ID
40335
Beschrijving
DELCODE is conducted by DZNE, the German Center for Neurodegenerative Diseases within the Helmholtz Association. The following information was taken from https://www.dzne.de/en/research/studies/clinical-studies/delcode/. Background and aims: One of the important aims of research into Alzheimer's is to find ways of detecting the disease early – if at all possible, as soon as the first minor symptoms appear, or even before any symptoms at all have appeared. Such detection capabilities are the necessary basis for development of therapies that can be applied at such early stages in the disease. Recent research indicates that such therapies could be more effective than therapies initiated during the disease's later stages. Over a period of several years, the DELCODE study is studying persons in early stages of the disease, along with various risk groups. The research is aimed at the development of procedures for characterizing early stages of the disease, at improving prediction of the course of the disease and at identifying new markers for early diagnosis of Alzheimer's-related dementia. Overview: DELCODE is set up to run for an initial period of three years, and to include a total of 1,000 study participants, who will be examined on a yearly basis. The group of participants will include persons with no complaints (healthy control subjects), patients with slight memory impairment or mild dementia and first-degree relatives of patients with diagnosed Alzheimer's disease. The minimum age for participants is 60. Course of the study: The examinations in the framework of the study will include a comprehensive interview carried out by a study investigator, a detailed neuropsychological examination (testing of memory functions and other areas of cognitive performance), a blood test and a cranial MRI scan. Optionally, subject to the study participant's consent in each case, a lumbar puncture (collection of cerebrospinal fluid) will be carried out." For more information (e.g. principle investigator and study coordination), please visit the above link or https://www.dzne.de. This document contains the medical history cognition 2 form. It has to be filled in for Baseline and all Follow-ups. Note: The Form "Medical history cognition 1" has to be filled in with subject whereas the form "Medical history cognition 2" with the informant and the form "Medical history cognition 3" by the physician/ medical person.
Link
https://www.dzne.de/en/research/studies/clinical-studies/delcode/
Trefwoorden
Versies (1)
- 09-04-20 09-04-20 -
Houder van rechten
DZNE
Geüploaded op
9 april 2020
DOI
Voor een aanvraag inloggen.
Licentie
Creative Commons BY-NC 4.0
Model Commentaren :
Hier kunt u commentaar leveren op het model. U kunt de tekstballonnen bij de itemgroepen en items gebruiken om er specifiek commentaar op te geven.
Itemgroep Commentaren voor :
Item Commentaren voor :
U moet ingelogd zijn om formulieren te downloaden. AUB inloggen of schrijf u gratis in.
DELCODE: DZNE – Longitudinal Cognitive Impairment and Dementia Study
Medical history cognition 2 (Anamnese Kognition 2)
- StudyEvent: ODM
Beschrijving
Fragen an den Informant
Alias
- UMLS CUI-1
- C0262926
- UMLS CUI-2
- C0009240
- UMLS CUI-3
- C1997894
- UMLS CUI-4
- C3842888
Beschrijving
Interviewing an informant
Datatype
integer
Alias
- UMLS CUI [1]
- C3842888
Beschrijving
Reason for no interview of an informant
Datatype
integer
Alias
- UMLS CUI [1,1]
- C0392360
- UMLS CUI [1,2]
- C1298908
- UMLS CUI [1,3]
- C3842888
Beschrijving
(nur eine Antwort ist möglich)
Datatype
integer
Alias
- UMLS CUI [1,1]
- C3842888
- UMLS CUI [1,2]
- C1533716
- UMLS CUI [1,3]
- C1709908
Beschrijving
(nur eine Antwort ist möglich)
Datatype
text
Alias
- UMLS CUI [1,1]
- C3842888
- UMLS CUI [1,2]
- C1533716
- UMLS CUI [1,3]
- C1709908
- UMLS CUI [1,4]
- C0205394
- UMLS CUI [1,5]
- C2348235
Beschrijving
Memory impairment
Datatype
integer
Alias
- UMLS CUI [1,1]
- C0233794
- UMLS CUI [1,2]
- C1997894
Beschrijving
Begin of memory impairment
Datatype
integer
Alias
- UMLS CUI [1,1]
- C0439659
- UMLS CUI [1,2]
- C0233794
Beschrijving
Increased word finding disorders
Datatype
integer
Alias
- UMLS CUI [1,1]
- C1997894
- UMLS CUI [1,2]
- C0454643
- UMLS CUI [1,3]
- C0442805
Beschrijving
Begin of increased word finding disorder
Datatype
integer
Alias
- UMLS CUI [1,1]
- C0439659
- UMLS CUI [1,2]
- C0454643
- UMLS CUI [1,3]
- C0442805
Beschrijving
Increasing difficulties with forward planning or keeping order
Datatype
integer
Alias
- UMLS CUI [1,1]
- C0442805
- UMLS CUI [1,2]
- C0423907
- UMLS CUI [1,3]
- C1997894
- UMLS CUI [2,1]
- C0442805
- UMLS CUI [2,2]
- C1299586
- UMLS CUI [2,3]
- C1705176
- UMLS CUI [2,4]
- C1997894
Beschrijving
Begin of increasing difficulties with forward planning/ keeping order
Datatype
integer
Alias
- UMLS CUI [1,1]
- C0439659
- UMLS CUI [1,2]
- C0442805
- UMLS CUI [1,3]
- C0423907
- UMLS CUI [1,4]
- C1997894
- UMLS CUI [2,1]
- C0439659
- UMLS CUI [2,2]
- C0442805
- UMLS CUI [2,3]
- C1299586
- UMLS CUI [2,4]
- C1705176
- UMLS CUI [2,5]
- C1997894
Beschrijving
Increased mental mistakes
Datatype
integer
Alias
- UMLS CUI [1,1]
- C1821936
- UMLS CUI [1,2]
- C1997894
Beschrijving
Begin of increased mental mistakes
Datatype
integer
Alias
- UMLS CUI [1,1]
- C0439659
- UMLS CUI [1,2]
- C1821936
Beschrijving
Other mental impairment
Datatype
integer
Alias
- UMLS CUI [1,1]
- C1997894
- UMLS CUI [1,2]
- C0683322
- UMLS CUI [1,3]
- C0205394
Beschrijving
Other mental impairement, specification
Datatype
text
Alias
- UMLS CUI [1,1]
- C1997894
- UMLS CUI [1,2]
- C0683322
- UMLS CUI [1,3]
- C0205394
- UMLS CUI [1,4]
- C2348235
Beschrijving
Begin of other mental impairment
Datatype
integer
Alias
- UMLS CUI [1,1]
- C0439659
- UMLS CUI [1,2]
- C0683322
- UMLS CUI [1,3]
- C0205394
Beschrijving
Change of behaviour/ personality
Datatype
integer
Alias
- UMLS CUI [1,1]
- C1997894
- UMLS CUI [1,2]
- C0392747
- UMLS CUI [1,3]
- C0004927
- UMLS CUI [2,1]
- C1997894
- UMLS CUI [2,2]
- C0240735
Beschrijving
Begin of change of behaviour/ personality
Datatype
integer
Alias
- UMLS CUI [1,1]
- C0439659
- UMLS CUI [1,2]
- C1997894
- UMLS CUI [1,3]
- C0392747
- UMLS CUI [1,4]
- C0004927
- UMLS CUI [2,1]
- C0439659
- UMLS CUI [2,2]
- C1997894
- UMLS CUI [2,3]
- C0240735
Beschrijving
Nur für die Follow-up Visiten auszufüllen.
Datatype
integer
Alias
- UMLS CUI [1,1]
- C1997894
- UMLS CUI [1,2]
- C0392747
- UMLS CUI [1,3]
- C3840291
- UMLS CUI [1,4]
- C1711239
- UMLS CUI [1,5]
- C1517741
- UMLS CUI [1,6]
- C0545082
Similar models
Medical history cognition 2 (Anamnese Kognition 2)
- StudyEvent: ODM
C0009240 (UMLS CUI-2)
C1997894 (UMLS CUI-3)
C3842888 (UMLS CUI-4)
C1298908 (UMLS CUI [1,2])
C3842888 (UMLS CUI [1,3])
C1533716 (UMLS CUI [1,2])
C1709908 (UMLS CUI [1,3])
C1533716 (UMLS CUI [1,2])
C1709908 (UMLS CUI [1,3])
C0205394 (UMLS CUI [1,4])
C2348235 (UMLS CUI [1,5])
C1997894 (UMLS CUI [1,2])
C0233794 (UMLS CUI [1,2])
C0454643 (UMLS CUI [1,2])
C0442805 (UMLS CUI [1,3])
C0454643 (UMLS CUI [1,2])
C0442805 (UMLS CUI [1,3])
C0423907 (UMLS CUI [1,2])
C1997894 (UMLS CUI [1,3])
C0442805 (UMLS CUI [2,1])
C1299586 (UMLS CUI [2,2])
C1705176 (UMLS CUI [2,3])
C1997894 (UMLS CUI [2,4])
C0442805 (UMLS CUI [1,2])
C0423907 (UMLS CUI [1,3])
C1997894 (UMLS CUI [1,4])
C0439659 (UMLS CUI [2,1])
C0442805 (UMLS CUI [2,2])
C1299586 (UMLS CUI [2,3])
C1705176 (UMLS CUI [2,4])
C1997894 (UMLS CUI [2,5])
C1997894 (UMLS CUI [1,2])
C1821936 (UMLS CUI [1,2])
C0683322 (UMLS CUI [1,2])
C0205394 (UMLS CUI [1,3])
C0683322 (UMLS CUI [1,2])
C0205394 (UMLS CUI [1,3])
C2348235 (UMLS CUI [1,4])
C0683322 (UMLS CUI [1,2])
C0205394 (UMLS CUI [1,3])
C0392747 (UMLS CUI [1,2])
C0004927 (UMLS CUI [1,3])
C1997894 (UMLS CUI [2,1])
C0240735 (UMLS CUI [2,2])
C1997894 (UMLS CUI [1,2])
C0392747 (UMLS CUI [1,3])
C0004927 (UMLS CUI [1,4])
C0439659 (UMLS CUI [2,1])
C1997894 (UMLS CUI [2,2])
C0240735 (UMLS CUI [2,3])
C0392747 (UMLS CUI [1,2])
C3840291 (UMLS CUI [1,3])
C1711239 (UMLS CUI [1,4])
C1517741 (UMLS CUI [1,5])
C0545082 (UMLS CUI [1,6])