ID

40336

Descrizione

DELCODE is conducted by DZNE, the German Center for Neurodegenerative Diseases within the Helmholtz Association. The following information was taken from https://www.dzne.de/en/research/studies/clinical-studies/delcode/. Background and aims: One of the important aims of research into Alzheimer's is to find ways of detecting the disease early – if at all possible, as soon as the first minor symptoms appear, or even before any symptoms at all have appeared. Such detection capabilities are the necessary basis for development of therapies that can be applied at such early stages in the disease. Recent research indicates that such therapies could be more effective than therapies initiated during the disease's later stages. Over a period of several years, the DELCODE study is studying persons in early stages of the disease, along with various risk groups. The research is aimed at the development of procedures for characterizing early stages of the disease, at improving prediction of the course of the disease and at identifying new markers for early diagnosis of Alzheimer's-related dementia. Overview: DELCODE is set up to run for an initial period of three years, and to include a total of 1,000 study participants, who will be examined on a yearly basis. The group of participants will include persons with no complaints (healthy control subjects), patients with slight memory impairment or mild dementia and first-degree relatives of patients with diagnosed Alzheimer's disease. The minimum age for participants is 60. Course of the study: The examinations in the framework of the study will include a comprehensive interview carried out by a study investigator, a detailed neuropsychological examination (testing of memory functions and other areas of cognitive performance), a blood test and a cranial MRI scan. Optionally, subject to the study participant's consent in each case, a lumbar puncture (collection of cerebrospinal fluid) will be carried out." For more information (e.g. principle investigator and study coordination), please visit the above link or https://www.dzne.de. This document contains the medical history cognition 3 form. It has to be filled in for Baseline and all Follow-ups. Note: The Form "Medical history cognition 1" has to be filled in with subject whereas the form "Medical history cognition 2" with the informant and the form "Medical history cognition 3" by the physician/ medical person.

collegamento

https://www.dzne.de/en/research/studies/clinical-studies/delcode/

Keywords

  1. 09/04/20 09/04/20 -
Titolare del copyright

DZNE

Caricato su

9 aprile 2020

DOI

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Licenza

Creative Commons BY-NC 4.0

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DELCODE: DZNE – Longitudinal Cognitive Impairment and Dementia Study

Medical history cognition 3 (Anamnese Kognition 3)

Administrative Daten
Descrizione

Administrative Daten

Alias
UMLS CUI-1
C1320722
Studien ID
Descrizione

Study ID

Tipo di dati

text

Alias
UMLS CUI [1]
C2826693
Visitendatum
Descrizione

Tag Monat Jahr

Tipo di dati

date

Alias
UMLS CUI [1]
C1320303
Visite
Descrizione

Bitte geben Sie an, für welche Visite das vorliegende Dokument ausgefüllt werden soll.

Tipo di dati

integer

Alias
UMLS CUI [1,1]
C0545082
UMLS CUI [1,2]
C0332307
Anamnese Kognition (ergänzende Information)
Descrizione

Anamnese Kognition (ergänzende Information)

Alias
UMLS CUI-1
C0262926
UMLS CUI-2
C0009240
UMLS CUI-3
C1524062
UMLS CUI-4
C1533716
Sind bekannte medizinische Gründe die primäre Ursache der kognitiven Störung?
Descrizione

Known medical reasons primary cause of cognitive disorder

Tipo di dati

integer

Alias
UMLS CUI [1,1]
C0205309
UMLS CUI [1,2]
C0205225
UMLS CUI [1,3]
C1314792
UMLS CUI [1,4]
C0338656
Liegen starke Fluktuationen der kognitiven Leistung vor?
Descrizione

Fluctuation of cognition

Tipo di dati

integer

Alias
UMLS CUI [1,1]
C0231239
UMLS CUI [1,2]
C0009240
Beginn der kognitiven Störung:
Descrizione

Nur für Baseline auszufüllen

Tipo di dati

integer

Alias
UMLS CUI [1,1]
C0338656
UMLS CUI [1,2]
C0439659
Verlauf der kognitiven Störung:
Descrizione

Process of cognitive impairement

Tipo di dati

integer

Alias
UMLS CUI [1,1]
C0338656
UMLS CUI [1,2]
C0449259
Falls ein Parkinson ‐ Syndrom vorliegt, geben Sie bitte die zeitliche Reihenfolge zwischen Parkinson Symptomen und kognitiver Störung an.
Descrizione

Chronological order between Parkinson's symptoms and cognitive disorder

Tipo di dati

integer

Alias
UMLS CUI [1,1]
C0872291
UMLS CUI [1,2]
C0030567
UMLS CUI [1,3]
C1457887
UMLS CUI [1,4]
C0338656

Similar models

Medical history cognition 3 (Anamnese Kognition 3)

Name
genere
Description | Question | Decode (Coded Value)
Tipo di dati
Alias
Item Group
Administrative Daten
C1320722 (UMLS CUI-1)
Study ID
Item
Studien ID
text
C2826693 (UMLS CUI [1])
Date of Visit
Item
Visitendatum
date
C1320303 (UMLS CUI [1])
Item
Visite
integer
C0545082 (UMLS CUI [1,1])
C0332307 (UMLS CUI [1,2])
Code List
Visite
CL Item
1 (1)
CL Item
2 (2)
CL Item
3 (3)
CL Item
4 (4)
CL Item
5 (5)
CL Item
6 (6)
CL Item
7 (7)
CL Item
8 (8)
CL Item
9 (9)
CL Item
Baseline (0)
Item Group
Anamnese Kognition (ergänzende Information)
C0262926 (UMLS CUI-1)
C0009240 (UMLS CUI-2)
C1524062 (UMLS CUI-3)
C1533716 (UMLS CUI-4)
Item
Sind bekannte medizinische Gründe die primäre Ursache der kognitiven Störung?
integer
C0205309 (UMLS CUI [1,1])
C0205225 (UMLS CUI [1,2])
C1314792 (UMLS CUI [1,3])
C0338656 (UMLS CUI [1,4])
Code List
Sind bekannte medizinische Gründe die primäre Ursache der kognitiven Störung?
CL Item
Nein (0)
CL Item
Ja (1)
CL Item
Unbekannt (997)
Item
Liegen starke Fluktuationen der kognitiven Leistung vor?
integer
C0231239 (UMLS CUI [1,1])
C0009240 (UMLS CUI [1,2])
Code List
Liegen starke Fluktuationen der kognitiven Leistung vor?
CL Item
Nein (0)
CL Item
Ja (1)
CL Item
Unbekannt (997)
Item
Beginn der kognitiven Störung:
integer
C0338656 (UMLS CUI [1,1])
C0439659 (UMLS CUI [1,2])
Code List
Beginn der kognitiven Störung:
CL Item
plötzlich (1)
CL Item
schleichend (2)
CL Item
unbekannt (997)
Item
Verlauf der kognitiven Störung:
integer
C0338656 (UMLS CUI [1,1])
C0449259 (UMLS CUI [1,2])
Code List
Verlauf der kognitiven Störung:
CL Item
langsames Fortschreiten (1)
CL Item
rasches Fortschreiten (2)
CL Item
treppenförmig (3)
CL Item
unbekannt (997)
Item
Falls ein Parkinson ‐ Syndrom vorliegt, geben Sie bitte die zeitliche Reihenfolge zwischen Parkinson Symptomen und kognitiver Störung an.
integer
C0872291 (UMLS CUI [1,1])
C0030567 (UMLS CUI [1,2])
C1457887 (UMLS CUI [1,3])
C0338656 (UMLS CUI [1,4])
Code List
Falls ein Parkinson ‐ Syndrom vorliegt, geben Sie bitte die zeitliche Reihenfolge zwischen Parkinson Symptomen und kognitiver Störung an.
CL Item
deutliche nach (> 1 Jahr) Auftreten der Parkinson Symptome (1)
CL Item
zeitgleich mit Auftreten der Parkinson Symptome (2)
CL Item
deutlich vor Auftreten der Parkinson Symptome (3)
CL Item
unbekannt (997)

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