version

Item

2.2. Any deviation from SOP-KA-03, Version X?

boolean

C1710183 (UMLS CUI [1])

Registration of samples

Item Group

Registration of samples

serum with coagulation activator not done

Item

Tube-Type: Serum with coagulation activator Volume: 9 ml Unit: ml NOT DONE

boolean

C0229671 (UMLS CUI [1,1])
C0005789 (UMLS CUI [1,2])

serum with coagulation activator tube code

Item

Tube-Type: Serum with coagulation activator Volume: 9 ml Unit: ml

text

C0004738 (UMLS CUI [1,1])
C0229671 (UMLS CUI [1,2])
C0005789 (UMLS CUI [1,3])

serum without coagulation activator not done

Item

Tube: Serum without coagulation activator Volume: 9 Unit: ml NOT DONE

boolean

C0229671 (UMLS CUI [1,1])
C0005789 (UMLS CUI [1,2])
C0332197 (UMLS CUI [1,3])

serum without coagulation activator tube code

Item

Tube: Serum without coagulation activator Volume: 9 Unit: ml

text

C0004738 (UMLS CUI [1,1])
C0229671 (UMLS CUI [1,2])
C0005789 (UMLS CUI [1,3])
C0332197 (UMLS CUI [1,4])

EDTA plasma not done

Item

Tube: EDTA plasma Volume: 9 Unit: ml

boolean

C3872626 (UMLS CUI [1])

EDTA plasma tube code

Item

Tube: EDTA plasma Volume: 9 Unit: ml

text

C0004738 (UMLS CUI [1,1])
C3872626 (UMLS CUI [1,2])

citrate plasma 1 not done

Item

Tube: Citrate plasma 1 Volume: 4,3 Unit: ml NOT DONE

boolean

C3875584 (UMLS CUI [1])

citrate plasma 1 tube code

Item

Tube: Citrate plasma 1 Volume: 4,3 Unit: ml

text

C0004738 (UMLS CUI [1,1])
C3875584 (UMLS CUI [1,2])

citrate plasma 2 not done

Item

Tube: Citrate plasma 2 Volume: 4,3 Unit: ml NOT DONE

boolean

C3875584 (UMLS CUI [1])

citrate plasma 2 tube code

Item

Tube: Citrate plasma 2 Volume: 4,3 Unit: ml

text

C0004738 (UMLS CUI [1,1])
C3875584 (UMLS CUI [1,2])

PAXgene RNA 1 not done

Item

Tube: PAXgene RNA 1 Volume: 2,7 Unit: ml NOT DONE

boolean

C1418273 (UMLS CUI [1])

PAXgene RNA 1 tube code

Item

Tube: PAXgene RNA 1 Volume: 2,7 Unit: ml

text

C0004738 (UMLS CUI [1,1])
C1418273 (UMLS CUI [1,2])

PAXgene RNA 2 not done

Item

Tube: PAXgene RNA2 Volume: 2,7 Unit: ml NOT DONE

boolean

C1418273 (UMLS CUI [1])

PAXgene RNA 2 tube code

Item

Tube: PAXgene RNA 2 Volume: 2,7 Unit: ml

text

C0004738 (UMLS CUI [1,1])
C1418273 (UMLS CUI [1,2])

CPT full blood not done

Item

Tube: CPT full blood Volume: 8 Unit: ml NOT DONE

boolean

CPT full blood tube code

Item

Tube: CPT full blood Volume: 8 Unit: ml

text

C0004738 (UMLS CUI [1])

CPT full blood 2 not done

Item

Tube: CPT full blood Volume: 8 Unit: ml NOT DONE

boolean

CPT full blood 2 tube code

Item

Tube: CPT full blood Volume: 8 Unit: ml

text

C0004738 (UMLS CUI [1])

Sampling - Urine sample

Item Group

Sampling - Urine sample

collection of urine

Item

Was a collection of urine done?

boolean

C2371162 (UMLS CUI [1])

date of urine sample

Item

date of urine sample

datetime

C2371162 (UMLS CUI [1,1])
C0011008 (UMLS CUI [1,2])

empty-stomached last 12hrs

Item

Empty-stomached (during the last 12hrs)?

boolean

C3686898 (UMLS CUI [1])

last meal

Item

Last meal:

datetime

C0578574 (UMLS CUI [1,1])
C0011008 (UMLS CUI [1,2])

last beverage

Item

Last beverage:

datetime

C0005329 (UMLS CUI [1,1])
C0011008 (UMLS CUI [1,2])

last coffeine beverage

Item

Last beverage with coffeine:

datetime

C0678438 (UMLS CUI [1,1])
C0011008 (UMLS CUI [1,2])

tabacco smoke

Item

Consumption of tabacco (during last 12hrs)?

boolean

C0439994 (UMLS CUI [1])

last tabacco smoke

Item

Last tabacco consumption

datetime

C0439994 (UMLS CUI [1,1])
C0011008 (UMLS CUI [1,2])

Sampling according to SOP (Urine)

Item Group

Sampling according to SOP (Urine)

SOP for urine sampling

Item

1. Sampling performed according to SOP-BM-01?

boolean

C1710183 (UMLS CUI [1,1])
C0870078 (UMLS CUI [1,2])

SOP version no

Item

1.1. SOP version (No.):

text

C1710183 (UMLS CUI [1])

deviations from SOP

Item

2. Any deviations from SOP-BM-01?

boolean

C1710183 (UMLS CUI [1])

other container used

Item

2.1. Other container used for urine collection and not those at disposal.

boolean

C3857171 (UMLS CUI [1,1])
C0205394 (UMLS CUI [1,2])

other container name

Item

2.1.1. If other container used for urine sample, please specify:

text

C3857171 (UMLS CUI [1,1])
C0205394 (UMLS CUI [1,2])

urine strips

Item

2.2. Urine strips used

boolean

C0775879 (UMLS CUI [1])

Results of urine strips

Item Group

Results of urine strips

Item

Glucose

integer

C0004076 (UMLS CUI [1])

Code List

Glucose

CL Item

0 (0)

CL Item

+ (1)

CL Item

++ (2)

WBC urine

Item

Leucocytes

integer

C0919738 (UMLS CUI [1])

Code List

Leucocytes

CL Item

0 (0)

CL Item

+ (1)

CL Item

++ (2)

nitrite urine

Item

Nitrite urine

integer

C0580333 (UMLS CUI [1])

Code List

Nitrite urine

CL Item

0 (0)

CL Item

+ (1)

CL Item

++ (2)

albumin urine

Item

Albumin

integer

C1318429 (UMLS CUI [1])

Code List

Albumin

CL Item

0 (0)

CL Item

+ (1)

CL Item

++ (2)

RBC urine

Item

Erythrocytes

integer

C2188659 (UMLS CUI [1])

Code List

Erythrocytes

CL Item

0 (0)

CL Item

+ (1)

CL Item

++ (2)

hemoglobin urine

Item

Hemoglobin

integer

C0236439 (UMLS CUI [1])