ID

40531

Description

CHRONIC KIDNEY DISEASE DATA COLLECTION REFERENCE GUIDE Version 1.0.0 Revised October 25th, 2017 www.ichom.org Notice: This work was conducted using resources from ICHOM, the International Consortium for Health Outcomes Measurement (www.ICHOM.org). The content is solely the responsibility of the authors and does not necessarily represent the official views of ICHOM. Conditions: Chronic Kidney Disease Stage G3a/A3 | Chronic Kidney Disease StageG 3b/A2/A3 | Chronic Kidney Disease Stage G4 | Chronic Kidney Disease Stage G5 (KDIGO 2012 Stages) Treatment Approaches: Pre-RRT = Pre-Renal Replacement Therapy | HD = Haemodialysis | PD = Peritoneal Dialysis | Tx = Renal Transplantation | CC = Conservative Care This ODM-file contains Treatment-specific variables, clinical or administrative. To be collected 6-monthly or annually. Surveys used: The OptumTM SF-36v2® Health Survey: The SF-36v2 Health Survey requires a license agreement prior to the use or reprodution of the tool. Information on how to obtain a license can be found here: bit.ly/SF36LIC . The scoring guide for the SF36v2 is only available upon a license agreement being made. Due to the requirement of a license the Score cannot be found in this version of the standard set. PROMIS-Global Health and PROMIS-29: Free for use in clinical practice and a license is not required. Information http://www.nihpromis.org/measures/translations . The scoring guides for the two PROMIS Scores can be found at bit.ly/PROMISGLOBALSCORE and bit.ly/PROMIS29SCORE . RAND-36: Free for use in clinical practice and a license is not required. The RAND-36 is available in English and Arabic. https://www.rand.org/health/surveys_tools/mos/36-item-short-form.html . The Scoring guide can be found at bit.ly/RAND36Score . Publication: Verberne WR, Das-Gupta Z, Allegretti AS, et al. Development of an International Standard Set of Value-Based Outcome Measures for Patients With Chronic Kidney Disease: A Report of the International Consortium for Health Outcomes Measurement (ICHOM) CKD Working Group. American Journal of Kidney Diseases. Volume 73, Issue 3, 2019, Pages 372-384, ISSN 0272-6386, https://doi.org/10.1053/j.ajkd.2018.10.007 ICHOM was supported for the Chronic Kidney Disease Standard Set by NSW Agency for Clinical Innovation, Providence Health and Services, ERCPA, santeon and Dutch Kidney Foundation. For this version of the standard set, semantic annotation with UMLS CUIs has been added.

Link

www.ichom.org

Keywords

Versions (2)
  1. 7/30/18 7/30/18 - Sarah Riepenhausen
  2. 4/30/20 4/30/20 - Sarah Riepenhausen
Copyright Holder

ICHOM

Uploaded on

April 30, 2020

DOI

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License

Creative Commons BY-NC 4.0
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ICHOM Chronic Kidney Disease

English

Treatment-specific (Clinical / administrative)

1 forms  
Administrative Data
Description

Administrative Data

Alias
UMLS CUI-1
C1320722
Indicate the patient's medical record number
Description

This number will not be shared with ICHOM. In the case patient-level data is submitted to ICHOM for benchmarking or research purposes, a separate ICHOM Patient Identifier will be created and cross-linking between the ICHOM Patient Identifier and the medical record number will only be known at the treating institution INCLUSION CRITERIA: All patients TIMING: On all forms REPORTING SOURCE: Administrative or clinical RESPONSE OPTIONS: According to institution

Data type

integer

Alias
UMLS CUI [1]
C1269815
Time Relative to Baseline (e.g. Baseline, 6 months follow-up, 1 year follow-up, ...)
Description

This Item does not exist in the original standard set, instead it is asked to do the following: Please timestamp all variables. Some Standard Set variables are collected at multiple timepoints, and we will ask you to submit these variables in a concatenated VARIABLEID_TIMESTAMP form for future analyses. For example, VARIABLEID_BASE (baseline); VARIABLEID_6MO (6 month follow-up); VARIABLEID_1YR (1 year follow-up), etc.

Data type

text

Alias
UMLS CUI [1,1]
C0439564
UMLS CUI [1,2]
C1442488
Treatment-Specific
Description

Treatment-Specific

Alias
UMLS CUI-1
C0087111
Indicate how renal/kidney allograft function was measured
Description

Serum creatinine and/or eGFR by CKD-EPI serum creatinine (preferred) or alternative equation INCLUSION CRITERIA: Pre-RRT, CC, Tx TIMING: 6-monthly REPORTING SOURCE: Administrative data TYPE: Single answer

Data type

text

Alias
UMLS CUI [1,1]
C0232804
UMLS CUI [1,2]
C0564454
UMLS CUI [1,3]
C1299991
Indicate the units used for serum creatinine measurement
Description

INCLUSION CRITERIA: If "1 = Serum Creatinine" or "3 = Serum Creatinine + eGFR" to RFUNC TIMING: 6-monthly REPORTING SOURCE: Administrative data TYPE: Single answer

Data type

integer

Alias
UMLS CUI [1,1]
C0201976
UMLS CUI [1,2]
C1519795
Provide the serum creatinine value
Description

INCLUSION CRITERIA: If "1 = Serum Creatinine" or "3 = Serum Creatinine + eGFR" to RFUNC TIMING: 6-monthly REPORTING SOURCE: Administrative data TYPE: Numerical

Data type

float

Alias
UMLS CUI [1,1]
C0201976
UMLS CUI [1,2]
C2826772
Provide the eGFR equation
Description

INCLUSION CRITERIA: If "2 = eGFR" or "3 = Serum Creatinine + eGFR" to RFUNC TIMING: 6-monthly REPORTING SOURCE: Administrative data TYPE: Single answer

Data type

text

Alias
UMLS CUI [1]
C4544895
Provide the eGFR value
Description

INCLUSION CRITERIA: If "2 = eGFR" or "3 = Serum Creatinine + eGFR" to RFUNC TIMING: 6-monthly REPORTING SOURCE: Administrative data TYPE: Numerical

Data type

float

Alias
UMLS CUI [1,1]
C3811844
UMLS CUI [1,2]
C2826772
Provide the date of renal function measurement
Description

INCLUSION CRITERIA: If "1 = Serum Creatinine", "2 = eGFR" or "3 = Serum Creatinine + eGFR" to RFUNC TIMING: 6-monthly REPORTING SOURCE: Administrative data TYPE: Date by DD/MM/YYYY

Data type

date

Measurement units
  • DD/MM/YYYY
Alias
UMLS CUI [1,1]
C0232804
UMLS CUI [1,2]
C0011008
UMLS CUI [1,3]
C0242485
DD/MM/YYYY
Indicate whether albuminuria was measured
Description

Urine albumin/creatinine ratio in spot urine (preferred), or urine protein/creatinine ratio (alternative) INCLUSION CRITERIA: Pre-RRT, CC, Tx TIMING: Annually REPORTING SOURCE: Administrative data TYPE: Single answer

Data type

integer

Alias
UMLS CUI [1]
C0001925
UMLS CUI [2]
C0033687
Indicate the units used for albuminuria measurement
Description

INCLUSION CRITERIA: If "1 = Urine albumin/creatinine ratio in spot urine" or "2 = Urine protein/creatinine ratio in spot urine" to ALB TIMING: Annually REPORTING SOURCE: Administrative data TYPE: Single answer

Data type

integer

Alias
UMLS CUI [1,1]
C0001925
UMLS CUI [1,2]
C1519795
UMLS CUI [2,1]
C1519795
UMLS CUI [2,2]
C0033687
Provide urine ACR in spot urine(mg/g, mg/mmol)
Description

INCLUSION CRITERIA: If "1 = Urine albumin/creatinine ratio in spot urine" to ALB TIMING: Annually REPORTING SOURCE: Administrative data TYPE: Numerical

Data type

float

Alias
UMLS CUI [1,1]
C0001925
UMLS CUI [1,2]
C2826772
Provide urine PCR in spot urine(mg/g, mg/mmol)
Description

INCLUSION CRITERIA: If "2 = Urine protein/creatinine ratio in spot urine" to ALB TIMING: Annually REPORTING SOURCE: Administrative data TYPE: Numerical

Data type

float

Alias
UMLS CUI [1,1]
C0033687
UMLS CUI [1,2]
C1274040
Provide the date of albuminuria measurement
Description

INCLUSION CRITERIA: If "1 = yes" to ALB TIMING: Annually REPORTING SOURCE: Administrative data TYPE: Date by DD/MM/YYYY

Data type

date

Measurement units
  • DD/MM/YYYY
Alias
UMLS CUI [1,1]
C0001925
UMLS CUI [1,2]
C0011008
UMLS CUI [1,3]
C0242485
UMLS CUI [2,1]
C0033687
UMLS CUI [2,2]
C0011008
UMLS CUI [2,3]
C0242485
DD/MM/YYYY
Indicate if the patient was diagnosed with bacteraemia
Description

Positive blood culture with clinical signs and symptoms INCLUSION CRITERIA: HD, PD, Tx TIMING: 6-monthly REPORTING SOURCE: Clinical TYPE: Single answer

Data type

integer

Alias
UMLS CUI [1]
C0004610
Indicate how many episodes of bacteraemia the patient was diagnosed with
Description

INCLUSION CRITERIA: If "1 = yes" to BACTER TIMING: 6-monthly REPORTING SOURCE: Clinical TYPE: Numerical

Data type

integer

Alias
UMLS CUI [1,1]
C4086638
UMLS CUI [1,2]
C0004610
Indicate the type of the most recent vascular access
Description

INCLUSION CRITERIA: HD TIMING: Annually REPORTING SOURCE: Administrative or Clinical TYPE: Single answer

Data type

integer

Alias
UMLS CUI [1,1]
C0750138
UMLS CUI [1,2]
C0019004
Indicate whether a subsequent vascular access had to be created
Description

INCLUSION CRITERIA: HD TIMING: 6-monthly REPORTING SOURCE: Administrative or Clinical TYPE: Single answer

Data type

integer

Alias
UMLS CUI [1,1]
C0019004
UMLS CUI [1,2]
C0750138
UMLS CUI [1,3]
C0332282
Provide the date of starting haemodialysis using the subsequent vascular access
Description

Multiple dates possible INCLUSION CRITERIA: If "1 = yes" to HDNEW TIMING: 6-monthly REPORTING SOURCE: Administrative or Clinical TYPE: Date by DD/MM/YYYY

Data type

date

Measurement units
  • DD/MM/YYYY
Alias
UMLS CUI [1,1]
C0019004
UMLS CUI [1,2]
C0750138
UMLS CUI [1,3]
C0332282
UMLS CUI [1,4]
C0011008
DD/MM/YYYY
Indicate the type of new vascular access
Description

INCLUSION CRITERIA: If "1 = yes" to HDNEW TIMING: 6-monthly REPORTING SOURCE: Administrative or Clinical TYPE: Date by DD/MM/YYYY

Data type

integer

Alias
UMLS CUI [1,1]
C0019004
UMLS CUI [1,2]
C0750138
UMLS CUI [1,3]
C0332282
UMLS CUI [1,4]
C0332307
Indicate whether treatment was sustainably switched (to conservative care, haemodialysis or transplant)
Description

Sustained switch is defined as >30 days INCLUSION CRITERIA: PD TIMING: Ongoing REPORTING SOURCE: Administrative or Clinical TYPE: Single answer

Data type

integer

Alias
UMLS CUI [1,1]
C1299575
UMLS CUI [1,2]
C1517320
UMLS CUI [1,3]
C0031139
Provide the date of starting conservative, haemodialysis or transplant
Description

INCLUSION CRITERIA: If "1 = yes" to PDSWITCH TIMING: Ongoing REPORTING SOURCE: Administrative or Clinical TYPE: Date by DD/MM/YYYY

Data type

date

Measurement units
  • DD/MM/YYYY
Alias
UMLS CUI [1,1]
C1299575
UMLS CUI [1,2]
C1517320
UMLS CUI [1,3]
C0031139
UMLS CUI [1,4]
C0011008
DD/MM/YYYY
Indicate if the patient was diagnosed with peritonitis
Description

Clinically suspected and/or culture-proven peritonitis Episodes of peritonitis defined as clinical sings of peritoneal inflammation or peritoneal fluid leukocyte count of > 0.1 x 10^9/L with at least 50percent polymorphonuclear neutrophilic cells or positive culture of peritoneal fluid INCLUSION CRITERIA: PD TIMING: 6-monthly REPORTING SOURCE: Clinical TYPE: Single answer

Data type

integer

Alias
UMLS CUI [1,1]
C0031154
UMLS CUI [1,2]
C0031139
Indicate whether peritonitis was clinically suspected and/or culture-proven
Description

INCLUSION CRITERIA: If "1 = yes" to PERITON TIMING: 6-monthly REPORTING SOURCE: Clinical TYPE: Single answer

Data type

integer

Alias
UMLS CUI [1,1]
C0031154
UMLS CUI [1,2]
C0031139
UMLS CUI [1,3]
C0565962
Indicate how many episodes of peritonitis the patient was diagnosed with
Description

INCLUSION CRITERIA: If "1 = yes" to PERITON TIMING: 6-monthly REPORTING SOURCE: Clinical TYPE: Numerical

Data type

integer

Alias
UMLS CUI [1,1]
C0031154
UMLS CUI [1,2]
C0031139
UMLS CUI [1,3]
C4086638
Provide the date of transplant surgery
Description

INCLUSION CRITERIA: Tx TIMING: Annually REPORTING SOURCE: Administrative data TYPE: Date by DD/MM/YYYY

Data type

date

Measurement units
  • DD/MM/YYYY
Alias
UMLS CUI [1,1]
C0022671
UMLS CUI [1,2]
C0011008
DD/MM/YYYY
Indicate whether there has been a subsequent kidney transplant
Description

INCLUSION CRITERIA: Tx TIMING: Annually REPORTING SOURCE: Administrative data TYPE: Single Answer

Data type

integer

Alias
UMLS CUI [1,1]
C0022671
UMLS CUI [1,2]
C0332282
Was the transplanted kidney from a living or deceased donor?
Description

INCLUSION CRITERIA: If "1 = yes" to TRANSNEW TIMING: Annually REPORTING SOURCE: Administrative data TYPE: Single Answer

Data type

integer

Alias
UMLS CUI [1,1]
C0022671
UMLS CUI [1,2]
C0029206
UMLS CUI [1,3]
C0332282
Indicate whether an episode of biopsy-proven and/or clinically-suspected acute rejection of the kidney transplant was diagnosed
Description

According to Banff classification. Category 2: acute/active antibody-mediated rejection, category 3, category 4: acute/active T-cell mediated rejection INCLUSION CRITERIA: Tx TIMING: 6-monthly for the first year, then annually REPORTING SOURCE: Clinical TYPE: Single answer

Data type

integer

Alias
UMLS CUI [1]
C0238217
Indicate whether acute rejection was clinically suspected and/or biopsy-proven
Description

INCLUSION CRITERIA: If "1 = yes" to TRANSNEW TIMING: 6-monthly for the first year, then annually REPORTING SOURCE: Clinical TYPE: Single answer

Data type

integer

Alias
UMLS CUI [1,1]
C0238217
UMLS CUI [1,2]
C0565962
Provide the date of acute rejection diagnosis
Description

INCLUSION CRITERIA: If "1 = yes" to If "1 = yes" to TRANSREJ TIMING: 6-monthly for the first year, then annually REPORTING SOURCE: Clinical TYPE: Date by DD/MM/YYYY

Data type

date

Measurement units
  • DD/MM/YYYY
Alias
UMLS CUI [1,1]
C0238217
UMLS CUI [1,2]
C0011008
DD/MM/YYYY
Indicate whether the patient has any malignancies
Description

INCLUSION CRITERIA: Tx TIMING: Annually REPORTING SOURCE: Administrative or Clinical TYPE: Single answer

Data type

integer

Alias
UMLS CUI [1]
C0006826
Indicate whether the malignancy is a solid tumour
Description

INCLUSION CRITERIA: If "1 = yes" to MALIG TIMING: Annually REPORTING SOURCE: Administrative or Clinical TYPE: Single answer

Data type

integer

Alias
UMLS CUI [1,1]
C0006826
UMLS CUI [1,2]
C0280100
Indicate whether the malignancy is skin cancer
Description

INCLUSION CRITERIA: If "1 = yes" to MALIG TIMING: Annually REPORTING SOURCE: Administrative or Clinical TYPE: Single answer

Data type

integer

Alias
UMLS CUI [1]
C0007114
Indicate whether the malignancy is a haematological malignancy
Description

INCLUSION CRITERIA: If "1 = yes" to MALIG TIMING: Annually REPORTING SOURCE: Administrative or Clinical TYPE: Single answer

Data type

integer

Alias
UMLS CUI [1,1]
C0006826
UMLS CUI [1,2]
C0376545
Indicate the date of malignancy diagnosis
Description

INCLUSION CRITERIA: If "1 = yes" to MALIG TIMING: Annually REPORTING SOURCE: Administrative or Clinical TYPE: Date by DD/MM/YYYY

Data type

date

Measurement units
  • DD/MM/YYYY
Alias
UMLS CUI [1,1]
C2316983
UMLS CUI [1,2]
C0006826
DD/MM/YYYY
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Similar models

Treatment-specific (Clinical / administrative)

1 forms
Name
Type
Description | Question | Decode (Coded Value)
Data type
Alias
Item Group
Administrative Data
C1320722 (UMLS CUI-1)
Patient ID
Item
Indicate the patient's medical record number
integer
C1269815 (UMLS CUI [1])
Time Relative to Baseline
Item
Time Relative to Baseline (e.g. Baseline, 6 months follow-up, 1 year follow-up, ...)
text
C0439564 (UMLS CUI [1,1])
C1442488 (UMLS CUI [1,2])
Item Group
Treatment-Specific
C0087111 (UMLS CUI-1)
Item
Indicate how renal/kidney allograft function was measured
text
C0232804 (UMLS CUI [1,1])
C0564454 (UMLS CUI [1,2])
C1299991 (UMLS CUI [1,3])
Renal/Kidney Allograft Function
Code List
Indicate how renal/kidney allograft function was measured
CL Item
No measurement taken (0)
CL Item
CKD-EPI Serum Creatinine (1)
CL Item
eGFR (2)
CL Item
Serum Creatinine + eGFR (3)
CL Item
Unknown (999)
Item
Indicate the units used for serum creatinine measurement
integer
C0201976 (UMLS CUI [1,1])
C1519795 (UMLS CUI [1,2])
Serum Creatinine unit
Code List
Indicate the units used for serum creatinine measurement
CL Item
umol/l (1)
CL Item
mg/dl (2)
Serum Creatinine
Item
Provide the serum creatinine value
float
C0201976 (UMLS CUI [1,1])
C2826772 (UMLS CUI [1,2])
Item
Provide the eGFR equation
text
C4544895 (UMLS CUI [1])
eGFR equation
Code List
Provide the eGFR equation
CL Item
CKD-EPI Serum Creatinine (1)
CL Item
MDRD-4 (2)
CL Item
MDRD-6 (3)
CL Item
Cockcroft-Gault (4)
CL Item
Other (5)
eGFR value
Item
Provide the eGFR value
float
C3811844 (UMLS CUI [1,1])
C2826772 (UMLS CUI [1,2])
Renal function measurement date
Item
Provide the date of renal function measurement
date
C0232804 (UMLS CUI [1,1])
C0011008 (UMLS CUI [1,2])
C0242485 (UMLS CUI [1,3])
Item
Indicate whether albuminuria was measured
integer
C0001925 (UMLS CUI [1])
C0033687 (UMLS CUI [2])
Albuminuria
Code List
Indicate whether albuminuria was measured
CL Item
No  (0)
CL Item
Urine albumin/creatinine ratio in spot urine (1)
CL Item
Urine protein/creatinine ratio in spot urine (2)
CL Item
Unknown (999)
Item
Indicate the units used for albuminuria measurement
integer
C0001925 (UMLS CUI [1,1])
C1519795 (UMLS CUI [1,2])
C1519795 (UMLS CUI [2,1])
C0033687 (UMLS CUI [2,2])
Units of albuminuria measurement
Code List
Indicate the units used for albuminuria measurement
CL Item
mg/g (1)
CL Item
mg/mmol (2)
Urine ACR
Item
Provide urine ACR in spot urine(mg/g, mg/mmol)
float
C0001925 (UMLS CUI [1,1])
C2826772 (UMLS CUI [1,2])
Urine PCR
Item
Provide urine PCR in spot urine(mg/g, mg/mmol)
float
C0033687 (UMLS CUI [1,1])
C1274040 (UMLS CUI [1,2])
Albuminuria measurement
Item
Provide the date of albuminuria measurement
date
C0001925 (UMLS CUI [1,1])
C0011008 (UMLS CUI [1,2])
C0242485 (UMLS CUI [1,3])
C0033687 (UMLS CUI [2,1])
C0011008 (UMLS CUI [2,2])
C0242485 (UMLS CUI [2,3])
Item
Indicate if the patient was diagnosed with bacteraemia
integer
C0004610 (UMLS CUI [1])
Bacteraemia
Code List
Indicate if the patient was diagnosed with bacteraemia
CL Item
No  (0)
CL Item
Yes (1)
CL Item
Unknown (999)
Number of diagnosed bacteraemia episodes
Item
Indicate how many episodes of bacteraemia the patient was diagnosed with
integer
C4086638 (UMLS CUI [1,1])
C0004610 (UMLS CUI [1,2])
Item
Indicate the type of the most recent vascular access
integer
C0750138 (UMLS CUI [1,1])
C0019004 (UMLS CUI [1,2])
Vascular access type
Code List
Indicate the type of the most recent vascular access
CL Item
AV graft (1)
CL Item
AV fistula (2)
CL Item
Catheter (3)
Item
Indicate whether a subsequent vascular access had to be created
integer
C0019004 (UMLS CUI [1,1])
C0750138 (UMLS CUI [1,2])
C0332282 (UMLS CUI [1,3])
Subsequent vascular access
Code List
Indicate whether a subsequent vascular access had to be created
CL Item
No  (0)
CL Item
Yes (1)
CL Item
Unknown (999)
Subsequent vascular access date
Item
Provide the date of starting haemodialysis using the subsequent vascular access
date
C0019004 (UMLS CUI [1,1])
C0750138 (UMLS CUI [1,2])
C0332282 (UMLS CUI [1,3])
C0011008 (UMLS CUI [1,4])
Item
Indicate the type of new vascular access
integer
C0019004 (UMLS CUI [1,1])
C0750138 (UMLS CUI [1,2])
C0332282 (UMLS CUI [1,3])
C0332307 (UMLS CUI [1,4])
New vascular access type
Code List
Indicate the type of new vascular access
CL Item
AV graft (1)
CL Item
AV fistula (2)
CL Item
Catheter (3)
Item
Indicate whether treatment was sustainably switched (to conservative care, haemodialysis or transplant)
integer
C1299575 (UMLS CUI [1,1])
C1517320 (UMLS CUI [1,2])
C0031139 (UMLS CUI [1,3])
Treatment pathway change
Code List
Indicate whether treatment was sustainably switched (to conservative care, haemodialysis or transplant)
CL Item
No  (0)
CL Item
Yes (1)
CL Item
Unknown (999)
Treatment pathway change date
Item
Provide the date of starting conservative, haemodialysis or transplant
date
C1299575 (UMLS CUI [1,1])
C1517320 (UMLS CUI [1,2])
C0031139 (UMLS CUI [1,3])
C0011008 (UMLS CUI [1,4])
Item
Indicate if the patient was diagnosed with peritonitis
integer
C0031154 (UMLS CUI [1,1])
C0031139 (UMLS CUI [1,2])
Peritonitis
Code List
Indicate if the patient was diagnosed with peritonitis
CL Item
No  (0)
CL Item
Yes (1)
CL Item
Unknown (999)
Item
Indicate whether peritonitis was clinically suspected and/or culture-proven
integer
C0031154 (UMLS CUI [1,1])
C0031139 (UMLS CUI [1,2])
C0565962 (UMLS CUI [1,3])
Peritonitis
Code List
Indicate whether peritonitis was clinically suspected and/or culture-proven
CL Item
Clinically suspected (1)
CL Item
Culture proven (2)
CL Item
Clinically suspected and culture proven (3)
Item
Indicate how many episodes of peritonitis the patient was diagnosed with
integer
C0031154 (UMLS CUI [1,1])
C0031139 (UMLS CUI [1,2])
C4086638 (UMLS CUI [1,3])
Peritonitis
Code List
Indicate how many episodes of peritonitis the patient was diagnosed with
Date of kidney transplant
Item
Provide the date of transplant surgery
date
C0022671 (UMLS CUI [1,1])
C0011008 (UMLS CUI [1,2])
Item
Indicate whether there has been a subsequent kidney transplant
integer
C0022671 (UMLS CUI [1,1])
C0332282 (UMLS CUI [1,2])
Subsequent kidney transplant
Code List
Indicate whether there has been a subsequent kidney transplant
CL Item
No  (0)
CL Item
Yes (1)
CL Item
Unknown (999)
Item
Was the transplanted kidney from a living or deceased donor?
integer
C0022671 (UMLS CUI [1,1])
C0029206 (UMLS CUI [1,2])
C0332282 (UMLS CUI [1,3])
Subsequent kidney transplant
Code List
Was the transplanted kidney from a living or deceased donor?
CL Item
Living donor (1)
CL Item
Unknown (999)
CL Item
Deceased donor (2)
Item
Indicate whether an episode of biopsy-proven and/or clinically-suspected acute rejection of the kidney transplant was diagnosed
integer
C0238217 (UMLS CUI [1])
Kidney transplant rejection
Code List
Indicate whether an episode of biopsy-proven and/or clinically-suspected acute rejection of the kidney transplant was diagnosed
CL Item
No  (0)
CL Item
Yes (1)
CL Item
Unknown (999)
Item
Indicate whether acute rejection was clinically suspected and/or biopsy-proven
integer
C0238217 (UMLS CUI [1,1])
C0565962 (UMLS CUI [1,2])
Transplant rejection diagnosis
Code List
Indicate whether acute rejection was clinically suspected and/or biopsy-proven
CL Item
Clinically suspected (1)
CL Item
Biopsy proven (2)
CL Item
Clinically suspected and culture proven (3)
Kidney transplant rejection date
Item
Provide the date of acute rejection diagnosis
date
C0238217 (UMLS CUI [1,1])
C0011008 (UMLS CUI [1,2])
Item
Indicate whether the patient has any malignancies
integer
C0006826 (UMLS CUI [1])
Malignancies
Code List
Indicate whether the patient has any malignancies
CL Item
No  (0)
CL Item
Yes (1)
CL Item
Unknown (999)
Item
Indicate whether the malignancy is a solid tumour
integer
C0006826 (UMLS CUI [1,1])
C0280100 (UMLS CUI [1,2])
Malignancies type 1
Code List
Indicate whether the malignancy is a solid tumour
CL Item
No  (0)
CL Item
Yes (1)
CL Item
Unknown (999)
Item
Indicate whether the malignancy is skin cancer
integer
C0007114 (UMLS CUI [1])
Malignancies type 2
Code List
Indicate whether the malignancy is skin cancer
CL Item
No  (0)
CL Item
Yes (1)
CL Item
Unknown (999)
Item
Indicate whether the malignancy is a haematological malignancy
integer
C0006826 (UMLS CUI [1,1])
C0376545 (UMLS CUI [1,2])
Malignancies type 3
Code List
Indicate whether the malignancy is a haematological malignancy
CL Item
No  (0)
CL Item
Yes (1)
CL Item
Unknown (999)
Date of malignancy diagnosis
Item
Indicate the date of malignancy diagnosis
date
C2316983 (UMLS CUI [1,1])
C0006826 (UMLS CUI [1,2])
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