ID

41319

Description

Stewart, Hu, Hezel, Proujansky, Lamstein, Walsh, Ben-Joseph, Gironda, Jenike, Geller & Pauls. (2012). OCD Family Functioning (OFF) Scale. Measurement Instrument Database for the Social Science. Retrieved 19.08.2020 from www.midss.ie Key references: Stewart, E. S., Hu, Y. P., Hezel, D. M., Proujansky, R., Lamstein, A., Walsh, C., … & Pauls, D. L. (2011). Development and psychometric properties of the OCD family functioning (OFF) scale. Journal of Family Psychology, 25, 434-443. Primary use / Purpose: The OFF was developed to explore the content, extent, and perspectives of functional impairment in families affected by OCD. Background: Obsessive Compulsive Disorder (OCD) often has a great impact on family functioning. Parents, and other family members, often become involved in the individual's ritualistic behaviours and family accomodation, either through enabling avoidance or assisting ritualistic behaviours, is very common. The OCD Family Functioning (OFF) Scale is a 42 item self-report questionnaire that consists of three major subscales: family functioning impairment, symptom-specific impairment, and family role-specific impairment. It is designed for use with families of adults and children with OCD. Two versions of the scale are available- a patient version and a relative version. The results of the scale may be used to assess family functioning and to help plan interventions and treatments. Scoring is described in Stewart et al. (2011). Psychometrics: The scale's psychometric properties are examined in Stewart et al. (2011). Keywords: Anxiety, Family, Stress Other keywords: obsessive compulsive disorder, OCD, functional impairment, family Digital Object Identifier (DOI): http://dx.doi.org/10.13072/midss.231

Link

www.midss.ie

Keywords

Versions (1)
  1. 8/19/20 8/19/20 -
Copyright Holder

Stewart, Hu, Hezel, Proujansky, Lamstein, Walsh, Ben-Joseph, Gironda, Jenike, Geller, Pauls

Uploaded on

August 19, 2020

DOI

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License

Creative Commons BY-NC 4.0
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Measurement Instrument Database for the Social Science (MIDSS)

English

OCD Family Functioning (OFF) Scale - Relative Version

1 forms  
General Information
Description

General Information

Alias
UMLS CUI-1
C1508263
Your name or ID number
Description

Your name or ID number

Data type

text

Alias
UMLS CUI [1]
C1299487
UMLS CUI [2]
C1269815
Today’s Date
Description

Today’s Date

Data type

date

Alias
UMLS CUI [1]
C0011008
Your Gender
Description

Your Gender

Data type

text

Alias
UMLS CUI [1]
C0079399
Your Age
Description

Your Age

Data type

text

Alias
UMLS CUI [1]
C0001779
Age of first OCD Symptoms (y): refers to your OCD-affected relative
Description

Age of first OCD Symptoms (y)

Data type

integer

Alias
UMLS CUI [1,1]
C0150907
UMLS CUI [1,2]
C0028768
What is your relationship to your OCD-affected relative? I am his/her:
Description

What is your relationship to your OCD-affected relative? I am his/her:

Alias
UMLS CUI-1
C0015608
UMLS CUI-2
C0028768
Mother
Description

Mother

Data type

boolean

Alias
UMLS CUI [1]
C0026591
Father
Description

Father

Data type

boolean

Alias
UMLS CUI [1]
C0015671
Sibling
Description

Sibling

Data type

boolean

Alias
UMLS CUI [1]
C0037047
Child
Description

Child

Data type

boolean

Alias
UMLS CUI [1]
C0008059
Spouse
Description

Spouse

Data type

boolean

Alias
UMLS CUI [1]
C0162409
Extended Family
Description

Extended Family

Data type

boolean

Alias
UMLS CUI [1]
C0015341
Other
Description

Other

Data type

boolean

Alias
UMLS CUI [1]
C0205394
Other: Specify
Description

Other: Specify

Data type

text

Alias
UMLS CUI [1,1]
C0205394
UMLS CUI [1,2]
C1521902
Whom do you live with? “YOU” refers to your OCD-affected relative
Description

Whom do you live with? “YOU” refers to your OCD-affected relative

Alias
UMLS CUI-1
C2184149
Mother
Description

Mother

Data type

boolean

Alias
UMLS CUI [1]
C0026591
Father
Description

Father

Data type

boolean

Alias
UMLS CUI [1]
C0015671
Sibling
Description

Sibling

Data type

boolean

Alias
UMLS CUI [1]
C0037047
Child
Description

Child

Data type

boolean

Alias
UMLS CUI [1]
C0008059
Spouse
Description

Spouse

Data type

boolean

Alias
UMLS CUI [1]
C0162409
Extended Family
Description

Extended Family

Data type

boolean

Alias
UMLS CUI [1]
C0015341
Friend
Description

Friend

Data type

boolean

Alias
UMLS CUI [1]
C0079382
Other
Description

Other

Data type

boolean

Alias
UMLS CUI [1]
C0205394
Other: Specify
Description

Other: Specify

Data type

text

Alias
UMLS CUI [1,1]
C0205394
UMLS CUI [1,2]
C1521902
I live alone
Description

I live alone

Data type

boolean

Alias
UMLS CUI [1]
C0439044
What types of treatment(s) have you tried for your OCD? (check all that apply) “YOU” refers to your OCD-affected relative:
Description

What types of treatment(s) have you tried for your OCD? (check all that apply) “YOU” refers to your OCD-affected relative:

Alias
UMLS CUI-1
C0028768
UMLS CUI-2
C0087111
None
Description

None

Data type

boolean

Alias
UMLS CUI [1]
C0549184
Talking Therapy
Description

Talking Therapy

Data type

boolean

Alias
UMLS CUI [1]
C0033968
Medication
Description

Medication

Data type

boolean

Alias
UMLS CUI [1]
C0013227
Family Therapy
Description

Family Therapy

Data type

boolean

Alias
UMLS CUI [1]
C0015618
Other
Description

Other

Data type

boolean

Alias
UMLS CUI [1]
C0205394
Behavior Therapy
Description

Behavior Therapy

Data type

boolean

Alias
UMLS CUI [1]
C0004933
Have any of the following people been diagnosed with OCD? If so, who? “YOU” refers to your OCD-affected relative
Description

Have any of the following people been diagnosed with OCD? If so, who? “YOU” refers to your OCD-affected relative

Alias
UMLS CUI-1
C0011900
UMLS CUI-2
C0028768
Mother
Description

Mother

Data type

boolean

Alias
UMLS CUI [1]
C0026591
Father
Description

Father

Data type

boolean

Alias
UMLS CUI [1]
C0015671
Sibling
Description

Sibling

Data type

boolean

Alias
UMLS CUI [1]
C0037047
Child
Description

Child

Data type

boolean

Alias
UMLS CUI [1]
C0008059
Spouse
Description

Spouse

Data type

boolean

Alias
UMLS CUI [1]
C0162409
Extended Family
Description

Extended Family

Data type

boolean

Alias
UMLS CUI [1]
C0015341
Other
Description

Other

Data type

boolean

Alias
UMLS CUI [1]
C0205394
N/A
Description

N/A

Data type

boolean

Alias
UMLS CUI [1]
C1272460
Do any of the following people have suspected OCD or Obsessive Compulsive symptoms? If so, who? “YOU” refers to your OCD-affected relative
Description

Do any of the following people have suspected OCD or Obsessive Compulsive symptoms? If so, who? “YOU” refers to your OCD-affected relative

Alias
UMLS CUI-1
C0028768
UMLS CUI-2
C1457887
UMLS CUI-3
C0332147
Mother
Description

Mother

Data type

boolean

Alias
UMLS CUI [1]
C0026591
Father
Description

Father

Data type

boolean

Alias
UMLS CUI [1]
C0015671
Sibling
Description

Sibling

Data type

boolean

Alias
UMLS CUI [1]
C0037047
Child
Description

Child

Data type

boolean

Alias
UMLS CUI [1]
C0008059
Spouse
Description

Spouse

Data type

boolean

Alias
UMLS CUI [1]
C0162409
Extended Family
Description

Extended Family

Data type

boolean

Alias
UMLS CUI [1]
C0015341
Other
Description

Other

Data type

boolean

Alias
UMLS CUI [1]
C0205394
N/A
Description

N/A

Data type

boolean

Alias
UMLS CUI [1]
C1272460
Please complete this to the best of your ability with regards to his/her OCD. There are no right or wrong answers. If none of the options applies, please choose the closest option.
Description

Please complete this to the best of your ability with regards to his/her OCD. There are no right or wrong answers. If none of the options applies, please choose the closest option.

How OFTEN does his/her Current OCD interfere with family:
Description

How OFTEN does his/her Current OCD interfere with family:

Alias
UMLS CUI-1
C0028768
UMLS CUI-2
C0521116
UMLS CUI-3
C0521102
UMLS CUI-4
C0015576
1. Morning routines
Description

Morning routines

Data type

integer

Alias
UMLS CUI [1,1]
C0332170
UMLS CUI [1,2]
C0205547
2. Lateness to work/school
Description

Lateness to work/school

Data type

integer

Alias
UMLS CUI [1,1]
C0205087
UMLS CUI [1,2]
C0043227
UMLS CUI [2,1]
C0205087
UMLS CUI [2,2]
C0036375
3. Mealtimes
Description

Mealtimes

Data type

integer

Alias
UMLS CUI [1]
C0587119
4. Social/family functions
Description

Social/family functions

Data type

integer

Alias
UMLS CUI [1]
C0037420
UMLS CUI [2]
C0015608
5. Planning/scheduling
Description

Planning/scheduling

Data type

integer

Alias
UMLS CUI [1]
C0032074
6. Going to restaurants
Description

Going to restaurants

Data type

integer

Alias
UMLS CUI [1]
C4289683
7. Shopping/going to the mall
Description

Shopping/going to the mall

Data type

integer

Alias
UMLS CUI [1]
C0150768
8. Trips/vacations
Description

Trips/vacations

Data type

integer

Alias
UMLS CUI [1]
C0680199
9. Keeping appointments
Description

Keeping appointments

Data type

integer

Alias
UMLS CUI [1]
C4534524
10. Bedtime routines
Description

Bedtime routines

Data type

integer

Alias
UMLS CUI [1,1]
C0521112
UMLS CUI [1,2]
C0205547
11. Religious/spiritual worship
Description

Religious/spiritual worship

Data type

integer

Alias
UMLS CUI [1]
C0518645
How OFTEN does his/her Worst Ever OCD interfere with family:
Description

How OFTEN does his/her Worst Ever OCD interfere with family:

Alias
UMLS CUI-1
C0028768
UMLS CUI-2
C1522166
UMLS CUI-3
C0521102
UMLS CUI-4
C0015576
1. Morning routines
Description

Morning routines

Data type

integer

Alias
UMLS CUI [1,1]
C0332170
UMLS CUI [1,2]
C0205547
2. Lateness to work/school
Description

Lateness to work/school

Data type

integer

Alias
UMLS CUI [1,1]
C0205087
UMLS CUI [1,2]
C0043227
UMLS CUI [2,1]
C0205087
UMLS CUI [2,2]
C0036375
3. Mealtimes
Description

Mealtimes

Data type

integer

Alias
UMLS CUI [1]
C0587119
4. Social/family functions
Description

Social/family functions

Data type

integer

Alias
UMLS CUI [1]
C0037420
UMLS CUI [2]
C0015608
5. Planning/scheduling
Description

Planning/scheduling

Data type

integer

Alias
UMLS CUI [1]
C0032074
6. Going to restaurants
Description

Going to restaurants

Data type

integer

Alias
UMLS CUI [1]
C4289683
7. Shopping/going to the mall
Description

Shopping/going to the mall

Data type

integer

Alias
UMLS CUI [1]
C0150768
8. Trips/vacations
Description

Trips/vacations

Data type

integer

Alias
UMLS CUI [1]
C0680199
9. Keeping appointments
Description

Keeping appointments

Data type

integer

Alias
UMLS CUI [1]
C4534524
10. Bedtime routines
Description

Bedtime routines

Data type

integer

Alias
UMLS CUI [1,1]
C0521112
UMLS CUI [1,2]
C0205547
11. Religious/spiritual worship
Description

Religious/spiritual worship

Data type

integer

Alias
UMLS CUI [1]
C0518645
How OFTEN does his/her Current OCD impact the social life of:
Description

How OFTEN does his/her Current OCD impact the social life of:

Alias
UMLS CUI-1
C0028768
UMLS CUI-2
C0521116
UMLS CUI-3
C4049986
UMLS CUI-4
C0815198
12. You
Description

You

Data type

integer

Alias
UMLS CUI [1]
C0036588
13. Other family members with OCD
Description

Other family members with OCD

Data type

integer

Alias
UMLS CUI [1,1]
C0086282
UMLS CUI [1,2]
C0028768
14. Other family members without OCD
Description

Other family members without OCD

Data type

integer

Alias
UMLS CUI [1,1]
C0086282
UMLS CUI [1,2]
C0332288
UMLS CUI [1,3]
C0028768
How OFTEN does his/her Worst Ever OCD impact the social life of:
Description

How OFTEN does his/her Worst Ever OCD impact the social life of:

Alias
UMLS CUI-1
C0028768
UMLS CUI-2
C1522166
UMLS CUI-3
C4049986
UMLS CUI-4
C0815198
12. You
Description

You

Data type

integer

Alias
UMLS CUI [1]
C0036588
13. Other family members with OCD
Description

Other family members with OCD

Data type

integer

Alias
UMLS CUI [1,1]
C0086282
UMLS CUI [1,2]
C0028768
14. Other family members without OCD
Description

Other family members without OCD

Data type

integer

Alias
UMLS CUI [1,1]
C0086282
UMLS CUI [1,2]
C0332288
UMLS CUI [1,3]
C0028768
How OFTEN does his/her Current OCD impact the work/school performance of:
Description

How OFTEN does his/her Current OCD impact the work/school performance of:

Alias
UMLS CUI-1
C0028768
UMLS CUI-2
C0521116
UMLS CUI-3
C4049986
UMLS CUI-4
C1286385
UMLS CUI-5
C0036373
15. You
Description

You

Data type

integer

Alias
UMLS CUI [1]
C0036588
16. Other family members with OCD
Description

Other family members with OCD

Data type

integer

Alias
UMLS CUI [1,1]
C0086282
UMLS CUI [1,2]
C0028768
17. Other family members without OCD
Description

Other family members without OCD

Data type

integer

Alias
UMLS CUI [1,1]
C0086282
UMLS CUI [1,2]
C0332288
UMLS CUI [1,3]
C0028768
How OFTEN does his/her Worst Ever OCD impact the work/school performance of:
Description

How OFTEN does his/her Worst Ever OCD impact the work/school performance of:

Alias
UMLS CUI-1
C0028768
UMLS CUI-2
C1522166
UMLS CUI-3
C4049986
UMLS CUI-4
C1286385
UMLS CUI-5
C0036373
15. You
Description

You

Data type

integer

Alias
UMLS CUI [1]
C0036588
16. Other family members with OCD
Description

Other family members with OCD

Data type

integer

Alias
UMLS CUI [1,1]
C0086282
UMLS CUI [1,2]
C0028768
17. Other family members without OCD
Description

Other family members without OCD

Data type

integer

Alias
UMLS CUI [1,1]
C0086282
UMLS CUI [1,2]
C0332288
UMLS CUI [1,3]
C0028768
When Current OCD has interfered with family functioning, have you felt:
Description

When Current OCD has interfered with family functioning, have you felt:

Alias
UMLS CUI-1
C0028768
UMLS CUI-2
C0521116
UMLS CUI-3
C0521102
UMLS CUI-4
C0015576
UMLS CUI-5
C1527305
18. Stressed/anxious
Description

Stressed/anxious

Data type

integer

Alias
UMLS CUI [1,1]
C0003467
UMLS CUI [1,2]
C0038435
19. Frustrated/angry
Description

Frustrated/angry

Data type

integer

Alias
UMLS CUI [1,1]
C0002957
UMLS CUI [1,2]
C0016770
20. Sad
Description

Sad

Data type

integer

Alias
UMLS CUI [1]
C3536794
21. Guilty
Description

Guilty

Data type

integer

Alias
UMLS CUI [1]
C0018379
When Worst Ever OCD has interfered with family functioning, have you felt:
Description

When Worst Ever OCD has interfered with family functioning, have you felt:

Alias
UMLS CUI-1
C0028768
UMLS CUI-2
C1522166
UMLS CUI-3
C0521102
UMLS CUI-4
C0015576
UMLS CUI-5
C1527305
18. Stressed/anxious
Description

Stressed/anxious

Data type

integer

Alias
UMLS CUI [1,1]
C0003467
UMLS CUI [1,2]
C0038435
19. Frustrated/angry
Description

Frustrated/angry

Data type

integer

Alias
UMLS CUI [1,1]
C0002957
UMLS CUI [1,2]
C0016770
20. Sad
Description

Sad

Data type

integer

Alias
UMLS CUI [1]
C3536794
21. Guilty
Description

Guilty

Data type

integer

Alias
UMLS CUI [1]
C0018379
How often have the following OCD symptoms interfered with your family functioning? Current OCD:
Description

How often have the following OCD symptoms interfered with your family functioning? Current OCD:

Alias
UMLS CUI-1
C0009595
UMLS CUI-2
C0521116
UMLS CUI-3
C1457887
UMLS CUI-4
C0521102
UMLS CUI-5
C0680051
22. Cleaning
Description

Cleaning

Data type

integer

Alias
UMLS CUI [1]
C1947930
23. Contamination
Description

Contamination

Data type

integer

Alias
UMLS CUI [1]
C0259846
24. Hoarding/collecting things
Description

Hoarding/collecting things

Data type

integer

Alias
UMLS CUI [1]
C0424337
UMLS CUI [2]
C1516698
25. Scrupulosity/morality/right and wrong
Description

Scrupulosity/morality/right and wrong

Data type

integer

Alias
UMLS CUI [1]
C0026531
26. Intrusive unwelcome thoughts
Description

Intrusive unwelcome thoughts

Data type

integer

Alias
UMLS CUI [1]
C0558066
27. Perfectionism
Description

Perfectionism

Data type

integer

Alias
UMLS CUI [1]
C0815110
28. Symmetry/making things even or balanced
Description

Symmetry/making things even or balanced

Data type

integer

Alias
UMLS CUI [1]
C0332516
29. Ordering
Description

Ordering

Data type

boolean

Alias
UMLS CUI [1]
C0683313
30. Repeating
Description

Repeating

Data type

integer

Alias
UMLS CUI [1]
C0205341
31. Checking
Description

Checking

Data type

integer

Alias
UMLS CUI [1]
C1283174
32. Counting
Description

Counting

Data type

integer

Alias
UMLS CUI [1]
C0750480
33. Religious
Description

Religious

Data type

integer

Alias
UMLS CUI [1]
C0035039
34. Somatic/body or illness worries
Description

Somatic/body or illness worries

Data type

integer

Alias
UMLS CUI [1,1]
C2986476
UMLS CUI [1,2]
C0233481
UMLS CUI [2,1]
C0221423
UMLS CUI [2,2]
C0233481
35. Sexual
Description

Sexual

Data type

integer

Alias
UMLS CUI [1]
C0036864
36. Need to do things until they feel “just right”
Description

Need to do things until they feel “just right”

Data type

integer

Alias
UMLS CUI [1]
C0815110
37. Obsessive slowness
Description

Obsessive slowness

Data type

integer

Alias
UMLS CUI [1,1]
C0028765
UMLS CUI [1,2]
C1398207
How often have the following OCD symptoms interfered with your family functioning? Worst Ever OCD:
Description

How often have the following OCD symptoms interfered with your family functioning? Worst Ever OCD:

Alias
UMLS CUI-1
C0009595
UMLS CUI-2
C1522166
UMLS CUI-3
C1457887
UMLS CUI-4
C0521102
UMLS CUI-5
C0680051
22. Cleaning
Description

Cleaning

Data type

integer

Alias
UMLS CUI [1]
C1947930
23. Contamination
Description

Contamination

Data type

integer

Alias
UMLS CUI [1]
C0259846
24. Hoarding/collecting things
Description

Hoarding/collecting things

Data type

integer

Alias
UMLS CUI [1]
C0424337
UMLS CUI [2]
C1516698
25. Scrupulosity/morality/right and wrong
Description

Scrupulosity/morality/right and wrong

Data type

integer

Alias
UMLS CUI [1]
C0026531
26. Intrusive unwelcome thoughts
Description

Intrusive unwelcome thoughts

Data type

integer

Alias
UMLS CUI [1]
C0558066
27. Perfectionism
Description

Perfectionism

Data type

integer

Alias
UMLS CUI [1]
C0815110
28. Symmetry/making things even or balanced
Description

Symmetry/making things even or balanced

Data type

integer

Alias
UMLS CUI [1]
C0332516
29. Ordering
Description

Ordering

Data type

boolean

Alias
UMLS CUI [1]
C0683313
30. Repeating
Description

Repeating

Data type

integer

Alias
UMLS CUI [1]
C0205341
31. Checking
Description

Checking

Data type

integer

Alias
UMLS CUI [1]
C1283174
32. Counting
Description

Counting

Data type

integer

Alias
UMLS CUI [1]
C0750480
33. Religious
Description

Religious

Data type

integer

Alias
UMLS CUI [1]
C0035039
34. Somatic/body or illness worries
Description

Somatic/body or illness worries

Data type

integer

Alias
UMLS CUI [1,1]
C2986476
UMLS CUI [1,2]
C0233481
UMLS CUI [2,1]
C0221423
UMLS CUI [2,2]
C0233481
35. Sexual
Description

Sexual

Data type

integer

Alias
UMLS CUI [1]
C0036864
36. Need to do things until they feel “just right”
Description

Need to do things until they feel “just right”

Data type

integer

Alias
UMLS CUI [1]
C0815110
37. Obsessive slowness
Description

Obsessive slowness

Data type

integer

Alias
UMLS CUI [1,1]
C0028765
UMLS CUI [1,2]
C1398207
How much has his/her Current OCD impacted your ability to be:
Description

How much has his/her Current OCD impacted your ability to be:

Alias
UMLS CUI-1
C0028768
UMLS CUI-2
C0521116
UMLS CUI-3
C4049986
38. A mother or father
Description

A mother or father

Data type

integer

Alias
UMLS CUI [1]
C0015671
UMLS CUI [2]
C0026591
39. A husband/wife or partner
Description

A husband/wife or partner

Data type

integer

Alias
UMLS CUI [1]
C0682323
UMLS CUI [2]
C0242664
UMLS CUI [3]
C0242665
40. A child/parent
Description

A child/parent

Data type

integer

Alias
UMLS CUI [1]
C0030551
UMLS CUI [2]
C0008059
41. A brother or sister
Description

A brother or sister

Data type

integer

Alias
UMLS CUI [1]
C0337514
UMLS CUI [2]
C0337527
42. Another relative type
Description

Another relative type

Data type

integer

Alias
UMLS CUI [1]
C3174795
How much has his/her Worst Ever OCD impacted your ability to be:
Description

How much has his/her Worst Ever OCD impacted your ability to be:

Alias
UMLS CUI-1
C0028768
UMLS CUI-2
C1522166
UMLS CUI-3
C4049986
38. A mother or father
Description

A mother or father

Data type

integer

Alias
UMLS CUI [1]
C0015671
UMLS CUI [2]
C0026591
39. A husband/wife or partner
Description

A husband/wife or partner

Data type

integer

Alias
UMLS CUI [1]
C0682323
UMLS CUI [2]
C0242664
UMLS CUI [3]
C0242665
40. A child/parent
Description

A child/parent

Data type

integer

Alias
UMLS CUI [1]
C0030551
UMLS CUI [2]
C0008059
41. A brother or sister
Description

A brother or sister

Data type

integer

Alias
UMLS CUI [1]
C0337514
UMLS CUI [2]
C0337527
42. Another relative type
Description

Another relative type

Data type

integer

Alias
UMLS CUI [1]
C3174795
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Similar models

OCD Family Functioning (OFF) Scale - Relative Version

1 forms
Name
Type
Description | Question | Decode (Coded Value)
Data type
Alias
Item Group
General Information
C1508263 (UMLS CUI-1)
Your name or ID number
Item
Your name or ID number
text
C1299487 (UMLS CUI [1])
C1269815 (UMLS CUI [2])
Today’s Date
Item
Today’s Date
date
C0011008 (UMLS CUI [1])
Item
Your Gender
text
C0079399 (UMLS CUI [1])
Your Gender
Code List
Your Gender
CL Item
Male (Male)
CL Item
Female (Female)
Your Age
Item
Your Age
text
C0001779 (UMLS CUI [1])
Age of first OCD Symptoms (y)
Item
Age of first OCD Symptoms (y): refers to your OCD-affected relative
integer
C0150907 (UMLS CUI [1,1])
C0028768 (UMLS CUI [1,2])
Item Group
What is your relationship to your OCD-affected relative? I am his/her:
C0015608 (UMLS CUI-1)
C0028768 (UMLS CUI-2)
Mother
Item
Mother
boolean
C0026591 (UMLS CUI [1])
Father
Item
Father
boolean
C0015671 (UMLS CUI [1])
Sibling
Item
Sibling
boolean
C0037047 (UMLS CUI [1])
Child
Item
Child
boolean
C0008059 (UMLS CUI [1])
Spouse
Item
Spouse
boolean
C0162409 (UMLS CUI [1])
Extended Family
Item
Extended Family
boolean
C0015341 (UMLS CUI [1])
Other
Item
Other
boolean
C0205394 (UMLS CUI [1])
Other: Specify
Item
Other: Specify
text
C0205394 (UMLS CUI [1,1])
C1521902 (UMLS CUI [1,2])
Item Group
Whom do you live with? “YOU” refers to your OCD-affected relative
C2184149 (UMLS CUI-1)
Mother
Item
Mother
boolean
C0026591 (UMLS CUI [1])
Father
Item
Father
boolean
C0015671 (UMLS CUI [1])
Sibling
Item
Sibling
boolean
C0037047 (UMLS CUI [1])
Child
Item
Child
boolean
C0008059 (UMLS CUI [1])
Spouse
Item
Spouse
boolean
C0162409 (UMLS CUI [1])
Extended Family
Item
Extended Family
boolean
C0015341 (UMLS CUI [1])
Friend
Item
Friend
boolean
C0079382 (UMLS CUI [1])
Other
Item
Other
boolean
C0205394 (UMLS CUI [1])
Other: Specify
Item
Other: Specify
text
C0205394 (UMLS CUI [1,1])
C1521902 (UMLS CUI [1,2])
I live alone
Item
I live alone
boolean
C0439044 (UMLS CUI [1])
Item Group
What types of treatment(s) have you tried for your OCD? (check all that apply) “YOU” refers to your OCD-affected relative:
C0028768 (UMLS CUI-1)
C0087111 (UMLS CUI-2)
None
Item
None
boolean
C0549184 (UMLS CUI [1])
Talking Therapy
Item
Talking Therapy
boolean
C0033968 (UMLS CUI [1])
Medication
Item
Medication
boolean
C0013227 (UMLS CUI [1])
Family Therapy
Item
Family Therapy
boolean
C0015618 (UMLS CUI [1])
Other
Item
Other
boolean
C0205394 (UMLS CUI [1])
Behavior Therapy
Item
Behavior Therapy
boolean
C0004933 (UMLS CUI [1])
Item Group
Have any of the following people been diagnosed with OCD? If so, who? “YOU” refers to your OCD-affected relative
C0011900 (UMLS CUI-1)
C0028768 (UMLS CUI-2)
Mother
Item
Mother
boolean
C0026591 (UMLS CUI [1])
Father
Item
Father
boolean
C0015671 (UMLS CUI [1])
Sibling
Item
Sibling
boolean
C0037047 (UMLS CUI [1])
Child
Item
Child
boolean
C0008059 (UMLS CUI [1])
Spouse
Item
Spouse
boolean
C0162409 (UMLS CUI [1])
Extended Family
Item
Extended Family
boolean
C0015341 (UMLS CUI [1])
Other
Item
Other
boolean
C0205394 (UMLS CUI [1])
N/A
Item
N/A
boolean
C1272460 (UMLS CUI [1])
Item Group
Do any of the following people have suspected OCD or Obsessive Compulsive symptoms? If so, who? “YOU” refers to your OCD-affected relative
C0028768 (UMLS CUI-1)
C1457887 (UMLS CUI-2)
C0332147 (UMLS CUI-3)
Mother
Item
Mother
boolean
C0026591 (UMLS CUI [1])
Father
Item
Father
boolean
C0015671 (UMLS CUI [1])
Sibling
Item
Sibling
boolean
C0037047 (UMLS CUI [1])
Child
Item
Child
boolean
C0008059 (UMLS CUI [1])
Spouse
Item
Spouse
boolean
C0162409 (UMLS CUI [1])
Extended Family
Item
Extended Family
boolean
C0015341 (UMLS CUI [1])
Other
Item
Other
boolean
C0205394 (UMLS CUI [1])
N/A
Item
N/A
boolean
C1272460 (UMLS CUI [1])
Item Group
Please complete this to the best of your ability with regards to his/her OCD. There are no right or wrong answers. If none of the options applies, please choose the closest option.
Item Group
How OFTEN does his/her Current OCD interfere with family:
C0028768 (UMLS CUI-1)
C0521116 (UMLS CUI-2)
C0521102 (UMLS CUI-3)
C0015576 (UMLS CUI-4)
Item
1. Morning routines
integer
C0332170 (UMLS CUI [1,1])
C0205547 (UMLS CUI [1,2])
Morning routines
Code List
1. Morning routines
CL Item
Never (0)
CL Item
Monthly (1)
CL Item
Weekly (2)
CL Item
Daily (3)
Item
2. Lateness to work/school
integer
C0205087 (UMLS CUI [1,1])
C0043227 (UMLS CUI [1,2])
C0205087 (UMLS CUI [2,1])
C0036375 (UMLS CUI [2,2])
Morning routines
Code List
2. Lateness to work/school
CL Item
Never (0)
CL Item
Monthly (1)
CL Item
Weekly (2)
CL Item
Daily (3)
Item
3. Mealtimes
integer
C0587119 (UMLS CUI [1])
Morning routines
Code List
3. Mealtimes
CL Item
Never (0)
CL Item
Monthly (1)
CL Item
Weekly (2)
CL Item
Daily (3)
Item
4. Social/family functions
integer
C0037420 (UMLS CUI [1])
C0015608 (UMLS CUI [2])
Morning routines
Code List
4. Social/family functions
CL Item
Never (0)
CL Item
Monthly (1)
CL Item
Weekly (2)
CL Item
Daily (3)
Item
5. Planning/scheduling
integer
C0032074 (UMLS CUI [1])
Morning routines
Code List
5. Planning/scheduling
CL Item
Never (0)
CL Item
Monthly (1)
CL Item
Weekly (2)
CL Item
Daily (3)
Item
6. Going to restaurants
integer
C4289683 (UMLS CUI [1])
Morning routines
Code List
6. Going to restaurants
CL Item
Never (0)
CL Item
Monthly (1)
CL Item
Weekly (2)
CL Item
Daily (3)
Item
7. Shopping/going to the mall
integer
C0150768 (UMLS CUI [1])
Morning routines
Code List
7. Shopping/going to the mall
CL Item
Never (0)
CL Item
Monthly (1)
CL Item
Weekly (2)
CL Item
Daily (3)
Item
8. Trips/vacations
integer
C0680199 (UMLS CUI [1])
Morning routines
Code List
8. Trips/vacations
CL Item
Never (0)
CL Item
Monthly (1)
CL Item
Weekly (2)
CL Item
Daily (3)
Item
9. Keeping appointments
integer
C4534524 (UMLS CUI [1])
Morning routines
Code List
9. Keeping appointments
CL Item
Never (0)
CL Item
Monthly (1)
CL Item
Weekly (2)
CL Item
Daily (3)
Item
10. Bedtime routines
integer
C0521112 (UMLS CUI [1,1])
C0205547 (UMLS CUI [1,2])
Morning routines
Code List
10. Bedtime routines
CL Item
Never (0)
CL Item
Monthly (1)
CL Item
Weekly (2)
CL Item
Daily (3)
Item
11. Religious/spiritual worship
integer
C0518645 (UMLS CUI [1])
Morning routines
Code List
11. Religious/spiritual worship
CL Item
Never (0)
CL Item
Monthly (1)
CL Item
Weekly (2)
CL Item
Daily (3)
Item Group
How OFTEN does his/her Worst Ever OCD interfere with family:
C0028768 (UMLS CUI-1)
C1522166 (UMLS CUI-2)
C0521102 (UMLS CUI-3)
C0015576 (UMLS CUI-4)
Item
1. Morning routines
integer
C0332170 (UMLS CUI [1,1])
C0205547 (UMLS CUI [1,2])
Morning routines
Code List
1. Morning routines
CL Item
Never (0)
CL Item
Monthly (1)
CL Item
Weekly (2)
CL Item
Daily (3)
Item
2. Lateness to work/school
integer
C0205087 (UMLS CUI [1,1])
C0043227 (UMLS CUI [1,2])
C0205087 (UMLS CUI [2,1])
C0036375 (UMLS CUI [2,2])
Morning routines
Code List
2. Lateness to work/school
CL Item
Never (0)
CL Item
Monthly (1)
CL Item
Weekly (2)
CL Item
Daily (3)
Item
3. Mealtimes
integer
C0587119 (UMLS CUI [1])
Morning routines
Code List
3. Mealtimes
CL Item
Never (0)
CL Item
Monthly (1)
CL Item
Weekly (2)
CL Item
Daily (3)
Item
4. Social/family functions
integer
C0037420 (UMLS CUI [1])
C0015608 (UMLS CUI [2])
Morning routines
Code List
4. Social/family functions
CL Item
Never (0)
CL Item
Monthly (1)
CL Item
Weekly (2)
CL Item
Daily (3)
Item
5. Planning/scheduling
integer
C0032074 (UMLS CUI [1])
Morning routines
Code List
5. Planning/scheduling
CL Item
Never (0)
CL Item
Monthly (1)
CL Item
Weekly (2)
CL Item
Daily (3)
Item
6. Going to restaurants
integer
C4289683 (UMLS CUI [1])
Morning routines
Code List
6. Going to restaurants
CL Item
Never (0)
CL Item
Monthly (1)
CL Item
Weekly (2)
CL Item
Daily (3)
Item
7. Shopping/going to the mall
integer
C0150768 (UMLS CUI [1])
Morning routines
Code List
7. Shopping/going to the mall
CL Item
Never (0)
CL Item
Monthly (1)
CL Item
Weekly (2)
CL Item
Daily (3)
Item
8. Trips/vacations
integer
C0680199 (UMLS CUI [1])
Morning routines
Code List
8. Trips/vacations
CL Item
Never (0)
CL Item
Monthly (1)
CL Item
Weekly (2)
CL Item
Daily (3)
Item
9. Keeping appointments
integer
C4534524 (UMLS CUI [1])
Morning routines
Code List
9. Keeping appointments
CL Item
Never (0)
CL Item
Monthly (1)
CL Item
Weekly (2)
CL Item
Daily (3)
Item
10. Bedtime routines
integer
C0521112 (UMLS CUI [1,1])
C0205547 (UMLS CUI [1,2])
Morning routines
Code List
10. Bedtime routines
CL Item
Never (0)
CL Item
Monthly (1)
CL Item
Weekly (2)
CL Item
Daily (3)
Item
11. Religious/spiritual worship
integer
C0518645 (UMLS CUI [1])
Morning routines
Code List
11. Religious/spiritual worship
CL Item
Never (0)
CL Item
Monthly (1)
CL Item
Weekly (2)
CL Item
Daily (3)
Item Group
How OFTEN does his/her Current OCD impact the social life of:
C0028768 (UMLS CUI-1)
C0521116 (UMLS CUI-2)
C4049986 (UMLS CUI-3)
C0815198 (UMLS CUI-4)
Item
12. You
integer
C0036588 (UMLS CUI [1])
Morning routines
Code List
12. You
CL Item
Never (0)
CL Item
Monthly (1)
CL Item
Weekly (2)
CL Item
Daily (3)
Item
13. Other family members with OCD
integer
C0086282 (UMLS CUI [1,1])
C0028768 (UMLS CUI [1,2])
Morning routines
Code List
13. Other family members with OCD
CL Item
Never (0)
CL Item
Monthly (1)
CL Item
Weekly (2)
CL Item
Daily (3)
Item
14. Other family members without OCD
integer
C0086282 (UMLS CUI [1,1])
C0332288 (UMLS CUI [1,2])
C0028768 (UMLS CUI [1,3])
Morning routines
Code List
14. Other family members without OCD
CL Item
Never (0)
CL Item
Monthly (1)
CL Item
Weekly (2)
CL Item
Daily (3)
Item Group
How OFTEN does his/her Worst Ever OCD impact the social life of:
C0028768 (UMLS CUI-1)
C1522166 (UMLS CUI-2)
C4049986 (UMLS CUI-3)
C0815198 (UMLS CUI-4)
Item
12. You
integer
C0036588 (UMLS CUI [1])
Morning routines
Code List
12. You
CL Item
Never (0)
CL Item
Monthly (1)
CL Item
Weekly (2)
CL Item
Daily (3)
Item
13. Other family members with OCD
integer
C0086282 (UMLS CUI [1,1])
C0028768 (UMLS CUI [1,2])
Morning routines
Code List
13. Other family members with OCD
CL Item
Never (0)
CL Item
Monthly (1)
CL Item
Weekly (2)
CL Item
Daily (3)
Item
14. Other family members without OCD
integer
C0086282 (UMLS CUI [1,1])
C0332288 (UMLS CUI [1,2])
C0028768 (UMLS CUI [1,3])
Morning routines
Code List
14. Other family members without OCD
CL Item
Never (0)
CL Item
Monthly (1)
CL Item
Weekly (2)
CL Item
Daily (3)
Item Group
How OFTEN does his/her Current OCD impact the work/school performance of:
C0028768 (UMLS CUI-1)
C0521116 (UMLS CUI-2)
C4049986 (UMLS CUI-3)
C1286385 (UMLS CUI-4)
C0036373 (UMLS CUI-5)
Item
15. You
integer
C0036588 (UMLS CUI [1])
Morning routines
Code List
15. You
CL Item
Never (0)
CL Item
Monthly (1)
CL Item
Weekly (2)
CL Item
Daily (3)
Item
16. Other family members with OCD
integer
C0086282 (UMLS CUI [1,1])
C0028768 (UMLS CUI [1,2])
Morning routines
Code List
16. Other family members with OCD
CL Item
Never (0)
CL Item
Monthly (1)
CL Item
Weekly (2)
CL Item
Daily (3)
Item
17. Other family members without OCD
integer
C0086282 (UMLS CUI [1,1])
C0332288 (UMLS CUI [1,2])
C0028768 (UMLS CUI [1,3])
Morning routines
Code List
17. Other family members without OCD
CL Item
Never (0)
CL Item
Monthly (1)
CL Item
Weekly (2)
CL Item
Daily (3)
Item Group
How OFTEN does his/her Worst Ever OCD impact the work/school performance of:
C0028768 (UMLS CUI-1)
C1522166 (UMLS CUI-2)
C4049986 (UMLS CUI-3)
C1286385 (UMLS CUI-4)
C0036373 (UMLS CUI-5)
Item
15. You
integer
C0036588 (UMLS CUI [1])
Morning routines
Code List
15. You
CL Item
Never (0)
CL Item
Monthly (1)
CL Item
Weekly (2)
CL Item
Daily (3)
Item
16. Other family members with OCD
integer
C0086282 (UMLS CUI [1,1])
C0028768 (UMLS CUI [1,2])
Morning routines
Code List
16. Other family members with OCD
CL Item
Never (0)
CL Item
Monthly (1)
CL Item
Weekly (2)
CL Item
Daily (3)
Item
17. Other family members without OCD
integer
C0086282 (UMLS CUI [1,1])
C0332288 (UMLS CUI [1,2])
C0028768 (UMLS CUI [1,3])
Morning routines
Code List
17. Other family members without OCD
CL Item
Never (0)
CL Item
Monthly (1)
CL Item
Weekly (2)
CL Item
Daily (3)
Item Group
When Current OCD has interfered with family functioning, have you felt:
C0028768 (UMLS CUI-1)
C0521116 (UMLS CUI-2)
C0521102 (UMLS CUI-3)
C0015576 (UMLS CUI-4)
C1527305 (UMLS CUI-5)
Item
18. Stressed/anxious
integer
C0003467 (UMLS CUI [1,1])
C0038435 (UMLS CUI [1,2])
Stressed/anxious
Code List
18. Stressed/anxious
CL Item
Never (0)
CL Item
A Little (1)
CL Item
Often (2)
CL Item
Always (3)
Item
19. Frustrated/angry
integer
C0002957 (UMLS CUI [1,1])
C0016770 (UMLS CUI [1,2])
Stressed/anxious
Code List
19. Frustrated/angry
CL Item
Never (0)
CL Item
A Little (1)
CL Item
Often (2)
CL Item
Always (3)
Item
20. Sad
integer
C3536794 (UMLS CUI [1])
Stressed/anxious
Code List
20. Sad
CL Item
Never (0)
CL Item
A Little (1)
CL Item
Often (2)
CL Item
Always (3)
Item
21. Guilty
integer
C0018379 (UMLS CUI [1])
Stressed/anxious
Code List
21. Guilty
CL Item
Never (0)
CL Item
A Little (1)
CL Item
Often (2)
CL Item
Always (3)
Item Group
When Worst Ever OCD has interfered with family functioning, have you felt:
C0028768 (UMLS CUI-1)
C1522166 (UMLS CUI-2)
C0521102 (UMLS CUI-3)
C0015576 (UMLS CUI-4)
C1527305 (UMLS CUI-5)
Item
18. Stressed/anxious
integer
C0003467 (UMLS CUI [1,1])
C0038435 (UMLS CUI [1,2])
Stressed/anxious
Code List
18. Stressed/anxious
CL Item
Never (0)
CL Item
A Little (1)
CL Item
Often (2)
CL Item
Always (3)
Item
19. Frustrated/angry
integer
C0002957 (UMLS CUI [1,1])
C0016770 (UMLS CUI [1,2])
Stressed/anxious
Code List
19. Frustrated/angry
CL Item
Never (0)
CL Item
A Little (1)
CL Item
Often (2)
CL Item
Always (3)
Item
20. Sad
integer
C3536794 (UMLS CUI [1])
Stressed/anxious
Code List
20. Sad
CL Item
Never (0)
CL Item
A Little (1)
CL Item
Often (2)
CL Item
Always (3)
Item
21. Guilty
integer
C0018379 (UMLS CUI [1])
Stressed/anxious
Code List
21. Guilty
CL Item
Never (0)
CL Item
A Little (1)
CL Item
Often (2)
CL Item
Always (3)
Item Group
How often have the following OCD symptoms interfered with your family functioning? Current OCD:
C0009595 (UMLS CUI-1)
C0521116 (UMLS CUI-2)
C1457887 (UMLS CUI-3)
C0521102 (UMLS CUI-4)
C0680051 (UMLS CUI-5)
Item
22. Cleaning
integer
C1947930 (UMLS CUI [1])
Stressed/anxious
Code List
22. Cleaning
CL Item
Never (0)
CL Item
A Little (1)
CL Item
Often (2)
CL Item
Always (3)
Item
23. Contamination
integer
C0259846 (UMLS CUI [1])
Stressed/anxious
Code List
23. Contamination
CL Item
Never (0)
CL Item
A Little (1)
CL Item
Often (2)
CL Item
Always (3)
Item
24. Hoarding/collecting things
integer
C0424337 (UMLS CUI [1])
C1516698 (UMLS CUI [2])
Stressed/anxious
Code List
24. Hoarding/collecting things
CL Item
Never (0)
CL Item
A Little (1)
CL Item
Often (2)
CL Item
Always (3)
Item
25. Scrupulosity/morality/right and wrong
integer
C0026531 (UMLS CUI [1])
Stressed/anxious
Code List
25. Scrupulosity/morality/right and wrong
CL Item
Never (0)
CL Item
A Little (1)
CL Item
Often (2)
CL Item
Always (3)
Item
26. Intrusive unwelcome thoughts
integer
C0558066 (UMLS CUI [1])
Stressed/anxious
Code List
26. Intrusive unwelcome thoughts
CL Item
Never (0)
CL Item
A Little (1)
CL Item
Often (2)
CL Item
Always (3)
Item
27. Perfectionism
integer
C0815110 (UMLS CUI [1])
Stressed/anxious
Code List
27. Perfectionism
CL Item
Never (0)
CL Item
A Little (1)
CL Item
Often (2)
CL Item
Always (3)
Item
28. Symmetry/making things even or balanced
integer
C0332516 (UMLS CUI [1])
Stressed/anxious
Code List
28. Symmetry/making things even or balanced
CL Item
Never (0)
CL Item
A Little (1)
CL Item
Often (2)
CL Item
Always (3)
Ordering
Item
29. Ordering
boolean
C0683313 (UMLS CUI [1])
Item
30. Repeating
integer
C0205341 (UMLS CUI [1])
Stressed/anxious
Code List
30. Repeating
CL Item
Never (0)
CL Item
A Little (1)
CL Item
Often (2)
CL Item
Always (3)
Item
31. Checking
integer
C1283174 (UMLS CUI [1])
Stressed/anxious
Code List
31. Checking
CL Item
Never (0)
CL Item
A Little (1)
CL Item
Often (2)
CL Item
Always (3)
Item
32. Counting
integer
C0750480 (UMLS CUI [1])
Stressed/anxious
Code List
32. Counting
CL Item
Never (0)
CL Item
A Little (1)
CL Item
Often (2)
CL Item
Always (3)
Item
33. Religious
integer
C0035039 (UMLS CUI [1])
Stressed/anxious
Code List
33. Religious
CL Item
Never (0)
CL Item
A Little (1)
CL Item
Often (2)
CL Item
Always (3)
Item
34. Somatic/body or illness worries
integer
C2986476 (UMLS CUI [1,1])
C0233481 (UMLS CUI [1,2])
C0221423 (UMLS CUI [2,1])
C0233481 (UMLS CUI [2,2])
Stressed/anxious
Code List
34. Somatic/body or illness worries
CL Item
Never (0)
CL Item
A Little (1)
CL Item
Often (2)
CL Item
Always (3)
Item
35. Sexual
integer
C0036864 (UMLS CUI [1])
Stressed/anxious
Code List
35. Sexual
CL Item
Never (0)
CL Item
A Little (1)
CL Item
Often (2)
CL Item
Always (3)
Item
36. Need to do things until they feel “just right”
integer
C0815110 (UMLS CUI [1])
Stressed/anxious
Code List
36. Need to do things until they feel “just right”
CL Item
Never (0)
CL Item
A Little (1)
CL Item
Often (2)
CL Item
Always (3)
Item
37. Obsessive slowness
integer
C0028765 (UMLS CUI [1,1])
C1398207 (UMLS CUI [1,2])
Stressed/anxious
Code List
37. Obsessive slowness
CL Item
Never (0)
CL Item
A Little (1)
CL Item
Often (2)
CL Item
Always (3)
Item Group
How often have the following OCD symptoms interfered with your family functioning? Worst Ever OCD:
C0009595 (UMLS CUI-1)
C1522166 (UMLS CUI-2)
C1457887 (UMLS CUI-3)
C0521102 (UMLS CUI-4)
C0680051 (UMLS CUI-5)
Item
22. Cleaning
integer
C1947930 (UMLS CUI [1])
Stressed/anxious
Code List
22. Cleaning
CL Item
Never (0)
CL Item
A Little (1)
CL Item
Often (2)
CL Item
Always (3)
Item
23. Contamination
integer
C0259846 (UMLS CUI [1])
Stressed/anxious
Code List
23. Contamination
CL Item
Never (0)
CL Item
A Little (1)
CL Item
Often (2)
CL Item
Always (3)
Item
24. Hoarding/collecting things
integer
C0424337 (UMLS CUI [1])
C1516698 (UMLS CUI [2])
Stressed/anxious
Code List
24. Hoarding/collecting things
CL Item
Never (0)
CL Item
A Little (1)
CL Item
Often (2)
CL Item
Always (3)
Item
25. Scrupulosity/morality/right and wrong
integer
C0026531 (UMLS CUI [1])
Stressed/anxious
Code List
25. Scrupulosity/morality/right and wrong
CL Item
Never (0)
CL Item
A Little (1)
CL Item
Often (2)
CL Item
Always (3)
Item
26. Intrusive unwelcome thoughts
integer
C0558066 (UMLS CUI [1])
Stressed/anxious
Code List
26. Intrusive unwelcome thoughts
CL Item
Never (0)
CL Item
A Little (1)
CL Item
Often (2)
CL Item
Always (3)
Item
27. Perfectionism
integer
C0815110 (UMLS CUI [1])
Stressed/anxious
Code List
27. Perfectionism
CL Item
Never (0)
CL Item
A Little (1)
CL Item
Often (2)
CL Item
Always (3)
Item
28. Symmetry/making things even or balanced
integer
C0332516 (UMLS CUI [1])
Stressed/anxious
Code List
28. Symmetry/making things even or balanced
CL Item
Never (0)
CL Item
A Little (1)
CL Item
Often (2)
CL Item
Always (3)
Ordering
Item
29. Ordering
boolean
C0683313 (UMLS CUI [1])
Item
30. Repeating
integer
C0205341 (UMLS CUI [1])
Stressed/anxious
Code List
30. Repeating
CL Item
Never (0)
CL Item
A Little (1)
CL Item
Often (2)
CL Item
Always (3)
Item
31. Checking
integer
C1283174 (UMLS CUI [1])
Stressed/anxious
Code List
31. Checking
CL Item
Never (0)
CL Item
A Little (1)
CL Item
Often (2)
CL Item
Always (3)
Item
32. Counting
integer
C0750480 (UMLS CUI [1])
Stressed/anxious
Code List
32. Counting
CL Item
Never (0)
CL Item
A Little (1)
CL Item
Often (2)
CL Item
Always (3)
Item
33. Religious
integer
C0035039 (UMLS CUI [1])
Stressed/anxious
Code List
33. Religious
CL Item
Never (0)
CL Item
A Little (1)
CL Item
Often (2)
CL Item
Always (3)
Item
34. Somatic/body or illness worries
integer
C2986476 (UMLS CUI [1,1])
C0233481 (UMLS CUI [1,2])
C0221423 (UMLS CUI [2,1])
C0233481 (UMLS CUI [2,2])
Stressed/anxious
Code List
34. Somatic/body or illness worries
CL Item
Never (0)
CL Item
A Little (1)
CL Item
Often (2)
CL Item
Always (3)
Item
35. Sexual
integer
C0036864 (UMLS CUI [1])
Stressed/anxious
Code List
35. Sexual
CL Item
Never (0)
CL Item
A Little (1)
CL Item
Often (2)
CL Item
Always (3)
Item
36. Need to do things until they feel “just right”
integer
C0815110 (UMLS CUI [1])
Stressed/anxious
Code List
36. Need to do things until they feel “just right”
CL Item
Never (0)
CL Item
A Little (1)
CL Item
Often (2)
CL Item
Always (3)
Item
37. Obsessive slowness
integer
C0028765 (UMLS CUI [1,1])
C1398207 (UMLS CUI [1,2])
Stressed/anxious
Code List
37. Obsessive slowness
CL Item
Never (0)
CL Item
A Little (1)
CL Item
Often (2)
CL Item
Always (3)
Item Group
How much has his/her Current OCD impacted your ability to be:
C0028768 (UMLS CUI-1)
C0521116 (UMLS CUI-2)
C4049986 (UMLS CUI-3)
Item
38. A mother or father
integer
C0015671 (UMLS CUI [1])
C0026591 (UMLS CUI [2])
A mother or father
Code List
38. A mother or father
CL Item
Never (0)
CL Item
A little (1)
CL Item
A lot (2)
CL Item
Entirely (3)
Item
39. A husband/wife or partner
integer
C0682323 (UMLS CUI [1])
C0242664 (UMLS CUI [2])
C0242665 (UMLS CUI [3])
A mother or father
Code List
39. A husband/wife or partner
CL Item
Never (0)
CL Item
A little (1)
CL Item
A lot (2)
CL Item
Entirely (3)
Item
40. A child/parent
integer
C0030551 (UMLS CUI [1])
C0008059 (UMLS CUI [2])
A mother or father
Code List
40. A child/parent
CL Item
Never (0)
CL Item
A little (1)
CL Item
A lot (2)
CL Item
Entirely (3)
Item
41. A brother or sister
integer
C0337514 (UMLS CUI [1])
C0337527 (UMLS CUI [2])
A mother or father
Code List
41. A brother or sister
CL Item
Never (0)
CL Item
A little (1)
CL Item
A lot (2)
CL Item
Entirely (3)
Item
42. Another relative type
integer
C3174795 (UMLS CUI [1])
A mother or father
Code List
42. Another relative type
CL Item
Never (0)
CL Item
A little (1)
CL Item
A lot (2)
CL Item
Entirely (3)
Item Group
How much has his/her Worst Ever OCD impacted your ability to be:
C0028768 (UMLS CUI-1)
C1522166 (UMLS CUI-2)
C4049986 (UMLS CUI-3)
Item
38. A mother or father
integer
C0015671 (UMLS CUI [1])
C0026591 (UMLS CUI [2])
A mother or father
Code List
38. A mother or father
CL Item
Never (0)
CL Item
A little (1)
CL Item
A lot (2)
CL Item
Entirely (3)
Item
39. A husband/wife or partner
integer
C0682323 (UMLS CUI [1])
C0242664 (UMLS CUI [2])
C0242665 (UMLS CUI [3])
A mother or father
Code List
39. A husband/wife or partner
CL Item
Never (0)
CL Item
A little (1)
CL Item
A lot (2)
CL Item
Entirely (3)
Item
40. A child/parent
integer
C0030551 (UMLS CUI [1])
C0008059 (UMLS CUI [2])
A mother or father
Code List
40. A child/parent
CL Item
Never (0)
CL Item
A little (1)
CL Item
A lot (2)
CL Item
Entirely (3)
Item
41. A brother or sister
integer
C0337514 (UMLS CUI [1])
C0337527 (UMLS CUI [2])
A mother or father
Code List
41. A brother or sister
CL Item
Never (0)
CL Item
A little (1)
CL Item
A lot (2)
CL Item
Entirely (3)
Item
42. Another relative type
integer
C3174795 (UMLS CUI [1])
A mother or father
Code List
42. Another relative type
CL Item
Never (0)
CL Item
A little (1)
CL Item
A lot (2)
CL Item
Entirely (3)
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